He aha te mate Creutzfeldt-Jakob? Tohutohu, Take, me te Maimoatanga

Ko te mate Creutzfeldt-Jakob (CJD) tētahi mate pukupuku roro onge, e arahi ana ki te heke tere o te hinengaro me te ngaro o te mahara. Ka pā tēnei āhuatanga ki ngā pūtau io o te roro, ka whakangaro i a rātou i te wā, ā, ka arahi ki ngā raruraru neurological nui.

Ahakoa he onge rawa te CJD, e pā ana ki te kotahi tangata noa i te miriona ia tau, ka taea e te mārama ki tēnei āhuatanga te āwhina i a koe ki te mohio ki ōna tohu me te mohio ki te wā hei rapu i te tiaki hauora. Kei roto tēnei mate i roto i tētahi rōpū e kiia nei ko ngā mate prion, kei reira ngā pūtau pāwera e whakangaro ana i te kiko o te roro.

He aha te mate Creutzfeldt-Jakob?

Ko te mate Creutzfeldt-Jakob tētahi āhuatanga whakangaro o te roro e puta mai ana i ngā pūtau pāwera e kiia nei ko ngā prion. Ka hanga ēnei pūtau pāwera he, ka whakangaro i ngā pūtau io, ka hanga i ngā rua penei i te pongaponga i roto i te roro.

Ka tere te whanake o te mate, i te nuinga i roto i ngā marama, kāore i roto i ngā tau. Kāore i rite ki ētahi atu āhuatanga o te roro e whanake haere ana, ka puta mai te CJD i ngā huringa tere o te whakaaro, o te mahara, me ngā kaha tinana e kitea ana i roto i ngā wiki, i ngā marama rānei.

Ko te nuinga o te hunga e pangia ana e te CJD e ora ana mo te kotahi tau i muri i te tīmatanga o ngā tohu, ahakoa ka rerekē tēnei. Ka pā tēnei āhuatanga ki te iwi katoa, engari ko te nuinga o te wā ka kitea i roto i ngā pakeke i waenga i ngā tau 45 me te 75.

He aha ngā momo o te mate Creutzfeldt-Jakob?

E whā ngā momo matua o te CJD, he rerekē ngā take me ngā tauira. Ka āwhina te mārama ki ēnei momo i ngā tākuta ki te whakatau i te huarahi pai mō te whakamātautau me te tiaki.

Ko te CJD sporadic te momo tino noa, e 85% o ngā keehi katoa. Ka puta mai tēnei momo i te koretake, kahore he take e mohiotia ana, kāore hoki he hītori whānau, e pā ana ki te hunga i roto i ō rātou tau 60 me te 70.

Ko te CJD whānau e 10-15% o ngā keehi, ā, ka rere i roto i ngā whānau nā te whakakotahitanga o ngā ira. Ka whanake ngā tohu i ngā tau iti ake te hunga e pangia ana e tēnei momo, i etahi wā i roto i ō rātou tau 40, 50 rānei.

He onge rawa te CJD whiwhi, ā, ka puta mai i te whakapiri ki te kiko pangia, i te nuinga i roto i ngā mahi hauora. Kei roto i ēnei ngā keehi e hono ana ki ngā taputapu pokanga poke, ki ngā whakawhiti kiko mai i ngā kai hoatu pangia.

Ko te CJD rerekē te momo tino onge, e hono ana ki te kai i te mīti kau mai i ngā kau e pangia ana e te mate kau. Ka pā tēnei momo ki ngā tāngata taitamariki, ā, he rerekē ngā tohu ki ētahi atu momo o te CJD.

He aha ngā tohu o te mate Creutzfeldt-Jakob?

Ka rite ngā tohu o te CJD ki ētahi atu āhuatanga, ka uaua te whakamātautau i te tīmatanga. Ka kite pea koe i ngā huringa o te mahara, o te whakaaro, o te whāinga rānei e āhua tere ana te kino i roto i ngā wiki, i ngā marama rānei.

Ko ngā tohu o te tīmatanga tino noa ko:

• Ngaro o te mahara me te whakapohehe
• Uaua ki te whakahaere me te toenga
• Huringa o te tūāpapa, o te whāinga rānei
• Raruraru ki te kōrero, ki te kimi kupu rānei
• Huringa o te ngākau penei i te pouri, i te manukanuka rānei
• Raruraru ki te tirohanga, ki ngā nekehanga kanohi rānei

I te whakawhānui o te mate, ka kaha ake ngā tohu, ā, ka uru pea ki te ngoikore o ngā uaua, ki ngā nekehanga wiri, ki te uaua ki te horomi rānei. Ka whanake ēnei tohu i muri mai nā te mea ka pā te mate ki ētahi atu wāhi o te roro.

Ka pā pea ki ētahi te raruraru moe, ngā wiri uaua ohorere, te uaua ki ngā mahi ngāwari penei i te hikoi, te kai rānei. Ko te tere o te whanake o ēnei tohu te mea e whakamohio ana i ngā tākuta ki te whakaaro he CJD te whakamātautau.

He aha ngā take o te mate Creutzfeldt-Jakob?

Ko te CJD te take o ngā pūtau pāwera e kiia nei ko ngā prion e huri ana te ahua, e whakangaro ana i ngā pūtau roro. Ka mahi ēnei pūtau pāwera he penei i te tauira, ka puta he pūtau pāwera noa, ka horapa puta noa i te roro.

I roto i te CJD sporadic, te momo tino noa, ka āhua huri noa ngā pūtau prion i te koretake, kahore he take mārama. Kāore ngā kairangahau i te tino mārama he aha tēnei, engari ka āhua he mahi koretake e puta ana i te pakeke o te tangata.

Ka whanake te CJD whānau ina whiwhi ngā tāngata i ngā whakakotahitanga ira e āhei ai ō rātou pūtau ki te huri. Mena he mātua kei a ia tētahi o ēnei whakakotahitanga, he 50% te tūponotanga o ia tamaiti ki te whiwhi, ahakoa ehara i te katoa o te hunga e whiwhi ana i te ira ka whanake te mate.

Ka puta te CJD whiwhi ina whakapiri tetahi ki te kiko pangia mai i tētahi atu tangata. Ka taea tēnei te puta mai i ngā taputapu pokanga poke, ngā whakawhiti kiko, ngā mahi hauora e pā ana ki te kiko o te roro, o te tuaiwi rānei.

Ka puta te CJD rerekē mai i te kai i ngā hua mīti kau mai i ngā kau e pangia ana e te encephalopathy spongiform bovine (mate kau). Ka taea e ngā prion mai i ngā kau pangia te whakawhiti ki ngā tāngata, ka puta tēnei momo mate.

Nō hea te haere ki te tākuta mō te mate Creutzfeldt-Jakob?

Me haere koe ki te tākuta mena ka kite koe i ngā huringa tere o te mahara, o te whakaaro, o te whakahaere rānei e kino haere ana i roto i ngā wiki, i ngā marama rānei. Ahakoa he maha ngā take o ēnei tohu, ko te tere o te whanake tētahi tohu whakatūpato nui e hiahia ana ki te tiaki hauora.

Whakapa atu ki tō kaiwhakarato hauora mena ka pā ki a koe ngā huringa tūāpapa ohorere, te uaua ki te toenga, ki te hikoi rānei, ki ngā raruraru kōrero e whanake tere ana. Ko ēnei tohu, ina puta tahi, ka hiahia ki te aromatawai tere.

Mena he hītori whānau o te CJD, o ngā āhuatanga e hono ana rānei, korerohia tēnei ki tō tākuta ahakoa he ngawari ngā tohu. Ka taea e te aromatawai hauora tere te āwhina ki te whakakore i ētahi atu āhuatanga e taea te whakaora, ā, ka homai ngā mōhiohio nui mō tō whānau.

Kaua e tatari mena kei te pāngia koe e ngā raruraru tirohanga, ngā wiri uaua, te uaua ki te horomi rānei me ngā huringa hinengaro. Ko ēnei whakakotahitanga o ngā tohu e hiahia ana ki te aromatawai hauora tere hei whakatau i te take me te tiaki tika.

He aha ngā take tūponotanga mō te mate Creutzfeldt-Jakob?

He maha ngā take e taea ai te whakapiki i tō tūponotanga ki te whanake i te CJD, ahakoa he onge rawa te mate. Ka taea e te mārama ki ēnei take tūponotanga te āwhina i a koe ki te whai kōrero whakamārama ki tō kaiwhakarato hauora.

Ko ngā take tūponotanga matua ko:

• Tau - ko te nuinga o ngā keehi e puta ana i ngā tāngata neke atu i te 60
• Hītori whānau o te CJD, o ngā whakakotahitanga ira e hono ana rānei
• Ngā mahi hauora o mua e pā ana ki te kiko o te roro, o te tuaiwi rānei
• Whakapiri ki ngā taputapu pokanga poke
• Hītori o te whiwhi i ngā whakawhiti kiko, i ētahi rongoā homoni rānei

Ko te whai mema whānau e pangia ana e te CJD whānau te tikanga pea kei a koe te whakakotahitanga ira, engari ehara tēnei i te whakamana ka whanake koe i te mate. Kāore te nuinga o te hunga e whai ana i te whakakotahitanga e whakaatu ana i ngā tohu, ā, ka taea e te tohutohu ira te āwhina i a koe ki te mārama ki tō tūponotanga motuhake.

Ko ngā mahi hauora i mahia i mua i ngā tikanga whakamātautau hou he iti te tūponotanga, ina koa ngā pokanga roro, ngā mahi e pā ana ki te wai o te tuaiwi rānei. Heoi, kua whakakore noa atu ngā tikanga hauora o nāianei i tēnei tūponotanga i ngā whenua whānui.

He aha ngā raruraru pea o te mate Creutzfeldt-Jakob?

Ka arahi te CJD ki ngā raruraru nui i te pānga o te mate ki ētahi atu wāhi o te roro. Ka whanake ēnei raruraru nā te mea ka pakaru haere te kiko o te roro, kāore hoki e taea te whakahaere i ngā mahi tinana noa.

Ko ngā raruraru tino nui ko:

• Ngaro katoa o te mahi hinengaro me te matauranga
• Kāore e taea te kōrero, te whakawhitiwhiti kōrero rānei
• Ngaro o te whakahaere uaua me te whakahaere
• Uaua ki te horomi, ka arahi ki te ngākau, ki te mate huhu rānei
• Ngā mate nā te ngoikore o te pūnaha mate
• Raruraru ngākau me te manawa

Ko te nuinga o te hunga e pangia ana e te CJD ka hiahia ki te tiaki katoa i te wā e ngaro ana te kaha ki te mahi i ngā mahi ngāwari penei i te kai, te hikoi, te mohio rānei ki ngā mema whānau. Ka puta tēnei whanake i roto i ngā marama.

Ko te take tino noa o te mate i te CJD ko te mate huhu, e puta mai ana i te uaua ki te horomi, ki te takoto roa rānei. Ka taea hoki e ngā raruraru ngākau me ētahi atu mate te mate kino i te whakawhānui o te mate.

Me pēhea te whakamātautau i te mate Creutzfeldt-Jakob?

Ka uaua te whakamātautau i te CJD nā te mea ka rite ngā tohu o te tīmatanga ki ētahi atu āhuatanga o te roro. Ka tīmata tō tākuta me te hītori hauora taipitopito me te whakamātautau tinana, ka aro nui ki ngā tohu neurological me te tere o te whanake.

He maha ngā whakamātautau e āwhina ana i ngā tākuta ki te whakamātautau, ahakoa he maha ngā whakamātautau e hiahia ana ki te tirotiro i te kiko o te roro. Ka taea e ngā whakamātautau toto te kite i ētahi pūtau e hono ana ki te CJD, ka taea e te whakamātautau ira te kite i ngā whakakotahitanga e hono ana ki ngā momo whānau.

Ka taea e te whakaahua roro penei i ngā whakamātautau MRI te whakaatu i ngā huringa āhuatanga o te kiko roro e tohu ana i te CJD. Ka titiro ēnei whakamātautau ki ngā tauira motuhake o te pakaru e āwhina ana ki te wehewehe i te CJD mai i ētahi atu āhuatanga penei i te mate Alzheimer, i te mate roro rānei.

Ka ine te electroencephalogram (EEG) i ngā ngaru roro, ā, ka whakaatu i ngā tauira koretake i roto i te hunga e pangia ana e te CJD. Ka taea hoki e te tāpui tuaiwi hei tirotiro i te wai o te roro te homai i ngā tohu nui mō te whakamātautau.

I etahi wā ka mahi ngā tākuta i te biopsy roro, kei reira tetahi wahi iti o te kiko roro e tirotirohia ana i raro i te microscope. Ka mahia tēnei mahi ina kore e tino mohiotia te whakamātautau, ā, ka whakarerekē nui te mōhiohio i ngā whakatau maimoatanga.

He aha te maimoatanga mō te mate Creutzfeldt-Jakob?

I tēnei wā, kāhore he rongoā mō te CJD, kāhore hoki ngā maimoatanga e taea te whakaheke, te mutu rānei i te whanake o te mate. Heoi, ka aro te tiaki hauora ki te whakahaere i ngā tohu me te pupuri i a koe kia pai rawa te āhuatanga i te mate.

Ka taea e ngā rongoā te āwhina i te whakahaere i ētahi tohu penei i ngā wiri uaua, te manukanuka, te mamae rānei. Ka taea e ngā rongoā anti-seizure te whakaiti i ngā nekehanga kore mana, ka taea e ngā rongoā pouri, ngā rongoā manukanuka rānei te āwhina ki ngā huringa ngākau me te whakaohooho.

Ka taea e te rongoā tinana me te rongoā mahi te āwhina i te pupuri i te nekehanga me te mahi mo te roa rawa. Ka aro ēnei rongoā ki te haumaru, ki te aukati i ngā hinga, ki te whakarite i tō taiao kia ngāwari ake ngā mahi o ia rā.

I te whakawhānui o te mate, ka whakawhiti te tiaki ki te whakarite i te āhuatanga me te mana. Ka uru pea tēnei ki te āwhina ki te kai, ki te horoi, ki ētahi atu hiahia tiaki whaiaro rānei, me te whakahaere i te mamae me ētahi atu tohu kore āhuatanga.

Ka taea e te rongoā kōrero te āwhina ki ngā raruraru kōrero me te horomi, ka whakarite te tautoko kai i a koe ki te whiwhi kai tika ahakoa ka uaua te kai. Ka whai hua ano te nuinga o ngā whānau i ngā ratonga tohutohu me te tautoko i tēnei wā uaua.

Me pēhea te whakahaere i te tiaki i te kāinga i te wā o te mate Creutzfeldt-Jakob?

Ko te tiaki kāinga mō te CJD e aro nui ana ki te haumaru, ki te āhuatanga, ki te pupuri i te kounga o te ora mo te roa rawa. Ka taea e te hanga i tētahi taiao mārama, mohio te whakaiti i te whakapohehe me te manukanuka i te whakawhānui o ngā tohu.

Ka nui te whakarereketanga o te haumaru i te kāinga i te whanake o ngā raruraru whakahaere me te toenga. Kei roto i ēnei te tango i ngā tūponotanga hinga, te tāruarua i ngā pou hopu i roto i ngā ruma horoi, me te whakarite i te mārama pai puta noa i te whare.

Ka taea e te whakarite i ngā mahi o ia rā te āwhina i te pupuri i te āhua noa me te whakaiti i te whakapohehe. Ko ngā kaupapa ngāwari, mau tonu mō ngā kai, ngā rongoā, me ngā mahi te mahi pai rawa i te heke o ngā kaha hinengaro.

Ka hiahia hoki ngā mema whānau me ngā kai tiaki ki te tautoko, i te mea ka uaua te tiaki i tetahi e pangia ana e te CJD. Ka taea e ngā ratonga tiaki wātea, ngā rōpū tautoko, me te tohutohu te homai i te āwhina nui.

Ka uaua pea te whakawhitiwhiti kōrero i te whakawhānui o te mate, engari ko te pupuri i te āhuatanga tinana mā te pā atu ngawari, mā te waiata mohio, mā ngā taiao ata noa rānei ka taea tonu te homai i te hononga me te āhuatanga whai kiko.

Me pēhea te whakarite mō tō hui tākuta?

I mua i tō hui, tuhia katoa ngā tohu kua kite koe, tae atu ki te wā i tīmata ai rātou me te āhua o te huringa i te wā. Kia tino mārama ki ngā rā me te whanake o ngā tohu.

Kawe mai i te rārangi katoa o ngā rongoā, ngā taapiri, me ngā hua hua e inu ana koe. Kohikohihia hoki ngā mōhiohio mō tō hītori hauora whānau, ina koa ngā whānau i pangia e te mate dementia, ngā mate nekehanga, ngā āhuatanga neurological koretake rānei.

Whakaarohia te kawe mai i tētahi mema whānau, i tētahi hoa tata rānei e taea te homai i ngā tirohanga atu mō ngā huringa kua kite rātou. I etahi wā ka taea e ētahi te kite i ngā huringa kāore koe e mohio ki a koe.

Whakaritehia ngā pātai mō te aha e tatari ai, ngā whiringa maimoatanga, me ngā rauemi mō te tautoko. Tuhia ēnei i mua kia kaua e wareware ki ngā kaupapa nui i te wā o te hui.

Mena kua whai koe i ngā mahi hauora o mua, ina koa tetahi e pā ana ki te kiko o te roro, o te tuaiwi rānei, kawe mai i ngā rēkōti, i ngā mōhiohio taipitopito rānei mō ēnei maimoatanga. Ka taea te nui o tēnei mōhiohio mō te whakatau i ō take tūponotanga.

He aha te mea nui mō te mate Creutzfeldt-Jakob?

Ko te mate Creutzfeldt-Jakob tētahi āhuatanga roro onge, engari he nui te kino, e tere ana te whanake, kāore hoki he rongoā i tēnei wā. Ahakoa he wehi te whakamātautau, ka taea e te mārama ki te āhuatanga te āwhina i a koe ki te mahi i ngā whakatau whakamārama mō te tiaki me te tautoko.

Ko te mea nui rawa hei mahara ko kāore koe i te kotahi i te whakatau i tēnei wero. Ka taea e ngā rōpū hauora, ngā kaimahi pāpori, me ngā whakahaere tautoko te homai i ngā rauemi me ngā aratohu nui puta noa i tō haerenga.

Aro nui ki te pupuri i te kounga o te ora me ngā hononga whai kiko ki ngā whānau me ngā hoa mo te roa rawa. Ka kite te nuinga o te hunga e pangia ana e te CJD me ō rātou whānau i te āhuatanga i te tiaki wairua, i te tohutohu, i ngā rōpū tautoko hoki i hoahoahia mō ngā mate onge.

Ahakoa he kino te whakatau, ko te whakawhānui o te tiaki tautoko te tikanga ka taea te whakahaere pai ake i ngā tohu i mua. Ko te mahi tata atu ki tō rōpū hauora te whakarite ka whiwhi koe i te tiaki me te tautoko pai rawa.

Ngā pātai e ui pinepinetia ana mō te mate Creutzfeldt-Jakob

He mate whakapiri te mate Creutzfeldt-Jakob?

Kāore te CJD he mate whakapiri i te tikanga noa, kāore hoki e horapa mā te hononga noa, te mare, te tuwha kai rānei. Heoi, ka taea pea te whakawhiti i ngā prion e arahi ana ki te CJD mā te hononga tika ki te kiko roro, tuaiwi rānei pangia, koia te take i tangohia ai ngā whakaritenga motuhake i roto i ngā taiao hauora. Kāore te hononga pāpori noa ki tetahi e pangia ana e te CJD e whakaatu i te tūponotanga ki ngā mema whānau, ki ngā kai tiaki rānei.

Ka taea te aukati i te mate Creutzfeldt-Jakob?

Kāore te nuinga o ngā momo o te CJD e taea te aukati nā te mea ka puta noa mai rātou, ka whiwhi rānei. Heoi, ka taea e koe te whakaiti i tō tūponotanga ki te CJD rerekē mā te karo i ngā hua mīti kau mai i ngā whenua kua puta mai ngā mate kau. Kei te whakamahi ngā whare hauora i ngā tikanga whakamātautau pai ake me ngā tukanga whakamātautau hei aukati i te whakawhiti mā ngā mahi hauora, ka tino onge te CJD whiwhi.

He aha te rerekētanga o te CJD me te mate Alzheimer?

Ahakoa e pā ana ngā āhuatanga e rua ki te mahara me te whakaaro, ka tere ake te whanake o te CJD i te mate Alzheimer. Ka kino haere ngā tohu CJD i roto i ngā marama, ka whanake te Alzheimer i roto i ngā tau. Ka puta mai ano te CJD i ngā wiri uaua me ngā raruraru whakahaere i te tīmatanga o te mate, he iti te noa i te tīmatanga o te Alzheimer. He poto ake te wā ora toharite me te CJD.

He aha ngā mea me mārama ai ngā mema whānau mō te whakamātautau ira mō te CJD?

Ka taea e te whakamātautau ira te kite i ngā whakakotahitanga e hono ana ki te CJD whānau, engari ehara te whai i te whakakotahitanga i te whakamana ka whanake koe i te mate. Kāore te hunga e whai ana i te whakakotahitanga e whakaatu ana i ngā tohu, ka whanake pea ētahi i te mate i muri mai o te ora. Ka taea e te tohutohu ira i mua i te whakamātautau te āwhina i a koe ki te mārama ki ngā hua o te whakamātautau me te mahi i tētahi whakatau whakamārama mō te whakamātautau tika mōu.

He maimoatanga whakamātautau kei te akohia mō te CJD?

Kei te rangahau ngā kairangahau i ngā maimoatanga pea mō te CJD, tae atu ki ngā rongoā e taea ai te whakaheke i te hanganga prion me ngā rongoā e taea ai te tiaki i ngā pūtau roro mai i te pakaru. Ahakoa he whakamātautau tonu ēnei maimoatanga, kāore ano kia whakamāramahia te whai hua, ka taea pea ngā whakamātautau hauora mō ētahi manuhiri. Ka taea e tō tākuta te homai i ngā mōhiohio mō ngā rangahau o nāianei me te tika pea mōu te whai wāhi.