He aha te Chordoma? Tohutohu, Take, me te Maimoatanga

He momo mate pukupuku wheua onge te Chordoma e tupu mai ana i nga pūtau toenga mai i te wā i te pēpi koe. Ka tupu haere ēnei mate pukupuku i runga i tō tuaiwi, i te raro rānei o tō anga, te wāhi i hanga ai tō tuaiwi i te wā o te whānautanga.

Ahakoa he onge te Chordoma, e pā ana ki te 1 i roto i te miriona tangata ia tau, ko te mārama ki tēnei āhuatanga ka āhei te awhina i a koe ki te mohio ki ngā tohu, me te rapu i te tiaki tika. Ka tupu haere ēnei mate pukupuku i roto i ngā marama, i ngā tau rānei, koia te tikanga ka taea e te kite wawe me te maimoatanga te whakarereke nui ki ngā hua.

He aha te chordoma?

Ka tupu te Chordoma mai i ngā toenga o te notochord, he hanganga rite ki te rakau ngawari e āhei ana te awhina i te hanganga o tō tuaiwi i te wā o te whānautanga. I te nuinga, ka ngaro tēnei hanganga i te wā e tupu ana tō tuaiwi, engari i etahi wā ka noho tonu etahi rōpū iti o ēnei pūtau.

Ka taea e ēnei pūtau toenga te tupu hei mate pukupuku, i te nuinga i rua ngā wāhi matua. E tata ana ki te haurua o ngā chordoma e puta ana i te raro o tō anga, ko tetahi atu haurua e tupu ana i tō tuaiwi raro, inā te wāhi o tō wheua hiku.

Ka tupu haere ngā mate pukupuku, he maha ngā tau e nui haere ai kia puta mai ngā tohu. Ko tēnei āhuatanga tupu haere ka taea e ngā chordoma te tae atu ki te rahi nui i mua i to kite i ngā raruraru, koia te take i karangatia ai rātou ko ngā "mate pukupuku wahangu."

He aha ngā tohu o te chordoma?

Ka whakawhirinaki ngā tohu o te Chordoma ki te wāhi e tupu ana te mate pukupuku, me te rahi o tōna tupu. Na te mea ka tupu haere ēnei mate pukupuku, ka puta haere ngā tohu, ā, ka ngoikore pea i te tīmatanga.

Ki te puta ngā chordoma i te raro o tō anga, ka pāngia pea koe e:

• Ngā mamae o te upoko e kore e pai te whakautu ki ngā rongoā mamae noa
• Te tirohanga takirua, te rerekētanga rānei o te tirohanga
• Ngā raruraru whakarongo, te ngāringari rānei i roto i ō taringa
• Te raruraru o te horomi, te kōrero rānei
• Te ngenge, te wiri rānei o tō mata
• Te pupū ihu e kore e pai ake
• Ngā toto ihu kahore he take mārama

Mō ngā chordoma i tō tuaiwi, inā te tuaiwi raro, te wheua hiku rānei, ko ngā tohu pea ko:

• Te mamae tonu o tō tuaiwi raro, te wheua hiku rānei
• Te mamae e kino ake ana i te noho, te takoto rānei
• Ngā raruraru o te mana whakahaere o te kopu, te putea rānei
• Te ngenge, te ngoikore rānei o ō waewae
• He kohinga, he mea nui rānei e taea te kite
• Te raruraru o te hikoi, te rerekētanga rānei o tō hikoi

I etahi wā onge, ka taea e ngā chordoma te puta i waenganui o tō tuaiwi, te mate pukupuku o te tuaiwi, te ngoikore o te ringa, te raruraru rānei o te whakahaere. He iti ake te noho o ēnei wāhi, engari ka taea te tupu o ngā tohu nui i te wā e tupu ana te mate pukupuku.

He aha ngā take o te chordoma?

Ka tupu te Chordoma ina tīmata ngā pūtau i mahue mai i te whānautanga ki te tupu koretake. I ngā wā tīmatanga o tō whānautanga, ka āhei te awhina i te hanganga o tō tuaiwi te hanganga e kiia nei ko te notochord, ā, ka ngaro i te nuinga.

I etahi wā, ka noho tonu etahi rōpū iti o ēnei pūtau tawhito i roto i tō tinana i muri i te whānautanga. I te nuinga o te iwi, kahore ēnei pūtau toenga e puta he raruraru, ā, ka noho pūmau i te ora katoa. Engari, i etahi wā onge, ka taea e ēnei pūtau te tīmata ki te wehewehe me te tupu hei mate pukupuku, ahakoa kahore e tino mārama ki a tātou te take o tēnei mahi.

Ko te nuinga o ngā chordoma e puta ana i te koretake kahore he take mārama, he whakaoho rānei. Kāore i rite ki ētahi mate pukupuku, kāore ngā chordoma i hono atu ki ngā take ora penei i te wāhine, te kai, te pānga taiao rānei. Kāore hoki e puta mai i ngā mate, i ngā whara rānei.

I etahi wā onge rawa, ka taea e ngā chordoma te rere i roto i ngā whānau na te rerekētanga o te ira, engari he iti iho i te 5% o ngā take katoa tēnei. Ko te nuinga o te iwi e pangia ana e te chordoma kahore he hītori whānau o te āhuatanga.

He aha ngā momo chordoma?

Ka wehewehe ngā tākuta i ngā chordoma ki ngā momo matua e toru i runga i te ahua o rātou i raro i te microscope. He iti ngā āhuatanga me ngā whāinga o ia momo, ahakoa ko ngā chordoma katoa he mate pukupuku onge.

Ko te chordoma noa te momo tino noa, e 85% o ngā chordoma katoa. Ka tupu haere ēnei mate pukupuku, ā, he ahua motuhake me ngā pūtau e rite ana ki ngā pūpoipoi haupapa i raro i te microscope.

Ko te chordoma chondroid e 10% o ngā take, ā, kei roto ngā pūtau chordoma me te kōeke rite ki te cartilage. Ka puta ake tēnei momo i te nuinga i te raro o te anga, ā, ka pai ake pea te tirohanga i te chordoma noa.

Ko te chordoma dedifferentiated te momo tino onge, te tino kaha hoki, e iti iho i te 5% o ngā chordoma katoa. Ka tupu haere ēnei mate pukupuku atu i ētahi atu momo, ā, he nui ake te pānga ki ētahi atu wāhi o tō tinana, koia te take i uaua ai te maimoatanga.

Nō hea te kite i te taote mō te chordoma?

Me kite koe i tō taote ki te pāngia koe e ngā tohu tonu e kore e pai ake ki ngā maimoatanga noa, te okioki rānei. Na te mea ka taea e ngā tohu chordoma te rite ki ētahi atu āhuatanga, ka tono pea tō taote i ngā whakamātautau whakaahua kia kite pai ake i te wāhi.

Rapua te awhina hauora ki te pāngia koe e ngā mamae o te upoko e rerekē ana i ō mamae upoko noa, inā te pānga atu ki ngā rerekētanga o te tirohanga, ngā raruraru whakarongo, te ngenge rānei o te mata. Ko ēnei whakakotahitanga o ngā tohu e tika ana kia whakamātautau wawe.

Mō ngā tohu e pā ana ki te tuaiwi, kite i tō taote ki te pāngia koe e te mamae tonu o te tuaiwi, te wheua hiku rānei e kore e pai ake ki te okioki, inā te pānga atu ki ngā raruraru o te kopu, te putea rānei, te ngoikore o te waewae, te ngenge rānei. Ka taea e ēnei tohu te tohu i te pehanga ki ngā io nui.

Kaua e tatari ki te kite koe i ngā rerekētanga ohorere i ō tohu, te kino ake rānei o rātou. Ahakoa ka tupu haere ngā chordoma i te nuinga, ka taea e tetahi mate pukupuku te tupu ohorere i etahi wā e hiahia ana ki te aro nui.

He aha ngā take morearea mō te chordoma?

Ko te tau te take morearea tino nui mō te chordoma, me te nuinga o ngā take e puta ana i ngā pakeke i waenga i te 40 me te 70 tau te pakeke. Engari, ka taea e ēnei mate pukupuku te tupu i tetahi tau, tae atu ki ngā tamariki me ngā taitamariki, ahakoa he iti ake tēnei.

He nui ake pea te tupono o ngā tāne ki te whanake i te chordoma atu i ngā wāhine, inā mō ngā mate pukupuku e puta ana i te tuaiwi. Mō ngā chordoma e pā ana ki te anga, he rite te morearea i waenga i ngā tāne me ngā wāhine.

Ko te noho o te āhuatanga ira onge e kiia nei ko te tuberous sclerosis complex ka nui ake pea te morearea o te whanake i te chordoma. Engari, he iti rawa te nui o tēnei, ā, ko te nuinga o te iwi e pangia ana e te tuberous sclerosis kahore e whanake i te chordoma.

I etahi wā onge rawa, ka taea e te chordoma te rere i roto i ngā whānau na te rerekētanga ira i whakawhiwhia. Ki te pāngia koe e te mema whānau tata e pangia ana e te chordoma, ka nui ake pea tō morearea, engari he onge rawa tēnei, ā, ko te nuinga o ngā chordoma e puta ana i te iwi kahore he hītori whānau.

He aha ngā raruraru pea o te chordoma?

Ko ngā raruraru o te Chordoma e puta mai ana i te wāhi me te rahi o te mate pukupuku, kāore i tōna āhuatanga ki te horapa puta noa i tō tinana. Na te mea ka tupu ēnei mate pukupuku i ngā wāhi nui tata atu ki tō roro me tō tūaiwi, ka taea e rātou te tupu o ngā raruraru nui i te wā e nui haere ana.

Ko ngā raruraru noa pea ko:

• Te kino o te io e puta ai te ngoikore, te ngenge, te pararutiki rānei
• Te kore mahi o te kopu, te putea rānei ki te pānga te mate pukupuku ki ngā io o te tuaiwi
• Te ngaro o te tirohanga, te whakarongo rānei mō ngā mate pukupuku o te anga
• Te raruraru o te horomi, te kōrero rānei
• Te mamae roa e uaua ana te whakahaere
• Ngā raruraru nekehanga, te raruraru rānei o te hikoi

I etahi wā onge, ka taea e te chordoma te horapa ki ētahi atu wāhi o tō tinana, i te nuinga ki ō ngā pūkahukahu, ate, ētahi atu wheua rānei. Ka puta tēnei i te 30% o ngā take, i ngā tau i muri i te whakatau i te tīmatanga. Ki te horapa te chordoma, ka nui ake te uaua ki te maimoatanga.

Ka taea hoki te puta mai ngā raruraru maimoatanga, inā i muri i te pokanga i ēnei wāhi ngawari. Pea ko ēnei ko te mate, te rerenga o te wai cerebrospinal, te kino atu rānei o te io. Engari, kua whakaitihia e ngā tikanga pokanga hou ēnei morearea.

Me pēhea te whakatau i te chordoma?

Ko te whakatau i te chordoma e tīmata ana i tō taote e tango ana i te hītori taipitopito o ō tohu, me te mahi i te whakamātautau tinana. Na te mea ka taea e ngā tohu chordoma te rite ki ētahi atu āhuatanga, ka tono pea tō taote i ngā whakamātautau whakaahua kia kite pai ake i te wāhi.

Ko ngā tātaritanga MRI te whakamātautau whakaahua tino whai hua mō te chordoma na te mea ka homai e rātou ngā whakaahua taipitopito o ngā kōeke ngawari, ā, ka taea te whakaatu i te wāhi tika me te rahi o te mate pukupuku. Ka taea hoki te whakamahi i ngā tātaritanga CT kia kite i te pānga o te mate pukupuku ki ngā hanganga wheua tata.

Ko te huarahi anake ki te whakatau tika i te chordoma ko te biopsy, te tangohia ai he tauira iti o te mate pukupuku, ā, ka tirotirohia i raro i te microscope. E hiahia ana tēnei mahi ki te whakarite tika na te mea ka puta ngā chordoma i ngā wāhi ngawari tata atu ki ngā hanganga nui.

Ka tono pea tō taote i ētahi atu whakamātautau penei i ngā tātaritanga PET kia kite mena kua horapa te mate pukupuku ki ētahi atu wāhi o tō tinana. Kāore ngā whakamātautau toto i te nuinga e whai hua mō te whakatau i te chordoma na te mea kāore ēnei mate pukupuku i te nuinga e whakaputa i ngā tohu e taea te kite i roto i tō toto.

He aha te maimoatanga mō te chordoma?

Ko te pokanga te maimoatanga matua mō te chordoma, ā, ka homai te tupono pai mō te mana roa. Ko te whāinga ko te tango i te nui o te mate pukupuku e taea ana me te tiaki i ngā hanganga tata nui penei i ngā io me ngā oko toto.

Ka taea te uaua te tango pokanga katoa na te mea ka tupu haere ngā chordoma tata atu ki ngā hanganga nui. Ka whakauruhia tō rōpū pokanga i ngā tohunga e whai wheako ana ki te mahi i ēnei wāhi uaua, penei i ngā neurosurgeons me ngā orthopedic oncologists.

Ka whakamahia te rongoā radiation i muri i te pokanga ki te whakaora i ngā pūtau mate pukupuku toenga e kore e taea te tango haumaru. Ka taea e ngā tikanga matatau penei i te proton beam therapy, te stereotactic radiosurgery rānei te tuku i ngā rongoā nui o te radiation ki te mate pukupuku me te whakaiti i te kino ki ngā kōeke hauora tata.

Kāore te chemotherapy i te nuinga e whai hua mō te nuinga o ngā chordoma, engari kei te whakaatu mai ngā maimoatanga hou he tumanako. Kei te akohia etahi rongoā e aukati ana i ngā tohu tupu motuhake i roto i ngā pūtau mate pukupuku, ā, ka tūtohutia pea i etahi wā.

Mō ngā mate pukupuku e kore e taea te tango pokanga, ka taea te whakamahi i te rongoā radiation anake ki te whakaiti i te tupu me te whakahaere i ngā tohu. Ka mahi tahi tō rōpū maimoatanga ki a koe ki te whakawhanake i te huarahi pai rawa i runga i tō āhuatanga motuhake.

Me pēhea te whakahaere i te chordoma i te kāinga?

Ko te whakahaere i te chordoma i te kāinga e arotahi ana ki te pupuri i tō kounga ora me te tautoko i tō hauora whānui i te wā o te maimoatanga. Ko te whakahaere mamae he wāhanga nui o te tiaki kāinga, ā, ka taea e tō taote te tuhi i ngā rongoā tika kia pai ai tō noho.

Ko te noho mahi i roto i ō rohe tinana ka āhei te awhina i te pupuri i tō kaha me tō nekehanga. Ka taea e ngā mahi whakaora tinana, e tūtohuhia ana e tō rōpū hauora, te awhina i te aukati i te ngoikore o te uaua me te pupuri i te mahi i ngā wāhi e pāngia ana.

Ko te kai i te kai rite, kai hauora e tautoko ana i te kaha o tō tinana ki te ora me te whakahaere i te maimoatanga. Aro atu ki te whiwhi i te pūmua, ngā huaora, me ngā kohuke, ā, kia pai te inu wai i te wā o tō maimoatanga.

Ko te whakahaere i te ahotea me te oranga hinengaro he mea nui. Whakaarohia te uru atu ki ngā rōpū tautoko mō te iwi e pangia ana e ngā mate pukupuku onge, te mahi i ngā tikanga whakamahinga, te mahi rānei me te kaiwhakaako e mārama ana ki ngā wero o te noho me te āhuatanga onge.

Tāruahia ngā tohu hou, te rerekētanga rānei, ā, korero tonu ki tō rōpū hauora. Ko te whai i te puka o ō tohu, ngā taumata mamae, me te āhua o tō noho ka āhei te awhina i ō tākuta ki te whakarite i tō mahere maimoatanga kia rite ki te hiahia.

Me pēhea te whakarite mō tō hui taote?

I mua i tō hui, tuhia katoa ō tohu, tae atu ki te wā i tīmata ai rātou, te āhua o te rerekētanga i te wā, me te aha e pai ake ai rātou, te kino ake rānei. Ka āhei tēnei mōhiohio te awhina i tō taote ki te mārama pai ake ki tō āhuatanga.

Mauria he rārangi katoa o ngā rongoā katoa e inu ana koe, tae atu ki ngā rongoā tākuta, ngā rongoā kore-tākuta, me ngā taapiri. Huihuia hoki ngā rēkōta hauora o mua, ngā hua whakamātautau, ngā tātaritanga whakaahua rānei e pā ana ki ō tohu.

Whakaritea he rārangi o ngā pātai e hiahia ana koe ki te ui ki tō taote. Ko ngā pātai nui pea ko ngā whakamātautau e hiahia ana koe, ngā whiringa maimoatanga e wātea ana, me te aha e tatari ana i mua. Kaua e whakaroa ki te tono i te whakamārama ki te kore he mea mārama.

Whakaarohia te kawe mai i te mema whānau whakawhirinaki, te hoa rānei ki tō hui. Ka taea e rātou te awhina i a koe ki te mahara ki ngā mōhiohio nui me te whakarato i te tautoko hinengaro i te wā e taea ai te wā ahotea.

He aha te mea nui mō te chordoma?

He āhuatanga onge, engari he nui te kino te chordoma e hiahia ana ki te tiaki motuhake mai i ngā rōpū hauora e whai wheako ana. Ahakoa ka taea e te whakatau te ahua ohorere, kua pai ake ngā hua mō te tini o te iwi na ngā whakaritenga o ngā tikanga pokanga me te rongoā radiation.

Ko te kite wawe me te maimoatanga he mea nui mō ngā hua pai rawa. Ki te pāngia koe e ngā tohu tonu, inā ngā tohu e pā ana ki tō anga, tō kaki, tō tuaiwi rānei, kaua e whakaroa ki te rapu i te whakamātautau hauora.

Mahara kahore koe i te kotahi anake ki te pangia e te chordoma. Hononga atu ki ngā kaiwhakarato hauora e tohunga ana ki ngā mate pukupuku onge, ā, whakaarohia te hononga atu ki ngā rōpū tautoko e taea ai te whakawhiti wheako ki ētahi atu e tūturu ana ki ngā wero rite.

Me te maimoatanga tika me te tautoko, ka taea e te tini o te iwi e pangia ana e te chordoma te pupuri i te kounga ora pai. Noho mārama ki tō āhuatanga, tautokotia koe, mahi tata atu ki tō rōpū hauora ki te whakawhanake i te mahere maimoatanga pai rawa mō tō āhuatanga motuhake.

Ngā pātai e ui pinepinetia ana mō te chordoma

P1: He ira te chordoma?

Ko te nuinga o ngā chordoma e puta ana i te koretake, kāore hoki i te whakawhiwhia. He iti iho i te 5% o ngā take e rere ana i roto i ngā whānau na te rerekētanga o te ira. Ki te whai koe i te hītori whānau o te chordoma, ka nui ake pea tō morearea, engari he onge rawa tēnei, ā, ko te nuinga o te iwi e pangia ana e te chordoma kahore he hītori whānau o te āhuatanga.

P2: Kia tere te tupu o te chordoma?

Ka tupu haere ngā chordoma i te nuinga i roto i ngā marama, i ngā tau rānei. Ko tēnei āhuatanga tupu haere ka puta haere ngā tohu i te nuinga, ā, ka ngoikore pea i te tīmatanga. Engari, ka taea e te momo chordoma dedifferentiated te tupu haere atu i ētahi atu momo, ā, ka nui ake te kaha.

P3: Ka taea te whakaora i te chordoma?

Ka taea te whakaora katoa ki te taea te tango pokanga katoa o te mate pukupuku, engari ka taea te uaua tēnei na te wāhi o te chordoma tata atu ki ngā hanganga nui. He maha ngā iwi e whiwhi ana i te mana roa o tō rātou mate me te whakakotahitanga o te pokanga me te rongoā radiation, ahakoa kei te noho tonu etahi pūtau mate pukupuku.

P4: Ka horapa te chordoma ki ētahi atu wāhi o te tinana?

Ka taea e te Chordoma te horapa ki ētahi atu wheua, engari ka puta iti ake tēnei atu i te tini atu o ngā mate pukupuku. E tata ana ki te 30% o ngā chordoma ka horapa i te mutunga, i te nuinga ki ngā pūkahukahu, ate, ētahi atu wheua rānei. Ka puta tēnei i ngā tau i muri i te whakatau i te tīmatanga.

P5: He aha te roa o te ora me te chordoma?

Ka rerekē te roa o te ora i runga i ngā take penei i te wāhi o te mate pukupuku, te rahi, te momo, me te āhua o te maimoatanga. He maha ngā iwi e ora ana mō ngā tau, ngā tekau tau rānei i muri i te whakatau, inā te kite wawe i te mate pukupuku, te maimoatanga kaha hoki. Ka taea e tō rōpū hauora te whakarato i ngā mōhiohio motuhake atu i runga i tō āhuatanga motuhake.