He aha te Acromegaly? Ngā Tohutohu, Ngā Take, me te Maimoatanga

Ko te acromegaly he mate pūngao onge e puta mai ana i te nui rawa o te homoni tipu e whakaputahia ana e tō tinana, i te nuinga o te wā i te pakeketanga. Ka nui haere ai ngā wheua, ngā kiko, me ngā whekau i te nui atu i te noa, ka arahi atu ki ngā huringa tinana e kitea ana i te roa o te wā.

Ahakoa ko tēnei mate e pā ana ki te 3 ki te 4 te tangata ia miriona ia tau, ko te mārama ki ōna tohu, me te whiwhi i te maimoatanga tika ka āwhina i a koe ki te whakahaere pai.

He aha ngā tohu o te acromegaly?

Ka tupu haere ngā tohu o te acromegaly i roto i ngā tau maha, koia te take i ngaro ai rātou i te tīmatanga. Ka huri haere te tinana, ka kore pea e kitea e koe, kāore hoki e kitea e tō whānau me ō hoa.

Ko ēnei ngā huringa tinana tino noa ka pā pea ki a koe:

• Ka nui haere ō ringa me ō waewae, ka pēhia ngā mowhiti, ka kore e pai ngā hu.
• Ka kitea ake ngā āhuatanga o te mata, tae atu ki te kauae nui ake, te ihu, me te rae.
• Ka nui haere tō arero, ka pā pea ki te kōrero me te manawa.
• Ka mātotoru ake te kiri, ka hinuhinu ake, ka puta mai ngā tohu kiri.
• Ka puta mai ngā āwangawanga i waenganui i ō niho i te whakarahi o tō kauae.
• Ka hohonu ake, ka ngākau nui ake tō reo.

I tua atu i ngā huringa tinana, ka kitea pea e koe ētahi atu tohu e pā ana ki te āhua o tō noho i te rā. Ka uru atu ki ēnei ngā mamae o te upoko, te mamae o ngā hononga me te ngoikore, te ngenge e kore e pai ake me te okioki, me te wera nui ahakoa kaore koe e mahi.

Ka pā pea ki ētahi te raruraru o te tirohanga, ina koa te ngaro o te tirohanga taha, na te mea ka pēhi pea te mate e pā ana ki te acromegaly ki ngā hanganga e tata ana ki tō roro. He mea noa hoki te moe apnea, kei reira te mutu me te tīmatanga o tō manawa i te moe, i te nuinga o te wā na te nui o ngā kiko i tō korokoro.

He aha ngā take o te acromegaly?

I te nuinga o te wā, ko te take o te acromegaly he mate pukupuku pai i roto i tō pūtake pituitary e kiia nei he adenoma pituitary. Ka nui rawa te homoni tipu e whakaputahia ana e tēnei pukupuku iti, ka pakaru te toenga homoni noa o tō tinana.

Ko tō pūtake pituitary, ā, he rite te rahi ki te pī, kei raro i tō roro, ka tukuna noa te nui tika o te homoni tipu. Ina puta mai tētahi pukupuku i reira, ka rite ki te tapu wai pakaru e kore e taea te whakaweto, ka tukuna tonu te nui o te homoni ki roto i tō toto.

I roto i ngā take onge rawa, ka puta pea te acromegaly i ngā pukupuku i ētahi atu wāhanga o tō tinana, pēnei i tō pancreas, tō manawa rānei, e whakaputa ana i te homoni e whakaohooho ana i te homoni tipu. Ka tohu ēnei pukupuku ki tō pūtake pituitary kia nui rawa te homoni tipu, ka puta mai te hua kotahi.

Kāore i tino mōhiotia te take pono e puta mai ai ēnei pukupuku pituitary. Kāore i tukua i te nuinga o ngā take, kāore hoki i puta mai i tetahi mea i mahi koe, kāore rānei i mahi.

Nōhea te haere ki te taote mō te acromegaly?

Me haere koe ki te taote mena ka kite koe i ngā huringa e tupu haere ana i tō ahua, ina koa ki te nui haere ō ringa, ō waewae, ō āhuatanga mata rānei. Na te mea ka tupu haere ēnei huringa, he pai te whakataurite i ngā whakaahua hou ki ngā whakaahua i ngā tau maha ki muri.

Kaua e tatari mena kei te pāngia koe e ngā mamae o te upoko, ngā huringa o te tirohanga, te mamae rānei o ngā hononga kaore he take mārama. Ko ēnei tohu, me ngā huringa tinana, he mea nui kia whakawhitiwae atu ki te rongoā.

Ko ngā raruraru moe, ina koa ki te kitea e tō hoa e ngunguru nui ana koe, te mutu rānei o te manawa i te moe, he take nui anō tētahi atu hei rapu rongoā. Ka taea e tō taote te āwhina ki te whakatau mena ko ēnei tohu e pā ana ki te acromegaly, ki tētahi atu mate rānei.

Kia mahara, ko te taumata whakamātautau me te maimoatanga wawe ka taea te aukati i te maha o ngā raruraru e hono ana ki te acromegaly. Mena kei te rereke te ahua o tō tinana, whakawhirinaki ki ō tūmanako, kōrero atu ki te kaiwhakarongo hauora.

He aha ngā take morearea mō te acromegaly?

Ko te acromegaly e pā ana ki ngā tāne me ngā wāhine, ka tupu i waenganui i ngā tau 30 me te 50, ahakoa ka puta i tetahi tau.

Kāore he take noho ranei e whakapiki ake ai tō morearea ki te whanake i te acromegaly. Ka puta mai ngā pukupuku pituitary e pā ana ki tēnei mate, kaore he take mārama e taea te aukati.

I roto i ngā take onge rawa, ka taea te whakauru i te acromegaly ki ngā mate pūngao pēnei i te Multiple Endocrine Neoplasia momo 1, te McCune-Albright syndrome rānei. Heoi, ko ēnei e iti iho i te 5% o ngā take acromegaly katoa.

He aha ngā raruraru pea o te acromegaly?

Me kore te maimoatanga, ka arahi pea te acromegaly ki ētahi atu raruraru hauora nui e tupu ana i te roa o te wā. Ko te mārama ki ēnei raruraru ka āwhina ki te whakamārama he aha te nui o te maimoatanga wawe mō tō hauora roa.

Ko ngā raruraru tino noa e pā ana ki tō ngakau me ō oko toto. Ka puta te toto teitei i te haurua o ngā tāngata e pā ana ki te acromegaly, ka nui pea tō ngakau, ka iti ake te mahi.

He mea noa ngā raruraru hononga, ka taea te whakawhiwhi. Ka mātotoru pea tō cartilage, ka whakakīia, ka arahi atu ki te mate pukupuku me te mamae tonu, ina koa i tō tuaiwi, ō huha, me ō turi.

Ko te moe apnea e pā ana ki te maha o ngā tāngata e pā ana ki te acromegaly, a, ka kino mena kaore i te maimoatia. Ka taea e ngā kiko nui i tō korokoro me tō arero te aukati i tō ara manawa i te moe, ka arahi atu ki te kounga moe kino me te kaha ki tō ngakau.

Ka puta pea ngā raruraru o te tirohanga mena ka nui rawa te pukupuku pituitary ki te pēhi ki ō uaua optic. Ka arahi pea tenei ki te ngaro o te tirohanga taha, ka pā pea ki tō kaha ki te taraiwa haumaru, ki te haere rānei i tō taiao.

Ko te rongo pai, ko te maimoatanga tika ka taea te aukati i te maha o ēnei raruraru, tae atu ki te whakahoki i ētahi o rātou, ina koa i te wa e mau ana.

Me pēhea te whakamātautau i te acromegaly?

Ko te whakamātautau i te acromegaly e whakamahi ana i ngā whakamātautau toto hei ine i ō taumata homoni tipu me te insulin-like growth factor 1. Ka tīmata pea tō taote ki ēnei whakamātautau mena ka whakaaro rātou he acromegaly i runga i ō tohu me te tirotiro tinana.

Na te mea ka rereke ngā taumata homoni tipu i te rā, ka whakamahi pea tō taote i te whakamātautau manawanui huka. Ka inu koe i te wai reka, ka whakamātautauhia tō toto kia kite mena ka heke noa ō taumata homoni tipu, me heke i ngā tāngata hauora.

Ina kīia e ngā whakamātautau toto te nui o te homoni tipu, ka hiahia koe ki ngā rangahau whakaahua hei kimi i te puna. Ka taea e te MRI o tō roro te kimi i ngā pukupuku pituitary, ka hiahiatia pea ētahi atu rangahau mena kei ētahi atu wāhanga o tō tinana te pukupuku.

Ka whakamātautau pea tō taote i tō tirohanga me te tirotiro i ētahi atu mate pūngao, na te mea ka taea e ngā pukupuku pituitary te pā ki te whakaputa i ētahi atu homoni nui pēnei i te cortisol, te homoni thyroid rānei.

He aha te maimoatanga mō te acromegaly?

Ko te maimoatanga mō te acromegaly e aro ana ki te whakaiti i ngā taumata homoni tipu ki te noa me te whakahaere i ngā tohu. Ko te huarahi motuhake e whakawhirinaki ana ki te rahi me te wāhi o tō pukupuku, tō hauora whānui, me ō hiahia.

Ko te pokanga te maimoatanga tuatahi, ina koa mō ngā pukupuku pituitary iti. Ka taea e te taote neurologist mohio te tango i te pukupuku mā tō ihu mā te whakamahi i te hangarau iti e kiia nei he pokanga transsphenoidal. Ka whakarato pea tēnei huarahi i ngā hua tika me te ora tere.

Ka tino whai hua ngā rongoā, ina koa ki te kore e taea te pokanga, ki te kore rānei e tino noa ngā taumata homoni. Ka mahi ēnei rongoā i ngā huarahi rerekē – ka aukati pea ētahi i ngā kaiwhiwhi homoni tipu, ka whakaiti pea ētahi i te whakaputa homoni mai i te pukupuku anō.

Ka tūtohu pea te rongoā radiation mena kaore te pokanga me ngā rongoā e ārai pai ana i ō taumata homoni. Ahakoa ka mahi haere te radiation i roto i ngā tau maha, ka tino whai hua mō te whakahaere roa.

Ka uru pea tō mahere maimoatanga ki tētahi rōpū o ngā tohunga, tae atu ki te endocrinologist e mōhio ana ki ngā mate pūngao, me te neurologist pea. Ko te tirotiro tonu e whakarite ana kei te mahi tō maimoatanga, ka āwhina ki te hopu i ngā huringa wawe.

Me pēhea te whakahaere i te acromegaly i te kāinga?

Ko te whakahaere i te acromegaly i te kāinga e whakauru ana ki te tango tonu i ō rongoā me te tirotiro tika i ō tohu. Tūhonohia te tuhinga o te āhua o tō noho, tae atu ki ngā taumata kaha, te mamae o ngā hononga, me ngā huringa i tō ahua.

Ka taea e te whakakori tonu te pupuri i te ngawari o ngā hononga me te whakahaere i ētahi tohu, ahakoa me kōrero koe ki tō taote mō ngā mahi tika. He maha ngā kōwhiringa pai te kauhoe me te whakatete tere kaore e tino pēhi i ngā hononga nui.

Mena kei a koe te moe apnea e hono ana ki te acromegaly, ko te whakamahi i te mīhini CPAP e whakaritea ana ka taea te whakapai ake i tō kounga moe me ō taumata kaha. Ko te hanga i te mahinga moe mau tonu ka āwhina hoki i tō tinana ki te okioki me te ora.

Ko te whakahaere i ētahi atu mate hauora pēnei i te mate huka, te toto teitei rānei ka tino nui ina he acromegaly koe. Whai i ngā tūtohu a tō taote mō te kai, te rongoā, me te tirotiro tata i ēnei mate.

Me pēhea te whakarite mō tō hui taote?

I mua i tō hui, kohikohia ngā whakaahua o koe i ngā wā rerekē, i te nuinga o ngā tau maha. Ka taea e ēnei whakataurite whakairoiro te āwhina i tō taote ki te kite i ngā huringa kaore pea e kitea i tetahi haerenga kotahi.

Hangaia he rārangi taipitopito o ō tohu katoa, tae atu ki te wā i kite tuatahi ai koe i a rātou me te āhua o te huringa i te roa o te wā. Whakauruhia ngā take kaore pea e hono pēnei i ngā mamae o te upoko, te mamae o ngā hononga, te raruraru moe rānei, na te mea ka taea te hono katoa ki te acromegaly.

Mau mai he rārangi katoa o ngā rongoā me ngā taapiri e tangohia ana e koe, me ngā rēkōta hauora o mua pea e tika ana. Mena kua oti i a koe te mahi toto i te wa tata nei, mau mai ngā hua anō.

Whakaarohia te kawe mai i tētahi mema whānau whakawhirinaki rānei hei āwhina i a koe ki te mahara ki ngā mōhiohio nui me te whakarato tautoko i te hui. Ka kite pea rātou i ngā huringa i tō ahua kaore koe i kite.

He aha te mea nui mō te acromegaly?

He mate e taea te whakahaere te acromegaly ina whakamātautau tika me te maimoatanga. Ahakoa ka awangawanga ngā huringa tinana, ka taea e ngā maimoatanga whai hua te whakahaere i ngā taumata homoni me te aukati i ngā raruraru nui.

Ko te mea nui rawa ki te mahara, ko te taumata whakamātautau me te maimoatanga wawe ka arahi ki ngā hua pai ake. Mena ka kite koe i ngā huringa e tupu haere ana i tō ahua, te mamae rānei o te upoko me te mamae o ngā hononga, kaua e whakaroa ki te kōrero ki tō taote.

Me te tiaki hauora tika, ka taea e te nuinga o ngā tāngata e pā ana ki te acromegaly te noho i ngā oranga noa, hauora. Kua pai ake te maimoatanga i ngā tau kua pahure, e whakarato ana i ngā kōwhiringa whai hua maha mō te whakahaere i tēnei mate.

Ngā pātai e ui pinepinetia ana mō te acromegaly

Ka taea te whakaora katoa i te acromegaly?

Ka taea e te nuinga o ngā tāngata e pā ana ki te acromegaly te whiwhi i ngā taumata homoni tipu noa me te maimoatanga tika, te whakahaere tika i te mate. Ahakoa ko ētahi huringa tinana pea he mau tonu, ka taea e te maimoatanga te aukati i te tupu atu me te whakaiti i ngā tohu maha. Ka taea e te pokanga te whakarato i te whakaora katoa, ina koa mō ngā pukupuku iti.

He mamae te acromegaly?

Ka taea e te acromegaly te whakaputa i te mamae nui o ngā hononga me ngā mamae o te upoko, engari ka pai ake ēnei tohu me te maimoatanga. Ko te mamae o ngā hononga e puta mai ana i te nui o te cartilage me ngā huringa rite ki te mate pukupuku, ko ngā mamae o te upoko pea e puta mai ana i te pukupuku pituitary anō. Ko te whakahaere mamae he wāhanga nui o te maimoatanga whānui.

E hohoro ana te tupu o ngā tohu?

Ko te nuinga o ngā tohu o te acromegaly e tupu haere ana i ngā tau maha, koia te take i ngaro ai te mate mō te wā roa. I te toharite, he tohu ngā tāngata mō te 7 ki te 10 tau i mua i te whiwhi i te taumata whakamātautau. Ko tēnei tupu haere ka ngāwari te whakakore i ngā huringa wawe hei koroheketanga noa.

Ka hoki mai tō ahua ki te noa i muri i te maimoatanga?

Ka pai ake pea ētahi huringa me te maimoatanga, ina koa te pupuhi o ngā kiko ngawari, engari ko ngā huringa wheua pēnei i ngā ringa nui, ngā waewae, me ngā āhuatanga o te mata he mau tonu. Heoi, ko te aukati i te tupu o ēnei huringa he mea nui mō te aukati i ngā raruraru me te whakapai ake i te kounga o te ora.

Ka taea e au te whānau tamariki mena he acromegaly ahau?

Ae, ka taea e te nuinga o ngā tāngata e pā ana ki te acromegaly te whānau tamariki, ahakoa ka pā pea te mate ki te hua i ētahi take. Ka taea e ngā pukupuku pituitary te pā ki ngā homoni whakaputa uri, engari ka taea te whakahaere i tēnei me te maimoatanga. Kōrerohia te whakatōpūtanga whānau ki tō rōpū hauora hei whakarite i te huarahi haumaru mōu.