He aha ka Neuroblastoma? Nā Hōʻailona, Nā Kumu, & Lapaʻau

ʻO ka neuroblastoma kahi ʻano kanesa e ulu mai ana mai nā pūnaewele nerve ʻōpiopio i kapa ʻia ʻo neuroblasts. Pono kēia mau pūnaewele e ulu i nā pūnaewele nerve maʻamau, akā i ka neuroblastoma, ulu lākou i waho o ke kaohi a hana i nā tumors.

Hoʻopili kēia kanesa i nā keiki wale nō, me ka hapa nui o nā hihia e kū ana ma mua o 5 mau makahiki. ʻOiai hiki i ka huaʻōlelo “kanesa” ke manaʻo nui, he mea nui ia e ʻike he nui nā keiki me ka neuroblastoma e pane maikaʻi i ka lapaʻau, ʻoi aku hoʻi i ka wā i hopu ʻia ai i ka wā mua.

He aha nā hōʻailona o ka neuroblastoma?

Hiki i nā hōʻailona o ka neuroblastoma ke ʻokoʻa loa ma muli o kahi e ulu ai ka tumor a me ka nui o ia mea. ʻOiai hiki i kēia kanesa ke ulu i nā ʻāpana like ʻole o ke kino o kāu keiki, hiki i nā hōʻailona ke like ʻole i ka hoʻomaka.

Eia nā hōʻailona āu e ʻike ai, i hui pū ʻia ma kahi e ʻike pinepine ʻia ai:

Nā hōʻailona laulā e hoʻopili ana i ke kino holoʻokoʻa:

• Fever mau ʻaʻole pane maikaʻi i nā lapaʻau maʻamau
• Pau ke kaumaha ʻaʻole i wehewehe ʻia a i ʻole ka makemake ʻole i ka ʻai
• Luhi a i ʻole ka luhi ʻole e hoʻomaikaʻi ʻole me ka hoʻomaha
• Hoʻonāukiuki a i ʻole nā ​​hoʻololi i ke ʻano maʻamau o kāu keiki
• ʻIli palupalu e hōʻike ana i ka anemia

Nā hōʻailona o ka ʻōpū (ʻoiai he nui nā tumors e hoʻomaka ana i ka wahi ʻōpū):

• Kahi ʻāpana paʻa a i ʻole ka pehu i loko o ka ʻōpū āu e hiki ai ke ʻike
• ʻEha ʻōpū a i ʻole ka ʻoluʻolu ʻole
• Manaʻo piha koke i ka wā e ʻai ai
• Ka constipation a i ʻole nā ​​hoʻololi i nā maʻamau o ka ʻōpū

Nā hōʻailona pili i ka umauma:

• Cough mau ʻaʻole like me ka anu
• Paʻakikī ka hanu a i ʻole ka pōkole o ka hanu
• ʻEha umauma a i ʻole ka ʻoluʻolu ʻole

Nā hōʻailona ʻaʻole pinepine akā he mea nui e nānā:

• ʻEha iwi, ʻoi aku i nā wāwae, kahi e hiki ai ke kumu i ka hele ʻehaʻeha
• ʻUlaʻula a i ʻole nā ​​kiko ʻulaʻula liʻiliʻi ma ka ʻili
• Nā lymph nodes pehu
• Nā pilikia maka e like me nā pōʻai ʻeleʻele, nā maka kaumaha, a i ʻole nā ​​pupils o nā nui like ʻole
• Ke koko kiʻekiʻe
• Ka luaʻi mau

Hiki i kēia mau hōʻailona ke ulu mālie i nā hebedoma a i ʻole nā ​​mahina. Hiki i ka nui o kēia mau hōʻailona ke kumu ʻia e nā maʻi kamaliʻi maʻamau loa, no laila e ho'āʻo mai ʻaʻole e hopohopo inā ʻike ʻoe i hoʻokahi a ʻelua paha. Eia naʻe, inā ʻike ʻia kekahi mau hōʻailona pū kekahi a mau loa aku ma waho o ka mālama ʻana, pono ia e kūkākūkā me kāu kauka pediatrics.

He aha nā ʻano o ka neuroblastoma?

Hoʻokaʻawale nā ​​kauka i ka neuroblastoma ma kekahi mau ʻano e kōkua ai i ka hoʻoholo ʻana i ke ala mālama maikaʻi loa. ʻO ke ala nui a lākou e hoʻokaʻawale ai ʻo ia ma ka pae pilikia, kahi e kōkua ai e wānana i ke ʻano o ka maʻi kanesa.

Ma ka pae pilikia:

• Neuroblastoma haʻahaʻa pilikia: ulu mālie kēia mau tumors a pane maikaʻi pinepine i ka mālama ʻana, i kekahi manawa e emi ana ma o lākou iho
• Neuroblastoma waena pilikia: Pono kēia i ka mālama ʻana ikaika aku akā loaʻa nō nā hopena maikaʻi me ka mālama kūpono
• Neuroblastoma kiʻekiʻe pilikia: ʻOi aku ka ikaika o kēia mau mea a pono i ka mālama ʻana ikaika loa, akā he nui nā keiki e hana maikaʻi mau me ka mālama piha

Ma ka wahi i ke kino:

• Adrenal neuroblastoma: Hoʻomaka i nā adrenal glands ma luna o nā puʻupaʻa (kahi maʻamau loa)
• Neuroblastoma ʻōpū: Hoʻomohala i ka ʻiʻo nerve i ka wahi ʻōpū
• Neuroblastoma umauma: Ulu i ka wahi umauma
• Neuroblastoma pelvic: Hoʻokumu ʻia i ka wahi pelvic (ʻaʻole maʻamau)

E hoʻohana ka hui lapaʻau o kāu keiki i kēia mau māhele pū me nā mea ʻē aʻe e like me ka makahiki a me nā hiʻohiʻona kikoʻī o ka maʻi ʻaʻai e hana i ka papa hana lapaʻau maikaʻi loa. He ʻokoʻa ka pane o kēlā me kēia ʻano i ka lapaʻau, ʻo ia ke kumu e kōkua nui ai kēia ʻōnaehana māhele.

He aha ka mea e hoʻoulu ai i ka neuroblastoma?

ʻAʻole maopopo loa ke kumu o ka neuroblastoma, akā manaʻo nā mea noiʻi ua hana ʻia ia i ka wā i hewa ai kekahi mea i ka wā o ka hoʻomohala ʻana o ka pēpē. I ka wā hāpai, pono e hoʻomohala nā cell kūikawā i kapa ʻia ʻo nā neural crest cells i nā cell nerve makua, akā i kekahi manawa ʻaʻole i hoʻopau pono kēia kaʻina hana.

ʻO ka hapa nui o nā hihia o ka neuroblastoma e kū mai ana ma ka manawa kūpono ʻole, ʻo ia hoʻi, ʻaʻohe mea i hana a ʻaʻole i hana nā mākua i hoʻoulu ai. Ua kapa ʻia kēia he kanesa "sporadic," a loaʻa ia ma kahi o 98% o nā hihia neuroblastoma a pau.

I nā hihia kakaikahi (ma kahi o 1-2% o ka manawa), hiki ke hoʻoilina ʻia ka neuroblastoma, ʻo ia hoʻi, ua hoʻoili ʻia i nā ʻohana. Hana kēia i ka wā e loli ai nā gene kūikawā e kaohi ana i ke ʻano o ka hoʻomohala ʻana o nā cell nerve. ʻO nā ʻohana me ka neuroblastoma hoʻoilina pinepine i nā lālā ʻohana he nui i pilikia a hiki ke loaʻa i ka maʻi ʻaʻai i nā makahiki ʻōpio.

ʻO kekahi mau mea e noiʻi nei nā mea noiʻi, ʻo ia ka hōʻike ʻia ʻana i kekahi mau kemika i ka wā hāpai, akā ʻaʻohe kumu kūlohelohe i hōʻoia ʻia. ʻO ka mea nui e hoʻomaopopo ai, ʻaʻole i hoʻoulu ʻia ka neuroblastoma e kekahi mea hiki iā ʻoe ke pale aku a hoʻomalu paha.

I ka wā e ʻike ai i ke kauka no ka neuroblastoma?

Pono ʻoe e hoʻokaʻaʻike i ke kauka o kāu keiki inā ʻike ʻoe i kekahi hui o nā hōʻailona i ʻōlelo ʻia ma mua, ʻoi aku inā lōʻihi lākou ma mua o hoʻokahi pule a ʻelua paha. ʻOiai ʻo ka hapa nui o kēia mau hōʻailona e hoʻoulu ʻia e nā maʻi maʻamau o ka wā kamaliʻi, ʻoi aku ka maikaʻi o ka nānā ʻana iā lākou.

E ʻimi i ka mālama ola kino wikiwiki inā loaʻa i kāu keiki:

• Pōhaku paʻa i loko o ka ʻōpū e hiki ke ʻike ʻia
• Wela mau loa me ka emi ʻana o ke kaumaha
• ʻEha nui o ka ʻōpū
• Paʻakikī ka hanu
• ʻEha nui o nā iwi a i ʻole ka hiki ʻole ke hele maʻamau
• Kekahi mau loli o ka maka e like me nā maka palupalu a i ʻole nā ​​aniani maka ʻokoʻa

E hilinaʻi i kou mau manaʻo ma ke ʻano he mākua. Inā manaʻo ʻoe ua ʻokoʻa ke olakino a i ʻole ka ʻano o kāu keiki, mai kānalua e kāhea i kāu kauka. Hoʻomaʻamaʻa nā kauka keiki i nā mākua hopohopo a makemake nui e nānā i kahi mea liʻiliʻi ma mua o ka nalo ʻana i kahi mea nui.

Hiki i ka ʻike mua ke hoʻolilo i kahi ʻokoʻa nui i nā hopena o ka mālama ʻana, no laila, ʻo ka makaʻala i nā loli i ke olakino o kāu keiki kekahi o nā mea waiwai loa āu e hiki ai ke hana.

He aha nā kumu pilikia no ka neuroblastoma?

ʻAʻole like me nā maʻi kanesa o nā mākua he nui, ʻaʻohe nui o nā kumu pilikia maopopo o ka neuroblastoma e hiki i nā mākua ke kaohi. ʻAʻohe kumu pilikia i ʻike ʻia i ka hapanui o nā keiki e loaʻa kēia maʻi kanesa.

ʻO nā kumu pilikia nui a nā kauka i ʻike ai e komo pū ana:

Makahiki: ʻO kēia ka mea pilikia nui loa. Ma kahi o 90% o nā hihia neuroblastoma e loaʻa ana i nā keiki ma lalo o 5 mau makahiki, me ka pilikia nui loa i ka makahiki mua o ke ola. Emi nui ka pilikia i ka ulu ʻana o nā keiki.

Kūlana kāne: ʻOi aku ka nui o nā keikikāne e loaʻa i ka neuroblastoma ma mua o nā kaikamahine, akā liʻiliʻi ka ʻokoʻa.

Mōʻaukala ʻohana: I nā hihia kakaikahi loa (1-2% o nā hihia a pau), hiki i ka neuroblastoma ke holo i nā ʻohana. Loaʻa i nā keiki me ka makua a i ʻole ke kaikuaʻana i loaʻa ka neuroblastoma kahi pilikia kiʻekiʻe, akā he hapa liʻiliʻi kēia o nā hihia.

Nā kūlana genetic: Hiki i kekahi mau maʻi genetic kakaikahi ke hoʻonui iki i ka pilikia, akā he mea maʻamau loa kēia mau kūlana.

He mea nui ke hoʻomaopopo ʻaʻole ka nui o nā keiki me ka neuroblastoma i loaʻa kekahi o kēia mau mea pilikia. Hoʻomaka maʻamau ka maʻi ʻaʻai i ka wā o ka ulu ʻana o ka pēpē, ʻaʻohe mea hiki i nā mākua ke hana ʻokoʻa e pale aku ai. ʻAʻole kēia i hana ʻia e ka ʻai, ke ola, a i ʻole nā ​​kumu kūlohelohe āu e hiki ai ke kaohi.

He aha nā pilikia hiki ke loaʻa i ka neuroblastoma?

Hiki i nā pilikia mai ka neuroblastoma ke kū mai i ka ʻōpū ponoʻī a i ʻole mai nā lāʻau lapaʻau i hoʻohana ʻia e hakakā ai. Hiki i ka hoʻomaopopo ʻana i kēia mau mea hiki ke kōkua iā ʻoe e ʻike i nā mea e nānā ai a ʻoi aku ka mākaukau no ka huakaʻi mālama ʻana o kāu keiki.

Nā pilikia mai ka ʻōpū:

• Ke komo ʻana o nā kino kokoke: I ka ulu ʻana o nā ʻōpū, hiki iā lākou ke kaomi i nā puʻupaʻa, nā māmā, a i ʻole nā ​​kino ʻē aʻe, e hoʻopilikia ana i kā lākou hana
• Ke komo ʻana o ka iwi kuamoʻo: Inā ulu ka ʻōpū kokoke i ka iwi kuamoʻo, hiki iā ia ke kaomi i ka iwi kuamoʻo, e hiki ai ke hoʻoulu i ka nāwaliwali a i ʻole ka maʻi ʻole
• Nā pilikia pili i ka hormone: Hoʻokuʻu kekahi mau ʻōpū i nā hormones e hiki ai ke hoʻoulu i ke koko kiʻekiʻe a i ʻole ka luaʻi mau
• Ke pālahalaha ʻana i nā ʻāpana ʻē aʻe o ke kino: Hiki i ka neuroblastoma holomua ke pālahalaha i nā iwi, ka iwi ʻiʻo, ka ate, a i ʻole nā ​​nā huina lymph

Nā pilikia pili i ka lāʻau lapaʻau:

• Ke pilikia o ka maʻi: Hiki i ka chemotherapy ke hoʻohaʻahaʻa i ka helu o nā keʻokeʻo koko, e hoʻolilo ana i nā maʻi i ʻoi aku ka nui
• Nā pilikia lohe: Hiki i kekahi mau lāʻau chemotherapy ke hoʻopilikia i ka lohe
• Nā loli ulu a me ka hoʻomohala ʻana: Hiki i nā lāʻau lapaʻau ikaika ke hoʻopilikia i nā ʻano ulu maʻamau
• Nā maʻi ʻaʻai lua: ʻAʻole pinepine, hiki i ka lāʻau lapaʻau ke hoʻonui i ka pilikia o ka loaʻa ʻana o nā maʻi ʻaʻai ʻē aʻe ma hope i ke ola

ʻOiai paha e manaʻo ʻia he nui loa kēia papa inoa, e hoʻomanaʻo ʻaʻole naʻe, he poʻe akamai nā kauka o kāu keiki i ka pale ʻana a me ka mālama ʻana i kēia mau pilikia. He nui nā keiki e hele ana ma o ka mālama ʻana me ka ʻole o ka loaʻa ʻana o nā pilikia nui, a ʻo nā poʻe i loaʻa iā lākou, pinepine lākou e ola hou loa me ka mālama kūpono.

Ua hoʻolālā ʻia nā ʻano mālama hou e lilo i mea maikaʻi loa i ka hiki ke emi iho kēia mau pilikia. E nānā pono kāu hui olakino i kāu keiki i ka wā o ka mālama ʻana e hopu a hoʻoponopono koke i nā pilikia.

Pehea ka hōʻoia ʻana o ka neuroblastoma?

ʻO ka hōʻoia ʻana o ka neuroblastoma he mau ʻanuʻu, a e hana pū ana ke kime olakino o kāu keiki e loaʻa kahi kiʻi piha. Hoʻomaka pinepine ke kaʻina hana me ka nānā ʻana o kāu kauka lapaʻau a laila neʻe i nā hoʻokolohua kūikawā.

Ka loiloi mua:

E hoʻomaka kāu kauka me kahi nānā kino piha, e ʻimi ana i nā ʻāpana a i ʻole nā ​​pehu, ʻoi aku hoʻi i loko o ka ʻōpū. E nīnau lākou i nā nīnau kikoʻī e pili ana i nā hōʻailona o kāu keiki a me ka manawa i hoʻomaka ai.

Nā hoʻokolohua kiʻi:

• Ultrasound: ʻO ka hoʻokolohua kiʻi mua pinepine, ʻoi aku no nā ʻāpana ʻōpū
• CT scan: Hāʻawi i nā kiʻi kikoʻī o loko o ke kino e hōʻike i ka nui a me ka wahi o ka maʻi ʻaʻai
• MRI: Hāʻawi i nā kiʻi kikoʻī hou aku, kūpono loa no nā maʻi ʻaʻai kokoke i ke kua
• MIBG scan: He hoʻokolohua lāʻau lapaʻau nuklea kūikawā e hiki ke ʻike i nā sela neuroblastoma ma ke kino holoʻokoʻa

Nā hoʻokolohua lapaʻau:

• Nā hoʻokolohua mimi: E nānā i nā kemika kūikawā i hana pinepine ʻia e nā sela neuroblastoma
• Nā hoʻokolohua koko: E ʻimi i nā māka maʻi ʻaʻai a loiloi i ke olakino holoʻokoʻa
• Bone marrow biopsy: E nānā inā ua pālahalaha ka maʻi ʻaʻai i ka iwi ʻiwi

Tissue biopsy:

ʻO ka hōʻoiaʻiʻo ʻana i ka maʻi e pono ai ka nānā ʻana i ka ʻiʻo maʻi ma lalo o ka microscope. Hana pinepine ʻia kēia ma o kahi hana ʻoki liʻiliʻi e wehe ai i kahi ʻāpana o ka maʻi.

ʻO ke kaʻina hana hōʻoia holoʻokoʻa e lawe pinepine i kekahi mau lā a i kekahi mau pule. ʻOiai he pilikia ka kali ʻana no nā hopena, kōkua kēia loiloi hohonu e hōʻoia i ka loaʻa ʻana o kāu keiki i ka mālama kūpono loa no ko lākou kūlana kikoʻī.

He aha ka lāʻau lapaʻau no ka neuroblastoma?

Hoʻopilikino nui ʻia ka mālama ʻana i ka neuroblastoma ma muli o ka makahiki o kāu keiki, nā ʻano o ka maʻi, a me ka nui o kona pālahalaha ʻana. ʻO ka ʻoiaʻiʻo maikaʻi, ua holomua nui nā ala mālama ma nā makahiki i hala, a nui nā keiki me ka neuroblastoma e ola ana i nā ola olakino maʻamau.

ʻO ka ʻoki kino:

ʻO ka ʻoki kino pinepine ka mālama mua, ʻoi aku hoʻi no nā maʻi ʻaʻole i pālahalaha. ʻO ka pahuhopu, ʻo ia ka wehe ʻana i ka nui o ka maʻi e hiki ai, ʻoiai e pale aku i nā kino a me nā ʻano kokoke. I kekahi manawa, ʻaʻole hiki ke wehe piha ʻia i ka hoʻomaka, no laila, hiki ke hana ʻia ka ʻoki kino ma hope o ka emi ʻana o ka maʻi ma hope o nā lāʻau ʻē aʻe.

Ke kemotherapy:

ʻO kēia nā lāʻau ikaika e hoʻopili i nā sela maʻi ma ke kino holoʻokoʻa. E loaʻa paha i kāu keiki kekahi mau lāʻau kemotherapy like ʻole i loko o kekahi mau mahina. Hana pinepine ʻia ka mālama ma o kahi laina waena (kahi IV kūikawā) e ʻoluʻolu ai.

Ka radiation therapy:

Hoʻohana ʻia nā kukuna ikehu kiʻekiʻe e luku i nā sela maʻi i nā wahi kikoʻī. Hoʻolālā pono ʻia kēia mālama e hoʻopili i ka maʻi ʻoiai e pale aku i nā pūnaewele olakino. ʻAʻole pono nā keiki a pau me ka neuroblastoma i ka radiation therapy.

Ka hoʻololi ʻana i nā sela kumu:

No nā hihia pilikia kiʻekiʻe, hiki i nā kauka ke ʻōlelo e hōʻiliʻili i nā sela kumu olakino o kāu keiki ma mua o ka hāʻawi ʻana i nā nui kiʻekiʻe o ka kemotherapy, a laila hoʻihoʻi i nā sela kumu e kōkua i ka hana hou ʻana i ka ʻōnaehana pale.

Immunotherapy:

Ke kōkua nei kēia mau lāʻau hou i ka ʻōnaehana pale o ke keiki e ʻike a hakakā i nā cell kanesa me ka maikaʻi nui aʻe. Ua lilo kēia i ʻāpana nui o ka mālama ʻana no nā keiki he nui me ka neuroblastoma.

Lāʻau i hoʻonohonoho pono ʻia:

Ke hoʻopili nei kēia mau lāʻau i nā hiʻohiʻona kūikawā o nā cell kanesa, ʻoiai ke waiho nei i nā cell maʻamau ma ka hapa nui.

ʻO ka mālama ʻana, ma ka maʻamau, he 12-18 mau mahina, ʻoiai he nui ka ʻokoʻa. E hana ka hui oncology o kāu keiki i kahi hoʻolālā mālama kikoʻī a hoʻoponopono e like me ka pono ma muli o ka pane maikaʻi o kāu keiki.

Pehea e hāʻawi ai i ka mālama home i ka wā o ka mālama ʻana i ka neuroblastoma?

ʻO ka mālama ʻana i kāu keiki ma ka home i ka wā o ka mālama ʻana i ka neuroblastoma, ʻo ia ka hoʻokele ʻana i nā ʻaoʻao kino a me ka manaʻo o ko lākou huakaʻi. E hāʻawi mai kāu hui lapaʻau i nā ʻōlelo kuhikuhi kikoʻī, akā eia kekahi mau kuhikuhi laulā e hiki ke kōkua.

Ke hoʻokele nei i nā hopena ʻaoʻao o ka mālama ʻana:

• Pale ʻana i ka maʻi: E mālama i kāu keiki mai nā lehulehu a me nā poʻe maʻi i ka wā haʻahaʻa o ko lākou ʻōnaehana pale
• Kākoʻo meaʻai: E hāʻawi i nā ʻaina liʻiliʻi pinepine a hana pū me ka meaʻai inā lilo ka makemake i pilikia
• Hydration: E paipai i ka wai nui ke ʻole kāu kauka e aʻo aku i ka ʻē aʻe
• Mālama waha: Hiki i ka holoi mālie a me nā holoi waha kūikawā ke pale aku i nā ʻeha waha ʻeha
• Mālama ʻili: E mālama i ka ʻili maʻemaʻe a me ka pulu, ʻoi aku hoʻi a puni ka wahi laina waena

Ke nānā nei i nā pilikia:

E mālama i kahi moʻolelo o kēlā me kēia lā o ka mahana o kāu keiki, ka makemake, a me nā pae ikehu. E kelepona koke i kāu hui lapaʻau inā ʻike ʻoe i ka mahana, nā hōʻailona o ka maʻi, ka kahe koko maʻamau ʻole, a i ʻole ka luaʻi a me ka luaʻi nui.

Kākoʻo manaʻo:

E mālama i ka maʻamau o ke ola o kāu keiki e like me ka hiki. E hoʻomau i nā hana punahele ke maikaʻi kona ʻano. He nui nā haukapila i loaʻa nā loea ola keiki e hāʻawi i nā kumu kōkua no ke kōkua ʻana i nā keiki e kū i ka mālama.

Ke kula a me nā pilina pilikanaka:

E hana pū me ke kula o kāu keiki e hoʻonohonoho i ka hoʻomau ʻana o ka hoʻonaʻauao i ka wā o ka mālama. Hiki i nā keiki he nui ke hoʻomau i kekahi hana kula mai ka home a i ʻole e hoʻi i ke kula ma waena o nā pōʻai mālama.

E hoʻomanaʻo ʻaʻole pono ʻoe e hoʻokele i nā mea āpau wale nō. Hiki i kāu hui lapaʻau, nā limahana hanauna, a me nā ʻohana ʻē aʻe e hele nei ma nā ʻike like ke hāʻawi i ke kākoʻo nui a me nā ʻōlelo aʻo kūpono.

Pehea ʻoe e hoʻomākaukau ai no kāu mau hālāwai kauka?

ʻO ka hoʻomākaukau maikaʻi ʻana no nā hālāwai e kōkua iā ʻoe e hoʻohana pono i kou manawa me ka hui lapaʻau o kāu keiki a e hōʻoia i kou loaʻa ʻana i nā ʻike āpau āu e pono ai. Eia pehea e hoʻomākaukau ai no nā kūkā mua a me nā kipa mālama mau.

Ma mua o ka hālāwai:

• E kākau i nā hōʻailona āpau āu i ʻike ai, me ka manawa i hoʻomaka ai a pehea lā i loli ai
• E papa inoa i nā lāʻau lapaʻau, nā wikamina, a me nā mea hoʻohui a kāu keiki e lawe ai
• E hoʻomākaukau i ka papa inoa o nā nīnau - e kākau i lalo i ʻole e poina i ka manawa
• E hōʻiliʻili i nā moʻolelo lapaʻau mua a i ʻole nā ​​hualoaʻa hoʻokolohua
• E noʻonoʻo e lawe mai i kahi lālā ʻohana a i ʻole hoaaloha no ke kākoʻo a e kōkua i ka hoʻomanaʻo ʻana i ka ʻike

Nā nīnau āu e makemake ai e nīnau:

• He aha ke ʻano a me ke kahua o ka neuroblastoma o kaʻu keiki?
• He aha nā koho mālama a he aha kāu e ʻōlelo ai?
• He aha nā hopena ʻaoʻao o ka mālama?
• Pehea mākou e ʻike ai inā ke hana nei ka mālama?
• He aha kaʻu e nānā ai ma ka home?
• Aia kekahi mau hana e pono ai e pale aku koʻu keiki?
• He aha nā lawelawe kākoʻo i loaʻa no ko mākou ʻohana?

I ka wā o ka hālāwai:

Mai kānalua e noi i ka ho'ākāka inā ʻaʻole maopopo kekahi mea. E kākau i nā memo a i ʻole e noi inā hiki iā ʻoe ke hoʻopaʻa leo i nā ʻāpana nui o ke kamaʻilio. E hōʻoia i kou hoʻomaopopo ʻana i nā hana e hiki mai ma mua o kou haʻalele ʻana.

Nā mea e lawe mai:

E lawe mai i kāu mau kāleka ʻinikua, kahi papa inoa o nā lāʻau lapaʻau i kēia manawa, nā mea hōʻoluʻolu no kāu keiki, nā mea ʻai māmā, a me nā mea hoʻoikaika no nā kipa lōʻihi paha.

E hoʻomanaʻo e makemake kāu hui lapaʻau e lilo i hoa me ʻoe i ka mālama ʻana i kāu keiki. Ke manaʻo nei lākou i nā nīnau a makemake lākou e ʻike ʻoe a hilinaʻi i ka papahana lapaʻau.

He aha ka mea nui e lawe mai e pili ana i ka neuroblastoma?

ʻO ka neuroblastoma kahi kanesa kamaliʻi, ʻoiai he mea koʻikoʻi, ua ʻike ʻia nā hoʻomaikaʻi nui i nā hopena lapaʻau i nā makahiki i hala. He nui nā keiki me ka neuroblastoma e ola ana i nā ola olakino, maʻamau ma hope o ka lapaʻau.

ʻO nā mea nui loa e hoʻomanaʻo ai, ʻo ia ka ʻike mua ʻana e hana i kahi ʻokoʻa, ʻo ka lapaʻau he mea pilikino loa ia ma muli o ke kūlana kikoʻī o kāu keiki, a ʻaʻole ʻoe wale nō i kēia huakaʻi. Loaʻa i nā hui lapaʻau hou ka ʻike i ka mālama ʻana i ka neuroblastoma a me ke kākoʻo ʻana i nā ʻohana i ka papa hana.

ʻOiai hiki i ka hōʻailona ke manaʻo nui, e kālele i ka lawe ʻana i nā mea hoʻokahi i ka manawa. E alakaʻi kāu hui lapaʻau iā ʻoe ma kēlā me kēia ʻāpana o ka lapaʻau a e kōkua iā ʻoe e hoʻomaopopo i ka mea e manaʻo ai. He nui nā ʻohana i ʻike ua hāʻawi ka hoʻopili ʻana me nā ʻohana ʻē aʻe i hele ma nā ʻike like i ka kākoʻo waiwai a me ka manaʻo.

E hilinaʻi i kāu hui lapaʻau, e noho pili me kāu pūnaewele kākoʻo, a e hoʻomanaʻo he mea kūpaʻa loa nā keiki. Me ka lapaʻau kūpono a me ka mālama, nui nā keiki me ka neuroblastoma e ulu ana.

Nā nīnau pinepine e pili ana i ka neuroblastoma

Q1: He mea make mau anei ka neuroblastoma?

ʻAʻole, ʻaʻole make mau ka neuroblastoma. ʻO kaʻoiaʻiʻo, nui nā keiki me ka neuroblastoma e ola a ola i ke ola maʻamau. Ke hilinaʻi nei ka manaʻo i nā mea he nui, me ka makahiki o ke keiki, kahi i pālahalaha ai ka maʻi kanesa, a me nā ʻano kūikawā o ka ʻōpū. Loaʻa i ka neuroblastoma haʻahaʻa-pilikia nā helu ola maikaʻi loa, pinepine ma luna o 95%. ʻOiai nā hihia kiʻekiʻe-pilikia, ua hoʻomaikaʻi nui ʻia nā hopena me nā ʻano mālama hou.

Q2: Hiki i ka neuroblastoma ke hoʻi mai ma hope o ka mālama ʻana?

ʻAe, hiki i ka neuroblastoma ke hoʻi hou mai, akā ʻaʻole kēia i ka nui o nā keiki. Ke hilinaʻi nei ka pilikia o ka hoʻi hou ʻana i ka māhele pilikia mua o ka ʻōpū. ʻO ka hapa nui o nā hoʻi hou ʻana e hana ana i loko o nā makahiki ʻelua mua ma hope o ka mālama ʻana, ʻo ia ke kumu e nui ai ka mālama hope.

Q3: Hiki i kaʻu keiki ke ola maʻamau ma hope o ka mālama ʻana i ka neuroblastoma?

ʻO ka hapa nui o nā keiki e ola mai ka neuroblastoma e ola i ke ola maʻamau, olakino. Hiki iā lākou ke hele i ke kula, pāʻani haʻuki, a komo i nā hana maʻamau a pau o ke kamaliʻi. Loaʻa paha i kekahi mau keiki nā hopena lōʻihi mai ka mālama ʻana, akā hiki ke hoʻokele maikaʻi ʻia ka nui o kēia mau mea. E nānā kāu hui lapaʻau i ka ulu a me ka hoʻomohala ʻana o kāu keiki a e hoʻoponopono i nā pilikia e kū mai ana.

Q4: Ke hoʻolaha nei anei ka neuroblastoma?

ʻAʻole, ʻaʻole hoʻolaha ka neuroblastoma. ʻAʻole hiki ke pālahalaha mai ke kanaka a i ke kanaka ma o ka hoʻopā ʻana, ka kaʻana like ʻana i ka ʻai, a i ʻole kekahi ala ʻē aʻe. Ke ulu mai ka maʻi kanesa mai nā loli i nā sela ponoʻī o ke kanaka, ʻaʻole mai ka maʻi mai nā germs a i ʻole nā ​​virus. Hiki i kāu keiki ke launa maikaʻi me nā hoaaloha, nā ʻohana, a me nā hoa papa me ka ʻole o ka pilikia o ka hoʻolaha ʻana i ka maʻi.

Q5: Pono anei wau e kiʻi i ka hoʻokolohua genetika no koʻu ʻohana?

Hoʻomaopopo ʻia ka hoʻokolohua genetika ma nā kūlana kūikawā wale nō, no ka mea, he mea maʻamau loa ka neuroblastoma hoʻoilina (1-2% o nā hihia). Hiki i kāu kauka ke manaʻo aku i ka ʻōlelo aʻo genetika inā loaʻa ka neuroblastoma i kou ʻohana, inā ʻike ʻia kāu keiki i kahi ʻōpiopio loa, a i ʻole inā he mau hiʻohiʻona ʻē aʻe. No ka hapa nui o nā ʻohana, ʻaʻole pono ka hoʻokolohua genetika no ka mea, nui loa nā hihia neuroblastoma i hana maʻamau.