He aha te Koretake Whakakorenga Mate Tāpoi Noa? Tohutohu, Take, me te Maimoatanga

Ko te koretake whakakorenga mate tāpoi noa (CVID) tētahi āhuatanga kaore e hanga e tō pūnaha matewai te nui o ngā anitapōki hei whawhai pai ki ngā mate. Whakaarohia ngā anitapōki hei kaitiaki haumaru o tō tinana e mohio ana, e whakaeke ana i ngā mate kino penei i ngā pūngāwerewere me ngā huaketo.

Ka pā tēnei āhuatanga ki te 1 o te 25,000 o te iwi, ā, ko te mate koretake matewai nui rawa atu i whakatauhia e ngā tākuta ki ngā pakeke. Ahakoa ka rongo pea he wehi, he tokomaha ngā tāngata e ora ana i te ora katoa, i te ora mahi me te tiaki hauora tika me te maimoatanga.

He aha te Koretake Whakakorenga Mate Tāpoi Noa?

Ka puta te CVID ina kaore e taea e tō pūnaha matewai te whakaputa i ngā immunoglobulins, arā, ngā pūmua kei roto ngā anitapōki whawhai mate. Ka hanga e tō tinana etahi momo o ēnei pūmua, engari i roto i te CVID, he iti rawa te taumata i te noa.

Ko te kupu "variable" i roto i te ingoa e whakaatu ana i te rerekētanga o tēnei āhuatanga ki ia tangata. Ka wheako etahi i ngā mate maha, ka rongo pea etahi i ngā raruraru autoimmune, i ngā raruraru pūnaha kai rānei. Ka rereke te kaha me ngā tohu mai i te tangata ki te tangata, ahakoa i roto i te whānau kotahi.

Ko te nuinga o ngā tāngata e pangia ana e te CVID ka whakatauhia i o rātou tau 20, 30 rānei, ahakoa ka taea te kite i te tamarikitanga, i muri mai rānei i te ora. He mate roa tēnei, arā, he ora tonu, engari he tino whakahaerehia me te tautoko hauora tika.

He aha ngā tohu o te Koretake Whakakorenga Mate Tāpoi Noa?

Ko te tohu tino noa ka kite pea koe ko te mate pinepine atu i te noa, ina koa ki ngā mate manawa. Kāore ēnei i ngā mate huka noa - he kaha ake, he roa ake, he hoki mai pinepine.

Ko ēnei ngā tohu matua e wheakohia ana e ngā tāngata e pangia ana e te CVID:

• Ngā mate ngāwari e hoki mai ana
• Te mate huango, te mate manawa rānei e hoki mai ana
• Ngā mate taringa roa
• Te ruaki roa, ngā raruraru pūnaha kai rānei
• Ngā whekau lymph pupuhi kaore e ngaro
• Te ngenge kaore e pai ake me te okioki
• Ngā mate kiri, ngā pupuhi rānei

Ka whanake etahi i ngā tohu autoimmune, kei hea te pūnaha matewai e whakaeke kino ana i ngā kiko hauora. Ka puta pea tēnei hei mamae o ngā hononga, ngā raruraru kiri, ngā mate toto rānei.

I roto i ngā take onge, ka wheako pea koe i ngā raruraru nui ake penei i te mate manawa roa, i ngā raruraru ate rānei. Ka whanake pea ēnei i te wa roa ki te kore e whakahaeretia tika ngā mate, koia te take i nui ai te whakatau me te maimoatanga wawe.

He aha ngā take o te Koretake Whakakorenga Mate Tāpoi Noa?

Kāore i tino mōhiotia te take tika o te CVID, engari e mohio ana ngā kairangahau kei roto ngā raruraru ki te whakahaere me te mahi tahi o ngā pūtau o tō pūnaha matewai. Ko ō pūtau B, e kawea ana te mahi ki te hanga anitapōki, kāore rānei e mahi tika, kāore rānei e taea te whānuitia ki ngā pūtau e whakaputa ana i ngā immunoglobulins.

He wāhi te ira i roto i te nuinga o ngā take. Ko te 10-20% o ngā tāngata e pangia ana e te CVID he mema whānau kei a rātou te āhuatanga, tētahi atu mate koretake matewai rānei. Engari, ko te nuinga o ngā take ka puta noa mai kaore he hītori whānau mārama.

Kua kitea e ngā kāre e maha ngā ira e taea te whakauru ki te CVID ina whakarerekētia, ina rānei whakarereketia. Ko ēnei ira te tikanga hei awhina i te whakahaere i te mahi o te pūnaha matewai, engari ki te kore e mahi tika, ka ngoikore te whakaputanga anitapōki.

Ka taea pea e ngā take taiao te whakaoho i te CVID ki ngā tāngata e tino pā ana ki te ira. E whakaaro ana etahi kairangahau ko etahi mate huaketo, etahi atu whakamahinga taiao rānei ka taea te whakahohe i te āhuatanga, ahakoa kāore i whakamārama.

Nōhea te haere ki te tākuta mō te Koretake Whakakorenga Mate Tāpoi Noa?

Me whakaaro koe ki te haere ki te tākuta ki te mate pinepine koe, ina koa ki ngā mate manawa e mau tonu ana. Aro atu ki te nui atu i te whā ki te ono mate ia tau e hiahia ana ki ngā rongoā.

Ko ētahi atu tohu whakatūpato ko ngā mate kaore e pai te whakautu ki ngā maimoatanga noa, e hoki mai ana rānei i te wāhi kotahi. Hei tauira, ki te maha atu ō mate huango, ki te mate ngāwari roa kaore e tino maarama.

Kaua e tatari ki te wheako koe i ngā raruraru pūnaha kai roa me ngā mate maha. Ko te ruaki roa, te ngaro taimaha kaore i te whakamārama, ngā raruraru puku tonu rānei me ngā mate e hoki mai ana e hiahia ana ki te aromatawai hauora.

Ki te whai koe i te hītori whānau o ngā mate koretake matewai, he mea nui kia kōrero koe ki tō tākuta. Ka taea e te whakatau wawe te aukati i ngā raruraru, te whakapai ake i tō kounga ora.

He aha ngā take morearea mō te Koretake Whakakorenga Mate Tāpoi Noa?

Ko te mārama ki ō take morearea ka taea te awhina i a koe me tō tākuta ki te kite wawe i te CVID. Ko te hītori whānau te take morearea kaha rawa atu, i te mea ka taea te rere i roto i ngā whānau ahakoa kāore i te mōhiotia te take ira tika.

Ko ēnei ngā take morearea matua hei matawai:

• Te whai whānau tata e pangia ana e te CVID, tētahi atu mate koretake matewai matua rānei
• Te whakatauhia me ngā āhuatanga autoimmune penei i te mate rheumatoid, te mate pūnaha kai mumura rānei
• Te whai i ētahi rerekētanga ira e pā ana ki te mahi o te pūnaha matewai
• He uri Pākehā (ahakoa ka pā te CVID ki ngā iwi katoa)
• Te tau - ahakoa ka puta i tetahi tau, ko te nuinga o ngā whakatau ka puta i waenga i ngā tau 20-40

He mea nui te mahara kaore te whai take morearea e tikanga ka whanake koe i te CVID. He tokomaha ngā tāngata e whai ana i ēnei take morearea kaore e whanake i te āhuatanga, kaore etahi atu e whai take morearea mārama.

Kāore te ira tangata e rite ana ki te take morearea nui, i te mea ka pā te CVID ki ngā tāne me ngā wāhine. Kāore tēnei āhuatanga e pā, no reira kāore e taea te hopu mai i tētahi atu.

He aha ngā raruraru pea o te Koretake Whakakorenga Mate Tāpoi Noa?

Ahakoa ka taea te whakahaere i te CVID, ko te mārama ki ngā raruraru pea ka awhina i a koe ki te matawai me te aha te take i nui ai te maimoatanga. Ko te nuinga o ngā raruraru ka puta ina kaore i te whakahaeretia tika ngā mate i te wa roa.

Ko ēnei ngā raruraru tino noa:

• Te kino o te manawa roa mai i ngā mate manawa maha
• Te kino o te ngāwari roa e arahina ana ki ngā raruraru tonu
• Ngā raruraru pūnaha kai tae atu ki te mate pūnaha kai mumura
• Ngā mate autoimmune e pā ana ki ngā whekau maha
• Te pupuhi o te ate, o te ate rānei
• Te nui ake o te morearea o etahi mate pukupuku, ina koa te lymphoma

He iti ake te noa, engari he nui ake te kino o ngā raruraru ka taea te whakauru i te mate manawa kino e kiia nei ko te bronchiectasis, e uaua ai te manawa. Ka whanake etahi i ngā granulomas, arā, ngā pūtau mumura iti e taea te hanga i roto i ngā whekau maha.

Ko te rongo pai, me te maimoatanga tika me te tirotiro, ka taea e te nuinga o ngā tāngata e pangia ana e te CVID te aukati, te whakaiti rānei i ēnei raruraru. Ko te tiaki hauora noa me te aukati mate te matua ki te pupuri i te hauora pai.

Me pēhea te whakatau i te Koretake Whakakorenga Mate Tāpoi Noa?

Ka tīmata te whakatau i te CVID me tō tākuta e arotake ana i tō hītori hauora me te tauira o ngā mate kua wheakohia e koe. Ka hiahia rātou ki te mohio ki te pinepine, te kaha, me ngā momo mate kua pa ki a koe.

Ko te whakamātautau whakatau matua e ine ana i ō taumata immunoglobulin mā te whakamātautau toto ngāwari. Ka tirotirohia e tō tākuta ngā taumata o te IgG, IgA, me te IgM - ngā momo anitapōki matua e whakaputa ana tō tinana. I roto i te CVID, he iti rawa ēnei taumata i te noa.

Ka taea pea e tō tākuta te whakamātautau i te pai o te whakautu o tō pūnaha matewai ki ngā inopu. Ka hoatu e rātou ki a koe etahi inopu, ka tirotirohia mēnā ka whakaputa tō tinana anitapōki hei whakautu. Ko ngā whakautu anitapōki ngoikore, kāore rānei e awhina i te whakau i te whakatau.

Ka taea pea e ngā whakamātautau atu te tirotiro i ō tau pūtau B me ngā pūtau T me te mahi. Ka awhina ēnei whakamātautau i tō tākuta ki te mārama ki te āhua o te pānga o tō pūnaha matewai, ki te whakakore i ētahi atu āhuatanga.

Ka tūtohutia pea te whakamātautau ira, ina koa ki te whai koe i ngā mema whānau e pangia ana e ngā mate koretake matewai. Ahakoa kāore e hiahiatia mō te whakatau, ka taea te whakarato i ngā korero whai hua mō te whakarite whānau me ngā whakatau maimoatanga.

He aha te maimoatanga mō te Koretake Whakakorenga Mate Tāpoi Noa?

Ko te maimoatanga matua mō te CVID ko te rongoā whakakapi immunoglobulin, e hoatu ana ki tō tinana ngā anitapōki kaore e taea te hanga e ia. He tino whai hua tēnei maimoatanga, ka taea te whakaiti nui i tō reiti mate.

Ka taea te hoatu te rongoā immunoglobulin i ngā huarahi e rua. Ko te immunoglobulin intravenous (IVIG) ka hoatu mā te IV ia 3-4 wiki, te nuinga i roto i te whare hauora. Ko te immunoglobulin subcutaneous (SCIG) ka werohia ki raro i te kiri ia wiki, ia rua wiki rānei, a ka taea te mahi i te kāinga.

Ka mahi tahi tō tākuta me koe ki te rapu i te horopeta me te wā tika. Ko te nuinga o ngā tāngata ka tīmata te pai ake i roto i ngā marama torutoru i te tīmatanga o te maimoatanga, me ngā mate iti ake me ngā taumata kaha ake.

He wāhi nui ngā rongoā i te whakahaere i te CVID. Ka tūtohu pea tō tākuta i te tohu tuatahi o te mate, ahakoa i mua ki te tino pā koe ki ētahi momo mate. Ka whai hua etahi i te rongoā rongoā roa.

Ka taea pea e ngā maimoatanga atu te whakauru i ngā rongoā hei whakahaere i ngā tohu autoimmune ki te whanake. Ka tirotiro tonu tō tākuta i a koe, ka whakarite i ngā maimoatanga kia rite ki te hiahia kia pupuri koe i te hauora pai.

Me pēhea te whakahaere i te Koretake Whakakorenga Mate Tāpoi Noa i te kāinga?

Ko te ora pai me te CVID e whakauru ana i te tango i ngā mahi whakaoho hei aukati i ngā mate, hei pupuri i tō hauora whānui. Ka nui ake te hiranga o ngā mahi horoi pai ina hiahia ana tō pūnaha matewai ki te tautoko atu.

Ko te horoi ringa tō raina tuatahi o te tiaki. Horoihia ō ringa pinepine me te hopi me te wai mo te iti rawa 20 hēkona, ina koa i mua i te kai, i muri i te whakamahinga o te ruuma, i muri i te noho i ngā wāhi tūmatanui.

Pupurihia te whakahou me ngā inopu, engari mahi tata me tō tākuta mō te aha ngā mea e tika ana mōu. Ko te nuinga o ngā inopu kaore i te ora e pai ana, engari ko ngā inopu ora kaore e whakamahia i ngā tāngata e pangia ana e te CVID.

Ko ēnei ngā rautaki whakahaere kāinga matua:

• Pupurihia he kai hauora e whai hua ana i ngā hua, ngā huawhenua, me ngā pūmua ngawari
• Whiwhi moe tika - whakatauritea ki te 7-9 haora ia pō
• Whakapakarihia te tinana, engari kaua e nui rawa te whakapau kaha
• Whakahaerehia te ahotea mā ngā tikanga whakahaerenga, ngā tohutohu rānei
• Kaua e haere ki ngā mano i te wa o te mate huka ki te taea
• Kaua e tuwhaitia ngā taonga whaiaro penei i ngā paraihe niho, ngā kapu inu rānei

Aro atu ki tō tinana, kaua hoki e wareware ki ngā tohu wawe o te mate. Ko te tere o te tīmatanga o te maimoatanga mō ngā mate, ko te pai ake o ō hua.

Me pēhea te whakarite mō tō hui tākuta?

Ko te whakarite mō tō hui e awhina ana i te whakarite kia whiwhi koe i te hua nui rawa atu i tō wā me tō kaiwhakarato hauora. Tīmata mā te pupuri i te rekoata taipitopito o ō tohu, o ō mate, me te āhua o tō ngākau i ia rā.

Tuhia ngā mate katoa kua pa ki a koe i te tau kua hipa, tae atu ki te wā i puta ai, ngā maimoatanga i whiwhi ai koe, me te roa o te roa. Ka awhina ēnei korero i tō tākuta ki te kite i ngā tauira, ki te whakarite i tō maimoatanga ki te hiahia.

Kawe mai he rārangi katoa o ngā rongoā me ngā taapiri katoa e tangohia ana e koe, tae atu ki ngā horopeta me te auau. Kaua e wareware ki te whakauru i ngā rongoā kore-tohutohu me ngā huaora.

Whakaritea ngā pūrongo e hiahia ana koe ki te ui ki tō tākuta. Ko ngā pūrongo noa pea ko ngā āwangawanga mō ngā tohu hou, ngā pūrongo mō ngā whakaritenga maimoatanga, ngā tūtohu noho rānei. Ko te tuhi i a rātou e whakarite ana kaore koe e wareware ki ngā kaupapa nui.

Ki te kite koe i tētahi tākuta hou, kawe mai ngā kape o ngā hua whakamātautau hou, ngā rekoata inopu, me te whakarapopototanga o tō hītori hauora. Ka awhina tēnei i a rātou ki te mārama tere ki tō take, ki te whakarato i te tiaki pai ake.

He aha te tango matua mō te Koretake Whakakorenga Mate Tāpoi Noa?

He āhuatanga whakahaerehia te CVID kaore e hiahia ki te whakahaere i tō oranga. Me te maimoatanga tika, ka taea e te nuinga o ngā tāngata e pangia ana e te CVID te ora i te ora noa, i te ora hauora me ngā mate me ngā raruraru iti ake.

Ko te mea nui rawa atu hei mahara ko te whakatau wawe me te maimoatanga tonu e hanga ana i te rerekētanga katoa. He tino whai hua te rongoā whakakapi immunoglobulin, a he tokomaha ngā tāngata e miharo ana ki te nui o te pai ake o te ngākau ina tīmata ana rātou i te maimoatanga.

He mea nui te mahi tata me te immunologist, tētahi atu tohunga rānei e whai wheako ana ki te whakahaere i te CVID. Ka taea e rātou te awhina i a koe ki te whakatere i ngā kōwhiringa maimoatanga, ki te aukati i ngā raruraru, ki te whakautu i ngā āwangawanga e puta mai ana.

Kia mahara kaore te whai CVID e tikanga he ngoikore koe, he iti rānei. He tokomaha ngā tāngata e whai ana i tēnei āhuatanga e whai mahi ana, e haereere ana, e whakapakari ana i te tinana, e pai ana ki ngā mahi katoa e aroha ana rātou. Ko te matua ko te pupuri i te mōhio, te whai i tō mahere maimoatanga, me te pupuri i te kōrero pai me tō rōpū hauora.

Ngā pūrongo e ui pinepinetia ana mō te Koretake Whakakorenga Mate Tāpoi Noa

Ka taea te ora i te ora noa me te CVID?

Ae, ko te nuinga o ngā tāngata e pangia ana e te CVID e ora ana i te ora katoa, i te ora mahi me te maimoatanga tika. Ka taea e te rongoā whakakapi immunoglobulin te whakaiti i ngā mate nui, te tuku i a koe ki te mahi, ki te haereere, ki te whakapakari i te tinana, ki te whakauru ki ngā mahi e tino pai ana koe. Ko te matua ko te maimoatanga tonu me te mahi tata me tō rōpū hauora.

He ira te CVID?

Ka taea te rere o te CVID i roto i ngā whānau, engari ko te nuinga o ngā take ka puta mai kaore he hītori whānau mārama. Ko te 10-20% o ngā tāngata e pangia ana e te CVID he whānau tata kei a rātou te āhuatanga, tētahi atu mate koretake matewai rānei. Ahakoa he wāhi te ira, kāore tēnei āhuatanga e whai tauira whakawhiwhi ngāwari, no reira ko te whai mema whānau e pangia ana e te CVID kāore e whakamana ka whanake koe.

Nōhea te hiahia ki ngā maimoatanga immunoglobulin?

Ko te auau o te maimoatanga e whakawhirinaki ana ki te momo rongoā immunoglobulin e whiwhi ana koe. Ko te IVIG te tikanga ka hoatu ia 3-4 wiki mā te IV, ko te SCIG ka hoatu ia wiki, ia rua wiki rānei mā ngā wero iti ki raro i te kiri. Ka whakatau tō tākuta i te wā pai rawa atu e whakaū ana ki ō taumata anitapōki me te āhua o tō whakautu ki te maimoatanga.

Ka taea te kino ake o te CVID i te wa roa?

Ko te CVID anō te tikanga he pumau, engari ka taea te whanake i ngā raruraru ki te kore e whakahaeretia tika ngā mate i te wa roa. Koia te take i nui ai te maimoatanga tonu me te tirotiro noa. Me te tiaki tika, ka pupuri te nuinga o ngā tāngata i te hauora pumau, ka kite pea i ngā whakapainga i ō rātou tohu me te kounga ora.

He kai, mahi rānei e hiahia ana ahau ki te karo me te CVID?

Kāore koe e hiahia ki te whai i te kai motuhake, engari ko te pupuri i te kai pai e tautoko ana i tō hauora whānui. Kaua e kai i ngā kai mata, ngā kai kore i tunua pai e taea te pupuri i ngā pūngāwerewere kino, kia tupato ki ngā hua waiū kore i te pāmahana. Ko te nuinga o ngā mahi noa e pai ana, engari ka hiahia pea koe ki te karo i ngā mano i te wa o te mate huka, me te mahi tonu i te horoi pai.