He aha ka Vaginal Agenesis? Nā Hōʻailona, Nā Kumu, a me ka Lapaʻau

ʻO ka vaginal agenesis kahi kūlana maʻamau ʻole kahi i hānau ʻia ai ʻoe me ka ʻole o kahi vagina a i ʻole me kahi vagina i hoʻomohala ʻole ʻia. Hana kēia i ka wā e hoʻomohala ʻole ai nā ʻāpana hana hou i ka wā o ka ulu ʻana o ka pēpē, a pili ia i kahi 1 i 4,000 a 5,000 mau kānaka i hānau ʻia me ke kāne wahine.

ʻOiai paha e lohe ʻia kēia he mea kaumaha, he mea nui ia e ʻike ʻoe e hiki ke mālama ʻia kēia kūlana. He nui nā kānaka me ka vaginal agenesis e hele aku i nā pilina pili aloha piha a me nā ola olakino me ka mālama lapaʻau kūpono a me ke kākoʻo.

He aha ka vaginal agenesis?

ʻO ka vaginal agenesis ʻo ia hoʻi ʻaʻole i hoʻomohala pono ʻia kou ʻāpana vaginal ma mua o ka hānau ʻana. I ka hapanui o nā hihia, hānau ʻia ʻoe me nā ʻāpana wahine ma waho maʻamau, akā ʻo ka puka vaginal e alakaʻi aku i kahi ʻāpana pōkole loa a i ʻole ʻaʻohe ʻāpana.

ʻO kēia kūlana he ʻāpana ia o kahi hui i kapa ʻia ʻo Müllerian agenesis a i ʻole MRKH syndrome (Mayer-Rokitansky-Küster-Hauser syndrome). Hoʻomohala maʻamau ʻia kāu mau ovaries, ʻo ia hoʻi maʻamau kāu mau pae hormone a e ʻike ʻoe i ka hoʻomohala ʻana o nā umauma a me nā hōʻailona ʻē aʻe o ka puberty.

Hiki nō hoʻi ke nele a i ʻole ke hoʻomohala ʻole ʻia ka uterus i nā hihia he nui. Eia naʻe, ʻoiai ke hana maʻamau nei kāu mau ovaries, e hoʻomau nō ʻoe e hana i nā hormones e hana ai i kāu kaʻina menstrual maoli, ʻoiai ʻaʻole ʻoe e loaʻa nā manawa.

He aha nā hōʻailona o ka vaginal agenesis?

ʻO ka hōʻailona nui āu e ʻike ai ʻo ia ka nele o nā manawa menstrual ma ka makahiki 16, ʻoiai ua holomua maʻamau nā ʻaoʻao ʻē aʻe o ka puberty. Hiki i kēia ke manaʻo huikau i ka wā e like ana me ka hoʻomohala ʻana o kou kino e like me ka manaʻo ʻia ma nā ʻaoʻao ʻē aʻe.

Eia nā hōʻailona nui e makaʻala ai:

• ʻAʻohe manawa menstrual ʻoiai ka hoʻomohala ʻana o nā umauma a me ka ulu ʻana o ka lauoho pubic
• Paʻakikī a i ʻole hiki ʻole ke hoʻokomo i nā tampons
• ʻEha a i ʻole hiki ʻole i ka wā e ho'āʻo ai ke komo
• He puka vaginal hohonu loa a i ʻole kahi dimple ma kahi e pono ai ke komo vaginal
• Nā ʻāpana wahine ma waho maʻamau e like me ka maʻamau
• Nā loli hormonal maʻamau e like me nā loli mood a i ʻole ka ʻeha umauma, ʻoiai me nā manawa ʻole

Hoʻomaka pinepine kēia mau hōʻailona i kou mau makahiki ʻōpio i ka wā e hoʻomaka ai nā manawa. He mea maʻamau loa ke manaʻo hopohopo a huikau inā ʻike ʻoe i kēia mau hōʻailona.

He aha nā kumu o ka vaginal agenesis?

Hana ʻia ka vaginal agenesis ma muli o nā loli hoʻomohala i loko o nā mahina mua o ka hāpai ʻana. ʻAʻole hoʻomohala nā ʻāpana e hana maʻamau i ka vagina a me ka uterus, i kapa ʻia ʻo Müllerian ducts, e like me ka manaʻo.

ʻAʻole maopopo loa ke kumu pololei, akā manaʻo nā mea noiʻi he hui ia o nā kumu genetic a me nā kumu kūlohelohe. I ka hapanui o nā hihia, hana ia ma ka manawa kūpono i ka wā o ka hoʻomohala ʻana o ka pēpē ma mua o ka hoʻoilina ʻia mai nā mākua.

I kekahi manawa, hiki i nā loli genetic ke pāʻani i kahi kuleana. Ma nā hihia maʻamau ʻole, hiki ke pili ia me nā kūlana genetic ʻē aʻe, akā no ka hapanui o nā kānaka, hana ia ma ke ʻano he ʻokoʻa hoʻomohala kaʻawale me ka ʻole o ka mōʻaukala ʻohana maopopo.

He aha nā ʻano o ka vaginal agenesis?

Aia ʻelua mau ʻano nui o ka vaginal agenesis, a ʻo ka hoʻomaopopo ʻana i ke ʻano āu e loaʻa ai e kōkua i ka alakaʻi ʻana i nā koho lapaʻau. Hoʻoholo ʻia ka hoʻokaʻina ma nā ʻāpana hana hou ʻē aʻe i pilikia.

Hoʻopili ka vaginal agenesis Type 1 i ka vagina wale nō i nele a i ʻole i hoʻomohala ʻole ʻia. Hoʻomohala maʻamau kāu uterus a me nā fallopian tubes, ʻo ia hoʻi hiki iā ʻoe ke ʻike i ka ʻeha pelvic mahina i ka wā e hele ai kou kino i nā kaʻina menstrual me ka ʻole o kahi ala no ke koko menstrual e puka aku.

ʻO ka vaginal agenesis Type 2, ʻo ia ka mea maʻamau, e hoʻopili ana i ka vagina a me ka uterus i nele a i ʻole i hoʻomohala ʻole ʻia. ʻO kēia pinepine he ʻāpana ia o ka MRKH syndrome. ʻAʻole ʻoe e ʻike i nā manawa menstrual a i ʻole nā ​​cramping pili ʻoiai ʻaʻohe uterine lining e hoʻolei.

I ka wā e ʻike ai i ke kauka no ka vaginal agenesis?

Pono ʻoe e kamaʻilio me kahi mea mālama ola inā ʻaʻole ʻoe i hoʻomaka i kāu manawa ma ka makahiki 16, ʻoiai inā ua holomua maʻamau nā hōʻailona ʻē aʻe o ka puberty e like me ka hoʻomohala ʻana o nā umauma. Hiki i ka loiloi mua ke hāʻawi iā ʻoe i nā pane a me ka maluhia o ka manaʻo.

He mea nui nō hoʻi ke ʻimi i ka ʻōlelo aʻo lapaʻau inā ʻike ʻoe i ka ʻeha i ka wā e ho'āʻo ai ke hoʻokomo i ka tampon a i ʻole ka hana moekolohe. Hiki i kēia mau kūlana ke manaʻo hilahila e kūkākūkā, akā ua hoʻomaʻamaʻa ʻia nā mea mālama ola e mālama i kēia mau kamaʻilio me ka mahalo a me ka ʻoihana.

Mai hoʻokaʻulua i ka ʻimi ʻana i ke kōkua inā ke manaʻo hopohopo a kaumaha paha ʻoe e pili ana i kēia mau hōʻailona. ʻO ka loaʻa ʻana o kahi ʻike maopopo e hiki ai iā ʻoe ke ʻimi i nā koho lapaʻau a hoʻopili me nā kumuwaiwai kākoʻo e hiki ke hana i kahi ʻokoʻa nui i kou olakino.

He aha nā pilikia no ka vaginal agenesis?

ʻO nā pilikia nui e pili ana i ke kahe menstrual a me nā pilina pili aloha, akā hiki ke mālama ʻia kēia me ka mālama kūpono. ʻO ka hoʻomaopopo ʻana i nā pilikia hiki ke kōkua iā ʻoe e hana i nā hoʻoholo ʻike e pili ana i kāu mālama.

Inā loaʻa iā ʻoe ka vaginal agenesis Type 1 me kahi uterus hana, hiki i ke koko menstrual ke hōʻiliʻili i kēlā me kēia mahina, e hana ana i ka ʻeha pelvic nui i kapa ʻia ʻo hematocolpos. Pono kēia i ka nānā lapaʻau koke e pale aku i nā pilikia hou aku e like me ka maʻi a i ʻole ka hōʻino ʻana i nā ʻāpana kokoke.

Hana ʻia nā ʻokoʻa o nā puʻupaʻa a me nā ala mimi ma kahi o 25-30% o nā kānaka me ka vaginal agenesis. Hiki i kēia ke komo pū me ka loaʻa ʻana o hoʻokahi puʻupaʻa, nā loli ʻano puʻupaʻa, a i ʻole nā ​​ʻokoʻa kūlana ala mimi e maʻamau ʻole e hana i nā hōʻailona akā pono e nānā.

Hiki i nā hopena manaʻo a me ka noʻonoʻo ke nui, ʻoiai e pili ana i ke kiʻi kino, nā pilina, a me nā pilikia momona. He nui nā kānaka e ʻike i ka hopohopo, ka kaumaha, a i ʻole nā ​​pilikia pilina, ʻo ia ke kumu he ʻāpana nui ke kākoʻo noʻonoʻo o ka mālama piha.

Pehea ka hōʻoia ʻana o ka vaginal agenesis?

Hoʻomaka maʻamau ka hōʻoia ʻana me kahi nānā kino a me ka kūkākūkā mōʻaukala lapaʻau me kāu mea mālama ola. E nānā lākou i kāu mau ʻāpana wahine ma waho a hiki ke ho'āʻo mālie e ʻimi i ka puka vaginal e loiloi i kona hohonu.

Hāʻawi ka MRI scan i nā kiʻi kikoʻī o kāu mau ʻāpana hana hou i loko. Kōkua kēia e hoʻoholo inā aia kāu uterus a me nā ovaries a pehea lākou i kau ʻia ai, kahi e alakaʻi ai i nā hoʻoholo lapaʻau.

Nānā nā ho'āʻo koko i kāu mau pae hormone e hōʻoia i ka hana maʻamau ʻana o kāu mau ovaries. Hōʻike maʻamau kēia mau ho'āʻo i nā ʻano hormone wahine maʻamau, kahi e kōkua ai e hoʻokaʻawale i ka vaginal agenesis mai nā kūlana ʻē aʻe e hiki ke hana i nā manawa nele.

I kekahi manawa, hiki ke hoʻohana ʻia kahi ultrasound ma ke ʻano he noiʻi kiʻi mua. Eia naʻe, hāʻawi maʻamau ka MRI i nā ʻike kikoʻī hou aku e pili ana i nā ʻāpana i loko a ua manaʻo ʻia ʻo ia ka mea kūpono loa no ka hōʻoia ʻana.

He aha ka lapaʻau no ka vaginal agenesis?

Kūkulu ka lapaʻau i ka hana ʻana i kahi vagina hana e hiki ai ke loaʻa nā pilina pili aloha ʻoluʻolu. Aia nā koho ʻoki a me nā koho ʻole ʻoki, a ʻo ke koho maikaʻi loa e hilinaʻi ana i kāu kūlana pilikino a me kāu makemake.

ʻO ka lapaʻau ʻole ʻoki e komo pū ana me ka dilation vaginal, kahi āu e hoʻonui mālie ai i ka ʻili vaginal me nā dilators i hoʻolālā kūikawā ʻia. Pono kēia kaʻina hana i ka hoʻolaʻa a maʻamau e lawe i nā mahina he nui, akā hiki ke hana maikaʻi i kahi vagina hana me ka ʻole o ka ʻoki.

ʻO nā koho ʻoki e komo pū ana me nā ʻano like ʻole no ka hana ʻana i kahi ʻāpana vaginal. Hoʻohana ka McIndoe procedure i nā grafts ʻili, ʻoiai hoʻohana ka intestinal vaginoplasty i kahi ʻāpana o ka ʻōpū e hana i ka vaginal lining. E kūkākūkā kāu kauka i ke ala e hana maikaʻi ai no kāu anatomy.

He mea nui ka manawa o ka lapaʻau a pono e kūlike me kou mākaukau no nā pilina pili aloha. Manaʻo ka hapanui o nā loea e kali a hiki i kou mākaukau a loaʻa iā ʻoe kahi hoa kākoʻo, ʻoiai e hoʻomaikaʻi kēia i nā helu holomua o ka lapaʻau.

Pehea e mālama ai i ka vaginal agenesis ma ka home?

Inā ke hoʻohana nei ʻoe i nā dilators vaginal ma ke ʻano he ʻāpana o kāu lapaʻau, ʻo ka kūpaʻa ka mea nui i ka holomua. E hahai pono i ka papa hana a kāu mea mālama ola, ʻoiai ke kōkua nei ka hoʻohana mau ʻana e mālama a hoʻonui mālie i ka hohonu vaginal.

E hana i kahi wahi ʻoluʻolu a pilikino no nā manawa dilation. E hoʻohana i nā lubricants kūpono e like me ka ʻōlelo a kāu hui lapaʻau, a e lawe i kou manawa e pale aku ai i ka ʻoluʻolu ʻole a i ʻole ka hōʻino.

He mea nui like ka mālama ponoʻī noʻonoʻo i ka wā o ka lapaʻau. E noʻonoʻo e komo i nā hui kākoʻo, ma ka pūnaewele a i ʻole ma ke kanaka, kahi āu e hiki ai ke hoʻopili me nā poʻe ʻē aʻe e hoʻomaopopo i kou ʻike. He nui nā kānaka e ʻike i ka ʻoluʻolu nui i kēia mau kaiāulu.

E mālama i ka kamaʻilio ākea me kāu hui mālama ola e pili ana i nā hopohopo a i ʻole nā ​​pilikia āu e ʻike nei. Hiki iā lākou ke hoʻoponopono i kāu papa hana lapaʻau a i ʻole ke hāʻawi i nā kumuwaiwai hou aku e kākoʻo i kāu holomua.

Pehea ʻoe e hoʻomākaukau ai no kāu manawa kauka?

E kākau i kāu mau hōʻailona a pau a me ka wā i hoʻomaka ai lākou, me nā kikoʻī e pili ana i kāu mōʻaukala menstrual a me kekahi ʻeha a i ʻole ka ʻoluʻolu ʻole āu i ʻike ai. Kōkua kēia ʻike i kāu kauka e hoʻomaopopo piha i kāu kūlana.

E hoʻomākaukau i kahi papa inoa o nā nīnau āu e makemake ai e nīnau. ʻO nā nīnau maʻamau e komo pū ana i nā koho lapaʻau, nā helu holomua, ka manawa no ka hoʻomaikaʻi, a pehea ka pilikia o ke kūlana i kāu mau pilina wā e hiki mai ana a i ʻole ka hoʻolālā ʻohana.

E noʻonoʻo e lawe mai i kahi hoa aloha a i ʻole ʻohana hilinaʻi no ke kākoʻo, ʻoiai inā ke manaʻo hopohopo nei ʻoe e pili ana i ka manawa. ʻO ka loaʻa ʻana o kekahi ma laila e kōkua iā ʻoe e hoʻomanaʻo i nā ʻike nui a hāʻawi i ka ʻoluʻolu noʻonoʻo.

E mākaukau e kūkākūkā i nā kikoʻī pili aloha e pili ana i kou kino a me nā pilina. E hoʻomanaʻo he poʻe loea nā mea mālama ola e mālama i kēia mau kamaʻilio maʻamau a me ka ʻole o ka hoʻohewa.

He aha ka mea nui e pili ana i ka vaginal agenesis?

ʻO ka vaginal agenesis kahi kūlana hiki ke mālama ʻia ʻaʻole pono e kaupalena i kou hiki ke loaʻa nā pilina pili aloha piha a i ʻole kahi ola hauʻoli. Me ka mālama lapaʻau kūpono a me ke kākoʻo, loaʻa i ka hapanui o nā kānaka nā hopena maikaʻi loa.

Hāʻawi ka hōʻoia mua a me ka hoʻolālā lapaʻau iā ʻoe i nā hopena maikaʻi loa a kōkua i ka hoʻoponopono ʻana i nā hopohopo noʻonoʻo āu e loaʻa ai. ʻO ka hana pū ʻana me nā mea mālama ola akamai e kūikawā ana i kēia kūlana e hōʻoia iā ʻoe e loaʻa i ka mālama kūpono loa.

E hoʻomanaʻo e pili ana kēia kūlana i nā kānaka he nui, a ʻaʻole ʻoe wale nō i kēia ʻike. Hiki i nā hui kākoʻo, ka ʻōlelo aʻo, a me ka lapaʻau ke pāʻani i nā kuleana nui i ke kōkua ʻana iā ʻoe e hoʻokele i kēia huakaʻi me ka holomua.

Nā nīnau i nīnau pinepine ʻia e pili ana i ka vaginal agenesis

Hiki iaʻu ke hāpai ke loaʻa iaʻu ka vaginal agenesis?

Hilinaʻi ka hāpai ʻana inā loaʻa iā ʻoe kahi uterus a me nā ovaries hana. Inā maʻamau kāu mau ovaries akā nele kāu uterus (Type 2), ʻaʻole hiki iā ʻoe ke hāpai i kahi hāpai maoli, akā hiki ke hoʻohana ʻia kāu mau hua no ka surrogacy. Inā loaʻa iā ʻoe kahi uterus (Type 1), hiki paha ke hāpai ma hope o ka hana ʻana i kahi ʻāpana vaginal.

E hoʻopili anei ka lapaʻau no ka vaginal agenesis i ka ʻoluʻolu moekolohe?

ʻO ka hapanui o nā kānaka i hoʻopau maikaʻi i ka lapaʻau e hōʻike i nā pilina pili aloha ʻoluʻolu. Hiki i nā lapaʻau ʻoki a me nā lapaʻau ʻole ʻoki ke hana i kahi vagina e hana maʻamau no ka hana moekolohe. ʻO ke kī ʻo ia ke hahai piha ʻana i ka lapaʻau a mālama i nā hopena e like me ke kuhikuhi a kāu hui mālama ola.

Pehea ka lōʻihi o ka lapaʻau e hana ai?

ʻO ka dilation ʻole ʻoki maʻamau e lawe i 3-6 mau mahina o nā manawa kūmau i kēlā me kēia lā e hoʻokō ai i ka hohonu kūpono. Pono nā kaʻina hana ʻoki i ka manawa hoʻōla o 6-8 mau wiki, a laila e hoʻomau i ka mālama. E hāʻawi kāu mea mālama ola iā ʻoe i nā manawa kikoʻī e pili ana i ke ala lapaʻau āu i koho ai.

He mea hoʻoilina anei ka vaginal agenesis?

I ka hapanui o nā hihia, hana ma ka manawa kūpono ka vaginal agenesis a ʻaʻole i hoʻoilina ʻia mai nā mākua. ʻOiai hiki i kekahi mau kūlana genetic maʻamau ʻole ke hoʻonui i ka pilikia, ʻo ka hapa nui o nā hihia e hana me ka ʻole o ka mōʻaukala ʻohana. ʻAʻole hoʻonui nui kēia kūlana i ka pilikia no kāu mau keiki e hiki mai ana.

E pono anei iaʻu ka mālama lapaʻau ola lōʻihi no kēia kūlana?

Ma hope o ka lapaʻau holomua, pono ʻoe i nā manawa nānā ma hope e hōʻoia i ka hana maikaʻi ʻana o nā mea a pau. Inā koho ʻoe i ka dilation, pono ʻoe e mālama i kahi papa hana e mālama i ka hohonu vaginal. ʻO ka hapanui o nā kānaka ma hope e pono wale i nā nānā makahiki, e like me ka mālama gynecological maʻamau.