He aha ka Dermatomyositis? Nā Hōʻailona, Nā Kumu, & Lapaʻau

He maʻi mumū maʻamau ʻole ka dermatomyositis e pili ana i kou mau ʻiʻo a me kou ʻili. Ke kumu ia i ka nāwaliwali o nā ʻiʻo a me ka ʻili ʻili kūikawā, e hoʻoliʻiliʻi ana i nā hana o kēlā me kēia lā e like me ke piʻi ʻana i nā kaupaku a i ʻole ke hāpai ʻana i nā mea ma mua o ka maʻamau.

Hana ʻia kēia kūlana autoimmune i ka wā e hoʻouka ai kou ʻōnaehana pale i nā ʻiʻo olakino a me nā pūnaewele ʻili. ʻOiai ke kani nui nei, hiki i ka hoʻomaopopo ʻana i nā mea e hana nei i loko o kou kino ke kōkua iā ʻoe e hana pū me kāu hui olakino e hoʻokele pono i nā hōʻailona.

He aha ka dermatomyositis?

ʻO ka dermatomyositis kahi hui o nā maʻi ʻiʻo i kapa ʻia ʻo inflammatory myopathies. Hana kāu ʻōnaehana pale i ka mumū i nā fiber ʻiʻo a me nā moku koko liʻiliʻi i kou ʻili, e alakaʻi ana i ka hui kūikawā o ka nāwaliwali o nā ʻiʻo a me nā loli o ka ʻili.

Hiki i ke kūlana ke hoʻopili i nā kānaka o kēlā me kēia makahiki, ʻoiai ka mea maʻamau loa ia i nā mākua ma waena o 40-60 mau makahiki a me nā keiki ma waena o 5-15 mau makahiki. I ka wā e loaʻa ai i nā keiki, kapa nā kauka ia he juvenile dermatomyositis, kahi pinepine i kahi ʻano ʻokoʻa iki o nā hōʻailona.

ʻAʻole like me nā kūlana ʻiʻo ʻē aʻe, pili mau ka dermatomyositis i nā loli o ka ʻili me ka nāwaliwali o nā ʻiʻo. Hana kēia i ka maʻalahi o ka ʻike ʻana i nā kauka, ʻoiai hiki ke ʻokoʻa nui ka nui mai ke kanaka a i ke kanaka.

He aha nā hōʻailona o ka dermatomyositis?

Hoʻomohala mālie nā hōʻailona o ka dermatomyositis a hoʻopili i kou mau ʻiʻo a me kou ʻili. E ʻae mai iaʻu e alakaʻi iā ʻoe i nā mea āu e ʻike ai, e hoʻomanaʻo ana e ʻike kēlā me kēia i kēia kūlana i nā ʻano like ʻole.

ʻO nā hōʻailona pili i nā ʻiʻo āu e ʻike ai, ʻo ia:

• Nawaliwali nā ʻiʻo, ʻoi aku ma kou mau poʻohiwi, nā lima luna, nā ūhā, a me nā ʻūhā.
• Paʻakikī ke ala mai nā noho, ke piʻi ʻana i nā alanui, a i ʻole ke hiki ʻana i luna.
• Pilikia i ka ʻai ʻana a i ʻole nā hoʻololi i kou leo.
• ʻEha a me ka palupalu o nā ʻiʻo, ʻoiai ʻaʻole kēia i loaʻa mau.
• Luhi e ʻoi aku ka ikaika ma mua o ka luhi maʻamau.

ʻO nā loli o ka ʻili pinepine ka mea mua e ʻike ai nā kānaka a hiki ke ʻike ʻia ma mua o ka hoʻomohala ʻana o ka nāwaliwali o nā ʻiʻo:

• Kahi ʻulaʻula poni a ʻulaʻula paha ma kou mau maka, pinepine me ka pehu.
• Nā puʻu ʻulaʻula a poni paha ma luna o kou mau kuli, kuʻekuʻe, a i ʻole nā  kuli (i kapa ʻia ʻo Gottron's papules).
• Kahi ʻulaʻula ma luna o kou umauma, kua, a i ʻole nā poʻohiwi e hiki ke ʻoi aku ka ʻino me ka hoʻolaʻa ʻana i ka lā.
• ʻIli mānoanoa, ʻāʻī ma kou mau manamana lima a me nā palms.
• Nā hoʻololi a puni kou mau kui me nā moku koko liʻiliʻi e ʻike ʻia ana.

Loaʻa nō hoʻi i kekahi poʻe nā hōʻailona maʻamau ʻole e hiki ke hoʻopili i nā ʻāpana ʻē aʻe o ke kino. Hiki i kēia ke komo pū me ka pōkole o ka hanu inā hoʻopili ka maʻi i kou mau ʻiʻo māmā, ʻeha o nā hui me ka ʻole o ka pehu nui, a i ʻole nā hoʻonui calcium ma lalo o ka ʻili e like me nā puʻu liʻiliʻi, paʻakikī.

He mea nui e hoʻomanaʻo he hiki i ka dermatomyositis ke ʻano like ʻole mai ke kanaka a i ke kanaka. Loaʻa i kekahi poʻe nā hoʻololi ʻili ikaika loa me ka nāwaliwali liʻiliʻi o nā ʻiʻo, ʻoiai ʻike kekahi i ke ʻano ʻē aʻe.

He aha nā ʻano o ka dermatomyositis?

Hoʻokaʻawale nā kauka i ka dermatomyositis i kekahi mau ʻano ma muli o ka makahiki o ka hoʻomaka ʻana a me nā ʻano kūikawā. Hiki i ka hoʻomaopopo ʻana i kēia mau ʻokoʻa ke kōkua iā ʻoe e kamaʻilio maikaʻi aku me kāu hui mālama ola e pili ana i kou kūlana kūikawā.

ʻIke pinepine ʻia ka dermatomyositis makua ma waena o nā makahiki 40-60 a hahai i ke ʻano maʻamau o ka nāwaliwali o nā ʻiʻo i hui pū ʻia me nā hoʻololi o ka ʻili. Hiki i kēia ʻano ke loaʻa i kekahi manawa me nā kūlana autoimmune ʻē aʻe a i ʻole, i nā kūlana koʻikoʻi, hiki ke pili i nā maʻi kanesa.

Hoʻopili ka dermatomyositis ʻōpiopio i nā keiki a me nā ʻōpio, maʻamau ma waena o nā makahiki 5-15. ʻOiai he nui nā hiʻohiʻona like me ke ʻano o nā mākua, pinepine nā keiki e loaʻa i nā waihona calcium ma lalo o ko lākou ʻili a ʻoi aku ka nui o ka pili ʻana o nā kīʻaha koko.

ʻO ka dermatomyositis amyopathic clinically he ʻano kūikawā kahi e loaʻa ai iā ʻoe nā loli ʻili hiʻohiʻona me ka nele o ka ikaika o nā ʻiʻo. ʻAʻole kēia manaʻo ua pau loa ka hopena o kou mau ʻiʻo, akā hiki ke palupalu loa ka nāwaliwali ʻaʻole ʻoe e ʻike iā ia i nā hana o kēlā me kēia lā.

Hana ʻia ka dermatomyositis pili i ka maʻi kanesa ke ʻike ʻia ke kūlana me kekahi mau ʻano o ka maʻi kanesa. ʻOi aku ka maʻamau o kēia pilina i nā mākua, ʻoi aku hoʻi nā mea ma luna o 45, a e nānā maʻamau kāu kauka no kēia hiki ke hiki i ka wā o kāu loiloi.

He aha ka mea e hoʻoulu ai i ka dermatomyositis?

Hoʻomohala ʻia ka dermatomyositis i ka wā e huikau ai kāu ʻōnaehana pale a hoʻomaka e hoʻouka i kāu mau pūnaewele olakino ponoʻī. ʻAʻole maopopo loa ka mea hoʻoulu i kēia hana hewa ʻana o ka ʻōnaehana pale, akā manaʻo nā mea noiʻi he hui pū ʻana paha o nā kumu.

Hiki paha i kāu hana genetic ke pāʻani i kahi kuleana i ka hoʻonui ʻana i kou pilikia i ka hoʻomohala ʻana i ka dermatomyositis. Me he mea lā e hoʻonui ana kekahi mau hoʻololi genetic i ka pilikia, ʻoiai ʻaʻole hōʻoia ka loaʻa ʻana o kēia mau gene e hoʻomohala ʻoe i ke kūlana.

Hiki i nā mea hoʻoulu kaiapuni ke komo pū i ka hoʻomohala ʻana i ka dermatomyositis. ʻO kēia mau mea hoʻoulu hiki ke komo pū me nā maʻi viral, ka hōʻike ʻana i kekahi mau lāʻau lapaʻau, a i ʻole ka hoʻolaha nui o ka lā. Eia naʻe, he mea nui e hoʻomaopopo ʻaʻole kēia mau mea e hoʻoulu pololei i ka maʻi akā hiki ke hoʻoulu iā ia i nā poʻe i hoʻonohonoho mua ʻia ma ke ʻano genetic.

I kekahi mau hihia, ʻoi aku ka nui o nā mākua, hiki i ka dermatomyositis ke hoʻomohala ma ke ʻano he ʻāpana o ka pane autoimmune ākea i hoʻoulu ʻia e ke alo o ka maʻi kanesa ma kahi ʻē aʻe o ke kino. Hiki i ka pane o ka ʻōnaehana pale i nā sela kanesa ke hoʻohālikelike me nā pūnaewele ʻiʻo a me ka ʻili.

He mea nui e hoʻomaopopo ʻaʻole pilikia ka dermatomyositis, ʻaʻole hoʻi ʻoe i hana i kekahi mea e hoʻoulu ai. ʻAʻole ia ka hopena o ka hoʻoikaika nui ʻana, ka ʻai maikaʻi ʻole, a i ʻole nā ​​koho noho ola.

I ka wā e ʻike ai i ke kauka no ka dermatomyositis?

Pono ʻoe e ʻimi i ka mālama lapaʻau inā ʻike ʻoe i ka hui ʻana o ka nāwaliwali o nā ʻiʻo holomua a me nā loli ʻili kūikawā, ʻoi aku hoʻi ka ʻili maʻamau a puni kou mau maka a i ʻole ma luna o kou mau kuʻekuʻe lima. Hiki i ka ʻike mua ʻana a me ka mālama ʻana ke hoʻolilo i kahi ʻokoʻa nui i ka hoʻokele ʻana i kēia kūlana.

E kelepona koke i kāu kauka inā pilikia ʻoe i ka ʻai ʻana, ʻoiai hiki i kēia ke hoʻopilikia i kou hiki ke ʻai maluhia a pono paha i ka nānā koke ʻana. Pēlā nō, inā loaʻa iā ʻoe ka hanu pōkole a i ʻole ka ʻeha umauma, hiki i kēia mau hōʻailona ke hōʻike i ka pilikia o ka māmā a pono i ka loiloi koke ʻana.

Mai kali inā ʻike ʻoe i ka hoʻonui wikiwiki ʻana o ka nāwaliwali o nā ʻiʻo, ʻoi aku hoʻi inā pilikia ia i kou hiki ke hana i nā hana o kēlā me kēia lā e like me ke komo ʻana i nā kapa, ke hele ʻana, a i ʻole ke piʻi ʻana i nā kaupaku. Hiki i ka hoʻoponopono wikiwiki ke kōkua i ka pale ʻana i ka hōʻino hou aku i nā ʻiʻo.

Inā ua ʻike mua ʻia ʻoe me ka dermatomyositis, e nānā i nā hōʻailona e hiki ai ke hoʻonui ʻia kou kūlana ʻoiai ke mālama ʻia nei. ʻO kēia mau mea e komo pū ai nā ʻili hou, ka hoʻonui ʻana o ka nāwaliwali o nā ʻiʻo, a i ʻole ka hoʻomohala ʻana o nā hōʻailona ʻē aʻe e like me ka maʻi ʻōhū a i ʻole ka wela.

He aha nā kumu pilikia no ka dermatomyositis?

Hiki i kekahi mau mea ke hoʻonui i kou hiki ke loaʻa i ka dermatomyositis, ʻoiai ʻo ka loaʻa ʻana o kēia mau kumu pilikia ʻaʻole ia he manaʻo e loaʻa nō ʻoe i ke kūlana. Hiki i ka hoʻomaopopo ʻana iā lākou ke kōkua iā ʻoe e makaʻala i nā hōʻailona mua.

He kuleana nui ka makahiki, me ʻelua mau manawa kiʻekiʻe kahi e ʻike pinepine ʻia ai ka dermatomyositis. ʻO ka mea mua i ka wā kamaliʻi, maʻamau ma waena o nā makahiki 5-15, a ʻo ka lua ma ka waena o ka wā makua, maʻamau ma waena o nā makahiki 40-60.

ʻOi aku ka nui o ka pilikia no nā wāhine, no ka mea, ʻelua ka nui o ka loaʻa ʻana o ka dermatomyositis i nā wāhine ma mua o nā kāne. Ke hōʻike nei kēia ʻokoʻa kāne i ka manaʻo e komo paha nā mea hormonal, ʻoiai ʻaʻole maopopo ka hana pololei.

Hiki i ka loaʻa ʻana o nā kūlana autoimmune ʻē aʻe i loko o kou mōʻaukala ʻohana ke hoʻonui iki i kou pilikia. ʻO nā kūlana e like me ka rheumatoid arthritis, lupus, a i ʻole scleroderma i nā hoahānau kokoke e hōʻike ana i ka predisposition genetic i nā maʻi autoimmune ma ke ʻano holoʻokoʻa.

ʻOi aku ka pinepine o kekahi mau māka genetic, ʻoiai nā hoʻololi kūikawā i nā gene e pili ana i ka hana pale ʻana, i nā kānaka me ka dermatomyositis. Eia naʻe, ʻaʻole hana mau ʻia ka hoʻokolohua genetic no kēia mau māka ʻoiai ʻaʻole hōʻoia ka loaʻa ʻana iā lākou e loaʻa iā ʻoe ka maʻi.

No nā pākeke, ʻoi aku hoʻi nā mea ma luna o 45, hiki i ka loaʻa ʻana o kekahi mau ʻano o ka maʻi kanesa ke hoʻonui i ka pilikia o ka loaʻa ʻana o ka dermatomyositis. Ke hana like nei kēia pilina ʻelua ʻaoʻao - i kekahi manawa, ʻike mua ʻia ka dermatomyositis, e alakaʻi ana i ka ʻike ʻana i kahi kanesa i loko.

He aha nā pilikia hiki ke loaʻa o ka dermatomyositis?

ʻOiai ke hoʻopili nui nei ka dermatomyositis i nā ʻiʻo a me ka ʻili, hiki iā ia ke komo i nā ʻāpana ʻē aʻe o kou kino. Ke kōkua nei ka hoʻomaopopo ʻana i kēia mau pilikia hiki ke kōkua iā ʻoe e ʻike i nā hōʻailona e nānā ai a me ka wā e ʻimi ai i ka mālama lapaʻau hou aku.

Hiki ke loaʻa nā pilikia o ka māmā i kekahi poʻe me ka dermatomyositis, a pono e nānā pono ʻia kēia mau mea. Hiki iā ʻoe ke ʻike i ka pōkole o ka hanu, kahi ʻōhū maloʻo mau, a i ʻole ka luhi e like ʻole me kou nāwaliwali o nā ʻiʻo. Hiki i kēia mau hōʻailona ke hōʻike i ka mumū i loko o kou māmā a i ʻole ka ʻili ʻana o ka ʻiʻo māmā.

Hiki ke loaʻa nā pilikia i ka ʻai ʻana i ka wā e pilikia ai nā ʻiʻo i kou ʻāʻī a me ka esophagus. Hiki ke hoʻomaka kēia ma ke ʻano he kīkī manawa a i ʻole ka manaʻo e like me ka paʻa ʻana o ka meaʻai, akā hiki ke holomua i nā pilikia koʻikoʻi me ka meaʻai a hoʻonui i kou pilikia o ka loaʻa ʻana o ka pneumonia mai ka hanu hewa ʻana i ka meaʻai a i ʻole nā wai.

ʻOi aku ka liʻiliʻi o ka pilikia o ka naʻau akā hiki ke koʻikoʻi inā loaʻa. Hiki ke mumū kou ʻiʻo naʻau, e alakaʻi ana i ka hahau naʻau kūpono ʻole, ʻeha umauma, a i ʻole ka hanu pōkole i ka wā o nā hana i ʻole i hoʻopilikia mua iā ʻoe.

Hoʻomohala pinepine nā waihona calcium ma lalo o kou ʻili, i kapa ʻia ʻo calcinosis, i nā keiki me ka dermatomyositis akā hiki ke loaʻa i nā mākua pū kekahi. Ua like kēia me nā ʻāpana paʻakikī ma lalo o kou ʻili a hiki i kekahi manawa ke wāwahi i ka ʻili, e alakaʻi ana i nā ʻeha ʻeha.

I nā mākua, ʻoi aku ka poʻe ma luna o 45, aia ka nui o ka pilikia o ka loaʻa ʻana o kekahi mau kanesa ma mua, i ka wā, a ma hope paha o ka ʻike ʻia ʻana o ka dermatomyositis. ʻO nā kanesa i pili pinepine ʻia me kēia mau mea, ʻo ia nā kanesa ovarian, naʻau, umauma, a me nā kanesa gastrointestinal.

He mea nui e hoʻomanaʻo ʻaʻole i loaʻa i nā kānaka he nui me ka dermatomyositis kēia mau pilikia, ʻoi aku hoʻi me ka mālama kūpono a me ka nānā ʻana. E nānā kāu hui olakino no nā hōʻailona mua a hoʻoponopono i kāu papahana mālama e like me ia.

Pehea e pale aku ai i ka dermatomyositis?

ʻAʻole maopopo kahi ala e pale aku ai i ka dermatomyositis, ʻoiai he kūlana autoimmune ia me nā mea hoʻonāukiuki ʻaʻole maopopo. Eia naʻe, aia nā ʻanuʻu hiki iā ʻoe ke hana e pale aku iā ʻoe iho mai nā mea e hoʻopilikia ai i ke kūlana a i ʻole e hoʻonāukiuki i nā flares.

He mea nui loa ka pale ʻana i ka lā no nā kānaka me ka dermatomyositis, ʻoiai hiki i ka hoʻolaha UV ke hoʻopilikia i nā hōʻailona ʻili a hoʻonāukiuki paha i nā flares maʻi. E hoʻohana i ka sunscreen ākea me ka SPF 30 ma ka liʻiliʻi, e komo i nā lole pale, a e ʻimi i ka malu i ka wā o nā hola lā nui.

ʻO ka pale ʻana i nā mea hoʻonāukiuki i ʻike ʻia, inā hiki, hiki ke kōkua i ka hōʻemi ʻana i kou pilikia o nā flares inā loaʻa iā ʻoe ka maʻi. Ua ʻike kekahi poʻe e like me kekahi mau lāʻau lapaʻau, nā maʻi, a i ʻole nā ​​paepae kiʻekiʻe o ke kaumaha e hoʻopilikia ai i kā lākou hōʻailona.

ʻO ka mālama ʻana i ke olakino maikaʻi ma o ka mālama lapaʻau maʻamau, ka mālama ʻana i nā lāʻau pale, a me ka hoʻokele ʻana i nā kūlana olakino ʻē aʻe e hiki ke kōkua i kou kino e kū pono aku i nā pilikia autoimmune.

Inā loaʻa iā ʻoe ka mōʻaukala ʻohana o nā maʻi autoimmune, ʻo ka makaʻala ʻana i nā hōʻailona mua a me ka ʻimi ʻana i ka mālama lapaʻau koke no nā hōʻailona hopohopo e alakaʻi i ka ʻike mua ʻana a me ka mālama ʻana, kahi e alakaʻi pinepine ai i nā hopena maikaʻi.

Pehea ka ʻike ʻana i ka dermatomyositis?

ʻO ka ʻike ʻana i ka dermatomyositis e pili ana i ka hui ʻana o ka nānā kino, nā hoʻokolohua koko, a i kekahi manawa nā kaʻina hana hou aku. E ʻimi kāu kauka i ka hui ʻano o ka nāwaliwali o nā ʻiʻo a me nā loli o ka ʻili e hoʻomaopopo ana i kēia kūlana.

He kuleana nui nā hoʻokolohua koko i ka ʻike ʻana a me ka nānā ʻana. E nānā kāu kauka no nā enzyme ʻiʻo kiʻekiʻe e like me ka creatine kinase, kahi e kahe ai i loko o kou koko ke hōʻino ʻia nā fiber ʻiʻo. E hoʻokolohua lākou no nā antibodies kūikawā i loaʻa pinepine i nā kānaka me ka dermatomyositis.

Hiki ke hana ʻia kahi electromyogram (EMG) e ana i ka hana uila i loko o kou mau ʻiʻo. Hiki i kēia hoʻokolohua ke hōʻike i nā ʻano o ka hōʻino ʻana o nā ʻiʻo i kūpono i nā maʻi ʻiʻo inflammatory e like me ka dermatomyositis.

I kekahi manawa, pono ka biopsy ʻiʻo, kahi e wehe ʻia ai kahi ʻāpana liʻiliʻi o ka ʻiʻo a nānā ʻia ma lalo o ka microscope. Hiki i kēia ke hōʻike i nā ʻano inflammatory ʻano a kōkua i ka kāpae ʻana i nā kūlana ʻiʻo ʻē aʻe.

Hiki i kāu kauka ke ʻōlelo aku i nā haʻawina kiʻi e like me nā MRI scans e ʻimi i ka mumū o nā ʻiʻo a loiloi i ka nui o ka komo ʻana. Hiki ke kauoha ʻia nā X-rays umauma a i ʻole nā ​​CT scans e nānā i nā pilikia o ka māmā.

Inā he kanaka makua ʻoe, ʻoi aku ma mua o 45, e nānā paha kāu kauka i nā maʻi ʻaʻai pili ma o nā hoʻokolohua like ʻole. He ʻāpana nui kēia nānā ʻana i ke kaʻina hana ʻike a me ka mālama mau.

He aha ka mālama no ka dermatomyositis?

ʻO ka mālama ʻana i ka dermatomyositis ke kaulike ma ka hōʻemi ʻana i ka mumū, ka mālama ʻana i ka ikaika o nā ʻiʻo, a me ka hoʻokele ʻana i nā hōʻailona o ka ʻili. E hoʻopilikino ʻia kāu papahana mālama e pili ana i kāu mau hōʻailona kūikawā a me kāu mau pono, a hiki ke loli ia ma mua o ka manawa.

ʻO nā corticosteroids, e like me ka prednisone, ʻo ia ka mālama mua loa no ka dermatomyositis. Hiki i kēia mau lāʻau anti-inflammatory ikaika ke hoʻemi koke i ka mumū o nā ʻiʻo a hoʻomaikaʻi i ka ikaika. E hoʻomaka pinepine kāu kauka me kahi nui nui a hoʻemi mālie ia i ka wā e hoʻomaikaʻi ai kāu mau hōʻailona.

Hoʻohui pinepine ʻia nā lāʻau immunosuppressive e kōkua i ka kaohi ʻana i ka maʻi ʻoiai e ʻae ana i kāu kauka e hoʻemi i nā nui o ka steroid. ʻO nā koho maʻamau e komo pū me ka methotrexate, azathioprine, a i ʻole mycophenolate mofetil. Hana mālie kēia mau lāʻau ma mua o nā steroids akā hāʻawi i ka kaohi lōʻihi o ka maʻi.

No nā hihia koʻikoʻi a i ʻole i ka wā ʻaʻole kūpono nā mālama ʻē aʻe, hiki i kāu kauka ke ʻōlelo aku i ka intravenous immunoglobulin (IVIG) therapy. Hoʻopili kēia mālama i ka loaʻa ʻana o nā antibodies mai nā mea hāʻawi olakino, kahi e hiki ai ke kōkua i ka hoʻomālie i kāu ʻōnaehana pale ʻāʻī hana nui.

Hiki ke noʻonoʻo ʻia nā lāʻau biologic hou, e like me ka rituximab, no nā hihia paʻakikī e mālama. Hana kēia mau therapies i hoʻonohonoho ʻia ma nā ʻāpana kūikawā o ka ʻōnaehana pale ʻāʻī a hiki ke loaʻa ka hopena maikaʻi loa no kekahi poʻe.

He kuleana nui ka physical therapy i ka mālama ʻana a me ka hoʻomaikaʻi ʻana i ka ikaika o nā ʻiʻo a me ka palupalu. E hoʻolālā kāu therapist kino i nā hana hoʻomaʻamaʻa kūpono no kāu pae hana ʻiʻo o kēia manawa a kōkua i ka pale ʻana i nā contractures o nā ʻiʻo.

No nā hōʻailona o ka ʻili, hiki i kāu kauka ke kuhikuhi i nā lāʻau topical a i ʻole ke ʻōlelo aku i nā hana mālama ʻili kūikawā. Hiki i nā lāʻau antimalarial e like me ka hydroxychloroquine ke kōkua i nā hōʻike o ka ʻili.

Pehea e hoʻokele ai i ka dermatomyositis ma ka home?

ʻO ka mālama ʻana i ka dermatomyositis ma ka home, ʻo ia ka mālama ʻana i kou mau ʻiʻo a me kou ʻili, a me ke kākoʻo ʻana i kou olakino holoʻokoʻa. Hiki i kēia mau hana ke hoʻohui i kāu lāʻau lapaʻau a kōkua iā ʻoe e ʻike ʻoi aku ka mana ma luna o kou maʻi.

He mea nui ka hoʻoikaika kino mālie a mau loa no ka mālama ʻana i ka ikaika o nā ʻiʻo a me ka palupalu, akā he mea nui e loaʻa ka kaulike kūpono. E hana pū me kāu kauka hoʻoikaika kino e hoʻomohala i kahi papa hoʻoikaika kino e hoʻāʻo i kou mau ʻiʻo me ka ʻole o ka luhi nui a i ʻole ka mumū.

He mea nui ka pale ʻana i kou ʻili mai ka lā, ʻoiai hiki i nā kukuna UV ke hoʻopilikia i nā hōʻailona o ka ʻili a hoʻonāukiuki paha i nā ʻāʻī o ka maʻi. E hoʻohana i ka sunscreen ākea-spectrum i kēlā me kēia lā, e komo i nā lole pale, a e noʻonoʻo i nā kiʻi puka makani pale UV no kāu kaʻa a me ka home.

Hiki i ka ʻai ʻana i ka meaʻai momona a kaulike hoʻi ke kōkua i ke kākoʻo ʻana i kou ʻōnaehana pale a hāʻawi i ka ikehu e pono ai kou kino no ka hoʻōla. Inā ʻoe e lawe ana i nā corticosteroids, e nānā i nā meaʻai momona i ka calcium a me ka huaora D e pale aku i kou olakino iwi.

ʻO ka mālama ʻana i ka luhi he pilikia nui pinepine me ka dermatomyositis. E hoʻolālā i kāu mau hana no nā manawa i loaʻa ai iā ʻoe ka ikehu nui, e hoʻokaʻawale i nā hana nui i nā ʻāpana liʻiliʻi, a mai kānalua e noi aku i ke kōkua ke pono ʻoe.

Hiki i nā ʻano hoʻokele kaumaha e like me ka noʻonoʻo, ka yoga mālie, a i ʻole nā ​​hana hanu hohonu ke kōkua i ka hoʻemi ʻana i nā ʻāʻī o ka maʻi. He nui ka poʻe i ʻike ua hiki i nā pae kaumaha kiʻekiʻe ke hoʻopilikia i kā lākou mau hōʻailona.

E mālama i kāu mau hōʻailona, ​​me nā mea e hoʻomaikaʻi ai a i ʻole e hoʻopilikia ai iā lākou. Hiki i kēia ʻike ke waiwai nui no kāu hui mālama ola i ka hoʻoponopono ʻana i kāu papahana lapaʻau.

Pehea ʻoe e hoʻomākaukau ai no kāu hālāwai me ke kauka?

Hiki i ka hoʻomākaukau ʻana no kāu mau hālāwai me ke kauka ke kōkua iā ʻoe e hoʻohana pono i kou manawa pū a hōʻoia iā ʻoe e loaʻa ka ʻike a me ka mālama āu e pono ai. Kūleʻa pū ka hoʻomākaukau maikaʻi i kāu kauka e hoʻomaopopo maikaʻi i kou kūlana a hoʻoponopono i kāu lapaʻau e like me ia.

E mālama i kahi moʻolelo o nā hōʻailona ma mua o kou kūkā, e hoʻomaopopo ana i nā loli i ka ikaika o nā ʻiʻo, nā hōʻailona hou o ka ʻili, nā pae luhi, a me nā hopena ʻaoʻao mai nā lāʻau lapaʻau. E hoʻokomo i nā laʻana kikoʻī o ke ʻano o ka hopena o nā hōʻailona i kāu mau hana o kēlā me kēia lā.

E lawe mai i kahi papa inoa piha o nā lāʻau āu e lawe nei, me nā lāʻau lapaʻau kuhikuhi, nā lāʻau lapaʻau ma luna o ka papa kūʻai, a me nā mea hoʻohui. E hoʻokomo i nā nui a me ka pinepine no kēlā me kēia, ʻoiai hiki i kekahi mau lāʻau lapaʻau ke launa pū me nā lāʻau lapaʻau dermatomyositis.

E hoʻomākaukau i kahi papa inoa o nā nīnau āu e makemake ai e nīnau i kāu kauka. E noʻonoʻo e nīnau e pili ana i kāu hana maʻi i kēia manawa, nā hoʻoponopono pono e pono ai i nā lāʻau lapaʻau, i ka wā e hoʻonohonoho ai i nā hoʻokolohua hahai, a me nā hōʻailona e pono ai e kāhea aku i ke keʻena.

Inā ʻo kēia kāu kipa mua no nā pilikia dermatomyositis, e hōʻiliʻili i nā moʻolelo lapaʻau ʻohana pili, ʻoiai nā maʻi autoimmune a i ʻole nā ​​kānā ma nā hoahānau kokoke. Eia kekahi, e noʻonoʻo e pili ana i nā loli hou i kou ola i hiki ke pili, e like me nā lāʻau lapaʻau hou, nā maʻi, a i ʻole ka hoʻolaha lā maʻamau.

E noʻonoʻo e lawe mai i kahi hoaaloha a i ʻole ʻohana hilinaʻi i kāu kūkā. Hiki iā lākou ke kōkua iā ʻoe e hoʻomanaʻo i nā ʻike koʻikoʻi a hāʻawi i ke kākoʻo manaʻo, ʻoiai ke kūkākūkā nei i nā hoʻoholo mālama paʻakikī.

He aha ka mea nui e pili ana i ka dermatomyositis?

He kūlana hiki ke mālama ʻia ka dermatomyositis, ʻoiai hiki ke manaʻo ʻia he nui ke ʻike ʻia ʻoe. Me ka mālama kūpono a me ka mālama, hiki i nā poʻe he nui me kēia kūlana ke mālama i ka maikaʻi o ke ola a hoʻomau i ka komo ʻana i nā hana a lākou e hauʻoli ai.

He mea nui ka ʻike mua a me ka mālama ʻana no nā hopena maikaʻi loa. ʻO ka hui ʻana o ka nāwaliwali o nā ʻiʻo a me nā loli ʻili hiʻohiʻona e hana i ka dermatomyositis i ʻike maʻalahi ʻia, ʻo ia hoʻi hiki iā ʻoe ke loaʻa ka mālama kūpono wikiwiki ma hope o ka ʻike ʻana o nā hōʻailona.

E ulu mau paha kāu papa hana lapaʻau me ka hala ʻana o ka manawa, ke aʻo nei kāu mau kauka pehea ka pane ʻana o kou kino i nā lāʻau like ʻole a me ka loaʻa ʻana o nā lapaʻau hou. He mea maʻamau kēia a ʻaʻole ia he manaʻo e ʻino ana kou ʻano.

E hoʻomanaʻo ʻoe he ʻāpana koʻikoʻi ʻoe o kāu hui mālama ola. ʻO kāu mau nānā ʻana i nā hōʻailona, ​​nā hopena o nā lāʻau lapaʻau, a me nā mea e kōkua ai a i ʻole e hoʻonāukiuki i kou ʻano e hāʻawi i ka ʻike waiwai e alakaʻi i kāu lapaʻau.

ʻOiai e pono ai ka mālama ola mau loa no ka dermatomyositis, nui nā kānaka i ʻike i ka manawa, ua hoʻomohala lākou i nā hoʻolālā kūpono no ka mālama ʻana i kā lākou mau hōʻailona a hiki ke hoʻi i ka nui o kā lākou mau hana maʻamau.

Nā nīnau pinepine e pili ana i ka dermatomyositis

Hoʻopilikia ʻia anei ka dermatomyositis?

ʻAʻole, ʻaʻole hoʻopilikia ʻia ka dermatomyositis. He ʻano autoimmune ia kahi e hoʻouka ai kou ʻōnaehana pale ponoʻī i nā pūnaewele olakino. ʻAʻole hiki iā ʻoe ke hopu mai i kekahi, ʻaʻole hoʻi hiki iā ʻoe ke hoʻoili iā ia i nā lālā o kou ʻohana a i nā hoaaloha ma o ke kamaʻilio ʻana.

Hiki anei ke ho'ōla ʻia ka dermatomyositis?

I kēia manawa, ʻaʻohe lāʻau lapaʻau no ka dermatomyositis, akā he ʻano maʻalahi loa ia e mālama ʻia. Nui nā kānaka e loaʻa ka remission, ʻo ia hoʻi, liʻiliʻi a nalowale loa paha kā lākou mau hōʻailona me ka lapaʻau kūpono. ʻO ka pahuhopu o ka lapaʻau, ʻo ia ke kaohi i ka mumū, mālama i ka hana o nā ʻiʻo, a kōkua iā ʻoe e mālama i kahi ola maikaʻi.

E pono anei iaʻu ke lawe i nā lāʻau lapaʻau no ke koena o koʻu ola?

He ʻokoʻa loa kēia mai ke kanaka a i ke kanaka. Hiki i kekahi poʻe ke hoʻemi a hoʻōki paha i kā lākou mau lāʻau lapaʻau inā loaʻa iā lākou ka remission mau, ʻoiai e pono ai nā poʻe ʻē aʻe i ka mālama mau ʻana e mālama i kā lākou mau hōʻailona. E hana pū kāu kauka me ʻoe e ʻimi i ka lapaʻau liʻiliʻi loa e mālama i kou ʻano kūpaʻa.

Hiki iaʻu ke hoʻoikaika kino me ka dermatomyositis?

ʻAe, he pono maoli ka hoʻoikaika kūpono no nā kānaka me ka dermatomyositis. Akā, he mea nui ka hana pū ʻana me kāu hui olakino, ʻoiai he kauka lapaʻau kino ʻike i nā maʻi o nā ʻiʻo mumū, e hoʻomohala i kahi papahana hoʻoikaika palekana. ʻO ke kī, ʻo ia ka loaʻa ʻana o ke kaulike kūpono ma waena o ka mālama ʻana i ka ikaika o nā ʻiʻo a me ka ʻole o ka hoʻoikaika nui ʻana i nā ʻiʻo mumū.

Ke komo mau anei ka maʻi ʻaʻai i ka dermatomyositis?

ʻAʻole, ʻaʻole komo mau ka maʻi ʻaʻai i ka dermatomyositis. ʻOiai aia kahi pilikia nui o kekahi mau maʻi ʻaʻai, ʻoi aku hoʻi i nā pākeke ma luna o 45, nui nā kānaka me ka dermatomyositis ʻaʻole loa e loaʻa ka maʻi ʻaʻai. E nānā kāu kauka no nā maʻi ʻaʻai pili e like me kahi ʻāpana o kāu mālama, akā he hana palekana kēia, ʻaʻole ia he hōʻailona e hiki mai ana ka maʻi ʻaʻai.