He aha ka Choroid Plexus Carcinoma? Nā Hōʻailona, Nā Kumu, a me ka Lapaʻau

ʻO ka choroid plexus carcinoma he ʻano maʻi ʻaʻai lolo hihiu loa ia e ulu ana ma ka choroid plexus, ka ʻiʻo e hana ana i ka wai cerebrospinal ma kou lolo. He mea pale kēia wai no kou lolo a me kou kua, e kahe ana ma nā lumi kūikawā i kapa ʻia ʻo ventricles.

ʻOiai paha he weliweli ka inoa, hiki i ka hoʻomaopopo ʻana i kēia maʻi ke kōkua iā ʻoe e ʻoi aku ka mākaukau a me ka ʻike. He mea maʻamau loa kēia mau ʻano maʻi ʻaʻai, ʻoi aku ka liʻiliʻi ma mua o 1 i loko o hoʻokahi miliona mau kānaka, a ʻoi aku ka nui o ka loaʻa ʻana i nā keiki ʻōpio ma lalo o 5 mau makahiki.

He aha ka Choroid Plexus Carcinoma?

ʻO ka choroid plexus carcinoma he ʻano maʻi ʻaʻai e ulu ana mai nā sela o ka choroid plexus. E noʻonoʻo i ka choroid plexus e like me nā hale hana liʻiliʻi, kūikawā i loko o kou lolo e hana ana i ka wai cerebrospinal.

ʻO kēia ʻano maʻi ʻaʻai kekahi o ka hui i kapa ʻia ʻo choroid plexus tumors, hiki ke benign (ʻaʻohe maʻi ʻaʻai) a malignant (maʻi ʻaʻai). ʻO nā carcinomas ka ʻano malignant, ʻo ia hoʻi hiki iā lākou ke ulu wikiwiki a hiki ke pālahalaha i nā ʻāpana ʻē aʻe o ka lolo a i ʻole ke kua.

Hoʻopilikia ka maʻi ʻaʻai i ka hana maʻamau o ka wai a me ke kahe ʻana, kahi e alakaʻi ai i ka hōʻiliʻili ʻana o ka wai cerebrospinal i loko o ka lolo. ʻO kēia kūlana, i kapa ʻia ʻo hydrocephalus, e hoʻonui ana i ka kaomi i loko o ke poʻo a e hoʻokumu ana i nā hōʻailona he nui a nā kānaka e ʻike ai.

He aha nā Hōʻailona o ka Choroid Plexus Carcinoma?

E ulu nā hōʻailona o ka choroid plexus carcinoma no ka mea e pale ana ka maʻi ʻaʻai i ka hoʻokahe maʻamau o ka wai i loko o ka lolo, e hoʻonui ana i ka kaomi. No ka mea ʻoi aku ka nui o ka loaʻa ʻana o kēia mau ʻano maʻi ʻaʻai i nā pēpē a me nā keiki ʻōpio, hiki ke palupalu nā hōʻailona i ka wā mua.

ʻO nā hōʻailona maʻamau loa āu e ʻike ai:

• Hoʻonui ʻia ka nui o ke poʻo i nā pēpē (macrocephaly)
• ʻO ka luaʻi mau, ʻoi aku hoʻi i ke kakahiaka
• Nā ʻeha poʻo nui e ʻoi aku ka ʻino ma mua o ka manawa
• ʻO ka huhū maʻamau a i ʻole nā ​​hoʻololi i ka ʻano
• Paʻakikī me ke kaulike a i ʻole ka hele ʻana
• Nā pilikia ʻike a i ʻole nā ​​hoʻololi i ka neʻe ʻana o nā maka
• Nā hoʻouka ʻana e ulu koke mai ana
• Hiamoe nui a i ʻole ka luhi

I nā pēpē, hiki iā ʻoe ke ʻike pū i nā wahi palupalu ma ko lākou poʻo (fontanelles) e puʻupuʻu ana i waho a i ʻole e lilo i mea wili. Hiki i kekahi mau pēpē ke pilikia i ka hānai ʻana a i ʻole ke ʻano huhū loa me ka ʻole o ke kumu maopopo.

Hiki i nā hōʻailona liʻiliʻi akā koʻikoʻi ke komo pū me ka nāwaliwali ma kekahi ʻaoʻao o ke kino, nā pilikia ʻōlelo, a i ʻole nā ​​hoʻololi i ka ʻike. E ulu mālie kēia mau hōʻailona ma nā hebedoma a i ʻole nā ​​mahina e like me ka ulu ʻana o ka maʻi ʻaʻai a me ka hoʻonui ʻana o ka kaomi.

He aha nā Kumu o ka Choroid Plexus Carcinoma?

ʻAʻole ʻike nui ʻia ke kumu pololei o ka choroid plexus carcinoma, kahi e hiki ai ke manaʻo huhū ke ʻimi ʻoe i nā pane. E like me nā maʻi ʻaʻai hihiu he nui, me he mea lā e ulu mai ana mai nā hoʻololi kūpono ʻole i ka DNA o nā sela choroid plexus.

Eia naʻe, ua ʻike nā mea noiʻi i kekahi mau mea genetic e hiki ke hoʻonui i ka pilikia. ʻO ka pilina nui loa e pili ana i ka Li-Fraumeni syndrome, kahi kūlana hoʻoilina hihiu i hana ʻia e nā mutations i ka gene TP53. Loaʻa i nā ʻohana me kēia syndrome ka manawa kiʻekiʻe o ka loaʻa ʻana o nā maʻi ʻaʻai like ʻole, me nā choroid plexus carcinomas.

Ke manaʻo nei kekahi mau haʻawina e hiki i kekahi mau maʻi viral i ka wā hāpai ke pāʻani i kahi kuleana, akā ʻaʻole i hōʻoia ʻia kēia pilina. ʻAʻole i pili pono nā mea pili i ke kaiapuni i kēia mau ʻano maʻi ʻaʻai, a ʻaʻole ia e like me ka hana ʻana a i ʻole ka hana ʻole ʻana o nā mākua i ka wā hāpai.

ʻO ka mea nui e hoʻomaopopo ai, ʻo ia ka ulu kūʻokoʻa ʻana o kēia mau ʻano maʻi ʻaʻai i ka hapanui o nā hihia. ʻAʻole i hana ʻia e nā koho ola, ka ʻai, a i ʻole nā ​​mea pili i ke kaiapuni i hiki ke pale ʻia.

I ka wā e ʻike ai i ke Kauka no ka Choroid Plexus Carcinoma?

Pono ʻoe e ʻimi koke i ka mālama lapaʻau inā ʻike ʻoe i nā hōʻailona mau e hōʻike ana i ka hoʻonui ʻia o ka kaomi lolo, ʻoi aku hoʻi i nā keiki ʻōpio. E hilinaʻi i kou mau manaʻo ma ke ʻano he mākua a i ʻole mea mālama.

E kelepona koke i kāu kauka inā ʻike ʻoe i nā ʻeha poʻo nui a i ʻole ka ʻino, ka luaʻi hou, nā hoʻololi i ka ʻike, a i ʻole nā ​​hoʻouka hou. I nā pēpē, ʻo ka ulu wikiwiki ʻana o ke poʻo, nā wahi palupalu e puʻupuʻu ana, a i ʻole nā ​​hoʻololi nui i ka hānai ʻana a i ʻole ka ʻano e pono ai ka loiloi koke.

Mai kali inā me he mea lā e ʻoi aku ka ʻino o nā hōʻailona ma nā lā a i ʻole nā ​​hebedoma. ʻOiai he nui o kēia mau hōʻailona hiki ke loaʻa nā kumu ʻoi aku ka liʻiliʻi, pono nā maʻi ʻaʻai lolo i ka ʻike koke ʻana a me ka mālama ʻana no nā hopena maikaʻi loa.

Inā ua ʻike ʻia kāu keiki me ka Li-Fraumeni syndrome a i ʻole he mōʻaukala ʻohana o kēia kūlana, e kūkākūkā i ka nānā maʻamau me kāu hui mālama ola. Hiki i ka ʻike mua ke hana i kahi ʻokoʻa nui i ka holomua o ka mālama ʻana.

He aha nā Mea Pilikia no ka Choroid Plexus Carcinoma?

He palena loa nā mea pilikia no ka choroid plexus carcinoma, kahi e hōʻike ana i ka hihiu a me ka wānana ʻole o kēia mau ʻano maʻi ʻaʻai. Hiki i ka hoʻomaopopo ʻana i kēia mau mea ke kōkua i ka hoʻokau ʻana i kou kūlana i ka manaʻo.

ʻO nā mea pilikia nui:

• ʻO ka makahiki ʻōpio, ʻoi aku hoʻi ma lalo o 5 mau makahiki
• Loaʻa i ka Li-Fraumeni syndrome a i ʻole nā ​​mutations gene TP53
• Mōʻaukala ʻohana o ka Li-Fraumeni syndrome
• Hoʻolaha mua ʻia i ke poʻo (hihiu loa)

ʻO ka makahiki ka mea koʻikoʻi loa, me kahi 70% o kēia mau ʻano maʻi ʻaʻai e loaʻa ana i nā keiki ma lalo o 2 mau makahiki. E emi koke ka pilikia ma hope o 5 mau makahiki, a he mea maʻamau loa kēia mau ʻano maʻi ʻaʻai i nā mākua.

ʻO nā mea genetic, ʻoiai he mea nui ke loaʻa, e helu wale ana no kahi hapa liʻiliʻi o nā hihia. ʻAʻohe mea pilikia i ʻike ʻia i ka hapanui o nā keiki e loaʻa ana i ka choroid plexus carcinoma, ʻo ia hoʻi e ulu kūʻokoʻa kēia mau ʻano maʻi ʻaʻai.

He aha nā Pilikia Hiki o ka Choroid Plexus Carcinoma?

E ulu mai nā pilikia mai ka choroid plexus carcinoma mai ka hoʻonui ʻia o ka kaomi i loko o ka lolo a me ka wahi o ka maʻi ʻaʻai kokoke i nā ʻāpana koʻikoʻi. Hiki i ka hoʻomaopopo ʻana i kēia mau mea ke kōkua iā ʻoe e mākaukau no nā mea e hiki mai ana.

ʻO nā pilikia koke loa:

• Hydrocephalus e pono ai ka hoʻokahe ʻana o ka ʻoki kino
• Nā pilikia ʻike a i ʻole ka makapō mai ka kaomi ma nā aʻalolo optic
• Nā hoʻolōʻihi ʻana i ka hoʻomohala ʻana i nā keiki ʻōpio
• Nā maʻi hoʻouka ʻana e hiki ke mau ma hope o ka mālama ʻana
• Nāwaliwali a i ʻole ka palasi mai ka kaomi ma nā wahi hoʻoneʻe
• Nā pilikia lohe mai ka kaomi ma nā ala lohe

Hiki i nā pilikia lōʻihi ke komo pū me nā hopena cognitive, ʻoi aku hoʻi i nā keiki ʻōpio e hoʻomohala nei ko lākou lolo. Hiki i kekahi mau keiki ke ʻike i nā pilikia aʻo, nā pilikia hoʻomanaʻo, a i ʻole nā ​​hoʻolōʻihi i ka hiki ʻana i nā hōʻailona hoʻomohala.

Hiki pū ke loaʻa nā pilikia pili i ka mālama ʻana, me nā hopena mai ka ʻoki kino, chemotherapy, a i ʻole ka radiation therapy. Eia naʻe, e hana pono kāu hui lapaʻau e hoʻemi i kēia mau pilikia ʻoiai e mālama pono ana i ka maʻi ʻaʻai.

Pehea ka ʻIke ʻia ʻana o ka Choroid Plexus Carcinoma?

ʻO ka ʻike ʻana i ka choroid plexus carcinoma e komo pū ana i nā ʻanuʻu he nui, e hoʻomaka ana me ka mōʻaukala lapaʻau a me ka nānā kino piha. E nīnau kāu kauka e pili ana i nā hōʻailona a hiki ke hana i nā hoʻokolohua neurological e nānā i nā reflexes, ka hoʻonohonoho ʻana, a me ka hana lolo.

ʻO ka mea hana ʻike nui loa ʻo ia ka magnetic resonance imaging (MRI) o ka lolo. Hiki i kēia scan kikoʻī ke hōʻike i ka nui o ka maʻi ʻaʻai, kahi, a me ka pilina me nā ʻāpana lolo a puni. E kōkua pū ka MRI i ka ʻike ʻana i ka hydrocephalus a me ka hoʻolālā ʻana i nā ala mālama.

Hiki ke hoʻohana ʻia ka computed tomography (CT) scan i ka wā mua, ʻoi aku hoʻi i nā kūlana pilikia, akā e hāʻawi ana ka MRI i nā ʻike kikoʻī hou aku. Hiki i kāu kauka ke kauoha aku i kahi MRI o ke kua e nānā inā ua pālahalaha ka maʻi ʻaʻai.

Pono ka ʻike maopopo i kahi laʻana o ka ʻiʻo, i loaʻa pinepine ʻia i ka wā o ka ʻoki kino e wehe i ka maʻi ʻaʻai. E nānā kahi pathologist i kēia ʻiʻo ma lalo o ka microscope e hōʻoia i ka ʻike a e hoʻoholo i nā hiʻohiʻona kūikawā o ka maʻi ʻaʻai.

Hiki i nā hoʻokolohua hou ke komo pū me ka hoʻokolohua genetic e ʻimi i ka Li-Fraumeni syndrome, ʻoi aku hoʻi inā he mōʻaukala ʻohana o ka maʻi ʻaʻai. Hiki ke hana ʻia ka loiloi wai cerebrospinal e nānā i nā sela maʻi ʻaʻai.

He aha ka Mālama ʻana no ka Choroid Plexus Carcinoma?

ʻO ka mālama ʻana no ka choroid plexus carcinoma e komo pinepine ana i kahi ala hana hui, e hoʻohui ana i ka ʻoki kino, chemotherapy, a i kekahi manawa radiation therapy. E hilinaʻi ka hoʻolālā kūikawā ma ka makahiki o kāu keiki, ka nui a me kahi o ka maʻi ʻaʻai, a inā ua pālahalaha.

ʻO ka ʻoki kino ka mea mua pinepine, e pahuhopu ana e wehe i ka nui o ka maʻi ʻaʻai e hiki. ʻO ka wehe piha ʻana ka manawa maikaʻi loa no ka hoʻōla, ʻoiai ʻaʻole hiki kēia i nā manawa a pau ma muli o ka wahi o ka maʻi ʻaʻai kokoke i nā ʻāpana lolo koʻikoʻi.

E hahai ana ka chemotherapy i ka ʻoki kino i ka hapanui o nā hihia, e hoʻohana ana i nā lāʻau e hoʻopili i nā sela maʻi ʻaʻai ma ke kino holoʻokoʻa. E hilinaʻi nā lāʻau kūikawā a me ka lōʻihi ma nā mea e like me ka makahiki o kāu keiki a me ka nui o ka maʻi ʻaʻai i wehe ʻia i ka wā o ka ʻoki kino.

Hiki ke manaʻo ʻia ka radiation therapy no nā keiki kahiko, maʻamau ma mua o 3 mau makahiki, ʻoi aku hoʻi inā ʻaʻole hiki ke wehe piha ʻia ka maʻi ʻaʻai. Eia naʻe, maʻamau ka pale ʻia o ka radiation i nā keiki liʻiliʻi loa ma muli o nā hopena hiki ke loaʻa i ka lolo e hoʻomohala ana.

Inā loaʻa ka hydrocephalus, pono paha kāu keiki i kahi shunt, kahi mea hana liʻiliʻi e hoʻokahe ana i ka wai cerebrospinal nui mai ka lolo i kahi ʻāpana ʻē aʻe o ke kino. Hiki i kēia kaʻina hana ke hāʻawi i ka hoʻomaha koke mai nā hōʻailona i hana ʻia e ka hoʻonui ʻia o ka kaomi lolo.

Pehea ka Mālama ʻana i ka Home Care i ka wā Mālama?

ʻO ka mālama ʻana i ka mālama ma ka home i ka wā mālama e pono ai ke ahonui, ka hoʻonohonoho ʻana, a me ka kamaʻilio pili kokoke me kāu hui lapaʻau. Hiki i ka hoʻokumu ʻana i kahi wahi kākoʻo ke kōkua i kāu keiki e kū i nā pilikia o ka mālama ʻana.

E nānā i ka mālama ʻana i nā hana maʻamau e like me ka hiki ke lilo i mea oluolu ke pilikia nā hopena o ka mālama ʻana. E mālama i nā hōʻailona, ​​nā lāʻau lapaʻau, a me nā hoʻololi āu e ʻike ai, no ka mea e kōkua kēia ʻike i kāu hui mālama ola e hoʻoponopono i ka mālama ʻana e like me ka pono.

E lilo ka meaʻai i mea nui loa i ka wā mālama. E hana pū me kahi dietitian e hōʻoia i ka loaʻa ʻana o nā calorie a me nā meaʻai kūpono i kāu keiki, ʻoiai inā he maikaʻi ʻole ka makemake. ʻOi aku ka maikaʻi o nā meaʻai liʻiliʻi, pinepine ma mua o nā mea nui.

E nānā i nā hōʻailona o ka maʻi, e like me ka mahana, ka luhi maʻamau, a i ʻole nā ​​hoʻololi i ka ʻano, no ka mea hiki i ka chemotherapy ke hoʻonāwaliwali i ka ʻōnaehana pale. E kelepona koke i kāu hui lapaʻau inā ʻike ʻoe i nā hōʻailona pilikia.

Mai poina e mālama iā ʻoe iho a me nā lālā ʻohana ʻē aʻe i kēia manawa paʻakikī. E ʻae i ke kōkua mai nā hoaaloha a me nā ʻohana, a e noʻonoʻo e hoʻopili me nā hui kākoʻo a i ʻole nā ​​lawelawe kūkākūkā.

Pehea ʻoe e hoʻomākaukau ai no kāu Kauka Appointment?

Hiki i ka hoʻomākaukau ʻana no nā manawa lapaʻau ke kōkua iā ʻoe e hoʻohana nui i kou manawa me ka hui mālama ola a e hōʻoia i ka pane ʻia o nā nīnau nui. E hoʻomaka ma ka kākau ʻana i nā hōʻailona āpau āu i ʻike ai, me ka wā i hoʻomaka ai a pehea lākou i loli ai.

E lawe mai i kahi papa inoa o nā lāʻau lapaʻau, nā mea hoʻohui, a me nā mālama āpau e loaʻa nei i kāu keiki. E komo pū i nā doses a me ka manawa, no ka mea e kōkua kēia ʻike i nā kauka e pale aku i nā pilina pōʻino.

E hoʻomākaukau i kāu mau nīnau ma mua, e nānā mua i nā hopohopo nui loa. E noʻonoʻo e nīnau e pili ana i nā koho mālama, nā hopena i manaʻo ʻia, nā hopena ʻaoʻao hiki, a pehea e mālama ai i nā hōʻailona ma ka home.

E lawe mai i kahi lālā ʻohana hilinaʻi a hoaaloha paha i nā manawa lapaʻau ke hiki. Hiki iā lākou ke kōkua i ka hoʻomanaʻo ʻana i ka ʻike i kūkākūkā ʻia a hāʻawi i ke kākoʻo manaʻo i ka wā o nā kamaʻilio paʻakikī.

Mai kānalua e noi i ka ʻike palapala a i ʻole nā ​​mea kōkua e pili ana i ke kūlana o kāu keiki. He nui nā ʻohana e ʻike he mea kōkua ke hoʻopaʻa i nā ʻāpana nui o ke kamaʻilio (me ka ʻae) e nānā hou ma hope.

He aha ka Mea Nui e pili ana i ka Choroid Plexus Carcinoma?

ʻO ka choroid plexus carcinoma he maʻi ʻaʻai lolo hihiu akā koʻikoʻi e pili nui ana i nā keiki ʻōpio. ʻOiai paha he mea kaumaha ka ʻike ʻana, ua hoʻomaikaʻi nui nā holomua i ka mālama ʻana i nā hopena no nā keiki he nui me kēia kūlana.

ʻO ka ʻike mua ʻana i nā hōʻailona a me ka mālama lapaʻau koke he mea nui ia no ka hopena maikaʻi loa. ʻO ka hui ʻana o ka ʻoki kino, chemotherapy, a me ka mālama kākoʻo e hāʻawi ana i ka manaʻolana no nā ʻohana he nui e kū nei i kēia ʻike.

E hoʻomanaʻo he kūikawā ka kūlana o kēlā me kēia keiki, a e hana pū kāu hui lapaʻau me ʻoe e hoʻomohala i ka hoʻolālā mālama kūpono loa. Mai kānalua e nīnau i nā nīnau, e ʻimi i nā manaʻo ʻē aʻe, a i ʻole e noi i ke kākoʻo hou aku ke pono ʻoe.

ʻOiai paha he mea paʻakikī ke huakaʻi e hiki mai ana, ʻaʻole ʻoe e kū nei iā ia wale nō. Loaʻa i nā kikowaena maʻi ʻaʻai pediatric piha nā hui kūikawā i loaʻa ka ʻike i ka mālama ʻana i kēia mau ʻano maʻi ʻaʻai hihiu a me ke kākoʻo ʻana i nā ʻohana ma ke kaʻina hana holoʻokoʻa.

Nā Nīnau Pinepine e pili ana i ka Choroid Plexus Carcinoma

Q.1 Pehea ka hihiu o ka choroid plexus carcinoma?

He mea hihiu loa ka choroid plexus carcinoma, ʻoi aku ka liʻiliʻi ma mua o 1 i loko o hoʻokahi miliona mau kānaka. He liʻiliʻi ma mua o 1% o nā maʻi ʻaʻai lolo a pau a ma kahi o 2-5% o nā maʻi ʻaʻai lolo pediatric. ʻOi aku ka nui o nā hihia i nā keiki ma lalo o 5 mau makahiki, me ka nui loa i nā pēpē ma lalo o 2 mau makahiki.

Q.2 He aha ka nui o ka ola no ka choroid plexus carcinoma?

E ʻokoʻa nā nui o ka ola ma muli o nā mea e like me ka makahiki o ke keiki, ka nui o ka wehe ʻana o ka ʻoki kino, a me ka pane i ka mālama ʻana. Ma ke ʻano holoʻokoʻa, ʻo nā nui o ka ola 5-makahiki mai 40-70%, me nā hopena maikaʻi loa ke hiki ke wehe piha ʻia ka maʻi ʻaʻai ma ka ʻoki kino. ʻOi aku ka maikaʻi o nā keiki i ʻike ʻia i nā makahiki ʻōpio a me nā mea me nā maʻi ʻaʻai i wehe piha ʻia.

Q.3 Hiki i ka choroid plexus carcinoma ke pālahalaha i nā ʻāpana ʻē aʻe o ke kino?

Hiki i ka choroid plexus carcinoma ke pālahalaha i loko o ka ʻōnaehana nervous waena ma o nā ala wai cerebrospinal, hiki ke hoʻopilikia i nā ʻāpana ʻē aʻe o ka lolo a i ʻole ke kua. Eia naʻe, he mea hihiu loa ka pālahalaha ʻana i waho o ka ʻōnaehana nervous i nā ʻāpana ʻē aʻe. ʻO ia ke kumu e nānā pinepine ai nā kauka i ke kua me ka MRI a hiki ke loiloi i ka wai cerebrospinal i ka wā ʻike.

Q.4 E loaʻa anei i kaʻu keiki nā hopena lōʻihi ma hope o ka mālama ʻana?

E hilinaʻi nā hopena lōʻihi ma nā mea he nui e like me ka wahi o ka maʻi ʻaʻai, ka ikaika o ka mālama ʻana, a me ka makahiki o kāu keiki i ka wā ʻike. E ʻike kekahi mau keiki i nā hoʻololi cognitive, nā pilikia aʻo, a i ʻole nā ​​hoʻolōʻihi hoʻomohala, ʻoiai e ola piha kekahi. E kōkua ka nānā maʻamau me nā loea i ka nānā ʻana i ka hoʻomohala ʻana a me ka hāʻawi ʻana i ka hoʻoponopono mua ke pono.

Q.5 He mea hoʻoilina anei ka choroid plexus carcinoma?

ʻO ka hapanui o nā hihia o ka choroid plexus carcinoma e ulu kūʻokoʻa ana a ʻaʻole i hoʻoilina ʻia. Eia naʻe, ma kahi o 10-15% o nā hihia e pili ana i ka Li-Fraumeni syndrome, kahi syndrome predisposition maʻi ʻaʻai hoʻoilina i hana ʻia e nā mutations gene TP53. Inā ua ʻike ʻia kāu keiki me kēia maʻi ʻaʻai, hiki ke manaʻo ʻia ka kūkākūkā genetic e loiloi i ka pilikia o ka ʻohana.