He aha ka Bullous Pemphigoid? Nā Hōʻailona, Nā Kumu, & Lapaʻau

ʻO ka bullous pemphigoid kahi maʻi ʻili autoimmune e hoʻokumu ai i nā ʻeha nui i piha i ka wai ma kou ʻili. Ke hoʻouka nei kou ʻōnaehana pale kino i nā protein olakino ma kou ʻili, e hana ana i kēia mau ʻeha ʻeha e ʻike pinepine ʻia ma nā wahi e like me kou mau lima, nā wāwae, a me ke kino.

Hoʻopili nui kēia maʻi i nā ʻelemakule, maʻamau nā mea ma mua o 60 mau makahiki. ʻOiai hiki ke hopohopo, hiki ke mālama ʻia ka bullous pemphigoid me ka mālama lapaʻau kūpono, a hiki i ka hapanui o nā kānaka ke hoʻokele pono i kā lākou mau hōʻailona me ke ala kūpono.

He aha nā hōʻailona o ka bullous pemphigoid?

ʻO ka hōʻailona nui nā ʻeha nui, i hoʻopaʻa ʻia e ulu ana ma kou ʻili. ʻO kēia mau ʻeha maʻamau he 1-3 kenimika ka laulaha a piha i ka wai maopopo, ʻoiai hiki iā lākou ke loaʻa i ke koko.

Ma mua o ka puka ʻana o nā ʻeha, hiki iā ʻoe ke ʻike i kekahi mau hōʻailona hoʻomaopopo e kōkua iā ʻoe e ʻike koke i ka maʻi:

• Ka ʻili ʻana ikaika e hiki ke koʻikoʻi a hoʻopilikia i ka hiamoe
• ʻO nā ʻāpana ʻili ʻulaʻula, a ʻāwīwī e mahana ke pā
• Nā puʻupuʻu kiʻekiʻe, e like me ka ʻōpū e hele mai a hele
• ʻIli e paʻa a palupalu paha i kekahi mau wahi

Loaʻa i nā ʻeha iho nā hiʻohiʻona kūikawā e hoʻokaʻawale iā lākou mai nā maʻi ʻili ʻē aʻe. He nui, dome-shaped lākou, a loaʻa iā lākou nā paia mānoanoa e hoʻoliʻiliʻi iā lākou mai ka haki maʻalahi ma mua o nā ʻano ʻē aʻe o nā ʻeha.

ʻO ka pinepine loa, e ʻike ʻoe i kēia mau ʻeha ma kou mau lima, nā wāwae, ka umauma, ke kua, a me ka ʻōpū. Hoʻomaka lākou e ʻike ʻia ma nā wahi e kulou ai kou ʻili a i ʻole ka hamo ʻana, e like me nā hui a i ʻole kahi e hamo ai nā lole i kou kino.

I kekahi mau hihia, hiki i ka bullous pemphigoid ke hoʻopili i kou waha, e hoʻokumu ana i nā ʻeha ʻeha i loko o kou mau papalina, nā gums, a i ʻole ka ʻāʻī. Hana kēia ma kahi o 10-30% o nā kānaka me ka maʻi a hiki ke hoʻoluhi i ka ʻai a i ʻole ka ʻai ʻana.

ʻAʻole pinepine, e hiki mai paha nā hōʻailona hou e like me ka luhi nui, ka maʻi wela iki, a i ʻole nā ​​nā huʻi ʻōpū. E kū mai kēia mau hōʻailona maʻamau i ka wā e laha ai ke kūlana a i ʻole i ka wā e ʻālohilohi ai.

He aha ke kumu o ka bullous pemphigoid?

E kū mai ana ka bullous pemphigoid i ka wā e hele ai kou ʻōnaehana pale kino i ka ʻino a hoʻouka i nā protein olakino ma kou ʻili. ʻO ka mea kūikawā, e hoʻouka ia i nā protein i kapa ʻia ʻo BP180 a me BP230, ka mea e kōkua ai e hoʻopaʻa i nā papa like ʻole o kou ʻili.

E noʻonoʻo i kēia mau protein e like me ka lepo e hoʻopaʻa ai i nā papa o kou ʻili. I ka wā e hoʻouka ai kou ʻōnaehana pale kino iā lākou, e hoʻokaʻawale nā ​​papa, a e piha ka wai i ka wahi ma waena o lākou, e hana ana i kēlā mau ʻōpala nui.

Hiki i kekahi mau mea ke hoʻoulu i kēia pane autoimmune, ʻoiai ʻaʻole maopopo mau ke kumu pololei:

• Nā lāʻau lapaʻau, ʻo nā diuretics, nā antibiotics, a me nā lāʻau lapaʻau koko kiʻekiʻe
• Ka hōʻeha kino i ka ʻili, e like me nā puhi, nā hana ʻoki, a i ʻole ka mālama ʻana i ka radiation
• Nā kūlana autoimmune ʻē aʻe e like me ka rheumatoid arthritis a i ʻole ka multiple sclerosis
• Nā maʻi, ʻo nā mea e pili ana i ka ʻili a i ʻole ka ʻōnaehana hanu
• Ke kaumaha, ʻo ke kino a me ka manaʻo, ka mea e hiki ai ke hoʻoulu i nā loli o ka ʻōnaehana pale kino

He mea nui ka makahiki i ka hoʻomohala ʻana i ka bullous pemphigoid. E loli kūlohelohe kou ʻōnaehana pale kino i kou wā e ulu ai, i kekahi manawa e lilo ai i mea maʻalahi ke hoʻouka i kou mau pūnaehana ponoʻī. E wehewehe kēia i ke kumu e ʻoi aku ka nui o ke kūlana i nā kānaka ma luna o 60.

I nā hihia kakaikahi, hiki ke hoʻomohala ʻia ka bullous pemphigoid me ka ʻole o kekahi mea hoʻoulu maopopo. Hiki i kou hoʻonohonoho genetic ke hana iā ʻoe i mea maʻalahi, akā ʻaʻole like me kekahi mau kūlana autoimmune ʻē aʻe, ʻaʻole ia e holo maʻamau i nā ʻohana.

Ke hoʻomohala nei kekahi poʻe i kahi ʻano kūloko o ke kūlana e pili ana i hoʻokahi wahi wale nō o ke kino, i hoʻoulu ʻia pinepine ʻia e ka hōʻeha kūikawā a i ʻole ka hana lapaʻau ma kēlā wahi.

I ka wā e ʻike ai i ke kauka no ka bullous pemphigoid?

E pono ʻoe e hele koke i ke kauka inā loaʻa iā ʻoe nā ʻōhule nui i piha i ka wai ma kou ʻili, ʻoiai inā hele pū me ka ʻūhā nui. Hiki i ka ʻike mua ʻana a me ka mālama ʻana ke pale aku i nā pilikia a kōkua iā ʻoe e ʻoluʻolu hou aku.

Mai kali inā ʻike ʻoe i nā ʻōhule he nui e puka mai ana i loko o kekahi mau lā a mau pule paha. ʻOiai ua like kekahi mau ʻano ʻili, pono ka bullous pemphigoid i kahi mālama kūikawā e hiki wale i ka mea mālama ola ke kauoha.

E ʻimi i ka mālama ola kino wikiwiki inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona hōʻailona:

• Nā ʻōhule i loko o kou waha e paʻakikī ai ka ʻai ʻana a i ʻole ka inu ʻana
• Nā hōʻailona o ka maʻi a puni nā ʻōhule, e like me ka ʻulaʻula nui, ka mahana, a i ʻole ka pus
• Fever me nā ʻōhule hou
• Nā ʻōhule e uhi ana i kahi ʻāpana nui o kou kino
• ʻEha nui e hoʻopilikia i nā hana o kēlā me kēia lā

ʻOiai inā ʻano māmā kou mau hōʻailona, ​​pono ia e nānā ʻia. Hiki i kāu kauka ke hoʻokaʻawale i ka bullous pemphigoid mai nā kūlana ʻē aʻe e hoʻokumu ana i nā ʻōhule a hoʻomaka i ka mālama kūpono ma mua o ka ʻino o ke kūlana.

Inā mālama ʻia ʻoe no ka bullous pemphigoid, e kelepona i kāu kauka inā ʻike ʻoe i nā ʻōhule hou e ulu ana, nā ʻōhule i loaʻa e maʻi, a i ʻole inā ʻaʻole i kāohi pono kāu mālama i kou mau hōʻailona.

He aha nā kumu pilikia no ka bullous pemphigoid?

ʻO ka makahiki ka mea pilikia nui loa no ka loaʻa ʻana o ka bullous pemphigoid. Ma kahi o 85% o nā kānaka i ʻike ʻia me kēia kūlana he 65 mau makahiki a ʻoi aku paha, a piʻi nui ka pilikia ma hope o 80 mau makahiki.

Hoʻopilikia kāu kino i ke kaʻina hana o ka ʻelemakule i kou ʻōnaehana pale a me ke ʻano o ka ʻili, e hoʻolilo i nā poʻe ʻelemakule i mea maʻalahi i nā kūlana ʻili autoimmune e like me ka bullous pemphigoid.

Hiki i kekahi mau kūlana olakino ke hoʻonui i kou pilikia o ka loaʻa ʻana o ka bullous pemphigoid:

• Nā maʻi neurological, ʻoiai ka dementia, ka maʻi Parkinson, a me ka hahau ʻana o ke koko
• Nā kūlana autoimmune ʻē aʻe e like me ka psoriasis a i ʻole ka maʻi inflammatory bowel
• Ka maʻi diabetes, hiki ke hoʻopilikia i ka hana o kou ʻōnaehana pale kino
• Mōʻaukala ma mua o ka maʻi ʻili a i ʻole ka hōʻino nui ʻana o ka lā
• Ka maʻi puʻupaʻa a i ʻole ate lōʻihi

Hiki i kekahi mau lāʻau lapaʻau ke hoʻoulu i ka bullous pemphigoid, ʻoi aku inā ua lawe ʻoe iā lākou no ka manawa lōʻihi. ʻO kēia mau mea e komo pū ana nā diuretics (nā papa wai), nā mea pale ACE no ke koko, kekahi mau lāʻau antibiotic, a me nā lāʻau anti-inflammatory.

Hiki i nā kumu kino ke hoʻonui i kou pilikia. Hiki i ka radiation therapy ma mua, nā puhi nui, a i ʻole ka ʻoki nui ke hoʻoulu i ke kūlana i nā mahina a i ʻole nā ​​makahiki ma hope aku. Hiki i ka hoʻolaha ʻana o ka mālamalama UV a me ka huhū ʻili lōʻihi ke pāʻani pū.

ʻAʻole like me nā kūlana autoimmune he nui, ʻaʻohe ʻāpana genetic ikaika o ka bullous pemphigoid. ʻAʻole hoʻonui nui ka loaʻa ʻana o kahi lālā ʻohana me ke kūlana i kou pilikia, ʻoiai paha kekahi poʻe he predisposition genetic i nā maʻi autoimmune ma ke ʻano holoʻokoʻa.

He mea hoihoi, ʻoi aku ka nui o ka pilikia o ka poʻe me kekahi mau kūlana neurological, ʻoiai nā mea e pili ana i ka hoʻomanaʻo a me ka cognition, e hoʻomohala i ka bullous pemphigoid. Ke aʻo nei nā mea noiʻi i ke kumu o kēia pilina.

He aha nā pilikia hiki ke loaʻa i ka bullous pemphigoid?

Hiki i ka hapa nui o nā kānaka me ka bullous pemphigoid ke hoʻokele maikaʻi i ko lākou kūlana me ka mālama kūpono, akā hiki ke loaʻa kekahi mau pilikia inā ʻaʻole i hoʻokele pono ʻia ke kūlana. Ke hoʻomaopopo ʻana i kēia mau mea hiki ke kōkua iā ʻoe e ʻike i ka wā e ʻimi ai i ka mālama lapaʻau hou aku.

ʻO nā pilikia maʻamau loa e pili ana i nā blisters ponoʻī a me ke ʻano o ko lākou hopena i kou ola i kēlā me kēia lā:

• Nā maʻi bacteria lua ke haki nā pūpū a hōʻike i ka ʻili ʻānai.
• Ka hōʻino ʻana, ʻoi aku ka nui inā loaʻa ka maʻi i nā pūpū a i ʻole ke hoʻonāukiuki mau ʻia.
• Loli ke kala o ka ʻili ma kahi i ho'ōla ai nā pūpū.
• Paʻakikī ke neʻe me ka ʻoluʻolu ke loaʻa nā pūpū ma luna o nā hono.
• Hoʻopilikia ʻia ka hiamoe ma muli o ka ʻūhā ikaika a me ka ʻoluʻolu ʻole o ka ʻili.

Hiki ke loaʻa nā pilikia o ka meaʻai ke hoʻopilikia ka bullous pemphigoid i kou waha a me kou ʻāʻī. Hiki i nā pūpū ʻeha ke hana i ka paʻakikī o ka ʻai ʻana a me ka inu ʻana, a hiki ke alakaʻi i ka emi ʻana o ke kaumaha, ka maloʻo ʻana, a i ʻole ka nele o ka meaʻai, ʻoi aku hoʻi i nā ʻelemakule.

ʻO nā lāʻau lapaʻau i hoʻohana ʻia e mālama i ka bullous pemphigoid hiki ke loaʻa i kekahi manawa nā hopena ʻaoʻao, ʻoi aku hoʻi me ka hoʻohana lōʻihi. Hiki i nā Corticosteroids, ka mea e pono ai no ka mālama ʻana, ke hoʻopilikia i kou nui o ka iwi, nā pae kō koko, a me kou ʻōnaehana pale kino ma hope o kekahi manawa.

I nā hihia kakaikahi, hiki i ka bullous pemphigoid ākea ke alakaʻi i nā pilikia koʻikoʻi hou aku. ʻO kēia mau mea e komo pū ana i ka nalowale nui o ka wai mai nā pūpū haki ākea, nā pilikia electrolyte, a me ka hoʻonui ʻia o ka pilikia o nā maʻi koʻikoʻi ma muli o ka hana pale ʻili i hoʻohaʻahaʻa ʻia.

ʻAʻole pono e nānā ʻole ʻia nā hopena manaʻo a me ka noʻonoʻo. Hiki i ke ʻano o nā pūpū, ka ʻoluʻolu mau, a me ka hōʻino hiki ke hoʻopilikia i kou manaʻo ponoʻī a me kou ola maikaʻi, a i kekahi manawa e alakaʻi ai i ka kaumaha a i ʻole ka hoʻokaʻawale ʻana i ka nohona.

ʻAʻole pinepine, hiki i ka bullous pemphigoid ke lilo i mea weliweli i ke ola, ʻoi aku hoʻi i nā ʻelemakule a i ʻole nā ​​​​kānaka nāwaliwali. Hana pinepine ʻia kēia ke ākea ka maʻi, lilo i mea maʻi koʻikoʻi, a i ʻole ke alakaʻi ʻia nā pilikia mai nā lāʻau lapaʻau.

Pehea e ʻike ʻia ai ka bullous pemphigoid?

ʻO ka ʻike ʻana i ka bullous pemphigoid e pono ai ka hui pū ʻana o ka nānā ʻana i ka maka, ka mōʻaukala lapaʻau, a me nā hoʻokolohua kūikawā. E hoʻomaka kāu kauka ma ka nānā pono ʻana i kāu mau pūpū a nīnau e pili ana i ka manawa mua o ko lākou hele ʻana mai a pehea lākou i loli ai i ka manawa.

ʻO ke ʻano a me kahi o kou mau pūpū he mau hōʻailona koʻikoʻi ia, akā naʻe, nui nā ʻano ʻili ʻē aʻe e like me ia, no laila, pono pinepine ka hoʻokolohua hou aku no ka hōʻoia ʻana i ka maʻi.

E hana paha kāu kauka i kēia mau hoʻokolohua hōʻoia no ka hōʻoia ʻana i ka bullous pemphigoid:

1. Biopsy ʻili: Hoʻoneʻe ʻia kahi ʻāpana liʻiliʻi o ka ʻili i pilikia a nānā ʻia ma lalo o ka microscope
2. Direct immunofluorescence: ʻO kēia hoʻokolohua kūikawā e ʻimi ana i nā antibodies i waiho ʻia i kou ʻili
3. Nā hoʻokolohua koko: E nānā kēia i nā antibodies kūikawā (anti-BP180 a me anti-BP230) i loko o kou koko
4. Indirect immunofluorescence: E hōʻoia kēia i ke kūpono o nā antibodies e holo nei

ʻO ka biopsy ʻili ka hoʻokolohua nui loa. E lawe kāu kauka i kahi ʻāpana liʻiliʻi o ka ʻili e komo pū ana i ka pūpū a me ka ʻili maʻamau a puni. Hāʻawi kēia iā lākou e ʻike i ka papahele pololei kahi e wehe ai a kāpae i nā kūlana pūpū ʻē aʻe.

Hiki i nā hoʻokolohua koko ke ʻike i nā antibodies kūikawā e hoʻoulu ai i ka bullous pemphigoid ma kahi o 70-90% o nā kānaka me ke kūlana. Hoʻopili pinepine nā kiʻekiʻe o ka antibody i ka maʻi ʻoi aku ka nui, a hiki ke nānā ʻia kēia mau kiʻekiʻe e hahai i ka pane lapaʻau.

I kekahi manawa, pono paha kāu kauka e kāpae i nā kūlana ʻē aʻe e hiki ke hoʻoulu i nā pūpū like, e like me ka pemphigus vulgaris, epidermolysis bullosa acquisita, a i ʻole ka linear IgA maʻi. Pono kēlā me kēia o kēia mau kūlana i nā ala lapaʻau like ʻole.

ʻO ka hana hōʻoia maʻamau he mau lā a hiki i hoʻokahi pule, ma muli o ka wikiwiki o ka loaʻa ʻana o nā hopena labo. I kēia manawa, hiki i kāu kauka ke hoʻomaka i ka lapaʻau hoʻomaka e kōkua i ka kaohi ʻana i kou mau hōʻailona i ka kali ʻana no ka hōʻoia.

He aha ka lāʻau lapaʻau no ka bullous pemphigoid?

ʻO ka mālama ʻana i ka bullous pemphigoid e kau nui ana i ka hoʻohaʻahaʻa ʻana i kou ʻōnaehana pale kino i hana nui loa e pale aku ai i ka hoʻokumu ʻana o nā ʻeha hou a kōkua i ka ho'ōla ʻana o nā mea i loaʻa. Hoʻomaikaʻi maikaʻi ka hapa nui o nā kānaka i ka mālama ʻana, ʻoiai e pono paha kekahi mau pule e ʻike i ka hoʻomaikaʻi nui.

E hoʻomaka paha kāu kauka me nā corticosteroids topical a i ʻole waha, ʻo ia nā mālama mua loa e kūpono loa ana no ka kaohi ʻana i ka pane autoimmune e hoʻokumu ai i ka bullous pemphigoid.

ʻO nā ala mālama maʻamau e komo pū ana:

• Corticosteroids topical: Nā ʻaila a i ʻole nā poni kiʻekiʻe i hoʻopili pololei ʻia i nā wahi i pilikia
• Corticosteroids waha: Prednisone i lawe ʻia ma ka waha no ka maʻi ākea aʻe
• Nā lāʻau immunosuppressive: Nā lāʻau lapaʻau e like me ka methotrexate a i ʻole azathioprine e hoʻemi i ka hana ʻana o ka ʻōnaehana pale kino
• Nā lāʻau antibiotic Tetracycline: Loaʻa i kēia mau mea nā waiwai anti-inflammatory e hiki ke kōkua i kekahi poʻe
• Rituximab: ʻO kahi lāʻau lapaʻau kūikawā no nā hihia koʻikoʻi ʻaʻole pane i nā mālama ʻē aʻe

No ka bullous pemphigoid i kaupalena ʻia i nā wahi liʻiliʻi wale nō, hiki i kāu kauka ke kuhikuhi i nā steroids topical ikaika ma ke ʻano he mālama mua. Hiki i kēia mau mea ke maikaʻi loa a loaʻa nā hopena ʻaoʻao liʻiliʻi ma mua o nā lāʻau waha.

Inā loaʻa iā ʻoe nā ʻeha ākea, pono pinepine nā corticosteroids waha i ka hoʻomaka. E hoʻomaka maʻamau kāu kauka me kahi nui kiʻekiʻe e hoʻomalu i ke kūlana, a laila e hoʻemi mālie i ka nui i ka nui haʻahaʻa loa e mālama i kou mau hōʻailona.

Pono ka nui o nā kānaka i ka mālama hui, ʻoi aku hoʻi no ka hoʻokele lōʻihi. Hiki i kāu kauka ke hoʻohui i kahi lāʻau immunosuppressive e kōkua i ka hoʻemi ʻana i ka nui o nā steroids āu e pono ai, e hoʻemi ana i nā hopena ʻaoʻao hiki mai ka hoʻohana ʻana i nā steroids lōʻihi.

ʻOkoʻa ka pane o ka hoʻōla ma waena o nā kānaka, akā ʻike ka hapa nui o nā kānaka i ka pau ʻana o ka hoʻokumu ʻana i nā ʻōpū hou i loko o 2-4 mau pule ma hope o ka hoʻomaka ʻana o ka mālama ʻana. Hiki ke hala kekahi mau mahina no ka hoʻōla piha ʻana o nā ʻōpū i loaʻa, a pono kekahi poʻe i ka mālama mālama mau e pale aku i nā flare-ups.

I nā hihia kakaikahi kahi i kūleʻa ʻole ai nā mālama maʻamau, hiki i kāu kauka ke noʻonoʻo i nā lāʻau hou e like me ka immunoglobulin intravenous (IVIG) a i ʻole plasmapheresis, kahi e komo ai ka kānana ʻana i nā antibodies mai kou koko.

Pehea e mālama ai i ka bullous pemphigoid ma ka home?

He kuleana nui ka mālama home i ka mālama ʻana i ka bullous pemphigoid me kāu mālama lapaʻau. Hiki i ka mālama ʻana i ka ʻeha a me nā hoʻoponopono nohona ke kōkua i ka pale ʻana i nā pilikia a hoʻoluʻolu iā ʻoe i ka wā o ka mālama ʻana.

He mea nui ka mālama pono ʻana i kāu mau ʻōpū e pale aku i ka maʻi a hoʻolaha i ka hoʻōla. E mālama i ka wahi maʻemaʻe a maloʻo, a pale aku i nā hana e hiki ai ke haki koke i nā ʻōpū.

Eia nā ʻano mālama home nui:

• E hoʻomaʻemaʻe mālie i nā ʻōpū i ʻole i haki me ka sapona palupalu a me ka wai i kēlā me kēia lā
• E hoʻopili i nā lāʻau topical i kuhikuhi ʻia e like me ke kuhikuhi
• E uhi i nā ʻōpū i haki me nā bandages ʻole-paʻa e pale aku i ka maʻi
• E komo i nā lole palalulu, palupalu e hoʻemi i ka haʻalulu i kou ʻili
• E hoʻohana i nā huahana mālama ʻili ʻala ʻole, palupalu
• E ʻauʻau me ka wai mahana me ka oatmeal colloidal e hoʻoluʻolu i ka ʻūhā

ʻO ka mālama ʻana i ka ʻūhā pinepine kekahi o nā ʻaoʻao paʻakikī loa o ka noho ʻana me ka bullous pemphigoid. Hiki i nā compresses anuanu ke hāʻawi i ka hoʻomaha manawa pōkole, a ke mālama ʻana i kou mau kui pōkole e kōkua i ka pale ʻana i ka pōʻino mai ka ʻūhā.

Hiki i kāu meaʻai ke pāʻani i kahi kuleana kākoʻo i kāu hoʻōla. Ke kōkua nei ka ʻai ʻana i nā meaʻai momona i ka protein i kou ʻili e hoʻōla, ʻoiai ke mālama pono ʻana i ka wai e kākoʻo i ke olakino ʻili holoʻokoʻa. Inā loaʻa iā ʻoe nā ʻōpū waha, ʻoi aku ka ʻoluʻolu o nā meaʻai palupalu a anuanu.

Kiai i nā hōʻailona o ka maʻi i loko o kou mau ʻōpū, e like me ka ʻulaʻula nui ʻana, ka mahana, ka pehu, a i ʻole ka pus. Hoʻokaʻaʻike koke i kāu kauka inā ʻike ʻoe i kēia mau hōʻailona, no ka mea, hiki i nā maʻi ke hoʻomālie i ka ho'ōla a hoʻokumu i nā pilikia.

Hiki i ka hoʻoikaika māmā, e like me ka mea i ʻae ʻia, ke kōkua i ka mālama ʻana i kou olakino holoʻokoʻa a me kou manaʻo i ka wā o ka mālama ʻana. Eia naʻe, e pale i nā hana e hoʻoulu ai i ka hou ʻana o ka ʻili a i ʻole ka haʻalulu ʻana i nā wahi ʻili i pilikia.

Mālama i kahi moʻolelo hōʻailona e hahai i kou holomua a ʻike i nā ʻano i loko o kou mau hōʻailona. Hiki i kēia ʻike ke waiwai nui no kāu hui mālama ola i ka hoʻoponopono ʻana i kāu papa hana mālama.

Pehea ʻoe e hoʻomākaukau ai no kāu kūkā lāʻau lapaʻau?

Ke hoʻomākaukau ʻana no kāu kūkā lāʻau lapaʻau e kōkua i ka hōʻoia ʻana e loaʻa iā ʻoe ka hōʻailona pololei loa a me ka papa hana mālama maikaʻi loa. E lawe mai i ka papa inoa piha o kāu mau lāʻau lapaʻau i kēia manawa, me nā mea hoʻohui over-the-counter, no ka mea, hiki i kekahi ke hoʻoulu a hoʻopilikia paha i ka bullous pemphigoid.

E kākau pono i kāu mau hōʻailona ma mua o kāu kipa. E hoʻomaopopo i ka wā i ʻike mua ʻia ai nā ʻōpū, pehea lākou i loli ai, a he aha ka mea e hoʻomaikaʻi ai a hoʻopilikia paha iā lākou. Hiki i nā kiʻi ke kōkua, ʻoiai inā ua loli kāu mau ʻōpū mai ka wā āu i hoʻonohonoho ai i ka kūkā lāʻau lapaʻau.

E hoʻomākaukau i kēia ʻike no kāu kauka:

• Papa inoa lāʻau lapaʻau piha, me nā loli hou a i ʻole nā ​​kauoha hou
• Ka lā o ka hoʻomaka ʻana o nā hōʻailona a pehea lākou i holomua ai
• Kekahi mau maʻi hou, nā hōʻeha, a i ʻole nā ​​kaʻina hana lapaʻau
• Mōʻaukala ʻohana o nā kūlana autoimmune
• Papa inoa o nā nīnau e pili ana i kou kūlana a me nā koho mālama

E kākau i nā nīnau kikoʻī āu e makemake ai e nīnau, e like me ka mea e manaʻo ai mai ka mālama ʻana, nā hopena ʻaoʻao o nā lāʻau lapaʻau, a pehea e mālama ai i kāu mau ʻōpū ma ka home. Mai kānalua e nīnau e pili ana i kekahi mea e hopohopo ai ʻoe.

Inā hiki, lawe mai i kekahi lālā o kou ʻohana a i ʻole hoaaloha i kou kūkā. Hiki iā lākou ke kōkua iā ʻoe e hoʻomanaʻo i nā ʻike koʻikoʻi a hāʻawi i ke kākoʻo, ʻoiai inā ʻoe e manaʻo nui ʻia e ka ʻike maʻi.

E mākaukau e kūkākūkā pono i kou maikaʻi o ke ola. E haʻi aku i kāu kauka pehea ka hopena o ke kūlana i kou hiamoe, nā hana o kēlā me kēia lā, a me kou olakino manaʻo. Kūkulu kēia ʻike iā lākou e hoʻomaopopo i ka hopena piha o kou kūlana.

E nīnau e pili ana i ka mālama hoʻomau a me nā hōʻailona e pono ai ʻoe e kāhea ma mua o kāu kūkā hoʻonohonoho ʻia aʻe. ʻO ka hoʻomaopopo ʻana i ka wā e ʻimi ai i ka mālama koke hiki ke pale aku i nā pilikia a hāʻawi iā ʻoe i ka maluhia o ka manaʻo.

He aha ka mea nui e pili ana i ka bullous pemphigoid?

ʻO ka bullous pemphigoid kahi kūlana ʻili autoimmune hiki ke mālama ʻia e pili nui ana i nā poʻe ʻelemakule. ʻOiai ʻo nā ʻeha nui e hiki ke makaʻu, ʻoi aku ka nui o nā kānaka e pane maikaʻi i ka lāʻau a hiki ke loaʻa ka mana maikaʻi o kā lākou mau hōʻailona me ka mālama lapaʻau kūpono.

He mea nui ka ʻike mua ʻana a me ka mālama ʻana no nā hopena maikaʻi loa. Inā ʻike ʻoe i nā ʻeha nui, mau loa ma kou ʻili, ʻoi aku hoʻi me ka ʻūhā ikaika, mai kānalua e ʻike koke i kahi mea mālama ola.

Pono ke kūlana i ka mālama lapaʻau mau, akā me ke ala mālama kūpono, hiki i ka hapa nui o nā kānaka ke mālama i ka maikaʻi o ke ola. E hana pū kāu hui mālama ola me ʻoe e ʻimi i ka papahana mālama maikaʻi loa ʻoiai e hoʻemi ana i nā hopena ʻaoʻao.

E hoʻomanaʻo ʻaʻole pilikia ka bullous pemphigoid, a me ka mālama kūpono, hiki ke pale ʻia nā pilikia. E noho pili me kāu poʻe mālama ola, e hahai mau i kāu papahana mālama, a mai kānalua e hoʻopili inā loaʻa iā ʻoe nā manaʻo e pili ana i kou kūlana.

Nā nīnau pinepine e pili ana i ka bullous pemphigoid

Ua pilikia anei ka bullous pemphigoid?

ʻAʻole, ʻaʻole pilikia ka bullous pemphigoid. He maʻi autoimmune ia kahi e hoʻouka ai kou ʻōnaehana pale kino i kou ʻili, ʻaʻole ia he maʻi e hoʻolaha aku i nā poʻe ʻē aʻe. ʻAʻole hiki iā ʻoe ke loaʻa mai kekahi, a ʻaʻole hiki iā ʻoe ke hāʻawi aku i nā lālā o kou ʻohana a i ʻole nā ​​hoaaloha ma o ka hoʻopā kino.

Pehea ka lōʻihi o ka bullous pemphigoid?

ʻO ka bullous pemphigoid maʻamau he 1-5 mau makahiki me ka lāʻau lapaʻau, ʻoiai he ʻokoʻa loa kēia ma waena o nā kānaka. Loaʻa i kekahi poʻe ka remission i loko o nā mahina, ʻoiai pono nā poʻe ʻē aʻe i ka lāʻau lapaʻau mau no kekahi mau makahiki. Ma kahi o 30-50% o nā kānaka e loaʻa ana ka remission piha i loko o 2-3 mau makahiki mai ka hoʻomaka ʻana o ka lāʻau lapaʻau.

Hiki ke ho'ōla loa ʻia ka bullous pemphigoid?

ʻOiai ʻaʻohe lāʻau lapaʻau mau loa no ka bullous pemphigoid, nui nā kānaka e loaʻa ana ka remission lōʻihi kahi ʻaʻohe o lākou mau ʻōpala hana a ʻaʻole pono lākou i ka lāʻau lapaʻau. ʻAʻole loaʻa hou i kekahi poʻe kahi flare-up ma hope o kā lākou manawa lāʻau mua, ʻoiai pono paha kekahi poʻe i ka mālama mālama e pale aku i ka hoʻi hou ʻana.

He aha nā meaʻai e pono ai au e pale aku me ka bullous pemphigoid?

ʻAʻohe meaʻai kikoʻī āu e pono ai e pale aku me ka bullous pemphigoid, ʻoiai ʻaʻole hoʻonāukiuki ka ʻai i nā flare-ups. Eia naʻe, inā loaʻa iā ʻoe nā ʻōpala waha, hiki iā ʻoe ke ʻike i nā meaʻai ʻawaʻawa, ʻakika, a i ʻole nā ​​meaʻai paʻakikī. E hoʻomaʻamaʻa i ka ʻai ʻana i kahi ʻai kaulike waiwai i ka protein e kākoʻo i ka ho'ōla ʻana o ka ʻili.

Hiki i ke kaumaha ke hoʻopilikia i ka bullous pemphigoid?

Hiki i ke kaumaha ke hoʻonāukiuki i nā flare-ups o ka bullous pemphigoid a i ʻole e hoʻopilikia i nā hōʻailona i loaʻa, ʻoiai ke kaumaha e hoʻopilikia i kou ʻōnaehana pale kino. ʻOiai ʻaʻole hoʻokumu wale ke kaumaha i ke kūlana, hiki i ka hoʻokele ʻana i ke kaumaha ma o nā ʻenehana hoʻomaha, ka hiamoe lawa, a me ke kākoʻo manaʻo ke pono no kāu papahana mālama holoʻokoʻa.