He aha ka IgA Nephropathy? Nā Hōʻailona, Nā Kumu, a me ka Lapaʻau

ʻO ka IgA nephropathy kahi kūlana o ka puʻupaʻa kahi e waiho ai kou ʻōnaehana pale kino i kahi protein i kapa ʻia ʻo immunoglobulin A (IgA) i loko o nā ʻāpana kānana o kou puʻupaʻa. Hiki i kēia hōʻiliʻili ke hoʻoulu i ka mumū a hoʻololi mālie i ka hana o kou puʻupaʻa. ʻO ia ka ʻano maʻamau loa o ka glomerulonephritis ma ka honua holoʻokoʻa, ʻoiai naʻe, he nui nā kānaka e ola ana me ia me ka ʻike ʻole ʻana no nā makahiki.

He aha ka IgA Nephropathy?

Hana ʻia ka IgA nephropathy i ka wā e hele ai ka ʻōnaehana pale kino o kou kino i kahi ala ʻē. Ma ke ʻano maʻamau, kōkua nā antibody IgA e hakakā i nā maʻi, akā i kēia kūlana, hui pū lākou a paʻa i loko o nā kānana liʻiliʻi o kou puʻupaʻa i kapa ʻia ʻo glomeruli.

E noʻonoʻo i kāu mau kānana puʻupaʻa e like me kahi kānana kofe. I ka wā e hōʻiliʻili ai nā waiho IgA, ua like ia me nā ʻāina kofe e paʻa ana i loko o ka kānana, e hoʻopilikia ana i ka hoʻomaʻemaʻe ʻana o kou puʻupaʻa i kou koko. Hana pinepine ʻia kēia kaʻina hana mālie i nā makahiki he nui.

Hoʻopili like ʻia ke kūlana i nā kānaka. Hiki i kekahi poʻe ke loaʻa ia no nā makahiki me nā pilikia liʻiliʻi, ʻoiai kekahi poʻe e ʻike i nā hōʻailona ʻoi aku ka maopopo. He mau kino ikaika loa kāu puʻupaʻa, a hiki i ka ʻike mua ke kōkua i ka pale ʻana i kā lākou hana.

He aha nā Hōʻailona o ka IgA Nephropathy?

ʻAʻole ʻike ka nui o nā kānaka me ka IgA nephropathy i kekahi hōʻailona i ka mua, ʻo ia ke kumu i kapa ʻia ai ʻo ia he maʻi puʻupaʻa “ʻōlelo ʻole”. I ka wā e ʻike ʻia ai nā hōʻailona, he mālie pinepine lākou a maʻalahi ke nānā ʻole.

ʻO nā hōʻailona maʻamau āu e ʻike ai:

• Ke koko i loko o kou mimi, e hana ana i ka ʻulaʻula, ʻulaʻula, a i ʻole ka waihoʻoluʻu cola
• Mimi ʻōhumu a i ʻole bubbly ʻaʻole e hele
• ʻO ka pehu i kou mau lima, wāwae, a i ʻole maka, ʻoi aku hoʻi i ke kakahiaka
• Ke koko kiʻekiʻe e ulu aʻe a i ʻole paʻakikī ke kaohi
• Ka luhi ʻaʻole e hoʻomaikaʻi me ka hoʻomaha
• ʻEha i kou mau ʻaoʻao a i ʻole kua, ʻoi aku hoʻi i nā maʻi

ʻIke kekahi poʻe i ka loli o ka waihoʻoluʻu o kā lākou mimi i ka wā a i ʻole ma hope koke o nā maʻi hanu e like me nā anu a i ʻole ka maʻi flu. Hana ʻia kēia no ka mea hiki i nā maʻi ke hoʻoulu i nā waiho IgA hou aku i loko o kou puʻupaʻa. ʻOiai paha kēia e lohe ʻia he mea hopohopo, he kōkua maoli ia no nā kauka e hana ana i kahi hōʻailona.

He aha nā Kumu o ka IgA Nephropathy?

ʻAʻole maopopo loa ke kumu pololei o ka IgA nephropathy, akā manaʻo nā mea noiʻi he hui pū ia o nā kumu genetic a me ke ʻano o kou ʻōnaehana pale kino i nā mea hoʻoulu. ʻAʻole pololei kou mau gene i ke kūlana, akā hiki iā lākou ke hoʻolilo iā ʻoe i mea maʻalahi ke loaʻa.

Ua ʻike ʻia kekahi mau mea e pāʻani ana i ka hoʻoulu ʻana i ke kūlana:

• Nā loli genetic e hoʻopilikia ana i ke ʻano o kou kino e hoʻoponopono ai i nā antibody IgA
• Nā maʻi hanu e hoʻoulu nui paha i kou ʻōnaehana pale kino
• Kekahi mau mea kūlohelohe a i ʻole nā mea ʻino
• Nā pilikia me ke ʻano o kāu mau bacteria ʻōpū e launa pū me kou ʻōnaehana pale kino
• Nā maʻi viral e hoʻoulu i kahi pane pale kino maʻamau ʻole

He mea nui e hoʻomaopopo ʻaʻole hoʻoili ʻia ka IgA nephropathy, a ʻaʻole hiki iā ʻoe ke hopu mai i kekahi. ʻAʻole hoʻi ia i hana ʻia e kekahi mea āu i hana ai a i ʻole ʻaʻole i hana ai. He ʻokoʻa wale nō ka pane o kou ʻōnaehana pale kino i nā mea hoʻoulu like ʻole mai nā kānaka ʻē aʻe.

I ka wā e ʻIke ai i ke Kauka no ka IgA Nephropathy?

Pono ʻoe e hoʻokaʻaʻike i kāu mea mālama ola inā ʻike ʻoe i ke koko i loko o kou mimi a i ʻole inā lilo kou mimi i ʻōhumu a noho pēlā. Hiki i kēia mau loli ke liʻiliʻi, akā hiki iā lākou ke hōʻailona mua e pono ai kou puʻupaʻa i ka nānā.

E ʻimi i ka mālama lapaʻau koke inā ʻike ʻoe i ka pehu ʻaʻole e hele, ʻoi aku hoʻi a puni kou mau maka, lima, a i ʻole wāwae. ʻO ka hoʻonui koke ʻana o ke kaumaha mai ka wai e mālama ʻia ana, ka luhi mau, a i ʻole nā helu koko kiʻekiʻe hou he mau hōʻailona hoʻomaopopo nui nō hoʻi.

Mai kali inā loaʻa iā ʻoe nā hōʻailona koʻikoʻi e like me ka pilikia o ka hanu, ka ʻeha umauma, a i ʻole ka emi nui ʻana o ka mimi. ʻOiai he mea maʻamau ʻole kēia mau mea, hiki iā lākou ke hōʻike i ka emi ʻana o ka hana o kou puʻupaʻa a pono i ka nānā lapaʻau koke.

He aha nā Mea Hōʻeha no ka IgA Nephropathy?

Hiki i ka hoʻomaopopo ʻana i kāu mau mea hōʻeha ke kōkua iā ʻoe e makaʻala i nā hōʻailona hiki a hana pū me kāu hui mālama ola no ka ʻike mua. Aia kekahi mau mea ma waho o kou mana, ʻoiai kekahi e pili ana i kou olakino holoʻokoʻa a me ke ʻano ola.

Nā mea e hoʻonui paha i kou pilikia:

• Ke kāne (hoʻopilikia pinepine ʻia nā kāne ma mua o nā wāhine)
• Makahiki ma waena o 20-40 mau makahiki, ʻoiai hiki ke loaʻa i kēlā me kēia makahiki
• ʻO ka lāhui Asia a i ʻole Caucasian
• Mōʻaukala ʻohana o ka IgA nephropathy a i ʻole ka maʻi puʻupaʻa
• Nā maʻi hanu a i ʻole nā maʻi ʻōpū pinepine
• Kekahi mau kūlana autoimmune
• Ka maʻi ate e hoʻopilikia ana i kou ʻōnaehana pale kino

ʻO ka loaʻa ʻana o kēia mau mea hōʻeha ʻaʻole ia he manaʻo e loaʻa nō ʻoe i ka IgA nephropathy. ʻAʻole loaʻa i ka nui o nā kānaka me nā mea hōʻeha he nui ke kūlana, ʻoiai kekahi poʻe me nā mea hōʻeha liʻiliʻi e loaʻa.

He aha nā pilikia hiki ke loaʻa i ka IgA Nephropathy?

ʻOiai he nui nā kānaka me ka IgA nephropathy e ola ana i nā ola maʻamau, olakino, he mea nui e hoʻomaopopo i nā pilikia hiki ke loaʻa iā ʻoe e hana pū me kāu hui mālama ola e pale aku iā lākou. ulu mālie nā pilikia nui loa i nā makahiki a hiki ke hoʻokele maikaʻi ʻia i ka wā e hopu mua ʻia ai.

ʻO nā pilikia nui āu e ʻike ai:

• Ka maʻi puʻupaʻa lōʻihi e holomua mālie paha i nā makahiki he nui
• Ke koko kiʻekiʻe e paʻakikī ke kaohi
• Ka nalowale o ka protein i loko o ka mimi e alakaʻi ana i ka pehu a me ka luhi
• Ka hāʻule ʻana o ka puʻupaʻa e pono ai ka dialysis a i ʻole ka transplant (i nā hihia koʻikoʻi)
• Hoʻonui ʻia ka pilikia o nā pilikia naʻau a me nā kīʻaha koko
• Ka maʻi iwi mai nā ʻano mineral

Hoʻololi nui ka holomua mai ke kanaka a i ke kanaka. Mālama kekahi poʻe i ka hana puʻupaʻa paʻa no ko lākou ola holoʻokoʻa, ʻoiai kekahi poʻe e ʻike i ka emi mālie. Kōkua ka nānā mau i kāu hui mālama ola e hopu i nā loli mua a hoʻoponopono i kāu papahana lapaʻau e like me ia.

Pehea ka hōʻailona ʻana o ka IgA Nephropathy?

Pono ka hōʻailona ʻana o ka IgA nephropathy i ka hui pū ʻana o nā hoʻokolohua no ka mea hiki i nā hōʻailona ke like me nā kūlana puʻupaʻa ʻē aʻe. E hoʻomaka kāu kauka me nā hoʻokolohua maʻalahi a hiki ke holomua i nā mea kikoʻī hou aku inā pono.

ʻO ka hana hōʻailona maʻamau e komo pū ana i nā hoʻokolohua mimi e nānā ai i ke koko a me ka protein, nā hoʻokolohua koko e loiloi ai i ka hana puʻupaʻa a kāpae i nā kūlana ʻē aʻe, a me nā ana koko kiʻekiʻe. Hiki i kāu kauka ke kauoha i nā haʻawina kiʻi e like me nā ultrasounds e nānā i ke ʻano o kou puʻupaʻa.

ʻO ke ala wale nō e hōʻailona pololei ai i ka IgA nephropathy ma o ka biopsy puʻupaʻa. ʻO kēia kaʻina hana e komo pū ana i ka lawe ʻana i kahi laʻana liʻiliʻi o ka ʻiʻo puʻupaʻa e nānā ai ma lalo o ka microscope. ʻOiai paha ka huaʻōlelo “biopsy” e lohe ʻia he mea weliweli, he hana maʻamau ia o ka outpatient e kōkua ana i kāu kauka e ʻike pono i ka mea e hana nei i loko o kou puʻupaʻa.

He aha ka Lapaʻau no ka IgA Nephropathy?

Ua kaukaʻi ka lapaʻau no ka IgA nephropathy i ka pale ʻana i ka hana o kou puʻupaʻa a me ka hoʻokele ʻana i nā hōʻailona. ʻAʻohe lāʻau e wehe i nā waiho IgA, akā nui nā lapaʻau maikaʻi e hiki ke hoʻolohi i ka holomua a kōkua iā ʻoe e ʻoluʻolu.

E komo paha kāu papahana lapaʻau i nā lāʻau lapaʻau koko kiʻekiʻe, ʻoi aku hoʻi nā ACE inhibitors a i ʻole ARBs, e kōkua ana i ka pale ʻana i kou puʻupaʻa. Hiki i kāu kauka ke ʻōlelo aku i nā lāʻau lapaʻau e hoʻemi i ka protein i loko o kou mimi a, i kekahi manawa, nā lāʻau lapaʻau e hoʻemi i ka mumū.

Pāʻani nā loli ʻano ola i kahi kuleana nui i kāu lapaʻau. E komo pū kēia i ka hahai ʻana i ka ʻai kūpono no ka puʻupaʻa me ka protein a me ka paʻakai i kaohi ʻia, ka noho ʻana i ka hana me ka hoʻoikaika mau, a me ka mālama ʻana i ke kaumaha olakino. E hana pū kāu hui mālama ola me ʻoe e hana i kahi papahana e kūpono i kou kūlana a me ke ʻano ola.

Pehea e mālama ai iā ʻoe iho ma ka home me ka IgA Nephropathy?

ʻO ka mālama ʻana iā ʻoe iho ma ka home he mea nui e like me kāu lapaʻau lapaʻau. Hiki i nā koho liʻiliʻi i kēlā me kēia lā ke hoʻolilo i kahi ʻokoʻa nui i ke ʻano o kou manaʻo a me ka hana o kou puʻupaʻa i ka manawa.

E kau i ka ʻai ʻana i ka ʻai kaulike me ka protein moderate a me ka paʻakai palena. E noho wai maikaʻi ma o ka inu ʻana i ka wai nui i kēlā me kēia lā, ke ʻole kāu kauka e ʻōlelo ʻē aʻe. E pale i nā lāʻau lapaʻau ʻeha ʻole e like me ka ibuprofen, hiki ke hoʻoikaika i kou puʻupaʻa.

E nānā i kou koko kiʻekiʻe mau inā loaʻa iā ʻoe kahi mīkini nānā home, a e mālama i nā loli i loko o kou mimi a i ʻole pehu. Hiki i ka loaʻa ʻana o ka hiamoe lawa, ka hoʻokele ʻana i ke kaumaha ma o nā ʻano hoʻomaha, a me ka noho hou ʻana me nā inikini e pale aku i nā maʻi ke kākoʻo i kou olakino puʻupaʻa holoʻokoʻa.

Pehea ʻoe e hoʻomākaukau ai no kāu hālāwai kauka?

ʻO ka hoʻomākaukau ʻana no kāu mau hālāwai e kōkua iā ʻoe e loaʻa ka nui loa mai kāu manawa me kāu hui mālama ola. E hoʻomaka ma ka mālama ʻana i kahi moʻolelo maʻalahi o nā hōʻailona āu e ʻike ai, me ka wā e loaʻa ai a me ka mea e hoʻoulu ai iā lākou.

E lawe mai i kahi papa inoa piha o nā lāʻau lapaʻau, nā mea hoʻohui, a me nā huaora āu e lawe nei, me nā mea kūʻai aku ma luna o ka papa. E kākau i nā nīnau āu e makemake ai e nīnau ma mua o kou hōʻea ʻana, a mai kānalua e noi i kāu kauka e wehewehe i kekahi mea āu ʻaʻole i hoʻomaopopo.

E noʻonoʻo e lawe mai i kahi lālā ʻohana a i ʻole hoaaloha i nā hālāwai koʻikoʻi. Hiki iā lākou ke kōkua iā ʻoe e hoʻomanaʻo i ka ʻike a hāʻawi i ke kākoʻo. E lawe mai hoʻi i kāu mau kāleka ʻinikua a me nā hopena hoʻokolohua ma mua mai nā mea mālama ola ʻē aʻe.

He aha ka lawe nui e pili ana i ka IgA Nephropathy?

ʻO ka IgA nephropathy kahi kūlana hiki ke hoʻokele ʻia e hoʻopilikia like ʻia i nā kānaka a pau. ʻOiai he kūlana lōʻihi ia e pono ai ka nānā mau, nui nā kānaka e ola ana i nā ola piha, hana me ka lapaʻau kūpono a me ka mālama pono ʻana iā lākou iho.

ʻO ka ʻike mua a me ka hoʻokele mau kāu mau mea hana maikaʻi loa no ka pale ʻana i ka hana o kou puʻupaʻa. ʻO ka hana pili me kāu hui mālama ola, ka noho kūpaʻa i kāu papahana lapaʻau, a me ka hana ʻana i nā koho ola olakino e hiki ke kōkua iā ʻoe e mālama i ka maikaʻi o ke ola.

E hoʻomanaʻo ʻaʻole ka loaʻa ʻana o ka IgA nephropathy e hoʻomaopopo iā ʻoe a i ʻole e kaupalena i ka mea āu e hiki ai ke hoʻokō. Me ke ala kūpono, hiki iā ʻoe ke hoʻomau i ka alualu ʻana i kāu mau pahuhopu ʻoiai e mālama pono ana i kou olakino.

Nā Nīnau Pinepine e pili ana i ka IgA Nephropathy

Q.1 Hiki ke ho'ōla piha ʻia ka IgA nephropathy?

I kēia manawa, ʻaʻohe lāʻau e wehe loa i nā waiho IgA mai kou puʻupaʻa. Eia naʻe, nui nā lapaʻau maikaʻi e hiki ke hoʻolohi a hoʻopau paha i ka holomua o ka maʻi a kōkua i ka hoʻokele ʻana i nā hōʻailona. Me ka mālama kūpono, mālama ka nui o nā kānaka i ka hana puʻupaʻa paʻa no nā makahiki he nui.

Q.2 Pono anei iaʻu ka dialysis inā loaʻa iaʻu ka IgA nephropathy?

ʻAʻole pono ka nui o nā kānaka me ka IgA nephropathy i ka dialysis. Holomua mālie loa ke kūlana i ka hapanui o nā hihia, a he maikaʻi nā lapaʻau hou i ka mālama ʻana i ka hana puʻupaʻa. Ma kahi o 20-30% wale nō o nā kānaka me ka IgA nephropathy e loaʻa ana i ka hāʻule ʻana o ka puʻupaʻa e pono ai ka dialysis a i ʻole ka transplant.

Q.3 Hiki iaʻu ke loaʻa nā keiki inā loaʻa iaʻu ka IgA nephropathy?

Hiki i ka nui o nā kānaka me ka IgA nephropathy ke loaʻa nā hapai olakino a me nā keiki. Eia naʻe, pono ka hapai i ka nānā pono a me ka hoʻoponopono pū ʻana me kāu loea puʻupaʻa a me ka obstetrician. Pono paha ke hoʻoponopono ʻia kekahi mau lāʻau lapaʻau, a pono ʻoe i nā nānā pinepine i ka wā hapai.

Q.4 He mea hoʻoilina anei ka IgA nephropathy?

Loaʻa i ka IgA nephropathy kahi ʻāpana genetic, akā ʻaʻole ia i hoʻoilina pololei e like me kekahi mau kūlana ʻē aʻe. ʻO ka loaʻa ʻana o kahi lālā ʻohana me ka IgA nephropathy e hoʻonui iki i kou pilikia, akā ʻaʻole loaʻa i ka nui o nā kānaka me ke kūlana nā lālā ʻohana i hoʻopilikia ʻia. He paʻakikī a ʻaʻole i maopopo loa nā kumu genetic.

Q.5 Hiki anei i nā loli ʻai ke kōkua maoli i ka IgA nephropathy?

ʻAe, hiki i nā loli ʻai ke hoʻolilo i kahi ʻokoʻa nui i ka hoʻokele ʻana i ka IgA nephropathy. ʻO ka hoʻemi ʻana i ka paʻakai e kōkua i ke kaohi ʻana i ke koko kiʻekiʻe, hiki i ka hoʻomalu ʻana i ka protein ke hoʻemi i ka hana puʻupaʻa, a ʻo ka mālama ʻana i ke kaumaha olakino e kākoʻo i ka olakino puʻupaʻa holoʻokoʻa. Hiki i kāu hui mālama ola ke kōkua iā ʻoe e hana i kahi papahana ʻai mau e kūpono i kou ʻano ola.