He aha te Ataxia? Ngā Tōmhanga, Ngā Take, me te Maimoatanga

Ko te ataxia tētahi āhuatanga e pā ana ki tō whakahaere me tō tūpato, ā, ka ngāwari ai ngā nekehanga o ia rā. Whakaarohia he raruraru kei te roro o te tangata ki te tuku i ngā tohu mārama ki ō uaua mō te neke mā te ngāwari me te tika.

Ehara tēnei i te mea noa atu te tūponotanga rānei te “rā kino” ki tō whakahaere. Kei roto i te ataxia ngā huringa motuhake ki te whakahaere a tō pūnaha io i te nekehanga, ā, ka pā pea ki ngā mea katoa, mai i te hikoi tae atu ki te kōrero me ngā pūkenga motuka pai penei i te tuhituhi.

He aha te Ataxia?

Ko te tikanga o te kupu ataxia ko te “kāore he whakarite” i te reo Kariki, ā, koinei tonu te mea e puta ana ki tēnei āhuatanga. Ka mahi tahi tō roro, te cerebellum (te wāhanga e whakahaere ana i te tūpato), me tō tūpū i te whakahaere i te nekehanga, engari ka whakakore te ataxia i tēnei mahi tahi.

Ina pangia koe e te ataxia, ka whakapohehetia ngā karere i waenganui i tō roro me ō uaua, kāore rānei e tae wawe. Ka puta mai ai ngā nekehanga kore tūpato, kore whakarite e tohu ana i te āhuatanga. He rite ki te whakamātautau ki te ārahi i tētahi ope waiata ina kāore ētahi kaitākaro e whakarongo pai ana ki te waiata.

Ka taea e te ataxia te whanake haere mō ngā marama, ngā tau rānei, kāore rānei e puta mai ngāwari. Ko ētahi i whānau mai me te āhuatanga, ko ētahi atu ka whanake i muri mai i te ora nā ngā āhuatanga hauora rānei ngā whara rānei.

He aha ngā Tōmhanga o te Ataxia?

Ko ngā tōmhanga o te ataxia e pā ana ki te āhua o tō nekehanga me tō tūpato. Ka kite pea koe i ēnei huringa haere mā, kāore rānei e puta mai ngāwari, kei runga i te take o tō ataxia.

Koinei ngā tōmhanga tino noa ka pā pea ki a koe:

• Te hikoi kore tūpato: Ka rite pea koe ki te hikoi i runga i te kaipuke, kāore rānei e taea te hikoi tika.
• Te whakahaere kino: Ka uaua ngā mahi ngāwari penei i te pihi i ngā kakahu, te tango rānei i ngā mea.
• Ngā raruraru tūpato: Ka mōrearea pea koe, kāore rānei e taea te tū mā te kore e wiri.
• Te kōrero ngāwari: Ka puta pea ngā kupu kāore i te mārama, kāore rānei i te āhua noa.
• Te uaua ki te horomi: Ka tae pea koe ki te mare rānei ki te whakakī i te kai, te inu rānei.
• Ngā wiri: Ka wiri pea ō ringa, ētahi atu wāhanga tinana rānei, ina neke.
• Ngā raruraru nekehanga kanohi: Ka uaua pea ki te whai i ngā mea, te kite rua rānei.

Ko ngā tōmhanga kāore i te noa ka uru atu ki te ngoikore o ngā uaua, te ngenge, me ngā huringa hinengaro penei i te uaua ki te aro.

He aha ngā momo Ataxia?

Ka wehewehea te ataxia ki ngā momo rerekē i runga i te wāhanga o tō pūnaha io e pā ana, me te take. Ka āwhina tēnei wehewehenga i a koe me tō tākuta ki te whakatau i te huarahi pai mō tō āhuatanga.

Te ataxia cerebellum: Ko te momo tino noa tēnei, ā, e pā ana ki te cerebellum, te pokapū whakahaere o tō roro. Ko tēnei momo te tino take o ngā raruraru tūpato, hikoi, me ngā pūkenga motuka pai.

Te ataxia pūmahara: Ka puta mai tēnei ina pakaru ngā io e kawe ana i ngā korero mō te tūnga o te tinana me te nekehanga. Ki tēnei momo, ka mōrearea pea koe i te pouri, i te kati rānei o ō kanohi, no te mea ka whakawhirinaki koe ki te tirohanga hei pupuri i te tūpato.

Te ataxia vestibular: Kei roto i tēnei ngā raruraru ki tō taringa o roto, e āwhina ana ki te whakahaere i te tūpato. Ka puta mai pea tēnei momo me te mōrearea, te ruaki, me te āhua kei te huri te ruma, ina neke koe i tō ulu.

He aha ngā Take o te Ataxia?

Ka taea e te ataxia te whanake mai i ngā take maha, mai i ngā āhuatanga ira e puta mai ana i te whānau tae atu ki ngā raruraru e whiwhitia ana e puta mai ana i muri mai i te ora. Ka āwhina te mārama ki te take ki te arahi i ngā whakatau maimoatanga.

Ko ngā take whiwhi tino noa ko:

• Te pōka: Ina mutu te rere o te toto ki te cerebellum, ki te brainstem rānei.
• Te mate maha sclerosis: He āhuatanga autoimmune e pakaru ana i ngā muka io.
• Ngā mate pūngāwerewere o te roro: Ngā tipu e pēhi ana, e pakaru rānei i ngā pokapū whakahaere.
• Ngā mate: Ngā āhuatanga penei i te meningitis, te encephalitis rānei e pā ana ki te roro.
• Te whakamahi waipiro: Ka taea e te inu waipiro nui te pakaru i te cerebellum.
• Ngā kore o ngā huaora: Ina kore te huaora B12, te thiamine, te huaora E rānei.
• Ngā rongoā: Ētahi rongoā hopu, rongoā moe, rongoā mate pūngāwerewere rānei.

Ko ngā momo ataxia ira e puta mai ana i ngā rerekētanga ira e tukuna ana e ngā whānau. Kei roto i ēnei ngā āhuatanga penei i te ataxia o Friedreich, ngā ataxias spinocerebellar, me te ataxia-telangiectasia.

Ko ngā take kāore i te noa ko ngā mate autoimmune, ngā pānga poino ki ngā konganuku taumaha, me ētahi mate metabolic e pā ana ki te tukatuka o ngā kai e tō tinana.

Nōhea te Tiro ki te Tākuta mō te Ataxia?

Me titiro koe ki te tākuta mēnā ka kite koe i ngā raruraru whakahaere roa, ngā raruraru tūpato rānei e āwangawanga ana ki ō mahi o ia rā. He mea nui te aromatawai wawe, no te mea ka taea te whakaora i ētahi take o te ataxia ina kitea wawe.

Rapua te awhina hauora inaianei mēnā ka pā ki a koe ngā raruraru whakahaere e puta mai ana ngāwari, ina koa mēnā kei te haere tahi me te mamae o te ulu, te whakapohehe, te uaua rānei ki te kōrero. Ka tohu pea ēnei ki te pōka, ki ētahi atu āhuatanga kino rānei e hiahia ana ki te maimoatanga wawe.

Whakapa atu hoki ki tō tākuta mēnā kei te kino haere ngā raruraru tūpato, ngā hinga maha, te pānga rānei o ngā raruraru whakahaere ki tō kaha ki te mahi, te taraiwa, te mahi rānei i ngā mahi o ia rā.

He aha ngā Take Tūponotanga mō te Ataxia?

He maha ngā take ka piki ake ai tō tūponotanga ki te whanake i te ataxia, ahakoa te mea he take tūponotanga kāore e tikanga ka whanake koe i te āhuatanga. Ka āwhina te mārama ki ēnei take i a koe me tō tākuta ki te tiaki i ngā tohu wawe.

Ko ngā take tūponotanga matua ko:

• Te hītori whānau: Ko te whai whānau me te ataxia ira ka piki ake ai tō tūponotanga ki ngā momo ira.
• Te tau: Ka noa ake ētahi momo ataxia i te pikinga o te tau.
• Te whakamahi waipiro roa: Ka taea e te inu waipiro nui te pakaru i te cerebellum.
• Ngā āhuatanga autoimmune: Ko te whai āhuatanga penei i te mate celiac, ngā mate thyroid rānei.
• Te pōka, te whara o te ulu rānei i mua: Ko te pakaru o ngā pokapū whakahaere ka piki ake ai te tūponotanga.
• Ētahi rongoā: Te whakamahi roa i ētahi rongoā hopu, te chemotherapy rānei.
• Ngā kore kai: Te kore e tango pai i ngā huaora, ina koa ngā huaora B.

Ko ngā take tūponotanga kāore i te noa ko te pānga o ngā poino, te whakamahinga i te rongoā radiation ki te ulu, ki te kaki rānei, me ētahi mate e pā ana ki te pūnaha io.

He aha ngā Pakaru pea o te Ataxia?

Ka taea e te ataxia te arahi ki ngā pakaru maha e pā ana ki tō kounga ora me tō ora, engari ka taea te whakahaere i te nuinga o ēnei me te tiaki tika me te tautoko. Ka āwhina te mārama ki ngā pakaru pea ki a koe ki te whakarite me te tango i ngā kaupae ārai.

Ko ngā pakaru tino noa ko:

• Ngā hinga me ngā whara: Ko ngā raruraru tūpato ka piki ake ai tō tūponotanga ki te hinga, ka taea te pakaru i ngā wheua, te whara i te ulu rānei.
• Te uaua ki te horomi: Ka taea tēnei te arahi ki te whakakī, te kore kai, te mate pneumonia rānei.
• Ngā raruraru kōrero: Ka taea e ngā raruraru whakawhitiwhiti kōrero te pā ki ngā whanaungatanga me te mahi.
• Ngā herenga nekehanga: Ka hiahia pea koe ki ngā taputapu āwhina, ki te noho rānei i te wīra.
• Te pouri me te manukanuka: Ko te whakahaere i ngā raruraru whakahaere ka pā ki te hauora hinengaro.
• Te motu hapori: Ko te uaua ki ngā mahi ka arahi pea ki te wehe atu i ngā āhuatanga hapori.

Ko ngā pakaru kino, engari kāore i te noa, ka uru atu ki ngā raruraru manawa kino, ngā rerekētanga i te āhua o te ngakau i ētahi momo ataxia ira, me te kore e taea te whakaora e pā ana ki te kore mana motuhake.

Ko te rongo pai ko te nuinga o ngā pakaru ka taea te ārai, te whakahaere rānei mā te tiaki hauora tika, te whakaora tinana, ngā whakarerekētanga haumaru ki tō kāinga, me te tautoko mai i ngā tohunga hauora me ngā mema whānau.

Me pēhea te Ārai i te Ataxia?

Ahakoa kāore e taea te ārai i ngā momo ataxia ira, ka taea e koe te tango i ngā kaupae hei whakaiti i tō tūponotanga ki te whanake i te ataxia whiwhi, te whakaheke rānei i tō ahu whakamua mēnā kei a koe.

Ko ngā rautaki ārai matua ko te whakaiti i te inu waipiro, no te mea ka taea e te inu nui te pakaru i te cerebellum.

Pupurihia te kai pai me ngā huaora B, ina koa te B12, te thiamine, me te huaora E.

Tīakina koe i ngā whara o te ulu mā te kakahu i ngā taputapu haumaru tika i ngā wā hapū, te whakamahi i ngā whitiki noho i roto i ngā waka, me te whakapai ake i tō kāinga mā te tango i ngā tūponotanga hinga, me te whakapai ake i te mārama.

Whakahaeretia ngā āhuatanga hauora atu, ina koa te mate huka, te toto teitei, me ngā mate autoimmune. Ka āwhina te tiaki hauora noa me te whai i ngā mahere maimoatanga ki te ārai i ngā pakaru ka pā pea ki tō whakahaere.

Me pēhea te Whakatau i te Ataxia?

Ko te whakatau i te ataxia e hiahia ana ki te aromatawai whānui hei whakatau i te āhua o ngā raruraru whakahaere, me tō take.

Ko te tukanga whakatau e uru atu ana ki te whakamātautau neurological, ka whakamātautau ai tō tākuta i tō whakahaere, tō tūpato, ngā whakautu, me ngā nekehanga kanohi.

Ka taea e ngā whakamātautau toto te tirotiro i ngā kore huaora, ngā raruraru thyroid, ngā tohu autoimmune, me ngā rerekētanga ira. Ka āwhina ēnei whakamātautau ki te kimi i ngā take e taea te whakaora, te whakakore rānei i ētahi atu āhuatanga e rite ana ki te ataxia.

Ka taea e ngā rangahau whakaahua penei i te MRI, te CT scan rānei te whakaatu i ngā raruraru hanganga i tō roro, penei i ngā pōka, ngā mate pūngāwerewere, te ngoikore rānei o te roro.

Ko ngā whakamātautau motuhake ka uru atu ki ngā rangahau arahi io, te whakamātautau ira mō ngā momo ataxia ira, me te whānuitanga lumbar hei tirotiro i te wai o te tūpū mō ngā mate, ētahi atu rerekētanga rānei.

He aha te Maimoatanga mō te Ataxia?

Ko te maimoatanga mō te ataxia e aro ana ki te whakahaere i te take, mēnā e taea ana, me te whakahaere i ngā tōmhanga hei whakapai ake i tō kounga ora.

Mēnā ko tō ataxia e puta mai ana i tētahi āhuatanga e taea te whakaora, ko te whakahaere i taua āhuatanga te mea tuatahi.

Ko te whakaora tinana he mea nui ki te maimoatanga ataxia mā te āwhina i a koe ki te pupuri i te tūpato, te whakahaere, me te kaha.

Ko te whakaora mahi ka āwhina i a koe ki te whakarite i ngā mahi o ia rā, ki te ako rānei ki te whakamahi i ngā taputapu āwhina.

Ka taea e te whakaora kōrero te āwhina mēnā e pā ana te ataxia ki tō kōrero, ki tō horomi rānei.

Ka āwhina pea ngā rongoā ki ngā tōmhanga motuhake penei i ngā wiri, te uaua o ngā uaua, te pouri rānei.

Me pēhea te Whakahaere i te Ataxia i te Kāinga?

Ko te whakahaere i te ataxia i te kāinga e hiahia ana ki te whakapai ake i tō taiao, ki te whakarite rānei i ō mahi o ia rā ki te mahi tahi me ō wero whakahaere.

Tīmata mā te whakapai ake i tō kāinga mā te tango i ngā papanga maka, te whakapai ake i te mārama i roto i tō whare, me te tāpiri i ngā pou e mau ana i ngā ruma kaukau.

Whakawhanakehia he kaupapa whakapakari tinana e aro ana ki te tūpato me te whakahaere. Ka taea e ngā mahi ngāwari penei i te tai chi, te yoga, te hikoi rānei te āwhina ki te pupuri i ō kaha.

Whakaritehia ō mahi o ia rā i ngā wā e tino tūpato ana koe, e kaha ana rānei. Ka kite te nuinga o te hunga e pangia ana e te ataxia kei te pai ake te mahi i ētahi wā o te rā, na whakaritea ngā mahi nui.

Whakamahia ngā taputapu āwhina e taunakitia ana e tō rōpū hauora. Ka uru pea tēnei ki ngā taputapu hikoi, ngā taputapu motuhake, ngā taputapu reo-whakahaere rānei e whakaiti ana i te hiahia ki te whakahaere motuka pai.

Noho hono atu ki ngā rōpū tautoko me ētahi atu tangata e mārama ana ki te mea e pā ana ki a koe. Ko tēnei tautoko hinengaro he mea nui.

Me pēhea te Whakarite mō tō Hui Tākuta?

Ko te whakarite mō tō hui tākuta e āwhina ana ki te whakarite ka whiwhi koe i te hua pai mai i tō haerenga, ka whakarato hoki i tō rōpū hauora ki ngā korero nui mō tō āhuatanga.

Pupurihia tētahi raarangi tōmhanga mō te wiki kotahi i mua i tō hui, te tuhi i te wā e kino ake ana, e pai ake ana rānei ngā tōmhanga, ngā mahi e whakaohooho ana i ngā raruraru, me te āhua o ngā tōmhanga ki tō oranga o ia rā.

Kohikohia ō rēkōta hauora, tae atu ki ngā hua whakamātautau o mua, ngā rangahau whakaahua, me ngā rārangi rongoā.

Whakaritea tētahi rārangi o ngā pātai mō tō āhuatanga, ngā kōwhiringa maimoatanga, me te whakatau.

Whakaarohia te kawe mai i tētahi mema whānau, hoa rānei ki te hui. Ka taea e rātou te āwhina i a koe ki te mahara ki ngā korero i kōrerotia, te whakarato rānei i ngā tirohanga atu mō ō tōmhanga kāore pea koe e kite.

He aha te Tākutake Matua mō te Ataxia?

Ko te ataxia he mate whakahaere e pā ana ki te tūpato me te nekehanga, engari ehara i te āhuatanga e hiahia ana koe ki te tū kotahi, ki te kore hāhā rānei. Ahakoa he uaua pea, ka ora tonu te nuinga o te hunga e pangia ana e te ataxia i ngā oranga whai hua me te whakahaere tika me te tautoko.

Ko te mea nui rawa kia mahara ko te whakatau me te maimoatanga wawe ka taea te whakarereke nui i tō hua. He maha ngā take o te ataxia e taea te whakaora, ā, ahakoa kaore e taea te whakaora i te take take, ka taea e te whakahaere tōmhanga te whakapai ake i tō kounga ora.

Ko te mahi tahi me tētahi rōpū hauora e uru atu ana ki ngā neurologists, ngā kaiwhakaora tinana, me ētahi atu tohunga ka homai ai ki a koe te tupono pai ki te pupuri i tō motuhake, ki te whakarite pai hoki ki ngā huringa i tō whakahaere.

Kia mahara ko te ataxia e pā ana ki te katoa i te rerekē, na ko tō wheako pea ka rerekē atu i ētahi atu e pangia ana e te āhuatanga ano. Aro ki te mea e mahi ana mōu, kaua hoki e whakaroa ki te tono awhina ina hiahia koe.

Ngā Pātai Nui e Uihia Ana mō te Ataxia

He āhuatanga haere tonu te ataxia, ka kino ake rānei i te wā?

Kāore ngā momo ataxia katoa e haere tonu. Ka taea te whakapai ake i ētahi momo e puta mai ana i ngā āhuatanga e taea te whakaora penei i ngā kore huaora, ngā pānga rongoā rānei.

Ahakoa ngā momo haere tonu, ka taea te roa o te raupapa mo ngā tekau tau, ā, ka pupuri te nuinga o te iwi i te mahi pai mō ngā tau.

Ka taea tonu e au te taraiwa mēnā kei a au te ataxia?

Ko te mea ka taea e koe te taraiwa kei runga i te kaha o tō ataxia, me te āhua o tō whakahaere me ō wā whakautu.

Ko te mea nui ko te aromatawai tika me tō tākuta, te aromatawai taraiwa rānei e te tohunga whakaora taraiwa.

Ka whiwhi rānei aku tamariki i te ataxia mēnā kei a au?

Ko tēnei kei runga i te momo ataxia kei a koe. Mēnā ko tō ataxia i whiwhitia (e puta mai ana i te pōka, te mate, ētahi atu take kore ira rānei), kāore ō tamariki e whiwhi.

Ka taea e te tohutohu ira te āwhina i a koe ki te mārama ki tō āhuatanga motuhake me ngā tūponotanga.

He maimoatanga hou, he rongoā rānei e whanakehia ana mō te ataxia?

Kei te haere tonu te rangahau ki ngā maimoatanga ataxia, me ngā huarahi whakatenatena e akohia ana.

Ahakoa kāore ano he rongoā mō te nuinga o ngā momo ataxia, kei te whakamātautau ngā whakamātautau haumanu i ngā maimoatanga maha.

Me pēhea te whakamārama i te rerekētanga i waenganui i te ataxia me te ngāwari noa, ngā raruraru tūpato rānei mai i te koroheketanga?

Ka taea e te koroheketanga noa te arahi ki ētahi huringa i te tūpato me te whakahaere, engari ko te ataxia e hiahia ana ki ngā raruraru motuhake, e kitea ana.

Mēnā kei te āwangawanga ngā raruraru whakahaere ki ō mahi o ia rā, kei te kino haere, kei te haere tahi rānei me ētahi atu tōmhanga neurological, he mea tika te tiro ki te tākuta mō te aromatawai.