He aha te mate pukupuku Embryonal? Tohutohu, Take, me te Maimoatanga

He mate pukupuku onge onge te mate pukupuku embryonal e tupu mai ana i nga pūtau kaore ano kia tino whānuitia i te wa o te whanaketanga o mua. Ko enei mate pukupuku te nuinga o te pānga ki nga pepeha me nga tamariki iti, ahakoa ka puta pea i nga pakeke.

Whakaarohia enei mate pukupuku hei tupu mai i nga pūtau i ‘mau’ i roto i o raatau mahi whanaketanga. Ki te kore e tupu hei pūtau noa, motuhake, ka noho tonu ratou i tetahi ahuatanga kaore i tino whānuitia, ka tīmata te tupu kaore he mana. Ahakoa ko te ingoa pea ka rongo nui, ko te mārama ki enei mate pukupuku ka taea te awhina i a koe ki te arahi i tenei ahuatanga uaua me te nui ake o te maia.

He aha ngā mate pukupuku embryonal?

Ko ngā mate pukupuku embryonal he mate pukupuku e puta mai ana i ngā pūtau tawhito e rite ana ki ngā pūtau e kitea ana i ngā pēpi e whānau ana. Ko ēnei pūtau me whānuitia hei momo pūtau motuhake, engari ka mutu te mahi noa.

Ko ngā momo tino noa ko te medulloepithelioma, ependymoblastoma, me ngā mate pukupuku atypical teratoid/rhabdoid (AT/RT). He āhuatanga motuhake ō ia momo, engari he mea ngātahi katoa te tupu mai i ngā pūtau kaore i tino whānuitia. Ko te nuinga o ngā mate pukupuku embryonal e tupu ana i te pūnaha io matua, inā te roro, ahakoa ka puta pea i ētahi atu wāhanga o te tinana.

Ka tohuhia ēnei mate pukupuku hei mate pukupuku teitei, arā, ka tere te tupu. Heoi, ko te tikanga hoki tenei ka tere te whakautu ki te maimoatanga ina kitea wawe.

He aha ngā tohu o ngā mate pukupuku embryonal?

He rerekē ngā tohu o ngā mate pukupuku embryonal, kei te wāhi e tupu ana te mate pukupuku, me te rahi o te tupu. Mai i te mea ko ēnei mate pukupuku te nuinga o te pānga ki te roro me te pūnaha io matua, he maha ngā tohu e pā ana ki te piki o te pehanga i roto i te angaanga.

Ko ēnei ngā tohu tino noa ka kitea e koe:

• Ngā mamae o te upoko e mau tonu ana, e kino ake ana i te wā, inā i te ata
• Te ruaki me te ruaki, inā i te oho
• Ngā huringa i te whāinga, te āhua, te mahi mātauranga
• Ngā hopu, te nekehanga pēnei
• Ngā raruraru taurite, te uaua ki te haere
• Ngā huringa tirohanga, te tirohanga rua
• Te moe nui, te ngenge
• Ngā whakaroa whanaketanga i ngā tamariki

I ngā pepeha, ka kitea pea e koe ētahi atu tohu pēnei i te nui o te whānuitanga o te matenga, te pupuhi o ngā wahi ngawari i te angaanga, te riri nui. Ka tupu ēnei tohu nā te mea ka hanga e te mate pukupuku te pehanga i roto i te angaanga, ka pā ki te mahi noa o te roro.

Kaore i te tino noa, ka raru pea etahi tamariki ki te ngoikore i tetahi taha o te tinana, te uaua ki te korero, te raruraru ki te whakarite. Ko te mea nui kia mahara ko ngā tohu e tupu ana i te wā, no reira pea ka iti ngā huringa i te tīmatanga.

He aha ngā take o ngā mate pukupuku embryonal?

Ko te take tika o ngā mate pukupuku embryonal kaore ano kia tino mohiotia, ka raru pea tenei ina rapu koe i ngā whakautu. Ko te mea e mohio ana tatou, ko ēnei mate pukupuku e puta mai ana i ngā huringa ira e puta ana i te wa o te whanaketanga o mua, ka puta te tupu o ngā pūtau kaore i te whānuitia.

Ko te nuinga o ngā mate pukupuku embryonal e puta ana i te koretake, kaore he take mārama, he take ka taea te aukati. Ko te tikanga tenei kaore he mea i mahia e koe, kaore rānei i mahia e koe te take o te mate pukupuku. He whakakotahitanga whakaharahara noa iho o ngā take ira i puta i te wa o te whanaketanga.

Heoi, kua kitea e ngā kairangahau ētahi ahuatanga ira e piki haere ai te tūponotanga. Kei roto i ēnei te mate Li-Fraumeni, te neurofibromatosis, me ētahi atu rerekētanga o te karōmē. Ahakoa ēnei ahuatanga, ko te nuinga o te iwi kaore e tupu ngā mate pukupuku embryonal.

Kaore te ahua o ngā take taiao e tino pā ana ki te take o ēnei mate pukupuku. Kaore i rite ki ētahi mate pukupuku pakeke, kaore ngā mate pukupuku embryonal e hono atu ki ngā take oranga, kai, te pānga ki ngā matū, te radiation i te wā tamariki.

Nōhea koe me haere ki te taote mō te mate pukupuku embryonal?

Me whakapiri wawe koe ki tō taote mena ka kite koe i ngā tohu e mau tonu ana e awangawanga ana koe, inā ka kino ake ana i te wā. Ahakoa ko te nuinga o ngā mamae o te upoko me ngā huringa whāinga i ngā tamariki he whakamārama ngāwari, he pai tonu te tirotiro ki tetahi tohunga hauora.

Rapua te awhina hauora wawe mena ka pā te mamae o te upoko ki tō tamaiti me te ruaki, ngā huringa ohorere o te mohio, ngā hopu, te uaua ki te noho oho. Ka taea e ēnei tohu te tohu i te piki o te pehanga i roto i te roro, e hiahia ana ki te aromatawai wawe.

Kaua e tatari mena ka kite koe i ngā tohu maha e puta tahi ana, pēnei i ngā mamae o te upoko me ngā raruraru taurite, ngā huringa tirohanga. Ka taea e tō taote tamariki te mahi i te aromatawai tuatahi, ka tuku atu ki tetahi tohunga mena e hiahiatia ana.

Kia mahara ko te kite wawe e ārahi ana ki ngā hua pai ake. Ahakoa ka puta mai ō awangawanga hei mea iti ake te kino, he mea pai tonu te whiwhi i te rangimarie o te ngākau.

He aha ngā take tūponotanga mō ngā mate pukupuku embryonal?

Ko te nuinga o ngā mate pukupuku embryonal e puta ana kaore he take tūponotanga e taea te whakatau, ko te tikanga tenei ka taea te pā ki tetahi tamariki ahakoa te hītori whānau, te oranga. Heoi, he torutoru ngā take e piki haere ai te tūponotanga o te whanaketanga o ēnei mate pukupuku.

Ko te take tūponotanga tino nui ko te tau. Ko ēnei mate pukupuku te tino noa i ngā pepeha me ngā tamariki kei raro iho i te 5 tau te pakeke, ko te tino nui o te puta mai i te tau tuatahi o te ora. I muri i te 5 tau, ka heke te tūponotanga.

Ka taea e ētahi ahuatanga ira te piki o te tūponotanga, ahakoa koinei anake te iti o te ōrau o ngā take:

• Te mate Li-Fraumeni
• Neurofibromatosis momo 1
• Te mate Gorlin
• Te mate Turcot
• Ētahi atu rerekētanga o te karōmē

Ko te whai i te hītori whānau o ngā mate pukupuku roro pea ka piki haere te tūponotanga, engari ko te nuinga o ngā tamariki e pā ana ki ngā mate pukupuku embryonal kaore he hītori whānau o te mate pukupuku. He mea nui kia mārama ahakoa ēnei take tūponotanga, he onge rawa te whanaketanga o te mate pukupuku embryonal.

Ko te ira tangata he iti te pānga, ko ngā tama te tino tūponotanga ki te whanaketanga o ētahi momo mate pukupuku embryonal atu i ngā kōhine. Heoi, he iti tēnei rerekētanga, kaua e manukanuka.

He aha ngā raruraru pea o ngā mate pukupuku embryonal?

Ka puta mai ngā raruraru mai i ngā mate pukupuku embryonal mai i te mate pukupuku anō, tōna wāhi, te maimoatanga. Ko te mārama ki ēnei wāhi pea ka taea te awhina i a koe ki te whakarite, ki te mahi ngātahi me tō rōpū hauora ki te whakaiti i ngā tūponotanga.

Ko te wāhi o te mate pukupuku te tino whakatau i te momo raruraru pea ka pā ki a koe. Ka taea e ngā mate pukupuku roro te hanga i te piki o te pehanga intracranial, ka ārahi ki ngā mamae o te upoko, ngā raruraru tirohanga, ngā huringa o te mohio. Mena ka pā te mate pukupuku ki ngā wāhi motuhake o te roro, ka pā pea ki te korero, te nekehanga, te mahi mātauranga.

Ko ēnei ngā raruraru tino noa kia mōhio ai koe:

• Hydrocephalus (te kohikohi wai i roto i te roro)
• Ngā hopu, te mate hopu
• Ngā whakaroa mātauranga, whanaketanga
• Ngā raruraru mahi motuka
• Ngā raruraru tirohanga, rongonga
• Ngā koretake homoni
• Ngā wero korero, reo

Ko ngā raruraru e pā ana ki te maimoatanga ka uru atu ki ngā pānga mai i te chemotherapy, pēnei i te piki o te tūponotanga mate, te ruaki, te ngaro o te makawe. Ko te maimoatanga radiation, ina whakamahia, ka puta pea te ngenge me ngā huringa kiri, ka pā pea ki te whanaketanga noa o te roro i ngā tamariki tino iti.

Ko ngā raruraru pokanga, ahakoa onge, ka uru atu ki te toto, te mate, ngā huringa neurological wā poto. Ka kōrero tō rōpū pokanga i ēnei tūponotanga i mua i tetahi mahi.

Ko te rongo pai ko te maha o ngā raruraru ka taea te whakahaere pai me te tiaki hauora tika me ngā ratonga whakaora. Ko te whakauru wawe e ārahi ana ki ngā hua pai ake i te wā roa.

Ka taea te aukati i ngā mate pukupuku embryonal?

Aroha mai, kaore he huarahi e mohiotia ana ki te aukati i ngā mate pukupuku embryonal mai i te mea e tupu ana mai i ngā huringa ira e puta ana i te koretake i te wa o te whanaketanga o mua. Ka pouri pea tenei, engari he mea nui kia mārama ko ēnei mate pukupuku kaore i te puta mai i tetahi mea ka taea te aukati.

Kaore i rite ki ētahi mate pukupuku pakeke ka taea te aukati mā ngā huringa oranga, ko ngā mate pukupuku embryonal te ahua he mahi koretake. Kaore i te puta mai i ngā take taiao, kai, mahi i te wā hapu.

Mō ngā whānau e mohio ana ki ngā mate ira e piki haere ai te tūponotanga, ka taea e te tohutohu ira te tuku i ngā korero nui mō ngā rautaki aroturuki me te kite wawe. Heoi, ahakoa ēnei take, kaore he huarahi ki te aukati i te tupu o ngā mate pukupuku.

Ko te mea nui rawa ka taea e koe ko te noho mōhio ki ngā tohu pea, te rapu awhina hauora wawe mena ka puta mai ngā awangawanga. Ko te kite wawe me te maimoatanga te taputapu pai rawa atu kei a tātou mō te whiwhi i ngā hua pai.

Me pēhea te whakatau i ngā mate pukupuku embryonal?

Ko te whakatau i ngā mate pukupuku embryonal e whakauru ana i ngā mahi maha me ngā rangahau whakaahua. Ka tīmata tō taote me te hītori hauora taipitopito me te whakamātau tinana, te aro nui ki te mahi neurological me ngā tohu katoa kua kitea e koe.

Ko te taputapu whakatau tino nui ko te rangahau MRI o te roro me te tuaiwi. Ka awhina tēnei whakaahua taipitopito i ngā taote ki te kite i te wāhi o te mate pukupuku, te rahi, te hononga ki ngā hanganga e karapoti ana. Ka whakamahia pea te rangahau CT i te tīmatanga, inā i ngā āhuatanga ohorere.

Mena ka tohu te whakaahua ki te mate pukupuku, ko te mahi e whai ake nei ko te biopsy, te tango rānei i te mate pukupuku. I te wā o tēnei mahi, ka tirotirohia ngā tauira pūtau i raro i te microscope hei whakatau i te momo mate pukupuku embryonal tika, hei whakarite i te maimoatanga tika.

Ka uru atu pea ngā whakamātau atu ki te lumbar puncture hei tirotiro i ngā pūtau mate pukupuku i roto i te wai tuaiwi, ngā whakamātau toto hei aromatawai i te hauora whānui, ngā whakamātau ira motuhake o te pūtau mate pukupuku. Ka awhina ēnei whakamātau ki te hanga i te whakaahua whānui o ngā āhuatanga o te mate pukupuku.

Ko te tukanga whakatau katoa e torutoru rā ki ngā wiki te roa, kei te uaua o te take. Ka pupuri tō rōpū hauora i a koe i te wā o tēnei tukanga, ka whakautu ki ngā pātai katoa kei a koe i te huarahi.

He aha te maimoatanga mō ngā mate pukupuku embryonal?

Ko te maimoatanga mō ngā mate pukupuku embryonal e whakauru ana i te whakakotahitanga o te pokanga, te chemotherapy, te maimoatanga radiation. Ko te mahere maimoatanga motuhake e whakawhirinaki ana ki te momo mate pukupuku, te wāhi, te rahi, te pakeke o te turoro, te hauora whānui.

Ko te pokanga te mahi tuatahi ina taea. Ko te whāinga ko te tango i te nui o te mate pukupuku i te huarahi haumaru i te wā e tiaki ana i te mahi noa o te roro. Kaore pea e taea te tango katoa i etahi wā nā te wāhi o te mate pukupuku, engari ko te tango wāhanga pea ka tino awhina.

Ko te chemotherapy e whai ake ana i te pokanga ki te whai i ngā pūtau mate pukupuku e toe ana. Ko ngā rongoā motuhake me te roa e whakawhirinaki ana ki te momo mate pukupuku me ngā take tūponotanga. Ko te nuinga o ngā tamariki e manawanui ana ki te chemotherapy, ahakoa ngā pānga pēnei i te ruaki, te ngenge, te piki o te tūponotanga mate he mea noa.

Koinei ngā mea pea kei roto i te mahere maimoatanga:

1. Te pokanga tuatahi ki te tango i te mate pukupuku
2. Te wā whakaora me te tiaki tautoko
3. Ngā huringa chemotherapy i roto i ngā marama maha
4. Te aroturuki auau me ngā rangahau MRI
5. Ngā ratonga whakaora mena e hiahiatia ana
6. Te tiaki whai muri i te wā roa

Ko te maimoatanga radiation e whakamahia ana i te tīpakanga, inā i ngā tamariki tino iti, nā te pānga pea ki te whanaketanga o te pūtau roro. Ina whakamahia, ka whakaritehia kia āta whai i te wāhi o te mate pukupuku i te wā e whakaiti ana i te pānga ki ngā pūtau hauora.

I te wā o te maimoatanga, ka whakautu te tiaki tautoko ki ngā pānga, ka tiaki i te kai, ka aukati i ngā mate, ka tautoko i te oranga whānui. Ka uru pea tenei ki ngā rongoā anti-nausea, te tautoko kai, te rongoā tinana.

Me pēhea te whakahaere i te tiaki i te kāinga i te wā maimoatanga?

Ko te whakahaere i te tiaki i te kāinga i te wā maimoatanga mate pukupuku embryonal e whakauru ana i te hanga i te taiao tautoko i te wā e whai ana i ngā aratohu a tō rōpū hauora. Ko tō mahi hei kaiwhakahaere he mea nui ki te awhina i te whiwhi i te hua pai rawa atu.

Ko te aukati mate ka waiho hei mea nui i te wā chemotherapy ina ngoikore te pūnaha mate. Ko te tikanga tenei ko te horoi ringa auau, te karo i ngā wāhi nui, te pupuri i ngā werohanga e tūtohutia ana e whakaaetia ana e tō rōpū oncology.

Ko ēnei ngā rautaki tiaki kāinga matua kia aro ai koe:

• Pupuri i te hauora pai me ngā wāhi noho ma
• Aroturuki i te pāmahana, te ripoata i ngā kirika atu
• Whakarite i te kai me te wai tika
• Whakahaere i ngā rongoā tika penei i te whakahau
• Aroturuki i ngā tohu me ngā pānga
• Pupuri i ngā mahinga moe auau
• Tuku tautoko ngākau me te noa ina taea

Ka uaua pea te kai i te wā maimoatanga, inā he raruraru te ruaki. Ko ngā kai iti, auau te mahi pai atu i ngā kai nui. Mahi tahi me tetahi kaiwhakaako kai mena e hiahiatia ana kia whakarite i te kai me te kai matū tika.

Pupuri i te rārangi o ngā tohu, ngā rongoā, me ngā awangawanga. Ka awhina tēnei korero i tō rōpū hauora ki te whakarite i te maimoatanga mena e hiahiatia ana, ki te hopu i ngā raruraru pea i te tīmatanga.

Kaua e whakaroa ki te whakapiri atu ki tō rōpū hauora me ngā pātai, ngā awangawanga. Ka pai ake te whakarongo atu ki a koe mō tetahi mea iti atu i te ngaro i tetahi tohu nui.

Me pēhea te whakarite mō ngā whakaritenga taote?

Ko te whakarite mō ngā whakaritenga taote i te wā maimoatanga mate pukupuku embryonal e awhina ana ki te whakarite ka whiwhi koe i te hua pai rawa atu i ia haerenga, kaore e wareware i ngā pātai nui, ngā awangawanga. Ko te whakarite pai e awhina ana i tō rōpū hauora ki te tuku i te tiaki pai rawa atu.

I mua i ia whakaritenga, tuhia ngā tohu, ngā huringa katoa kua kitea e koe mai i te whakaritenga whakamutunga. Whakauruhia ngā kōrero mō te wā, te kino, me tetahi mea e pai ake ana, e kino ake ana rānei ngā tohu. Ka awhina tēnei korero i ngā taote ki te aroturuki i te ahunga whakamua, ki te whakarite i te maimoatanga mena e hiahiatia ana.

Kawe mai i te rārangi katoa o ngā rongoā, tae atu ki ngā rongoā-ā-kaute me ngā taapiri. Kawe mai hoki ngā rēkōta hauora, ngā hua whakamātau mai i ētahi atu kaiwhakarato, inā kei te kite koe i ngā tohunga maha.

Koinei ngā mea hei kawe mai ki ia whakaritenga:

• Te rārangi tohu, ngā tuhipoka
• Te rārangi rongoā o nāianei
• Ngā kāri inihua me te whakamōhiotanga
• Te rārangi pātai me ngā awangawanga
• Ngā hua whakamātau, whakaahua o mua
• Ngā korero whakapā āwhina

Whakaritea ngā pātai motuhake mō te ahunga whakamua o te maimoatanga, ngā pānga, ngā herenga mahi, me te aha e tatari ana i muri mai. Kaua e manukanuka ki te maha o ngā pātai - e hiahia ana tō rōpū hauora kia mōhio koe.

Whakaarohia te kawe mai i tetahi hoa whakawhirinaki, mema whānau ki ngā whakaritenga, inā mō ngā kōrero nui mō ngā mahere maimoatanga. Ka taea e rātou te awhina i a koe ki te mahara ki ngā korero, ki te tuku tautoko ngākau.

Mena ka taea, tae atu i etahi meneti i mua i te whakaoti i ngā pepa, te kohikohi i ō whakaaro i mua i te tīmatanga o te whakaritenga.

He aha te mea nui mō ngā mate pukupuku embryonal?

Ko te mea nui rawa kia mārama mō ngā mate pukupuku embryonal ko te mea ahakoa he āhuatanga nui e hiahia ana ki te maimoatanga wawe, he maha ngā tamariki e whiwhi ana i ngā hua pai me te tiaki tika. He tino taea te maimoatanga o ēnei mate pukupuku onge, inā ina kitea wawe.

Kia mahara ko te whai i te mate pukupuku embryonal kaore e tikanga kua he te mahi a koe, kua taea te aukati. Ka tupu ēnei mate pukupuku i te koretake mai i ngā huringa ira i te wa o te whanaketanga o mua, kaore he he o tetahi.

Kua pai ake te maimoatanga i ngā tau kua pahure, a he maha ngā tamariki e ora ana i te ora noa, hauora i muri i te maimoatanga. Ahakoa ka uaua te haerenga, kaore koe i te kotahi - he rōpū hauora whānui me ngā ratonga tautoko kei reira hei awhina i a koe i ia kaupae.

Aro atu ki te tango i ngā mea kotahi te rā, te mahi tahi me tō rōpū hauora. Pātaihia ngā pātai, rapu tautoko ina hiahia koe, kia mahara ko te tumanako me te whakaute ka taea te hoa kaha i tēnei haerenga.

Ngā pātai e ui pinepinetia ana mō ngā mate pukupuku embryonal

He mate pukupuku katoa ngā mate pukupuku embryonal?

Ae, ko ngā mate pukupuku embryonal he mate pukupuku kino, mate pukupuku. Heoi, kaore tenei e tikanga kaore e taea te maimoatanga pai. He maha ngā mate pukupuku embryonal e whakautu pai ana ki te maimoatanga, kua pai ake te whakatau i ngā huarahi hauora hou. Ko te mea nui ko te whiwhi i te maimoatanga tika, tika mai i tetahi rōpū oncology tamariki whai wheako.

E hia te roa o te maimoatanga mō ngā mate pukupuku embryonal?

He rerekē te roa o te maimoatanga kei te momo mate pukupuku, te mahere maimoatanga, engari ko te nuinga mai i te 6 marama ki te 2 tau. Kei roto i tēnei te pokanga, ngā huringa chemotherapy, ngā wā whakaora. Ka tuku tō rōpū oncology i tetahi wā motuhake e whakawhirinaki ana ki tō āhuatanga motuhake. Kia mahara ko te maimoatanga roa kaore e tikanga he hua kino - e whakaatu ana i te huarahi tika ki te whakarite i ngā hua pai rawa atu.

Ka hoki mai ngā mate pukupuku embryonal i muri i te maimoatanga?

Ahakoa he mea pea te hokinga mai me tetahi mate pukupuku, he maha ngā tamariki e pā ana ki ngā mate pukupuku embryonal e kore he mate pukupuku i muri i te maimoatanga pai. Ka aroturuki tata tō rōpū hauora me ngā whakaritenga whai muri, ngā rangahau whakaahua hei kite wawe i ngā huringa. Ko te tūponotanga o te hokinga mai e rerekē ana i te momo mate pukupuku me ētahi atu take, ka taea e tō taote te kōrero atu ki a koe.

Ka taea e taku tamaiti te haere ki te kura i te wā maimoatanga?

He maha ngā tamariki ka taea te haere tonu ki tētahi momo kura i te wā maimoatanga, ahakoa pea me whakarerekē. Kei roto i ngā kōwhiringa te kura i te hōhipera, te ako i te kāinga, te haere ki te kura i whakarerekētia ina āhei te mahi pūnaha mate. Ka mahi tahi tō rōpū hauora me koe me te kura ki te hanga i tetahi mahere mātauranga haumaru, tika e whakarite ana i te hauora o tō tamaiti i te wā e pupuri ana i ngā wāhi ako.

He aha ngā ratonga tautoko kei reira mō ngā whānau e whakahaere ana i ngā mate pukupuku embryonal?

Ko ngā ratonga tautoko whānui e wātea ana i ngā pokapū mate pukupuku tamariki, tae atu ki ngā kaimahi pāpori, ngā tohunga ora tamariki, ngā tohunga kai, ngā tohunga hauora hinengaro. He maha ngā hōhipera e tuku ana i ngā rōpū tautoko whānau, te tohutohu putea, ngā hononga ki ngā rauemi hapori. Kaua e whakaroa ki te ui ki tō rōpū hauora mō ngā ratonga e wātea ana - kua hangaia kia awhina i tō whānau katoa i tēnei wā uaua.