He aha ka Waldenstrom Macroglobulinemia? Nā Hōʻailona, Nā Kumu, & Lapaʻau

ʻO ka Waldenstrom macroglobulinemia kahi ʻano maʻamau ʻole o ka maʻi kanesa koko e pili ana i ka mana o kou ʻōnaehana pale kino e hakakā i nā maʻi. Hana ʻia ia i ka wā e ulu wikiwiki ai kekahi mau keʻena koko keʻokeʻo i kapa ʻia ʻo B-lymphocytes a hana nui i kahi protein i kapa ʻia ʻo IgM antibody.

Neʻeneʻe mālie kēia kūlana i hoʻohālikelike ʻia me nā maʻi kanesa koko ʻē aʻe, ʻo ia hoʻi hiki i nā kānaka he nui ke ola me ia no nā makahiki ʻoiai e hoʻokele ana i kā lākou mau hōʻailona. ʻOiai ke kani nui ia i ka hoʻomaka mua, hiki i ka hoʻomaopopo ʻana i nā mea e hana ana i loko o kou kino ke kōkua iā ʻoe e ʻike ʻoi aku ka mana o kāu huakaʻi olakino.

He aha ka Waldenstrom Macroglobulinemia?

ʻO ka Waldenstrom macroglobulinemia, i kapa pinepine ʻia ʻo WM, kahi maʻi kanesa e hoʻomaka ana i loko o kou iwi ʻiwi kahi i hana ʻia ai nā keʻena koko. ʻO nā keʻena kanesa he ʻano kikoʻī o ka keʻena koko keʻokeʻo e kōkua maʻamau iā ʻoe mai nā maʻi.

Hana nui kēia mau keʻena kūpono ʻole i kahi protein i kapa ʻia ʻo immunoglobulin M a i ʻole IgM. I ka wā e kūkulu nui ai ka IgM i loko o kou koko, e hoʻolilo ia i kou koko i mānoanoa ma mua o ka maʻamau, e like me ka meli ma mua o ka wai. Hiki i kēia mānoanoa ke hoʻopilikia i ke kahe koko ma kou kino holoʻokoʻa.

Manaʻo ʻia ʻo WM he ʻano lymphoma, ʻo ia hoʻi kahi ʻano o ka non-Hodgkin lymphoma. Hoʻokomo pū ʻia ia ma ke ʻano he lymphoplasmacytic lymphoma no ka mea e like nā keʻena kanesa me ka hui ʻana o nā lymphocytes a me nā keʻena plasma ma lalo o ka microscope.

He aha nā Hōʻailona o ka Waldenstrom Macroglobulinemia?

ʻAʻohe hōʻailona o nā kānaka he nui me WM i ka hoʻomaka mua, a ʻike pinepine ʻia ke kūlana i ka wā o nā hoʻokolohua koko maʻamau. I ka wā e ʻike ʻia ai nā hōʻailona, ​​e ulu mālie lākou a hiki ke like me ka luhi maʻamau a i ʻole nā ​​pilikia olakino liʻiliʻi.

ʻO nā hōʻailona maʻamau āu e ʻike ai penei:

• Luhi mau loa ʻaʻole hoʻomaikaʻi ʻia me ka hoʻomaha
• Nawaliwali e hoʻopilikia ai i nā hana o kēlā me kēia lā
• ʻUlaʻula maʻalahi a i ʻole ka koko, ʻoiai mai nā kīkī liʻiliʻi
• Ihu koko pinepine a i ʻole nā gums koko
• Nā lymph nodes nui i kou ʻāʻī, armpits, a i ʻole groin
• Nā sweats o ka pō e hoʻoinu ai i kou kapa a i ʻole nā sheets
• Kaumaha nalowale i manaʻo ʻole ʻia ma luna o kekahi mau mahina
• Nā maʻi hou e lōʻihi ai ka hoʻōla

Hoʻomohala pū kekahi poʻe i nā hōʻailona e pili ana i ke koko mānoanoa, ka mea a nā kauka i kapa ai ʻo ka hyperviscosity syndrome. Loaʻa kēia mau hōʻailona no ka mea he pilikia ke kahe ʻana o ke koko mānoanoa ma o nā moku liʻiliʻi i loko o kou kino.

ʻO nā hōʻailona o ke koko mānoanoa e komo pū ana:

• Nānā ʻike ʻole a i ʻole nā loli i ka ʻike
• Nā headaches e like ʻole me kou mau headaches maʻamau
• Nā dizziness a i ʻole ka manaʻo māmā
• Kuhihewa a i ʻole ka pilikia e hoʻoikaika ai
• Pōkole o ka hanu i nā hana maʻamau

ʻAʻole pinepine, hiki iā ʻoe ke ʻike i ka tingling a i ʻole ka numbness i kou mau lima a me nā wāwae. Loaʻa kēia i ka wā e hoʻopilikia ai ka protein IgM keu i kou mau nerves, kahi kūlana i kapa ʻia ʻo peripheral neuropathy.

He aha ka mea e hoʻokumu ai i ka Waldenstrom Macroglobulinemia?

ʻAʻole maopopo loa ke kumu o ka WM, akā manaʻo nā mea noiʻi ua hoʻomaka ia i ka wā e loli ai ka DNA i nā B-lymphocytes. Ke haʻi nei kēia mau loli genetic i nā cell e ulu a hoʻokaʻawale i ka wā ʻaʻole pono, e alakaʻi ana i ka hōʻiliʻili ʻana o nā cell kūpono ʻole.

ʻO ka hapa nui o nā hihia o WM e hana kūʻokoʻa me ka ʻole o ka mea hoʻonāukiuki maopopo. ʻO nā loli DNA e hoʻokumu ai i ka WM e hana maʻamau i loko o ke ola o ke kanaka ma mua o ka hoʻoilina ʻia mai nā mākua.

Eia naʻe, ua ʻike nā ʻepekema i kekahi mau mea e hoʻonui paha i ka hiki ke hoʻomohala i ka WM. Ma kahi o 20% o nā kānaka me ka WM he mau lālā ʻohana kā lākou i loaʻa pū kekahi i ka WM a i ʻole nā maʻi koko pili, e hōʻike ana i ka genetics e pāʻani paha i kahi kuleana i kekahi mau hihia.

ʻO ka makahiki ka mea pilikia nui loa i ʻike ʻia e mākou. Hoʻopili nui ʻia ka WM i nā mākua kahiko, me ka nui o nā kānaka i ʻike ʻia ma ko lākou mau makahiki 60 a 70 paha. ʻOi aku ka nui o nā kāne i loaʻa i ka WM ma mua o nā wāhine.

I ka Wā e ʻIke Ai i ke Kauka no ka Waldenstrom Macroglobulinemia?

Pono ʻoe e hoʻokaʻaʻike i kāu kauka inā loaʻa iā ʻoe nā hōʻailona mau loa ʻaʻole i hoʻomaikaʻi ma hope o kekahi mau pule. ʻOiai he nui nā kumu o kēia mau hōʻailona, he mea nui ia e nānā ʻia, ʻoi aku hoʻi inā he nui nā hōʻailona iā ʻoe.

Hoʻonohonoho i kahi manawa inā ʻike ʻoe i ka luhi mau loa e hoʻopilikia ana i kou ola i kēlā me kēia lā, ka nalowale kaumaha wehe ʻole ʻia, a i ʻole nā ​​maʻi pinepine. Pono kēia mau hōʻailona i ka nānā ʻana o ke kauka me ka nānā ʻole i ko lākou kumu.

E ʻimi i ka mālama ola kino koke inā loaʻa iā ʻoe nā loli ʻike koke, nā poʻo ʻeha nui, ka huikau, a i ʻole ka hanu pōkole nui. Hiki i kēia ke hōʻailona e hoʻopilikia ana ke koko mānoanoa i nā ʻōnaehana nui a pono i ka mālama koke.

Mai hopohopo e pili ana i ka manaʻo nui loa. Makemake ʻia e kāu kauka e loiloi i nā hōʻailona e lilo i mea liʻiliʻi ma mua o ka nalo ʻana i kahi mea pono e nānā ʻia.

He aha nā Mea Pilikia no ka Waldenstrom Macroglobulinemia?

Hiki i kekahi mau mea ke hoʻonui i kou manawa e loaʻa ai ka WM, ʻoiai ʻaʻole ʻo ka loaʻa ʻana o nā mea pilikia e ʻōlelo ai e loaʻa nō ʻoe i ke kūlana. ʻAʻole loaʻa ka WM i ka hapa nui o nā kānaka me nā mea pilikia, a loaʻa i kekahi poʻe me ka ʻole o nā mea pilikia i ʻike ʻia.

ʻO nā mea pilikia nui e komo pū ana:

• Makahiki ma mua o 60, me ka hoʻonui ʻana o ka pilikia i ka wā e ulu ai ʻoe
• ʻO ke kāne, ʻoiai ʻoi aku ka nui o nā kāne i loaʻa i ka WM ma mua o nā wāhine
• Loaʻa ka mōʻaukala ʻohana o ka WM a i ʻole nā ​​kānā koko pili
• Loaʻa kahi kūlana i kapa ʻia ʻo monoclonal gammopathy of undetermined significance (MGUS)
• Hoʻolaha mua ʻia i ka hepatitis C virus
• Kekahi mau kūlana autoimmune

ʻO ka MGUS kahi kūlana kahi e hana ai kou kino i nā protein kūpono ʻole e like me nā mea i loko o ka WM, akā i ka nui liʻiliʻi. ʻAʻole nui ka poʻe me ka MGUS e loaʻa i ka maʻi kanesa, akā e hoʻonui iki ana i ka pilikia o ka WM a me nā maʻi kanesa koko ʻē aʻe.

Ua noiʻi ʻia nā kumu kūlohelohe e like me ka hōʻike ʻana i kekahi mau kemika a i ʻole ka radiation, akā ʻaʻohe pilina maopopo i hoʻokumu ʻia i ka WM. ʻO ka ʻoiaʻiʻo maikaʻi, ʻo ka hapa nui o nā kumu pilikia no ka WM he mau mea ʻaʻole hiki iā ʻoe ke kaohi, ʻo ia hoʻi ʻaʻohe mea āu i hana ai e hoʻokumu i ke kūlana.

He aha nā pilikia hiki ke loaʻa i ka Waldenstrom Macroglobulinemia?

Hiki i ka WM ke alakaʻi i nā pilikia he nui, ma muli nui o ke koko mānoanoa a me ka hopena o nā cell kanesa ma kāu ʻōnaehana pale. Hiki i ka hoʻomaopopo ʻana i kēia mau mea hiki ke kōkua iā ʻoe e ʻike i ka wā e ʻimi ai i ka mālama lapaʻau.

ʻO ka pilikia koʻikoʻi loa ka hyperviscosity syndrome, kahi e mānoanoa loa ai ke koko e kahe pono ʻole. Hoʻopili kēia i kahi 10-30% o nā kānaka me ka WM a hiki ke hoʻokumu i nā pilikia ʻike, kahe koko, a ma nā hihia kakaikahi, ka hahau a i ʻole nā ​​pilikia naʻau.

ʻO nā pilikia maʻamau e komo pū ana:

• Hoʻonui ʻia ka pilikia o nā maʻi ma muli o ka nāwaliwali o ka ʻōnaehana pale
• Anemia, e hoʻokumu ana i ka luhi a me ka hanu pōkole
• Nā pilikia kahe koko ma muli o ka emi ʻana o ka helu platelet
• ʻO ka spleen nui e hiki ke hoʻokumu i ka ʻoluʻolu ʻole o ka ʻōpū
• Nā pilikia puʻupaʻa mai ka hōʻiliʻili protein
• Poino o nā aʻalolo e hoʻokumu ana i ka numbness a i ʻole ka tingling

Loaʻa i kekahi poʻe kahi kūlana i kapa ʻia ʻo cryoglobulinemia, kahi e hoʻopili pū ai nā protein i loko o ke koko i nā mahana anu. Hiki i kēia ke hoʻokumu i ka ʻeha o nā hui, nā ʻili ʻili, a i ʻole nā ​​pilikia kahe koko i ka wā anuanu.

Kakaikahi, hiki i ka WM ke hoʻololi i kahi ʻano ʻoi aku ka ʻino o ka lymphoma i kapa ʻia ʻo diffuse large B-cell lymphoma. Hana kēia ma lalo o 10% o nā hihia a maʻamau e hana ma hope o nā makahiki he nui ma hope o ka hōʻailona WM mua.

ʻO ka mea maikaʻi, hiki i nā lāʻau lapaʻau hou ke pale a mālama pono i ka hapa nui o kēia mau pilikia. Ke kōkua nei ka nānā mau ʻana i ka hopu ʻana i nā pilikia i ka wā mua ke maʻalahi ka mālama ʻana.

Pehea ka Hōʻoia ʻia ʻana o ka Waldenstrom Macroglobulinemia?

ʻO ka hōʻoia ʻana i ka WM e pili ana i nā hoʻokolohua he nui e hōʻoia i ke alo o nā sela kanesa a ana i nā pae o ka protein IgM i loko o kou koko. E hoʻomaka kāu kauka me nā hoʻokolohua koko a pono paha i nā kaʻina hana hou aʻe e kiʻi i kahi kiʻi piha.

ʻO ka hana hōʻoia maʻamau e hoʻomaka me ka hana koko e hōʻike ana i nā pae protein ʻole a i ʻole nā helu sela koko. E kauoha kāu kauka i nā hoʻokolohua kūikawā e ana i nā pae IgM a e ʻimi i ke ʻano protein hiʻohiʻona o ka WM.

ʻO nā hoʻokolohua hōʻoia nui e komo pū ana:

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1. Helu koko piha e nānā i nā ʻano sela koko a pau
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2. Panel metabolic ākea e loiloi i ka hana o nā kino
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3. Serum protein electrophoresis e ʻike i nā protein ʻole
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4. Immunofixation e hōʻoia i ke ʻano o ka protein ʻole
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5. Biopsy iwi ʻiwi e nānā pololei i nā sela kanesa
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6. Flow cytometry e ʻike i nā māka sela kūikawā
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ʻO ka biopsy iwi ʻiwi maʻamau e hana ʻia ma ke ʻano he kaʻina hana ma waho me ka anesthesia kūloko. E lawe kāu kauka i kahi laʻana liʻiliʻi o ka iwi ʻiwi mai kou iwi hip e nānā ma lalo o ka microscope.

Hiki i nā hoʻokolohua hou aʻe ke komo pū me nā CT scan e nānā i nā lymph nodes a i ʻole nā kino nui, a i kekahi manawa ka hoʻokolohua gene o nā sela kanesa e alakaʻi i nā hoʻoholo mālama. Hiki paha i kāu kauka ke hoʻokolohua i kou mānoanoa koko inā loaʻa iā ʻoe nā hōʻailona o ka hyperviscosity syndrome.

He aha ka Lāʻau no ka Waldenstrom Macroglobulinemia?

ʻO ka mālama ʻana no ka WM e hilinaʻi ana i kou mau hōʻailona, nā hopena hoʻokolohua koko, a me kou olakino holoʻokoʻa. ʻAʻohe pono o ka mālama koke ʻana i nā kānaka he nui me ka WM a hiki ke nānā ʻia me nā nānā maʻamau, kahi ala i kapa ʻia ʻo

E hōʻike aku kāu kauka i kahi lāʻau lapaʻau inā loaʻa iā ʻoe nā hōʻailona, ​​inā emi nui nā helu koko, a i ʻole inā kiʻekiʻe loa nā pae IgM. ʻO ka pahuhopu, ʻo ia ke kaohi i ka maʻi, ho'ēmi i nā hōʻailona, ​​a mālama i kou ola maikaʻi.

ʻO nā koho lapaʻau maʻamau e komo pū ana:

• Nā lāʻau chemotherapy e like me bendamustine a i ʻole fludarabine
• Nā lāʻau lapaʻau i hoʻopili ʻia e like me ibrutinib a i ʻole rituximab
• Nā hui immunotherapy e hana pū me kou ʻōnaehana pale kino
• Plasmapheresis e wehe i nā protein nui mai ke koko
• Hoʻololi ʻana i nā cell kumu i nā mea maʻi ʻōpiopio i koho ʻia

Hoʻohana pinepine ʻia ʻo Rituximab no ka mea, ke kuhikuhi pololei nei ia i ke ʻano o nā cell i komo i loko o WM. Hāʻawi pinepine ʻia ia ma ke ʻano he infusion ma ke keʻena a hoʻohui pinepine ʻia me nā lāʻau chemotherapy no nā hopena maikaʻi aʻe.

ʻO ka Plasmapheresis kahi kaʻina hana e kānana i kou koko e wehe i ka protein IgM nui. Hoʻohana pinepine ʻia ia ma ke ʻano he ala wikiwiki e hoʻēmi ai i ka mānoanoa o ke koko ʻoiai e hoʻomaka ana nā lapaʻau ʻē aʻe.

Hāʻawi pinepine ʻia ka lapaʻau i nā pōʻai me nā manawa hoʻomaha ma waena e hiki ai i kou kino ke hoʻōla. Hiki i ka hapa nui o nā kānaka ke hoʻomau i kā lākou mau hana maʻamau i ka wā lapaʻau, ʻoiai paha ʻoe e luhi nui ma mua o ka maʻamau.

Pehea e hoʻokele ai i ka Waldenstrom Macroglobulinemia ma ka home?

ʻO ke ola ʻana me WM e pili ana i ka mālama ʻana i kou olakino holoʻokoʻa ʻoiai e hoʻokele ana i nā hōʻailona āu e loaʻa ai. Hiki i nā hoʻoponopono ola maʻalahi ke kōkua iā ʻoe e ʻoluʻolu a hoʻēmi i kou pilikia o nā pilikia.

E nānā i ka mālama ʻana i kou ikehu ma ka loaʻa ʻana o ka hoʻomaha kūpono a me ka ʻai ʻana i nā meaʻai momona. Pono kou kino i ka ikehu hou aku e mālama i ke kūlana, no laila mai manaʻo he hala ke pono ʻoe i ka hiamoe ʻoi aku ma mua o ka wā ma mua.

ʻO nā hana mālama pono'ī nui e komo pū ana:

• ʻAi i ka ʻai kaulike piha i nā hua, nā huaʻai, a me nā protein
• E inu nui i ka wai e mālama ai i ka wai o ke kino
• E hana mau i ka hoʻoikaika kino māmā e like me kou ikaika
• E pale aku i nā lehulehu i ka wā o ka manawa anu a me ka maʻi
• E holoi pinepine i nā lima e pale aku ai i nā maʻi
• E lawe pono i nā lāʻau i kuhikuhi ʻia e like me ke kuhikuhi

E nānā i kou mau hōʻailona a mālama i nā loli. Loaʻa i kekahi poʻe ka pono o ka mālama ʻana i kahi moʻolelo maʻalahi o ko lākou manaʻo, hiki ke lilo i ʻike pono no kāu hui olakino.

E noho hou me nā lāʻau pale, akā e nīnau mua i kāu kauka no ka mea ʻaʻole i ʻōlelo ʻia kekahi mau lāʻau pale i ka wā o ka mālama ʻana. ʻAʻole paha e pane maikaʻi kāu ʻōnaehana pale i nā lāʻau pale e like me ka maʻamau, akā ʻoi aku ka maikaʻi o kekahi pale ma mua o ka ʻole.

Mai kānalua e noi aku i ke kōkua no nā hana o kēlā me kēia lā ke luhi a maʻi ʻoe. ʻO ka ʻae ʻana i ke kākoʻo mai ka ʻohana a me nā hoaaloha he ʻāpana nui ia o ka mālama ʻana iā ʻoe iho.

Pehea ʻoe e hoʻomākaukau ai no kāu hālāwai me ke kauka?

Hiki i ka hoʻomākaukau ʻana no kāu mau hālāwai ke kōkua iā ʻoe e hoʻohana pono i kou manawa me kāu hui olakino. E kākau i kāu mau nīnau a me nā hopohopo ma mua o ka manawa i ʻole ʻoe e poina e kūkākūkā i nā kumuhana koʻikoʻi.

E lawe mai i ka papa inoa piha o nā lāʻau lapaʻau, nā wikamina, a me nā mea hoʻohui āu e lawe nei, me nā nui a me ka pinepine o kāu lawe ʻana. Kōkua kēia i kāu kauka e pale aku i nā pilina pōʻino.

Ma mua o kāu hālāwai, e hoʻomākaukau:

• He papa inoa o kāu mau hōʻailona a me ka manawa i hoʻomaka ai lākou
• Kāu moʻolelo lapaʻau, me nā kūlana a me nā mālama ʻē aʻe
• Mōʻaukala ʻohana o nā maʻi koko a i ʻole nā ​​kānā
• Nā nīnau e pili ana i kāu ʻike, nā koho mālama, a me ka prognosis
• He hoaaloha a hoa ʻohana hilinaʻi e hele pū me ʻoe

E noʻonoʻo e lawe mai i kekahi kanaka i kāu mau hālāwai, ʻoi aku hoʻi i ka wā e kūkākūkā ana i nā koho mālama a i ʻole ka loaʻa ʻana o nā hopena hoʻokolohua. Hiki iā lākou ke kōkua iā ʻoe e hoʻomanaʻo i nā ʻike koʻikoʻi a hāʻawi i ke kākoʻo manaʻo.

Mai makaʻu e noi i kāu kauka e wehewehe i kekahi mea ʻaʻole ʻoe i maopopo. He mea maʻamau loa ia e pono ai ka wehewehe ʻana i nā huaʻōlelo lapaʻau ma kahi ʻōlelo maʻalahi, a mahalo nā kauka maikaʻi i nā mea maʻi e makemake e hoʻomaopopo i ko lākou kūlana.

He aha ka lawe nui e pili ana i ka Waldenstrom Macroglobulinemia?

He kūlana hiki ke hoʻokele ʻia ka WM e holomua pinepine ana me ka lohi, e hāʻawi ana iā ʻoe a me kāu hui olakino i ka manawa e hoʻolālā ai i ke ala kūpono loa no kou kūlana. Nui nā kānaka me ka WM e ola ana i nā ola piha a hana nui no nā makahiki he nui.

ʻO ka mea nui loa e hoʻomanaʻo ai, ʻo ia ka hoʻopili ʻana o ka WM i nā kānaka āpau i nā ʻano like ʻole. Pono kekahi poʻe i ka mālama koke, ʻoiai hiki i nā poʻe ʻē aʻe ke hele i nā makahiki me ka ʻole o ka mālama ʻana. E hana pū kāu kauka me ʻoe e hoʻoholo i ka manawa kūpono a me ke ala no kou kūlana kūikawā.

Ua hoʻomaikaʻi nui nā mālama hou i nā hopena no nā kānaka me ka WM. Ke hoʻomohala mau nei nā lāʻau hou, a nui nā kānaka e loaʻa ana i nā manawa lōʻihi kahi i kaohi maikaʻi ʻia ai ko lākou maʻi.

E kālele i nā mea hiki iā ʻoe ke kaohi: ke ola olakino, ka hahai ʻana i kāu hoʻolālā mālama, ka mālama ʻana i kāu mau hālāwai, a me ka mālama ʻana i ka kamaʻilio ākea me kāu hui olakino. Me ka mālama kūpono a me ka nānā ʻana, hiki i ka hapa nui o nā kānaka me ka WM ke hoʻomau i ka leʻaleʻa i ko lākou ola a me nā hana a lākou e aloha ai.

Nā Nīnau Pinepine e pili ana i ka Waldenstrom Macroglobulinemia

He mea hoʻoilina anei ka Waldenstrom macroglobulinemia?

ʻOiai ʻo ka hapa nui o nā hihia o ka WM e kū mai ana ma ka manawa kūpono, ma kahi o 20% o nā kānaka me ka WM he mau lālā ʻohana me ka maʻi like a i ʻole nā ​​maʻi koko pili. Ke hōʻike nei kēia i ka pāʻani ʻana o ka genetics i kekahi mau ʻohana, akā ʻaʻole ʻo ia hoʻi ka loaʻa ʻana o kahi lālā ʻohana me ka WM e loaʻa nō ʻoe.

Inā loaʻa i kou ʻohana ka mōʻaukala o ka WM, e kūkākūkā me kāu kauka. Hiki iā lākou ke ʻōlelo aku i nā hoʻokolohua koko pinepine e nānā i nā hōʻailona mua, akā ʻaʻohe hoʻokolohua nānā kūikawā no ka WM i nā poʻe me nā hōʻailona ʻole.

Pehea ka lōʻihi e ola ai kekahi me ka Waldenstrom macroglobulinemia?

ʻO ka WM ka maʻi kanesa ulu mālie, a nui nā kānaka e ola no nā makahiki he nui ma hope o ka ʻike ʻia. Hoʻomaopopo pinepine ʻia ka ola maʻamau i nā makahiki he nui ma mua o nā makahiki, ʻoi aku hoʻi me nā lāʻau lapaʻau hou.

Ke hilinaʻi nei kou manaʻo pilikino i nā mea e like me kou makahiki, ke olakino holoʻokoʻa, nā hōʻailona i ka wā i ʻike ʻia ai, a pehea kou pane i ka lāʻau lapaʻau. Hiki i kāu kauka ke hāʻawi iā ʻoe i ka ʻike kikoʻī e pili ana i kou kūlana kūikawā.

Hiki ke ho'ōla ʻia ka Waldenstrom macroglobulinemia?

I kēia manawa, ʻaʻohe lāʻau lapaʻau no ka WM, akā manaʻo ʻia he kūlana mālama maikaʻi loa ia. Nui nā kānaka e loaʻa ka remission lōʻihi kahi i ʻike ʻole ʻia ai ka maʻi a i ʻole i kaohi ʻia no nā makahiki.

ʻO ka pahuhopu o ka lāʻau lapaʻau, ʻo ia ke kaohi i nā hōʻailona, ​​pale i nā pilikia, a mālama i ka maikaʻi o ke ola. Me ka mālama kūpono, nui nā kānaka me ka WM e ola i nā ola lōʻihi a hoʻomau i kā lākou hana maʻamau.

He aha ka ʻokoʻa ma waena o ka WM a me ka multiple myeloma?

ʻO ka WM a me ka multiple myeloma nā maʻi kanesa koko e pili ana i nā sela plasma, akā ʻokoʻa nā maʻi. Hoʻopuka nui ka WM i nā antibody IgM a ʻaʻole pinepine e pilikia i nā iwi, ʻoiai ke hoʻopuka pinepine nei ka multiple myeloma i nā antibody ʻokoʻa a hoʻopili pinepine i ka hōʻino ʻana i nā iwi.

ʻOkoʻa nā lāʻau lapaʻau no kēia mau kūlana, ʻo ia ke kumu he mea nui loa ka loaʻa ʻana o ka ʻike pololei. E hoʻohana kāu kauka i nā hoʻokolohua kūikawā e hoʻokaʻawale i waena o kēia mau mea a me nā kūlana pili ʻē aʻe.

E hiki iaʻu ke hoʻomau i ka hana ʻana me ka Waldenstrom macroglobulinemia?

He nui ka poʻe me ka WM e hoʻomau ana i ka hana, ʻoi aku inā ʻaʻohe o lākou mau hōʻailona a i ʻole inā ua kaohi maikaʻi ʻia kā lākou mau hōʻailona me ka lāʻau lapaʻau. Kūpono ka hopena ma kāu ola hana ma kāu mau hōʻailona kūikawā, nā hopena ʻaoʻao o ka lāʻau lapaʻau, a me ke ʻano o kāu hana.

Pono kekahi poʻe e hoʻoponopono, e like me ka hana ʻana mai ka home i ka wā o ka lāʻau lapaʻau a i ʻole ka lawe ʻana i ka manawa hoʻomaha no nā kūkā. E kamaʻilio pololei me kāu kauka e pili ana i kou kūlana hana i hiki iā lākou ke kōkua iā ʻoe e hoʻolālā i ke ala maikaʻi loa no ka mālama ʻana i kāu ʻoihana ʻoiai e hoʻokele ana i kou olakino.