He aha ka Granulomatosis me ka Polyangiitis? Nā Hōʻailona, Nā Kumu, & Lapaʻau

ʻO ka granulomatosis me ka polyangiitis kahi maʻi autoimmune maʻamau loa kahi e hoʻouka ai kou ʻōnaehana pale kino i nā kīʻaha koko olakino ma kou kino holoʻokoʻa. Hoʻokumu kēia i ka mumū i nā kīʻaha koko liʻiliʻi a me nā waena, hiki ke hoʻopilikia i nā ʻāpana o ke kino e like me kou māmā, nā puʻupaʻa, nā sinuses, a me nā ʻāpana ʻē aʻe o kou kino.

Loaʻa paha iā ʻoe ka lohe ʻana i nā kauka e kapa ana i kēia maʻi ʻo Wegener's granulomatosis, ʻoiai ke hoʻohana nei ka hui lapaʻau i ka inoa hou. ʻOiai ke kani nui a weliweli, hiki i ka hoʻomaopopo ʻana i ka mea e hana nei i kou kino ke kōkua iā ʻoe e ʻike iā ʻoe iho a hoʻoikaika ʻia e hana pū me kāu hui mālama ola.

He aha ka Granulomatosis me ka Polyangiitis?

Hana ʻia ka granulomatosis me ka polyangiitis i ka wā e hana ai kou ʻōnaehana pale kino i ka mumū i nā paia o nā kīʻaha koko. E noʻonoʻo iā ia e like me ka ʻōnaehana pale o kou kino e huikau ana a e hoʻouka ana i nā kīʻaha koko e lawe ana i ke koko i kou mau ʻāpana.

Hoʻokumu kēia mumū i nā pūʻulu liʻiliʻi o nā sela pale kino i kapa ʻia ʻo granulomas, kahi i loaʻa ai ka inoa o ka maʻi. Hiki i kēia mau granulomas ke hoʻokumu ʻia i nā ʻāpana like ʻole o ke kino, akā ʻoi aku ka maʻamau o ka hoʻopilikia ʻana i kou ʻōnaehana hanu a me nā puʻupaʻa.

Hoʻomaka maʻamau ka maʻi i nā mākua ma waena o 40 a me 60 mau makahiki, ʻoiai hiki ke loaʻa i nā makahiki āpau. Hoʻopili like ia i nā kāne a me nā wāhine a loaʻa i nā hui lāhui āpau, ʻoiai ʻoi aku ka maʻamau i nā kānaka o ka ʻāina ʻEulopa ʻĀkau.

He aha nā Hōʻailona o ka Granulomatosis me ka Polyangiitis?

ʻO nā hōʻailona āu e ʻike ai e hilinaʻi ana i nā ʻāpana o ke kino i hoʻopilikia ʻia, a hoʻomohala pinepine lākou i nā hebedoma a i ʻole nā ​​mahina ma mua o ka puka koke ʻana. He nui nā kānaka i kuhi hewa mua i nā hōʻailona mua no ka anu mau a i ʻole ka maʻi sinus.

Eia nā hōʻailona maʻamau loa āu e ʻike ai:

• Ihu kahe mau a i ʻole i ʻānai ʻole e hoʻomaikaʻi ʻia me nā lāʻau lapaʻau maʻamau
• Kahe koko pinepine mai ka ihu a i ʻole ka ʻili ma loko o kou ihu
• ʻEha a me ka puʻe ʻana o ka sinus e like ʻole me nā pilikia sinus maʻamau
• Kūmau ka ʻōhū e hiki ke hoʻopuka i ka sputum koko
• Pōkole o ka hanu i ka wā o nā hana maʻamau
• ʻEha a i ʻole ka ʻoluʻolu o ka umauma
• Luhi ʻole e hoʻomaikaʻi me ka hoʻomaha
• ʻEha a me ka pehu ʻana o nā hono, ʻoi aku hoʻi i nā hono nui
• Wela ʻole i hele mai a hele aku
• Kaumaha kino ʻole

I ka holomua ʻana o ke kūlana, hiki iā ʻoe ke loaʻa nā hōʻailona ʻoi aku ka nui e hōʻike ana i ka pili ʻana o ka puʻupaʻa. Hiki i kēia ke komo pū me nā loli i ke kala o kou mimi, ka pehu ʻana o kou mau wāwae a i ʻole kou maka, a me ke koko kiʻekiʻe.

ʻAʻole pinepine, loaʻa i kekahi poʻe nā ʻili ʻili, ka ʻulaʻula a i ʻole ka ʻeha o nā maka, nā pilikia lohe, a i ʻole ka ʻāʻī a me ka ʻūhā i ko lākou mau lima a me ko lākou mau wāwae. Loaʻa kēia mau hōʻailona i ka wā e hoʻopilikia ai ka mumū i nā kīʻaha koko ma kēia mau wahi.

He aha ka mea e hoʻopuka ai i ka Granulomatosis me Polyangiitis?

ʻAʻole maopopo loa ke kumu o ka granulomatosis me polyangiitis, akā manaʻo nā mea noiʻi ua hopena ia mai ka hui ʻana o nā kumu genetic a me nā mea hoʻonāukiuki o ke kaiapuni. Hoʻomaka kāu ʻōnaehana pale kino e hana hewa a hoʻomaka e hoʻouka i kou mau kīʻaha koko ponoʻī.

Ua ʻike nā kānaka ʻepekema i kekahi mau mea e hiki ke kōkua i ka hoʻomohala ʻana i kēia kūlana:

• Hoʻonohonoho genetic - hiki i kekahi mau gene ke hoʻolilo iā ʻoe i mea maʻalahi
• Nā mea hoʻonāukiuki o ke kaiapuni e like me nā maʻi, ʻoi aku hoʻi nā maʻi hanu
• Ka hōʻike ʻana i kekahi mau kemika a i ʻole nā ​​mea ʻino, ʻoiai ʻaʻole i ʻike maopopo ʻia nā mea hoʻonāukiuki kikoʻī
• Pane autoimmune kahi e hana ai kou kino i nā antibodies e kūʻē i kona mau pūnaewele ponoʻī

ʻO ka hapa nui o nā kānaka me kēia kūlana he mau antibody i kapa ʻia ʻo ANCA (anti-neutrophil cytoplasmic antibodies) i loko o ko lākou koko. Hoʻopili kēia mau antibody i nā protein i loko o kekahi mau keʻokeʻo koko keʻokeʻo, e hoʻoulu ana i ka mumū a me ka hōʻino ʻana i nā pūnaewele.

He mea nui e hoʻomaopopo ʻaʻole pili kēia kūlana, a ʻaʻole ʻoe i hana i kekahi mea e hoʻoulu ai. ʻAʻole pili ia i nā koho noho ola a i ʻole kekahi mea hiki iā ʻoe ke pale aku.

I ka Wā e ʻIke ai i ke Kauka no ka Granulomatosis me Polyangiitis?

Pono ʻoe e hoʻokaʻaʻike i kāu mea mālama ola inā loaʻa iā ʻoe nā hōʻailona mau ʻaʻole i hoʻomaikaʻi me nā lāʻau lapaʻau maʻamau, ʻoi aku hoʻi inā lōʻihi lākou ma mua o kekahi mau pule. He mea nui ka ʻike mua ʻana a me ka mālama ʻana no ka pale ʻana i nā pilikia koʻikoʻi.

E ʻimi i ka mālama ola koke inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona hopohopo:

• Ke kahe koko mai ka ʻōhū a i ʻole ka sputum koko
• Ka hanu pōkole loa a i ʻole ka pilikia o ka hanu
• Loli koke i ka ʻike a i ʻole ka ʻeha o ka maka
• Kōkō ʻeleʻele a koko paha
• Nawaliwali nui a i ʻole ka ʻehaʻeha i kou mau lālā
• ʻEha umauma a i ʻole ka puʻe
• Nā hōʻailona o nā pilikia o ka puʻupaʻa e like me ka pehu ʻana i kou maka, nā lima, a i ʻole nā ​​wāwae

Mai kali inā nui nā hōʻailona e hana pū ana, ʻoiai inā ʻano māmā kēlā me kēia ma kona ʻano ponoʻī. Hiki i ka hui ʻana o nā hōʻailona hanu, puʻupaʻa, a me nā hōʻailona maʻamau ke koʻikoʻi loa.

E hoʻomanaʻo he nui nā hōʻailona mua e hoʻohālikelike i nā kūlana maʻamau e like me nā anu a i ʻole nā ​​maʻi sinus. Eia naʻe, inā mau kēia mau hōʻailona ma mua o ka manaʻo a i ʻole ʻano koʻikoʻi loa, pono ia e kūkākūkā me kāu kauka.

He aha nā Kumu Hōʻeha no ka Granulomatosis me Polyangiitis?

ʻOiai hiki i kekahi ke loaʻa kēia kūlana, hiki i kekahi mau mea ke hoʻonui i kou manawa e loaʻa ai ka granulomatosis me polyangiitis. Hiki i ka hoʻomaopopo ʻana i kēia mau kumu pilikia ke kōkua iā ʻoe e makaʻala i nā hōʻailona hiki.

ʻO nā kumu pilikia nui e komo pū ana:

• Makahiki - hoʻopili pinepine i nā mākua ma waena o 40 a me 60 mau makahiki
• Lāhui - ʻoi aku ka nui ma nā kānaka o ke ʻano ʻEulopa ʻĀkau
• Mōʻaukala ʻohana - ʻo ka loaʻa ʻana o nā hoahānau me nā kūlana autoimmune e hoʻonui iki paha i ka pilikia
• Wahi honua - kiʻekiʻe nā helu ma nā aniau ʻākau a me nā wahi kuaʻāina
• Nā maʻi hanu ma mua - ke manaʻo nei kekahi noiʻi i kahi pilina hiki
• Hōʻike ʻia i ka lepo silica - hiki i ka hōʻike ʻoihana ke lilo i kumu pilikia

ʻAʻole manaʻo ia inā loaʻa kēia mau kumu pilikia e loaʻa nō ʻoe i ke kūlana. Nui nā kānaka me nā kumu pilikia he nui ʻaʻole loaʻa i ka granulomatosis me ka polyangiitis, ʻoiai kekahi poʻe ʻē aʻe me nā kumu pilikia ʻike ʻole ʻia e loaʻa.

Hoʻopili like ke kūlana i nā kāne a me nā wāhine, a ʻoiai ʻoi aku ka nui ma kekahi mau heluna kanaka, hiki ke loaʻa i nā kānaka o kēlā me kēia ʻano lāhui. ʻO ka hapa nui o nā hihia e like me ka sporadic ma mua o ka holo ʻana i nā ʻohana.

He aha nā pilikia hiki ke loaʻa i ka Granulomatosis me Polyangiitis?

Me ka ʻole o ka mālama kūpono, hiki i ka granulomatosis me ka polyangiitis ke alakaʻi i nā pilikia koʻikoʻi i ka hōʻino ʻana o ka mumū i nā kīʻaha koko a me nā kino. Eia naʻe, me ka ʻike mua a me ka mālama kūpono, hiki ke pale ʻia a mālama ʻia nā pilikia he nui.

ʻO nā pilikia maʻamau e hoʻopilikia ana i kēia mau wahi o kou kino:

• Hōʻino ʻia o ka puʻupaʻa - hiki ke holomua i ka hāʻule ʻana o ka puʻupaʻa inā ʻaʻohe mālama
• ʻO ka ʻili o ka māmā - hiki ke hana i nā pilikia hanu mau loa
• Hōʻino lohe - mai ka mumū e hoʻopilikia ana i ka pepeiao o loko
• Nā pilikia ʻike - me ka makapō hiki mai ka hoʻopilikia ʻana o ka maka
• Nā pilikia naʻau - me ka mumū o ka ʻiʻo naʻau
• Hōʻino o nā aʻalolo - e hana ana i ka numbness, tingling, a i ʻole nāwaliwali
• ʻO ka ʻili ʻili - mai ka mumū o nā kīʻaha koko ma ka ʻili
• ʻO ka deformi ihu Saddle - mai ka hōʻino ʻana o ka cartilage i ka hoʻopilikia nui ʻana o ka ihu

ʻO nā pilikia o ka puʻupaʻa kekahi o nā mea koʻikoʻi loa, no ka mea, hiki iā lākou ke ulu mālie me ka ʻole o nā hōʻailona maopopo a hiki i ka wā i loaʻa ai ka pōʻino nui. ʻO ia ke kumu e pono ai ka nānā mau ʻana ma o nā hoʻokolohua koko a me ka mimi.

ʻAʻole pinepine, hiki i kekahi poʻe ke loaʻa nā pilikia e pili ana i ka lolo, me ka hahau a i ʻole nā ​​hoʻoulu ʻana, ʻoiai he mea maʻamau ʻole kēia. ʻO ka ʻoiaʻiʻo maikaʻi, me ka mālama kūpono, hiki i ka hapa nui o nā kānaka ke pale aku i kēia mau pilikia koʻikoʻi a mālama i ka maikaʻi o ke ola.

Pehea ka Hōʻoia ʻana o ka Granulomatosis me Polyangiitis?

Hiki ke paʻakikī ka hōʻoia ʻana i ka granulomatosis me polyangiitis no ka mea, hoʻohālikelike pinepine kāna mau hōʻailona i nā kūlana ʻē aʻe i ʻoi aku ka maʻamau. E hoʻohana kāu kauka i ka hui ʻana o nā hoʻokolohua a me nā hoʻokolohua e hōʻea i ka hōʻoia pololei.

ʻO ka hana hōʻoia maʻamau e komo pū ana i kekahi mau ʻanuʻu. ʻO ka mea mua, e lawe kāu kauka i ka moʻolelo lapaʻau kikoʻī a hana i ka hoʻokolohua kino, e hoʻolohe nui ana i kāu ʻōnaehana hanu, nā puʻupaʻa, a me nā ʻāpana kino i pilikia.

He kuleana nui nā hoʻokolohua koko i ka hōʻoia ʻana. E nānā kāu kauka no nā antibody ANCA, aia i loko o kahi 80-90% o nā kānaka me kēia kūlana. E ʻimi pū lākou i nā hōʻailona o ka mumū a me nā pilikia o ka hana o ka puʻupaʻa.

Kōkua nā haʻawina kiʻi i kāu kauka e ʻike i nā ʻāpana kino i pilikia. Hiki i kēia ke komo pū me nā X-ray umauma a i ʻole nā ​​​​CT scan e nānā i kou mau māmā, a me nā CT scan sinus e nānā i ka mumū i loko o kou mau puka ihu a me nā sinus.

I nā hihia he nui, e ʻōlelo aku kāu kauka i ka biopsy o nā pūnaewele e hōʻoia i ka hōʻoia. ʻO kēia ke komo pū ʻana i ka lawe ʻana i kahi ʻāpana liʻiliʻi o nā pūnaewele i pilikia, pinepine mai kou ihu, māmā, a i ʻole nā ​​puʻupaʻa, e ʻimi i nā granulomas hiʻohiʻona ma lalo o ka microscope.

He mea nui nā hoʻokolohua mimi no ka ʻike ʻana i ka pili ʻana o ka puʻupaʻa, ʻoiai ʻaʻohe ou mau hōʻailona maopopo. E nānā kāu kauka no ka protein, ke koko, a i ʻole nā ​​​​kikoʻī ʻē aʻe e hōʻike ana i ka pōʻino o ka puʻupaʻa.

He aha ka Mālama no ka Granulomatosis me Polyangiitis?

ʻO ka mālama ʻana i ka granulomatosis me ka polyangiitis ke kaumaha nui ʻia ma ka kaohi ʻana i ka mumū a me ka pale ʻana i ka pōʻino o nā loko. ʻO ka mea maikaʻi, me ka mālama kūpono, hiki i ka hapa nui o nā kānaka ke loaʻa ka remission a mālama i kahi ola maikaʻi.

ʻO kāu papahana mālama e komo pinepine i ʻelua mau papa. ʻO ka papa mua ke kumu nui e kaohi koke i ka mumū ikaika a lawe mai i ka maʻi i ka remission. ʻO ka papa ʻelua ke kaumaha nui ʻia ma ka mālama ʻana i ka remission a me ka pale ʻana i nā flare-ups.

I ka wā o ka papa mālama mua, e kauoha paha kāu kauka i nā lāʻau ikaika e hoʻohaʻahaʻa i kou ʻōnaehana pale kino:

• Corticosteroids e like me ka prednisone e hoʻohaʻahaʻa koke i ka mumū
• Nā lāʻau immunosuppressive e like me ka cyclophosphamide a i ʻole rituximab
• Ka mālama hui i hoʻopilikino ʻia i kāu mau hōʻailona kūikawā a me ka komo ʻana o nā loko

Ke komo kāu kūlana i ka remission, e hoʻololi ʻoe i nā lāʻau mālama. Hiki i kēia ke komo i ka methotrexate, azathioprine, a i ʻole rituximab ma nā nui haʻahaʻa e pale aku i ka hoʻi ʻana mai o ke kūlana.

Hiki i kāu hui mālama ke komo i kekahi mau loea e hana pū ana. Hiki iā ʻoe ke ʻike i kahi rheumatologist no ka mālama ʻana i ka maʻi holoʻokoʻa, kahi nephrologist inā pilikia kāu mau puʻupaʻa, a me kahi pulmonologist no ka pilikia o ka māmā.

He mea nui ka nānā mau ʻana i ka wā o ka mālama ʻana. E hahai kāu kauka i kāu pane ma o nā hoʻokolohua koko, nā haʻawina kiʻi, a me nā hoʻokolohua kino e hoʻoponopono i nā lāʻau e like me ka pono a nānā i nā hopena ʻaoʻao.

Pehea e lawe ai i ka mālama home i ka wā o Granulomatosis me Polyangiitis?

ʻOiai he mea nui ka mālama lapaʻau, aia kekahi mau mea hiki iā ʻoe ke hana ma ka home e kākoʻo i kou olakino a mālama i nā hōʻailona. Hana kēia mau hana pū me kāu mau lāʻau i kauoha ʻia, ʻaʻole ma kahi o lākou.

He mea nui loa ka mālama ʻana i kou olakino holoʻokoʻa i ka wā e hoʻokele ai i kēia kūlana. E hoʻomaʻamaʻa i ka ʻai ʻana i ka ʻai kaulike piha i nā mea momona e kākoʻo i kou ʻōnaehana pale a kōkua i kou kino e kū i nā hopena ʻaoʻao o ka lāʻau.

Eia kekahi mau ʻōlelo aʻoaʻo kōkua no ka mālama ʻana i ka home:

• E loaʻa ka hoʻomaha kūpono - e pahuhopu i ka hiamoe maikaʻi 7-9 mau hola i kēlā me kēia pō
• E mālama i ka wai nui ma o ka inu ʻana i ka wai nui i ka lā holoʻokoʻa
• E hoʻohana i ka mea hoʻomehana e mālama i nā ala hanu i kahi pulu a ʻoluʻolu
• E hoʻomaʻamaʻa i ka hoʻoikaika māmā e like me ka ʻae ʻana a kāu kauka e mālama i ka ikaika
• E pale i ka puhipaka a me ka ua puhipaka lua, kahi e hiki ai ke hoʻoino i nā hōʻailona hanu
• E hoʻohana i nā holoi ihu paʻakai e kōkua i nā hōʻailona sinus
• E lawe i nā lāʻau e like me ke kauoha ʻia, ʻoiai inā ʻoi aku ka maikaʻi o kou manaʻo

He mea nui hoʻi ka hoʻokele ʻana i ke kaumaha, ʻoiai hiki i ke kaumaha ke hoʻoulu i nā flare-ups. E noʻonoʻo i nā ʻano hoʻomaha e like me ka hanu hohonu, ka noʻonoʻo, a i ʻole ka yoga māmā inā ʻae kāu kauka.

E mālama i kāu mau hōʻailona i loko o kahi puke moʻolelo. Hiki kēia ke kōkua iā ʻoe a me kāu hui mālama ola e ʻike i nā ʻano a i ʻole nā ​​hōʻailona mua o nā flare-ups, e ʻae ana i ka hoʻoponopono wikiwiki ʻana i ka lāʻau i ka wā e pono ai.

Pehea ʻoe e hoʻomākaukau ai no kāu hālāwai kauka?

Hiki i ka hoʻomākaukau ʻana no kāu hālāwai ke kōkua iā ʻoe e hoʻohana pono i kou manawa me kāu mea hoʻolako mālama ola a hōʻoia iā ʻoe e loaʻa iā ʻoe ka ʻike a me ka mālama āu e pono ai. ʻO ka hoʻomākaukau maikaʻi e alakaʻi i nā kūkākūkā ʻoi aku ka hua i kāu kūlana.

Ma mua o kāu hālāwai, e kākau i kāu mau hōʻailona a pau, me ka manawa i hoʻomaka ai lākou a pehea lākou i loli ai i ka manawa. E hoʻokomo i nā kikoʻī e pili ana i nā mea e hoʻomaikaʻi ai a i ʻole e hoʻopōʻino ai iā lākou, a me nā ʻano āu i ʻike ai.

E lawe mai i ka papa inoa piha o nā lāʻau āpau āu e lawe nei, me nā lāʻau lapaʻau, nā lāʻau lapaʻau ma luna o ka pākaukau, a me nā mea hoʻohui. E hoʻokomo i nā dosages a me ka pinepine o kāu lawe ʻana i kēlā me kēia.

E hoʻomākaukau i kāu mau nīnau ma mua i ʻole ʻoe e poina i nā manaʻo nui i ka wā o ka hālāwai:

• He aha nā ho'okolohua e pono ai iaʻu, a he aha kā lākou e haʻi mai ai?
• He aha nā koho lapaʻau iaʻu a me kā lākou hopena ʻaoʻao?
• Pehea kā mākou e nānā ai i koʻu kūlana i ka manawa?
• He aha nā hōʻailona e hoʻoikaika iaʻu e kāhea koke aku iā ʻoe?
• Aia kekahi mau hana e pono iaʻu ke pale aku ai a hoʻololi paha?
• Pehea paha e hoʻopilikia ai kēia kūlana i koʻu ola a me kaʻu hana i kēlā me kēia lā?

E noʻonoʻo e lawe mai i kahi hoaaloha a ʻohana paha i hilinaʻi ʻia i kāu kūkā. Hiki iā lākou ke kōkua iā ʻoe e hoʻomanaʻo i ka ʻike nui a hāʻawi i ke kākoʻo manaʻo i ka wā e paʻakikī paha.

E hōʻiliʻili i nā moʻolelo lapaʻau ma mua, nā hopena ho'okolohua, a i ʻole nā ​​​​haʻawina kiʻi e pili ana paha i kāu mau hōʻailona o kēia manawa. Hiki i kēia ʻike ke kōkua i kāu kauka e kiʻi i kahi kiʻi piha o kāu moʻolelo olakino.

He aha ka mea nui e pili ana i ka Granulomatosis me ka Polyangiitis?

ʻO ka Granulomatosis me ka polyangiitis kahi kūlana autoimmune koʻikoʻi akā hiki ke mālama ʻia e hoʻopilikia ana i nā kīʻaha koko ma kou kino holoʻokoʻa. ʻOiai hiki ke manaʻo ʻia he mea kaumaha i ka hoʻomaka, ʻo ka hoʻomaopopo ʻana i kou kūlana e hāʻawi iā ʻoe i ka mana e hana pono me kāu hui olakino.

ʻO ka mea nui loa e hoʻomanaʻo ai, ʻo ka ʻike mua ʻana a me ka mālama ʻana e hana i kahi ʻokoʻa nui i nā hopena. Me ka mālama lapaʻau kūpono, hiki i ka hapa nui o nā kānaka me kēia kūlana ke hoʻokō i ka remission a mālama i kahi ola maikaʻi.

E kū hoʻokahi kāu huakaʻi me kēia kūlana, a ua hoʻopilikino ʻia nā papahana lapaʻau i kāu mau pono a me nā hōʻailona kikoʻī. E komo ikaika i kāu mālama, e nīnau i nā nīnau, a mai kānalua e hoʻopili aku i kāu hui olakino ke kū mai nā hopohopo.

E hoʻomanaʻo ʻo ka mālama ʻana i kēia kūlana he hui pū ʻana ma waena ou a me kāu hui lapaʻau. Ma ka noho ʻana i ka ʻike, ka hahai ʻana i kāu papahana lapaʻau, a me ka mālama ʻana i ka kamaʻilio ākea me kāu poʻe kauka, ke lawe nei ʻoe i nā ʻanuʻu nui i ka hopena maikaʻi loa.

Nā Nīnau Pinepine e pili ana i ka Granulomatosis me ka Polyangiitis

Ua ho'ōla ʻia anei ka granulomatosis me ka polyangiitis?

ʻOiai ʻaʻohe lāʻau ho'ōla mau loa, hiki ke mālama nui ʻia ka granulomatosis me ka polyangiitis. Hiki i ka hapa nui o nā kānaka ke loaʻa ka remission lōʻihi me ka lāʻau kūpono a me ka nānā ʻana. Nui nā mea maʻi e ola ana i nā ola maʻamau, hana i ka wā e kaohi pono ʻia ai ko lākou kūlana. ʻO ke kī, ʻo ia ka ʻike mua ʻana a me ka mālama mau ʻana e pale aku ai i ka hōʻino ʻana i nā kino.

Pehea ka lōʻihi o ka mālama maʻamau?

ʻO ka mālama maʻamau, ʻelua mau ʻāpana ia. ʻO ka mālama ikaika mua e hoʻokō ai i ka remission, ʻo ia hoʻi he 3-6 mau mahina. Ma hope o kēlā, pono paha ʻoe i ka mālama mālama no kekahi mau makahiki e pale aku ai i nā flare-ups. Hiki paha i kekahi poʻe ke ho'ēmi a ho'ōki paha i nā lāʻau lapaʻau, ʻoiai kekahi poʻe e pono ai ka mālama lōʻihi. E hana pū kāu kauka me ʻoe e ʻimi i ka lōʻihi o ka mālama maikaʻi loa.

Hiki iaʻu ke ola i kahi ola maʻamau me kēia kūlana?

ʻAe, nui nā kānaka me ka granulomatosis me ka polyangiitis e ola ana i nā ola piha, hana. ʻOiai pono ʻoe i ka nānā maʻamau o nā kauka a pono paha ʻoe e hana i kekahi mau hoʻoponopono no ke ola, nui nā hana o kēlā me kēia lā e hiki ke hana. Nui nā mea maʻi e hoʻomau i ka hana, huakaʻi, a hauʻoli i nā leʻaleʻa. ʻO ke kī, ʻo ia ka hahai ʻana i kāu papahana mālama a noho pili kokoke me kāu hui olakino.

Aia anei nā meaʻai e pono ai au e pale aku i ka wā e lawe ana i nā lāʻau lapaʻau?

Pono paha kekahi mau lāʻau lapaʻau i hoʻohana ʻia e mālama i kēia kūlana i nā manaʻo no ka ʻai. No ka laʻana, inā ʻoe e lawe ana i nā corticosteroids, pono paha ʻoe e kaupalena i ka sodium a hoʻonui i ka calcium. Pono paha nā lāʻau lapaʻau immunosuppressive e pale aku i kekahi mau meaʻai e hiki ke hoʻonui i ka pilikia o ka maʻi. Hiki i kāu kauka a i ʻole ka mea ʻai meaʻai i hoʻopaʻa inoa ʻia ke hāʻawi i nā ʻōlelo aʻoaʻo kūikawā ma muli o kāu mau lāʻau lapaʻau a me ke kūlana olakino holoʻokoʻa.

He aha kaʻu e hana ai inā manaʻo wau e loaʻa iaʻu kahi flare-up?

E hoʻokaʻaʻike koke i kāu mea mālama ola inā ʻike ʻoe i ka hoʻi ʻana mai a i ʻole ka ʻino ʻana o nā hōʻailona, ʻoi aku hoʻi nā pilikia hanu, nā loli i ka mimi, a i ʻole nā ​​hōʻailona hou. Mai kali e ʻike inā e hoʻomaikaʻi nā hōʻailona ma o lākou iho. Hiki i ka mālama koke ʻana i nā hōʻailona ʻino ke pale aku i nā pilikia nui a pinepine e koi ʻia ai ka mālama ʻana i ka liʻiliʻi ma mua o ka kali ʻana a hiki i ka nui o nā hōʻailona. E mālama i ka ʻike pili i kāu kauka i maʻalahi ke loaʻa a ʻike i kā lākou papa hana no nā pilikia wikiwiki.