He aha ka Neurofibroma? Nā Hōʻailona, Nā Kumu, a me ka Lapaʻau

He ʻano maʻi ʻaʻohe ʻino (ʻaʻole kanesa) ka neurofibroma e ulu ana ma luna a i ʻole a puni nā kiko o nā aʻalolo. E ulu ana kēia mau ʻano palupalu, ʻiʻo i ka wā e hoʻonui nui ai nā sela e kākoʻo a pale aku i kou mau aʻalolo ma mua o ka mea e pono ai.

ʻAʻole pilikia ka hapa nui o nā neurofibroma a ulu mālie i ka manawa. Hiki iā lākou ke ʻike ʻia ma nā wahi āpau o kou kino kahi e loaʻa ai nā aʻalolo, ʻoiai ʻo ka mea maʻamau loa ia ma luna a i lalo iki paha o ka ʻili. ʻOiai he mea weliweli paha ka huaʻōlelo “tumor,” ʻaʻole pinepine kēia mau ulu e lilo i kanesa a nui nā kānaka e noho mālie me lākou.

He aha nā hōʻailona o ka neurofibroma?

ʻO ka hōʻailona maopopo loa o ka neurofibroma ʻo ia kahi ʻano palupalu, ʻano ʻiliʻili e hiki iā ʻoe ke ʻike ma lalo o kou ʻili. ʻAno palupalu kēia mau ʻano i ka wā e pā aku ai ʻoe iā lākou, ʻaʻole like me nā ʻano paʻakikī e ʻike ʻia paha ma nā wahi ʻē aʻe o kou kino.

Eia nā hōʻailona nui e ʻike paha ʻoe:

• Nā ʻano palupalu, neʻe hiki ke neʻe ma lalo o ka ʻili e like me ka ʻiliʻili a i ʻole ka palupalu
• Nā ʻano kala ʻili a i ʻole nā ​​ʻano ʻeleʻele iki e hiki ke palalulu a ʻiliʻili paha
• Ke ʻano tingling a i ʻole ka numbness ma kahi a puni ka ulu
• ʻEha iki a i ʻole ka ʻeha i ka wā e pā ʻia ai ka ʻano
• Ke ʻano ʻiliʻili a i ʻole ka maʻalahi ma ka wahi i pilikia

ʻAʻole pinepine nā neurofibroma e hōʻeha inā ʻaʻole lākou e pā i nā aʻalolo a i ʻole nā ​​mea hana kokoke. Inā loaʻa iā ʻoe nā ulu he nui, e ʻike paha ʻoe iā lākou e ʻike ʻia mālie i nā mahina a i ʻole nā ​​makahiki ma mua o ka manawa hoʻokahi.

He aha nā ʻano o ka neurofibroma?

Hoʻokaʻawale nā ​​kauka i nā neurofibroma i kekahi mau ʻano ma muli o kahi e ulu ai a pehea lākou e nānā ai. Hiki i ka hoʻomaopopo ʻana i kēia mau ʻokoʻa ke kōkua iā ʻoe e ʻike i ka mea e manaʻo ai mai kou kūlana kikoʻī.

ʻO nā ʻano nui e komo pū ana:

• Cutaneous neurofibromas: E ulu ana kēia mau mea ma luna a i lalo iki paha o kou ʻili a ʻo ia ka ʻano maʻamau loa
• Subcutaneous neurofibromas: E ulu ana kēia mau mea i lalo o ka ʻili a hiki ke ʻike ʻia he nui a paʻa paha
• Plexiform neurofibromas: E ulu ana kēia mau mea ma nā pūʻulu aʻalolo nui a hiki ke lilo i mea nui loa
• Spinal neurofibromas: E ulu ana kēia mau mea ma nā aʻalolo i kou kua a ʻaʻole pinepine

ʻO ka maʻamau, he liʻiliʻi nā ʻano cutaneous a me subcutaneous a hōʻeha iki i nā pilikia. ʻOi aku ka liʻiliʻi o nā plexiform neurofibromas akā pono e nānā pono ʻia no ka mea hiki iā lākou ke lilo i kanesa i kekahi manawa a hiki ke hōʻeha i nā hōʻailona hou aku ma muli o ko lākou nui a me ko lākou wahi.

He aha ka mea e hōʻeha ai i ka neurofibroma?

E ulu ana nā neurofibroma i ka wā e hoʻomaka ai nā sela i kapa ʻia ʻo Schwann cells, ka mea maʻamau e pale a kākoʻo i kou mau aʻalolo, e ulu kūpono ʻole. E hana kēia ma muli o nā loli i nā gene kikoʻī e mālama mau i ka ulu ʻana o nā sela.

ʻO nā kumu nui e komo pū ana:

• Neurofibromatosis type 1 (NF1): He maʻi genetic kēia e hōʻeha ai i nā neurofibromas he nui
• Nā loli genetic kūlohelohe: Nā mutations kūlohelohe e hiki ke hōʻeha i nā tumor hoʻokahi
• Nā mutations gene i hoʻoilina ʻia: Nā loli i hoʻoili ʻia mai nā mākua, ʻoiai ʻaʻole pinepine kēia no nā hihia hoʻokahi

Ma kahi o ka hapalua o nā kānaka me NF1 i hoʻoilina i ka maʻi mai ka mākua, ʻoiai ʻo ke koena i loaʻa iā ia mai nā loli genetic hou. Inā loaʻa iā ʻoe hoʻokahi a ʻelua paha neurofibromas me nā hōʻailona ʻē aʻe, ʻaʻole paha ʻoe i loaʻa iā NF1 a ua hana ʻia ka ulu ʻana ma muli o kahi loli genetic kūlohelohe ma kēlā wahi kikoʻī.

I ka wā e ʻike ai i ke kauka no ka neurofibroma?

Pono ʻoe e hoʻonohonoho i kahi manawa me kāu kauka inā ʻike ʻoe i nā ʻano hou a i ʻole nā ​​ʻano ma kou kino, ʻoiai inā ʻaʻole lākou e hōʻeha. ʻOiai ʻaʻole pilikia ka hapa nui o nā neurofibromas, he mea nui ia e loaʻa kahi ʻike kūpono e kāpae i nā kūlana ʻē aʻe.

E ʻimi i ka mālama lapaʻau wikiwiki inā ʻike ʻoe:

• Ka ulu wikiwiki ʻana o kahi ʻano i loaʻa
• ʻEha nui a i ʻole ka numbness ma ka wahi i pilikia
• Nā loli i ke kala a i ʻole ka ʻano o ka ulu
• Nā ʻano hou he nui e ʻike ʻia i loko o ka manawa pōkole
• Ka nāwaliwali a i ʻole ka nalowale o ka hana i nā ʻiʻo kokoke

Inā ʻike mua ʻoe iā ʻoe i loaʻa nā neurofibromas, e kōkua nā nānā maʻamau i kāu kauka e nānā i nā loli. ʻO ka hapa nui o nā kānaka me nā neurofibromas paʻa wale nō ka makahiki makahiki, akā e aʻo aku kāu kauka iā ʻoe i ka papa hana maikaʻi loa no kou kūlana.

He aha nā mea pilikia no ka neurofibroma?

ʻO ka hapa nui o nā neurofibromas e hōʻeha iki i nā pilikia a noho paʻa i kou ola. Eia naʻe, hiki i ka hoʻomaopopo ʻana i nā pilikia e hiki ke kōkua iā ʻoe e ʻike i ka wā e ʻimi ai i ka mālama lapaʻau hou aku.

ʻO nā pilikia e hiki ke komo pū ana:

• Kaomi ʻana o nā aʻalolo: Hiki i nā tumors nui ke pā i nā aʻalolo kokoke, e hōʻeha ai i ka ʻeha a i ʻole ka numbness
• Nā pilikia nani: Hiki i nā ulu ʻike ʻia ke hoʻopilikia i kou helehelena a i ʻole kou hilinaʻi iā ʻoe iho
• Nā pilikia hana: Hiki i nā tumors kokoke i nā hui a i ʻole nā ​​mea hana ke hoʻopilikia i ka neʻe maʻamau
• Malignant transformation: ʻAʻole pinepine, hiki i nā neurofibromas ke lilo i kanesa (ma lalo o 5% o nā hihia)
• Ke kahe koko a i ʻole ka maʻi: Inā e hōʻeha a hoʻonāukiuki hou ʻia kahi ulu

Loaʻa i nā plexiform neurofibromas kahi pilikia kiʻekiʻe iki e lilo i kanesa i hoʻohālikelike ʻia i nā ʻano ʻē aʻe, ʻo ia ke kumu e nānā pono ai nā kauka iā lākou. ʻOiai pēlā, ʻaʻole pinepine ka hapa nui o nā neurofibromas e hōʻeha i nā pilikia olakino koʻikoʻi.

Pehea ka hōʻoia ʻana o ka neurofibroma?

E hoʻomaka kāu kauka ma ka nānā ʻana i ka ulu ʻana a nīnau e pili ana i kou mau hōʻailona a me ka mōʻaukala ʻohana. I nā hihia he nui, hiki i nā kauka ke hōʻoia i ka neurofibroma ma ka nānā wale ʻana iā ia a me ka ʻike ʻana i kona ʻano.

ʻO ke kaʻina hana hōʻoia e komo pū ana:

1. Nānā kino: E ʻike kāu kauka i ka ulu ʻana a e nānā i nā ʻano like ʻē aʻe
2. Mōʻaukala lapaʻau: Ke kūkākūkā ʻana i ka wā i ʻike ʻia ai ka ulu ʻana a me nā hōʻailona
3. Nā hoʻokolohua kiʻi: MRI a i ʻole CT scans inā nui ka tumor a i ʻole ma kahi wahi pilikia
4. Biopsy: ʻAʻole pinepine e pono ʻia, akā hiki ke hana ʻia inā ʻaʻole maopopo ka ʻike
5. Hoʻokolohua genetic: Manaʻo ʻia inā loaʻa iā ʻoe nā neurofibromas he nui a i ʻole ka mōʻaukala ʻohana

ʻAʻole pono nā hoʻokolohua nui i ka hapa nui o nā neurofibromas liʻiliʻi, maʻamau. E manaʻo paha kāu kauka e ʻōlelo i ka kiʻi a i ʻole ka biopsy inā ʻano ʻē aʻe ka ulu ʻana, ulu wikiwiki, a i ʻole e hōʻeha i nā hōʻailona nui.

He aha ka lapaʻau no ka neurofibroma?

ʻAʻole pono ka nui o nā neurofibromas i kekahi lapaʻau a hiki ke nānā wale ʻia i ka manawa. E ʻōlelo aku kāu kauka i ka lapaʻau inā e hōʻeha ka ulu ʻana i nā hōʻailona, ​​hoʻopilikia nui i kou helehelena, a i ʻole e hōʻike i nā loli hopohopo.

ʻO nā koho lapaʻau e komo pū ana:

• Ke kali akahele: Ke nānā mau ʻana i nā tumors liʻiliʻi, paʻa
• Wehe ʻana ma ka ʻoki: ʻO ka lapaʻau maʻamau loa no nā neurofibromas pilikia
• Laser therapy: No nā ulu liʻiliʻi, superficial e hoʻopilikia i ka helehelena
• Nā lāʻau lapaʻau kikoʻī: Nā lāʻau hou no nā plexiform neurofibromas nui
• Mālama ʻeha: Nā lāʻau a i ʻole nā ​​therapies inā e hōʻeha ka tumor i ka ʻoluʻolu ʻole

ʻO ka ʻoki maʻamau ka mea maʻalahi no nā neurofibromas liʻiliʻi, me ka nui o nā kānaka e ola koke. No nā tumors nui a i ʻole nā ​​mea hohonu, hiki ke paʻakikī ke kaʻina hana, akā ʻaʻole pinepine nā pilikia koʻikoʻi. E kūkākūkā kāu kauka i ke ala maikaʻi loa ma muli o kou kūlana kikoʻī.

Pehea e mālama ai i ka neurofibroma ma ka home?

ʻOiai ʻaʻole hiki iā ʻoe ke mālama i nā neurofibromas ma ka home, aia kekahi mau ala e mālama ai i nā hōʻailona a mālama iā ʻoe iho ma waena o nā kipa kauka. Hiki i kēia mau ala ke kōkua iā ʻoe e ʻoluʻolu a hilinaʻi hou aku.

Eia ka mea hiki iā ʻoe ke hana ma ka home:

• Pale i ka wahi: E pale i nā lole paʻa a i ʻole nā ​​hana e hiki ke hoʻonāukiuki i ka ulu ʻana
• Nānā i nā loli: E lawe i nā kiʻi i kēlā me kēia manawa e hahai i nā loli i ka nui a i ʻole ka helehelena
• Mālama i ka ʻoluʻolu ʻole: E hoʻohana i nā mea hoʻoemi ʻeha ma luna o ka counter inā e lilo ka wahi i ʻoluʻolu ʻole
• Mālama i ka ʻili olakino: E hoʻoluʻu i ka wahi a e pale i ka ʻiliʻili a i ʻole ka ʻoki ʻana
• E noʻonoʻo: E aʻo e pili ana i kou maʻi e hana i nā hoʻoholo mālama ola maikaʻi aʻe

Inā loaʻa iā ʻoe nā neurofibromas he nui, ʻo ka mālama ʻana i kahi moʻolelo maʻalahi o ko lākou mau wahi a me nā loli e hiki ke kōkua i kāu mau manawa kauka. E hoʻomanaʻo he maʻamau ka hapa nui o nā loli a ʻaʻole hōʻike i nā pilikia, akā ʻo ka palapala ʻana iā lākou e kōkua i kāu hui mālama ola e hāʻawi i ka mālama maikaʻi aʻe.

Pehea ʻoe e hoʻomākaukau ai no kāu manawa kauka?

Hiki i ka hoʻomākaukau ʻana no kāu manawa ke kōkua iā ʻoe e loaʻa ka nui loa mai kou manawa me kāu kauka a e hōʻoia i ka pane ʻia o kāu mau hopohopo āpau. Hiki i ka hoʻomākaukau iki ke hana i ka kipa hou aku a emi iho ka pilikia.

Ma mua o kāu manawa:

1. E kākau i kou mau hōʻailona: E hoʻomaopopo i ka wā i ʻike mua ai ʻoe i ka ulu ʻana a me nā loli
2. E papa inoa i kāu mau lāʻau lapaʻau: E komo pū me nā lāʻau lapaʻau āpau, nā mea hoʻohui, a me nā lāʻau lapaʻau ma luna o ka counter
3. E hōʻiliʻili i ka mōʻaukala ʻohana: ʻIke e pili ana i nā hoahānau me nā kūlana like a i ʻole nā ​​maʻi genetic
4. E hoʻomākaukau i nā nīnau: E kākau i ka mea āu e makemake ai e ʻike e pili ana i nā koho lapaʻau a me ka prognosis
5. E lawe mai i nā kiʻi: Inā loaʻa iā ʻoe nā kiʻi e hōʻike ana i nā loli i ka manawa, hiki i kēia ke kōkua nui

Mai kānalua e noi i kāu kauka e wehewehe i kekahi mea āu e hoʻomaopopo ʻole ai. ʻO nā nīnau e pili ana i ka ulu ʻana paha o ka ulu ʻana, inā hiki ke lilo i kanesa, a pehea paha e hoʻopilikia ai i kou ola i kēlā me kēia lā he mea kūpono a he mea nui no kou maluhia.

He aha ka mea nui e pili ana i ka neurofibroma?

ʻO nā neurofibromas he mau ulu maʻamau, maʻamau ʻaʻole pilikia e ulu ana ma nā kiko aʻalolo. ʻOiai hiki i ka loaʻa ʻana o kekahi ʻano hou ma kou kino ke hopohopo, ʻaʻole pinepine nā neurofibromas e hōʻeha i nā pilikia olakino koʻikoʻi a nui nā kānaka e ola maʻamau me lākou.

ʻO ka mea nui loa e hoʻomanaʻo ai ʻo ia ka loaʻa ʻana o kahi ʻike kūpono e hāʻawi iā ʻoe i ka maluhia o ka manaʻo a e kōkua iā ʻoe e hana i nā hoʻoholo ʻike e pili ana i kāu mālama. Inā pono kāu neurofibroma i ka lapaʻau a i ʻole ka nānā wale ʻana, ʻo ka hana pū ʻana me kāu hui mālama ola e hōʻoia iā ʻoe e loaʻa iā ʻoe ka mālama kūpono i hoʻopilikino ʻia i kou kūlana kikoʻī.

Inā ua ʻike ʻia ʻoe i ka neurofibroma, e ʻike ʻoe ʻaʻole ʻoe wale nō a loaʻa nā koho mālama maikaʻi. ʻO ka hapa nui o nā kānaka me nā neurofibromas e hoʻomau i ka ola ola, olakino me ka hopena iki mai ko lākou maʻi.

Nā nīnau i nīnau pinepine ʻia e pili ana i ka neurofibroma

Hiki i nā neurofibromas ke nalowale iā lākou iho?

ʻAʻole pinepine nā neurofibromas e nalowale me ka ʻole o ka lapaʻau. Maʻamau lākou e noho paʻa i ka nui a i ʻole e ulu mālie i ka manawa. Eia naʻe, hiki i kekahi mau mea liʻiliʻi ke lilo i mea ʻike ʻole ʻia i kou wā e ulu ai, a ʻaʻole pinepine lākou e hōʻeha i nā pilikia ʻoiai inā lākou e mau.

He ʻeha nā neurofibromas?

ʻAʻole pinepine nā neurofibromas e hōʻeha inā ʻaʻole lākou e pā i nā aʻalolo kokoke a i ʻole e hoʻonāukiuki ʻia e nā lole a i ʻole ka neʻe ʻana. Hiki iā ʻoe ke manaʻo i ka ʻoluʻolu ʻole a i ʻole ka tingling, akā ʻaʻole pinepine ka ʻeha nui a pono e kūkākūkā ʻia me kāu kauka.

Hiki iaʻu ke hoʻoikaika kino me ka neurofibroma?

ʻAe, hiki iā ʻoe ke hoʻoikaika kino maʻamau me nā neurofibromas. Hiki iā ʻoe ke makemake e pale i nā hana e kau i ka kaomi pololei ma ka ulu ʻana a i ʻole e hōʻeha i ka hamo hou ʻana. ʻO ka ʻauʻau ʻana, ka hele wāwae ʻana, a me ka hapa nui o nā haʻuki he mea maʻamau, akā e kūkākūkā i nā hopohopo me kāu kauka.

E ulu hou anei au i nā neurofibromas i ka manawa?

Inā loaʻa iā ʻoe hoʻokahi a ʻelua paha neurofibromas me nā hōʻailona ʻē aʻe, ʻaʻole paha ʻoe e ulu hou aku. Eia naʻe, pinepine nā kānaka me ka neurofibromatosis type 1 e ulu hou i nā ulu i ko lākou ola, ʻoiai i nā manawa o ka loli hormonal e like me ka puberty a i ʻole ka hāpai ʻana.

Pono anei au e hopohopo inā loli koʻu neurofibroma?

ʻO nā loli liʻiliʻi i ka nui, kala, a i ʻole ka ʻano he mea maʻamau, ʻoiai ʻoe e ulu ana. Eia naʻe, pono e loiloi ʻia ka ulu wikiwiki, nā loli kala nui, a i ʻole ka ʻeha hou e kāu kauka. ʻO ka hapa nui o nā loli he mea maikaʻi ʻole, akā ʻoi aku ka maikaʻi o ka nānā ʻana iā lākou e hōʻoia.