He aha te Dystonia? Tohutohu, Take, me te Maimoatanga

Ko te dystonia tētahi āhuatanga neurological e pā ana ki te whakaohooho o ngā uaua kaore i te tika, ā, ka puta mai ai ngā nekehanga kōikoi, ngā āhua rānei e kore e taea te whakahaere.

Whakaarohia he karere whakapohehe kei te tuku atu tō roro ki ō uaua. Ahakoa ka pā te dystonia ki ngā wāhanga rerekē o tō tinana, he mea nui kia mōhio koe kei reira ngā maimoatanga whai hua hei awhina i te whakahaere i ngā tohu, me te whakapai ake i te kounga o tō oranga.

He aha te dystonia?

Ka puta te dystonia ina kore ngā pokapū whakahaere nekehanga o te roro e hono pai ki ō uaua. Ko tēnei kore-whakaū ka puta ai te whakaohooho o ngā uaua kaore i te tika, ka puta mai ai ngā nekehanga kōikoi, ngā āhua rānei e kore e pai.

He rerekē te pānga o te āhuatanga ki te tangata. Ko ētahi ka pāngia e ngā tohu ngawari e puta mai ana, ētahi atu ka pāngia e ngā whakaohooho uaua roa atu. Ka taea te whanake o te dystonia i tetahi tau, mai i te tamarikitanga tae atu ki te pakeketanga.

Ko te mea e tino motuhake ana te dystonia, ko te tikanga he mahi-motuhake, he whakaohooho rānei e ngā mahi motuhake. Hei tauira, ka kite pea koe i ngā tohu i te wa e tuhituhi ana, e takaro ana i tētahi taputapu, i te mahi rānei i ētahi atu nekehanga motuhake.

He aha ngā tohu o te dystonia?

Ka rerekē haere ngā tohu o te dystonia, kei te whakawhirinaki ki te uaua e pā ana, me te kaha o te āhuatanga. Ko ngā tohu matua ko ngā whakaohooho uaua kaore i te tika e hanga ana i ngā nekehanga kōikoi, ngā āhua rānei e kore e taea te whakahaere.

Ko ēnei ngā tohu tino noa ka pāngia koe:

• Ngā whakaohooho uaua kaore i te tika e hanga ana i ngā nekehanga kōikoi, ngā hurihuri rānei
• Ngā nekehanga e kore e taea te mutu, te whakahaere rānei
• Ngā āhua kaore i te tika, pēnei i te huri o tō ūtū ki tētahi taha
• Ngā mamae uaua, ngā mamae rānei i ngā wāhanga e pā ana
• Te wiri, te wiri rānei i ngā wāhanga o te tinana
• Te uaua ki ngā mahi motuhake, pēnei i te tuhituhi, te pihi rānei i ngā kakahu
• Ngā huringa reo mena ka pāngia ngā uaua korokoro
• Te wiri o te kanohi, te ihu rānei kaore i te tika

Ka timata ngā tohu i te iti, ā, ka kite pea koe i te wa e mahi ana i ngā mahi motuhake. Ka kite pea koe ko te ahotea, te ngenge, ngā nekehanga rānei e whakaohooho ana, e whakaiti ana rānei i ō tohu, ka taea pea te whakaora wa poto mā te okioki, te pā rānei.

He aha ngā momo dystonia?

Ka wehewehea te dystonia ki te maha o ngā huarahi hei awhina i ngā tākuta ki te mōhio pai ake ki tō āhuatanga motuhake. Ko ngā kāwai matua e whakawhirinaki ana ki te wāhanga o te tinana e pā ana, me te wa i puta mai ai ngā tohu.

E whakawhirinaki ana ki te wāhi o te tinana, ko te dystonia kei roto:

• Focal dystonia: Ka pā ki tētahi wāhanga motuhake o te tinana, pēnei i tō kaki, ringa, kanohi rānei
• Segmental dystonia: Ka pā ki ngā rohe e rua neke atu rānei e hono ana
• Multifocal dystonia: Ka pā ki ngā wāhanga e rua neke atu rānei kaore i te hono
• Generalized dystonia: Ka pā ki te nuinga o tō tinana, tae atu ki ngā waewae me te pouaka
• Hemidystonia: Ka pā ki tētahi taha katoa o tō tinana

Ka awhina te tau o te timatanga ki te wehewehe i te dystonia. Ko te dystonia timatanga-wawe e timata ana i mua i te tau 26, ā, ka timata i te waewae, te ringa rānei i mua i te horapa. Ko te dystonia timatanga-muri e puta ana i muri i te tau 26, ā, ka pā noa ki te kaki, te mata, ngā ringa rānei, ā, ka noho tonu i te rohe.

He aha ngā take o te dystonia?

Ka whanake te dystonia ina he raruraru kei ngā rohe o te roro e whakahaere ana i te nekehanga, ā, ko te basal ganglia. Ko ēnei wāhanga e awhina ana i te whakahaere i ngā nekehanga uaua, engari i te dystonia, ka tuku ratou i ngā karere he ki ō uaua.

Ka taea te wehewehe i ngā take taketake ki ngā kāwai maha:

• Primary dystonia: Kaore he take taketake e taea te kite, he tikanga genetical
• Secondary dystonia: Ka puta mai i te whara o te roro, te pēhanga, ngā rongoā rānei
• Hereditary dystonia: Ka puta mai i ngā whakarerekētanga o ngā ira e tukuna ana i roto i ngā whānau
• Drug-induced dystonia: Ka whakaohoohotia e ngā rongoā, ā, ko ētahi rongoā hinengaro
• Acquired dystonia: Ka whanake i muri i te whara o te roro, te mate, te pānga rānei o te poizon

I etahi wā, ka puta mai te dystonia i ngā āhuatanga pēnei i te mate a Wilson, kei reira te konupū e hanga ana i roto i tō tinana, ngā pūngāwerewere roro rānei e pā ana ki ngā wāhanga whakahaere nekehanga. I etahi wā, ka taea e te whakamahinga o ngā uaua motuhake i ngā mahi motuhake te awhina i te whanaketanga o te dystonia arotahi.

Nō hea te haere ki te tākuta mō te dystonia?

Me haere koe ki te kaiwhakarato hauora mena ka kite koe i ngā nekehanga uaua kaore i te tika, ngā āhua rānei e kore e taea te whakahaere e āwangawanga ana i ō mahi o ia rā. Ka taea e te aromatawai wawe te awhina i te tautuhi i te momo dystonia me te tīmata i te maimoatanga tika.

Rapua te awhina hauora wawe mena ka pāngia koe e te tīmatanga ohorere o ngā whakaohooho uaua nui, ina koa mena ka haere tahi me te uaua ki te horomia, ngā raruraru manawa, te mamae nui rānei. Ka taea e ēnei tohu te tohu i tētahi āhuatanga nui ake e hiahia ana ki te tiaki wawe.

Whakaarohia te haere ki te tākuta mena ka kino haere ō tohu, ka pāngia tō kaha ki te mahi, ki te mahi rānei i ngā mahi o ia rā, te whakaohooho rānei i te ahotea nui. Āe, ko ngā tohu iti he mea nui kia aro atu, i te mea ko te maimoatanga wawe e ārahi ana ki ngā hua pai ake.

He aha ngā take morearea mō te dystonia?

He maha ngā take ka piki ake tō tūponotanga ki te whanake i te dystonia, ahakoa ko te whai i ngā take morearea kaore e tino tikanga ka whanake koe i te āhuatanga. Ka taea e te mōhiotanga ki ēnei take te awhina i a koe me tō tākuta ki te aromatawai i tō āhuatanga motuhake.

Ko ēnei ngā take morearea matua:

• Te hītori whānau: Ko te whai whānau e whai ana i te dystonia ka piki ake tō tūponotanga, ina koa mō ētahi momo ira
• Te tau: Ko ngā momo rerekē e pā ana ki ngā rōpū tau rerekē, ko ētahi momo tino noa i roto i ngā tamariki, ētahi atu i roto i ngā pakeke
• Te ira tangata: Ko ētahi momo, pēnei i te dystonia kaki, he tino noa i roto i ngā wāhine
• Ngā mahi e whakamahia ana: Ko te whakamahinga o ngā rōpū uaua motuhake ka taea te awhina i te dystonia arotahi
• Ētahi rongoā: Ko ngā rongoā antipsychotic me ētahi rongoā anti-mate ka taea te whakaohooho i te dystonia
• Ngā whara o te roro: Te whara o te upoko, te pēhanga rānei e pā ana ki ngā wāhanga whakahaere nekehanga
• Ētahi atu āhuatanga neurological: Te whai i te mate a Parkinson, ngā mate nekehanga rānei

I etahi wā, ko te pānga o ētahi poizon, ngā mate e pā ana ki te roro, ngā mate metabolic rānei ka taea te piki ake i te tūponotanga o te dystonia. Heoi, he tokomaha ngā tāngata e whai ana i ēnei take morearea kaore e whanake i te dystonia, ā, ko ētahi tāngata kaore he take morearea e mohiotia ana ka whanake i te āhuatanga.

He aha ngā raruraru pea o te dystonia?

Ahakoa kaore te dystonia i te mate kino, ka taea e ia te ārahi ki ngā raruraru maha e pā ana ki tō hauora tinana me te kounga o tō oranga. Ko te mōhiotanga ki ēnei take pea ka awhina i a koe ki te mahi tahi me tō rōpū hauora hei aukati, hei whakahaere rānei i a rātou.

Ko ngā raruraru tinana pea kei roto:

• Te mamae roa: Ko te whakaohooho uaua roa ka taea te whakaohooho i te mamae tonu
• Ngā raruraru hononga: Ko ngā āhua kaore i te tika ka taea te ārahi ki te ngoikore o ngā hononga, te kino rānei i te wa roa
• Te ngoikore o ngā uaua: Ko ngā uaua e pā ana ka ngoikore pea i te nui o te whakamahinga, te kore rānei o te whakamahinga
• Te uaua ki ngā mahi o ia rā: Ko ngā mahi pēnei i te kai, te tuhituhi, te kakahu rānei ka uaua pea
• Ngā raruraru kōrero, te horomia rānei: Mena ka pāngia ngā uaua korokoro, arero rānei
• Ngā raruraru tirohanga: Ko ngā wiri o te kamohi ka taea te āwangawanga i te tirohanga

Ko ngā raruraru hinengaro me te pāpori ka rite te nui. He tokomaha ngā tāngata e pāngia ana e te manukanuka, te pouri, te wehewehe pāpori rānei na te kitea o ngā tohu, te iti rānei o ngā mahi. Ko ngā raruraru moe he mea noa hoki ina puta mai ngā whakaohooho uaua i te pō.

Ko te rongo pai, ko te maimoatanga tika ka taea te aukati, te whakaiti rānei i te nuinga o ēnei raruraru. Ko te mahi tata atu ki tō rōpū hauora ka awhina i te whakarite kia mau tonu te mahi pai rawa atu me te kounga o te oranga.

Me pēhea te aukati i te dystonia?

Heoi, ko te nuinga o ngā momo dystonia kaore e taea te aukati katoa, ina koa ko ngā mea e whai take ira ana. Heoi, ka taea e koe te mahi hei whakaiti i tō tūponotanga ki ētahi momo, me te whakaiti i ngā whakaohooho tohu mena kei a koe te āhuatanga.

Mō te dystonia e whakaohoohotia ana e ngā rongoā, ko te aukati tino whai hua ko te whakahaere tika i ngā rongoā. Mena ka hiahia koe ki ngā rongoā ka taea te whakaohooho i te dystonia, ka tirotiro tata atu tō tākuta ki a koe, ka whakamahi i te horoinga iti rawa e whai hua ana.

Ko ngā rautaki whānui ka taea te awhina kei roto:

• Te karo i te ahotea e whakamahia ana i ngā rōpū uaua motuhake ina taea
• Te tango i ngā okioki i ngā mahi e whai ana i ngā nekehanga e whakamahia ana
• Te whakahaere i te ahotea mā ngā tikanga whakaora, te tohutohu rānei
• Te whiwhi moe tika me te pupuri i te hauora pai
• Te tiaki i a koe i ngā whara o te upoko mā te kakahu i ngā potae i ngā mahi morearea

Mena kei a koe te hītori whānau o te dystonia, ka taea e te tohutohu ira te awhina i a koe ki te mōhio ki tō tūponotanga me te mahi i ngā whakatau tika. Ahakoa kaore tēnei e aukati i te dystonia, ka taea te awhina i te whakatōpūtanga whānau me te kite wawe.

Me pēhea te tautuhi i te dystonia?

Ko te tautuhi i te dystonia e whai ana i te whakamātautau hauora, i te mea kaore he whakamātautau kotahi e taea te whakau i te āhuatanga. Ka tirotiro tata atu tō tākuta ki ō nekehanga, ka aromatawai i ō tohu hei hanga i te tautuhi tika.

Ko te tukanga tautuhi e whai ana i ngā kaupae maha. Tuatahi, ka tango tō tākuta i te hītori hauora, ka ui ki te wa i tīmata ai ngā tohu, he aha ngā whakaohooho, me te whai whānau rānei e whai ana i ngā āhuatanga rite.

I te whakamātautau tinana, ka tirotiro atu tō tākuta ki tō āhua, te uaua, ngā nekehanga rānei kaore i te tika. Ka ui pea ratou ki a koe ki te mahi i ngā mahi motuhake hei kite i te āhua o ō tohu ki ngā mahi, ngā āhua rānei rerekē.

Ko ngā whakamātautau atu pea kei roto te mahi toto hei whakakore i ētahi atu āhuatanga, te whakaahua roro pēnei i te MRI hei tirotiro i ngā rerekētanga hanganga, te whakamātautau ira rānei mena ka whakapaehia te dystonia ira. I etahi wā, ka ngana pea tō tākuta ki te whakamātautau maimoatanga me ngā rongoā motuhake hei kite mena ka pai ake ō tohu.

I etahi wā, ka roa te tautuhi tika, ina koa i te mea ka taea te pohehe i te dystonia ki ētahi atu āhuatanga. Ka tuku pea tō tākuta ki te neurologist e mōhio ana ki ngā mate nekehanga mō te aromatawai atu.

He aha te maimoatanga mō te dystonia?

Ko te maimoatanga mō te dystonia e whai ana ki te whakaiti i ngā whakaohooho uaua, te whakapai ake i te mahi, te whakapai ake rānei i te kounga o tō oranga. Ahakoa kaore he rongoā, he maha ngā maimoatanga whai hua ka taea te awhina i te whakahaere i ngā tohu me te aukati i ngā raruraru.

Ko ngā huarahi maimoatanga matua kei roto:

• Ngā werohanga botulinum toxin: Ko te maimoatanga tuatahi tino noa e whakaiti wawe ana i ngā uaua kaore i te tika
• Ngā rongoā waha: Ngā rongoā whakahaere uaua, ngā rongoā anti-whakapae, ngā rongoā rānei e pā ana ki ngā matū o te roro
• Te rongoā tinana: Ngā whakakori me ngā tikanga hei whakapai ake i te ngawari me te mahi
• Te rongoā kōrero: Mō te dystonia e pā ana ki ngā uaua reo, te horomia rānei
• Te whakaohooho roro hohonu: He whiringa pokanga mō ngā keehi nui kaore e whakautu ki ētahi atu maimoatanga
• Te rongoā mahi: Ngā rautaki me ngā taputapu hei awhina i ngā mahi o ia rā

Ka whakaritea tō mahere maimoatanga ki tō momo dystonia me ō tohu. He tokomaha ngā tāngata e kite ana ko te whakakotahi i ngā huarahi rerekē te mahi pai. Hei tauira, ka whiwhi pea koe i ngā werohanga botulinum toxin me te rongoā tinana me ngā tikanga whakahaere ahotea.

Ko te maimoatanga e hiahia ana ki te manawanui me ngā whakarerekētanga i te wa roa. Ko te mea e pai ana mōu ka rerekē pea i te wa e whanake ana tō āhuatanga, no reira he mea nui te whai i te whai wāhi ki tō rōpū hauora mō te whakahaere pai.

Me pēhea te whakahaere i te dystonia i te kāinga?

Ko ngā rautaki whakahaere kāinga ka taea te whakakotahi i tō maimoatanga hauora, ka awhina i a koe ki te whakahaere i ō tohu. Ko ēnei huarahi e aro ana ki te whakaiti i ngā whakaohooho me te whakapai ake i te oranga whānui.

Ko te whakahaere ahotea he mea nui, i te mea ko te ahotea e whakaiti ana i ngā tohu dystonia. Whakaarohia te whakamātautau i ngā tikanga whakaora pēnei i te manawa hohonu, te whakaaroaro, te yoga ngawari rānei. Ko te whakakori noa, ina tika mō tō āhuatanga, ka taea te awhina i te pupuri i te ngawari o ngā uaua me te whakaiti i te ahotea.

Ko ngā rautaki kāinga mahi kei roto:

• Te whakamahi i ngā tikanga pēnei i te pā ngawari hei whakaiti wa poto i ngā wiri
• Te whakamahinga i te whakamahana, te makariri rānei ki ngā uaua e pā ana mō te whakaora mamae
• Te pupuri i te moe pai hei whakaiti i ngā tohu e pā ana ki te ngenge
• Te hanga i te wāhi mahi ergonomic hei whakaiti i te ahotea e whakamahia ana
• Te whakamahi i ngā taputapu, ngā taputapu rānei e ngāwari ai ngā mahi o ia rā
• Te pupuri i te puka tohu hei tautuhi i ngā whakaohooho me ngā tauira

Ko te tautoko mai i te whānau me ngā hoa he mea nui ki te whakahaere i te dystonia. Kaua e mangere ki te whakaako i ō hoa aroha ki tō āhuatanga me te tono awhina ina hiahiatia. Ko te hono atu ki ngā rōpū tautoko, i te tangata rānei, i te ipurangi rānei, ka taea te whakarato i te tautoko hinengaro me ngā tohutohu mahi mai i ētahi atu e mōhio ana ki tō wheako.

Me pēhea te whakarite mō tō hui tākuta?

Ko te whakarite mō tō hui tākuta ka taea te awhina i te whakarite kia whiwhi koe i te hua pai rawa atu i tō haerenga, ka whakarato hoki i ngā korero e hiahia ana tō kaiwhakarato hauora ki te awhina i a koe.

I mua i tō hui, tuhia ō tohu ki te taipitopito. Tākina te wa i tīmata ai rātou, he aha ngā whakaohooho, he aha te mea e pai ake ai, te kino rānei, me te āhua o te pānga ki ō mahi o ia rā. Mena ka taea, whakaarohia te tuhi i te ataata o ō tohu hei whakaatu ki tō tākuta.

Kawe mai ngā korero nui ki a koe:

• Rārangi katoa o ngā rongoā o nāianei, tae atu ki ngā tāpiri
• Te hītori hauora whānau, ina koa ngā mate nekehanga
• Ngā rēkōta hauora o mua e pā ana ki ō tohu
• Rārangi o ngā pūrongo e hiahia ana koe ki te ui
• Ngā korero mo te āhua o te pānga o ngā tohu ki tō mahi me tō oranga o ia rā

Whakaarohia te kawe mai i tētahi mema whānau whakawhirinaki rānei ki tō hui. Ka taea e rātou te awhina i a koe ki te mahara ki ngā korero nui me te whakarato i ngā tirohanga atu mo ō tohu ka ngaro pea koe.

Whakaritea ngā pūrongo motuhake mo ngā whiringa maimoatanga, te mea e tatari ana, me te whakahaere i ngā tohu. Kaua e mangere ki te tono whakamārama mena kaore koe e mōhio ki tetahi mea e whakamārama ana tō tākuta.

He aha te mea nui mō te dystonia?

Ko te dystonia tētahi āhuatanga neurological e taea te whakahaere e whakaohooho ana i ngā whakaohooho uaua kaore i te tika, engari me te maimoatanga tika me te tautoko, ka taea e te nuinga o ngā tāngata te pupuri i te kounga pai o te oranga. Ko te mea nui ko te whiwhi i te tautuhi tika me te mahi tahi me ngā kaiwhakarato hauora e mōhio ana ki ngā mate nekehanga.

Kia mahara ko te dystonia e pā ana ki te tangata katoa, ā, ko te mea e pai ana mō tētahi kaore pea e pai mō tētahi atu. Kia manawanui ki te tukanga maimoatanga, kaua hoki e ngaro te tumanako mena kaore te huarahi tuatahi e whakarato i te whakaora katoa. He maha ngā whiringa maimoatanga whai hua kei reira, ā, kei te haere tonu te whanaketanga o ngā rongoā hou.

Ko te mea nui rawa atu, kaore koe i te kotahi i roto i tēnei haerenga. Kei reira te tautoko mā ngā kaiwhakarato hauora, ngā rōpū tautoko, me ngā whakahaere e whakatapua ana ki te awhina i ngā tāngata e whai ana i te dystonia. Me te whakakotahitanga tika o te maimoatanga hauora, ngā rautaki whakahaere whaiaro, me te tautoko, ka taea e koe te haere tonu ki te ora i te oranga whai hua ahakoa kei a koe te dystonia.

Ngā pūrongo e ui pinepinetia ana mō te dystonia

Kei te piki haere te dystonia?

Ko te pikinga o te dystonia e rerekē ana, e whakawhirinaki ana ki te momo me ngā take takitahi. Ko ētahi momo e noho pumau ana, e pai ake rānei i te wa roa, ko ētahi atu ka kino haere. Ko te dystonia timatanga-wawe he tino tūponotanga ki te horapa ki ētahi atu wāhanga o te tinana, ko te dystonia arotahi pakeke-timatanga e noho tonu ana i te rohe. Ko te tirotiro tonu me tō kaiwhakarato hauora ka awhina i te whai i ngā huringa me te whakarite i te maimoatanga.

Ka taea te rongoā i te dystonia?

I tēnei wā, kaore he rongoā mō te dystonia, engari he tino taea te whakahaere i te āhuatanga me te maimoatanga tika. He tokomaha ngā tāngata e whiwhi ana i te whakapainga nui o ngā tohu me ngā rongoā pēnei i ngā werohanga botulinum toxin, ngā rongoā, te rongoā tinana rānei. Ko te whāinga o te maimoatanga ko te whakaiti i ngā tohu, te whakapai ake i te mahi, me te whakapai ake i te kounga o te oranga, he mea taea mō te nuinga o ngā tāngata e whai ana i te dystonia.

Ka riro mai i aku tamariki te dystonia mena kei ahau?

Ko te tūponotanga o te whakawhiwhi e whakawhirinaki ana ki te momo dystonia kei a koe. Ko ētahi momo he ira, ka taea te tuku ki ngā tamariki, ko ētahi atu kaore he ira. Mena kei a koe te dystonia ira, ko ia tamaiti he 50% te tūponotanga o te whakawhiwhi i te ira, engari ko te whai i te ira kaore e tino tikanga ka whanake rātou i ngā tohu. Ka taea e te tohutohu ira te whakarato i ngā korero motuhake mo te tūponotanga motuhake o tō whānau.

Ka taea e te ahotea te whakaiti i te dystonia?

Āe, ko te ahotea e whakaiti ana i ngā tohu dystonia i roto i te tokomaha o ngā tāngata. Ko te ahotea hinengaro, te ngenge, te manukanuka, te ahotea tinana rānei ka taea te whakaohooho, te whakapakari rānei i ngā whakaohooho uaua. Koia te take he wāhanga nui ngā tikanga whakahaere ahotea pēnei i ngā whakakori whakaora, te moe tika, te tautoko hinengaro rānei o te whakahaere dystonia. Ko te ako ki te mohio me te whakahaere i te ahotea ka taea te awhina i te whakahaere i ngā tohu.

Nō hea te hiahia ki ngā werohanga botulinum toxin?

Ko ngā werohanga botulinum toxin e hiahiatia ana kia whakahokia i ia marama 3-4, i te mea ka ngaro haere ngā pānga i te wa roa. Ko ētahi tāngata pea ka hiahia ki ngā werohanga nui ake, iti ake rānei i te maha, e whakawhirinaki ana ki to ratou whakautu motuhake me te kaha o ngā tohu. Ka mahi tahi tō tākuta ki a koe hei kimi i te wā me te horoinga pai hei pupuri i te whakahaere tohu pai rawa atu me ngā pānga iti rawa.