He aha ka Sjögren's Syndrome? Nā Hōʻailona, Nā Kumu, & Lapaʻau

ʻO ka Sjögren's syndrome kahi maʻi autoimmune kahi e hoʻouka ai ka ʻōnaehana pale kino o kou kino i nā kiko e hana ana i ka wai, ʻo ia hoʻi nā mea hana i nā waimaka a me ka saliva. Ke alakaʻi nei kēia i nā maka maloʻo mau a me ka waha maloʻo ma ke ʻano he mau hōʻailona maʻamau loa.

E noʻonoʻo iā ia ma ke ʻano he ʻōnaehana pale o kou kino e huikau ana a e hoʻopili ana i nā wahi kūpono ʻole. ʻOiai paha kēia e lohe ai, nui nā kānaka me ka Sjögren's syndrome e ola ana i nā ola piha, hana me ka hoʻokele kūpono a me ka mālama.

He aha ka Sjögren's Syndrome?

ʻO ka Sjögren's syndrome kahi maʻi autoimmune mau loa e pili nui ana i nā kiko hana wai o kou kino. Hoʻomaka kāu ʻōnaehana pale, ka mea maʻamau e pale aku iā ʻoe mai nā maʻi, e hoʻouka i nā pūnaewele olakino ma kahi.

Loaʻa i kēia kūlana kona inoa mai ka Dr. Henrik Sjögren, kahi kauka maka Suika e wehewehe mua iā ia i ka makahiki 1933. ʻO ia kekahi o nā maʻi autoimmune maʻamau loa, e pili ana i nā miliona o nā kānaka ma ka honua holoʻokoʻa.

ʻO ka hapa nui o nā kānaka me ka Sjögren's syndrome he mau wāhine, a hoʻomaka maʻamau ia ma waena o nā makahiki 40 a me 60. Eia naʻe, hiki ke loaʻa i kēlā me kēia makahiki a i kekahi manawa e pili ana i nā kāne a me nā keiki pū kekahi.

He aha nā Hōʻailona o ka Sjögren's Syndrome?

ʻO nā hōʻailona hōʻailona o ka Sjögren's syndrome e pili ana i ka maloʻo, akā hiki i kēia kūlana ke hoʻopili i kou kino holoʻokoʻa. E hele kākou ma nā mea āu e ʻike ai, e hoʻomaka ana me nā hōʻailona maʻamau loa.

ʻO nā hōʻailona nui e komo pū ana:

• Nā maka maloʻo mau e manaʻo ai he ʻiliʻili, puhi, a i ʻole e like me ka one i loko o lākou
• Waha maloʻo e hana ai i ka ʻai ʻana, ʻōlelo ʻana, a i ʻole ka ʻai ʻana i ka paʻakikī
• Paʻakikī i ka hana ʻana i nā waimaka, ʻoiai inā ʻoe e manaʻo a ʻokiʻoki paha i nā ʻaniani
• Saliva mānoanoa, pipili a liʻiliʻi loa paha ka hana ʻana o ka saliva
• Nā pilikia niho pinepine e like me nā lua a i ʻole nā ​​maʻi gum
• Luhi mau ʻole e hoʻomaikaʻi ʻole me ka hoʻomaha

He nui hoʻi ka poʻe e ʻike ana i nā hōʻailona lua e hiki ke hoʻopilikia nui i ke ola o kēlā me kēia lā. ʻO kēia paha ke komo pū ʻana o ka ʻeha a me ka paʻakikī o nā hono, ʻoi loa i ke kakahiaka, ka ʻili maloʻo e manaʻo ʻia he paʻa a i ʻole he ʻiliʻili, a me ka hū maloʻo mau.

Ua hoʻomohala kekahi poʻe i ka mea i kapa ʻia ʻo “brain fog” - ka paʻakikī o ka hoʻomaopopo ʻana a i ʻole ka hoʻomanaʻo pono ʻana i nā mea. Hiki paha iā ʻoe ke ʻike i nā loli i ka ʻono, nā maʻi yeast hou, a i ʻole nā ​​pilikia digestive.

I nā hihia kakaʻikahi, hiki i ka maʻi Sjögren ke hoʻopilikia i nā ʻōnaehana nui. ʻO kēia paha ke komo pū ʻana o nā pilikia o ka puʻupaʻa, ka mumū o nā māmā, ka mumū o nā kīʻaha koko, a i ʻole nā ​​pilikia o ka ʻōnaehana nerve. ʻOiai he mea maʻamau ʻole kēia mau pilikia koʻikoʻi, hōʻike lākou i ke kumu e pono ai ka mālama lapaʻau kūpono.

He aha nā ʻAno o ka Maʻi Sjögren?

Hoʻokaʻawale ʻia ka maʻi Sjögren i ʻelua ʻano nui ma muli o ka loaʻa ʻana ma ke kū hoʻokahi a i ʻole me nā maʻi autoimmune ʻē aʻe. Ke hoʻomaopopo ʻia kēia mau ʻano, kōkua ia i nā kauka e hāʻawi i ka mālama kūpono loa.

Loaʻa ka maʻi Sjögren mua ke ulu wale ka maʻi, me ka ʻole o nā maʻi autoimmune ʻē aʻe. ʻO kēia ka ʻano maʻamau loa a kau nui ʻia ma nā hōʻailona maʻamau o nā maka maloʻo a me ka waha maloʻo.

Loaʻa ka maʻi Sjögren lua ke loaʻa mua iā ʻoe kahi maʻi autoimmune ʻē aʻe e like me ka maʻi rheumatoid, lupus, a i ʻole scleroderma. I kēia hihia, ʻike ʻia ka maʻi Sjögren ma ke ʻano he papa hou o ka paʻakikī i kou maʻi i loaʻa.

ʻAʻole pono ke ʻano o ka loaʻa ʻana o ka maʻi Sjögren lua e ʻoi aku ka nui o kou mau hōʻailona, ​​akā pono ia i ka mālama hoʻohuihui ʻia ma waena o nā loea like ʻole. Pono kāu papahana mālama e hoʻoponopono i nā maʻi ʻelua i ka manawa like.

He aha ka mea e hoʻokumu ai i ka Maʻi Sjögren?

ʻAʻole maopopo loa ke kumu kūpono o ka maʻi Sjögren, akā manaʻo nā mea noiʻi ua loaʻa ia mai ka hui pū ʻana o ka hoʻoilina kino a me nā mea hoʻouluulu mai ke kaiapuni. ʻAʻole hōʻoia kāu mau gene e loaʻa iā ʻoe ka maʻi, akā hiki iā lākou ke hoʻonui i kou pilikia.

He nui nā mea e hana pū ana paha e hoʻoulu i ka maʻi:

• Nā kumu kino - hana kekahi mau gene i kekahi poʻe i nā mea nāwaliwali
• Nā maʻi viral - hiki i nā mea maʻi viral e like me ka maʻi Epstein-Barr ke hoʻoulu i ka pane autoimmune
• Nā maʻi bacteria - hiki i kekahi mau maʻi bacteria ke komo pū
• Nā loli hormonal - hiki i nā loli estrogen ke hoʻopili i ka hoʻomohala ʻana
• Nā kumu kaiapuni - ka hōʻike ʻia ʻana i kekahi mau kemika a i ʻole ka pilikia

ʻOi aku ka nui o ka maʻi i nā ʻohana, e hōʻike ana i kahi ʻāpana kino. Eia naʻe, ʻaʻole manaʻo ʻia e loaʻa iā ʻoe inā loaʻa i kou ʻohana ka maʻi Sjögren.

ʻO ka mea e hana ana i loko o kou kino, ʻo ia ka hoʻomaka ʻana o kou ʻōnaehana pale e hana i nā antibodies e hoʻouka i kou mau pūnaewele ponoʻī, ʻoiai nā glands e hana ana i ka wai. Hana kēia i ka mumū mau loa e hōʻino mālie i kēia mau glands ma hope o kekahi manawa.

I ka wā e ʻike ai i ke Kauka no ka maʻi Sjögren?

Pono ʻoe e noʻonoʻo e ʻike i ke kauka inā loaʻa iā ʻoe nā maka maloʻo mau a me ka waha maloʻo e hoʻopilikia ana i kāu mau hana o kēlā me kēia lā. ʻOiai he mea maʻamau ka maloʻo ʻana i kekahi manawa, pono ka nānā ʻana o ke kauka i nā hōʻailona mau loa ʻaʻole i hoʻomaikaʻi ʻia me nā lāʻau lapaʻau kūʻai ʻia.

Hoʻonohonoho i kahi manawa inā ʻike ʻoe i kēia mau hōʻailona hōʻailona:

• Nā maka maloʻo ʻaʻole i hoʻomaikaʻi ʻia me nā waimaka hana
• Paʻakikī ka ʻai ʻana i nā meaʻai maloʻo a i ʻole ka inu pinepine ʻana i ka wai
• Ka luhi mau loa e hoʻopilikia ana i kāu hana o kēlā me kēia lā
• ʻEha a me ka paʻakikī o nā hui, ʻoi aku hoʻi i ke kakahiaka
• Nā pilikia niho mau loa ʻoiai he maikaʻi ka mālama waha
• Ka ʻōhū maloʻo mau loa me ke kumu maopopo ʻole

E hele koke i ka lāʻau lapaʻau inā loaʻa iā ʻoe nā loli ʻike koke, ka ʻeha ʻōpū nui, ka maʻi a i ʻole ka nāwaliwali i kou mau lālā, a i ʻole ka pilikia o ka hanu. Hiki i kēia mau mea ke hōʻike i nā pilikia maʻamau akā koʻikoʻi e pono ai ka nānā koke.

Hiki i ka ʻike mua ʻana a me ka mālama ʻana ke kōkua i ka pale ʻana i nā pilikia a hoʻomaikaʻi nui i kou ola. Mai kali a hiki i ka nui o nā hōʻailona - hiki i kāu kauka ke kōkua ʻoiai me nā hōʻailona māmā.

He aha nā kumu pilikia no ka maʻi Sjögren?

He nui nā mea hiki ke hoʻonui i kou manawa e loaʻa ai ka maʻi Sjögren, ʻoiai ʻaʻole hōʻoia ka loaʻa ʻana o nā kumu pilikia e loaʻa iā ʻoe ka maʻi. Hiki i ka hoʻomaopopo ʻana i kēia mau mea ke kōkua iā ʻoe a me kāu kauka e makaʻala no nā hōʻailona mua.

ʻO nā kumu pilikia nui loa:

• ʻO ka wahine ʻana - ʻoi aku ka nui o nā wahine i ka 9 mau manawa e loaʻa ai ka maʻi
• Ka makahiki - ʻoi aku ka nui o nā hihia ma waena o 40-60 mau makahiki
• Ka mōʻaukala ʻohana o nā maʻi autoimmune
• Ke loaʻa nei i kahi maʻi autoimmune ʻē aʻe e like me ka maʻi rheumatoid a i ʻole ka lupus
• Kekahi mau hōʻailona genetic, ʻo nā gene HLA kekahi
• Nā maʻi viral ma mua, ʻo ka Epstein-Barr virus kekahi

He kuleana ko nā mea hormonal, ʻo ia paha ke kumu o ka nui o ka maʻi i nā wahine. Hiki i nā loli i ka wā o ka menopause, ka hāpai ʻana, a i ʻole ke lawe ʻana i kekahi mau lāʻau lapaʻau ke hoʻololi i kou pilikia.

Hiki i nā mea kaiapuni ke komo pū, ʻoiai ke hoʻomau nei ka noiʻi. Ke manaʻo nei kekahi mau haʻawina i ka hōʻike ʻia ʻana i kekahi mau kemika, ka pilikia mau, a i ʻole ka noho ʻana i nā wahi kūikawā paha e hoʻonui ai i ka pilikia.

He aha nā pilikia hiki ke loaʻa i ka maʻi Sjögren?

ʻOiai he nui nā kānaka me ka maʻi Sjögren e hoʻokele pono i ko lākou maʻi, he mea nui ia e hoʻomaopopo i nā pilikia hiki ke loaʻa iā ʻoe e hiki ai iā ʻoe ke hana pū me kāu hui olakino e pale aku iā lākou. Hiki ke hoʻokele ʻia ka hapa nui o nā pilikia ke hopu ʻia i ka wā mua.

ʻO nā pilikia maʻamau āu e hālāwai ai:

• Nā pilikia niho - nā lua, nā maʻi ʻāʻī, a me ka nalowale o nā niho ma muli o ka nele o ka waiʻona
• Nā pilikia maka - ka pōʻino o ka cornea, nā maʻi, a i ʻole nā pilikia ʻike
• Nā maʻi hou - ʻoi aku ka maʻi yeast a i ʻole nā maʻi hanu
• Nā pilikia ʻāpana - ka pilikia o ka ʻai ʻana, ka acid reflux, a i ʻole nā pilikia ʻōpū
• Nā pilikia ʻili - ka maloʻo mau, nā ʻili ʻili, a i ʻole nā ʻoki lohi e hoʻōla

Hiki i nā pilikia liʻiliʻi ʻoi aku ka nui ke hoʻopilikia i nā ʻōnaehana nui. Hiki ke komo pū me nā pilikia puʻupaʻa, ka mumū o nā māmā, ka mumū o nā kīʻaha koko, a i ʻole nā pilikia o ka ʻōnaehana hoʻoikaika e like me ka peripheral neuropathy.

I nā hihia kakaikahi, loaʻa i nā kānaka me ka Sjögren's syndrome kahi pilikia iki e ulu ai ka lymphoma, kahi ʻano o ka maʻi kanesa koko. Eia naʻe, he liʻiliʻi loa kēia pilikia, a kōkua ka nānā mau ʻana e hopu i nā pilikia i ka wā mua.

ʻO ke kī i ka pale ʻana i nā pilikia, ʻo ia ka hana pili loa me kāu hui olakino a hahai mau i kāu papa hana lapaʻau. Hāʻawi nā nānā maʻamau i kāu kauka e nānā i kou kūlana a hoʻoponopono i ka lapaʻau e like me ka pono.

Pehea e hiki ai ke pale ʻia ka Sjögren's Syndrome?

ʻAʻole maopopo, ʻaʻohe ala i ʻike ʻia e pale aku ai i ka Sjögren's syndrome ʻoiai he kūlana autoimmune ia me nā ʻāpana genetic a me nā ʻāpana kaiapuni ʻaʻole i maopopo loa. Eia naʻe, hiki iā ʻoe ke lawe i nā ʻanuʻu e hoʻemi i kou pilikia o nā pilikia a hoʻokele i nā hōʻailona inā ulu lākou.

ʻOiai ʻaʻole hiki iā ʻoe ke pale aku i ke kūlana ponoʻī, hiki iā ʻoe ke kākoʻo i kou olakino ʻōnaehana pale kino ma o nā koho nohona. ʻO ka ʻai ʻana i ka meaʻai kaulike piha i nā meaʻai anti-inflammatory, ka loaʻa ʻana o ka hoʻoikaika kino maʻamau, ka hoʻokele ʻana i ke kaumaha, a me ka loaʻa ʻana o ka hiamoe lawa e kākoʻo ana i nā hana kūlohelohe o kou kino.

Inā loaʻa iā ʻoe nā mea pilikia e like me ka mōʻaukala ʻohana a i ʻole nā kūlana autoimmune ʻē aʻe, ʻo ka makaʻala ʻana i nā hōʻailona mua e kōkua iā ʻoe e loaʻa koke i ka lapaʻau. Hoʻomaka pinepine ka hoʻoponopono mua i nā hopena maikaʻi a hiki ke pale aku i kekahi mau pilikia.

He mea nui loa ka mālama niho maʻamau a me nā hoʻokolokolo maka inā ʻoi aku ka nui o kou pilikia. Hiki i kēia mau hana pale ke hopu i nā pilikia ma mua o ko lākou lilo ʻana i mea koʻikoʻi, ʻoiai inā ʻaʻohe ou hōʻailona.

Pehea ka Hōʻoia ʻana o ka Sjögren's Syndrome?

ʻO ka hōʻoia ʻana i ka Sjögren's syndrome he mau ʻanuʻu no ka mea ʻaʻohe hoʻokolohua hoʻokahi e hiki ke hōʻoia maopopo i ke kūlana. E hoʻohui kāu kauka i kāu mau hōʻailona, nā ʻike o ka nānā kino, a me nā hoʻokolohua like ʻole e hana i ka hōʻoia.

E hoʻomaka kāu kauka ma ka nīnau ʻana i kāu mau hōʻailona a me ka mōʻaukala lapaʻau. Makemake lākou e ʻike e pili ana i nā maka maloʻo, ka waha maloʻo, ka luhi, ka ʻeha o nā hono, a me kekahi mōʻaukala ʻohana o nā maʻi autoimmune.

ʻO ke kaʻina hana hōʻoia maʻamau e komo pū ana me:

• Nā hoʻokolohua koko e nānā i nā antibody kūikawā e like me anti-SSA/Ro a me anti-SSB/La
• Hoʻokolohua Schirmer e ana i ka hana waimaka
• Nā hoʻokolohua hana salivary gland e loiloi i ka hana saliva
• Nānā maka e nānā i nā hōʻailona o ka maʻi maka maloʻo
• I kekahi manawa he biopsy lip e nānā i ka ʻiʻo salivary gland

Ke nānā nei nā hoʻokolohua koko i nā antibody i maʻamau i ka Sjögren's syndrome, ʻoiai ʻaʻole nā ​​​​kānaka a pau me ke kūlana i loaʻa kēia mau antibody. Hiki i kāu kauka ke nānā pū no ka rheumatoid factor a me nā mea hōʻailona ʻē aʻe o ka hana autoimmune.

I kekahi mau hihia, hiki i kāu kauka ke ʻōlelo aku i nā haʻawina kiʻi e like me ka ultrasound salivary gland a i ʻole sialography e kiʻi i kahi hiʻohiʻona maikaʻi aʻe o kāu mau gland. Kūleʻa kēia mau hoʻokolohua i ka hoʻopau ʻana i nā kūlana ʻē aʻe a hōʻoia i ka hōʻoia.

He aha ka Lapaʻau no ka Sjögren's Syndrome?

ʻO ka lapaʻau no ka Sjögren's syndrome e kau nui ana i ka hoʻokele ʻana i nā hōʻailona, ​​ka pale ʻana i nā pilikia, a me ka hoʻomaikaʻi ʻana i kou ola. ʻOiai ʻaʻohe lāʻau lapaʻau, nui nā lapaʻau maikaʻi e hiki ke kōkua iā ʻoe e ʻike maikaʻi aʻe a pale i kou olakino.

E hoʻopilikino ʻia kāu papa hana lapaʻau ma muli o kāu mau hōʻailona kūikawā a me ko lākou koʻikoʻi. ʻOi aku ka pōmaikaʻi o ka hapa nui o nā kānaka mai ka hoʻohui ʻana o nā ʻano hana ma mua o ka hilinaʻi ʻana i hoʻokahi lapaʻau wale nō.

No nā maka maloʻo, ʻo nā koho lapaʻau e komo pū ana:

• Nā waimaka hana a me nā waimaka lubricating e hoʻohana ʻia i ka lā holoʻokoʻa
• Nā lāʻau lapaʻau kuhikuhi e like me ka cyclosporine a i ʻole ka lifitegrast e hōʻemi i ka mumū
• Nā mea kanu punctal - nā mea liʻiliʻi e kāohi ana i ka hoʻokahe waimaka e mālama i nā maka i ka pulu lōʻihi
• Nā aniani keʻena pulu a i ʻole nā ​​aniani pale maka e hōʻemi i ka hoʻoheheʻe ʻana o ka waimaka

No ka waha maloʻo, hiki i kāu kauka ke ʻōlelo aku:

• Nā mea pani saliva a me nā mea hoʻomehana waha
• Nā lāʻau lapaʻau kuhikuhi e like me ka pilocarpine a i ʻole ka cevimeline e hoʻoulu i ka hana ʻana o ka saliva
• Ka ʻai ʻana i ka ʻai ʻole kō a i ʻole nā ​​lozenges e hoʻoikaika i ke kahe kūlohelohe o ka saliva
• Nā lapaʻau fluoride a me nā toothpaste kūikawā e pale aku i kou mau niho

No ka ʻeha o nā hono a me nā hōʻailona o ke kino holoʻokoʻa, hiki ke komo pū ka lapaʻau ʻana i nā lāʻau anti-inflammatory nonsteroidal (NSAIDs), hydroxychloroquine no ka luhi a me ka ʻeha o nā hono, a i nā hihia koʻikoʻi, nā lāʻau immunosuppressive e like me ka methotrexate.

Inā loaʻa iā ʻoe nā pilikia e pili ana i nā ʻōnaehana nui, hiki i kāu kauka ke ʻōlelo aku i nā lāʻau ikaika e kāohi i kou ʻōnaehana pale. Pono kēia mau lapaʻau i ka nānā pono akā hiki ke loaʻa ka hopena maikaʻi loa no nā pilikia koʻikoʻi.

Pehea e lawe ai i ka lapaʻau home i ka wā o ka Sjögren's Syndrome?

He kuleana nui ka mālama ʻana i ka home i ka nohona maikaʻi me ka maʻi Sjögren. Hiki i nā hana maʻamau o kēlā me kēia lā ke hoʻomaikaʻi nui i kou ʻoluʻolu a kōkua i ka pale ʻana i nā pilikia.

No ka mālama ʻana i nā maka maloʻo i ka home:

• E hoʻohana i ka mea hoʻomehana i loko o kou lumi moe a me nā wahi noho nui
• E hoʻomaha mai nā pale kamepiula a me ka pīpī ʻana i nā maka pinepine
• E kāhiko i nā aniani pale maka ma waho e pale aku ai i ka makani a me ka lā
• E kau i nā mea hoʻomehana ma luna o kou mau maka no 10-15 mau minuke i kēlā me kēia lā
• E pale aku i ka uahi, nā pā i puhi pololei ʻia ma kou maka, a me nā wahi maloʻo loa

No ka mālama ʻana i ka waha maloʻo:

• E inu pinepine i ka wai i ka lā holoʻokoʻa, ʻoi aku hoʻi i ka wā e ʻaina ai
• E hoʻohana i ka mea hoʻomehana i ka wā e hiamoe ai
• E pale aku i ka waiʻona, ka caffeine, a me ka paka, ka mea e hiki ai ke hoʻoʻino i ka maloʻo
• E koho i nā meaʻai palupalu, pulu a pale aku i nā meaʻai paʻakai a ʻawaʻawa loa
• E hana i ka mālama waha maikaʻi loa me ka toothpaste fluoride a me ka floss mau

ʻO ka mālama ʻana i ka luhi e pili ana i ka hoʻolālā ʻana iā ʻoe iho i ka lā holoʻokoʻa, ka hoʻomaopopo ʻana i ka hiamoe hoʻomaha, a me ka noho ʻana i ka hana e like me kou hiki. Hiki i nā hana māmā e like me ka ʻauʻau a i ʻole ka hele wāwae ke kōkua i ka mālama ʻana i kou ikehu.

E mālama i kahi puke moʻolelo hōʻailona e hahai i nā mea e hoʻonāukiuki ai i kou mau hōʻailona a me nā mea e kōkua ai. He waiwai kēia ʻike no kāu hui olakino a kōkua iā ʻoe e ʻike i nā ʻano i kou kūlana.

Pehea ʻoe e hoʻomākaukau ai no kāu ʻaha kūkā kauka?

Hiki i ka hoʻomākaukau ʻana no kāu ʻaha kūkā ke kōkua iā ʻoe e hoʻohana pono i kou manawa me kāu kauka a hōʻoia iā ʻoe e loaʻa iā ʻoe ka mālama āu e pono ai. He lōʻihi ka hoʻomākaukau iki i ka loaʻa ʻana o ka ʻike pololei a me ka mālama pono.

Ma mua o kāu ʻaha kūkā, e kākau i kāu mau hōʻailona a pau, me ka manawa i hoʻomaka ai lākou, ka mea e hoʻomaikaʻi ai a ʻino paha iā lākou, a pehea lākou e hoʻopilikia ai i kou ola i kēlā me kēia lā. E kūikawā e pili ana i ka maloʻo āu e ʻike ai a me nā hōʻailona ʻē aʻe e like me ka luhi a i ʻole ka ʻeha o nā hono.

E lawe mai i kahi papa inoa piha o:

• ʻO nā lāʻau āpau āu e lawe nei, me nā lāʻau kūʻai ʻole a me nā mea hoʻohui
• Kekahi mau kūlana olakino ma mua a i ʻole nā ​​​​ʻoki kino
• Mōʻaukala ʻohana o nā maʻi autoimmune
• Nā nīnau āu e makemake ai e nīnau i kāu kauka
• Nā hopena hoʻokolohua hou a i ʻole nā ​​​​moʻolelo lapaʻau mai nā kauka ʻē aʻe

E noʻonoʻo e lawe mai i kahi hoaaloha a hoa ʻohana paha i hilinaʻi ʻia i kāu ʻaha kūkā. Hiki iā lākou ke kōkua iā ʻoe e hoʻomanaʻo i ka ʻike nui a hāʻawi i ke kākoʻo manaʻo i ka manawa paʻakikī.

Mai makaʻu e nīnau i nā nīnau e pili ana i kou kūlana, nā koho mālama, a me ka mea e manaʻo ai i ka wā e hiki mai ana. Makemake kāu kauka e kōkua iā ʻoe e hoʻomaopopo i kou kūlana a manaʻo hilinaʻi e pili ana i kāu hoʻolālā mālama.

He aha ka lawe nui e pili ana i ka Sjögren's Syndrome?

ʻO ka Sjögren's syndrome kahi kūlana autoimmune hiki ke mālama ʻia e hoʻopili nui ana i nā maka maloʻo a me ka waha maloʻo, ʻoiai hiki ke hoʻopili i nā ʻāpana ʻē aʻe o kou kino pū kekahi. ʻOiai ʻaʻohe lāʻau lapaʻau, hiki i nā mālama pono ke hoʻomaikaʻi nui i kou mau hōʻailona a me kou ola.

ʻO ka mea nui loa e hoʻomanaʻo ai, ʻo ka ʻike mua ʻana a me ka mālama ʻana e hana i kahi ʻokoʻa maoli i ka maikaʻi o kou manaʻo a me ka hana. Nui nā kānaka me ka Sjögren's syndrome e hoʻomau i ke ola piha, ola ikaika me ka mālama lapaʻau kūpono a me ka mālama ponoʻī.

ʻO ka hana pili loa me kāu hui olakino, ka hahai ʻana i kāu hoʻolālā mālama, a me ka hana ʻana i nā hoʻoponopono nohona kūpono e hiki ke kōkua iā ʻoe e mālama pono i nā hōʻailona. Mai kānalua e ʻimi i ke kōkua inā ʻoe e ʻike ana i ka maloʻo mau a i ʻole nā ​​​​hōʻailona pilikia ʻē aʻe.

E hoʻomanaʻo ʻaʻole ʻoe wale nō i kēia huakaʻi. Hiki i nā hui kākoʻo, ma ka pūnaewele a me ke kanaka, ke hāʻawi i ke kākoʻo manaʻo waiwai a me nā ʻōlelo aʻo kūpono mai nā poʻe ʻē aʻe e hoʻomaopopo i kāu mea e hele nei.

Nā Nīnau Pinepine e pili ana i ka Sjögren's Syndrome

He kūlana koʻikoʻi anei ka Sjögren's syndrome?

ʻO ka maʻi Sjögren he maʻi lōʻihi e pono ai ka mālama mau, akā ʻaʻole ia he mea weliweli koke i ke ola no ka hapa nui o nā kānaka. ʻOiai hiki iā ia ke hoʻopilikia nui i kou ola maikaʻi, hiki i nā lāʻau lapaʻau maikaʻi ke kōkua iā ʻoe e mālama pono i nā hōʻailona. ʻO ke kī, ʻo ia ke hana pū me kāu hui olakino e pale aku i nā pilikia a mālama i kou olakino i ka manawa lōʻihi.

Hiki ke ho'ōla ʻia ka maʻi Sjögren?

I kēia manawa, ʻaʻohe lāʻau lapaʻau no ka maʻi Sjögren, akā ʻaʻole kēia manaʻo ʻaʻole hiki iā ʻoe ke ola maikaʻi me ka maʻi. Hiki i nā lāʻau lapaʻau nui ke kaohi i nā hōʻailona, ​​pale aku i nā pilikia, a kōkua iā ʻoe e mālama i kahi ola maikaʻi. Ke hoʻomau nei ka noiʻi i nā lāʻau lapaʻau hou a me nā lāʻau lapaʻau hiki ke hoʻōla i nā maʻi autoimmune.

E pono anei iaʻu ke ʻimi i nā kauka he nui no ka maʻi Sjögren?

E hana paha ʻoe me kahi hui o nā mea lawelawe olakino e mālama pono i kou kūlana. Hiki paha kēia ke komo pū me kahi rheumatologist no ka mālama holoʻokoʻa, kahi ophthalmologist no ka mālama maka, a me kahi niho kauka e ʻike i nā pilikia o ka waha maloʻo. ʻO ka loaʻa ʻana o kahi hui hoʻonohonoho pono e hōʻoiaʻiʻo iā ʻoe e loaʻa ka mālama piha no nā ʻaoʻao a pau o kou kūlana.

Hiki i ka hāpai ke hoʻopilikia i ka maʻi Sjögren?

Hiki i ka hāpai ke hoʻopilikia i nā hōʻailona o ka maʻi Sjögren, a hiki i ke kūlana ke hoʻopilikia i nā hopena hāpai. Loaʻa i kekahi mau wahine ka hoʻomaikaʻi ʻana o kā lākou mau hōʻailona i ka wā hāpai, ʻoiai ʻike kekahi i ka ʻino. He mea nui ke hana pili pono me kāu kauka hāpai a me kāu rheumatologist e mālama pono i kou kūlana i ka wā hāpai.

Aia kekahi mau meaʻai e pono iaʻu ke pale aku me ka maʻi Sjögren?

ʻOiai ʻaʻohe meaʻai kūikawā no ka maʻi Sjögren, hiki i kekahi mau meaʻai ke hoʻopilikia i nā hōʻailona. Hiki i ka pale ʻana i nā meaʻai paʻakai loa, ʻawaʻawa, a ʻawaʻawa ke kōkua i ka hōʻemi ʻana i ka huhū o ka waha. Hiki i ka palena ʻana i ka waiʻona a me ka caffeine ke kōkua pū me ka maloʻo. E nānā i ka ʻai ʻana i nā meaʻai palupalu, pulu a me ka wai nui e kākoʻo i kou olakino a me kou ʻoluʻolu holoʻokoʻa.