He aha te AVM o te Roro? Tohutoro, Take, me te Maimoatanga

Ko te āhuatanga o te toto i roto i te roro (AVM) tētahi whakauru koretake o ngā oko toto i roto i tō roro, kei reira ngā ātiretī me ngā uenuku e hono tika ana, kāore he whatunga noa o ngā kapiliti iti i waenganui. Whakaarohia he huarahi poto i roto i te pūnaha rori oko toto o tō roro e ngaro ana i te huarahi noa.

Ka pā tēnei āhuatanga ki te 1 i roto i ngā 2,000 ki te 5,000 o te iwi, ā, he mea whānau noa i te nuinga o te wā, ahakoa pea kāore e puta he raruraru kia tae rawa ki muri i te ora. Ko te nuinga o te iwi e whai ana i ngā AVM o te roro e ora ana i te oranga noa, ā, he tokomaha kaore rawa e mōhio kei a rātou tētahi, ki te kore e kitea i te wā e whakaahuahia ana te hauora mō tētahi take ke.

He aha tētahi AVM o te Roro?

Ka hangaia he AVM o te roro ina hono tika ngā ātiretī me ngā uenuku i roto i tō roro, kāore i roto i te whatunga noa o ngā kapiliti. I roto i te roro hauora, ka rere te toto mai i ngā ātiretī i roto i ngā kapiliti iti e whakaiti ana i te tere o te toto i mua i te tae atu ki ngā uenuku.

Ki te AVM, ka tere te toto teitei mai i ngā ātiretī ki ngā uenuku kāore i hangaia hei whakahaere i taua kaha. Ka hangaia tēnei he kohinga whakauru o ngā oko toto koretake e kiia nei ko te nidus, ko te kupu Latina tēnei mō te "kohanga."

Ko te rongo pai ko ngā AVM o te roro kei reira mai i te whānautanga, kāore hoki e horapa, kāore rānei e nui ake i te nuinga o te wā. He iti rawa hoki, no reira, ki te pānui koe i tēnei na te mea kua whakatauhia koe, kua whakatauhia rānei tētahi e aroha ana koe ki tētahi, kāore koe i te kotahi i te whakaaro nui mō tētahi mea kaore i te mohiotia.

He aha ngā tohutoro o te AVM o te Roro?

He tokomaha ngā tāngata e whai ana i ngā AVM o te roro kaore rawa e wheako i ngā tohutoro. Ki te puta ngā tohutoro, ka rereke pea te rereke i runga i te wāhi o te AVM i roto i tō roro me tōna rahi.

Ko ngā tohutoro tino noa ka kitea e koe ko:

• Ngā mamae o te upoko nui e rerekē ana i ō mamae o te upoko noa
• Ngā hopu, ā, pea koinei te tohu tuatahi o te AVM
• Te ngoikore, te ngawari rānei o ō ringa, o ō waewae rānei
• Te uaua ki te kōrero, ki te whakarongo rānei
• Ngā raruraru o te tirohanga, ngā huringa rānei
• Ngā raruraru o te taurite, o te whakahaere rānei
• Te whakapohehe, te uaua rānei ki te aro

Ka wheako etahi i ngā tohutoro ngāwari ake e whanake ana i te wa roa. Pea ko ēnei ngā huringa hinengaro iti, te uaua ki te mahara, ngā raruraru rānei ki ngā mahi motuhake penei i te pānui, te tuhituhi rānei.

I etahi wā, ka puta he mamae o te upoko nui, kaore e rite ki tetahi atu mamae o te upoko i wheakohia e koe. Ka taea e tēnei te tohu i te toto mai i te AVM, e hiahia ana ki te tiaki hauora tonu.

He aha ngā take o te AVM o te Roro?

Ka whanake ngā AVM o te roro i te wā o te whanaketanga o te peepi, i te nuinga o te wā i ngā wiki tuatahi o te hapu ina hangaia ana te pūnaha oko toto o tō roro. Kāore i tino mōhiotia te take pono o tēnei, engari e whakaarohia ana he rerekētanga whanaketanga noa atu i te mea i puta mai i ngā mahi a ō mātua, i te ira rānei.

Kāore i te whakawhiwhia mai i ō mātua ngā AVM o te roro, ka rite ki ētahi atu āhuatanga. Ka puta mai rātou, arā, ka puta mai i te tupono i te wā e whanake ana te roro. E whakapono ana ngā kānaka pūtaiao he mea noa te hanga me te hono o ngā oko toto i aua wiki whakamutunga o te hanganga o te roro.

Kāore he mea ka taea e koe, e ō mātua rānei te aukati i te hanga o te AVM. Kāore i puta mai i ngā take ora, i ngā whara, i ngā mate rānei. Ko tēnei tukanga whanaketanga noa te tikanga ka puta ngā AVM o te roro ki te tangata, ahakoa te hītori whānau, ngā take hauora rānei.

Nōhea te haere ki te taote mō te AVM o te Roro?

Me rapu tonu koe i te tiaki hauora mena ka wheako koe i te mamae o te upoko nui, kaore e rite ki tetahi atu mamae o te upoko i wheakohia e koe i mua, ina koa ki te haere mai me te ruaki, te ruaki rānei, ngā huringa o te mohio rānei. Ka taea e tēnei te tohu i te toto mai i te AVM, ā, e hiahia ana ki te maimoatanga āwangawanga.

Whakamahia he whakatau me tō taote mena ka kite koe i ngā tohutoro hou, i ngā tohutoro neurological rānei e kino haere ana penei i ngā hopu kaore i te whakamārama, ngā mamae o te upoko tonu e rerekē ana i tō tauira noa, ngā huringa rānei i tō kōrero, i tō tirohanga, i tō whakahaere rānei.

Mena kua whakatauhia kē koe ki te AVM o te roro, he mea nui kia mau tonu ngā whakatau whai muri me tō neurologist, neurologist rānei. Ka tirotirohia e rātou tō āhuatanga, ā, ka āwhina i a koe ki te mōhio ki ngā huringa i ō tohutoro, i ngā hua whakaahua rānei.

He aha ngā take morearea mō te AVM o te Roro?

Na te mea kei reira ngā AVM o te roro mai i te whānautanga, kāore ngā take morearea noa e whai hua ana i te ara e mahi ai rātou mō ētahi atu āhuatanga. Heoi, ka taea e ētahi take te awe i te mea pea ka puta he raruraru, tohutoro rānei i roto i tō oranga.

Ka taea e te tau te whakauru ki te mahi a ngā AVM. Ko te nuinga o te iwi e whanake ana i ngā tohutoro i waenga i ngā tau 20 me te 40, ahakoa ka puta ngā tohutoro i tetahi tau.

Ko te rahi me te wāhi o tō AVM he mea nui atu i ngā take morearea noa. Ko ngā AVM nui ake, ko ngā mea kei roto i ngā wāhi nui o te roro e whakahaere ana i te kōrero, te nekehanga, te tirohanga rānei pea ka nui ake te pānga ki te puta mai o ngā tohutoro. Heoi, ka taea e ngā AVM iti te puta mai o ngā raruraru nui, ahakoa pea kaore ngā mea nui e puta mai he tohutoro.

Ko ētahi āhuatanga ira tino iti, penei i te telangiectasia hemorrhagic whakawhiwhia, ka taea te whakanui ake i te tūponotanga o te maha o ngā AVM, engari ko ēnei he iti rawa te ōrau o ngā take.

He aha ngā raruraru pea o te AVM o te Roro?

Ko te raruraru tino nui o te AVM o te roro ko te toto, e kiia ana hoki ko te hemorrhage. Ka puta mai tēnei ina pakaru ngā oko toto koretake, ka puta te toto ki roto i ngā kiko o tō roro. Ahakoa e rangona ana tēnei he wehi, he mea nui kia mōhio ko te nuinga o ngā AVM kaore e toto.

Ko te tūponotanga o te toto i te AVM kaore i pakaru he iti, tata ki te 2-3% ia tau. Heoi, ka taea e tēnei tūponotanga te rerekē i runga i ngā take maha tae atu ki te rahi o te AVM, te wāhi, me ngā āhuatanga motuhake o te oko toto ka taea e tō taote te aromatawai.

Ko ētahi atu raruraru pea ko:

• Ngā hopu, e puta ana i te 25-30% o te iwi e whai ana i ngā AVM
• Ngā raruraru neurological e haere tonu ana na te AVM e tahae ana i te rere o te toto mai i ngā kiko roro noa
• Ngā huringa hinengaro, ngā uaua ako rānei i etahi wā
• Ngā mamae o te upoko e nui haere ana, e kino haere ana rānei i te wa roa

Kaore e tino noa, ka taea e ngā AVM nui te puta mai o ngā raruraru ma te tango i te rere o te toto mai i ngā kiko roro noa, ka arahi ki ngā huringa neurological haere tonu. Ka kiia tēnei i etahi wā he "tahae", na te mea ka tahae te AVM i te toto e whāngai ana i ngā wāhi roro hauora.

He mea tika te kī ko te tokomaha o te iwi e whai ana i ngā AVM o te roro e ora ana i to rātou oranga katoa kaore e wheako i ngā raruraru. Ka taea e tō rōpū hauora te āwhina i a koe ki te mōhio ki tō tūponotanga motuhake i runga i ngā āhuatanga motuhake o tō AVM.

Me pēhea te whakatau i te AVM o te Roro?

Ko te nuinga o te wā ka whakatauhia ngā AVM o te roro mā ngā whakamātau whakaahua motuhake e taea ai te whakaatu i ngā hononga oko toto koretake i roto i ngā kōrero. Ko te huarahi tino noa e kitea ai te AVM ko te CT scan, MRI rānei e mahia ana mō tētahi take ke, penei i te tirotiro i ngā mamae o te upoko, i muri rānei i te hopu.

Mena ka whakaaro tō taote pea kei a koe te AVM, ka tono pea rātou i te MRI me te whakairoiro, e whakarato ana i ngā whakaahua taipitopito o ngā oko toto o tō roro. Kāore tenei whakamātau e mamae, kāore hoki e whakamahi i te radiation, ahakoa me takoto koe i roto i te pūtau pōro iti mō te 30-60 meneti.

Mō te tirohanga taipitopito atu ki te hanganga o te oko toto, ka tono pea tō taote i te angiogram o te roro. Ka uru atu tēnei ki te whakauru i te pūtau angiangi ki roto i te oko toto i tō hope, i tō ringa rānei, me te whakauru i te tae whakairoiro hei hanga i ngā whakaahua X-ray taipitopito o ngā oko toto o tō roro. Ahakoa e rangona ana tēnei he wehi, he mahi noa tēnei e whakarato ana i ngā korero tino tika mō tō AVM.

I etahi wā ka whakamahi ngā taote i te CT angiography, e whakakotahi ana i te CT scanning me te tae whakairoiro hei hanga i ngā whakaahua taipitopito o ngā oko toto. He tere ake tēnei whakamātau i te angiography noa, engari he iti ake ngā kōrero.

He aha te maimoatanga mō te AVM o te Roro?

Kāore i te hiahiatia te maimoatanga mō ngā AVM o te roro, ā, ko te whakatau kei runga i ngā take maha tae atu ki ō tohutoro, te rahi me te wāhi o te AVM, tō tau, me tō hauora katoa. Ko te tokomaha o te iwi e whai ana i ngā AVM iti, kaore he tohutoro, ka tirotirohia noa rātou mā ngā ako whakaahua noa.

Ina tūtohutia te maimoatanga, e toru ngā huarahi matua ka taea te whakamahi kotahi, te whakakotahi rānei. Ko te tango waewae e uru ana ki te whakatuwhera i te anga o te anga me te tango marie i te AVM katoa, ka taea te whakarato i te rongoa katoa, engari ka waiho noa mō ngā AVM iti i ngā wāhi e uru atu ana.

Ka whakamahi te radiosurgery stereotactic i ngā hihi radiation arotahi hei kati marie i ngā oko toto koretake i roto i te 1-3 tau. He pai te mahi o tēnei maimoatanga kore-whakauru mō ngā AVM iti, kāore hoki e hiahia ki tetahi tapahi, ahakoa ka roa te kite i te hua katoa.

Ko te embolization endovascular e uru ana ki te whakauru i te pūtau iti i roto i ō oko toto ki te AVM me te aukati i te piripiri motuhake, ngā kōwhiti, ngā pūnaha rānei. Ka whakamahia tēnei huarahi i te nuinga o te wā mō ngā AVM nui ake, hei whakarite rānei mō te pokanga, te radiation rānei.

Ka mahi tahi tō rōpū maimoatanga ki a koe hei whakatau i te huarahi pai i runga i tō āhuatanga motuhake. I etahi wā, ko te whiringa haumaru ko te tirotiro marie atu i te maimoatanga tonu, ina koa mō ngā AVM kaore i puta he tohutoro.

Me pēhea te whakahaere i te AVM o te Roro i te kāinga?

Ko te noho me te AVM o te roro te tikanga kia tangohia etahi whakamaramatanga whai whakaaro i te wā e mau tonu ana te oranga noa. Ko te mea nui ko te tango i ngā rongoā kua tohua tika i te ara i tohua, ina koa ki te whakamahi koe i ngā rongoā anti-hopu.

He tokomaha ngā tāngata e whakaaro ana mō ngā ārahitanga mahi, ā, ko te rongo pai ko te nuinga o ngā mahi noa he haumaru. Heoi, ka tūtohu pea tō taote kia kaua e mahi i ngā mahi he nui te tūponotanga o te whara o te upoko, penei i ngā hākinakina hono, kia tae rawa ki te maimoatanga o tō AVM, ki te nui ake rānei tō tūponotanga ki te toto.

Tāruahia ngā tohutoro hou, ngā huringa rānei i roto i te puka ngāwari. Tuhia ngā mea penei i ngā tauira o te mamae o te upoko, tetahi mahi hopu rānei, ngā huringa rānei i tō ahua, i tō mahi rānei. Ka āwhina tēnei korero i tō rōpū hauora ki te tirotiro i tō āhuatanga me te whakatau i te maimoatanga.

Ka taea te whakahaere i te ahotea, na te mea he mea noa te manukanuka ki tō āhuatanga. Whakaarohia ngā tikanga whakamahinga, te whakakori ngawari noa i whakaaetia e tō taote, me te hono atu ki ngā rōpū tautoko mō te iwi e whai ana i ngā āhuatanga rite.

Kia mohio ō whānau me ō hoa tata ki tō āhuatanga, ā, kia mōhio ki ngā tohutoro pea e hiahia ana ki te tiaki hauora tonu. Ko te whai i tētahi pūnaha tautoko e mōhio ana ki tō āhuatanga ka taea te whakarato i te āwhina mahi me te whakamarie hinengaro.

Me pēhea te whakarite mō tō whakatau me te taote?

I mua i tō whakatau, tuhia ō tohutoro katoa, ahakoa kaore e rite ki tō AVM. Whakauruhia te wā i tīmata ai rātou, te maha o te puta mai, me te aha e pai ake ai, e kino ake ai rānei. Ka āwhina tēnei korero taipitopito i tō taote ki te mōhio ki te pānga o tō AVM ki a koe.

Kawe mai he rārangi katoa o ngā rongoā, ngā taapiri, me ngā huaora katoa e inu ana koe, tae atu ki ngā rāpoi. Huihuia hoki ngā ako whakaahua o mua, ngā rēkōti hauora rānei e pā ana ki tō AVM, na te mea ko te whakataurite i ēnei i te wa roa ka whakarato i ngā korero whai hua mō ngā huringa.

Whakaritea he rārangi o ngā pūrongo e hiahia ana koe ki te ui. Pea ka hiahia koe ki te mōhio mō ngā ārahitanga mahi, ngā whiringa maimoatanga, te tirohanga roa, te aha rānei e whakaohooho ana i te tiaki hauora tonu. Ko te tuhi i ēnei ka whakarite kia kaua e wareware i ngā pūrongo nui i te wā o te whakatau.

Whakaarohia te kawe mai i te mema whānau, i te hoa rānei e whakawhirinaki ana e taea te āwhina i a koe ki te mahara ki ngā korero i kōrerotia, me te whakarato i te tautoko hinengaro. Ka taea e ngā whakatau hauora mō ngā āhuatanga o te roro te ahua o te nui, ā, ko te whai i tetahi kei reira ka taea te āwhina i a koe ki te tukatuka i ngā korero i muri mai.

Mena ka taea, rapuhia tō momo AVM motuhake i mua kia taea ai e koe te kōrero mohio atu ki tō taote. Heoi, kia mahara ko ia AVM he motuhake, no reira pea kaore ngā korero ka kitea e koe i runga i te ipurangi e whai hua ana ki tō āhuatanga.

He aha te mea nui mō te AVM o te Roro?

Ko te mea nui rawa atu hei mōhio mō ngā AVM o te roro ko te āhuatanga whakahaeretia rātou, ā, he tokomaha ngā tāngata e ora ana i te oranga tino, noa me rātou. Ahakoa pea ka ahua wehi te whakatau i te tīmatanga, kia mahara kua pai ake te maimoatanga, ā, he tokomaha ngā AVM kaore e puta he raruraru nui.

Ka mahi tahi tō rōpū hauora ki a koe hei whakawhanake i te mahere motuhake e whakataurite ana i ngā tūponotanga me ngā painga o ngā huarahi rerekē. Pea koinei te maimoatanga, te tirotiro marie rānei me ngā tirotiro noa, ngā ako whakaahua rānei.

Kia hono tonu ki tō rōpū hauora, whai i ō rātou tūtohu, ā, kaua e whakaroa ki te ui i ngā pūrongo ina whai koe. Ko te mōhio ki tō āhuatanga ka manaaki i a koe ki te whakatau mohio, ā, ka āwhina i te whakaiti i te manukanuka mō te mea kaore i te mōhiotia.

Ko te mea nui rawa atu, kāore te whakatau o te AVM o te roro e whakatau i a koe, kāore rānei e ārai i te mea ka taea e koe te whakatutuki i te ora. Me te tiaki hauora tika me te tirotiro, ka taea e koe te whai tonu i ō whāinga me te noho i te oranga e hiahia ana koe.

Ngā pūrongo e ui pinepinetia ana mō te AVM o te Roro

Ka taea e ngā AVM o te roro te nui ake i te wa roa?

Ko te nuinga o ngā AVM o te roro kaore e nui ake i muri i te whānautanga, ahakoa pea ka kitea ake i te wā e pakeke ana koe na te huringa o ngā tauira rere toto. Kāore i rite ki ngā mate pukupuku, ko ngā AVM he whakauru koretake pumau e kore e horapa, e maha rānei. Heoi, ka tirotirohia e tō taote tō AVM mā ngā whakaahua noa hei aroturuki i ngā huringa i te wa roa.

He haumaru te whānau tamariki mena kei ahau te AVM o te roro?

He tokomaha ngā wāhine e whai ana i ngā AVM o te roro e whai ana i ngā haputanga me ngā whānautanga haumaru, ahakoa e hiahia ana tenei ki te whakarite tika me tō rōpū hauora. Ka taea e te haputanga te whakanui ake i te tūponotanga o te toto mai i ētahi AVM na te nui ake o te toto me ngā huringa homonal. Ka aromatawaihia e ō taote tō āhuatanga motuhake, ā, ka tūtohu pea i te maimoatanga i mua i te haputanga, i te tirotiro motuhake rānei i te wā o te haputanga me te whānautanga.

Me karo rānei au i te rere, i ngā teitei teitei rānei?

Ko te nuinga o te iwi e whai ana i ngā AVM o te roro ka taea te haere me te rere noa kaore he ārahitanga motuhake. Ko ngā huringa pehanga i te wā e rere ana kāore e nui rawa te pānga ki tō AVM. Heoi, ki te kua maimoatia koe i te tata nei, kei te wheako rānei koe i ngā tohutoro mahi, he mea tika te kōrero i ngā mahere haere me tō taote hei whakarite he haumaru mō tō āhuatanga motuhake.

Ka taea e te ahotea, te mahi tinana rānei te whakaohooho i te toto mai i te AVM?

Ahakoa pea ka taea e te whakakori tinana nui rawa atu, te ahotea hinengaro nui rānei te whakanui ake i te pehanga toto kia nui te tūponotanga, ko ngā mahi o ia rā, te whakakori ngawari rānei he haumaru mō te nuinga o te iwi e whai ana i ngā AVM. Ka taea e tō taote te whakarato i ngā aratohu motuhake mō ngā taumata mahi i runga i ngā āhuatanga o tō AVM me te tūponotanga toto. Ko te mea nui ko te kimi i te taurite tika i waenga i te noho mahi me te karo i ngā tūponotanga kaore e hiahiatia.

Me pehea te auau o ngā ako whakaahua whai muri?

Ko te auau o ngā whakaahua whai muri kei runga i ngā āhuatanga o tō AVM, kua maimoatia rānei koe, me ō tohutoro. Pea ka tirotirohia ngā AVM kaore i te maimoatia ia 1-3 tau, ā, pea ka hiahia ngā mea kua maimoatia ki ngā whai muri ake i te tīmatanga hei whakarite kei te mahi te maimoatanga. Ka hanga e tō rōpū hauora he kaupapa tirotiro motuhake e whakataurite ana i te hiahia ki ngā korero me te whakaiti i ngā whakamātau, te whakamahinga radiation rānei kaore e hiahiatia.