He aha ka Maʻi Still o nā Mākua? Nā Hōʻailona, Nā Kumu, a me ka Lapaʻau

ʻO ka maʻi Still o nā mākua he kūlana mumū maʻamau ʻole ia e hoʻoulu ai i nā mahana kiʻekiʻe, ʻeha o nā hono, a me ka ʻili ʻulaʻula poni. ʻO ia maoli ka mana o nā mākua o kahi kūlana kamaliʻi i kapa ʻia ʻo ka ʻeha hono idiopathic systemic juvenile, ʻoiai hiki ke ʻike ʻia ma nā mākua o kēlā me kēia makahiki.

Hoʻopili kēia kūlana i kou ʻōnaehana pale, e hoʻoulu ai i ka hana nui a me ka hoʻouka ʻana i nā pūnaewele olakino ma kou kino. ʻOiai ke kani nui nei, hiki i nā poʻe he nui me ka maʻi Still o nā mākua ke hoʻokele pono i kā lākou mau hōʻailona me ka lapaʻau kūpono a ola i nā ola piha a hana.

He aha nā hōʻailona o ka Maʻi Still o nā Mākua?

Hiki mai nā hōʻailona o ka maʻi Still o nā mākua i nā nalu, me nā manawa o ka maʻi hana e hahai ʻia e nā manawa e ʻike ai ʻoe i ka maikaʻi nui. ʻO nā hōʻailona maʻamau e komo pū ana me ka hui ʻana o ka mahana kiʻekiʻe, ʻeha o nā hono, a me ka ʻili ʻulaʻula poni.

Eia nā hōʻailona nui āu e ʻike ai, e hoʻomaka ana me nā mea maʻamau loa:

• Nā mahana kiʻekiʻe: Nā mahana i kēlā me kēia lā e hiki ai i 102°F (39°C) a ʻoi aku paha, maʻamau i ka awakea a i ʻole ke ahiahi
• ʻIli ʻulaʻula poni: ʻO kahi ʻili ʻulaʻula poni a i ʻole poni e ʻike ʻia a nalowale, pinepine e ʻike ʻia ke piʻi aʻe kou mahana
• ʻEha a me ka pehu o nā hono: ʻOi aku ka hopena i kou mau lima, kuli, a me nā kuʻekuʻe, ʻoiai hiki ke komo pū kekahi hono
• ʻEha ʻāʻī: ʻO kahi ʻeha ʻāʻī mau loa, ʻaʻole pane i nā lapaʻau maʻamau
• ʻEha o nā ʻiʻo: ʻEha a me ka palupalu o nā ʻiʻo ma kou kino
• Luhi: Luhi loa ʻaʻole hoʻomaikaʻi me ka hoʻomaha
• Nā lymph nodes pehu: Nā lymph nodes nui, ʻoi aku ma kou ʻāʻī

ʻIke kekahi poʻe i nā hōʻailona ʻaʻole maʻamau e like me ka ʻeha ʻōpū, ka lilo ʻana o ke kaumaha, a i ʻole ka ʻeha umauma. Hiki i nā hōʻailona ke ikaika loa i ka wā o nā flare-ups, akā e hoʻomanaʻo he mau lapaʻau maikaʻi loa e kōkua iā ʻoe e ʻike i ka maikaʻi.

He aha ka mea e hoʻoulu ai i ka Maʻi Still o nā Mākua?

ʻAʻole ʻike ʻia ke kumu pololei o ka maʻi Still o nā mākua, akā manaʻo nā mea noiʻi e ulu ia i ka wā e huikau ai kou ʻōnaehana pale a hoʻomaka e hoʻouka i kou mau pūnaewele olakino ponoʻī. Hoʻokumu kēia i ka mumū e alakaʻi ai i kēlā mau hōʻailona ʻoluʻolu āu e ʻike ai.

Hiki i kekahi mau mea ke hoʻoulu i kēia huikau ʻōnaehana pale:

• Nā maʻi: Hiki i kekahi mau maʻi viral a i ʻole bacterial ke hoʻoulu i ke kūlana i nā poʻe i hoʻomākaukau mua ʻia
• Nā kumu genetic: Hana kekahi mau māka genetic i kekahi poʻe i ʻoi aku ka maʻalahi, ʻoiai ʻaʻole ia i hoʻoilina pololei ʻia
• Nā mea hoʻoulu kaiapuni: Hiki i ke kaumaha, nā maʻi ʻē aʻe, a i ʻole nā ​​mea kaiapuni ke pāʻani i kahi kuleana i kekahi mau hihia

He mea nui e hoʻomaopopo ʻaʻole hoʻopilikia ka maʻi Still o nā mākua, a ʻaʻole ʻoe i hana i kekahi mea e hoʻoulu ai. I kekahi manawa, hiki mai kēia mau kūlana autoimmune, ʻoiai i nā poʻe olakino ma mua.

I ka wā e ʻike ai i ke kauka no ka Maʻi Still o nā Mākua?

Pono ʻoe e ʻike koke i ke kauka inā loaʻa iā ʻoe ka hui ʻana o nā mahana kiʻekiʻe i kēlā me kēia lā, ʻeha o nā hono, a me ka ʻili e hele mai ana a nalowale. ʻO kēia mau hōʻailona i hui pū ʻia, ʻoi aku ka lōʻihi ma mua o kekahi mau lā, pono e nānā ʻia e ke kauka.

E ʻimi i ka mālama olakino koke inā ʻike ʻoe:

• Nā mahana ma luna o 102°F (39°C) e hana ana i kēlā me kēia lā no kahi pule a ʻoi aku paha
• ʻEha hono koʻikoʻi e kaupalena ana i kou neʻe ʻana
• Paʻakikī i ka hanu a i ʻole ka ʻeha umauma
• ʻEha ʻōpū koʻikoʻi
• Nā hōʻailona o ka maʻi koʻikoʻi e like me ka huikau a i ʻole ka nāwaliwali loa

Mai kali inā ʻoe e ʻike i ka maʻi nui. Hiki i ka ʻike mua ʻana a me ka lapaʻau ke pale aku i nā pilikia a kōkua iā ʻoe e ʻike i ka maikaʻi koke.

He aha nā mea pilikia no ka Maʻi Still o nā Mākua?

ʻOiai ke hoʻokele pono nei ka hapa nui o nā poʻe me ka maʻi Still o nā mākua me ka lapaʻau, he mea maʻamau ke noʻonoʻo e pili ana i nā pilikia hiki ke loaʻa. Hiki i ka hoʻomaopopo ʻana i kēia mau mea hiki ke kōkua iā ʻoe e hana pū me kāu kauka e pale aku iā lākou.

ʻO nā pilikia maʻamau loa e komo pū ana:

• ʻEha hono mau: Ka mumū hono e mau ana a hiki ke hoʻopōʻino i nā hono lōʻihi inā ʻaʻole mālama pono ʻia
• Nā pilikia naʻau: Ka mumū o ka ʻiʻo naʻau (myocarditis) a i ʻole ka ʻeke a puni ka naʻau (pericarditis)
• Nā pilikia māmā: Ka mumū o nā māmā a i ʻole ka wai a puni nā māmā, hiki ke hoʻoulu i nā pilikia hanu
• Nā pilikia ate: Nā enzyme ate kiʻekiʻe a i ʻole ka mumū ate, maʻamau e pili ana i ka maʻi a i ʻole nā ​​lāʻau lapaʻau

Nā pilikia koʻikoʻi akā maʻamau ʻole e komo pū ana:

• Macrophage activation syndrome: Kahi kūlana weliweli i kahi e hana nui ai nā pūnaewele pale
• Nā maʻi koʻikoʻi: Hoʻonui ʻia ka pilikia ma muli o ka hoʻohaʻahaʻa ʻana o ka ʻōnaehana pale mai nā lāʻau lapaʻau
• Nā maʻi koko: Nā pilikia me ka hana ʻana o nā pūnaewele koko i nā hihia maʻamau ʻole

ʻO ka ʻoiaʻiʻo maikaʻi, me ka nānā pono a me ka lapaʻau, hiki ke pale ʻia a mālama ʻia nā pilikia nui. E nānā kāu hui olakino no kēia mau pilikia a hoʻoponopono i kāu lapaʻau e like me ka pono.

Pehea ka ʻike ʻana o ka Maʻi Still o nā Mākua?

Hiki ke paʻakikī ka ʻike ʻana i ka maʻi Still o nā mākua no ka mea ʻaʻohe hoʻokolohua hoʻokahi e hōʻoia ai. Pono kāu kauka e kāpae i nā kūlana ʻē aʻe e hoʻoulu ai i nā hōʻailona like, e like me nā maʻi, nā maʻi autoimmune ʻē aʻe, a me kekahi mau kanesa.

ʻO ke kaʻina hana diagnostic maʻamau e komo pū ana:

• Nānā kino: E nānā kāu kauka no ka ʻili ʻulaʻula, nā hono pehu, a me nā lymph nodes nui
• Nā hoʻokolohua koko: E nānā kēia i nā māka mumū, e kāpae i nā maʻi, a e ʻimi i nā ʻano kūikawā
• Nā haʻawina kiʻi: Hiki ke hana ʻia nā X-rays, nā scan CT, a i ʻole MRI e nānā i kou mau hono, umauma, a me ka ʻōpū
• Hoʻopaʻa ʻana i nā hōʻailona: Ke kākau nei i ke ʻano o kou mau mahana, ʻili, a me nā hōʻailona ʻē aʻe

E hoʻohana kāu kauka i nā kūlana i hoʻokumu ʻia e pono ai nā hui kūikawā o nā hōʻailona, nā hopena hoʻokolohua koko, a me ka nele o nā kūlana ʻē aʻe. Lawe kēia kaʻina hana i ka manawa, akā he mea nui ia e loaʻa ka ʻike pololei i loaʻa iā ʻoe ka lapaʻau maikaʻi loa.

He aha ka lapaʻau no ka Maʻi Still o nā Mākua?

ʻO ka lapaʻau no ka maʻi Still o nā mākua e kau nui ana i ka hoʻomalu ʻana i ka mumū, ka hoʻokele ʻana i nā hōʻailona, ​​a me ka pale ʻana i nā pilikia. ʻO ka ʻoiaʻiʻo maikaʻi, he nui nā lapaʻau maikaʻi loa, a ʻike ka hapa nui o nā poʻe i ka hoʻomaikaʻi nui me ke ala kūpono.

E komo paha kāu papahana lapaʻau i:

• Nā lāʻau anti-inflammatory nonsteroidal (NSAIDs): Ibuprofen kiʻekiʻe a i ʻole naproxen e hoʻemi i ka mumū a me ka ʻeha
• Corticosteroids: Prednisone a i ʻole nā ​​lāʻau lapaʻau like no nā hōʻailona koʻikoʻi a i ʻole i ka wā ʻaʻole lawa nā NSAIDs
• Nā lāʻau e hoʻololi ai i ka maʻi: Methotrexate a i ʻole nā ​​lāʻau lapaʻau ʻē aʻe e kōkua i ka hoʻomalu ʻana i nā pilikia ʻōnaehana pale
• Nā lāʻau biologic: Nā lāʻau lapaʻau hou e like me anakinra a i ʻole tocilizumab no nā hihia paʻakikī e mālama ai

No nā pilikia maʻamau ʻole, hiki i nā lapaʻau ke komo pū:

• Immunosuppression koʻikoʻi: No ka komo ʻana o nā kino koʻikoʻi
• Plasmapheresis: Kahi kaʻina hana e kānana ai i nā mea mumū mai kou koko
• Hospitalization: No nā pilikia koʻikoʻi e pono ai ka nānā pono

E hoʻomaka kāu kauka me nā lapaʻau mālie a hoʻoponopono e like me kāu pane. Loaʻa i nā poʻe he nui ka hōʻoluʻolu me nā NSAIDs a me nā steroids, ʻoiai pono nā poʻe ʻē aʻe i nā lāʻau lapaʻau holomua.

Pehea e hoʻokele ai i ka Maʻi Still o nā Mākua ma ka home?

ʻOiai he mea nui ka lapaʻau lapaʻau, he nui nā mea āu e hiki ke hana ma ka home e kōkua i ka hoʻokele ʻana i kou mau hōʻailona a hoʻomaikaʻi i kou maikaʻi o ke ola. Hana maikaʻi kēia mau hoʻolālā mālama ponoʻī me nā lāʻau lapaʻau i kuhikuhi ʻia.

Eia nā ʻanuʻu hana āu e hiki ke hana:

• Hoʻomaha i ka wā e pono ai: E hoʻolohe i kou kino a mai hoʻoikaika i ka luhi nui i ka wā o nā flare-ups
• E hoʻopili i ka wela a i ʻole ke anu: E hoʻohana i nā pā wela no nā hono paʻakikī a i ʻole nā ​​pā hau no nā wahi pehu a ʻeha
• E noho wai: E inu i ka wai nui, ʻoi aku hoʻi i ka wā o nā mahana wela
• Hoʻoikaika mālie: Hiki i ka hoʻonui ʻana i ka mālie, ka ʻauʻau, a i ʻole ka hele wāwae ke kōkua i ka mālama ʻana i ka hoʻopuni hono
• Hoʻokele kaumaha: E hoʻomaʻamaʻa i nā ʻano hoʻomaha, noʻonoʻo, a i ʻole nā ​​ʻano hoʻemi kaumaha ʻē aʻe
• E hoʻopaʻa i kou mau hōʻailona: E mālama i kahi moʻolelo o nā mahana, nā ʻili ʻili, a me ka ʻeha o nā hono e kōkua i kāu kauka

E hoʻomanaʻo e lawe i kāu mau lāʻau lapaʻau e like me ka kuhikuhi ʻana, ʻoiai ke ʻike nei ʻoe i ka maikaʻi. Hiki i ka hoʻōki ʻana i ka lapaʻau koke ke alakaʻi i nā flare-ups hōʻailona.

Pehea ʻoe e hoʻomākaukau ai no kāu hālāwai kauka?

Hiki i ka hoʻomākaukau maikaʻi ʻana no kāu mau kipa kauka ke kōkua iā ʻoe e loaʻa ka nui loa mai kāu mau hālāwai a hōʻoia i loaʻa i kāu hui olakino nā ʻike āpau āpau. ʻOiai hiki i nā hōʻailona o ka maʻi Still o nā mākua ke paʻakikī a loli, he mea nui loa ka hoʻomākaukau maikaʻi.

Ma mua o kāu hālāwai:

• E kākau i kou mau hōʻailona: E kākau i ka wā e hana ai nā mahana, pehea ka kiʻekiʻe o lākou, a he aha ka mea e hoʻomaikaʻi ai a ʻoi aku ka maikaʻi ʻole
• E lawe i nā kiʻi o kou ʻili: ʻOiai ke hele mai a nalowale nei ka ʻili, hiki i nā kiʻi ke kōkua nui i ka ʻike ʻana
• E papa inoa i nā lāʻau lapaʻau āpau: E komo pū nā lāʻau lapaʻau, nā lāʻau lapaʻau ma luna o ka counter, a me nā mea hoʻohui
• E hoʻomākaukau i nā nīnau: E kākau i nā mea āu e makemake ai e ʻike e pili ana i kou kūlana a me nā koho lapaʻau
• E lawe mai i kahi mea kākoʻo: Hiki i ka loaʻa ʻana o kekahi me ʻoe ke kōkua iā ʻoe e hoʻomanaʻo i nā ʻike a hāʻawi i ke kākoʻo manaʻo

Mai kānalua e noi i kāu kauka e wehewehe i kekahi mea āu ʻaʻole i hoʻomaopopo. ʻO kēia kou olakino, a pono ʻoe i ka ʻike maopopo a piha e pili ana i kou kūlana a me nā koho lapaʻau.

He aha ka mea nui e lawe ai e pili ana i ka Maʻi Still o nā Mākua?

ʻO ka maʻi Still o nā mākua he kūlana mumū maʻamau ʻole akā hiki ke hoʻokele ʻia e hoʻoulu ai i nā mahana kiʻekiʻe, ʻeha o nā hono, a me ka ʻili ʻulaʻula poni. ʻOiai hiki ke hopohopo i ka wā e ʻike mua ʻia ai nā hōʻailona, ​​nola nā poʻe he nui me kēia kūlana i nā ola piha a hana me ka lapaʻau kūpono.

ʻO nā mea nui loa e hoʻomanaʻo ai, ʻo ka ʻike mua ʻana a me ka lapaʻau e hana i kahi ʻokoʻa nui i nā hopena. Inā ʻoe e ʻike ana i nā hōʻailona maʻamau o nā mahana kiʻekiʻe i kēlā me kēia lā, ʻeha o nā hono, a me ka ʻili ʻulaʻula poni, mai kali e ʻimi i ka mālama olakino.

Me nā koho lapaʻau o kēia lā, e komo pū ana nā lāʻau lapaʻau maʻamau a me nā lāʻau biologic hou, hiki i ka hapa nui o nā poʻe ke hoʻokō i ka hoʻomalu maikaʻi ʻana o nā hōʻailona. E hana pili me kāu hui olakino, e mau i kāu papahana lapaʻau, a mai kānalua e hōʻea i ka wā e pono ai ʻoe i ke kākoʻo a i ʻole nā ​​hopohopo.

Nā nīnau i nīnau pinepine ʻia e pili ana i ka Maʻi Still o nā Mākua

Ua like anei ka maʻi Still o nā mākua me ka ʻeha hono kamaliʻi?

Manaʻo ʻia ʻo ka maʻi Still o nā mākua ʻo ia ka ʻano o nā mākua o ka ʻeha hono idiopathic systemic juvenile, akā ʻaʻole lākou he kūlana like. ʻOiai ke kaʻana like nei lākou i nā hōʻailona a me nā ʻano mumū, hana ʻia ka maʻi Still o nā mākua i nā poʻe ma luna o 16 mau makahiki a loaʻa paha nā hiʻohiʻona a me nā pane lapaʻau ʻokoʻa iki.

Hiki i ka maʻi Still o nā mākua ke komo i ka remission mau loa?

ʻAe, loaʻa i kekahi poʻe me ka maʻi Still o nā mākua ka remission lōʻihi, ʻoi aku hoʻi me ka lapaʻau mua a kūpono. Eia naʻe, hiki i nā poʻe ʻē aʻe ke ʻike i kahi papa hana mau me nā flare-ups manawa. Ma kahi o hoʻokahi hapakolu o nā poʻe he hoʻokahi wale nō hanana e hoʻonā piha ai, ʻoiai ʻike nā poʻe ʻē aʻe i nā hōʻailona hou a i ʻole ka ʻeha hono mau.

Hiki iaʻu ke hana a mālama i nā hana maʻamau?

Hiki i ka hapa nui o nā poʻe me ka maʻi Still o nā mākua ke hoʻomau i ka hana a me ka komo ʻana i nā hana maʻamau, ʻoi aku hoʻi me ka lapaʻau maikaʻi. I ka wā o nā flare-ups, pono paha ʻoe e hoʻololi i kou mau hana a lawe i ka manawa, akā nui nā poʻe e hoʻi i kā lākou mau hana maʻamau ma waena o nā hanana. E kamaʻilio me kāu kauka e pili ana i nā hoʻoponopono e hiki ke kōkua.

Aia kekahi mau meaʻai āu e pono ai e pale aku me ka maʻi Still o nā mākua?

ʻAʻohe meaʻai kūikawā e pono ai no ka maʻi Still o nā mākua, akā hiki i ka ʻai ʻana i kahi meaʻai kaulike a anti-inflammatory ke kōkua iā ʻoe e ʻike i ka maikaʻi maʻamau. Loaʻa i kekahi poʻe ka hoʻemi ʻana i nā meaʻai i hana ʻia a hoʻonui i nā momona momona omega-3 e kōkua ana i ka mumū. Eia naʻe, e kau nui i ka lawe ʻana i kāu mau lāʻau lapaʻau i kuhikuhi ʻia ma mua o ka hilinaʻi ʻana i nā hoʻololi meaʻai wale nō.

Hiki i ka maʻi Still o nā mākua ke hoʻopilikia i ka hāpai keiki?

Pono ka hāpai keiki me ka maʻi Still o nā mākua i ka hoʻolālā pono a me ka nānā ʻana, akā nui nā wahine i nā hāpai keiki holomua. Pono paha e hoʻoponopono a hoʻololi paha i kekahi mau lāʻau lapaʻau i hoʻohana ʻia e mālama i ke kūlana i ka wā hāpai. Inā ʻoe e hoʻolālā e hāpai a hāpai nei, e hana pili me kāu rheumatologist a me kāu obstetrician e hōʻoia i nā hopena maikaʻi loa no ʻoe a me kāu pēpē.