He aha nā Neoplasm Desmoid? Nā Hōʻailona, Nā Kumu, & Lapaʻau

He mau ulu maʻamau ʻole, ʻaʻole kanesa nā neoplasm desmoid, e ulu ana i loko o nā pūnaewele hoʻopili o kou kino. E noʻonoʻo iā lākou he ʻili ʻeha kolohe e hoʻomau ana i ka ulu ʻana i ka wā e pono ai ke kū.

ʻAʻole hoʻolaha kēia mau neoplasm i nā ʻāpana ʻē aʻe o kou kino e like me ka maʻi kanesa. Eia naʻe, hiki iā lākou ke ulu nui a kaomi i nā kino kokoke, nā ʻiʻo, a i ʻole nā ​​nerve. Hiki i kēia ke hoʻoulu i ka ʻoluʻolu ʻole a hoʻopilikia i ka hana o kou kino ma kēlā wahi.

ʻOiai he mea maʻamau ʻole nā ​​neoplasm desmoid, e pili ana i 2 a 4 mau kānaka wale nō i kēlā me kēia miliona i kēlā me kēia makahiki, ʻo ka hoʻomaopopo ʻana iā lākou e kōkua iā ʻoe e ʻike i nā hōʻailona i ka wā mua. ʻO ka ʻoiaʻiʻo maikaʻi, nui nā koho lapaʻau, a ʻaʻole ulu kekahi mau neoplasm ma luna o lākou iho.

He aha nā hōʻailona o nā neoplasm desmoid?

ʻAʻole hōʻike ka nui o nā neoplasm desmoid i kekahi mau hōʻailona i ka wā mua, ʻo ia ke kumu e ʻike ʻia ai lākou i kekahi manawa i nā scan lapaʻau maʻamau. I ka wā e ʻike ʻia ai nā hōʻailona, ​​ʻike pinepine ʻia lākou i ka wā e ulu nui ai ka neoplasm.

ʻO nā hōʻailona maʻamau āu e ʻike ai, ʻo ia kahi ʻāpana ʻeha ʻole a i ʻole ka pehu ma ka wahi i pilikia. ʻO kēia ʻāpana, ʻo ka mea maʻamau, he paʻa ke ʻano a ʻaʻole neʻe nui i ka wā e kaomi ai ʻoe ma luna.

Eia nā hōʻailona e ulu paha i ka wā e ulu ai ka neoplasm:

• Kahi ʻāpana paʻa, paʻa ma lalo o kou ʻili
• ʻEha a i ʻole ka palupalu ma ka wahi i pilikia
• Hoʻemi ʻia ka laulā o ka neʻe ʻana i nā hui kokoke
• Nawaliwali a paʻa paha nā ʻiʻo
• ʻO ka numbness a i ʻole ka tingling inā ʻānai ʻia nā nerve
• Pehu a i ʻole nā ​​hoʻololi i ke ʻano o ka ʻili

I nā hihia kakaikahi, hiki i nā neoplasm desmoid ke ulu i loko o kou ʻōpū a i ʻole ka lumi umauma. Hiki i kēia mau neoplasm kūloko ke hoʻoulu i nā pilikia digestive, nā pilikia hanu, a i ʻole ka ʻeha ʻōpū. Hiki iā ʻoe ke ʻike i ka nalowale kaumaha wehe ʻole ʻia a i ʻole ke ʻano piha koke i ka ʻai ʻana.

ʻO kahi o kāu pōʻino ke kumu nui loa i nā hōʻailona āu e ʻike ai. ʻO ka hapa nui o nā kānaka e ʻike ana i nā hōʻailona me ka mālie i loko o nā hebedoma a i ʻole nā mahina, ma mua o nā loli koke.

He aha nā ʻano o nā pōʻino desmoid?

Hoʻokaʻawale nā kauka i nā pōʻino desmoid ma muli o kahi e ulu ai lākou i loko o kou kino. ʻO kēlā me kēia ʻano e ʻano like ʻole a pono paha i nā ʻano lapaʻau like ʻole.

Hoʻomohala nā pōʻino desmoid superficial i nā ʻiʻo o kou mau lima, nā wāwae, ke kino, a i ʻole kahi poʻo a me ka ʻāʻī. ʻO kēia ka ʻano maʻamau loa a maʻalahi hoʻi ke mālama ʻia no ka mea maʻalahi ke komo i nā kauka.

ʻO nā pōʻino desmoid hohonu e ulu ana i loko o kou ʻōpū, a i ʻole i nā ʻiʻo o ka paia ʻōpū a i ʻole i loko o ka lua ʻōpū ponoʻī. Hiki i kēia mau pōʻino ke paʻakikī ke mālama no ka mea paʻakikī ke hiki aku a pili paha i nā ʻōnaehana koʻikoʻi.

ʻO kahi māhele kūikawā i kapa ʻia ʻo familial adenomatous polyposis (FAP)-associated desmoid tumors e loaʻa i nā kānaka me kahi kūlana genetic kūikawā. Hoʻomohala pinepine kēia mau pōʻino i loko o ka ʻōpū a hiki ke ʻoi aku ka ikaika i kā lākou ʻano ulu.

Ke kōkua nei kahi o kāu pōʻino desmoid i kāu kauka e hoʻoholo i ka papahana lapaʻau maikaʻi loa. ʻOi aku ka maikaʻi o nā hopena o nā pōʻino superficial, ʻoiai nā pōʻino ʻōpū hohonu e pono ai nā ʻano hoʻokele paʻakikī.

He aha ke kumu o nā pōʻino desmoid?

ʻAʻole maopopo loa ke kumu kūpono o nā pōʻino desmoid, akā ua ʻike nā mea noiʻi i kekahi mau kumu e hiki ai ke hoʻonāukiuki i kā lākou hoʻomohala ʻana. Me he mea lā ua loaʻa kēia mau pōʻino mai ke kaʻina hoʻōla o kou kino e hele ana i ka overdrive.

ʻIke ʻia ka hōʻeha kino a i ʻole ka hōʻeha he kumu maʻamau. Hiki paha kēia ke komo pū me nā kaʻina hana ʻoki, nā ulia, a i ʻole nā hōʻeha liʻiliʻi i kahi like. Hoʻomaka kou kino i ke kaʻina hoʻōla maʻamau akā ʻaʻole ʻike i ka manawa e hoʻōki ai.

Aia kekahi mau kumu e hiki ai ke hoʻonui i kou hiki ke hoʻomohala i kēia mau pōʻino:

• Nā hana ʻoki kino ma mua a i ʻole nā hōʻeha nui
• Ke hāpai a i ʻole ka hānau hou ʻana
• Nā loli o ka hormone, ʻo ka estrogen ke kumu nui
• Nā hoʻololi kino, ʻoiai ma nā gene APC a i ʻole CTNNB1
• Ka mōʻaukala ʻohana o ka familial adenomatous polyposis (FAP)
• ʻO ka wahine a me ka makahiki hānau keiki

He kuleana nui ka mana o nā hormones, ʻo ia ke kumu e ʻoi aku ai ka nui o nā desmoid tumors i nā wāhine ma waena o nā makahiki 15 a me 60. Hiki i ke hāpai a me nā lāʻau lapaʻau i loaʻa ka estrogen ke hoʻoulu i ka ulu ʻana o ka tumor i kekahi mau hihia.

I nā hihia kakaikahi, ulu nā desmoid tumors me ka ʻole o kekahi kumu maopopo. Hiki i kou ʻano kino ke hoʻonui i kou pilikia, ʻoiai ʻaʻohe mōʻaukala ʻohana o kēia mau kūlana.

I ka wā e ʻike ai i ke kauka no nā desmoid tumors?

Pono ʻoe e hoʻokaʻaʻike i kāu kauka inā ʻike ʻoe i kekahi ʻāpana hou a i ʻole ka ulu ʻana ʻaʻole hele i loko o kekahi mau pule. ʻOiai ʻo ka hapa nui o nā ʻāpana he mea ʻino ʻole, ʻoi aku ka maikaʻi o ka loiloi koke ʻana.

E makaʻala nui i nā ʻāpana i paʻa, ʻaʻole neʻe i ka wā i pā ʻia, a i ʻole ke ulu nui nei i ka manawa. Hiki i kēia mau ʻano ke hoʻokaʻawale i nā desmoid tumors mai nā ʻāpana maʻamau, maikaʻi e like me nā lipomas.

E ʻimi i ka mālama lapaʻau wikiwiki inā loaʻa iā ʻoe kēia mau hōʻailona:

• Ka ulu wikiwiki ʻana o kahi ʻāpana a i ʻole ka pehu
• ʻEha nui e hoʻopilikia ana i nā hana o kēlā me kēia lā
• Ke ʻano ʻole a i ʻole ka nāwaliwali i nā ʻiʻo kokoke
• Ka pilikia o ka neʻe ʻana o nā hono a i ʻole nā lālā maʻamau
• Nā pilikia ʻai me kahi ʻāpana ʻōpū
• Nā pilikia hanu me nā hōʻailona umauma

Inā loaʻa iā ʻoe kahi mōʻaukala ʻohana o FAP a i ʻole ua ʻike ʻia ʻoe me kēia kūlana, he mea nui loa ka nānā mau. Hiki i kāu kauka ke ʻōlelo aku i ka nānā kiʻi maʻamau ʻoiai ʻaʻohe hōʻailona.

Mai kali inā hopohopo ʻoe e pili ana i kekahi hōʻailona hou a i ʻole ke loli nei. Hiki i ka ʻike mua ke alakaʻi i nā koho mālama hou aku a me nā hopena maikaʻi aʻe no ka mālama ʻana i nā desmoid tumors.

He aha nā mea pilikia no nā maʻi desmoid?

Hiki i kekahi mau mea ke hoʻonui i kou manawa e loaʻa ai kahi maʻi desmoid, ʻoiai ʻaʻole hōʻoia ka loaʻa ʻana o nā mea pilikia e loaʻa iā ʻoe kekahi. Ke hoʻomaopopo ʻoe i kēia mau mea, e kōkua ia iā ʻoe e makaʻala i nā hōʻailona hiki ke loaʻa.

ʻO ka lilo ʻana i wahine i ka makahiki hānau ke kumu pilikia nui loa. ʻO ka hapa nui o nā maʻi desmoid e loaʻa i nā wāhine ma waena o 15 a me 60 mau makahiki, ma muli paha o ka mana o nā hormones ma ka ulu ʻana o ka maʻi.

Eia nā mea pilikia nui e makaʻala ai:

• Wahine, ʻoi aku hoʻi i nā makahiki hānau.
• Ka ʻoki kino mua o ka ʻōpū a i ʻole nā ​​ʻoki nui ʻē aʻe.
• Ke hapai a i ʻole ka hānau hou ʻana.
• Ke lawe ʻana i nā lāʻau lapaʻau e komo pū ana me ka estrogen.
• Mōʻaukala ʻohana o ka familial adenomatous polyposis (FAP).
• Mōʻaukala pilikino o ka hōʻeha a i ʻole nā ​​hōʻeha hou.

He kuleana nui nā mea genetic i kekahi mau hihia. Inā loaʻa iā ʻoe ka FAP, ʻoi aku ka nui o kou pilikia e loaʻa ai nā maʻi desmoid o ka ʻōpū ma mua o ka awelika. ʻO kēia mau pilina genetic e wehewehe i ke kumu e ʻike ai kekahi mau ʻohana i nā hihia he nui.

I nā kūlana kakaʻikahi, loaʻa nō nā maʻi desmoid i nā poʻe ʻaʻohe mea pilikia i ʻike ʻia. Ke hōʻike nei kēia e hiki ke komo pū kekahi mau mea ʻike ʻole ʻia i kā lākou hoʻomohala ʻana, me nā manaʻo o ke kaiapuni a i ʻole nā ​​hoʻololi liʻiliʻi genetic.

ʻAʻole manaʻo ia e hopohopo mau ʻoe inā loaʻa iā ʻoe nā mea pilikia, akā ʻo ia hoʻi e pono ʻoe e makaʻala i nā hōʻailona hiki ke loaʻa a kūkākūkā i nā manaʻo me kāu mea mālama ola.

He aha nā pilikia hiki ke loaʻa i nā maʻi desmoid?

ʻO ka hapa nui o nā maʻi desmoid e hana i nā pilikia hiki ke mālama ʻia, akā hiki ke loaʻa nā pilikia ma muli o ka nui a me ka wahi o ka maʻi. ʻO ka manaʻo nui, ʻo ia ka ulu ʻana o kēia mau maʻi i ka nui e pilikia ai i nā hana maʻamau o ke kino.

Hiki mai nā pilikia kūloko ke kaomi ke ʻōpū ma nā ʻano kokoke. Hiki i kēia kaomi ke hoʻopilikia i nā ʻiʻo, nā aʻalolo, nā kīʻaha koko, a i ʻole nā ​​mea kino ma ka wahi, e alakaʻi ana i nā pilikia hana like ʻole.

ʻO nā pilikia maʻamau āu e ʻike ai:

• Ho'emi ʻia ka neʻe ʻana a i ʻole ka paʻakikī o nā hono
• ʻEha mau a i ʻole ka ʻoluʻolu ʻole
• Kaomi ʻana o nā aʻalolo e hoʻokumu ana i ka numbness a i ʻole ka nāwaliwali
• Ka atrophy o nā ʻiʻo mai ka hoʻohana ʻole ʻia
• Nā loli hoʻonaninani a i ʻole ka deformiti i ʻike ʻia
• Ka pilikia manaʻo mai nā hōʻailona mau

Hiki i nā ʻōpū desmoid o ka ʻōpū ke hoʻokumu i nā pilikia koʻikoʻi. Hiki i kēia ke komo pū me ka pale ʻana o ka ʻōpū, nā pilikia o ka puʻupaʻa inā kaomi ke ʻōpū ma ka ureter, a i ʻole nā ​​pilikia me ka ʻai ʻana a me ka meaʻai.

I nā hihia kakaikahi, hiki i nā ʻōpū nui loa ke lilo i mea weliweli i ke ola inā e kaomi lākou i nā mea kino nui a i ʻole nā ​​kīʻaha koko nui. Eia naʻe, he mea maʻamau ʻole kēia, a hiki ke hoʻokele ʻia ka hapa nui o nā pilikia me ka mālama kūpono.

ʻAʻole pono e nānā ʻia ka hopena psychological. Hiki i ke ola ʻana me kahi kūlana mau ke hoʻopilikia i kou olakino noʻonoʻo, nā pilina, a me ka maikaʻi o ke ola. Hiki i ke kākoʻo mai nā mea lawelawe olakino, nā ʻohana, a me nā hui kākoʻo ke hana i kahi ʻokoʻa nui.

Pehea e hiki ai ke pale ʻia nā ʻōpū desmoid?

ʻAʻole maopopo, ʻaʻohe ala maopopo e pale aku ai i nā ʻōpū desmoid ʻoiai ʻaʻole i maopopo loa ko lākou kumu. Eia naʻe, hiki iā ʻoe ke lawe i nā ʻanuʻu e hoʻemi i kekahi mau kumu pilikia i ʻike ʻia inā hiki.

Inā loaʻa iā ʻoe kahi mōʻaukala ʻohana o FAP, hiki i ka ʻōlelo aʻo genetic a me ka hoʻokolohua ke kōkua iā ʻoe e hoʻomaopopo i kou pilikia. Hiki i ka ʻike mua ʻana a me ka hoʻokele ʻana o FAP ke kōkua i ka hoʻemi ʻana i ka hiki ke hoʻomohala i nā ʻōpū desmoid pili.

No nā wahine me ka mōʻaukala o nā ʻōpū desmoid, he mea nui ka kūkākūkā ʻana i nā hoʻoholo pili i nā hormones me kāu kauka. Hoʻokomo kēia i nā manaʻo e pili ana i ka manawa hāpai, ka lāʻau hoʻololi hormone, a me nā ʻano pale hānau e komo pū ana me ka estrogen.

ʻOiai ʻaʻole hiki ke pale aku i nā hōʻeha a pau, hiki i ka mālama pono ʻana i ka palekana i nā haʻuki, ka hana, a me nā hana o kēlā me kēia lā ke kōkua. Eia naʻe, mai hoʻonele i ka makaʻu i ka hōʻeha iā ʻoe mai ka noho ʻana i kahi ola hana, ola maikaʻi.

Inā ua loaʻa iā ʻoe nā maʻi ʻaʻai desmoid ma mua, he mea nui ka nānā mau ʻana me kāu hui olakino. ʻO ka ʻike mua ʻana i ka hoʻi hou ʻana e hāʻawi i ka mālama koke a me nā hopena maikaʻi aʻe.

Pehea ka hōʻoia ʻana i nā maʻi ʻaʻai desmoid?

ʻO ka hōʻoia ʻana i nā maʻi ʻaʻai desmoid e hoʻomaka pinepine me kāu kauka e nānā ana i nā ʻāpana a i ʻole nā wahi o ka hopohopo. E nīnau lākou e pili ana i kāu mau hōʻailona, mōʻaukala ʻohana, a me nā hōʻeha a i ʻole nā hana ʻoki ma mua i ka wahi.

Ke kōkua nei ka nānā kino i kāu kauka e loiloi i ka nui, kahi, a me nā ʻano o nā mea nui. Eia naʻe, ʻo ka hōʻoia ʻana i ka hōʻoia ʻana o ka maʻi ʻaʻai desmoid e pono ai nā haʻawina kiʻi a me kahi biopsy o nā pūnaewele pinepine.

ʻO kāu hana hōʻoia e komo paha i kekahi mau ho'okolohua:

1. MRI scan e hōʻike i nā kiʻi kikoʻī o nā pūnaewele palupalu
2. CT scan e loiloi i ka nui a me kahi o ka maʻi ʻaʻai
3. Ultrasound no nā maʻi ʻaʻai ma luna
4. Core needle biopsy e nānā i nā laʻana o nā pūnaewele
5. Ho'okolohua genetika inā kānalua ʻia ka FAP
6. Nā ho'okolohua koko e kāpae i nā kūlana ʻē aʻe

ʻO ka MRI ka ho'okolohua kiʻi kōkua loa ma muli o ka hōʻike ʻana i ka pilina o ka maʻi ʻaʻai i nā ʻiʻo kokoke, nā aʻalolo, a me nā ʻano ʻē aʻe. He mea nui kēia ʻike no ka hoʻolālā ʻana i ka mālama.

ʻO ka biopsy ka lawe ʻana i kahi laʻana liʻiliʻi o nā pūnaewele no ka nānā ʻana ma lalo o ka microscope. Ke hōʻoia nei kēia i ka hōʻoia a kāpae i nā ʻano ʻē aʻe o nā maʻi ʻaʻai, me ka maʻi kanesa. Hana pinepine ʻia ke kaʻina hana me ka anesthesia kūloko.

Hiki i kāu kauka ke kauoha i nā ho'okolohua hou aku e nānā i ka FAP inā he kānalua i kēia kūlana genetic. He mea nui kēia no ka mea e pili ana i nā hoʻoholo mālama a me nā ʻōlelo aʻo palekana ʻohana.

He aha ka mālama no nā maʻi ʻaʻai desmoid?

Hoʻokoʻokoʻa loa ka mālama ʻana i nā maʻi desmoid ma muli o ka nui o ka maʻi, kahi, nā hōʻailona, ​​a me ka wikiwiki o ka ulu ʻana. ʻO ka pahuhopu, ʻo ia ke kaohi i ka maʻi me ka hoʻemi ʻana i nā hopena ʻaoʻao a me ka mālama ʻana i kou ola maikaʻi.

He nui nā kauka i makemake i kahi ala ʻo "e kali a nānā," ma mua, ʻoi aku hoʻi no nā maʻi liʻiliʻi a me nā hōʻailona ʻole. Ua pau ke ulu ʻana o kekahi mau maʻi desmoid ma o lākou iho a i ʻole e emi paha me ka ʻole o ka mālama.

ʻO nā koho mālama ikaika e komo pū ana i kekahi mau ala:

• Wehe ʻana ma ka ʻoki kino inā hiki a kūpono
• Mālama radiation e hoʻemi a kaohi paha i ka maʻi
• Nā lāʻau anti-inflammatory e like me sulindac
• Mālama hormonal e kāohi i nā hopena estrogen
• Chemotherapy no nā maʻi kolohe a nui paha
• Nā lāʻau lapaʻau i hoʻopilikia ʻia no nā mutations genetic kūikawā

Hana maikaʻi loa ka ʻoki kino no nā maʻi ma luna o ka ʻili e hiki ke wehe piha ʻia me nā palena maopopo. Eia naʻe, he manaʻo nā maʻi desmoid e hoʻi hou mai, ʻoiai ma hope o ka wehe ʻana o ka ʻoki kino piha.

Hiki i ka mālama radiation ke kūpono no nā maʻi ʻaʻole hiki ke wehe ʻia ma ka ʻoki kino a i ʻole i hoʻi hou mai ma hope o ka ʻoki kino. Hāʻawi pinepine ʻia ka mālama ma luna o kekahi mau pule e hoʻemi i nā hopena ʻaoʻao.

Hōʻike nā lāʻau lapaʻau hou i hoʻopilikia ʻia i ka manaʻolana, ʻoi aku hoʻi no nā maʻi me nā mutations genetic kūikawā. Hiki i kēia mau lāʻau ke kōkua i ke kaohi ʻana i ka ulu ʻana o ka maʻi me ka emi o nā hopena ʻaoʻao ma mua o ka chemotherapy maʻamau.

E hoʻonohonoho pilikino ʻia kāu papahana mālama ma muli o kou kūlana kūikawā. Pono ka nui o nā kānaka i ka hui ʻana o nā mālama ma ka manawa, a hiki ke loli ke ala e like me ka pane a i ʻole ka loli ʻana o kāu maʻi.

Pehea e mālama ai i nā maʻi desmoid ma ka home?

ʻOiai he mea nui ka mālama lapaʻau, nui nā mea hiki iā ʻoe ke hana ma ka home e kōkua i ka mālama ʻana i nā hōʻailona a hoʻomaikaʻi i kou ola maikaʻi. Hana maikaʻi loa kēia mau hoʻolālā mālama ponoʻī me kāu papahana mālama lapaʻau.

ʻO ka mālama ʻana i ka ʻeha ka mea nui pinepine no nā kānaka me nā maʻi desmoid. Hiki i nā mea hoʻoemi ʻeha maʻamau, ka hoʻomehana a i ʻole ka hoʻoilo, a me ka hoʻonui mālie ke kōkua i ka hoʻemi ʻana i ka ʻeha i nā hihia he nui.

Eia nā ʻōlelo aʻoaʻo kōkua no ka mālama ʻana i ka home:

• E hoʻopili i nā ʻeke wela a i ʻole anuanu no 15-20 mau minuke i nā manawa he nui i ka lā
• E hoʻomaʻamaʻa i ka hoʻonui mālie a me nā hana hoʻoneʻe
• E hoʻohana i nā ʻano kino kūpono e pale aku ai i ka pilikia
• E mālama i ka ʻai olakino piha i nā meaʻai anti-inflammatory
• E loaʻa ka hiamoe lawa e kākoʻo i ka ho'ōla ʻana o kou kino
• E hoʻomaʻamaʻa i nā ʻano hoʻokele kaumaha e like me ka noʻonoʻo a i ʻole ka hanu hohonu

Hiki i ka hoʻoponopono kino ke pōmaikaʻi loa no ka mālama ʻana i ka neʻe ʻana a me ka ikaika. Hiki i ka mea hoʻoponopono kino ke aʻo iā ʻoe i nā hana a me nā ʻano kūikawawā i kūpono i ka wahi o kāu maʻi a me kāu mau hōʻailona.

He mea nui like nō ke kākoʻo ʻana o ka manaʻo. E noʻonoʻo e komo i nā hui kākoʻo, ma ke kino a ma ka pūnaewele paha, kahi e hiki ai iā ʻoe ke pili me nā poʻe ʻē aʻe e hoʻomaopopo ana i kou ʻike. Mai kānalua e ʻimi i ka ʻōlelo aʻo inā ke paio nei ʻoe me ka hopohopo a i ʻole ka kaumaha.

E mālama i kahi puke moʻolelo hōʻailona e hahai i nā loli i ka ʻeha, ka pehu, a i ʻole ka hana. Kūkulu kēia ʻike i kāu hui olakino e hana i nā hoʻoholo kūpono e pili ana i kāu papa hana lapaʻau.

Pehea ʻoe e hoʻomākaukau ai no kāu kūkā me ke kauka?

Ke hoʻomākaukau nei ʻoe no kāu kūkā me ke kauka e kōkua iā ʻoe e loaʻa ka mea nui loa mai kāu kipa a ʻaʻole e poina i ka ʻike nui. Ke alakaʻi nei ka hoʻomākaukau maikaʻi i ka kamaʻilio ʻana maikaʻi a me ka mālama ʻana ikaika.

E hoʻomaka ma ka kākau ʻana i kāu mau hōʻailona a pau, me ka manawa i hoʻomaka ai lākou a pehea lākou i loli ai i ka manawa. E kūikawā e pili ana i nā pae ʻeha, nā palena hana, a me nā kumu e hoʻomaikaʻi ai a ʻoi aku ka maikaʻi o nā hōʻailona.

E lawe mai i kēia ʻike nui i kāu kūkā:

1. Papa inoa piha o nā lāʻau lapaʻau a me nā mea hoʻohui i kēia manawa
2. Mōʻaukala lapaʻau, me nā hana ʻoki a i ʻole nā ​​ʻeha ma mua
3. Mōʻaukala ʻohana o nā kūlana genetic a i ʻole nā ​​maʻi kanesa
4. Nā hopena kiʻi a i ʻole nā ​​moʻolelo lapaʻau ma mua
5. ʻIke inikua a me nā palapala hoʻouna inā pono
6. Papa inoa o nā nīnau a me nā hopohopo āu e makemake ai e kūkākūkā

E hoʻomākaukau i nā nīnau kūikawā e pili ana i kāu hōʻailona, ​​nā koho mālama, a me ka prognosis. E nīnau e pili ana i nā hopena ʻaoʻao o nā mālama a me ka mea e manaʻo ai i nā manawa ho'ōla.

E noʻonoʻo e lawe mai i kahi hoaaloha a i ʻohana paha i hilinaʻi ʻia e kōkua iā ʻoe e hoʻomanaʻo i nā ʻike koʻikoʻi a hāʻawi i ke kākoʻo manaʻo. Hiki iā lākou ke kōkua iā ʻoe e noʻonoʻo i nā nīnau āu e poina ai e nīnau.

Mai makaʻu e noi i ka wehewehe inā ʻaʻole ʻoe i maopopo i kekahi mea. E noi i ka ʻike palapala e pili ana i kou kūlana a me nā koho mālama āu e hiki ai ke nānā ma ka home.

He aha ka mea nui e lawe mai e pili ana i nā maʻi desmoid?

He mau kūlana maʻamau ʻole akā hiki ke mālama ʻia nā maʻi Desmoid e pono ai nā ala mālama pilikino. ʻOiai he mea paʻakikī ke ola pū me lākou, nui nā kānaka i hoʻokele pono i kā lākou mau hōʻailona a mālama i ka maikaʻi o ke ola.

ʻO ka mea nui loa e hoʻomanaʻo ai ʻaʻole nā ​​maʻi desmoid he kanesa a ʻaʻole hoʻolaha i nā ʻāpana ʻē aʻe o kou kino. He mea nui kēia ʻokoʻa no ka hoʻomaopopo ʻana i kāu prognosis a me nā koho mālama.

Ua holomua nui ka mālama ʻana i nā makahiki i hala iho nei, me ka nui o nā kauka i kēia manawa e lawe ana i kahi ala mālama ʻoi aku ka mālie i ka hoʻomaka. Hoʻomau a i ʻole e emi kekahi mau maʻi me ka ʻole o ka hoʻouka kaua ikaika, kahi i hoʻololi ai i ko mākou manaʻo e pili ana i ka hoʻokele.

He mea nui ka hana pili loa me kahi hui olakino akamai no nā hopena maikaʻi loa. Hiki paha kēia ke komo pū me nā oncologists, nā kauka ʻoki, nā radiologists, a me nā loea ʻē aʻe e hoʻomaopopo i kēia mau maʻi maʻamau ʻole.

E hoʻomanaʻo he huakaʻi ka noho ʻana me kahi maʻi ʻaʻai desmoid, ʻaʻole kahi hopena. Hiki ke loli kāu papa hana lapaʻau ma hope o kekahi manawa, a ʻo ka noho ʻana i ka oluolu i ka wā e kākoʻo ai i kou mau pono e lawelawe maikaʻi iā ʻoe i loko o kēia kaʻina hana.

Nā nīnau pinepine e pili ana i nā maʻi ʻaʻai desmoid

Q1: He kanesa nā maʻi ʻaʻai desmoid?

ʻAʻole, ʻaʻole he kanesa nā maʻi ʻaʻai desmoid. ʻAʻole lākou e pālahalaha i nā ʻāpana ʻē aʻe o kou kino e like me ka kanesa. Eia naʻe, hiki iā lākou ke ulu nui i ko lākou wahi kūloko a hiki ke hoʻi hou ma hope o ka lapaʻau, ʻo ia ke kumu e pono ai ka nānā pono a me ka hoʻokele.

Q2: Hiki i nā maʻi ʻaʻai desmoid ke nalowale ma luna o lākou iho?

ʻAe, hiki i kekahi mau maʻi ʻaʻai desmoid ke hoʻōki i ka ulu ʻana a i ʻole ke emi ʻana me ka ʻole o ka lapaʻau. ʻO ia ke kumu e ʻōlelo ai nā kauka he nui i kēia manawa e nānā i nā maʻi ʻaʻai liʻiliʻi, asymptomatic ma mua o ka hoʻomaka ʻana i ka lapaʻau ikaika. Eia naʻe, he paʻakikī ka wānana ʻana i nā maʻi ʻaʻai e hana ai i kēia ʻano.

Q3: Pehea ka lōʻihi o ka lapaʻau no nā maʻi ʻaʻai desmoid?

Hoʻololi nui ka lōʻihi o ka lapaʻau ma muli o ke ʻano i hoʻohana ʻia. Hiki ke hoʻopau ʻia ka ʻoki kino ma hoʻokahi kaʻina hana, ʻoiai ka lōʻihi o ka radiation therapy ma kahi o 5-6 mau pule. Hiki ke hoʻomau ʻia nā lapaʻau lapaʻau e like me ka hormonal therapy a i ʻole nā ​​lāʻau i hoʻonohonoho ʻia no nā mahina a i ʻole nā ​​makahiki, ma muli o kāu pane.

Q4: Hiki iaʻu ke loaʻa nā keiki inā loaʻa iaʻu kahi maʻi ʻaʻai desmoid?

ʻAʻole pale aku ka loaʻa ʻana o kahi maʻi ʻaʻai desmoid iā ʻoe mai ka loaʻa ʻana o nā keiki, akā hiki i ka hāpai ke hoʻoulu i ka ulu ʻana o ka maʻi ʻaʻai ma muli o nā loli hormonal. He mea nui ke kūkākūkā me kāu hui olakino e hoʻomaopopo i nā pilikia a hoʻolālā i ka nānā kūpono i ka wā hāpai.

Q5: E hoʻi mai anei kaʻu maʻi ʻaʻai desmoid ma hope o ka lapaʻau?

Hiki i nā maʻi ʻaʻai desmoid ke hoʻi hou mai ma hope o ka lapaʻau holomua, ʻo ia ke kumu e pono ai ka hahai ʻana i ka lōʻihi. Hoʻololi nā helu hoʻi hou ʻana ma muli o ka lapaʻau i hoʻohana ʻia a me nā ʻano o ka maʻi ʻaʻai. E ʻōlelo aku kāu kauka i kahi papa hana nānā ma muli o kāu kūlana kikoʻī.