He aha ka Sarcoma Synovial? Nā Hōʻailona, Nā Kumu, a me ka Lapaʻau

ʻO ka sarcoma synovial kahi ʻano maʻamau ʻole o ka maʻi kanesa e ulu ana i nā ʻiʻo palupalu, ʻoi aku ka nui ma kahi o nā hono e like me nā kuli, nā kuʻekuʻe wāwae, nā poʻohiwi, a me nā hū. ʻAʻole ia e hoʻomaka maoli i ka ʻiʻo synovial e uhi ana i kou mau hono, akā naʻe, hiki ke ulu ma nā wahi a pau o nā ʻiʻo palupalu o kou kino, me nā ʻiʻo, nā ʻiʻo, a me ka momona.

Hoʻopili kēia kūlana i kahi 1,000 a 1,500 mau kānaka ma ʻAmelika Hui Pū ʻIa i kēlā me kēia makahiki, e hana ana iā ia he mea maʻamau ʻole loa. ʻOiai hiki i ka ʻike ʻana ke manaʻo nui, ʻo ka hoʻomaopopo ʻana i kāu mea e hana nei e kōkua iā ʻoe e ʻike hou aʻe a hoʻoikaika ʻia e like me kou hele ʻana i kāu mālama.

He aha nā hōʻailona o ka sarcoma synovial?

ʻO ka hōʻailona mua loa kahi ʻāpana ʻeha ʻole a i ʻole ka pehu e hiki iā ʻoe ke ʻike ma lalo o kou ʻili. ʻIke mua ka nui o nā kānaka i kēia ulu kokoke i kahi hono, ʻoiai hiki ke ʻike ʻia ma nā wahi a pau o kou kino.

Eia nā hōʻailona āu e ʻike ai i ka ulu ʻana o ke kūlana:

• Kahi ʻāpana paʻa, e ulu ana paha a ʻaʻole paha e hōʻeha
• Pehu ma ka wahi i hoʻopilikia ʻia
• Ka palena ʻana o ka neʻe ʻana i nā hono kokoke
• ʻEha e ʻoi aku ka ʻino ma mua o ka manawa, ʻoi aku hoʻi i ka pō
• ʻO ka ʻeha a i ʻole ka tingling inā e kaomi ka tumor i nā aʻalolo
• Ka nāwaliwali ma ka lālā i hoʻopilikia ʻia

ʻO ka mea paʻakikī e pili ana i ka sarcoma synovial, ʻo ia ka ulu mālie pinepine ʻana a ʻaʻole paha e hōʻeha mua. ʻO ia ke kumu e hiki ai i kekahi poʻe ke kāpae i ka ʻāpana ma ke ʻano he hōʻeha iki a i ʻole ka wili. Inā ʻike ʻoe i kekahi pehu a i ʻole nā ​​ʻāpana mau loa, ʻoi aku hoʻi nā mea e hoʻomau i ka ulu ʻana, pono ia e nānā ʻia e kāu kauka.

He aha nā ʻano o ka sarcoma synovial?

Hoʻokaʻawale nā ​​kauka i ka sarcoma synovial i ʻekolu ʻano nui ma muli o ke ʻano o nā sela ma lalo o ka microscope. ʻO ka hoʻomaopopo ʻana i kāu ʻano kikoʻī e kōkua i kāu hui lapaʻau e hoʻolālā i ke ala lapaʻau maikaʻi loa no ʻoe.

Loaʻa i ke ʻano biphaic ʻelua ʻano o nā sela e ʻokoʻa loa kekahi mai kekahi. Loaʻa i ke ʻano monophasic nā sela e like like kekahi me kekahi. Loaʻa i ke ʻano maikaʻi ʻole nā ​​sela e ʻano ʻino loa a ʻaʻole like me nā sela ʻiʻo maʻamau.

E hoʻoholo kāu pathologist i ke ʻano āu e loaʻa ai ma hope o ka nānā ʻana i kahi laʻana o ka ʻiʻo. ʻO kēia ʻike, me nā mea ʻē aʻe e like me ka nui a me ka wahi o ka tumor, e kōkua i ke alakaʻi ʻana i kāu hoʻolālā lapaʻau.

He aha ke kumu o ka sarcoma synovial?

ʻAʻole maopopo loa ke kumu pololei o ka sarcoma synovial, akā ua ʻike nā mea noiʻi i kekahi mau ʻōlelo aʻoaʻo nui. ʻO ka hapa nui o nā hihia e pili ana i kahi hoʻololi genetic kikoʻī i kapa ʻia ʻo ka chromosomal translocation, kahi e hoʻololi ai nā ʻāpana o ʻelua mau chromosomes.

ʻAʻole kēia hoʻololi genetic kahi mea āu e hoʻoilina ai mai kou mau mākua. Ma kahi o ia mea, e hana ia i loko o kou ola, ma ka manawa kūpono. Hana ka translocation i kahi protein ʻino e haʻi aku i nā sela e ulu a hoʻokaʻawale i ka wā ʻaʻole pono.

ʻAʻole like me kekahi mau maʻi kanesa ʻē aʻe, ʻaʻole ʻike ʻia ka sarcoma synovial e pili ana i nā mea hana ola e like me ka puhipaka, ka ʻai, a i ʻole ka hōʻike ʻana i ka lā. Hiki i nā mea hoʻopilikia i ke kaiapuni e like me ka hōʻike ʻana i ka radiation ke pāʻani i kahi kuleana i nā hihia maʻamau loa, akā no ka hapa nui o nā kānaka, ʻaʻohe kumu maopopo āu e hiki ai ke pale aku.

I ka wā e ʻike ai i ke kauka no ka sarcoma synovial?

Pono ʻoe e hoʻonohonoho i kahi manawa me kāu kauka inā ʻike ʻoe i kekahi ʻāpana a i ʻole pehu e mau ana ma mua o kekahi mau pule. ʻOiai ʻo ka hapa nui o nā ʻāpana he mea ʻino ʻole, ʻoi aku ka maikaʻi o ka nānā ʻana iā lākou i ka wā mua.

E ʻimi i ka mālama lapaʻau wikiwiki inā ʻike ʻoe i ka ulu wikiwiki ʻana o kahi ʻāpana, ʻeha nui e hoʻopilikia ana i nā hana o kēlā me kēia lā, a i ʻole ka ʻeha a me ka nāwaliwali ma kou mau lālā. Hiki i kēia mau hōʻailona ke hōʻike i kaomi ʻana o kahi tumor i nā mea nui e like me nā aʻalolo a i ʻole nā ​​moku koko.

Mai hopohopo e pili ana i ka makaʻu nui. Makemake nui kāu mea lawelawe olakino e nānā i kahi ʻāpana ʻino ʻole ma mua o ka nalo ʻana i ka manawa mua e ʻike a mālama ai i kahi mea koʻikoʻi. ʻO ka ʻike mua pinepine e alakaʻi i nā hopena lapaʻau maikaʻi.

He aha nā mea pilikia no ka sarcoma synovial?

ʻO ka hopohopo nui me ka sarcoma synovial, ʻo ia ka hiki ke pālahalaha i nā ʻāpana ʻē aʻe o kou kino inā ʻaʻole i mālama koke ʻia. ʻO nā māmā kahi wahi maʻamau kahi e pālahalaha ai kēia maʻi kanesa, ʻoiai hiki ke hoʻopili i nā lymph nodes a me nā iwi.

Hiki i nā pilikia kūloko ke ulu i ka wā e ulu nui ai ka tumor e kaomi i nā mea kokoke. Hiki iā ʻoe ke ʻike i ka pōʻino o nā aʻalolo e alakaʻi ana i ka ʻeha a i ʻole ka nāwaliwali, kaomi ʻana o nā moku koko e hana ana i ka pehu, a i ʻole nā ​​pilikia hono inā hoʻopilikia ka tumor i kou laulā o ka neʻe ʻana.

Hiki i ka lapaʻau ponoʻī ke hana i nā pilikia i kekahi manawa, ʻoiai ke hana nui nei kāu hui lapaʻau e hoʻemi i kēia mau pilikia. Hiki i ka ʻoki ke alakaʻi i ka nāwaliwali a i ʻole ka paʻakikī, ʻoiai hiki i ka chemotherapy a me ka radiation ke hana i ka luhi a me nā hopena ʻē aʻe e kōkua kāu mau kauka iā ʻoe e hoʻokele.

ʻO ka ʻoiaʻiʻo maikaʻi, ʻo ia ka nui o kēia mau pilikia hiki ke pale ʻia a i ʻole ke hoʻokele maikaʻi ʻia me ka mālama lapaʻau kūpono. E nānā pono kāu hui olakino iā ʻoe a e hoʻoponopono i nā pilikia e kū mai ana ma ke ala.

Pehea e ʻike ʻia ai ka sarcoma synovial?

Hoʻomaka ka ʻike ʻana i ka sarcoma synovial me kāu kauka e nānā ana i ka ʻāpana a nīnau ana i kāu mau hōʻailona. Makemake lākou e ʻike i ka lōʻihi o kou ʻike ʻana i ka ʻāpana, inā ua ulu, a inā ʻoe e ʻike ana i kekahi ʻeha a i ʻole nā ​​hōʻailona ʻē aʻe.

Kōkua nā hoʻokolohua kiʻi i kāu kauka e ʻike i ka tumor maopopo aʻe a e hoʻoholo i kona nui a me kona wahi. Hāʻawi ka MRI scan i nā kiʻi kikoʻī o nā ʻiʻo palupalu a hōʻike i ke ʻano o ka tumor i nā ʻiʻo, nā aʻalolo, a me nā moku koko kokoke. Hiki ke hoʻohana ʻia nā CT scans e nānā inā ua pālahalaha ka maʻi kanesa i kou mau māmā a i ʻole nā ​​mea ʻē aʻe.

ʻO ka ʻike maopopo e hele mai ana mai kahi biopsy, kahi e wehe ʻia ai kahi ʻāpana liʻiliʻi o ka tumor a nānā ʻia ma lalo o ka microscope. Hiki i kāu kauka ke hana i kahi biopsy needle me kahi nila lahilahi, a i ʻole kahi biopsy surgical kahi e hana ai lākou i kahi ʻoki liʻiliʻi e wehe i ka ʻiʻo.

Hiki i nā hoʻokolohua genetic kūikawā ma ka laʻana biopsy ke hōʻoia i ka ʻike ma ka ʻimi ʻana i nā hoʻololi chromosomal hiʻohiʻona i loaʻa i ka sarcoma synovial. Kōkua kēia mau hoʻokolohua e hoʻokaʻawale i kēia maʻi kanesa mai nā ʻano ʻē aʻe o nā tumor ʻiʻo palupalu.

He aha ka lapaʻau no ka sarcoma synovial?

ʻO ka lapaʻau no ka sarcoma synovial e pili pinepine ana i ka hui ʻana o nā ala i hoʻopilikino ʻia i kāu kūlana kikoʻī. ʻO ka ʻoki pinepine ka lapaʻau nui, me ka manaʻo e wehe i ka tumor holoʻokoʻa me kekahi mau ʻiʻo olakino e hoʻopuni ana e hōʻoia i nā palena maopopo.

E hana pono kāu hui ʻoki e mālama i ka nui o ka hana maʻamau i ka wā e wehe loa ai i ka maʻi kanesa. I ka hapa nui o nā hihia, hiki i ka ʻoki limb-sparing ke wehe maikaʻi i ka tumor me ka ʻole o ka ʻoki ʻana. Eia naʻe, ʻo ke ala ʻoki kikoʻī e hilinaʻi ana i ka nui o ka tumor, ka wahi, a me ka pilina me nā mea nui.

Hoʻokani pinepine ka chemotherapy i kahi kuleana nui, ma mua paha o ka ʻoki e hoʻemi i ka tumor a ma hope paha o ka ʻoki e hoʻopau i nā sela kanesa i koe. ʻO nā lāʻau lapaʻau i hoʻohana pinepine ʻia e komo pū me ka doxorubicin a me ka ifosfamide, ka mea i hōʻike ʻia he hopena maikaʻi ma ka sarcoma synovial.

Hiki ke manaʻo ʻia ka radiation therapy e hoʻemi i ka pilikia o ka hoʻi ʻana o ka maʻi kanesa i ka wahi hoʻokahi. Hoʻohana kēia lapaʻau i nā kukuna ikehu kiʻekiʻe e hoʻopili i nā sela kanesa microscopic e koe ma hope o ka ʻoki. E hoʻolālā pono kāu radiation oncologist i ka lapaʻau e hoʻemi i nā hopena ma nā ʻiʻo olakino.

Pehea e hoʻokele ai i nā hōʻailona ma ka home i ka wā o ka lapaʻau?

ʻO ka hoʻokele ʻana i kāu mau hōʻailona ma ka home e kōkua iā ʻoe e ʻoluʻolu a mālama i kou ikaika i ka wā o ka lapaʻau. ʻO ka hoʻokele ʻeha pinepine ka mea nui, a hiki i kāu kauka ke kuhikuhi i nā lāʻau kūpono ʻoiai e manaʻo nei i nā ala ʻole-lāʻau e like me ka wela, ke anu, a i ʻole ka neʻe mālie.

ʻO ka noho ʻana i ka hana i loko o kou mau palena e kōkua i ka mālama ʻana i ka ikaika o nā ʻiʻo a me ka maʻalahi o nā hono. Hiki i kāu therapist kino ke aʻo iā ʻoe i nā hana kūikawā e palekana a pōmaikaʻi no kāu kūlana. ʻO nā hana maʻalahi e like me ka hele wāwae a i ʻole ka hoʻolōʻihi mālie e hiki ke hana i kahi ʻokoʻa nui i kāu manaʻo.

Kōkua ka meaʻai kūpono i ke ola hou ʻana o kou kino a e kōkua iā ʻoe e ʻae maikaʻi i ka lapaʻau. E hoʻomaʻamaʻa i ka ʻai ʻana i nā meaʻai maʻamau, kaulike ʻoiai inā pilikia paha kou makemake i ka lapaʻau. ʻOi aku ka maikaʻi o nā meaʻai liʻiliʻi, pinepine ma mua o ka ho'āʻo ʻana e ʻai i nā ʻāpana nui.

Mai kānalua e noi aku i ke kōkua me nā hana o kēlā me kēia lā i ka wā e pono ai. ʻO ka loaʻa ʻana o ke kākoʻo mai ka ʻohana a me nā hoaaloha e hiki ke hoʻemi i kou kaumaha a ʻae iā ʻoe e kau i kou ikehu ma ka hoʻōla.

Pehea ʻoe e hoʻomākaukau ai no kāu manawa kauka?

ʻO ka hoʻomākaukau ʻana no kāu manawa e kōkua iā ʻoe e hana i ka nui o kāu manawa me kāu hui olakino. E kākau i kāu mau hōʻailona a pau, me ka wā āu i ʻike mua ai iā lākou a pehea lākou i loli ai i ka manawa. Kōkua kēia ʻike i kāu kauka e hoʻomaopopo maikaʻi i kāu kūlana.

E lawe mai i kahi papa inoa o nā lāʻau āu e lawe nei, me nā lāʻau lapaʻau ma luna o ka pākaukau a me nā mea hoʻohui. E ʻohi pū i nā moʻolelo lapaʻau mua a i ʻole nā ​​hopena hoʻokolohua e pili ana i kāu mau hōʻailona i kēia manawa, ʻoiai hiki i kēia ke hāʻawi i kahi kikoʻī waiwai no kāu mālama.

E hoʻomākaukau i kahi papa inoa o nā nīnau āu e makemake ai e nīnau i kāu kauka. Makemake paha ʻoe e ʻike e pili ana i nā koho lapaʻau, nā hopena ʻaoʻao, ka prognosis, a i ʻole pehea e hoʻopilikia ai ke kūlana i kou ola o kēlā me kēia lā. ʻO ka kākau ʻana i kēia mau mea e hōʻoiaʻiʻo ʻaʻole ʻoe e poina i nā nīnau nui i ka wā o kāu manawa.

E noʻonoʻo e lawe mai i kahi lālā hilinaʻi o ka ʻohana a i ʻole kahi hoaaloha i kāu manawa. Hiki iā lākou ke hāʻawi i ke kākoʻo manaʻo a kōkua iā ʻoe e hoʻomanaʻo i nā ʻike nui i kūkākūkā ʻia i ka wā o kāu kipa.

He aha ka mea nui e pili ana i ka sarcoma synovial?

ʻO ka sarcoma synovial kahi ʻano maʻamau ʻole akā hiki ke mālama ʻia o ka maʻi kanesa e ʻike pinepine ʻia ma ke ʻano he ʻāpana ulu kokoke i nā hono a i ʻole nā ​​ʻiʻo palupalu. ʻOiai hiki i ka loaʻa ʻana o kēia ʻike ke manaʻo weliweli, nui nā kānaka me ka sarcoma synovial e ola ana i nā ola piha, hana ma hope o ka lapaʻau.

Hāʻawi ka ʻike mua a me ka lapaʻau i nā hopena maikaʻi loa, ʻo ia ke kumu e pono ai ke loiloi ʻia e kāu kauka i nā ʻāpana a i ʻole pehu mau loa. ʻO nā ala lapaʻau hou, me nā ʻenehana ʻoki holomua a me nā papahana chemotherapy maikaʻi, ua hoʻomaikaʻi nui i nā hopena no nā kānaka me kēia kūlana.

E hoʻomanaʻo ʻaʻole ʻoe wale nō i kēia huakaʻi. Aia kāu hui olakino e alakaʻi iā ʻoe ma kēlā me kēia ʻanuʻu o kāu lapaʻau a me ka hoʻōla. Mai kānalua e nīnau i nā nīnau, e hōʻike i nā hopohopo, a i ʻole e ʻimi i ke kākoʻo i ka wā e pono ai.

Nā nīnau i nīnau pinepine ʻia e pili ana i ka sarcoma synovial

Ua make mau anei ka sarcoma synovial?

ʻAʻole, ʻaʻole make mau ka sarcoma synovial. Ua mālama maikaʻi ʻia ka nui o nā kānaka me kēia kūlana a e ola ana i nā ola maʻamau. ʻO ka nānā ʻana e hilinaʻi ana i nā mea e like me ka nui o ka tumor, ka wahi, a inā ua pālahalaha i ka wā i ʻike ʻia. Hoʻomaikaʻi nui ka ʻike mua a me ka lapaʻau i nā hopena.

Hiki i ka sarcoma synovial ke hoʻi mai ma hope o ka lapaʻau?

ʻAe, hiki i ka sarcoma synovial ke hoʻi hou mai, ʻo ia ke kumu e nui ai ka mālama hoʻomau. ʻO ka hapa nui o nā hoʻi hou e hana i loko o nā makahiki mua ma hope o ka lapaʻau. E hoʻonohonoho kāu hui lapaʻau i nā nānā maʻamau a me nā hoʻokolohua kiʻi e nānā i nā hōʻailona o ka hoʻi ʻana. Inā hoʻi mai, loaʻa nā koho lapaʻau hou aʻe.

Ua holo anei ka sarcoma synovial i nā ʻohana?

ʻAʻole, ʻaʻole kahi kūlana hoʻoilina ka sarcoma synovial. ʻO nā hoʻololi genetic e hana ai i kēia maʻi kanesa e hana i loko o ke ola o ke kanaka ma mua o ka hoʻoili ʻia ʻana mai nā mākua. ʻAʻole hoʻonui ka loaʻa ʻana o kahi lālā ʻohana me ka sarcoma synovial i kou pilikia o ka loaʻa ʻana.

Pehea ka wikiwiki o ka ulu ʻana o ka sarcoma synovial?

ʻO ka sarcoma synovial e ulu mālie pinepine ana, ʻo ia ke kumu e ʻike ʻole ai nā kānaka i nā hōʻailona koke. Eia naʻe, hiki i nā wikiwiki ulu ke ʻokoʻa ma waena o nā kānaka. Loaʻa kekahi mau tumor i ka paʻa no nā mahina a i ʻole nā ​​makahiki, ʻoiai hiki i kekahi ke ulu wikiwiki. ʻO ia ke kumu e pono ai ke loiloi koke ʻia i kekahi ʻāpana mau loa.

Hiki ke pale ʻia ka sarcoma synovial?

I kēia manawa, ʻaʻohe ala i ʻike ʻia e pale aku ai i ka sarcoma synovial ʻoiai e ulu ana ia ma muli o nā hoʻololi genetic kūpono ʻole ma mua o nā mea hana ola. ʻO ke ala maikaʻi loa, ʻo ia ka noho ʻana i ka ʻike i nā loli i kou kino a ʻimi i ka mālama lapaʻau no nā ʻāpana hou a i ʻole nā ​​hōʻailona mau loa. ʻO ka ʻike mua ka mea nui loa i ka loaʻa ʻana o nā hopena maikaʻi.