He aha ka FSGS? Nā Hōʻailona, Nā Kumu, & ka Lapaʻau

ʻO FSGS ka pōkole no ka Focal Segmental Glomerulosclerosis, kahi maʻi o ka puʻupaʻa e pili ana i nā kānana liʻiliʻi i loko o kou puʻupaʻa i kapa ʻia ʻo glomeruli. I ka wā e loaʻa ai iā ʻoe ka FSGS, e ulu ana ka ʻili ʻeha i kekahi mau ʻāpana o kēia mau kānana, e ʻoi aku ka paʻakikī o ka hoʻomaʻemaʻe ʻana o kou puʻupaʻa i nā ʻōpala a me ka wai keu mai kou koko.

Hiki i kēia kūlana ke manaʻo nui i ka wā mua āu e lohe ai, akā ʻo ka hoʻomaopopo ʻana i nā mea e hana nei i loko o kou kino e kōkua iā ʻoe e manaʻo hou aku i ka mana. Hoʻopili ka FSGS i nā kānaka o nā makahiki a pau, ʻoiai ʻoi aku ka maʻamau i kekahi mau hui, a me ka mālama pono, nui nā kānaka e ola ana i nā ola piha a hana nui ʻia ʻoiai e hoʻokele ana i kēia kūlana.

He aha ka FSGS?

ʻO FSGS kahi ʻano o ka maʻi puʻupaʻa kahi e ulu ai ka ʻili ʻeha i nā wahi kikoʻī o nā ʻāpana kānana o kou puʻupaʻa. E noʻonoʻo i kou puʻupaʻa me nā miliona o nā kānana liʻiliʻi i kapa ʻia ʻo glomeruli e hoʻokaʻawale i nā ʻōpala mai nā mea maikaʻi e pono ai kou kino e mālama.

Hoʻākāka pono ka inoa i nā mea e hana nei: ʻo

• Kūpīpī a i ʻole e pehu ana ka mimi ʻaʻole e hala
• Pehu i kou mau wāwae, kuʻekuʻe wāwae, nā wāwae, a i ʻole a puni kou mau maka
• Hoʻonui kaumaha mai ka wai e mālama ʻia ana
• ʻOi aku ka luhi ma mua o ka maʻamau
• Nalowale o ka makemakeʻai
• Ke kiʻekiʻe o ke koko
• Ke koko i loko o kou mimi (ʻaʻole pinepine)

ʻAʻole ʻike kekahi poʻe me ka FSGS māmā i kekahi hōʻailona i ka hoʻomaka ʻana, ʻo ia ke kumu i ʻike ʻia ai ke kūlana i kekahi manawa i ka wā o nā hoʻokolohua koko a mimi maʻamau. Hoʻomaka pinepine ka pehu a hiki ke ʻike ʻia ma ke kakahiaka a ma hope o kou noho ʻana a kū ʻana no nā manawa lōʻihi.

I nā pae holomua, hiki iā ʻoe ke ʻike i ka pōkole o ka hanu, ka ʻōpū, a i ʻole nā ​​hoʻololi i ka pinepine o kou mimi ʻana. Hoʻomohala ʻia kēia mau hōʻailona i ka wā e hoʻoemi nui ʻia ai kāu hana o ka puʻupaʻa.

He aha nā ʻano o ka FSGS?

ʻElua mau ʻano nui o ka FSGS: mua a lua. Hana ʻia ka FSGS mua i ka wā e ulu ai ka maʻi me ka ʻole o kekahi kūlana kumu ʻē aʻe e hana ana.

Hoʻokaʻawale hou ʻia ka FSGS mua i nā ʻano genetic a me nā ʻano genetic ʻole. Holo ka ʻano genetic i nā ʻohana a hana ʻia e nā loli i nā gene kikoʻī e hoʻopilikia i ka hana ʻana o kāu kānana puʻupaʻa. Hoʻomohala ʻia ka ʻano genetic ʻole no nā kumu i ʻike ʻole ʻia a hiki i kēia manawa.

Hana ʻia ka FSGS lua i ka wā e hōʻino ai kekahi kūlana a i ʻole kumu i kou mau puʻupaʻa a alakaʻi i ke ʻano o ka ʻili. Hiki ke hana ʻia kēia ʻano e nā maʻi e like me ka HIV, nā lāʻau lapaʻau, ka momona, a i ʻole nā ​​maʻi puʻupaʻa ʻē aʻe.

Aia nō hoʻi nā ʻano like ʻole o ka ʻili e hiki i nā kauka ke ʻike ma lalo o ka microscope, me ka hiolo ʻana, ka piko, ka perihilar, ka cellular, a me nā ʻano ʻē aʻe ʻole i kuhikuhi ʻia. Hiki i kāu kauka ke haʻi aku i kēia mau huaʻōlelo, akā ʻo ka mea nui loa ka pane ʻana o kāu hihia kikoʻī i ka mālama.

He aha ka mea e hana ai i ka FSGS?

ʻAʻole pinepine i ʻike ʻia ke kumu kūpono o ka FSGS mua, he mea hoʻonāukiuki kēia akā ʻaʻole ia he manaʻo ua hana hewa ʻoe. I nā hihia he nui, ua pili paha ia i nā pilikia me kou ʻōnaehana pale kino a i ʻole nā kumu genetic.

Ke holo nei ka FSGS i loko o nā ʻohana, ʻo ka mea maʻamau ka hopena o nā mutations i nā genes e kōkua ana i ka mālama ʻana i ke ʻano o kāu mau kānana puʻupaʻa. Hiki ke hoʻoili ʻia kēia mau hoʻololi genetic mai nā mākua, ʻoiai i kekahi manawa e kū mai lākou ma ke ʻano he mau mutations hou.

ʻOi aku ka maopopo o nā kumu o ka FSGS lua, ʻo ia hoʻi:

• Nā maʻi viral, ʻo ka HIV kekahi
• Nā lāʻau lapaʻau e like me ka heroin, lithium, a i ʻole nā ​​mea hoʻoemi ʻeha kiʻekiʻe
• Ka momona nui e kaumaha ana i kou mau puʻupaʻa
• Nephropathy reflux mai nā maʻi puʻupaʻa hou
• Ka maʻi sickle cell
• Nā maʻi puʻupaʻa ʻē aʻe a i ʻole nā ​​kūlana anatomical

I kekahi manawa e ulu mai ka FSGS ma hope o ka hoʻoikaika ʻia ʻana o kou mau puʻupaʻa e kekahi kūlana no ka manawa lōʻihi. ʻO ka mea maikaʻi, ke hopu ʻia ka FSGS lua i ka wā mua a mālama ʻia ke kumu kumu, hiki ke hoʻihoʻi ʻia ka pōʻino o ka puʻupaʻa.

I nā hihia kakaikahi, hiki ke hoʻonāukiuki ʻia ka FSGS e kekahi mau kūlana autoimmune a i ʻole he hopena ʻaoʻao o nā lāʻau lapaʻau i hoʻohana ʻia e mālama i ka maʻi kanesa. E hana kāu kauka e ʻike i nā kumu kumu e hiki ai ma ke ʻano he ʻāpana o kāu hoʻolālā mālama.

I ka wā e ʻike ai i ke kauka no ka FSGS?

Pono ʻoe e hoʻokaʻaʻike i kāu kauka inā ʻike ʻoe i ka mimi pěhu mau ʻaʻole e hala ma hope o hoʻokahi a ʻelua lā paha. ʻOiai hiki ke maʻamau ka mimi pěhu i kekahi manawa, hōʻike pinepine ka mimi ʻōpū mau i ka nalowale o ka protein.

ʻO ka pehu ʻaʻole e hoʻomaikaʻi me ka hoʻomaha ʻana he hōʻailona nui ʻē aʻe e kūkākūkā me kāu mea lawelawe olakino. ʻO kēia ke ʻoiaʻiʻo loa inā ʻike ʻoe i ka pehu a puni kou mau maka i ke kakahiaka a i ʻole inā paʻa kou mau kāmaʻa i ka wā maʻamau lākou e kūpono maikaʻi.

E ʻimi i ka mālama lapaʻau wikiwiki inā ʻike ʻoe i:

• Pūʻiwa nui a ʻāwīwī loa i kou helehelena, nā lima, a i ʻole nā wāwae
• Paʻakikī ke hanu a i ʻole ka ʻeha umauma
• Hoʻemi nui ʻia ka mimi
• Ke koko i loko o kou mimi me nā hōʻailona ʻē aʻe
• Luhi nui e hoʻopilikia ana i nā hana o kēlā me kēia lā

Inā he mōʻaukala ʻohana kāu o ka maʻi puʻupaʻa, pono ke haʻi aku i kāu kauka i kekahi loli mimi ʻoiai inā mehe mea liʻiliʻi lākou. Hiki i ka ʻike mua ke hana i kahi ʻokoʻa nui i ka hoʻokele pono ʻana i ka FSGS.

He aha nā kumu pilikia no ka FSGS?

Hiki i ka FSGS ke hoʻopilikia i kekahi, akā hiki i kekahi mau mea ke hoʻonui i kou hiki ke loaʻa i kēia kūlana. He kuleana ko ka makahiki, me ka ʻike pinepine ʻia ʻana o ka FSGS i nā keiki a me nā ʻōpio, ʻoiai hiki ke loaʻa i kēlā me kēia makahiki.

Hoʻopilikia kou ʻano lāhui i kou pilikia, me ka nui o ka poʻe ʻAmelika ʻApelika e loaʻa i ka FSGS ma mua o nā hui lāhui ʻē aʻe. Me he mea lā pili kēia pilikia nui i nā kumu genetic e hāʻawi ana i kekahi palekana mai kekahi mau maʻi akā hiki ke hoʻonui i ka pilikia o ka maʻi puʻupaʻa.

ʻO ka mōʻaukala ʻohana kekahi kumu pilikia nui, ʻoi aku hoʻi no nā ʻano genetic o ka FSGS. Inā loaʻa iā ʻoe nā hoahānau me ka maʻi puʻupaʻa, ʻoi aku inā hoʻomaka ia i ka wā ʻōpio, hiki ke kiʻekiʻe kou pilikia.

ʻO nā kumu pilikia ʻē aʻe:

• Loaʻa ka maʻi HIV
• Momona nui, ʻoi aku inā lōʻihi
• Mōʻaukala o ka hoʻohana ʻana i nā lāʻau lapaʻau, ʻoi aku hoʻi nā lāʻau intravenous
• Kekahi mau kūlana genetic e like me ka maʻi sickle cell
• ʻEha a i ʻole maʻi puʻupaʻa ma mua
• Hoʻohana lōʻihi o kekahi mau lāʻau lapaʻau

ʻAʻole ʻo ia hoʻi ke loaʻa iā ʻoe nā kumu pilikia e loaʻa nō ʻoe i ka FSGS, a nui nā kānaka me nā kumu pilikia he nui ʻaʻole loaʻa i kēia kūlana. Ma ka ʻaoʻao ʻē aʻe, loaʻa i kekahi poʻe ka FSGS me ka ʻole o nā kumu pilikia maopopo.

He aha nā pilikia hiki ke loaʻa i ka FSGS?

Hiki i ka FSGS ke alakaʻi i nā pilikia he nui, akā, ʻo ka ʻike ʻana iā lākou e kōkua iā ʻoe a me kāu kime mālama ola e nānā i nā hōʻailona mua a lawe i nā hana pale. ʻO ka mea nui loa ka pōʻino o ka puʻupaʻa e hiki ke alakaʻi i ka hāʻule ʻana o ka puʻupaʻa.

Hoʻomohala pinepine ʻia ke koko kiʻekiʻe me ka FSGS a hiki ke hana i kahi pōʻaiapuni kahi e hoʻopōʻino ai ke kaomi kiʻekiʻe i ka puʻupaʻa. ʻO ia ke kumu e lilo ai ke kaohi koko i ʻāpana nui o kāu papa hana lapaʻau.

ʻO nā pilikia maʻamau āu e ʻike ai:

• Nephrotic syndrome me ka nalowale nui o ka protein a me ka pehu
• Nā kiʻekiʻe o ka cholesterol
• Hoʻonui ʻia ka pilikia o nā clots koko
• ʻOi aku ka maʻalahi i nā maʻi
• Ka maʻi iwi mai nā loli hana puʻupaʻa
• Anemia i ka emi ʻana o ka hana puʻupaʻa

Hiki i ka nalowale o ka protein i ka FSGS ke nui loa e hoʻokumu i ka nephrotic syndrome, kahi āu e nalowale ai i ka protein nui e hiki ʻole i kou kino ke mālama i ka kaulike wai kūpono. ʻO kēia ke alakaʻi i ka pehu nui a me nā pilikia metabolic ʻē aʻe.

I nā hihia kakaikahi, hiki i nā poʻe me ka FSGS ke hoʻomohala i ka hāʻule ʻana o ka puʻupaʻa, ʻoi aku inā holomua wikiwiki ka maʻi a i ʻole inā he mau mea hoʻonāukiuki hou aku ma nā puʻupaʻa. Eia naʻe, me ka nānā pono a me ka mālama, hiki ke pale ʻia a mālama ʻia nā pilikia he nui.

Pono kekahi poʻe me ka FSGS i ka dialysis a i ʻole ka hoʻololi puʻupaʻa, akā ʻaʻole hiki ʻole kēia hopena. Mālama nui nā kānaka i ka hana puʻupaʻa paʻa no nā makahiki me ka mālama kūpono.

Pehea e hiki ai ke pale ʻia ka FSGS?

ʻOiai ʻaʻole hiki iā ʻoe ke pale aku i nā ʻano genetic o ka FSGS, aia nā hana āu e hiki ai ke lawe e pale aku i kou olakino puʻupaʻa a pale aku paha i ka FSGS lua. ʻO ka mālama ʻana i ka kaumaha olakino e hoʻemi i ke kaumaha ma kāu puʻupaʻa a hoʻemi i kou pilikia o ka hoʻomohala ʻana i ka maʻi puʻupaʻa pili i ka momona.

Inā loaʻa iā ʻoe nā kūlana e hiki ai ke alakaʻi i ka FSGS lua, he mea nui ka mālama pono ʻana iā lākou. ʻO kēia ka mālama ʻana i ka maʻi HIV ma lalo o ke kaohi me ka lāʻau lapaʻau antiretroviral, pale ʻana i nā lāʻau hoʻonāukiuki, a hoʻohana wale i nā lāʻau lapaʻau e like me ke kuhikuhi a kāu mea mālama ola.

ʻO nā hana palekana nui o ka puʻupaʻa e komo pū ana:

• Ke kaohi ʻana i ke koko kiʻekiʻe a me ka maʻi diabetes inā loaʻa iā ʻoe
• Ke mālama pono ʻana i ka wai inu akā ʻaʻole nui loa
• Ke kaupalena ʻana i nā meaʻai i hana ʻia me ka nui o ka sodium
• ʻAʻole puhi paka a i ʻole ke haʻalele inā puhi ʻoe i kēia manawa
• Ke kiʻi ʻana i nā nānā maʻamau e komo pū ana i nā hoʻokolohua hana puʻupaʻa
• Ke makaʻala ʻana i nā lāʻau lapaʻau ʻeha ʻole ma luna o ka papa kūʻai

Inā loaʻa iā ʻoe ka mōʻaukala ʻohana o ka maʻi puʻupaʻa, hiki ke kōkua ka ʻōlelo aʻo genetics e hoʻomaopopo i kou mau pilikia a kūkākūkā i nā koho nānā. Hiki ke ʻike ʻia kekahi mau ʻano genetic o FSGS ma o ka hoʻokolohua ma mua o ka ulu ʻana o nā hōʻailona.

ʻO ka mālama lapaʻau maʻamau kāu pale maikaʻi loa, ʻoi aku inā loaʻa iā ʻoe nā mea pilikia. Hiki i ka ʻike mua ʻana a me ka mālama ʻana ke hoʻolohi nui i ka holomua o ka maʻi puʻupaʻa i ka wā e ulu ai.

Pehea ka hōʻoia ʻana o FSGS?

ʻO ka hōʻoia ʻana o FSGS e hoʻomaka pinepine me nā hoʻokolohua maʻamau e hōʻike ana i ka protein i loko o kāu mimi a i ʻole nā ​​hoʻololi i kāu hana puʻupaʻa. E kauoha paha kāu kauka i nā hoʻokolohua koko a me ka mimi e ana i ka maikaʻi o ka hana ʻana o kāu puʻupaʻa a me ka nui o ka protein āu e nalowale nei.

ʻO ka biopsy puʻupaʻa ka mea maʻamau e pono ai e hōʻoia i ka hōʻoia ʻana o FSGS. I loko o kēia kaʻina hana, ua lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo puʻupaʻa a nānā ʻia ma lalo o ka microscope e ʻimi i ke ʻano o ka ʻili ʻili.

ʻO ke kaʻina hana hōʻoia e komo pū ana:

1. Nā hoʻokolohua mimi e nānā i ka protein a me ke koko
2. Nā hoʻokolohua koko e ana i ka hana puʻupaʻa a me nā pae protein
3. Ke nānā ʻana i ke koko kiʻekiʻe
4. ʻO ka ultrasound puʻupaʻa e nānā i ke ʻano o ka puʻupaʻa
5. Biopsy puʻupaʻa no ka hōʻoia hōʻoia
6. Hoʻokolohua genetic inā manaʻo ʻia ka FSGS ʻohana

Hiki nō hoʻi i kāu kauka ke ho'āʻo no nā kūlana e hiki ai ke hoʻoulu i ka FSGS lua, e like me ka HIV, nā maʻi autoimmune, a i ʻole nā ​​maʻi ʻē aʻe. Kūleʻa kēia i ka hoʻoholo ʻana inā he mua a lua paha kāu FSGS i kahi kūlana ʻē aʻe.

E hōʻike nā hopena biopsy ʻaʻole wale nō ka loaʻa ʻana o ka FSGS akā e kōkua pū kekahi i ka hoʻoholo ʻana i ke ʻano kūikawā a me ka nui o ka pōʻino i hana ʻia. Ke alakaʻi nei kēia ʻike i kāu papahana lapaʻau a kōkua i ka wānana ʻana i ka holomua o ke kūlana.

He aha ka lāʻau lapaʻau no ka FSGS?

ʻO ka lāʻau lapaʻau no ka FSGS ke kaupaona nei i ka hoʻomāmā ʻana i ka pōʻino o ka puʻupaʻa, ka hoʻokele ʻana i nā hōʻailona, ​​a me ka mālama ʻana i nā kumu kumu. Ke hilinaʻi nei ke ala kūikawā i ka loaʻa ʻana o kāu FSGS mua a lua paha a me ka nui o kou kūlana.

No ka FSGS lua, ʻo ka mālama ʻana i ke kumu kumu ka mea nui. Hiki paha kēia ke mana i ka HIV me nā lāʻau lapaʻau, ke nalowale i ke kaumaha inā he kumu ke momona, a i ʻole ke kāpae ʻana i nā lāʻau lapaʻau e hōʻino ana i kou puʻupaʻa.

ʻO nā lāʻau lapaʻau maʻamau no ka FSGS e komo pū ana:

• Nā mea pale ACE a i ʻole ARBs e pale i nā puʻupaʻa a hoʻokele i ke koko
• Corticosteroids e ho'ēmi i ka mumū i kekahi mau hihia
• Nā lāʻau lapaʻau immunosuppressive no kekahi mau ʻano
• Diuretics e kōkua i ka pehu
• Nā lāʻau lapaʻau ho'ēmi-kolesterol
• Ka palena ʻana o ka protein meaʻai i kekahi mau hihia

ʻO nā steroids e like me ka prednisone ka mea mua pinepine i ho'āʻo ʻia no ka FSGS mua, ʻoi aku hoʻi i nā keiki a me nā ʻōpio. Hiki i kēia mau lāʻau lapaʻau ke kōkua i ka ho'ēmi ʻana i ka hana ʻōnaehana pale kino e hiki ke hoʻopilikia i ka pōʻino o ka puʻupaʻa.

Inā ʻaʻole hana nā steroids a i ʻole ke hana nui i nā hopena ʻaoʻao, hiki i kāu kauka ke ʻōlelo aku i nā lāʻau lapaʻau immunosuppressive ʻē aʻe e like me ka cyclosporine, tacrolimus, a i ʻole mycophenolate. Pono kēia mau lāʻau lapaʻau i ka nānā pono akā hiki ke loaʻa ka hopena maikaʻi loa no kekahi poʻe.

He mea nui ka mālama ʻana i ke kaomi koko me ka nānā ʻole i nā lāʻau lapaʻau ʻē aʻe āu e hoʻohana nei. ʻOiai inā kūpono kou kaomi koko, hiki i nā lāʻau lapaʻau e pale aku i kou mau puʻupaʻa ke kōkua i ka hoʻomāmā i ka holomua o ka FSGS.

Pehea e mālama ai i ka FSGS ma ka home?

ʻO ka mālama ʻana i ka FSGS ma ka home, ʻo ia ka hana ʻana i nā loli o ke ola e kākoʻo i kou olakino puʻupaʻa a me kou olakino maikaʻi holoʻokoʻa. Hiki i ka hahai ʻana i ka ʻai kūpono i nā puʻupaʻa ke kōkua i ka hōʻemi ʻana i ka hana nui ma kou mau puʻupaʻa a mālama i nā hōʻailona e like me ka pehu.

Hiki i kāu kauka a i ʻole mea ʻai ke ʻōlelo aku e kaupalena i ka protein e hōʻemi i ka ukana ma kou mau puʻupaʻa, ʻoiai ʻokoʻa kēia ma muli o kou kūlana kikoʻī. Ke hōʻemi ʻana i ka sodium e kōkua i ka mālama ʻana i ke kaomi koko a me ka pehu.

ʻO nā hana mālama home i kēlā me kēia lā e komo pū me:

• Lawe i nā lāʻau lapaʻau e like me ka mea i kuhikuhi ʻia
• Nānā i kou kaumaha i kēlā me kēia lā e hahai i ka wai e mālama ʻia
• Kaupalena i ka sodium i emi iho ma mua o 2,300mg i kēlā me kēia lā
• E noho ikaika me ka hoʻoikaika māmā e like me ka mea i ʻae ʻia
• Loaʻa ka hoʻomaha kūpono a mālama i ke kaumaha
• Pale aku i nā NSAID over-the-counter me ka ʻae ʻole o ke kauka

E mālama i kahi moʻolelo o kou kaumaha, kaomi koko (inā loaʻa iā ʻoe kahi mīkini nānā ma ka home), a me nā hōʻailona e like me ka pehu a i ʻole nā ​​loli i ka mimi. Kūkulu kēia ʻike i kāu hui olakino e hoʻoponopono i kāu mālama e like me ka pono.

E noho hou me nā inikini, ʻoiai hiki i kekahi mau lāʻau lapaʻau FSGS ke hoʻopilikia i kou ʻōnaehana pale. E pale aku i nā kānaka maʻi maopopo inā hiki, a hana i ka hoʻomaʻemaʻe lima maikaʻi.

Mai kānalua e hoʻokaʻaʻike i kāu mea lawelawe olakino inā ʻike ʻoe i ka hoʻonui koke ʻana o ke kaumaha, ka pehu nui, a i ʻole nā ​​hōʻailona hou. Hiki i ka hoʻoponopono koke ke pale pinepine i nā pilikia mai ka hoʻopilikia ʻana.

Pehea ʻoe e hoʻomākaukau ai no kāu kauka?

ʻO ka hoʻomākaukau ʻana no kāu kauka e kōkua i ka hōʻoia ʻana e loaʻa iā ʻoe ka mea nui loa mai kou manawa me kāu mea lawelawe olakino. E lawe mai i ka papa inoa o nā lāʻau lapaʻau āpau āu e lawe nei, me nā lāʻau lapaʻau over-the-counter, nā mea hoʻohui, a me nā lāʻau lapaʻau.

E kākau mua i kāu mau nīnau i ʻole e poina ʻoe e nīnau e pili ana i nā mea e hopohopo nei iā ʻoe. He kōkua ke hoʻonohonoho mua i kāu mau nīnau inā he pōkole ka manawa i ka wā o ka ʻaha kūkā.

ʻIke e lawe mai i kāu ʻaha kūkā:

• Papa inoa piha o nā lāʻau lapaʻau i kēia manawa a me nā nui
• Hoʻopaʻa moʻolelo o nā kaupaona o kēlā me kēia lā inā ua hahai ʻoe iā lākou
• Nā heluhelu koko kiʻekiʻe inā ʻoe e nānā ma ka home
• Papa inoa o nā hōʻailona a me ka wā e loaʻa ai
• Mōʻaukala ʻohana o ka maʻi puʻupaʻa
• Nā hopena hoʻokolohua mua mai nā kauka ʻē aʻe

E noʻonoʻo e lawe mai i kahi hoaaloha hilinaʻi a i ʻole lālā ʻohana e kōkua iā ʻoe e hoʻomanaʻo i ka ʻike nui i kūkākūkā ʻia i ka wā o ka kipa. Hiki iā lākou ke hāʻawi pū i ke kākoʻo manaʻo a kōkua i ka pale aku i kāu mau pono.

E mākaukau e kūkākūkā i kāu hana o kēlā me kēia lā, me ka ʻai, ka hoʻoikaika kino, a me nā pilikia āu e kū nei me kāu papa hana lapaʻau i kēia manawa. Pono kāu kauka i kēia ʻike e hāʻawi i ka mālama maikaʻi loa.

He aha ka mea nui e pili ana i ka FSGS?

ʻO ka FSGS kahi kūlana puʻupaʻa hiki ke hoʻokele ʻia e hoʻopilikia i nā kānaka āpau i nā ʻano like ʻole, a ʻo ka loaʻa ʻana o kēia ʻike ʻaʻole ia he manaʻo e pono e loli nui kou ola. Me ka mālama kūpono a me nā hoʻololi ʻano ola, nui nā kānaka me ka FSGS e mālama i ka hana puʻupaʻa maikaʻi no nā makahiki.

ʻO ka mea nui loa āu e hiki ai ke hana ʻo ia ke hana pili pono me kāu hui olakino a kūpaʻa i kāu papa hana lapaʻau. ʻO ka nānā mau e hāʻawi i nā hoʻoponopono e hiki ke hoʻomāmā i ka holomua o ka maʻi a pale aku i nā pilikia.

E hoʻomanaʻo e hoʻomau ana ka noiʻi FSGS, a ke hoʻomohala ʻia nei nā lāʻau hou. ʻO ka mea ʻaʻole paha i loaʻa i kēia lā hiki ke lilo i koho i ka wā e hiki mai ana, no laila, ʻo ka mālama ʻana i kou olakino puʻupaʻa i kēia manawa e mālama i nā puka hou aku ma hope.

ʻOiai e pono ai ka nānā mau ʻana i ka FSGS, ʻaʻole pono ia e hoʻomaopopo iā ʻoe a i ʻole e kaupalena i kāu mau pahuhopu. Nui nā kānaka me kēia kūlana e hoʻomau i ka hana, ka huakaʻi, ka hoʻoikaika kino, a me ka leʻaleʻa i nā ola piha a me ka manaʻo nui ʻoiai e hoʻokele ana i ko lākou olakino puʻupaʻa.

Nīnau pinepine e pili ana i ka FSGS

Hiki ke ho'ōla piha ʻia ka FSGS?

I kēia manawa, ʻaʻohe lāʻau lapaʻau no ka FSGS, akā hiki pinepine ke hoʻokele pono ʻia ka maʻi e hoʻomāmā i kona holomua. Hiki i kekahi poʻe, ʻoi aku hoʻi nā mea i loaʻa i ka FSGS lua, ke ʻike i ka hoʻomaikaʻi inā mālama pono ʻia ke kumu kumu. ʻO ka pahuhopu o ka mālama ʻana, ʻo ia ka mālama ʻana i ka hana o ka puʻupaʻa a pale aku i nā pilikia ma mua o ka hoʻopau loa ʻana i ka maʻi.

Pono anei au i ka dialysis inā loaʻa iaʻu ka FSGS?

ʻAʻole pono nā kānaka a pau me ka FSGS i ka dialysis. He nui nā kānaka e mālama i ka hana paʻa o ka puʻupaʻa no nā makahiki me ka mālama kūpono. ʻO ka pono no ka dialysis e hilinaʻi ana i ka wikiwiki o ka emi ʻana o ka hana o kou puʻupaʻa a me ka maikaʻi o kou pane ʻana i ka mālama ʻana. Ke kōkua nei ka nānā mau ʻana i kāu hui olakino e komo koke e hoʻomāmā i ka holomua.

Hiki iaʻu ke loaʻa nā keiki inā loaʻa iaʻu ka FSGS?

Hiki i nā wāhine he nui me ka FSGS ke loaʻa nā hapai holomua, akā pono ia i ka hoʻolālā akahele a me ka nānā ʻana me kāu kauka puʻupaʻa a me kahi obstetrician akamai i nā hapai pilikia kiʻekiʻe. Pono paha e hoʻololi ʻia kekahi mau lāʻau lapaʻau i hoʻohana ʻia e mālama i ka FSGS ma mua a i ka wā hapai. ʻO ka mea nui, ʻo ia ke kūkākūkā ʻana i kāu mau pahuhopu hoʻolālā ʻohana me kāu hui olakino i ka wā mua.

He genetic mau anei ka FSGS?

ʻAʻole, ʻaʻole genetic mau ka FSGS. ʻOiai ke holo nei kekahi mau ʻano i nā ʻohana ma muli o nā mutations genetic, ʻaʻole hoʻoilina ʻia nā hihia he nui o ka FSGS. Hoʻokumu ʻia ka FSGS lua e nā kūlana a i ʻole nā ​​kumu ʻē aʻe, a hiki ke loaʻa ka FSGS mua me ka ʻole o ka mōʻaukala ʻohana. Hiki i ka ho'āʻo genetic ke kōkua i ka hoʻoholo ʻana inā loaʻa i kāu FSGS kahi ʻāpana hoʻoilina.

Pehea pinepine wau e ʻike ai i kaʻu kauka inā loaʻa iaʻu ka FSGS?

ʻO ka pinepine o nā kipa e pili ana i ke kūpaʻa o kou kūlana a me nā lāʻau lapaʻau āu e loaʻa nei. I ka hoʻomaka, pono paha ʻoe i nā kūkā i kēlā me kēia mau mahina e nānā i kou pane i ka lāʻau lapaʻau. Ke kūpaʻa kou kūlana, ʻo nā kipa i kēlā me kēia 3-6 mahina ka mea maʻamau, akā e hoʻoholo kāu kauka i ka papa hana kūpono e pili ana i kou mau pono pilikino a me nā hualoaʻa o ka hoʻokolohua.