He aha te Neuromyelitis Optica? Ngā Tohutohu, Ngā Take, me te Maimoatanga

Ko te neuromyelitis optica (NMO) he mate autoimmune onge noa e pā ana te nuinga ki ōu pūtau tirohanga me tōu rōpū tuaiwi. Ka whakaeke pea tō pūnaha ārai ki ngā kiko ora i ēnei wāhi, ā, ka puta he mumura me te kino e āhei ai te arahi ki ngā raruraru tirohanga me ngā raruraru nekehanga.

I whakaarohia i mua ko tēnei mate he momo sclerosis maha, engari e mohio ana tātou inaianei he mate motuhake me ōna ake āhuatanga me ngā huarahi maimoatanga. Ahakoa ka kaha te NMO, ko te mārama ki te mea kei te whakahaere koe me te whiwhi i te tiaki tika ka taea te whakarereke nui ki te whakahaere i ō tohu me te tiaki i tō hauora roa.

He aha ngā tohu o te neuromyelitis optica?

Ka puta mai ngā tohu NMO i te wa poto, ā, ka tino kaha. Ko te mate e pā ana te nuinga ki ngā wāhi e rua o tō pūnaha io, koia ka pāngia pea koe e ngā raruraru e pā ana ki te tirohanga, ngā raruraru o te rōpū tuaiwi, te rua rānei.

Ko ēnei ngā mea ka kite pea koe mena ka pā te NMO ki tō tirohanga:

• Te ngaro o te tirohanga i te wa poto i tetahi kanohi, te rua rānei
• Te mamae o te kanohi e kino ake ana ina nekehia ō kanohi
• Ngā tae e puta mai ana he ma, he pouri rānei
• Ngā waahi matapo i roto i tō mara tirohanga
• Te matapo katoa i ngā keehi kino

Ina pā te NMO ki tō rōpū tuaiwi, ka pāngia pea koe e ēnei tohu:

• Te ngoikore, te pararaihi rānei o ō ringa, o ō waewae rānei
• Ngā āhuatanga ngenge, kīhā rānei
• Te mamae o te tuara, o te kaki rānei
• Ngā raruraru ki te whakahaere i te putea, i te kopu rānei
• Te uaua ki te hikoi, te kore e taea te hikoi rānei
• Ngā uaua e wiri ana, e pakari ana rānei

Ka pāngia pea etahi atu tangata e ngā tohu kaore i te noa penei i ngā hikaka tonu, te ruaki, te ruaki rānei ina pāngia etahi wāhi o te roro. Ka tino miharo ēnei tohu, no te mea kaore i te rite ki ngā āhuatanga matua o te NMO, engari e hono ana ki te mumura i ngā wāhi motuhake o te roro.

Ka rereke te kaha o ngā tohu mai i te tangata ki te tangata. Ka ora pai ētahi i waenganui i ngā wāhanga, engari ka pā pea ki ētahi ngā pānga roa e pā ana ki ō rātou mahi o ia rā.

He aha ngā momo o te neuromyelitis optica?

E rua ngā momo matua o te NMO e mohiotia ana e ngā tākua, e whakaāhua ana i te mea kei roto i tō toto tētahi antibody motuhake. Ko te mōhiotanga ki te momo kei a koe ka āwhina i ngā whakatau ārai, ā, ka hoatu he whakaaro ki te aha e tatari ai.

Ko te NMO me ngā antibodies AQP4 te momo tino noa, e pā ana ki te 70-80% o te hunga e pangia ana e tēnei āhuatanga. Ka taea e ēnei antibodies te pūngāwerewere ki te pūmua e kiia nei ko te aquaporin-4 kei roto i tō roro me tō tūpū. Ko te hunga e pangia ana e tēnei momo ka nui ake te pānga o ngā whakahokinga, ā, ka nui ake pea te tūponotanga o ngā wāhanga i muri mai.

Ko te NMO kāore he antibodies AQP4, e kiia ana ko te NMO seronegative, e pā ana ki te 20-30% o te hunga. Ka taea pea e ētahi o ēnei tangata te whai antibodies ki tētahi atu pūmua e kiia nei ko te MOG (myelin oligodendrocyte glycoprotein). Ka taea pea e tēnei momo te whai ara ngawari ake, ahakoa ka taea tonu te puta mai o ngā tohu kino.

I tata nei, kua kitea hoki e ngā tākua tētahi kāwai whānui ake e kiia nei ko te neuromyelitis optica spectrum disorder (NMOSD). Kei roto i ēnei ngā tangata e whai ana i ētahi āhuatanga o te NMO, engari kāore i tutuki ngā paerewa tawhito katoa. Ko te mōhiotanga ki ēnei wehenga ka āwhina i tō rōpū hauora kia whakarato i te tiaki tino tika mō tō āhuatanga motuhake.

He aha te take o te neuromyelitis optica?

Ka puta te NMO ina pohehe te pūnaha ārai mate o tō tinana, ka tīmata te whakaeke i ngā wāhanga hauora o tō pūnaha io. Kāore i tino mōhiotia te take pono o tēnei, engari kua kitea e ngā kairangahau ētahi take pea e mahi tahi ana hei whakaoho i te āhuatanga.

Ko te take matua ko te whakaputa a tō tinana i ngā antibody e whai take he ana ki ngā pūmua kei roto i tō pūnaha io. I te nuinga o ngā take, ka whakaeke ēnei antibody i te aquaporin-4, he pūmua hei awhina i te whakahaere i te taurite o te wai kei roto i tō roro me tō tūpū. Ka hono ēnei antibody ki te pūmua, ka whakaoho i te mumura me te pakaru o ngā kōpū e karapotia ana.

He maha ngā take pea e āhei ana ki te whanake i te NMO:

• Te tūāhua ira - ētahi rerekētanga o ngā ira ka āhei ake ai koe
• Ngā mate huaketo - ētahi mate huaketo ira tōmato rānei pea ka whakaoho i te whakautu aunoa
• Ngā āhuatanga aunoa ke - te whai i ngā āhuatanga pērā i te lupus, te mate a Sjögren rānei ka piki ake te tūpono
• Ngā take taiao - ahakoa kāotia rawa ngā whakaoho motuhake

He mea nui kia mōhio kōua ehara te NMO i te mea ka pā atu, ā, kāotia rawa koe i tetahi mea hei whakaoho i tēnei. E kite ana te āhuatanga i te hua o te mahi tahi āhuatanga o ō ira me ngā take taiao e mahi tonu ana ngā kānaka putaiao ki te whakamārama katoa.

Ka pā atu ki ngā wāhine i te nuinga atu i ngā tāne, ina koa ngā wāhine o Āwherika, Āhia, Pāniora rānei. Ka taea te whanake i te āhuatanga i tetahi tau, engari ka tino kitea i ngā pakeke i waenga i te 30 me te 40 tau te pakeke.

Nōhea te haere ki te taote mō te neuromyelitis optica?

Me rapu wawe koe i te tiaki hauora mena ka pā atu te ngaro o te tirohanga, te mamae o te kanohi, te ngoikore rānei te ngenge o ō roimata. Ka taea e ēnei tohu te tohu i te mumura nui e hiahia ana ki te rongoā wawe kia kore ai e pakaru tonu.

Kaua e tatari kia pai ake ngā tohu. Ka taea e ngā wāhanga NMO te whakaeke i te pakaru koretake mena kaore i te rongoā wawe, no reira he mea nui te whiwhi i te tiaki hauora i roto i ngā haora, ngā rā rānei i muri i te tīmatanga o ngā tohu mō te hua pai.

Haere ki te ruma āwhina wawe mena ka pā atu koe ki:

• Ngā ngaro o te tirohanga, katoa, te wāhanga rānei, ka puta pēwā
• Te mamae nui o te kanohi me ngā huringa o te tirohanga
• Te tere o te whanaketanga o te ngoikore, te pararaihi rānei
• Te ngaro o te mana o te pūkahukahu, o te kopu rānei
• Te mamae nui, kaore i te marama, o te tuara, o te kaki rānei, me ngā tohu neurological

Ahakoa ngā tohu kei a koe he iti te kino, he haere mai, he haere atu rānei, he mea tika kia kōrero koe ki tō tākuta. Ka āwhina te whakamātautau me te maimoatanga wawe ki te aukati i ngā whakahokinga mai i muri mai, ā, ka whakaiti i te tūponotanga o te whara pumau.

Mēnā kua whakamārama kētia koe ki te NMO, whakapiri atu ki tō rōpū hauora tonu mēnā ka kite koe i ētahi tohu hou, kei te kino haere rānei ngā tohu o mua. Ka taea e rātou te āwhina ki te whakatau mēnā kei te pāngia koe e te whakahokinga mai e hiahia ana ki te rongoā. He aha ngā take morearea mō te neuromyelitis optica?

He maha ngā take ka piki ake ai tō tūponotanga ki te whanake i te NMO, ahakoa te whai i ēnei take morearea, ehara i te tikanga ka whiwhi koe i te mate. Ko te mārama ki ēnei take ka āwhina i a koe me tō tākuta ki te mataara mō ngā tohu wawe.

Ko te ira tangata me te iwi e tākaro ana i ngā mahi nui ki te morearea o te NMO. E whā tekau mā iwa te tūponotanga o ngā wāhine ki te whanake i te mate i ngā tāne, inā te nuinga i roto i ō rātou tau whānau. He nui ake te nui o te NMO i ngā tāngata o Āwherika, Āhia, me te iwi Hīpānika i te hunga o te tīpuna Pākehā.

Ko ēnei ngā take morearea matua kua kitea e ngā tākuta:

• Ko te wahine, inā te nuinga i waenganui i ngā tau 30-40
• Te whai i te tīpuna Āwherika, Āhia, rānei Hīpānika
• Te hītori whānau o ngā āhuatanga autoimmune
• Te whai i ētahi atu mate autoimmune penei i te lupus, te mate Sjögren rānei
• Ngā rerekētanga ira tangata e pā ana ki te mahi ārai mate
• Ngā mate i mua, inā te nuinga o ngā mate e pā ana ki te pūnaha io

Ko ētahi take morearea onge e ako tonu ana ngā tākuta, tae atu ki ētahi rongoā, te ahotea, me ngā huringa homonal. Ka taea e te hapu te whakaoho i ngā wāhanga NMO, ahakoa he maha ngā wāhine e whai ana i te mate e whai ana i ngā haputanga angitu me te whakahaere hauora tika.

He mea nui kia mahara ko te nuinga o te hunga e whai ana i ēnei take morearea kaore e whanake i te NMO. He onge tonu te mate, e pā ana ki te 1-2 te tangata i te 100,000 i te nuinga o ngā taupori.

He aha ngā raruraru pea o te neuromyelitis optica?

Ka taea e te NMO te arahi ki ētahi raruraru kino, inā te nuinga ki te kore e rongoā wawetia ngā whakahokinga mai, ki te kore rānei e whakahaeretia pai te mate me te rongoā ārai. Ko te mārama ki ēnei raruraru pea ka āwhina i te whakamārama he aha te mea nui o te tiaki hauora haere tonu.

Ka taea e ngā raruraru e pā ana ki te tirohanga te whāiti mai i te ngawari ki te kino, ā, ka pā pea ki tetahi kanohi, ki ngā kanohi e rua rānei. Ko ētahi tāngata e pā ana ki ngā raruraru tirohanga wā poto e pai ake ana me te rongoā, ā, ko ētahi atu pea he huringa pumau e pā ana ki ō rātou mahi o ia rā me te motuhake.

Ko ēnei ngā raruraru noa ka pā pea ki a koe:

• Te ngaro tirohanga pumau, te matapo rānei i tetahi kanohi, i ngā kanohi e rua rānei
• Te uaua ki te kite tae, ki te mārama tirohanga rānei
• Ngā raruraru nekehanga mai i te ngoikore ki te pararutiki katoa
• Te mamae roa, inā te nuinga o te mamae neuropathic mai i te kino o te io
• Te ngoikoretanga o te pūkau me te whekau e hiahia ana ki te whakahaere haere tonu
• Te ngoikoretanga ira tangata na te whakauru o te tuaiwi o muri

Ka taea e ētahi raruraru onge engari kino te puta mai ina pā te NMO ki ngā wāhanga o te roro i tua atu o ngā uaua tirohanga me te tuaiwi o muri. Ka uru pea ēnei ki te ruaki roa me te ruaki, ngā raruraru manawa, ngā raruraru rānei ki te whakahaere i te pāmahana o te tinana.

Ko te pouri me te manukanuka he āhuatanga nui hoki mō te tini o te hunga e whai ana i te NMO. Ko te noho me te mate roa e taea ai te whara ka pā ki tō oranga hinengaro, ā, ko ēnei āhuatanga hauora hinengaro e tika ana kia arohia me te rongoā me ngā tohu tinana.

Ko te rongo pai, me te rongoā tika, ka taea te ārai, te whakaiti rānei i te tini o ēnei raruraru. Ko te whakamārama wawe me te tiaki hauora mau tonu ka pai ake ai ō tūponotanga ki te pupuri i te mahi me te kounga o te ora.

Me pēhea te ārai i te neuromyelitis optica?

Aroha mai, kāore he huarahi hei ārai i te whanake o te NMO i te tīmatanga, na te mea kāore kātahi kātahi anō tatou ka tino mārama ki ngā take katoa e whakaoho ana i te mate. Heoi, ina kua whai koe i te NMO, he huarahi whai hua hei ārai i ngā whakahokinga mai o muri, hei whakaiti rānei i te morearea o ngā raruraru.

Ko te rautaki ārai tino nui ko te tango i ngā rongoā immunosuppressive e rite ana ki te whakahau a tō tākuta. Ka āwhina ēnei rongoā ki te whakahāwea i tō pūnaha ārai mate kaha, ka whakaiti nui i te tūponotanga o ngā whakaeke o muri mai ki tō pūnaha io.

He maha ngā huarahi ārai ka taea te āwhina i te tiaki i tō hauora roa:

• Te tango mau tonu i ngā rongoā immunosuppressive kua whakaritea
• Te haere ki ngā whakatau whai muri tonu me tō rōpū hauora
• Te whiwhi i te rongoā wawe mō ngā mate, ka taea te whakaoho i ngā whakahokinga mai
• Te whakahaere i te ahotea mā ngā tikanga whakahāwea, mā te tohutohu rānei
• Te pupuri i te hauora pai katoa mā te kai tika me te whakakori tika
• Te karo i ngā mea whakaoho e mohiotia ana mēnā kua kitea e koe ētahi mea whaiaro

Ka kite ētahi tāngata ko ētahi take penei i te ahotea, ngā mate, ngā huringa rongoā rānei ka taea te whakaoho i ngā whakahokinga mai. Ko te mahi tahi me tō rōpū hauora ki te whakatau me te whakahaere i ēnei mea whakaoho whaiaro ka waiho hei wāhanga nui o tō rautaki ārai.

He mea nui hoki te whai i te mahere hei whakatau me te whakautu wawe ki ngā tohu hou. Ko te tere o te whiwhi rongoā mō te whakahokinga mai, ko te pai ake o ō tūponotanga ki te ārai i te kino pumau.

Me pēhea te whakamārama i te neuromyelitis optica?

Ko te whakamārama i te NMO e hiahia ana ki te whakakotahitanga o te aromatawai hauora, ngā whakamātautau toto motuhake, me ngā rangahau whakaahua. Ka hiahia tō tākuta ki te whakakore i ētahi atu āhuatanga e taea ai te whakaoho i ngā tohu rite, inā te nuinga o te mate sclerosis maha.

Ko te tukanga whakamārama e tīmata ana i te hītori hauora taipitopito me te whakamātautau neurological. Ka ui tō tākuta ki ō tohu, te wā i tīmata ai, me te āhua o te whanake. Ka mahi hoki rātou i ngā whakamātautau hei tirotiro i tō tirohanga, ngā whakautu, te āhua, me te kaha o te uaua.

Ko ēnei ngā whakamātautau matua e whakamahia ana hei whakamārama i te NMO:

• Te whakamātautau toto mō ngā antibodies AQP4 - pai i te 70-80% o ngā take
• Ngā tirohanga MRI o tō roro, ngā uaua tirohanga, me te tuaiwi o muri
• Te whākōkī lumbar (te tāpā o te tuaiwi) hei tātaritanga i te wai cerebrospinal
• Ngā kaha whakaoho tirohanga hei aromatawai i te mahi o te uaua tirohanga
• Te tomography whakakotahitanga whakaata hei tirotiro i te retina

Ko ngā kitenga MRI i te NMO he tino rerekē. Ko ngā lesions o te tuaiwi o muri e piki ake ana i te roa atu i ētahi e kitea ana i te mate sclerosis maha, e roa ana i te toru atu waahanga vertebra rānei. Ko ngā lesions o te roro, ina kitea, e puta ana i ngā wāhi motuhake e tata ana ki ngā wāhi kī i te roro.

Ko te whiwhi i te whakamārama tika ka roa pea te wā, inā te nuinga ki te kore te whakamātautau antibody, ki te ngawari rānei ō tohu. Ka hiahia pea tō tākuta ki te tirotiro i tō āhua i roto i ngā marama maha hei kite i te āhua o te whanake me te whakautu ki te rongoā.

I ētahi wā, ka tīmata pea ngā tākuta i te rongoā i runga i te whakapae hauora ahakoa i mua i te wā e wātea ana ngā hua whakamātautau katoa, inā te nuinga ki te pāngia koe e te whakahokinga mai kino e hiahia ana ki te aro nui.

He aha te rongoā mō te neuromyelitis optica?

Ko te rongoā NMO e aro ana ki ngā whāinga matua e rua: te rongoā i ngā whakahokinga mai ohorere ina puta mai, me te ārai i ngā wāhanga o muri mai. Ko te huarahi motuhake e whakawhirinaki ana ki te mea kei te whai koe i te whakaeke mahi, kei te hiahia rānei koe ki te tiaki ārai roa.

Mō ngā whakahokinga mai ohorere, ko ngā tākuta e whakamahi ana i ngā corticosteroids nui-dose e hoatu ana i roto i ngā uaua mō ngā rā maha. Ka taea e tēnei rongoā anti-mumura kaha te whakaiti i te kino me te roa o ngā tohu, ahakoa ka pai ake te mahi ina tīmata wawe i te whakahokinga mai.

Ko ēnei ngā kōwhiringa rongoā mō ngā wāhanga ohorere:

• Ngā corticosteroids intravenous nui-dose (methylprednisolone)
• Te whakawhiti plasma mēnā kaore ngā steroids e āwhina pai
• Te immunoglobulin intravenous hei rongoā tārua
• Te tiaki tautoko mō ngā tohu motuhake penei i te mamae, ngā raruraru pūkau rānei

He mea nui te rongoā ārai roa mō te nuinga o te hunga e whai ana i te NMO. Ka āwhina ēnei rongoā ki te whakahāwea i tō pūnaha ārai mate kia kaua e whakaeke anō ki tō pūnaha io. Ka mahi tahi tō tākuta me koe ki te kimi i te rongoā tino whai hua me ngā pānga iti rawa.

Ko ēnei ngā rongoā ārai noa:

• Rituximab - e whai ana i ngā pūtau ārai mate motuhake e uru ana ki te NMO
• Azathioprine - he rongoā immunosuppressive tawhito
• Mycophenolate mofetil - tētahi atu kōwhiringa immunosuppressive
• Eculizumab - he rongoā hou kua whakaaetia motuhake mō te NMO
• Satralizumab - tētahi atu rongoā whai pūtaiao i whakaaetia
• Inebilizumab - te kōwhiringa rongoā hou rawa kua whakaaetia e te FDA

Ka whakawhirinaki tō mahere rongoā ki ngā take penei i te kino o tō āhua, tō whakautu ki ngā rongoā, ngā pānga pea, me ō hiahia whaiaro. He mea nui te tirotiro tonu kia mau tonu te mahi o tō rongoā, kia titiro hoki ki ngā raruraru.

Me pēhea te whakahaere i te neuromyelitis optica i te kāinga?

Ko te whakahaere i te NMO i te kāinga e whakauru ana ki te whai i tō mahere rongoā hauora, te whakarite i ō mahi o ia rā, me te pupuri i tō hauora katoa me tō oranga pai. Ko ngā whakaritenga iti ki tō mahi o ia rā ka tino rerekē te āhua o tō whakaaro i ia rā.

Ko te tango i ō rongoā tika e rite ana ki te whakahau ko te mea tino nui ka taea e koe te mahi i te kāinga. Whakaritea he pūnaha hei āwhina i a koe ki te mahara ki ō rāpoi, ahakoa ko te whakamahi i te kaiwhakarite papa, te whakarite i ngā karaka waea, te hono rānei i ngā wā rongoā ki ngā mahi o ia rā penei i ngā kai.

Ko ēnei ngā rautaki mahi ka taea te āwhina i a koe ki te whakahaere i ngā tohu NMO:

• Whakaritea he taiao māori, mārama pai mēnā he raruraru tirohanga koe
• Whakamahia ngā taputapu nekehanga penei i ngā tokotoko, i ngā kaitautoko rānei mēnā e hiahiatia ana mō te haumaru
• Whakauruhia ngā pou hopu me ētahi atu taputapu haumaru ki tō ruma kaukau
• Whakahaerehia te ngenge mā te whakarite i ngā mahi me te whakarite i ngā wā okioki
• Noho makariri, na te mea ka taea e te wera te whakaiti i ngā tohu neurological
• Whakamahia ngā tikanga whakahaere ahotea penei i te manawa hohonu, te whakaaroaro rānei

Mēnā ka pāngia koe e ngā raruraru pūkau, whekau rānei, mahi tahi me tō rōpū hauora ki te whakawhanake i te mahere whakahaere. Ka uru pea tenei ki ngā wā kaukau whakarite, ngā whakaritenga kai, ngā whakakori motuhake rānei hei āwhina i te whakahaere.

Ko te whakahaere mamae he wāhanga nui te nuinga o te tiaki kāinga. Ka uru pea tenei ki ngā rongoā kua whakaritea, engari ka taea hoki e koe te whakamātau i te rongoā wera, te rongoā makariri, te whakatete ngawari, ngā tikanga whakahāwea rānei. Tirohia tonu me tō tākuta i mua i te whakamātau i ngā huarahi hou.

Ko te pupuri i ngā hononga pāpori me te whakauru ki ngā mahi e pai ana ki a koe ka pā nui ki tō kounga o te ora. Kaua e whakaroa ki te tono awhina ina hiahia koe, ā, whakaarohia te whakauru ki ngā rōpū tautoko ka taea ai te hono atu ki ētahi atu e mārama ana ki te mea kei te pāngia koe.

Me pēhea te whakarite mō tō whakatau tākuta?

Ko te whakarite pai mō ō whakatau hauora ka taea te āwhina i te whakarite kia whiwhi koe i te painga nui mai i tō wā me tō rōpū hauora. Ko te whakarite pai ka āwhina i tō tākuta ki te mārama ki tō āhua o nāianei, ki te mahi rānei i ngā whakatau rongoā pai rawa atu.

I mua i tō whakatau, tuhia katoa ō tohu o nāianei, ahakoa he iti, he kore hono rānei. Tēnā kia tuhia te wā i tīmata ai, te nui o te kino, me te mea e pai ake ana, e kino ake ana rānei. Ka āwhina ēnei korero i tō tākuta ki te aroturuki i ngā huringa i tō āhua i te wā.

Mau mai ēnei mea nui ki tō whakatau:

• He rārangi katoa o ngā rongoā katoa, tae atu ki ngā rāpoi me te wā
• Ngā hua whakamātautau hou, ngā rēkōta hauora rānei mai i ētahi atu tākuta
• He tātai tohu mēnā kua pupuri koe i tētahi
• Ngā kāri inihua me te whakamārama
• He rārangi o ngā pānui, ngā āwangawanga rānei e hiahia ana koe ki te kōrero
• Ngā korero whakapā mō ētahi atu kaiwhakarato hauora i roto i tō rōpū

Whakaarohia ngā āhuatanga mahi e hiahia ana koe ki te kōrero, penei i te whakahaere i ngā pānga, te whakarite i tō mahi, te taumata mahi rānei, te whakarite rānei mō te haere. Ka taea e tō tākuta te whakarato i ngā aratohu nui ki ēnei wero o ia rā.

Whakaarohia te kawe mai i te mema whānau, hoa rānei ki ngā whakatau nui. Ka taea e rātou te āwhina i a koe ki te mahara ki ngā korero i kōrerotia i te wā o te haerenga, ki te whakarato rānei i te tautoko hinengaro. Ka kite ētahi tāngata he mea whai hua te tuhi i ngā kōrero, te tuhi rānei i te kōrero (me te whakaaetanga a tō tākuta).

Kaua e whakaroa ki te ui i ngā pānui mēnā kaore tetahi mea i te mārama. E hiahia ana tō rōpū hauora ki te āwhina i a koe ki te mārama ki tō āhua me ngā kōwhiringa rongoā. Ko te whakarite i ō pānui i mua ka whakarite kia kaua e wareware ki te ui ki tetahi mea nui.

He aha te mea nui mō te neuromyelitis optica?

Ko te mea tino nui ki te mārama ki te NMO, ahakoa he mate kino, he rongoā whai hua e wātea ana ka taea te whakapai ake i tō tirohanga. Ko te whakamārama wawe me te rongoā wawe o ngā whakahokinga mai, me te rongoā ārai mau tonu, ka taea te āwhina i a koe ki te pupuri i te kounga ora pai.

Ko te NMO e pā ana ki te katoa i te rerekē, no reira ka rerekē pea tō wheako i ētahi atu e whai ana i te mate ano. Ko te mahi tata atu ki te rōpū hauora e whai wheako ana ki te rongoā i te NMO ka hoatu ki a koe te tūponotanga pai rawa atu ki te whakahaere i ngā tohu, ki te ārai rānei i ngā raruraru o muri mai.

Kia mahara kei te tere haere te rangahau ki te NMO, me ngā rongoā hou e wātea ana i ia wā. Kua pai ake te mārama ki tenei mate i roto i te tekau tau kua pahure, ā, kua pai ake ngā hua mō te hunga i whakamāramahia i tēnei rā i te hunga i whakamāramahia i ngā tau ki muri.

Ko te noho me te NMO e hiahia ana ki ngā whakaritenga, engari he maha ngā tāngata e whai ana i tēnei mate e mahi tonu ana, e pupuri ana i ngā hononga, e pai ana ki ngā oranga whai hua. Ko te hanga i te whatunga tautoko kaha e whakauru ana ki tō rōpū hauora, whānau, hoa, me ētahi atu pea e whai ana i te NMO ka taea te whakamahi i tō haerenga.

Kia tūmanako, kia whakauru ki tō tiaki. Ko te nui o tō mārama ki tō āhua, me te nui o tō whakauru ki tō mahere rongoā, ko te pai ake o tō whakahaere ki te whakahaere i te NMO pai i te wā roa.

Ngā pānui e ui pinepinetia ana mō te neuromyelitis optica

He rite te neuromyelitis optica ki te mate sclerosis maha?

Kāo, he rerekē ngā āhuatanga o te NMO me te mate sclerosis maha, ahakoa i whakaarohia i mua he hono. Ko te NMO e pā ana ki ngā uaua tirohanga me te tuaiwi o muri, ā, ko te MS e whakaoho ana i te whakauru roro whānui ake. Ka rerekē pea ngā rongoā me te tirohanga roa i waenga i ngā āhuatanga e rua.

Ka taea e te hunga e whai ana i te NMO te whānau tamariki haumaru?

He maha ngā wāhine e whai ana i te NMO ka taea te whai i ngā haputanga angitu, ahakoa he mea nui te whakarite me te tirotiro. Me whakarite ētahi rongoā i mua i te whakaaro, ā, ka hiahia koe ki te tiaki motuhake i te wā o te haputanga. Ka piki ake pea te morearea o te whakahokinga mai i te wā o te haputanga, inā te nuinga i ngā marama i muri i te whānau, engari ka taea te whakahaere me te tiaki hauora tika.

Ka matapo, pararutiki rānei ahau katoa?

Kāore pea. Ahakoa ka taea e te NMO te whakaoho i te whara kino mēnā kaore i te rongoā, he maha ngā tāngata e pupuri ana i te mahi nui me te rongoā tika. Ko ētahi tāngata e ora pai ana i ngā whakahokinga mai, ā, ko ētahi atu pea he hua pumau. Ko te mea nui ko te whiwhi i te rongoā wawe mō ngā whakahokinga mai me te tango mau tonu i ngā rongoā ārai hei whakaiti i te morearea o ngā whakaeke o muri mai.

Te auau o ngā whakahokinga mai NMO?

Ko te auau o ngā whakahokinga mai e rerekē ana i waenga i ngā tangata. Me te kore rongoā ārai, ko ētahi tāngata pea he maha ngā whakahokinga mai i ia tau, ā, ko ētahi atu pea ka haere ngā tau i waenga i ngā wāhanga. Me te rongoā ārai whai hua, he maha ngā tāngata e whai ana i ngā whakahokinga mai iti rawa atu, kāore rānei. Ka taea e tō tākuta te āwhina i a koe ki te mārama ki tō morearea motuhake i runga i ngā take penei i tō tūāhua antibody me tō hītori hauora.

Ka taea e te ahotea te whakaoho i ngā whakahokinga mai NMO?

Ko ētahi tāngata e kite ana ko ngā taumata teitei o te ahotea e rite ana ki te whakaoho i ō rātou whakahokinga mai, ahakoa kāore te hononga i te tino mārama. Ahakoa kaore e taea te whakakore i te ahotea katoa i tō oranga, ko te ako i ngā tikanga whakahaere ahotea hauora pea he mea whai hua. Ka uru pea tenei ki te whakakori auau, ngā mahi whakahāwea, te tohutohu, ētahi atu huarahi rānei e mahi ana mōu. Mēnā ka kite koe he rite te ahotea ki te whakaoho i ō tohu, kōrerohia tēnei tauira me tō rōpū hauora.