He aha ka maʻi ʻaʻai Embryonal? Nā hōʻailona, nā kumu, a me ka mālama

ʻO nā maʻi ʻaʻai embryonal he mau maʻi ʻaʻai kakaʻikahi e ulu mai nā sela i hoʻopau ʻole ʻia i ka wā o ka ulu ʻana. Hoʻopili pinepine kēia mau maʻi ʻaʻai i nā pēpē a me nā keiki ʻōpio, ʻoiai hiki ke loaʻa i nā mākua.

E noʻonoʻo i kēia mau maʻi ʻaʻai e like me ka ulu ʻana mai nā sela i “paʻa” i kā lākou kaʻina hana ulu. Ma kahi o ka ulu ʻana i nā sela kūikawā maʻamau, noho lākou i kahi kūlana ʻōpio a hoʻomaka e hoʻonui me ka manaʻo ʻole. ʻOiai paha he manaʻo weliweli ka inoa, hiki i ka hoʻomaopopo ʻana i kēia mau maʻi ʻaʻai ke kōkua iā ʻoe e hoʻokele i kēia kūlana paʻakikī me ka hilinaʻi hou aku.

He aha nā maʻi ʻaʻai embryonal?

ʻO nā maʻi ʻaʻai embryonal he mau maʻi ʻaʻai e ulu mai nā sela mua e like me nā mea i loaʻa i nā ʻembryo e ulu ana. Manaʻo ʻia e ulu kēia mau sela i nā ʻano kikoʻī o nā pūnaewele, akā ua hoʻopilikia kekahi mea i kēlā kaʻina hana maʻamau.

ʻO nā ʻano maʻamau loa e komo pū me ka medulloepithelioma, ependymoblastoma, a me nā maʻi ʻaʻai atypical teratoid/rhabdoid (AT/RT). Loaʻa i kēlā me kēia ʻano kona mau ʻano ponoʻī, akā ua kaʻana like lākou a pau i ka hiʻohiʻona maʻamau o ka ulu ʻana mai nā sela ʻole i hoʻomākaukau ʻia. ʻO ka hapa nui o nā maʻi ʻaʻai embryonal e ulu ana i ka ʻōnaehana hoʻomaha waena, ʻoi aku hoʻi i ka lolo, ʻoiai hiki ke ʻike ʻia i nā ʻāpana ʻē aʻe o ke kino.

Ua hoʻokomo ʻia kēia mau maʻi ʻaʻai ma ke ʻano he mau maʻi ʻaʻai kiʻekiʻe, ʻo ia hoʻi, ulu wikiwiki lākou. Eia naʻe, ʻo ia hoʻi ke pane pinepine lākou i ka mālama ʻana i ka wā e hopu koke ʻia ai.

He aha nā hōʻailona o nā maʻi ʻaʻai embryonal?

He ʻano like ʻole nā hōʻailona o nā maʻi ʻaʻai embryonal ma muli o kahi o ka maʻi ʻaʻai a me ka nui o kona ulu ʻana. ʻOiai ke hoʻopili pinepine nei kēia mau maʻi ʻaʻai i ka lolo a me ka ʻōnaehana hoʻomaha waena, pili ka nui o nā hōʻailona i ka piʻi ʻana o ke kaomi i loko o ke poʻo.

Eia nā hōʻailona maʻamau loa āu e ʻike ai:

• Poʻoʻino mau e ʻoi aku ka ʻino ma mua o ka manawa, ʻoi aku hoʻi i ke kakahiaka
• Nausea a me ka luaʻi, ʻoi aku ka nui i ka ala ʻana
• Loli i ka ʻano, ʻano, a i ʻole ka hana naʻauao
• Nā hopena a i ʻole nā neʻe kūpono ʻole
• Nā pilikia kaulike a i ʻole ka pilikia e hele wāwae ana
• Loli ʻana o ka ʻike a i ʻole ka ʻike pālua
• Hiamoe nui a i ʻole ka luhi
• Nā hoʻopaneʻe hoʻomohala i nā keiki

I nā pēpē, hiki iā ʻoe ke ʻike i nā hōʻailona hou aku e like me ke poʻo nui loa, nā wahi palupalu i puhi ʻia ma ke poʻo, a i ʻole ka huhū nui. Ke ulu nei kēia mau hōʻailona no ka mea, hana ka tumor i ka kaomi i loko o ke poʻo, e hoʻopilikia ana i ka hana maʻamau o ka lolo.

ʻAʻole pinepine, hiki i kekahi mau keiki ke ʻike i ka nāwaliwali ma kekahi ʻaoʻao o ke kino, nā pilikia ʻōlelo, a i ʻole nā pilikia me ka hoʻonohonoho ʻana. ʻO ka mea nui e hoʻomanaʻo ai, ʻo ia ka hoʻomohala mālie ʻana o nā hōʻailona, no laila hiki ke palupalu nā loli i ka hoʻomaka.

He aha ka mea e hoʻokumu ai i nā tumor embryonal?

ʻAʻole maopopo loa ke kumu o nā tumor embryonal, kahi e hiki ai ke manaʻo huhū ke ʻimi nei ʻoe i nā pane. ʻO ka mea a mākou e ʻike nei, ʻo ia ka hopena o kēia mau tumor mai nā loli genetic i hana ʻia i ka wā hoʻomohala mua, e hoʻokumu ana i ka ulu ʻana o nā sela ma mua o ka ulu pono ʻana.

ʻIke ʻia ka hapa nui o nā tumor embryonal e ulu kūʻokoʻa, me ka ʻole o kekahi kumu maopopo a i ʻole kumu hiki ke pale ʻia. ʻO ia hoʻi, ʻaʻohe mea āu i hana ai a i ʻole ʻaʻole i hana i ka hoʻokumu ʻana i ka tumor. He hui pū wale nō ia o nā kumu genetic i hana ʻia i ka wā hoʻomohala.

Eia naʻe, ua ʻike nā mea noiʻi i kekahi mau kūlana genetic e hoʻonui iki i ka pilikia. ʻO kēia mau mea e komo pū ana me ka Li-Fraumeni syndrome, neurofibromatosis, a me kekahi mau abnormalities chromosome. ʻOiai me kēia mau kūlana, ʻaʻole ka nui o nā kānaka e ulu i nā tumor embryonal.

ʻAʻole i ʻike ʻia kahi kuleana nui o nā kumu kūlohelohe i ka hoʻoulu ʻana i kēia mau ʻaʻai. ʻAʻole like me kekahi mau maʻi kanesa makua, ʻaʻole pili nā ʻaʻai embryonal i nā ʻano nohona, ka ʻai, a i ʻole ka hōʻike ʻana i nā kemika a i ʻole ka radiation i ka wā kamaliʻi.

I ka wā hea ʻoe e ʻike ai i ke kauka no ka manaʻo ʻia o ka ʻaʻai embryonal?

Pono ʻoe e hoʻokaʻaʻike koke i kāu kauka inā ʻike ʻoe i nā hōʻailona mau loa e hopohopo nei ʻoe, ʻoi aku hoʻi inā ʻoi aku ka nui o ia mau mea ma mua o ka manawa. ʻOiai he nui nā poʻo ʻeha a me nā loli ʻano ma nā keiki he mau wehewehe maʻalahi, ʻoi aku ka maikaʻi o ka nānā ʻana me kahi limahana olakino.

E ʻimi i ka mālama ola kino koke inā loaʻa i kāu keiki nā poʻo ʻeha nui me ka luaʻi, nā loli koke i ka ʻike, nā hoʻoulu ʻana, a i ʻole ka paʻakikī e noho ala. Hiki i kēia mau hōʻailona ke hōʻike i ka piʻi ʻana o ke kaomi i loko o ka lolo, kahi e pono ai ka loiloi koke.

Mai kali inā ʻike ʻoe i nā hōʻailona he nui e hana pū ana, e like me nā poʻo ʻeha i hui pū ʻia me nā pilikia kaulike a i ʻole nā ​​loli ʻike. Hiki i kāu pediatrician ke hana i ka loiloi mua a hoʻouna iā ʻoe i kahi loea inā pono.

E hoʻomanaʻo ʻia ka ʻike mua pinepine e alakaʻi i nā hopena maikaʻi aʻe. ʻOiai inā lilo kāu mau hopohopo i mea ʻoi aku ka liʻiliʻi, ʻoi aku ka maikaʻi o ka loaʻa ʻana o ka maluhia o ka manaʻo.

He aha nā kumu pilikia no nā ʻaʻai embryonal?

ʻOi aku ka nui o nā ʻaʻai embryonal me ka ʻole o nā kumu pilikia i ʻike ʻia, ʻo ia hoʻi hiki iā lākou ke hoʻopili i kekahi keiki me ka nānā ʻole i ka mōʻaukala ʻohana a i ʻole ke ʻano nohona. Eia naʻe, aia kekahi mau mea e hoʻonui iki i ka hiki ke hoʻomohala i kēia mau ʻaʻai.

ʻO ka mea nui loa ka makahiki. ʻOi aku ka nui o kēia mau ʻaʻai i nā pēpē a me nā keiki ma lalo o 5 mau makahiki, me ka nui loa o ka hanana i ka makahiki mua o ke ola. Ma hope o 5 mau makahiki, emi nui ka pilikia.

Hiki i kekahi mau kūlana genetic ke hoʻonui i ka pilikia, ʻoiai ʻo kēia wale nō kahi hapa liʻiliʻi o nā hihia:

• Syndroma Li-Fraumeni
• Neurofibromatosis type 1
• Syndroma Gorlin
• Syndroma Turcot
• Kekahi mau hemahema chromosome

ʻO ka loaʻa ʻana o ka mōʻaukala ʻohana o nā tumors lolo e hiki ke hoʻonui iki i ka pilikia, akā ʻo ka hapa nui o nā keiki me nā tumors embryonal ʻaʻohe mōʻaukala ʻohana o ka maʻi kanesa. He mea nui e hoʻomaopopo ʻaʻole naʻe, ʻoiai me kēia mau kumu pilikia, ʻo ka ulu ʻana o kahi tumor embryonal he mea maʻamau loa nō.

He mea liʻiliʻi ka hana a ke kāne a me ka wahine, me nā keikikāne e ʻoi aku ka nui o ka loaʻa ʻana o kekahi mau ʻano o nā tumors embryonal ma mua o nā kaikamahine. Eia naʻe, he mea liʻiliʻi kēia ʻokoʻa a ʻaʻole pono e hoʻopilikia nui.

He aha nā pilikia hiki ke loaʻa i nā tumors embryonal?

Hiki i nā pilikia mai nā tumors embryonal ke kū mai i ka tumor ponoʻī, kona wahi, a i ʻole mai ka mālama ʻana. Hiki i ka hoʻomaopopo ʻana i kēia mau mea hiki ke kōkua iā ʻoe e hoʻomākaukau a hana pili pono me kāu hui lapaʻau e hoʻemi i nā pilikia.

ʻO ka wahi o ka tumor pinepine e hoʻoholo i ke ʻano o nā pilikia āu e hālāwai ai. Hiki i nā tumors lolo ke hoʻonui i ke kaomi intracranial, e alakaʻi ana i nā headaches, nā pilikia ʻike, a me nā loli i ka ʻike. Inā hoʻopilikia ka tumor i nā māhele lolo kikoʻī, hiki ke hoʻopilikia i ka ʻōlelo, ka neʻe ʻana, a i ʻole ka hana cognitive.

Eia nā pilikia maʻamau loa e makaʻala ai:

• Hydrocephalus (ka hōʻiliʻili wai i loko o ka lolo)
• Nā hoʻoulu a i ʻole epilepsy
• Nā hoʻopanee cognitive a i ʻole developmental
• Nā pilikia hana motor
• Nā pilikia ʻike a i ʻole lohe
• Nā hoʻopilikia hormonal
• Nā pilikia ʻōlelo a me ka ʻōlelo

Hiki i nā pilikia pili i ka mālama ʻana ke komo pū me nā hopena mai ka chemotherapy, e like me ka hoʻonui ʻana i ka pilikia maʻi, ka nausea, a i ʻole ka nalowale o ka lauoho. ʻO ka radiation therapy, i ka wā i hoʻohana ʻia, hiki ke hoʻokumu i ka luhi a me nā loli ʻili, a hiki ke hoʻopilikia i ka ulu ʻana o ka lolo maʻamau i nā keiki liʻiliʻi loa.

ʻO nā pilikia o ka ʻoki kino, ʻoiai he kakaikahi, hiki ke komo pū me ke kahe koko, ka maʻi, a i ʻole nā ​​hoʻololi neurological manawa pōkole. E kūkākūkā pono kāu hui ʻoki kino i kēia mau pilikia ma mua o kekahi kaʻina hana.

ʻO ka ʻoiaʻiʻo maikaʻi, hiki ke hoʻokele pono ʻia nā pilikia he nui me ka mālama lapaʻau kūpono a me nā lawelawe hoʻōla hou. ʻO ka hoʻomaka koke ʻana e alakaʻi pinepine i nā hopena maikaʻi loa i ka wā lōʻihi.

Hiki ke pale ʻia nā tumors embryonal?

ʻAʻole maikaʻi, ʻaʻohe ala i ʻike ʻia e pale aku ai i nā tumors embryonal, ʻoiai ke ulu mai lākou mai nā hoʻololi genetic i hana kūpono ʻole i ka wā ulu mua. Hiki i kēia ke manaʻo ʻoluʻolu ʻole, akā he mea nui ia e hoʻomaopopo ʻaʻole i hana ʻia kēia mau tumors e kekahi mea hiki ke pale ʻia.

ʻAʻole like me kekahi mau kanesa makua hiki ke pale ʻia ma o nā hoʻololi ʻano ola, ʻike ʻia nā tumors embryonal he mau hanana kūpono ʻole. ʻAʻole i hana ʻia lākou e nā kumu kūlohelohe, ka ʻai, a i ʻole nā ​​hana i ka wā hāpai.

No nā ʻohana me nā syndromes genetic i ʻike ʻia e hoʻonui i ka pilikia, hiki i ka ʻōlelo aʻo genetic ke hāʻawi i ka ʻike waiwai e pili ana i nā ʻano kiaʻi a me nā ʻano ʻike mua. Eia naʻe, ʻoiai i kēia mau hihia, ʻaʻohe ala e pale ai i ka ulu ʻana o nā tumors.

ʻO ka mea nui loa āu e hiki ai ke hana, ʻo ia ke mālama i nā hōʻailona hiki ke loaʻa a ʻimi koke i ka mālama lapaʻau inā piʻi nā manaʻo. ʻO ka ʻike mua ʻana a me ka mālama ʻana ke mau mea hana maikaʻi loa a mākou e loaʻa ai no ka loaʻa ʻana o nā hopena maikaʻi.

Pehea ka ʻike ʻia ʻana o nā tumors embryonal?

ʻO ka ʻike ʻana i nā tumors embryonal e komo pinepine ana i nā ʻanuʻu a me nā haʻawina kiʻi. E hoʻomaka kāu kauka me ka moʻolelo lapaʻau kikoʻī a me ka nānā kino, me ka nānā nui ʻana i ka hana neurological a me nā hōʻailona āu i ʻike ai.

ʻO ka mea hana ʻike mua nui loa ʻo ia ka MRI scan o ka lolo a me ke kua. Kūleʻa kēia kiʻi kikoʻī i nā kauka e ʻike i kahi o ka tumor, ka nui, a me ka pilina me nā ʻano a puni. I kekahi manawa, hiki ke hoʻohana ʻia ka CT scan i ka hoʻomaka, ʻoiai i nā kūlana pilikia.

Inā hōʻike ka mea hana kiʻi i kahi ʻōpū, ʻo ka hana aʻe maʻamau ka biopsy a i ʻole ka wehe ʻana i ka ʻōpū ma ka ʻoki. I loko o kēia kaʻina hana, nānā ʻia nā laʻana o nā pūnaewele ma lalo o ka microscope e hoʻoholo i ke ʻano pololei o ka ʻōpū embryonal a hoʻolālā i ka mālama kūpono.

Hiki ke hoʻohui ʻia nā hoʻokolohua hou e like me ka lumbar puncture e nānā i nā cell kanesa i loko o ka wai o ke kua, nā hoʻokolohua koko e loiloi i ke olakino holoʻokoʻa, a i kekahi manawa nā hoʻokolohua genetic kūikawā o ka ʻōpū. Kūkulu kēia mau hoʻokolohua i kahi kiʻi piha o nā ʻano o ka ʻōpū.

ʻO ka hana ʻikepili holoʻokoʻa e lawe pinepine i nā lā he nui a hiki i nā hebedoma, ma muli o ka paʻakikī o ka hihia. E hoʻomaopopo ana kāu hui lapaʻau iā ʻoe i loko o kēia kaʻina hana a pane i nā nīnau āu e loaʻa ai ma ke ala.

He aha ka mālama no nā ʻōpū embryonal?

ʻO ka mālama ʻana no nā ʻōpū embryonal e pili pinepine ana i ka hui ʻana o ka ʻoki, chemotherapy, a i kekahi manawa ka radiation therapy. ʻO ka papahana mālama kūikawā e pili ana i ke ʻano o ka ʻōpū, kahi, ka nui, a me ka makahiki o ka mea maʻi a me ke olakino holoʻokoʻa.

ʻO ka ʻoki ʻana ka hana mua maʻamau ke hiki. ʻO ka pahuhopu ke wehe i ka nui o ka ʻōpū i hiki ke palekana ʻia ʻoiai e mālama ana i ka hana maʻamau o ka lolo. I kekahi manawa ʻaʻole hiki ke wehe piha ʻia ma muli o kahi o ka ʻōpū, akā ʻo ka wehe ʻana ʻāpana wale nō ke kōkua nui.

Hoʻomau pinepine ʻia ka chemotherapy ma hope o ka ʻoki ʻana e hoʻopili i nā cell kanesa i koe. ʻO nā lāʻau lapaʻau kūikawā a me ka lōʻihi e pili ana i ke ʻano o ka ʻōpū a me nā pilikia. Hoʻomanawanui maikaʻi ka hapa nui o nā keiki i ka chemotherapy, ʻoiai he mau hopena ʻaoʻao e like me ka nausea, ka luhi, a me ka hoʻonui ʻia o ka pilikia o ka maʻi.

Eia kahi mea e like ai ka papahana mālama maʻamau:

1. ʻOki mua e wehe i ka ʻōpū
2. Wā hoʻōla me ka mālama kōkua
3. Nā pōʻai chemotherapy ma luna o nā mahina he nui
4. Nānā mau me nā MRI scans
5. Nā lawelawe hoʻōla e like me ka pono
6. Mālama hoʻomau lōʻihi

Hoʻohana ʻia ka radiotherapy ma ke ʻano koho, ʻoi aku hoʻi i nā keiki liʻiliʻi loa, ma muli o nā hopena hiki ke loaʻa i ka ulu ʻana o ka lolo. I ka hoʻohana ʻana, hoʻolālā pono ʻia e hoʻopili i ka wahi o ka maʻi ʻaʻai me ka hoʻemi ʻana i ka hōʻike ʻana i nā pūnaewele olakino.

I ka wā o ka mālama ʻana, e hoʻoponopono ka mālama kākoʻo i nā hopena ʻaoʻao, mālama i ka meaʻai, pale i nā maʻi, a kākoʻo i ka maikaʻi holoʻokoʻa. Hiki paha kēia ke komo i nā lāʻau lapaʻau anti-nausea, ke kākoʻo meaʻai, a me ka physiotherapy.

Pehea ʻoe e hoʻokele ai i ka mālama ma ka home i ka wā o ka mālama ʻana?

ʻO ka hoʻokele ʻana i ka mālama ma ka home i ka wā o ka mālama ʻana i ka maʻi embryonal tumor e pili ana i ka hana ʻana i kahi ʻano kākoʻo ʻoiai e hahai pono ana i nā ʻōlelo a kāu hui lapaʻau. He mea nui kāu kuleana ma ke ʻano he mea mālama i ka kōkua ʻana i ka loaʻa ʻana o ka hopena maikaʻi loa.

Liʻiliʻi ka pale ʻana i ka maʻi i ka wā o ka chemotherapy i ka wā i nāwaliwali ai ka ʻōnaehana pale. ʻO ia hoʻi ka holoi pinepine ʻana i nā lima, ka pale ʻana i nā wahi piha, a me ka mālama ʻana i nā lāʻau lapaʻau i ʻōlelo ʻia e like me ka ʻae ʻana o kāu hui oncology.

Eia nā hana mālama home nui e kau i ka manaʻo:

• Mālama i ka maʻemaʻe maikaʻi a me nā wahi noho maʻemaʻe
• Nānā i ka mahana a hōʻike koke i nā fiva
• Hōʻoia i ka meaʻai a me ka wai lawa
• Hoʻokele i nā lāʻau lapaʻau e like me ke kauoha
• Nānā i nā hōʻailona a me nā hopena ʻaoʻao
• Mālama i nā papa moe maʻamau
• Hāʻawi i ke kākoʻo manaʻo a me ka maʻamau i ka hiki

Hiki ke paʻakikī ka meaʻai i ka wā o ka mālama ʻana, ʻoi aku hoʻi inā he pilikia ka nausea. ʻOi aku ka maikaʻi o nā meaʻai liʻiliʻi a pinepine ma mua o nā mea nui. Hana pū me kahi meaʻai inā pono e hōʻoia i ka lawa o ka calorie a me ka meaʻai.

Mālama i kahi moʻolelo o kēlā me kēia lā o nā hōʻailona, nā lāʻau lapaʻau, a me nā hopohopo. Kūkulu kēia ʻike i kāu hui lapaʻau e hoʻoponopono i ka mālama ʻana e like me ka pono a hopu i nā pilikia hiki ke loaʻa koke.

Mai kānalua e hoʻokaʻaʻike i kāu hui lapaʻau me nā nīnau a i ʻole nā ​​hopohopo. Makemake lākou e lohe mai iā ʻoe e pili ana i kahi mea liʻiliʻi ma mua o ka nalo ʻana i kahi hōʻailona nui.

Pehea ʻoe e hoʻomākaukau ai no nā hālāwai me ke kauka?

ʻO ka hoʻomākaukau ʻana no nā hālāwai me ke kauka i ka wā o ka mālama ʻana i nā ʻōpū embryonal e kōkua i ka hōʻoia ʻana e loaʻa iā ʻoe ka pono loa mai kēlā me kēia kipa a ʻaʻole e poina i nā nīnau koʻikoʻi a i ʻole nā ​​manaʻo hopohopo. ʻO ka hoʻomākaukau maikaʻi e kōkua pū i kāu hui lapaʻau e hāʻawi i ka mālama maikaʻi loa.

Ma mua o kēlā me kēia hālāwai, e kākau i lalo i kekahi mau hōʻailona a i ʻole nā ​​hoʻololi āu i ʻike ai mai ka kipa hope loa. E hoʻokomo i nā kikoʻī e pili ana i ka manawa, ka nui, a me kekahi mea e hoʻomaikaʻi ai i nā hōʻailona a i ʻole e ʻoi aku ka maikaʻi. E kōkua kēia ʻike i nā kauka e hahai i ka holomua a hoʻoponopono i ka mālama inā pono.

E lawe mai i ka papa inoa piha o nā lāʻau āpau, me nā lāʻau lapaʻau ma luna o ka pākaukau a me nā mea hoʻohui. E lawe mai pū i nā moʻolelo lapaʻau a i ʻole nā ​​hualoaʻa hoʻokolohua mai nā mea hāʻawi ʻē aʻe, ʻoiai inā ʻoe e ʻike ana i nā loea he nui.

Eia nā mea e lawe mai i kēlā me kēia hālāwai:

• ʻO ka moʻolelo o nā hōʻailona a i ʻole nā ​​memo
• Papa inoa o nā lāʻau lapaʻau i kēia manawa
• Nā kāleka ʻinikua a me ka hōʻike pilikino
• Papa inoa o nā nīnau a me nā manaʻo hopohopo
• Nā hualoaʻa hoʻokolohua ma mua a i ʻole nā ​​kiʻi
• ʻIke pilikia pilikia

E hoʻomākaukau i nā nīnau kikoʻī e pili ana i ka holomua o ka mālama ʻana, nā hopena ʻaoʻao, nā palena hana, a me ka mea e manaʻo ai ma hope. Mai hopohopo e nīnau i nā nīnau he nui - makemake kāu hui lapaʻau e ʻike pono ʻoe.

E noʻonoʻo e lawe mai i kahi hoaaloha hilinaʻi a i ʻole hoa ʻohana i nā hālāwai, ʻoi aku hoʻi no nā kūkākūkā koʻikoʻi e pili ana i nā hoʻolālā mālama. Hiki iā lākou ke kōkua iā ʻoe e hoʻomanaʻo i ka ʻike a hāʻawi i ke kākoʻo manaʻo.

Inā hiki, e hōʻea i kekahi mau minuke ma mua e hoʻopiha i kekahi mau pepa a hōʻiliʻili i kou mau manaʻo ma mua o ka hoʻomaka ʻana o ka hālāwai.

He aha ka mea nui e lawe aku e pili ana i nā ʻōpū embryonal?

ʻO ka mea nui loa e hoʻomaopopo e pili ana i nā ʻōpū embryonal, ʻoiai he mau kūlana koʻikoʻi e pono ai ka mālama koke, nui nā keiki e loaʻa nā hopena maikaʻi me ka mālama kūpono. He mau ʻōpū maʻamau kēia mau ʻōpū, ʻoi aku ka maʻalahi o ka mālama ʻana, ʻoi aku ka maʻalahi o ka ʻike ʻana.

E hoʻomanaʻo ʻaʻole ʻoe i hana hewa a ʻaʻole hiki ke pale aku i ka loaʻa ʻana o kahi ʻōpū embryonal. Ke ulu kūlohelohe kēia mau ʻōpū mai nā loli genetic i ka wā o ka hoʻomohala mua, a ʻaʻohe mea hewa o kekahi.

Ua holomua nui ka mālama ʻana i nā makahiki i hala, a nui nā keiki e ola ana i nā ola maʻamau a olakino ma hope o ka mālama ʻana. ʻOiai he paʻakikī paha ke ala, ʻaʻole ʻoe wale nō - loaʻa nā hui lapaʻau piha a me nā lawelawe kākoʻo e kōkua iā ʻoe ma kēlā me kēia ʻanuʻu.

E kālele i ka lawe ʻana i nā mea i hoʻokahi lā i ka manawa a me ka hana pili pono me kāu hui lapaʻau. E nīnau i nā nīnau, e ʻimi i ke kākoʻo ke pono ʻoe, a e hoʻomanaʻo he mau hoa ikaika ka manaʻolana a me ka hoʻoholo i kēia huakaʻi.

Nā nīnau pinepine e pili ana i nā ʻōpū embryonal

He kanesa mau nā ʻōpū embryonal?

ʻAe, manaʻo mau ʻia he malignant a he kanesa paha nā ʻōpū embryonal. Akā naʻe, ʻaʻole kēia manaʻo ʻaʻole hiki ke mālama ʻia me ka holomua. Nui nā ʻōpū embryonal e pane maikaʻi i ka mālama ʻana, a ua holomua nui ka prognosis me nā ʻano lapaʻau hou. ʻO ke kī ka loaʻa ʻana o ka mālama wikiwiki a kūpono mai kahi hui oncology pediatric akamai.

Pehea ka lōʻihi o ka mālama ʻana no nā ʻōpū embryonal?

ʻOkoʻa ka lōʻihi o ka mālama ʻana ma muli o ke ʻano kikoʻī o ka ʻōpū a me ka hoʻolālā mālama, akā maʻamau ia mai 6 mau mahina a 2 mau makahiki. Hoʻopili kēia i ka ʻoki kino, nā pōʻai chemotherapy, a me nā manawa hoʻōla. E hāʻawi kāu hui oncology i kahi manawa kikoʻī e pili ana i kou kūlana pilikino. E hoʻomanaʻo ʻaʻole ʻo ka mālama lōʻihi e manaʻo ai i nā hopena ʻino - hōʻike pinepine ia i kahi ala kūpono e hōʻoiaʻiʻo ai i nā hopena maikaʻi loa.

Hiki i nā ʻōpū embryonal ke hoʻi mai ma hope o ka mālama ʻana?

ʻOiai hiki ke hoʻi hou mai ke kanesa, nui nā keiki me nā ʻōpū embryonal e noho nele i ke kanesa ma hope o ka mālama holomua. E nānā pono kāu hui lapaʻau me nā hālāwai kūkākūkā ma hope a me nā haʻawina kiʻi e ʻike koke i nā loli. Hoʻololi ka pilikia o ka hoʻi hou ʻana ma muli o ke ʻano o ka ʻōpū a me nā mea ʻē aʻe, hiki i kāu kauka ke kūkākūkā kikoʻī me ʻoe.

E hiki anei i kaʻu keiki ke hele i ke kula i ka wā o ka mālama ʻana?

Hiki i nā keiki he nui ke hoʻomau i kekahi ʻano o ke kula i ka wā o ka mālama ʻana, ʻoiai paha e pono ke hoʻololi. Loaʻa nā koho e like me ke kula ma ka haukapila, ke aʻo ʻana ma ka home, a i ʻole ke hele kula i hoʻololi ʻia ke ʻae ʻia ka hana pale. E hana pū kāu hui lapaʻau me ʻoe a me ke kula e hana i kahi hoʻolālā hoʻonaʻauao palekana a kūpono hoʻi e hoʻomaopopo i ke olakino o kāu keiki ʻoiai e mālama ana i nā manawa aʻo.

He aha nā lawelawe kākoʻo i loaʻa no nā ʻohana e hana ana me nā ʻōpū embryonal?

Loaʻa maʻamau nā lawelawe kākoʻo piha ma o nā kikowaena kanesa pediatric, me nā limahana hanauna, nā loea ola keiki, nā mea ʻai, a me nā poʻe loea olakino noʻonoʻo. Hāʻawi pū kekahi mau haukapila i nā hui kākoʻo ʻohana, nā ʻōlelo aʻo kālā, a me nā pilina i nā kumuwaiwai kaiāulu. Mai kānalua e noi i kāu hui lapaʻau e pili ana i nā lawelawe i loaʻa - ua hoʻolālā ʻia lākou e kōkua i kou ʻohana holoʻokoʻa i kēia manawa paʻakikī.