Uyini i-Myxofibrosarcoma? Izimpawu, Izimbangela, Nokwelashwa

I-Myxofibrosarcoma uhlobo lolwempilo oluthinta izicubu ezithambile ezikhula ezicubwini ezihlanganisa imisipha, i-tendons, namanoni. Lolu hlobo lwe-cancer oluyimfihlo luthola igama laso ngokubonakala kwaso okuhlukile ngaphansi komkhiqizo, lapho kubonisa khona ukuxuba kwezicubu ze-fibrous nezinto ezifana nejeli ebizwa ngokuthi yi-myxoid material.

Nakuba lokhu kuxilongwa kungase kuzwakale kukhulu, ukuqonda ukuthi ubhekene nani kungakusiza uzizwe ulungile futhi ulawule. I-Myxofibrosarcoma ivame ukubathinta abantu abadala abangaphezu kweminyaka engu-50 futhi ivame ukukhula ezingalweni nasezinzweni, nakuba ingase ibonakale kwenye indawo emzimbeni.

Ziyini izimpawu ze-myxofibrosarcoma?

Isilwane esivame kakhulu sokuqala yilump noma ukukhula okungapheli ubuhlungu okukhula kancane ezinyangeni noma ezinyangeni. Abantu abaningi bayabona leli lump okokuqala lapho begeza, begqoka, noma ngesikhathi semisebenzi yansuku zonke lapho bezwa into engayikho ngaphambili.

Ake sibheke izimpawu ongazihlangabezana nazo, sikhumbula ukuthi isimo sabo bonke sihlukile:

• I-mass ebushelelezi, ehambayo engase izwe i-squishy noma iqine ukuthinta
• Ukuwanda kancane ngobukhulu belump ngokuhamba kwesikhathi
• Ubuhlungu noma ukucindezeleka endaweni ethintekayo, ikakhulukazi njengoba i-tumor ikhula kakhulu
• Ukunciphisa ukunyakaza noma ukunqamuka uma i-tumor icindezela imisipha noma ama-joints
• Ukushintsha kwesikhumba phezu kwe-tumor, njengokufudumeza noma ukuguquka okuncane kombala
• Ukukhula kwezicubu ezizungezile

Kwezinye izimo, ungase ungaboni zimpawu kuze kube yilapho i-tumor ibe khulu kakhulu. Lokhu kuyinto evamile futhi akusho ukuthi uphuthelwe into ebalulekile. Okubalulekile ukuhlola noma yiluphi lump oluhlala isikhathi eside ngumhlinzeki wezempilo.

Yini ebangela i-myxofibrosarcoma?

Imbangela eqondile ye-myxofibrosarcoma ayiqondakali ngokuphelele, kodwa abacwaningi bakholelwa ukuthi ikhula lapho amaseli avamile ezicubwini zakho ezihlanganisa ezinye izinto zenza izinguquko ze-genetic ezibangela ukukhula okungenakulawuleka. Lezi zinguquko zivame ukwenzeka ngokungahleliwe ngokuhamba kwesikhathi kunokuba zidluliselwe ezihlotsheni.

Izici eziningi zingase zifake isandla kulezi zinguquko zamaseli, nakuba ukuba nalezi zici akusho ukuthi uzokhula ngokuqinisekile le cancer:

• Ukwelashwa ngomgogodla ngaphambili endaweni ethintekayo, ngisho neminyaka eminingi ngaphambili
• Isimo esithile se-genetic esithinta izicubu ezihlanganisa ezinye izinto, nakuba lokhu kuyinto engavamile kakhulu
• Ukuvuvukala okuqhubekayo ezicubwini eminyakeni eminingi
• Ukubonisana nezikhemikhali ezithile, nakuba lobu buhlobo abubonakali ngokuqinisekile
• Ukushintsha kwamaseli okuhlobene nobudala okuqoqana ngokuhamba kwesikhathi

Kubalulekile ukwazi ukuthi ezimweni eziningi, ayikho imbangela ecacile yokuthi kungani i-myxofibrosarcoma ikhula. Lokhu akuyona into oyibangele noma obungayivikela ngokukhetha okuhlukile kokuphila.

Kufanele ubone nini udokotela ngelump eliyingozi?

Kufanele uhlele i-aphoyintimenti nodokotela wakho uma ubona noma yiluphi lump oluhlala isikhathi esingaphezu kwamasonto amabili noma oluqhubeka lukhula. Nakuba ama-lumps amaningi ephuma e-benign, ukuwahlola kusenesikhathi kukunika imiphumela emihle kakhulu.

Funani ukunakekelwa kwezokwelapha ngokushesha uma uhlangabezana nanoma yikuphi ukushintsha okulandelayo:

• Ukukhula okusheshayo kwelump ezinsukwini noma emakhulwini
• Ubuhlungu obukhulu obuphazamisa imisebenzi yakho yansuku zonke
• Ukushintsha kombala wesikhumba noma ukushisa phezu kwelump
• Ubunzima bokuhambisa ilungu elithintekile ngokujwayelekile
• Ukukhahlela noma ukukhahlela endaweni
• Noma yiluphi lump elikhulu kune-golf ball

Khumbula, ukuhlolwa kusenesikhathi akusisiqondisi nje ekuxilongweni. Kukunika nokuthula kwengqondo futhi kukuxhumanisa nochwepheshe abafanele abangakusiqondisa ezinyathelweni ezilandelayo.

Ziyini izici ezingaholela ekuthuthukiseni i-myxofibrosarcoma?

Izici ezithile zingandisa amathuba akho okuthuthukisa i-myxofibrosarcoma, nakuba ukuba nalezi zici akusho ukuthi uzothola le cancer. Ukuqonda lezi zici kungakusiza uhlale ulungile ezinguqukweni emzimbeni wakho.

Nazi izici eziyinhloko zengozi abaguli abazibonile:

• Iminyaka engaphezu kwengu-50, ngezimo eziningi ezivela kubantu abaphakathi kweminyaka engu-50-70
• Ukwelashwa ngomgogodla ngaphambili, ikakhulukazi ngezinye izinhlobo ze-cancer
• Ubulili besilisa, njengoba amadoda ehluleka le cancer kancane kunabesifazane
• Izinhlobo ezithile ze-genetic ezimbi ezithinta izicubu ezihlanganisa ezinye izinto
• Umlando we-lymphedema ehlala njalo noma ukukhula okuhlala njalo endaweni ethile

Ngisho noma unezici eziningi zengozi, abantu abaningi abakhulumi i-myxofibrosarcoma. Lezi zici zisiza nje odokotela ukuthi baqonde ukuthi ubani ongaholela engozini enkulu futhi adinge ukulandelelwa eduze.

Ziyini izinhlanganisela ezingaba khona ze-myxofibrosarcoma?

Njengezinye izinhlobo ze-cancer, i-myxofibrosarcoma ingabangela izinhlanganisela uma ingalashwa ngokushesha noma uma ibuya ngemuva kokwelashwa. Ukuqonda lezi zinto ezingaba khona kungakusiza usebenze neqembu lakho lezokwelapha ukuze ulandelele impilo yakho ngokuphumelelayo.

Izinhlanganisela eziyinhloko okufanele uzazi zihlanganisa:

• Ukubuyela endaweni efanayo, lapho i-cancer ibuya khona endaweni efanayo ngemuva kokwelashwa
• I-Metastasis, noma ukusabalala kwezinye izingxenye zomzimba, ikakhulukazi amaphunga
• Ukuphazamiseka kokusebenza uma i-tumor ithinta imisipha ebalulekile noma ama-joints
• Ukonakala kwama-nerve uma i-tumor icindezela ama-nerve abalulekile
• Izinhlanganisela ezihlobene nokwelashwa ezivela ekuhlinzweni noma ekuwelashweni ngomgogodla

Izindaba ezinhle ukuthi lapho kubanjwa kusenesikhathi futhi kuphathwa ngokufanele, abantu abaningi abane-myxofibrosarcoma benza kahle kakhulu. Iqembu lakho lezokwelapha lizohlala lisebenza nawe ukuze linciphise lezi ngozi futhi libanjwe noma yiziphi izinkinga kusenesikhathi.

I-myxofibrosarcoma ixilongwa kanjani?

Ukuthola i-myxofibrosarcoma kudinga izinyathelo eziningi ukuqinisekisa ukuxilongwa nokuqonda ubukhulu be-cancer. Udokotela wakho uzoqala ngokuhlolwa komzimba bese u-oda amaviki athile ukuze uthole isithombe esicacile sokuthi kwenzekani.

Inkqubo yokuxilongwa ivame ukufaka lezi zinyathelo:

1. Ukuhlolwa komzimba ukuhlola ubukhulu, indawo, kanye nezici zelump
2. Izifundo ze-imaging njenge-MRI noma i-CT scans ukubona ubukhulu be-tumor nobuhlobo bayo nezicubu ezizungezile
3. I-Biopsy, lapho isampula encane yesicubu isuswa futhi ihlolwe ngaphansi komkhiqizo
4. Ama-scan engeziwe ukuhlola uma i-cancer isabalale kwezinye izindawo
5. Ukuhlolwa kwe-molecular kwesicubu se-tumor ukuqondisa izinqumo zokwelashwa

I-biopsy iyisinyathelo esibaluleke kakhulu ngoba yiyona kuphela indlela yokuqinisekisa ukuxilongwa. Udokotela wakho uzokuchazela ukuthi iyiphi i-biopsy efanele isimo sakho nokuthi yini okulindelekile ngesikhathi senqubo.

Uyini ukwelashwa kwe-myxofibrosarcoma?

Ukwelashwa kwe-myxofibrosarcoma kuvame ukufaka ukuhlinzwa njengendlela eyinhloko, kuvame ukuxuba nezinye izindlela zokwelapha ukuze kukunikeze ithuba elihle kakhulu lokuphulukisa. Uhlelo lwakho lokwelashwa luzokwenziwa ngokukhethekile isimo sakho, ucabangele izici ezifana nobukhulu be-tumor, indawo, kanye negiredi.

Nanku okungafaka uhlelo lwakho lokwelashwa:

• Ukususa okubanzi kwe-tumor ngemikhawulo ecacile yesicubu esinempilo
• Ukwelashwa ngomgogodla ngaphambi noma ngemuva kokuhlinzwa ukuze kunciphise ingozi yokubuyela
• I-Chemotherapy kwezinye izimo, ikakhulukazi uma i-cancer isabalale
• Ukuhlinzwa kokwakha kabusha uma kudingeka ukubuyisela umsebenzi noma ukubonakala
• I-Physical therapy ukukusiza ubuyisele amandla nokukhula

Iqembu lakho le-oncology lizohlanganisa ochwepheshe abanjengo-surgical oncologists, radiation oncologists, kanye ne-medical oncologists abasebenza ndawonye ukuhlela ukunakekelwa kwakho. Bazochaza yonke indlela yokwelapha futhi bakusize uqonde ukuthi yini okulindelekile kuzo zonke izigaba.

Ungayiphatha kanjani impilo yakho ekhaya?

Ukubuyela esimweni esijwayelekile ngemuva kokwelashwa kwe-myxofibrosarcoma kuyinqubo ethatha isikhathi, futhi kunezinto eziningi ongazenza ekhaya ukuze usekele ukululama kwakho. Ukunakekela wena ngalesi sikhathi kubalulekile njengokwelashwa kwezokwelapha okuwutholayo.

Nazi ezinye izinyathelo ezisebenzayo ezingakusiza ngesikhathi sokululama kwakho:

• Landela imiyalo yakho yokunakekela isifo ngokucophelela ukuvimbela ukutheleleka
• Thatha imithi ebhaliwe ngesikhathi, kufaka phakathi izidakamizwa zobuhlungu kanye ne-antibiotics
• Hlanganyela kuyo yonke i-aphoyintimenti yokulandelela, ngisho nalapho uzizwa kahle
• Yenza imisebenzi ecebiswayo noma i-physical therapy ukuze ugcine ukunyakaza
• Dla ukudla okunomsoco ukuze usekele ukululama futhi ugcine amandla akho
• Thola ukuphumula okwanele, njengoba umzimba wakho udinga amandla ukuze ululame
• Bika noma yiziphi izimpawu ezinkulu eqenjini lakho lezokwelapha ngokushesha

Khumbula ukuthi ukubuyela esimweni esijwayelekile kubonakala kuhlukile kubantu bonke. Ezinye izinsuku ziyoba ngcono kunokunye, futhi lokho kuyinto evamile. Iqembu lakho lezokwelapha lilapho ukusekela kuyo yonke inqubo.

Kufanele uzilungiselele kanjani i-aphoyintimenti yakho yodokotela?

Ukuba ulungile nge-aphoyintimenti yakho yezokwelapha kungakusiza uthole okuningi ngesikhathi sakho neqembu lakho lezokwelapha. Lokhu kulungiselela kuba kubaluleke kakhulu lapho ubhekene nokuxilongwa okuyinkimbinkimbi njenge-myxofibrosarcoma.

Ngaphambi kwe-aphoyintimenti yakho, buza lolu lwazi:

• Uhlu lwayo yonke imithi, izithasiselo, namavithamini owathathayo
• Isikhathi sesikhathi lapho uqale ukubona khona izimpawu nokuthi zishintshe kanjani
• Amarekhodi ezempilo wangaphambili, ikakhulukazi noma yiziphi izifundo ze-imaging noma imiphumela ye-biopsy
• Umlando womndeni we-cancer noma izimo ze-genetic
• Ulwazi loku-inshurensi nama-referral papers uma kudingeka

Bhala imibuzo yakho ngaphambili ukuze ungayikhohlwa ngesikhathi se-aphoyintimenti. Cabanga ukuletha umngani othembekile noma ilungu lomndeni elingakusiza ukukhumbula ulwazi olubalulekile futhi linike ukwesekwa ngokomzwelo.

Iyini into ebalulekile mayelana ne-myxofibrosarcoma?

I-Myxofibrosarcoma uhlobo olukhulu kodwa oluphulukiswayo lwe-cancer yesicubu esithambile oluphendula kahle ekwelapheni okufanele lapho kubanjwa kusenesikhathi. Nakuba ukuthola lokhu kuxilongwa kungase kuzwakale kukhulu, ukuthuthuka ekwelapheni kuye kwathuthukisa kakhulu imiphumela yabantu abanesimo.

Into ebaluleke kakhulu ongayenza ukusebenza eduze neqembu lakho lezokwelapha, ulandele uhlelo lwakho lokwelapha, futhi uhlanganyele kuyo yonke i-aphoyintimenti yokulandelela. Abantu abaningi abane-myxofibrosarcoma baqhubeka bephila impilo egcwele, esebenzayo ngemuva kokwelashwa.

Khumbula ukuthi awuwedwa kule ndlela. Iqembu lakho lezokwelapha, umndeni, nabangane bakhona ukukusekela kuzo zonke izinyathelo. Unganqikazi ukubuza imibuzo, ubonise ukukhathazeka, noma ucele usizo lapho ukudinga khona.

Imibuzo evame ukubuzwa mayelana ne-myxofibrosarcoma

Ingabe i-myxofibrosarcoma iyefa?

I-Myxofibrosarcoma ngokuvamile ayidluliselwa ezihlotsheni. Nakuba izinhlobo ezimbi kakhulu ze-genetic zingase zikhulise ingozi kancane, iningi lezimo livela ngokungahleliwe ngaphandle komlando womndeni. Awudingi ukukhathazeka ngokudlulisela lesi simo kubantwana bakho.

I-Myxofibrosarcoma ikhula ngokushesha kangakanani?

I-Myxofibrosarcoma ngokuvamile ikhula kancane ezinyangeni eminyakeni, yingakho abantu abaningi ababoni izimpawu ekuqaleni. Noma kunjalo, amazinga okukhula angashintsha kuye ngegiredi le-tumor. Ama-tumors aphezulu angase akhule ngokushesha, kuyilapho aphansi avame ukukhula kancane.

Ingabe i-myxofibrosarcoma ingaphuliselwa ngokuphelele?

Yebo, abantu abaningi abane-myxofibrosarcoma bangaphuliselwa, ikakhulukazi lapho i-cancer ibanjwa kusenesikhathi futhi ayisabalalanga. Izinga lokuphulukisa lixhomeke ezicini ezifana nobukhulu be-tumor, indawo, igiredi, nokuthi isabalale yini. U-oncologist wakho angakunika ulwazi oluqondile olusekelwe esimweni sakho.

Uyini umehluko phakathi kwe-low-grade ne-high-grade myxofibrosarcoma?

I-Grade ibhekisela ekutheni amaseli e-cancer abonakala kangakanani ngaphansi komkhiqizo nokuthi angase akhule futhi asabalale ngokushesha kangakanani. Ama-tumors aphansi akhula kancane futhi anethuba elincane lokusabalala, kuyilapho ama-tumors aphezulu e-aggressive. I-pathologist yakho izokunquma igiredi le-tumor yakho kusuka esampulini ye-biopsy.

Ingabe ngizodinga i-chemotherapy ye-myxofibrosarcoma?

Akuwona wonke umuntu onale myxofibrosarcoma odinga i-chemotherapy. Ukuhlinzwa ngokuvamile kuyindlela eyinhloko yokwelapha, ngezinye izikhathi kuhlanganiswe nokwelashwa ngomgogodla. I-Chemotherapy ngokuvamile igcinelwe izimo lapho i-cancer isabalale khona noma inengozi enkulu yokusabalala. U-oncologist wakho uzokuncoma indlela engcono kakhulu yokwelapha isimo sakho.