He aha ka Myxofibrosarcoma? Nā Hōʻailona, Nā Kumu, a me ka Lapaʻau

ʻO ka myxofibrosarcoma kahi ʻano o ka maʻi kanesa palupalu e ulu ana i nā pūnaewele hoʻopili e like me nā ʻiʻo, nā tendons, a me ka momona. Loaʻa i kēia maʻi kanesa maʻamau kona inoa mai kona ʻano kūikawā ma lalo o ka microscope, kahi e hōʻike ai i ka hui ʻana o nā pūnaewele fibrous a me kahi wai jelly-like i kapa ʻia ʻo ka wai myxoid.

ʻOiai hiki i kēia ʻike ke manaʻo nui, ʻo ka hoʻomaopopo ʻana i kāu mea e hana nei e kōkua iā ʻoe e ʻike ʻoi aku ka mākaukau a me ka mana. Hoʻopili pinepine ʻia ka myxofibrosarcoma i nā mākua ma luna o 50 a hoʻomaka pinepine i nā lima a me nā wāwae, ʻoiai hiki ke loaʻa ma nā wahi ʻē aʻe o ke kino.

He aha nā hōʻailona o ka myxofibrosarcoma?

ʻO ka hōʻailona mua maʻamau kahi ʻāʻī ʻeha ʻole a i ʻole ka pehu e ulu mālie ana i nā hebedoma a i ʻole nā mahina. Nānā mua ka nui o nā kānaka i kēia ʻāʻī i ka wā e ʻauʻau ai, e kāhiko ai, a i ʻole i nā hana maʻamau ke manaʻo lākou i kahi mea ʻaʻole i loaʻa ma mua.

E nānā kākou i nā hōʻailona āu e ʻike ai, e hoʻomanaʻo ana ʻokoʻa nā kūlana o kēlā me kēia kanaka:

• Kahi ʻāʻī palupalu, hiki ke neʻe, a hiki ke manaʻo ʻia he squishy a paʻa paha i ka pā ʻana
• Hoʻonui mālie ʻia ka nui o ka ʻāʻī ma mua o ka manawa
• ʻEha a i ʻole ka ʻeha ma ka wahi i hoʻopilikia ʻia, ʻoi aku hoʻi i ka wā e ulu nui ai ka tumor
• Ka palena ʻana o ka neʻe ʻana a i ʻole ka paʻakikī inā e kaomi ka tumor i nā ʻiʻo a i ʻole nā hui
• Nā loli o ka ʻili ma luna o ka tumor, e like me ka mahana a i ʻole ka liʻiliʻi o ka loli kala
• Pehu i nā pūnaewele a puni

I kekahi mau hihia, ʻaʻole paha ʻoe e ʻike i kekahi hōʻailona a hiki i ka wā e lilo ai ka tumor i nui loa. He mea maʻamau loa kēia a ʻaʻole ia he manaʻo ua hala ʻoe i kahi mea nui. ʻO ka mea nui ka nānā ʻana i kekahi ʻāʻī mau loa e kahi mea mālama ola.

He aha nā kumu o ka myxofibrosarcoma?

ʻAʻole maopopo loa ke kumu pololei o ka myxofibrosarcoma, akā manaʻo nā mea noiʻi e ulu ia i ka wā e loli ai nā pūnaewele maʻamau i kāu pūnaewele hoʻopili e hoʻokumu ai i ka ulu ʻana me ka manaʻo ʻole. Hana pinepine ʻia kēia mau loli ma ka manawa ma mua o ka hoʻoilina ʻia mai nā lālā o ka ʻohana.

Hiki i kekahi mau mea ke kōkua i kēia mau loli o nā pūnaewele, ʻoiai ʻaʻole ia he manaʻo e loaʻa iā ʻoe kēia maʻi kanesa:

• Ka lāʻau radiation ma mua i ka wahi i hoʻopilikia ʻia, ʻoiai he mau makahiki ma mua
• Nā kūlana genetic e hoʻopilikia ana i nā pūnaewele hoʻopili, ʻoiai he mea maʻamau loa kēia
• Ka mumū mau loa i ka pūnaewele ma nā makahiki he nui
• Ka hōʻike ʻia i kekahi mau kemika, ʻoiai ʻaʻole i hōʻoia ʻia kēia pilina
• Nā loli o nā pūnaewele pili i ka makahiki e hōʻiliʻili ana ma mua o ka manawa

He mea nui e ʻike i ka nui o nā hihia, ʻaʻohe kumu maopopo no ke kumu e ulu ai ka myxofibrosarcoma. ʻAʻole kēia kahi mea āu i hana ai a i ʻole hiki ke pale aku ma o nā koho ola ʻē aʻe.

I ka wā hea ʻoe e ʻike ai i ke kauka no kahi ʻāʻī kānalua?

Pono ʻoe e hoʻonohonoho i kahi hālāwai me kāu mea mālama ola inā ʻike ʻoe i kekahi ʻāʻī e mau ana ma mua o ʻelua mau pule a i ʻole e hoʻomau ana i ka ulu ʻana. ʻOiai ʻo ka hapa nui o nā ʻāʻī he benign, ʻo ka loiloi mua ʻana iā lākou e hāʻawi iā ʻoe i nā hopena maikaʻi loa.

E ʻimi i ka mālama lapaʻau wikiwiki inā ʻike ʻoe i kekahi o kēia mau loli:

• Ka ulu wikiwiki ʻana o ka ʻāʻī ma nā lā a i ʻole nā pule
• ʻEha nui e hoʻopilikia ana i kāu mau hana o kēlā me kēia lā
• Nā loli i ka kala ʻili a i ʻole ka mahana ma luna o ka ʻāʻī
• Paʻakikī e hoʻoneʻe i ka lālā i hoʻopilikia ʻia ma ke ʻano maʻamau
• Numbness a i ʻole tingling i ka wahi
• Kekahi ʻāʻī nui ma mua o ka pōpō golf

E hoʻomanaʻo, ʻaʻole wale ka loiloi mua e kōkua i ka ʻike. Hāʻawi pū ia iā ʻoe i ka maluhia o ka manaʻo a hoʻohui iā ʻoe me nā loea kūpono e hiki ke alakaʻi iā ʻoe ma nā ʻanuʻu aʻe.

He aha nā mea pilikia no ka myxofibrosarcoma?

E like me nā maʻi kanesa ʻē aʻe, hiki i ka myxofibrosarcoma ke hoʻokumu i nā pilikia inā ʻaʻole i mālama koke ʻia a i ʻole inā hoʻi hou ia ma hope o ka mālama ʻana. Hiki i ka hoʻomaopopo ʻana i kēia mau mea hiki ke kōkua iā ʻoe e hana pū me kāu hui lapaʻau e nānā pono i kou olakino.

ʻO nā pilikia nui e makaʻala ai:

• Ka hoʻi hou ʻana o ka wahi, kahi e hoʻi hou ai ka maʻi kanesa i ka wahi hoʻokahi ma hope o ka mālama ʻana
• Metastasis, a i ʻole ka pālahalaha ʻana i nā ʻāpana ʻē aʻe o ke kino, ʻoi aku ka pinepine i nā māmā
• Ka hōʻino ʻana i ka hana inā hoʻopilikia ka tumor i nā ʻiʻo a i ʻole nā hui nui
• Ka hōʻino ʻana i nā nerve inā e kaomi ka tumor i nā nerve nui
• Nā pilikia pili i ka mālama ʻana mai ka ʻoki a i ʻole ka lāʻau radiation

ʻO ka ʻoiaʻiʻo maikaʻi, i ka wā i hopu koke ʻia ai a mālama ʻia me ka kūpono, nui nā kānaka me ka myxofibrosarcoma e hana maikaʻi loa. E hana pū kāu hui lapaʻau me ʻoe e hoʻemi i kēia mau pilikia a hopu i nā pilikia koke.

Pehea ka ʻike ʻana i ka myxofibrosarcoma?

Pono ka ʻike ʻana i ka myxofibrosarcoma i kekahi mau ʻanuʻu e hōʻoia i ka ʻike a hoʻomaopopo i ka nui o ka maʻi kanesa. E hoʻomaka kāu kauka me kahi nānā kino a laila e kauoha i nā hoʻokolohua kūikawā e kiʻi i kahi kiʻi maopopo o ka mea e hana nei.

ʻO ka hana ʻike maʻamau e komo pū me kēia mau ʻanuʻu:

1. Nānā kino e loiloi i ka nui, kahi, a me nā ʻano o ka ʻāʻī
2. Nā haʻawina kiʻi e like me MRI a i ʻole CT scans e ʻike i ka nui o ka tumor a me ka pilina i nā pūnaewele a puni
3. Biopsy, kahi e wehe ʻia ai kahi ʻāpana liʻiliʻi o ka pūnaewele a nānā ʻia ma lalo o ka microscope
4. Nā scan hou aku e nānā inā ua pālahalaha ka maʻi kanesa i nā wahi ʻē aʻe
5. Ka hoʻokolohua molecular o ka pūnaewele tumor e alakaʻi i nā hoʻoholo mālama

ʻO ka biopsy ka ʻanuʻu nui loa no ka mea ʻo ia wale nō ke ala e hōʻoia ai i ka ʻike. E wehewehe kāu kauka i ke ʻano o ka biopsy e kūpono loa no kāu kūlana a me ka mea e manaʻo ai i ka wā o ke kaʻina hana.

He aha ka mālama ʻana no ka myxofibrosarcoma?

ʻO ka mālama ʻana no ka myxofibrosarcoma e komo pinepine ana i ka ʻoki ma ke ʻano he ala nui, pinepine pū me nā mālama ʻē aʻe e hāʻawi iā ʻoe i ka manawa maikaʻi loa e ola ai. E hoʻopilikino ʻia kāu papahana mālama i kāu kūlana, e noʻonoʻo ana i nā mea e like me ka nui o ka tumor, kahi, a me ka papa.

Eia ka mea e komo ai i kāu papahana mālama:

• Ka wehe ʻana i ka ʻoki ākea o ka tumor me nā palena maopopo o nā pūnaewele olakino
• Ka lāʻau radiation ma mua a ma hope paha o ka ʻoki e hoʻemi i ka pilikia o ka hoʻi hou ʻana
• Chemotherapy i kekahi mau hihia, ʻoi aku hoʻi inā ua pālahalaha ka maʻi kanesa
• Ka ʻoki hou inā pono e hoʻihoʻi i ka hana a i ʻole ka hiʻohiʻona
• Ka lāʻau kino e kōkua iā ʻoe e hoʻihoʻi i ka ikaika a me ka neʻe ʻana

E komo pū kāu hui oncology i nā loea e like me nā surgical oncologists, nā radiation oncologists, a me nā medical oncologists e hana pū kekahi me kekahi e hoʻonohonoho i kāu mālama. E wehewehe lākou i kēlā me kēia koho mālama a kōkua iā ʻoe e hoʻomaopopo i ka mea e manaʻo ai i kēlā me kēia kahua.

Pehea ʻoe e hoʻokele ai i ka hoʻōla ma ka home?

ʻO ka hoʻōla ʻana mai ka mālama ʻana i ka myxofibrosarcoma he kaʻina hana e lawe i ka manawa, a nui nā mea āu e hiki ke hana ma ka home e kākoʻo i kou hoʻōla ʻana. ʻO ka mālama ʻana iā ʻoe iho i kēia manawa he mea nui e like me nā mālama lapaʻau āu e loaʻa ai.

Eia kekahi mau ʻanuʻu hana e hiki ke kōkua i kou hoʻōla ʻana:

• E hahai pono i kāu mau ʻōlelo aʻo mālama ʻeha e pale aku i ka maʻi
• E lawe i nā lāʻau i kuhikuhi ʻia ma ka papa manawa, me nā mea hoʻoemi ʻeha a me nā antibiotics
• E hele i nā hālāwai hoʻomau a pau, ʻoiai ke ʻoluʻolu nei ʻoe
• E hana i nā hana i kuhikuhi ʻia a i ʻole ka lāʻau kino e mālama i ka neʻe ʻana
• E ʻai i nā meaʻai momona e kākoʻo i ka hoʻōla ʻana a mālama i kou ikaika
• E loaʻa ka hoʻomaha kūpono, no ka mea pono kāu kino i ka ikehu e hoʻōla ai
• E hōʻike koke i kekahi mau hōʻailona pilikia i kāu hui mālama ola

E hoʻomanaʻo ʻokoʻa ka hoʻōla ʻana no kēlā me kēia kanaka. E ʻoi aku ka maikaʻi o kekahi mau lā ma mua o nā mea ʻē aʻe, a he mea maʻamau loa kēlā. Aia kāu hui lapaʻau e kākoʻo iā ʻoe ma ke kaʻina hana holoʻokoʻa.

Pehea ʻoe e hoʻomākaukau ai no kāu mau hālāwai kauka?

ʻO ka hoʻomākaukau ʻana no kāu mau hālāwai lapaʻau e kōkua iā ʻoe e kiʻi i ka nui loa mai kāu manawa me kāu hui mālama ola. Lilo kēia hoʻomākaukau i mea nui loa i ka wā e hana ana me kahi ʻike paʻakikī e like me ka myxofibrosarcoma.

Ma mua o kāu hālāwai, e hōʻiliʻili i kēia ʻike:

• Papa inoa o nā lāʻau lapaʻau, nā mea hoʻohui, a me nā huaora āu e lawe ai
• Ka papa manawa o ka wā āu i ʻike mua ai i nā hōʻailona a pehea lākou i loli ai
• Nā moʻolelo lapaʻau ma mua, ʻoi aku hoʻi nā haʻawina kiʻi a i ʻole nā hopena biopsy
• Mōʻaukala ʻohana o ka maʻi kanesa a i ʻole nā kūlana genetic
• ʻIke ʻinikua a me nā pepa kuhikuhi inā pono

E kākau i kāu mau nīnau ma mua e ʻaʻole ʻoe e poina iā lākou i ka wā o ka hālāwai. E noʻonoʻo e lawe mai i kahi hoaaloha a i ʻole lālā ʻohana hilinaʻi e hiki ke kōkua iā ʻoe e hoʻomanaʻo i nā ʻike nui a hāʻawi i ke kākoʻo manaʻo.

He aha ka mea nui e lawe ai e pili ana i ka myxofibrosarcoma?

ʻO ka myxofibrosarcoma kahi ʻano koʻikoʻi akā hiki ke mālama ʻia o ka maʻi kanesa palupalu e pane maikaʻi i ka mālama kūpono i ka wā i hopu koke ʻia ai. ʻOiai hiki i ka loaʻa ʻana o kēia ʻike ke manaʻo weliweli, ua hoʻomaikaʻi nui nā holomua i ka mālama ʻana i nā hopena no nā kānaka me kēia kūlana.

ʻO ka mea nui loa āu e hiki ke hana, ʻo ia ke hana pū me kāu hui lapaʻau, e hahai i kāu papahana mālama, a e hele i nā hālāwai hoʻomau a pau. Nui nā kānaka me ka myxofibrosarcoma e ola ana i nā ola piha a hana ma hope o ka mālama ʻana.

E hoʻomanaʻo ʻaʻole ʻoe wale nō i kēia huakaʻi. Aia kāu hui mālama ola, ʻohana, a me nā hoaaloha e kākoʻo iā ʻoe i kēlā me kēia ʻanuʻu o ke ala. Mai kānalua e nīnau i nā nīnau, e hōʻike i nā hopohopo, a i ʻole e ʻimi i ke kōkua i ka wā e pono ai.

Nā nīnau i nīnau pinepine ʻia e pili ana i ka myxofibrosarcoma

He hereditary anei ka myxofibrosarcoma?

ʻAʻole pinepine ka hoʻoilina ʻana o ka myxofibrosarcoma mai nā lālā o ka ʻohana. ʻOiai he mea maʻamau loa nā syndromes genetic, ʻo ka hapa nui o nā hihia e hana maʻamau me ka ʻole o ka mōʻaukala ʻohana. ʻAʻole pono ʻoe e hopohopo e hoʻoili i kēia kūlana i kāu mau keiki.

Pehea ka wikiwiki o ka ulu ʻana o ka myxofibrosarcoma?

ʻO ka myxofibrosarcoma e ulu mālie pinepine ana i nā mahina a i nā makahiki, ʻo ia ke kumu ʻaʻole i ʻike nui nā kānaka i nā hōʻailona i ka hoʻomaka. Eia naʻe, hiki i nā wikiwiki ulu ke loli ma muli o ka papa o ka tumor. Hiki i nā tumor kiʻekiʻe ke ulu wikiwiki, ʻoiai e ulu mālie loa nā mea haʻahaʻa.

Hiki ke ho'ōla piha ʻia ka myxofibrosarcoma?

ʻAe, hiki ke hoʻōla ʻia ka nui o nā kānaka me ka myxofibrosarcoma, ʻoi aku hoʻi i ka wā i hopu koke ʻia ai ka maʻi kanesa a ʻaʻole i pālahalaha. Aia ka nui o ka hoʻōla ʻana ma nā mea e like me ka nui o ka tumor, kahi, ka papa, a inā ua pālahalaha. Hiki i kāu oncologist ke hāʻawi iā ʻoe i ka ʻike kikoʻī hou aku ma muli o kāu kūlana pilikino.

He aha ka ʻokoʻa ma waena o ka myxofibrosarcoma haʻahaʻa a me ke kiʻekiʻe?

ʻO ka papa e pili ana i ka ʻano ʻē ʻole o nā pūnaewele kanesa ma lalo o ka microscope a me ka wikiwiki o ka ulu ʻana a me ka pālahalaha ʻana. ʻO nā tumor haʻahaʻa e ulu mālie ana a ʻoi aku ka liʻiliʻi o ka pālahalaha ʻana, ʻoiai ʻoi aku ka ikaika o nā tumor kiʻekiʻe. E hoʻoholo kāu pathologist i ka papa o kāu tumor mai kahi biopsy sample.

Pono anei au i ka chemotherapy no ka myxofibrosarcoma?

ʻAʻole pono nā kānaka a pau me ka myxofibrosarcoma i ka chemotherapy. ʻO ka ʻoki pinepine ka mālama nui, i kekahi manawa hui pū ʻia me ka lāʻau radiation. Hoʻopaʻa ʻia ka chemotherapy no nā hihia kahi i pālahalaha ai ka maʻi kanesa a i ʻole ka pilikia nui o ka pālahalaha ʻana. E kuhikuhi kāu oncologist i ke ala mālama maikaʻi loa no kāu kūlana kūikawā.