He aha ka Syndroma Turner? Nā Hōʻailona, Nā Kumu, & Lapaʻau

ʻO ka syndroma Turner kahi kūlana genetic e pili wale ana i nā wahine, e kū mai ana ke nalowale paha kekahi o nā kromosoma X a pau a ʻāpana paha. Kū mai kēia ʻokoʻa chromosomal ma kahi o 1 i 2,000 a 2,500 mau hānau wahine, e hoʻoliʻiliʻi ana i ka mea maʻamau akā ʻaʻole maʻamau loa.

Hoʻopili ka kūlana i nā ʻano like ʻole o ka hoʻomohala a me ke olakino i loko o ke ola o ke kanaka. ʻOiai ke hōʻike nei ka syndroma Turner i nā pilikia kūikawā, nui nā wāhine me kēia kūlana e alakaʻi ana i nā ola piha, olakino, a holomua me ka mālama lapaʻau kūpono a me ke kākoʻo.

He aha ka syndroma Turner?

Kū mai ka syndroma Turner ke hānau ʻia ka wahine me hoʻokahi kromosoma X piha wale nō ma kahi o nā kromosoma X ʻelua maʻamau. I kekahi manawa, ʻāpana paha o ka lua o ka kromosoma X i nalowale a hoʻololi ʻia ma nā ʻano like ʻole.

Hāpai kāu mau kromosoma i nā ʻōlelo kuhikuhi genetic e hoʻoholo ai i ke ʻano o ka hoʻomohala a me ka hana ʻana o kou kino. ʻOiai he ʻelua mau kromosoma X (XX) maʻamau nā wahine, ʻo ka loaʻa ʻana o hoʻokahi kromosoma X piha wale nō e hoʻopilikia i ka hoʻomohala maʻamau ma nā ʻano kūikawā. Hoʻopili nui ka mea genetic i nalowale i ka ulu ʻana, ka wā ʻōpio, a me kekahi mau ʻōnaehana kino.

Aia kēia kūlana mai ka hānau ʻana mai, ʻoiai ʻaʻole paha e ʻike ʻia a hiki i ka wā ma hope o ke kamaliʻi a i ʻole ka wā makua. Hiki ke ʻokoʻa loa ka nui o nā hōʻailona mai ke kanaka a i ke kanaka, ma muli o ka nui o ka mea genetic i nalowale a me nā sela i hoʻopilikia ʻia.

He aha nā hōʻailona o ka syndroma Turner?

Hiki i nā hōʻailona o ka syndroma Turner ke ʻike ʻia ma nā ʻanuʻu like ʻole o ke ola, a ʻaʻole nā ​​​​kānaka a pau e ʻike i nā hōʻailona āpau. Hoʻomaka pinepine nā hōʻailona ke ʻike ʻia i ka wā kamaliʻi a me ka wā ʻōpio ke ʻike ʻia nā ʻokoʻa ulu a me ka hoʻomohala.

I ka wā pēpē a me ke kamaliʻi mua, hiki iā ʻoe ke ʻike:

• Hoʻolōʻi ka ulu ʻana ma mua o nā keiki ʻē aʻe
• ʻEhu o nā lima a me nā wāwae (lymphedema)
• ʻUlaula ka umauma me nā nipples ākea
• Lahilahi ka lauoho ma hope o ka ʻāʻī
• Pōkole, pūnaewele ka ʻāʻī
• Nā hemahema o ka naʻau a i ʻole nā ​​kīnā o ka puʻupaʻa
• Hoʻomau nā maʻi pepeiao a i ʻole nā ​​pilikia lohe

I ka wā e ulu ai nā keiki me ka maʻi Turner syndrome, hiki ke ulu hou aku nā hōʻailona. Hoʻopili pinepine kēia i ka pōkole o ke kino, nā pilikia aʻo me ka makemakika a me nā manaʻo wahi, a me nā pilikia pilikanaka i ka heluhelu ʻana i nā hōʻailona nonverbal.

I nā makahiki ʻōpio, ʻo ka hōʻailona i ʻike nui ʻia ʻo ia ka hoʻopanee ʻia a i ʻole ka nele o ka puberty. ʻAʻole ulu ka nui o nā kaikamāhine me ka maʻi Turner syndrome i nā ʻano wahine lua e like me ka ulu ʻana o ka umauma a i ʻole ka menstruation me ka ʻole o ka lāʻau hormone. Hana kēia no ka mea ʻaʻole hana maʻamau kā lākou ovaries.

Hiki i kekahi mau hōʻailona maʻamau ʻole ke komo pū me ka hāʻule ʻana o nā eyelids, ka ihu haʻahaʻa, a i ʻole nā ​​hiʻohiʻona helehelena kūikawā. Eia naʻe, he helehelena maʻamau loa ka nui o nā kānaka me ka maʻi Turner syndrome.

He aha nā ʻano o ka maʻi Turner syndrome?

He mau ʻano like ʻole ka maʻi Turner syndrome ma muli o ke ʻano chromosomal kūikawā i loaʻa i loko o nā sela o ke kanaka. Hiki i ke ʻano ke hoʻopili i nā hōʻailona e ʻike ai kekahi a me ka nui o ko lākou ʻano.

ʻO ke ʻano maʻamau loa i kapa ʻia ʻo ka maʻi Turner syndrome classic a i ʻole monosomy X. I kēia ʻano, hoʻokahi wale nō chromosome X i loko o kēlā me kēia sela o ke kino ma mua o ʻelua. Hoʻokumu pinepine kēia i nā hōʻailona i ʻike nui ʻia a hoʻopili i kahi 45% o nā kānaka me ka maʻi Turner syndrome.

Hana ʻia ka maʻi Turner syndrome mosaic i ka wā e loaʻa ai i kekahi mau sela hoʻokahi chromosome X ʻoiai he ʻelua mau chromosome X a i ʻole nā ​​hoʻololi ʻē aʻe i nā mea ʻē aʻe. Loaʻa pinepine i nā kānaka me ka maʻi Turner syndrome mosaic nā hōʻailona palupalu no ka mea hana maʻamau kekahi o kā lākou mau sela. Hoʻokumu kēia i kahi 15-25% o nā hihia.

ʻO nā ʻano ʻē aʻe i emi iki ka maʻamau e pili ana i ka holoi ʻana i ka hapa a i ʻole nā ​​hoʻololi ʻano i hoʻokahi chromosome X. Hiki i kēia mau ʻano like ʻole ke hoʻokumu i nā hui like ʻole o nā hōʻailona, ​​a he nui nā kānaka e loaʻa paha i nā hōʻailona māmā loa e hele ʻole i ka ʻike ʻia no nā makahiki.

He aha ke kumu o ka maʻi Turner?

Hoʻokumu ʻia ka maʻi Turner e kahi hewa kūpono ʻole i ka wā o ka hoʻokumu ʻana i nā cell hanau a i ʻole ka hoʻomohala ʻana o ka embryonic mua. Hana kēia loli chromosomal ma ka manawa kūpono ʻole a ʻaʻole i hana ʻia e kekahi mea i hana a i ʻole ʻaʻole i hana ʻia e nā mākua.

Hiki i ka hewa ke hana ma nā ʻano he nui. I kekahi manawa, hana ʻia kahi hua manu a i ʻole kahi cell sperm me ka chromosome X ʻole, a i ʻole ua nalowale ka chromosome X i nā wā mua ma hope o ka hāpai ʻana. I nā hihia mosaic, hana ʻia ka nalowale chromosomal ma hope i ka wā o ka hoʻomohala ʻana o ka embryonic, e hoʻopili wale ana i kekahi mau cell.

ʻAʻole hoʻoilina ʻia kēia kūlana mai nā mākua ma ke ʻano kuʻuna. ʻO ia ka mea a nā kauka e kapa ai he “de novo” a i ʻole ka mutation hou e hana kūʻokoʻa. ʻAʻole pilikia nā mākua i loaʻa i kahi keiki me ka maʻi Turner i ka loaʻa ʻana o kahi keiki ʻē aʻe me ke kūlana.

ʻAʻole hoʻonui ka makahiki makua kiʻekiʻe i ka pilikia o ka maʻi Turner, ʻaʻole e like me kekahi mau kūlana chromosomal ʻē aʻe. Hiki ke hana i ke kūlana i nā hāpai ʻana i kēlā me kēia makahiki makua, ʻoiai he mea kūpono ke hoʻomaopopo ʻia he nui nā hāpai ʻana me ka maʻi Turner e pau i ka miscarriage.

I ka wā e ʻike ai i ke kauka no ka maʻi Turner?

Pono ʻoe e kūkākūkā me kahi mea lawelawe olakino inā ʻike ʻoe i nā hōʻailona e hōʻike paha i ka maʻi Turner, ʻoi aku hoʻi nā hoʻolōʻihi ulu a i ʻole nā ​​ʻokoʻa hoʻomohala. Hiki i ka ʻike mua ke kōkua i ka hōʻoia ʻana i ka nānā ʻana a me ka mālama kūpono.

I ka wā kamaliʻi, e noʻonoʻo e ʻike i ke kauka inā he pōkole loa kāu kaikamahine ma mua o kāna mau hoa, loaʻa iā ia nā maʻi pepeiao pinepine, a i ʻole e hōʻike i nā ʻano kino maʻamau ʻole e like me ka ʻāʻī pūnaewele a i ʻole ka pehu ʻana i nā lima a me nā wāwae. Hiki i nā pilikia aʻo, ʻoi aku hoʻi me ka makemakika, ke lilo i hōʻailona mua.

No nā ʻōpio, ʻo ka hoʻopanee ʻana o ka puka ʻana mai o ka pubescence pinepine ka hōʻailona mua maopopo e hoʻoulu ai i ka loiloi lapaʻau. Inā ʻaʻole i hoʻomaka kahi kaikamahine e hoʻomohala i nā umauma a i ʻole e hoʻomaka i ka menstruation ma ka makahiki 13-14, he mea nui ke ʻimi i ka ʻōlelo aʻo lapaʻau.

ʻO nā mākua e manaʻo nei he hiki ke loaʻa iā lākou ka maʻi Turner syndrome i ʻike ʻole ʻia e pono ke ʻike i kahi mea lawelawe ola kino, ʻoi aku inā he pōkole ko lākou kiʻekiʻe, nā pilikia hānau ʻana, a i ʻole kekahi mau pilikia olakino e like me nā kīnā o ka naʻau a i ʻole nā ​​kidney. Loaʻa i kekahi poʻe kā lākou hōʻailona mua i ka wā makua ke noiʻi nei i nā pilikia hānau ʻana.

He aha nā kumu pilikia no ka maʻi Turner syndrome?

Loaʻa kūlohelohe ka maʻi Turner syndrome a ʻaʻohe ona mau kumu pilikia kuʻuna e like me nā kūlana lapaʻau ʻē aʻe he nui. Hana kūlohelohe ka hewa chromosomal e hoʻokumu ai i ka maʻi Turner syndrome i ka wā o ka māhele ʻana o nā cell.

ʻAʻole like me kekahi mau kūlana genetic, ʻaʻole pili ka maʻi Turner syndrome i ka makahiki makua wahine a makua kāne kiʻekiʻe. Hiki i nā wāhine o kēlā me kēia makahiki ke loaʻa i kahi pēpē me ka maʻi Turner syndrome, a noho mau ka pilikia ma kahi pae like ʻole ma nā makahiki hānau a pau.

ʻAʻole hoʻi e hoʻonui ka mōʻaukala ʻohana i ka pilikia o ka maʻi Turner syndrome. ʻOiai ʻaʻole ia i hoʻoilina ʻia ma ke ʻano maʻamau, ʻaʻole e hoʻolilo ka loaʻa ʻana o kahi lālā ʻohana me ka maʻi Turner syndrome i ka nui o ka loaʻa ʻana o nā lālā ʻohana ʻē aʻe i ke kūlana.

ʻO ka mea kūpaʻa wale nō ka wahine kino, ʻoiai ʻo ka maʻi Turner syndrome wale nō e pili ana i nā kānaka wahine genetic. Eia naʻe, ʻaʻole kēia he

• Ka hoʻonui ʻana o ka aorta (ka hoʻoliʻiliʻi ʻana o ke kīʻaha nui)
• Ka valve aortic bicuspid (ka valve naʻau me ʻelua mau ʻāpana ma mua o ʻekolu)
• Ke koko kiʻekiʻe
• Ka hoʻonui ʻana o ke aʻa aorta

Pono kēia mau kūlana naʻau i ka nānā mau ʻana i ke ola holoʻokoʻa, ʻoiai e pono paha kekahi i ka hana ʻokiʻoki a i ʻole ka mālama lapaʻau mau.

Hiki mai nā pilikia o ka puʻupaʻa a me ka ʻōnaehana mimi ma kahi o hoʻokahi hapakolu o nā kānaka me ka Turner syndrome. Hiki i kēia ke komo i nā ʻokoʻa kūkulu i ke ʻano a i ʻole ke kūlana o ka puʻupaʻa, a i ʻole nā ​​pilikia me ke ʻano o ka mimi mai nā puʻupaʻa. ʻAʻole nui nā pilikia puʻupaʻa e hoʻoulu i nā hōʻailona akā pono e nānā.

Hoʻomohala pinepine nā pilikia olakino iwi, me ka osteoporosis (iwi nāwaliwali) a me ka hoʻonui ʻia o ka pilikia o nā haki. Hana ʻia kēia ma kahi hapa ma muli o ka nele o ka estrogen a pono e hoʻolohe i ka lawe ʻana i ka calcium a me ka hoʻoikaika kaumaha.

ʻO nā pilikia liʻiliʻi akā koʻikoʻi hiki ke komo i nā pilikia thyroid, maʻi diabetes, nā pilikia ate, a me kekahi mau kūlana autoimmune. Kūleʻa nā nānā lapaʻau maʻamau e hopu i kēia mau pilikia i ka wā mua i ka wā maʻalahi loa ke mālama.

Pehea ka hōʻoia ʻana o ka Turner syndrome?

Hōʻoia ʻia ka Turner syndrome ma o kahi hōʻoia koko i kapa ʻia ʻo ka chromosomal analysis a i ʻole karyotyping, ka mea e nānā i nā chromosomes i loko o kāu mau cell. Hiki i kēia hōʻoia ke hoʻoholo pono inā aia ka Turner syndrome a ʻike i ke ʻano.

Hoʻomaka pinepine ke kaʻina hana hōʻoia ke ʻike kekahi mea mālama ola i nā hōʻailona kino a i ʻole nā ​​ʻano hoʻomohala e hōʻike ana i ka Turner syndrome. E hoʻomaka paha kāu kauka me kahi nānā kino a nānā i kāu moʻolelo lapaʻau a me ka ulu ʻana.

I kekahi manawa, hōʻoia ʻia ka Turner syndrome ma mua o ka hānau ʻana ma o ka hōʻoia prenatal. Hiki i nā ultrasound ke hōʻike i kekahi mau hiʻohiʻona e like me nā hemahema naʻau a i ʻole ka wai nui, e alakaʻi ana i ka hōʻoia genetic. Eia naʻe, nui nā hihia i hōʻoia ʻia i ka wā kamaliʻi a i ʻole ka wā ʻōpio ke ʻike ʻia nā pilikia ulu a i ʻole hoʻomohala.

Hiki ke pono ʻia nā hoʻokolohua hou aku e nānā i nā pilikia olakino e pili ana ma hope o ka ʻike ʻia ʻana o ka maʻi Turner. ʻO nā mea maʻamau kēia e komo pū ai nā ultrasound naʻau, nā kiʻi o nā puʻupaʻa, nā hoʻokolohua lohe, a me ka hana koko e nānā i ka hana thyroid a me nā ʻōnaehana kino ʻē aʻe.

He aha ka lāʻau lapaʻau no ka maʻi Turner?

ʻO ka lāʻau lapaʻau no ka maʻi Turner e kau nui ana i ka mālama ʻana i nā hōʻailona a me ka pale ʻana i nā pilikia ma o ka hui ʻana o ka lāʻau hormone, ka nānā mau ʻana, a me ka mālama kōkua. ʻO ka papahana lāʻau lapaʻau kūikawā e hilinaʻi ana i nā hōʻailona i loaʻa a me ko lākou koʻikoʻi.

Hoʻomaopopo pinepine ʻia ka lāʻau ulu hormone no nā keiki me ka maʻi Turner e pōkole loa ana no ko lākou mau makahiki. Hiki i kēia lāʻau lapaʻau ke kōkua i ka hoʻonui ʻana i ke kiʻekiʻe o ka pākeke hope loa, ʻoiai e pono ai nā inikini maʻamau i nā makahiki he nui. ʻO ka hoʻomaka ʻana i ka lāʻau lapaʻau ma mua i ka wā kamaliʻi e alakaʻi pinepine ana i nā hopena maikaʻi aʻe.

Hoʻomaka pinepine ʻia ka lāʻau hoʻololi estrogen i nā makahiki ʻōpio e hoʻoulu i ka puberty maʻamau a me ka hoʻomohala ʻana o nā ʻano wahine lua. Kōkua kēia lāʻau hormone i ka hoʻomohala ʻana o nā umauma, ka menstruation, a me ke olakino iwi. Hoʻolālā pono ʻia ka manawa a me ka nui e hoʻohālikelike i ka puberty maoli e like me ka hiki.

ʻO ka nānā ʻana i ka naʻau a me ka lāʻau lapaʻau he mau ʻāpana nui ia o ka mālama mau. Ma muli o nā pilikia naʻau kūikawā i loaʻa, hiki i ka lāʻau lapaʻau ke komo pū me nā lāʻau lapaʻau, nā nānā maʻamau me ka cardiologist, a i ʻole nā ​​kaʻina hana ʻoki e hoʻoponopono i nā ʻano kūkulu.

Hiki i ke kākoʻo hoʻonaʻauao ke kōkua i ka hoʻoponopono ʻana i nā ʻokoʻa aʻo, ʻoi aku hoʻi me ka makemakika a me nā manaʻo wahi. He nui nā kānaka me ka maʻi Turner e pōmaikaʻi mai ka aʻo kūikawā a i ʻole nā ​​hoʻoponopono hoʻonaʻauao e hiki ai i ko lākou hiki piha ma ke kula.

Pehea e mālama ai i ka maʻi Turner ma ka home?

ʻO ka mālama ʻana i ka maʻi Turner ma ka home, ʻo ia ka hana ʻana i kahi wahi e kākoʻo ai i ka ulu olakino a me ka hoʻoponopono ʻana i nā pono kūikawā. Kūpono nā hana i kēlā me kēia lā a me ke kamaʻilio ākea e pili ana i ke kūlana e kōkua i ka hoʻoikaika ʻana i ka hilinaʻi a me ke kūʻokoʻa.

Liʻiliʻi loa ka mālama ʻana i ke ola olakino no nā poʻe me ka maʻi Turner. Kūpono ka hoʻoikaika kino maʻamau no ke olakino o nā iwi, ka hana o ka naʻau, a me ka maikaʻi holoʻokoʻa. Hiki i nā hana e hāpai ana i ke kaumaha e like me ka hele wāwae, ka hula, a i ʻole nā ​​haʻuki ke kōkua nui i ka ikaika o nā iwi.

Kōkua ka meaʻai maikaʻi i ka ulu a me ka hoʻomohala ʻana, ʻoi aku hoʻi i ka wā kamaliʻi a me ka wā ʻōpiopio. Kōkua ka meaʻai kaulike piha i ka calcium a me ka huaora D i ka pale ʻana i ke olakino o nā iwi, ʻoiai ka mālama ʻana i ke kaumaha olakino e hōʻemi i ke kaumaha ma ka naʻau a me nā ʻōnaehana ʻē aʻe.

He mea nui ka hoʻokō ʻana i ka lāʻau lapaʻau ke kuhikuhi ʻia nā lāʻau hormone. ʻO ka hoʻonohonoho ʻana i nā ʻōnaehana hoʻomaopopo a me ka hoʻomaopopo ʻana i ke koʻikoʻi o ka mālama mau e kōkua i ka hōʻoia ʻana i nā hopena maikaʻi loa.

Hiki i ke kākoʻo manaʻo a me ka ʻōlelo aʻo ke kōkua i ka hoʻoponopono ʻana i nā pilikia hilinaʻi iā ia iho, nā pilikia pilikanaka, a i ʻole nā ​​hopohopo e pili ana i ke ʻano a me ka hānau keiki. Loaʻa i nā ʻohana he nui nā hui kākoʻo e kōkua i ka hoʻopili ʻana me nā poʻe ʻē aʻe e hoʻomaopopo i nā ʻaoʻao kūikawā o ke ola ʻana me ka maʻi Turner.

Pehea ʻoe e hoʻomākaukau ai no kāu hālāwai me ke kauka?

ʻO ka hoʻomākaukau ʻana no nā hālāwai me nā kauka e kōkua i ka hōʻoia ʻana e loaʻa iā ʻoe ka pono nui loa mai kāu manawa me nā mea lawelawe olakino. ʻO ka mālama ʻana i nā moʻolelo i hoʻonohonoho pono ʻia a me ka hoʻomākaukau ʻana i nā nīnau ma mua e hana i nā hālāwai ʻoi aku ka hua.

E lawe mai i ka papa inoa piha o nā lāʻau lapaʻau i kēia manawa, me nā nui a me ka manawa. Hoʻopili kēia i nā lāʻau lapaʻau kuhikuhi, nā lāʻau lapaʻau ma luna o ka papa kūʻai, a me nā mea hoʻohui. E lawe mai pū i nā moʻolelo o nā hopena hoʻokolohua hou, nā pakuhi ulu, a me nā hōʻailona āu i ʻike ai.

E kākau i nā nīnau a i ʻole nā ​​manaʻo kūikawā ma mua o kou kūkā. ʻO nā kumuhana maʻamau paha e komo pū ai nā ʻano ulu, nā hōʻailona hoʻomohala, nā koho mālama, a i ʻole nā ​​manaʻo e pili ana i nā pilikia. Mai kānalua e nīnau e pili ana i kekahi mea e hopohopo ai ʻoe.

E noʻonoʻo e lawe mai i kahi hoa ʻohana a i ʻole hoaaloha no ke kākoʻo, ʻoi aku hoʻi no nā kūkā nui a i ʻole i ka wā e kūkākūkā ai i nā loli mālama. Hiki iā lākou ke kōkua i ka hoʻomanaʻo ʻana i ka ʻike i kūkākūkā ʻia a hāʻawi i ke kākoʻo manaʻo.

E mākaukau e kūkākūkā i kāu hana i kēlā me kēia lā, kekahi mau hōʻailona a i ʻole nā ​​loli āu i ʻike ai, a pehea kou manaʻo. Pono kāu hui olakino i kēia ʻike e hāʻawi i ka mālama maikaʻi loa.

He aha ka mea nui e lawe aku e pili ana i ka maʻi Turner?

He kūlana kino hoʻoilina hiki ke mālama ʻia ka maʻi Turner e pili ana i nā wahine, a me ka mālama lapaʻau kūpono a me ke kākoʻo, hiki i ka hapa nui o nā kānaka me ka maʻi Turner ke ola i ke ola olakino a me ka hoʻokō. ʻO ka ʻike mua a me ka mālama kūpono e hana i kahi ʻokoʻa nui i nā hopena.

ʻO ka mea nui loa e hoʻomanaʻo ai ʻo ia ka hoʻopili ʻana o ka maʻi Turner i kēlā me kēia kanaka. ʻOiai aia nā hōʻailona maʻamau a me nā pilikia hiki ke loaʻa, ʻokoʻa ka ʻike o kēlā me kēia kanaka. ʻAʻole paha ka mea e hana ana no kekahi kanaka ka ʻano maikaʻi loa no kekahi.

He mea nui ka nānā ʻana i ke olakino maʻamau a me ka mālama ʻana i nā mālama no ka pale ʻana i nā pilikia a me ka mālama ʻana i ke olakino maikaʻi. ʻO kēia ka hana pū ʻana me kahi hui o nā loea e maopopo i ka maʻi Turner a hiki ke hāʻawi i ka mālama piha.

He kuleana nui ka kākoʻo mai ka ʻohana, nā hoaaloha, a me nā mea hoʻolako olakino i ka kōkua ʻana i nā kānaka me ka maʻi Turner e ulu. Loaʻa i nā kānaka he nui me kēia kūlana ko lākou mau pahuhopu hoʻonaʻauao, ʻoihana, a pilikino me ke kākoʻo kūpono a me ka hoʻoholo.

Nā nīnau pinepine e pili ana i ka maʻi Turner

Hiki i nā kānaka me ka maʻi Turner ke loaʻa keiki?

ʻO ka hapa nui o nā kānaka me ka maʻi Turner syndrome he mau pilikia hānau keiki ma muli o ka hana ʻole o nā ovaries, akā hiki ke hāpai keiki i kekahi mau hihia. Ma kahi o 2-5% o nā wāhine me ka maʻi Turner syndrome hiki ke hāpai keiki maoli. No nā poʻe ʻē aʻe, hiki i nā ʻenehana hoʻohua keiki kōkua e like me ka hāʻawi ʻana i nā hua manu ke hiki ai ke hāpai keiki me ke kākoʻo lapaʻau kūpono.

He ʻano naʻauao kīnā anei ka maʻi Turner syndrome?

ʻAʻole he naʻauao kīnā ka maʻi Turner syndrome. ʻO ka hapa nui o nā kānaka me ka maʻi Turner syndrome he naʻauao maʻamau ko lākou, ʻoiai paha he mau ʻokoʻa aʻo kūikawā, ʻoi aku hoʻi me ka makemakika, nā manaʻo ākea, a me nā hōʻailona pilikanaka. Hiki ke hoʻoponopono ʻia kēia mau pilikia me ke kākoʻo hoʻonaʻauao kūpono.

Pehea ka lōʻihi o ka ola o nā kānaka me ka maʻi Turner syndrome?

Me ka mālama lapaʻau kūpono, hiki i nā kānaka me ka maʻi Turner syndrome ke loaʻa ka lōʻihi o ke ola maʻamau a kokoke paha i ka maʻamau. ʻO ke kī ka nānā mau ʻana a me ka mālama ʻana i nā pilikia hiki ke loaʻa, ʻoi aku hoʻi nā pilikia naʻau. Nui nā wāhine me ka maʻi Turner syndrome e ola ana i nā ola piha a olakino maikaʻi a hiki i ko lākou mau makahiki ʻelemakule.

E ʻoi aku anei ka maikaʻi o ka maʻi Turner syndrome i ka hala ʻana o ka manawa?

ʻAʻole