He aha ka Chordoma? Nā Hōʻailona, Nā Kumu, a me ka Lapaʻau

He ʻano maʻamau ʻole o ka maʻi kanesa iwi ka chordoma e ulu mai ana mai nā sela i koe mai kou wā ʻōpiopio. ulu mālie kēia mau maʻi ma luna o kou kua a i ka lalo o kou poʻo, kahi i hana ʻia ai kou kua i ka wā ulu mua.

ʻOiai he mea maʻamau ʻole nā chordoma, e pili ana i hoʻokahi wale nō i loko o 1 miliona mau kānaka i kēlā me kēia makahiki, hiki i ka hoʻomaopopo ʻana i kēia kūlana ke kōkua iā ʻoe e ʻike i nā hōʻailona a ʻimi i ka mālama kūpono. ulu mālie kēia mau maʻi i nā mahina a i ʻole nā makahiki, ʻo ia hoʻi, hiki i ka ʻike mua ʻana a me ka mālama ʻana ke hoʻololi nui i nā hopena.

He aha ka chordoma?

E ulu ana ka chordoma mai nā koena o ka notochord, kahi ʻano lāʻau palupalu e kōkua ana i ka hana ʻana i kou kua i ka wā ulu ʻōpiopio. Ma ke ʻano maʻamau, e nalowale kēia ʻano i ka wā e ulu ai kou kua, akā i kekahi manawa, e waiho ʻia nā hui liʻiliʻi o kēia mau sela.

Hiki i kēia mau sela i koe ke ulu i nā maʻi, maʻamau ma nā wahi nui ʻelua. Ma kahi o ka hapalua o nā chordoma e hana ʻia ma ka lalo o kou poʻo, ʻoiai ke hana ʻia kekahi hapalua i kou kua haʻahaʻa, ʻoiai ma kahi o kou ʻāʻī.

ulu mālie loa nā maʻi, pinepine i nā makahiki e lilo ai i mea nui e hoʻoulu ai i nā hōʻailona. ʻO kēia ʻano ulu mālie, hiki i nā chordoma ke hiki i ka nui ma mua o kou ʻike ʻana i kekahi pilikia, ʻo ia ke kumu i kapa ʻia ai lākou he "maʻi mālie."

He aha nā hōʻailona o ka chordoma?

E hilinaʻi nā hōʻailona o ka chordoma ma kahi o ka maʻi a me ka nui o kona ulu ʻana. ʻOiai e ulu mālie ana kēia mau maʻi, e ʻike ʻia nā hōʻailona ma ke ʻano mālie a hiki ke palupalu i ka wā mua.

Ke hana ʻia nā chordoma ma ka lalo o kou poʻo, hiki iā ʻoe ke ʻike:

• Nā poʻo ʻeha mau loa ʻaʻole pane maikaʻi i nā mea hoʻoemi ʻeha maʻamau
• Nā maka ʻelua a i ʻole nā loli ʻike ʻē aʻe
• Nā pilikia lohe a i ʻole ka kani ʻana i kou pepeiao
• Nā pilikia ʻai a i ʻole ka ʻōlelo
• Ke ʻano ʻole a i ʻole ka ʻū ʻana i kou maka
• Ka congestion ihu ʻaʻole e hoʻomaikaʻi
• Nā ihu koko me ke kumu maopopo ʻole

No nā chordoma i kou kua, ʻoiai ma ka hope haʻahaʻa a i ʻole ka ʻāʻī, hiki i nā hōʻailona ke komo:

• ʻEha mau loa i kou kua haʻahaʻa a i ʻole ka ʻāʻī
• ʻEha e ʻoi aku ka ʻino i ka noho ʻana a i ʻole ka moe ʻana
• Nā pilikia kaohi ʻōpū a i ʻole ka mimi
• Ke ʻano ʻole a i ʻole ka nāwaliwali i kou mau wāwae
• Kahi ʻāpana a i ʻole ka nui e hiki ke ʻike ʻia
• Nā pilikia hele a i ʻole nā loli i kou hele ʻana

I nā hihia maʻamau ʻole, hiki i nā chordoma ke hana ʻia ma ka waenakonu o kou kua, e hoʻoulu ana i ka ʻeha kua, ka nāwaliwali lima, a i ʻole nā pilikia me ka hoʻonohonoho ʻana. ʻAʻole maʻamau kēia mau wahi akā hiki ke hoʻoulu i nā hōʻailona nui i ka wā e ulu ai ka maʻi.

He aha ka mea e hoʻoulu ai i ka chordoma?

E ulu ana ka chordoma i ka wā e hoʻomaka ai nā sela i koe mai ka ulu ʻana o ka ʻōpiopio e ulu kūpono ʻole. I kou mau wā mua o ka ulu ʻana, e kōkua ana kahi ʻano i kapa ʻia ʻo ka notochord i ka hana ʻana i kou kua a laila e nalowale maʻamau.

I kekahi manawa, e waiho ʻia nā hui liʻiliʻi o kēia mau sela mua i kou kino ma hope o ka hānau ʻana. I ka hapanui o nā kānaka, ʻaʻole loa e hoʻoulu kēia mau sela i koe i nā pilikia a e noho mālie i loko o ke ola. Eia naʻe, i nā hihia maʻamau ʻole, hiki i kēia mau sela ke hoʻomaka e hoʻokaʻawale a ulu i nā maʻi, ʻoiai ʻaʻole mākou i hoʻomaopopo piha i ka mea e hoʻoulu ai i kēia kaʻina.

Hana ʻia ka hapanui o nā chordoma me ke kumu maopopo ʻole a i ʻole ka mea hoʻoulu. ʻAʻole like me kekahi mau maʻi kanesa, ʻaʻole pili nā chordoma i nā mea pili ola e like me ka puhipaka, ka ʻai, a i ʻole nā mea hoʻolaha kaiapuni. ʻAʻole ia e like me ka mea i hoʻoulu ʻia e nā maʻi a i ʻole nā hōʻeha.

I nā hihia maʻamau loa, hiki i nā chordoma ke holo i nā ʻohana ma muli o nā loli genetic, akā ʻo kēia ka mea i emi iho ma mua o 5% o nā hihia a pau. ʻO ka hapa nui o nā kānaka me ka chordoma ʻaʻohe moʻolelo ʻohana o ke kūlana.

He aha nā ʻano o ka chordoma?

E hoʻokaʻawale nā kauka i nā chordoma i ʻekolu ʻano nui ma muli o ke ʻano o lākou ma lalo o ka microscope. Loaʻa i kēlā me kēia ʻano nā hiʻohiʻona a me nā ʻano ʻokoʻa iki, ʻoiai ua manaʻo ʻia nā chordoma a pau he mau maʻi kanesa maʻamau ʻole.

ʻO ka chordoma maʻamau ka ʻano maʻamau loa, e hana ana ma kahi o 85% o nā chordoma a pau. ulu mālie kēia mau maʻi a loaʻa iā lākou kahi hiʻohiʻona me nā sela e like me nā pōpō kopa ma lalo o ka microscope.

ʻO ka chondroid chordoma ka mea e pili ana i 10% o nā hihia a loaʻa iā ia nā sela chordoma a me nā pūnaewele cartilage-like. ʻOi aku ka nui o kēia ʻano ma ka lalo o ka poʻo a hiki ke loaʻa kahi manaʻo maikaʻi ma mua o ka chordoma maʻamau.

ʻO ka dedifferentiated chordoma ka mea maʻamau ʻole a me ka mea ʻino loa, e hōʻike ana i ka emi iho ma mua o 5% o nā chordoma a pau. ulu wikiwiki kēia mau maʻi ma mua o nā ʻano ʻē aʻe a ʻoi aku ka nui o ka laha ʻana i nā ʻāpana ʻē aʻe o kou kino, e hoʻopaʻakikī ai i ka mālama ʻana.

I ka wā e ʻike ai i ke kauka no ka chordoma?

Pono ʻoe e ʻike i kāu kauka inā ʻike ʻoe i nā hōʻailona mau loa ʻaʻole e hoʻomaikaʻi me nā lāʻau lapaʻau maʻamau a i ʻole ka hoʻomaha. ʻOiai hiki i nā hōʻailona chordoma ke palupalu a ulu mālie, he mea nui ia ʻaʻole e hoʻohaʻahaʻa i nā pilikia mau.

E ʻimi i ka mālama lapaʻau inā loaʻa iā ʻoe nā poʻo ʻeha ʻokoʻa mai kāu mau poʻo ʻeha maʻamau, ʻoiai inā ua hui pū ʻia me nā loli ʻike, nā pilikia lohe, a i ʻole ka ʻano ʻole o ka maka. Pono kēia mau hui o nā hōʻailona i ka loiloi koke.

No nā hōʻailona pili kua, e ʻike i kāu kauka inā loaʻa iā ʻoe ka ʻeha mau loa i kou kua a i ʻole ka ʻāʻī ʻaʻole e hoʻomaikaʻi me ka hoʻomaha, ʻoiai inā ua hui pū ʻia me nā pilikia ʻōpū a i ʻole ka mimi, ka nāwaliwali wāwae, a i ʻole ka ʻano ʻole. Hiki i kēia mau hōʻailona ke hōʻike i ke kaomi ma nā aʻalolo koʻikoʻi.

Mai kali inā ʻike ʻoe i kekahi loli koke i kāu mau hōʻailona a i ʻole inā e ʻoi aku ka ʻino. ʻOiai e ulu mālie ana nā chordoma, hiki i kekahi maʻi ke hoʻoulu i nā loli wikiwiki e pono ai ka nānā koke.

He aha nā mea pilikia no ka chordoma?

ʻO ka nui o nā pilikia chordoma e hopena mai ana i kahi a me ka nui o ka maʻi ma mua o kona ʻano e laha ai i kou kino. ʻOiai e ulu ana kēia mau maʻi i nā wahi koʻikoʻi kokoke i kou lolo a me kou kua, hiki iā lākou ke hoʻoulu i nā pilikia nui i ka wā e nui ai.

Hiki i nā pilikia maʻamau ke komo:

• Ka pōʻino aʻalolo mau loa e hoʻoulu ana i ka nāwaliwali, ka ʻano ʻole, a i ʻole ka palasi
• Ka hana ʻole ʻana o ka ʻōpū a i ʻole ka mimi inā e hoʻopilikia ka maʻi i nā aʻalolo kua
• Ka nalowale ʻana o ka ʻike a i ʻole ka lohe no nā maʻi i ka poʻo
• Nā pilikia ʻai a i ʻole ka ʻōlelo
• ʻEha mau loa i paʻakikī ke hoʻokele
• Nā pilikia neʻe a i ʻole ka pilikia hele

I nā hihia maʻamau ʻole, hiki i ka chordoma ke laha i nā ʻāpana ʻē aʻe o kou kino, maʻamau i kou māmā, ate, a i ʻole nā iwi ʻē aʻe. E hana ʻia kēia ma kahi o 30% o nā hihia, maʻamau i nā makahiki ma hope o ka ʻike mua ʻana. Ke laha ka chordoma, e lilo ia i mea paʻakikī loa ke mālama.

Hiki nō hoʻi ke hana i nā pilikia mālama ʻana, ʻoiai ma hope o ka ʻoki kino ma kēia mau wahi māmā. Hiki i kēia ke komo i ka maʻi, nā leaka cerebrospinal fluid, a i ʻole ka pōʻino aʻalolo hou aku. Eia naʻe, ua hoʻemi nui nā ʻenehana ʻoki kino hou i kēia mau pilikia.

Pehea e ʻike ʻia ai ka chordoma?

E hoʻomaka ka ʻike ʻana i ka chordoma me kāu kauka e lawe ana i kahi moʻolelo kikoʻī o kāu mau hōʻailona a me ka hana ʻana i kahi hoʻokolokolo kino. ʻOiai hiki i nā hōʻailona chordoma ke like me nā kūlana ʻē aʻe, e kauoha paha kāu kauka i nā hoʻokolohua kiʻi e kiʻi i kahi ʻike maikaʻi aʻe i ka wahi.

ʻO nā MRI scan ka hoʻokolohua kiʻi pono loa no ka chordoma no ka mea e hāʻawi lākou i nā kiʻi kikoʻī o nā pūnaewele palupalu a hiki ke hōʻike i kahi a me ka nui o ka maʻi. Hiki ke hoʻohana ʻia nā CT scan e ʻike i ke ʻano o ka maʻi i nā ʻano iwi kokoke.

ʻO ke ala wale nō e ʻike pono ai i ka chordoma ma o ka biopsy, kahi e wehe ʻia ai kahi laʻana liʻiliʻi o ka maʻi a nānā ʻia ma lalo o ka microscope. Pono kēia kaʻina hana i ka hoʻolālā mālama no ka mea e hana ʻia nā chordoma i nā wahi māmā kokoke i nā ʻano koʻikoʻi.

Hiki i kāu kauka ke kauoha i nā hoʻokolohua hou aku e like me nā PET scan e hoʻoholo ai inā ua laha ka maʻi i nā ʻāpana ʻē aʻe o kou kino. ʻAʻole maʻamau nā hoʻokolohua koko no ka ʻike ʻana i ka chordoma no ka mea ʻaʻole maʻamau kēia mau maʻi e hana i nā mea hōʻailona i hiki ke ʻike ʻia i loko o kou koko.

He aha ka mālama ʻana no ka chordoma?

ʻO ka ʻoki kino ka mālama mua no ka chordoma a hāʻawi i ka manawa maikaʻi loa no ka kaohi lōʻihi. ʻO ka pahuhopu ke wehe i ka nui o ka maʻi e hiki ai ke mālama i nā ʻano kokoke koʻikoʻi e like me nā aʻalolo a me nā moku koko.

Hiki ke paʻakikī ka wehe ʻana i ka ʻoki kino piha no ka mea e ulu pinepine ana nā chordoma kokoke loa i nā ʻano koʻikoʻi. E komo kāu hui ʻoki kino i nā loea i loaʻa ka ʻike i ka hana ʻana i kēia mau wahi paʻakikī, e like me nā neurosurgeons a me nā orthopedic oncologists.

Hoʻohana ʻia ka radiation therapy ma hope o ka ʻoki kino e mālama i nā sela maʻi i koe i hiki ʻole ke wehe ʻia me ka palekana. Hiki i nā ʻenehana holomua e like me ka proton beam therapy a i ʻole stereotactic radiosurgery ke hāʻawi i nā nui kiʻekiʻe o ka radiation i ka maʻi me ka hoʻemi ʻana i ka pōʻino i nā pūnaewele olakino kokoke.

ʻAʻole maʻamau ka chemotherapy no ka hapanui o nā chordoma, akā ke hōʻike nei nā lāʻau lapaʻau hou i ka manaʻolana. Ke noiʻi ʻia nei kekahi mau lāʻau e kāohi i nā hōʻailona ulu kikoʻī i nā sela kanesa a hiki ke manaʻo ʻia i kekahi mau kūlana.

No nā maʻi i hiki ʻole ke wehe ʻia ma ke ʻoki kino, hiki ke hoʻohana ʻia ka radiation therapy wale nō e hoʻolohi i ka ulu ʻana a me ka hoʻokele i nā hōʻailona. E hana pū kāu hui mālama me ʻoe e hoʻomohala i ke ala maikaʻi loa ma muli o kāu kūlana kikoʻī.

Pehea e hoʻokele ai i ka chordoma ma ka home?

ʻO ka hoʻokele ʻana i ka chordoma ma ka home e kau i ka mālama ʻana i kou maikaʻi o ke ola a me ke kākoʻo ʻana i kou olakino holoʻokoʻa i ka wā mālama. ʻO ka hoʻokele ʻeha pinepine he ʻāpana koʻikoʻi o ka mālama home, a hiki i kāu kauka ke kuhikuhi i nā lāʻau lapaʻau kūpono e mālama iā ʻoe i ka ʻoluʻolu.

ʻO ka noho ʻana i ka hana i loko o kāu mau palena kino e kōkua i ka mālama ʻana i kou ikaika a me ka neʻe ʻana. Hiki i nā hoʻomaʻamaʻa physiotherapy, e like me ka mea i kuhikuhi ʻia e kāu hui mālama ola, ke kōkua i ka pale ʻana i ka nāwaliwali o nā ʻiʻo a me ka mālama ʻana i ka hana ma nā wahi i hoʻopilikia ʻia.

ʻO ka ʻai ʻana i ka ʻai kaulike, momona e kākoʻo i ka hiki o kou kino ke ho'ōla a me ke kū'ē i ka mālama. E hoʻomaʻamaʻa i ka loaʻa ʻana o ka protein lawa, nā wikamina, a me nā minelala, a e noho wai maikaʻi i loko o kāu mālama.

ʻO ka hoʻokele ʻana i ke kaumaha a me ka maikaʻi o ka manaʻo he mea nui nō hoʻi. E noʻonoʻo e komo i nā hui kākoʻo no nā kānaka me nā maʻi kanesa maʻamau ʻole, e hoʻomaʻamaʻa i nā ʻano hoʻomaha, a i ʻole e hana pū me kahi kākāʻōlelo e hoʻomaopopo ana i nā pilikia o ke ola ʻana me kahi kūlana maʻamau ʻole.

E mālama i nā hōʻailona hou a i ʻole nā loli a e kamaʻilio mau me kāu hui mālama ola. ʻO ka loaʻa ʻana o kahi puke moʻolelo o kāu mau hōʻailona, nā pae ʻeha, a me ke ʻano o kou manaʻo e kōkua i kāu mau kauka e hoʻoponopono i kāu papahana mālama e like me ka pono.

Pehea ʻoe e hoʻomākaukau ai no kāu hālāwai kauka?

Ma mua o kāu hālāwai, e kākau i kāu mau hōʻailona a pau, me ka wā i hoʻomaka ai, pehea lākou i loli ai i ka manawa, a me ka mea e hoʻomaikaʻi ai a i ʻole ka ʻino. E kōkua kēia ʻike i kāu kauka e hoʻomaopopo maikaʻi i kou kūlana.

E lawe mai i kahi papa inoa piha o nā lāʻau a pau āu e lawe nei, me nā lāʻau lapaʻau, nā lāʻau lapaʻau ma luna o ka counter, a me nā mea hoʻohui. E ʻohi pū i nā moʻolelo lapaʻau ma mua, nā hopena hoʻokolohua, a i ʻole nā haʻawina kiʻi e pili ana i kāu mau hōʻailona.

E hoʻomākaukau i kahi papa inoa o nā nīnau āu e makemake ai e nīnau i kāu kauka. Hiki i nā nīnau koʻikoʻi ke komo i nā hoʻokolohua āu e pono ai, nā koho mālama i loaʻa, a me ka mea e manaʻo ai e hele mai ana. Mai kānalua e noi i ka wehewehe inā ʻaʻole maopopo kekahi mea.

E noʻonoʻo e lawe mai i kahi lālā ʻohana hilinaʻi a i ʻole hoaaloha i kāu hālāwai. Hiki iā lākou ke kōkua iā ʻoe e hoʻomanaʻo i ka ʻike koʻikoʻi a hāʻawi i ke kākoʻo manaʻo i ka wā hiki ke lilo i manawa kaumaha.

He aha ka lawe nui e pili ana i ka chordoma?

He kūlana maʻamau ʻole akā koʻikoʻi ka chordoma e pono ai ka mālama kūikawā mai nā hui lapaʻau akamai. ʻOiai hiki i ka ʻike ʻana ke manaʻo nui, ua hoʻomaikaʻi nui nā holomua i nā ʻenehana ʻoki kino a me ka radiation therapy i nā hopena no nā kānaka he nui.

ʻO ka ʻike mua ʻana a me ka mālama ʻana he mea nui no nā hopena maikaʻi loa. Inā ʻike ʻoe i nā hōʻailona mau loa, ʻoiai nā mea e hoʻopilikia ana i kou poʻo, ʻāʻī, a i ʻole kua, mai kānalua e ʻimi i ka loiloi lapaʻau.

E hoʻomanaʻo ʻaʻole ʻoe wale nō ke loaʻa iā ʻoe ka chordoma. E hoʻopili me nā mea mālama ola e kūikawā ana i nā maʻi kanesa maʻamau ʻole, a e noʻonoʻo e hoʻopili i nā hui kākoʻo kahi e hiki ai iā ʻoe ke kaʻana like i nā ʻike me nā poʻe ʻē aʻe e kū nei i nā pilikia like.

Me ka mālama kūpono a me ke kākoʻo, hiki i nā kānaka he nui me ka chordoma ke mālama i ka maikaʻi o ke ola. E noho ʻike e pili ana i kou kūlana, e pale aku iā ʻoe iho, a e hana pū me kāu hui mālama ola e hoʻomohala i ka papahana mālama maikaʻi loa no kāu kūlana kikoʻī.

Nā nīnau i nīnau pinepine ʻia e pili ana i ka chordoma

Q1: He mea hoʻoilina anei ka chordoma?

Hana ʻia ka hapanui o nā chordoma me ke kumu ʻole a ʻaʻole hoʻoilina. Emi iho ma mua o 5% o nā hihia e holo ana i nā ʻohana ma muli o nā loli genetic. Inā loaʻa iā ʻoe kahi moʻolelo ʻohana o ka chordoma, hiki iā ʻoe ke loaʻa kahi pilikia kiʻekiʻe iki, akā he mea maʻamau ʻole loa kēia a ʻaʻohe moʻolelo ʻohana o ke kūlana i ka hapanui o nā kānaka me ka chordoma.

Q2: Pehea ka wikiwiki o ka ulu ʻana o ka chordoma?

ulu mālie loa nā chordoma ma nā mahina a i ʻole nā makahiki. ʻO kēia ʻano ulu mālie, e ulu mālie nā hōʻailona a hiki ke palupalu i ka wā mua. Eia naʻe, hiki i ke ʻano dedifferentiated o ka chordoma ke ulu wikiwiki ma mua o nā ʻano ʻē aʻe a hana ʻoi aku ka ikaika.

Q3: Hiki ke ho'ōla ʻia ka chordoma?

Hiki ke hoʻōla piha inā hiki ke wehe ʻia ka maʻi holoʻokoʻa ma ke ʻoki kino, akā hiki ke paʻakikī kēia ma muli o kahi o ka chordoma kokoke i nā ʻano koʻikoʻi. Loaʻa i nā kānaka he nui ka kaohi lōʻihi o ko lākou maʻi me ka hui pū ʻana o ka ʻoki kino a me ka radiation therapy, ʻoiai inā waiho ʻia kekahi mau sela maʻi.

Q4: Laha anei ka chordoma i nā ʻāpana ʻē aʻe o ke kino?

Hiki i ka chordoma ke laha i nā ʻano ʻē aʻe, akā e hana ʻia kēia me ka emi pinepine ma mua o nā maʻi kanesa he nui. E laha ana ma kahi o 30% o nā chordoma, maʻamau i nā māmā, ate, a i ʻole nā iwi ʻē aʻe. E hana ʻia kēia maʻamau i nā makahiki ma hope o ka ʻike mua ʻana.

Q5: He aha ka lōʻihi o ke ola me ka chordoma?

E loli nui ka lōʻihi o ke ola ma muli o nā mea e like me kahi o ka maʻi, ka nui, ke ʻano, a me ke ʻano o ka mālama ʻana. Noho nā kānaka he nui no nā makahiki a i ʻole nā makahiki he nui ma hope o ka ʻike ʻana, ʻoiai ke ʻike mua ʻia ka maʻi a mālama ʻia me ka ikaika. Hiki i kāu hui mālama ola ke hāʻawi i ka ʻike kikoʻī hou aku ma muli o kāu kūlana pilikino.