He aha ka Ebstein's Anomaly? Nā Hōʻailona, Nā Kumu, a me ka Lapaʻau

ʻO ka Ebstein's anomaly he maʻi naʻau kānalua loa i hānau ʻia mai ʻoe e pili ana i ke ʻano hana o kāu pāpale tricuspid. Aia kēia pāpale ma waena o nā lumi ʻākau o kou naʻau, a i loaʻa iā ʻoe ka Ebstein's anomaly, ʻaʻole ia i hana pono i ka wā hāpai.

E noʻonoʻo i kou naʻau e like me ka loaʻa ʻana o ʻehā lumi me nā puka ma waena o lākou. ʻO ka pāpale tricuspid kekahi o kēlā mau puka, a ma ka Ebstein's anomaly, ua kau ʻia kēia puka ma lalo o ka mea e pono ai a ʻaʻole pani pono. ʻO ia hoʻi, ke kahe nei kekahi koko ma hope ma mua o ka neʻe ʻana i mua ma o kou naʻau e like me ka mea e pono ai.

He aha nā hōʻailona o ka Ebstein's anomaly?

ʻO nā hōʻailona āu e ʻike ai e hilinaʻi ana i ka nui o kou maʻi. Loaʻa i kekahi poʻe me ka Ebstein's anomaly māmā ke ʻano maikaʻi loa a ʻaʻole lākou i ʻike iā ia a hiki i ka wā makua.

Eia nā hōʻailona maʻamau i ʻike ʻia e nā kānaka:

• Pōkole o ka hanu, ʻoi aku hoʻi i ka wā hana kino
• ʻIke ʻia ka luhi a i ʻole ka nāwaliwali ma mua o nā poʻe ʻē aʻe
• ʻO kahi kala uliuli i kou lehelehe, nā kui, a i ʻole ka ʻili (i kapa ʻia ʻo cyanosis)
• Nā palpitations naʻau a i ʻole ke ʻano e like me ka holo ʻana o kou naʻau
• ʻO ka pehu ʻana i kou mau wāwae, nā kuʻekuʻe wāwae, a i ʻole ka ʻōpū
• ʻEha umauma a i ʻole ka ʻoluʻolu ʻole

I nā hihia koʻikoʻi, hiki i nā pēpē hou ke loaʻa nā hōʻailona koʻikoʻi e like me ka pilikia o ka hanu a i ʻole ka hānai ʻana. ʻO ka ʻoiaʻiʻo maikaʻi, he nui nā kānaka me nā ʻano māmā e ola ana i nā ola maʻamau, ikaika me ka mālama pono.

He aha nā ʻano o ka Ebstein's anomaly?

Hoʻokaʻawale nā kauka i ka Ebstein's anomaly ma muli o ka nui o ka pilikia o ka pāpale. ʻAʻole hiki i ke ʻano māmā loa ke hoʻokumu i kekahi hōʻailona, ʻoiai ʻo ke ʻano koʻikoʻi loa hiki ke hoʻoweliweli i ke ola.

Kōkua ka hoʻokaʻawale ʻana i kāu kauka e hoʻomaopopo i ka mea e manaʻo ai a hoʻolālā i kāu lapaʻau. I nā hihia māmā, hana maikaʻi ka pāpale tricuspid ʻoiai ua kau ʻia ma kahi ʻokoʻa. I nā hihia waena, hiki iā ʻoe ke ʻike i nā hōʻailona i ka wā hoʻomaʻamaʻa a i ʻole ka pilikia.

ʻO ka Ebstein's anomaly koʻikoʻi ʻo ia hoʻi ʻaʻole hana pono ka pāpale, e hoʻokumu ana i nā pilikia nui me ke kahe koko. Pono pinepine kēia ʻano i ka lapaʻau i ka wā pēpē a i ʻole ke kamaliʻi e kōkua i kāu naʻau e hana maikaʻi.

He aha ka mea e hoʻokumu ai i ka Ebstein's anomaly?

Hana ʻia ka Ebstein's anomaly i ka wā ʻaʻole ulu pono kou naʻau i nā hebedoma mua o ka hāpai ʻana. ʻAʻole maopopo mau ke kumu kikoʻī o kēia, akā ua ʻike nā kauka i kekahi mau mea e hiki ke pāʻani i kahi kuleana.

Hana ʻia ka hapa nui o nā hihia me ka ʻole o ke kumu maopopo. Eia naʻe, ʻo kekahi mau mea e hiki ke hoʻonui i ka pilikia e komo pū me:

• Ke lawe ʻana i kekahi mau lāʻau lapaʻau i ka wā hāpai, ʻoi aku hoʻi ka lithium no ka maʻi bipolar
• Ke loaʻa ʻana o ka mōʻaukala ʻohana o nā hemahema naʻau i hānau ʻia
• Nā mea genetic e hoʻopilikia i ka hoʻomohala ʻana o ka naʻau
• Nā maʻi viral i ka wā hāpai mua
• Ka maʻi diabetes maikaʻi ʻole i ka makuahine

He mea nui e ʻike inā hāpai ʻoe a loaʻa iā ʻoe kekahi o kēia mau mea pilikia, ʻaʻole ia he manaʻo e loaʻa pono i kāu pēpē ka Ebstein's anomaly. Loaʻa i ka hapa nui o nā pēpē i hānau ʻia i nā makuahine me kēia mau mea he mau naʻau olakino loa.

I ka wā hea e ʻike ai i ke kauka no ka Ebstein's anomaly?

Pono ʻoe e ʻike i ke kauka inā ʻike ʻoe i kekahi hōʻailona e hōʻike ana i kahi pilikia naʻau. Mai kali inā ʻike ʻoe i ka pōkole o ka hanu, ʻeha umauma, a i ʻole ka luhi maʻamau ʻaʻole i hoʻomaikaʻi me ka hoʻomaha.

E ʻimi i ka mālama ola kino koke inā loaʻa iā ʻoe nā hōʻailona koʻikoʻi e like me ka ʻeha umauma ikaika, ka pilikia nui o ka hanu, a i ʻole ka hiolo ʻana. Hiki i kēia ke hōʻike i nā pilikia koʻikoʻi e pono ai ka lapaʻau koke.

No nā mākua, e nānā i nā hōʻailona i kāu keiki e like me ka kala ʻili uliuli, ka pilikia o ka hānai ʻana, a i ʻole nā pilikia hanu. Hōʻike pinepine nā pēpē me ka Ebstein's anomaly koʻikoʻi i nā hōʻailona i kā lākou mau lā a i ʻole nā hebedoma mua o ke ola.

ʻOiai inā ʻoluʻolu ʻoe, he mea nui nā nānā maʻamau inā ua ʻike ʻia ʻoe me ka Ebstein's anomaly. Hiki i kou maʻi naʻau ke loli i ka manawa, a ʻo ka ʻike mua ʻana i nā loli e kōkua i ka hōʻoia ʻana e loaʻa iā ʻoe ka mālama maikaʻi loa.

He aha nā mea pilikia no ka Ebstein's anomaly?

ʻOiai he nui nā kānaka me ka Ebstein's anomaly e ola ana i nā ola maʻamau, hiki i kekahi mau pilikia ke ulu i ka manawa. ʻO ka nui a me ka nui o nā pilikia e hilinaʻi ana i ka nui o kou maʻi.

ʻO nā pilikia maʻamau āu e ʻike ai e komo pū me:

• Nā pilikia rhythm naʻau (arrhythmias) e hiki ke hana i kou naʻau e pāʻani wikiwiki loa, lohi loa, a i ʻole maʻamau ʻole
• Ka hāʻule naʻau, kahi e hakakā ai kou naʻau e hoʻoheheʻe i ke koko
• Nā clots koko e hiki ke hana i kou naʻau a hele i nā ʻāpana ʻē aʻe o kou kino
• Ka hahau, ʻoi aku hoʻi inā loaʻa iā ʻoe nā puka ma waena o nā lumi o kou naʻau
• Ka make naʻau koke, ʻoiai he mea kānalua kēia

ʻO nā pilikia liʻiliʻi akā koʻikoʻi e komo pū me ka cyanosis koʻikoʻi (kala ʻili uliuli) a me ka paradoxical embolism, kahi e hele ai nā clots koko i kou mau māmā a hele pololei i kou lolo a i ʻole nā ʻāpana ʻē aʻe o kou kino.

ʻO ka ʻoiaʻiʻo maikaʻi, me ka nānā pono a me ka lapaʻau, hiki ke pale ʻia a mālama ʻia nā pilikia he nui. Kōkua nā nānā maʻamau i kāu kauka e hopu i nā loli mua.

Pehea e hiki ai ke pale aku i ka Ebstein's anomaly?

ʻOiai he hemahema hānau ka Ebstein's anomaly, ʻaʻohe ala i hōʻoia ʻia e pale aku ai. Eia naʻe, inā hāpai ʻoe a hoʻolālā e hāpai, hiki iā ʻoe ke lawe i nā hana e hoʻemi ai i kou pilikia.

ʻO nā hana pale nui loa e komo pū me ka pale ʻana i nā lāʻau lapaʻau e hiki ke hoʻopilikia i ka hoʻomohala ʻana o ka naʻau, ʻoi aku hoʻi ka lithium, ke pono ʻole. Inā pono ʻoe i ka lithium no ka maʻi bipolar, e hana pili me kāu mau kauka e kaupaona i nā pilikia a me nā pono.

Kōkua pū nā hana hāpai olakino maʻamau e hoʻemi i ka pilikia. E komo pū kēia me ka lawe ʻana i nā mea hoʻohui folic acid, ke kaohi ʻana i ka maʻi diabetes inā loaʻa iā ʻoe, ke pale ʻana i ka waiʻona a me nā lāʻau lapaʻau, a me ka loaʻa ʻana o ka mālama prenatal maʻamau.

Inā loaʻa iā ʻoe ka mōʻaukala ʻohana o nā hemahema naʻau i hānau ʻia, e noʻonoʻo i ka ʻōlelo aʻo genetic ma mua o ka hāpai ʻana. Hiki i kēia ke kōkua iā ʻoe e hoʻomaopopo i kou mau pilikia kikoʻī a hana i nā hoʻoholo ʻike e pili ana i kāu mālama hāpai.

Pehea ka ʻike ʻana i ka Ebstein's anomaly?

Hoʻomaopopo pinepine ʻia ka Ebstein's anomaly ma o nā hoʻokolohua naʻau e hōʻike ana i ke ʻano o kou naʻau a me ka hana. I kekahi manawa, ua ʻike ʻia ia i ka wā o nā ultrasound hāpai maʻamau, ʻoiai i nā manawa ʻē aʻe, ua ʻike ʻia ia i ka wā e nānā ana i nā hōʻailona ma hope i ke ola.

ʻO nā hoʻokolohua nui āu kauka e hoʻohana ai e komo pū me ka echocardiogram, kahi e hoʻohana ai i nā nalu leo ​​e hana i nā kiʻi o kou naʻau. Hiki i kēia hoʻokolohua ke hōʻike maopopo i ke kūlana a me ka hana o kāu pāpale tricuspid.

ʻO nā hoʻokolohua kōkua ʻē aʻe e komo pū me ka electrocardiogram (ECG) e nānā i kou rhythm naʻau, nā X-rays umauma e ʻike i ka nui o kou naʻau, a i kekahi manawa ka MRI naʻau no nā kiʻi kikoʻī hou aku. I kekahi mau hihia, hiki i kāu kauka ke ʻōlelo aku i ka catheterization naʻau e loaʻa nā ana pololei o nā kaomi i kou naʻau.

Inā hāpai ʻoe a pilikia e pili ana i ka naʻau o kāu pēpē, hiki i ka fetal echocardiography kūikawā ke ʻike pinepine i ka Ebstein's anomaly ma mua o ka hānau ʻana. ʻAe kēia i kāu hui lapaʻau e hoʻolālā no kekahi mālama e pono ai kāu pēpē ma hope o ka hānau ʻana.

He aha ka lapaʻau no ka Ebstein's anomaly?

ʻO ka lapaʻau no ka Ebstein's anomaly e hilinaʻi ana i ka nui o kou maʻi a me nā hōʻailona āu e ʻike nei. ʻAʻole pono ka nui o nā kānaka me nā ʻano māmā i kekahi lapaʻau ma mua o ka nānā maʻamau.

Inā loaʻa iā ʻoe nā hōʻailona, ​​hiki i kāu kauka ke hoʻomaka me nā lāʻau lapaʻau e kōkua i kāu naʻau e hana maikaʻi. Hiki i kēia ke komo pū me nā lāʻau lapaʻau e kaohi i nā pilikia rhythm naʻau, e hoʻemi i ka waihona wai, a i ʻole e kōkua i kou naʻau e hoʻoheheʻe i ke koko.

No nā hihia koʻikoʻi, pono paha ka ʻoki kino. ʻO nā koho ʻoki kino e komo pū me ka hoʻoponopono ʻana i kāu pāpale tricuspid, ka hoʻololi ʻana iā ia me kahi pāpale hana, a i nā hihia kānalua, nā kaʻina hana paʻakikī e hoʻohuli i ke kahe koko i kou naʻau.

ʻO ka manawa o ka ʻoki kino e hilinaʻi ana i kou mau hōʻailona a me ka maikaʻi o ka hana ʻana o kou naʻau. Pono kekahi poʻe i ka ʻoki kino i ka wā pēpē, ʻoiai hiki i nā poʻe ʻē aʻe ke kali a hiki i ka wā makua a i ʻole ʻaʻole pono lākou i ka ʻoki kino.

E hana pū kāu cardiologist me ʻoe e hoʻoholo i ka papahana lapaʻau maikaʻi loa ma muli o kou kūlana kikoʻī. ʻO ka pahuhopu mau e kōkua iā ʻoe e ʻoluʻolu a pale aku i nā pilikia ʻoiai e mālama ana i ka maikaʻi o ke ola.

Pehea e mālama ai i ka Ebstein's anomaly ma ka home?

ʻO ka mālama ʻana i ka Ebstein's anomaly ma ka home e komo pū me ka mālama ʻana i kou olakino maʻamau a me ka hahai ʻana i nā ʻōlelo a kāu kauka. ʻO ka ʻoiaʻiʻo maikaʻi, hiki i nā hana i kēlā me kēia lā ke kōkua iā ʻoe e ʻoluʻolu a ikaika.

He mea nui ka noho ikaika i loko o kou mau palena no ke olakino naʻau. Hiki i kāu kauka ke kōkua iā ʻoe e ʻike i nā ʻano a me ka nui o ka hoʻomaʻamaʻa e palekana no ʻoe. Hiki i nā kānaka he nui me ka Ebstein's anomaly ke komo i nā hana kino maʻamau.

Hiki i ka ʻai ʻana i ka meaʻai olakino naʻau ke kākoʻo i kou olakino maʻamau. ʻO ia hoʻi ka nui o nā hua, nā huaʻai, nā huaola holoʻokoʻa, a me nā protein liʻiliʻi ʻoiai e kaupalena ana i ka paʻakai, nā momona saturated, a me nā meaʻai i hana ʻia.

E makaʻala i kou ʻano i kēlā me kēia lā. E mālama i nā loli i kou mau hōʻailona, ​​nā pae ikehu, a i ʻole ka hiki ke hana i kāu mau hana maʻamau. Kōkua kēia ʻike i kāu kauka e hoʻoponopono i kāu lapaʻau e like me ka pono.

Mai poina e pili ana i ka pale ʻana i ka maʻi. Pono paha nā kānaka me nā maʻi naʻau i nā antibiotics ma mua o kekahi mau kaʻina hana niho a i ʻole nā ​​​​kaʻina hana e pale aku i nā maʻi i ka naʻau.

Pehea ʻoe e hoʻomākaukau ai no kāu koho kauka?

Hiki i ka hoʻomākaukau ʻana no kāu koho cardiology ke kōkua iā ʻoe e loaʻa ka nui loa mai kāu kipa. E hoʻomaka ma ka kākau ʻana i nā hōʻailona āu i ʻike ai, me ka wā e hana ai lākou a me ka mea e hoʻomaikaʻi ai a i ʻole e hoʻopilikia ai iā lākou.

E lawe mai i ka papa inoa o kāu mau lāʻau lapaʻau a pau, me nā lāʻau lapaʻau ma luna o ka counter a me nā mea hoʻohui. E ʻohi pū i nā hopena hoʻokolohua mua a i ʻole nā ​​​​moʻolelo mai nā kauka ʻē aʻe āu i ʻike ai e pili ana i kou maʻi naʻau.

E kākau i nā nīnau āu e makemake ai e nīnau i kāu kauka. Hiki i kēia ke komo pū me nā nīnau e pili ana i kāu mau palena hana, i ka wā e pono ai iā ʻoe nā hoʻokolohua hahai, a i ʻole nā ​​​​hōʻailona e pono ai e kāhea i ke keʻena.

E noʻonoʻo e lawe mai i kahi lālā ʻohana a i ʻole hoaaloha e kōkua iā ʻoe e hoʻomanaʻo i ka ʻike nui mai kāu kipa. Hiki i ka loaʻa ʻana o kekahi ma laila ke hāʻawi pū i ke kākoʻo manaʻo a kōkua iā ʻoe e noʻonoʻo i nā nīnau āu e poina ai.

E mākaukau e kūkākūkā i kāu mōʻaukala ʻohana o nā pilikia naʻau a me nā loli i kou olakino maʻamau mai kāu kipa hope loa. Kōkua kēia ʻike i kāu kauka e hāʻawi i ka mālama maikaʻi loa.

He aha ka lawe nui e pili ana i ka Ebstein's anomaly?

ʻO ka Ebstein's anomaly he maʻi naʻau hiki ke mālama ʻia e hoʻopilikia i nā kānaka āpau i nā ʻano like ʻole. ʻOiai he mea i hānau ʻia mai ʻoe, he nui nā kānaka e ola ana i nā ola piha, ikaika me ka mālama lapaʻau a me ka nānā pono.

ʻO ka mea nui loa ka hana pili me kāu hui mālama ola e hoʻomaopopo i kou kūlana kikoʻī. Hiki i kāu kauka ke kōkua iā ʻoe e ʻike i nā hana palekana, nā hōʻailona e nānā ai, a me ka wā e kōkua ai ka lapaʻau.

E hoʻomanaʻo ʻaʻole e hoʻomaopopo kou ola e ka loaʻa ʻana o ka Ebstein's anomaly. Me ka mālama pono a me ka nānā ʻana i kou olakino, hiki iā ʻoe ke alualu i kou mau pahuhopu a hauʻoli i nā hana nui loa iā ʻoe.

E noho pili me kāu hui lapaʻau, e lawe i kāu mau lāʻau lapaʻau e like me ka mea i kuhikuhi ʻia, a mai kānalua e hoʻopili inā loaʻa iā ʻoe nā nīnau a i ʻole nā ​​​​pilikia. Hana maoli kāu hana proactive i ka mālama ʻana i kou olakino i kahi ʻokoʻa i kou mau hopena.

Nā nīnau i nīnau pinepine ʻia e pili ana i ka Ebstein's anomaly

Hiki i nā kānaka me ka Ebstein's anomaly ke hoʻomaʻamaʻa?

Hiki i ka hapa nui o nā kānaka me ka Ebstein's anomaly ke hoʻomaʻamaʻa, akā ʻo ke ʻano a me ka ikaika e hilinaʻi ana i ka nui o kou maʻi. Hiki i kāu cardiologist ke kōkua iā ʻoe e ʻike i ka mea palekana no ʻoe. Hiki i nā kānaka he nui ke hana i nā hana maʻamau e like me ka hele wāwae, ka ʻauʻau, a i ʻole ka holo paikikala, ʻoiai pono paha nā poʻe ʻē aʻe ke pale aku i nā haʻuki ikaika loa.

Hiki i nā wāhine me ka Ebstein's anomaly ke loaʻa nā keiki?

ʻAe, hiki i nā wāhine he nui me ka Ebstein's anomaly ke loaʻa nā hāpai holomua. Eia naʻe, hoʻokomo ka hāpai ʻana i ka pilikia hou aku i kou naʻau, no laila pono ʻoe i ka nānā kūikawā e kāu cardiologist a me kahi loea hāpai kiʻekiʻe. ʻO ke kī ka hoʻolālā mua a me ka hana pū me kāu hui lapaʻau.

E ʻoi aku ka ʻino o ka Ebstein's anomaly i ka manawa?

Hiki i ka Ebstein's anomaly ke loli i ka manawa, akā ʻaʻole kēia manaʻo mau e ʻoi aku ka ʻino. Noho paʻa kekahi poʻe no nā makahiki a i ʻole nā ​​​​ʻumi makahiki. Kōkua nā nānā maʻamau i kāu kauka e nānā i nā loli a hoʻoponopono i kāu lapaʻau inā pono. Hoʻopakele pinepine ka ʻike mua ʻana i nā loli i nā pilikia koʻikoʻi.

He mea hoʻoilina anei ka Ebstein's anomaly?

ʻOiai ka hapa nui o nā hihia o ka Ebstein's anomaly e hana maʻamau, hiki ke loaʻa kahi ʻāpana genetic. Inā loaʻa iā ʻoe ka Ebstein's anomaly, he manawa iki ke kiʻekiʻe e hiki ai i kāu mau keiki ke loaʻa kekahi ʻano o ka hemahema naʻau i hānau ʻia. Hiki i ka ʻōlelo aʻo genetic ke kōkua iā ʻoe e hoʻomaopopo i kou mau pilikia kikoʻī.

Pehea ka lōʻihi o ke ola ʻana o nā kānaka me ka Ebstein's anomaly?

Ua hoʻomaikaʻi nui ka manaʻo no nā kānaka me ka Ebstein's anomaly me ka mālama lapaʻau hou. He nui nā kānaka me nā ʻano māmā a waena paha e ola ana i nā ola lōʻihi maʻamau. ʻOiai nā poʻe me nā ʻano koʻikoʻi loa e hana maikaʻi pinepine me ka lapaʻau pono. ʻO kāu wānana pilikino e hilinaʻi ana i ka nui o kou maʻi a me ka maikaʻi o kou pane ʻana i ka lapaʻau.