He aha te Esthesioneuroblastoma? Tohutohu, Take, me te Maimoatanga

Ko te esthesioneuroblastoma he momo mate pukupuku onge noa iho e tupu ana i roto i to kōhao ihu, ina koa i te wahi o runga ka tīmata ai to pūmanawa hongi. Ka tupu tēnei mate pukupuku mai i ngā kōeke o te pūnaha hongi e āwhina ana i a koe ki te kite i ngā kakara.

Ahakoa ka rongo pea te ingoa he wehi, ko te mārama ki tēnei āhuatanga ka taea te āwhina i a koe ki te mohio ki ngā tohu pea, me te mohio ki te wā hei kimi i te tiaki hauora. Ka pa tēnei mate pukupuku ki te iti iho i te 1 tangata ia miriona ia tau, e tino onge ana. Ko te rongo pai, me te tautuhi tika me te maimoatanga, he maha ngā tāngata e ora ana i tēnei āhuatanga ka whiwhi hua pai.

He aha ngā tohu o te esthesioneuroblastoma?

Ko ngā tohu o te esthesioneuroblastoma i te tīmatanga ka rite ki ngā raruraru o te kōhao ihu noa iho, koia tēnei te take ka uaua te tautuhi i tēnei mate pukupuku i te tīmatanga. Ka kite pea koe i ngā huringa e rite ana ki te mate huka roa, ki te mate kōhao ihu rānei e kore e ngaro.

Ko ēnei ngā tohu tino noa ka pā atu ki a koe:

• Te ngaro o te hongi (anosmia) e kore e pai ake i te wā
• Te kōhao ihu kōpuku i tetahi taha e mau tonu ana
• Ngā toto ihu e tupu ana i te maha, kāore rānei he take mārama
• Te ihu rewa me te wai mā, te toto rānei
• Te mamae o te mata, te pehanga rānei i te taha o to ihu me ō kanohi
• Ngā mamae o te upoko e tino maha ake ana, e kino ake rānei
• Ngā huringa i tō tirohanga, te tirohanga rua rānei

I te nui haere o te mate pukupuku, ka kite pea koe i ngā tohu āwangawanga atu. Ka uru atu ēnei ki te pupuhi o tetahi kanohi, ngā huringa i tō reka, te ngenge rānei o tō mata. Ka rongo hoki ētahi i te ngawari o te ihu e kore e ngaro me ngā maimoatanga kōhao ihu noa.

I etahi wā onge, ki te horapa te mate pukupuku ki ngā wāhi tata, ka kite pea koe i ngā tohu penei i te uaua ki te horomia, ngā huringa i tō reo, ngā whekau lymph pupuhi rānei i tō kaki. Ka puta ngā tohu i ngā wāhanga whakamutunga o te mate.

He aha ngā take o te esthesioneuroblastoma?

Ko te take tika o te esthesioneuroblastoma kāore ano kia mohiotia e ngā kairangahau hauora. Kāore i rite ki ētahi mate pukupuku he tohu tūponotanga mārama, ka puta mai tēnei mate pukupuku motuhake kahore he whakaohooho motuhake e taea e tātou te tautuhi.

E whakapono ana ngā kārehu ka tīmata tēnei mate pukupuku ina tīmata ngā pūtau i roto i tō epithelium hongi (te kōeke e kawea ana te hongi) ki te tupu kahore he tikanga. Ko ēnei pūtau te kawenga noa mō te kite i ngā kakara me te tuku tohu ki tō roro, engari he mea ka puta he maha rawa te tupu.

Kua titiro etahi kairangahau ki te mea pea he pānga o te whakamahinga i etahi matū, i etahi āhuatanga taiao rānei. Heoi, kāore he hononga tino kua whakatūria. Ko te tikanga tenei, ko te whanake o te esthesioneuroblastoma ehara i te mea ka taea e koe te aukati ma te whakaaro noho ranei ma te karo i ngā whakamahinga motuhake.

Ko te onge o tēnei mate pukupuku te mea ka uaua te ako i ōna take katoa. Ko te nuinga o ngā take ka puta noa iho, ko te tikanga ka puta noa atu i te rere i roto i ngā whānau, i te hono atu rānei ki ngā rerekētanga ira e kake ana.

Nō hea te kite i te taote mō ngā tohu esthesioneuroblastoma?

Me whakapiri atu koe ki tō taote ki te pā atu ki a koe ngā tohu ihu e mau tonu ana, kāore e pai ake me ngā maimoatanga noa, te wā rānei. Kia aro nui ki ngā tohu e pā ana ki tetahi taha o tō ihu, o tō mata rānei.

Ina koa, whakapiri atu ki tō kaiwhakarato hauora ki te pā atu ki a koe:

• Te ngaro katoa o te hongi e roa atu ana i te rua wiki
• Ngā toto ihu maha kahore he take mārama
• Te kōhao ihu kōpuku e mau tonu ana i tetahi taha
• Te mamae o te mata e kore e whakautu ki ngā rongoā kore-whakahaunga
• Ngā huringa i tō tirohanga, i te tuunga o te kanohi rānei
• Ngā mamae o te upoko e kino ake ana, e maha ake rānei

Ahakoa ko ēnei tohu te nuinga o te wā ka puta mai i ngā āhuatanga iti ake penei i ngā mate kōhao ihu, i ngā mate pāwera rānei, he mea nui kia arotakehia ki te mau tonu. Ko te kite wawe i tetahi raru kōhao ihu, mate pukupuku onge rānei, te nuinga o te wā ka ārahi ki ngā hua pai ake o te maimoatanga.

Whakaarohia ō whakaaro mō tō tinana. Ki te rereke te mea, he he rānei, ina koa ki te kore ngā tohu e whakautu ki ngā maimoatanga noa, he mea tika tonu te kimi arotake hauora mō te rangimarie o te ngākau.

He aha ngā tūponotanga mō te esthesioneuroblastoma?

Kāore i rite ki te maha atu o ngā mate pukupuku, kāore he tūponotanga tino whakatūria mō te esthesioneuroblastoma e whakapiki ana i tō tūponotanga ki te whanake i te mate. Ka rongo pea tenei he awangawanga, engari ko te tikanga hoki kāore pea koe i taea te mahi i tetahi mea hei aukati i taua mea.

Ko te tau te tauira kotahi e tino rite ana, me te nuinga o ngā take e puta ana i ngā tāngata kei waenga i te 40 me te 70 tau te pakeke. Heoi, ka taea e tēnei mate pukupuku te pā ki ngā tāngata o tetahi tau, tae atu ki ngā tamariki me ngā tāne taitamariki, ahakoa he iti ake tēnei.

Kua whakaaro etahi rangahau pea ka nui ake te tūponotanga o ngā tāne ki te whanake i tēnei mate pukupuku i ngā wāhine, engari he iti te rerekētanga. Ko te wāhi whenua, te mahi, me ngā āhuatanga noho kāore e āhua nui te pānga ki tō tūponotanga.

Ko te whai i te hītori o ngā polyps ihu, te sinusitis roa, etahi atu āhuatanga ihu rānei kāore e whakapiki ake i tō tūponotanga ki te whanake i te esthesioneuroblastoma. Ko ēnei ngā āhuatanga motuhake me ngā take take motuhake.

He aha ngā raruraru pea o te esthesioneuroblastoma?

Ko te mārama ki ngā raruraru pea ka taea te āwhina i a koe ki te mataara mō te aha, me te take he mea nui te maimoatanga tere. Ko te wāhi o tēnei mate pukupuku tata ki ngā hanganga nui i roto i tō upoko te mea nui te whakauru wawe.

Ka taea te puta mai ngā raruraru rohe ina tupu te mate pukupuku ka pā ki ngā hanganga tata:

• Te ngaro tonu o te hongi ki te pakaru ngā pūnaha hongi
• Ngā raruraru tirohanga ki te horapa te mate pukupuku ki ō kanohi
• Te ngenge o te mata, te mamae rānei mai i te pānga o ngā pūnaha nerve
• Ngā mate kōhao ihu roa mai i te aukati i te whakaheke
• Ngā huringa i te reka, e hono tata ana ki te hongi

Ka taea te whanake i ngā raruraru nui ake ki te horapa te mate pukupuku ki ētahi atu wāhi. Ka horapa pea te mate pukupuku ki roto i ngā kōeke o tō roro, ahakoa he iti ake tēnei me te kite wawe me te maimoatanga. Ina puta tēnei, ka kite pea koe i ngā mamae o te upoko nui ake, ngā hopu, ngā huringa rānei i te mahi hinengaro.

I etahi wā onge, ka taea e te esthesioneuroblastoma te horapa (horapa) ki ngā wāhi tawhiti o tō tinana, tae atu ki ngā whekau lymph, ngā pūkahukahu, ngā wheua rānei. Ko te tikanga ka puta anake i ngā take whakamutunga, i te kore rānei e tautuhia te mate pukupuku mō ngā wā roa.

Ko te rongo pai, me te maimoatanga tika, ka taea te aukati, te whakahaere rānei i te maha o ēnei raruraru. Ka mahi tahi tō rōpū hauora ki te whakaiti i ngā tūponotanga i te maimoatanga i te mate pukupuku.

Me pēhea te tautuhi i te esthesioneuroblastoma?

Ko te tautuhi i te esthesioneuroblastoma he maha ngā mahi e hiahiatia ana, na te mea ka rite ōna tohu ki ngā āhuatanga noa ake. Ka tīmata tō taote me te tirotiro tika i tō ihu me ō kōhao ihu ki te rapu i ngā tupu, i ngā huringa rānei.

Ko te tukanga tautuhi te nuinga o te wā ka uru atu ngā rangahau whakaahua ki te tiki i te whakaahua mārama o te mea e puta ana i roto i tō kōhao ihu. Ka taea e te CT scan te whakaatu i te rahi me te wāhi o ngā mate pukupuku, ka homai e te MRI ngā whakaahua taipitopito o ngā kōeke ngawari ka taea te āwhina ki te tautuhi mehemea kua horapa te mate pukupuku ki ngā wāhi tata.

Ka tino mahi tō taote i te endoscopy ihu, e uru ana ki te whakauru i te pūtau angiangi, ngawari me te kamera ki tō ihu. Ka taea e tēnei te kite tika i te mate pukupuku me te tango i te tauira kōeke iti (biopsy) hei tirotiro i raro i te microscope.

Ko te biopsy te mea nui mō te whakau i te tautuhi. Ka tirotiro te pathologist i te tauira kōeke ki te tautuhi i te momo pūtau motuhake me te whakau mehemea he mate pukupuku.

Ina whakau te tautuhi, ka tūtohutia pea e tō rōpū hauora ngā karaiti atu hei tirotiro mehemea kua horapa te mate pukupuku ki ētahi atu wāhi o tō tinana. Ka āwhina tēnei tukanga whakatūnga ki te tautuhi i te huarahi maimoatanga pai mō tō āhuatanga motuhake.

He aha te maimoatanga mō te esthesioneuroblastoma?

Ko te maimoatanga mō te esthesioneuroblastoma te nuinga o te wā ka uru atu he huinga o ngā huarahi i hangaia hei tango i te mate pukupuku me te aukati i te hokinga mai. Ko te mahere maimoatanga motuhake e whakawhirinaki ana ki te rahi me te wāhi o tō mate pukupuku, me te mea kua horapa rānei.

Ko te pokanga te nuinga o te wā te maimoatanga matua mō tēnei momo mate pukupuku. Ka mahi tō taote pokanga ki te tango i te mate pukupuku katoa i te tiaki i te nui o ngā kōeke noa me te mahi.

Ko te rongoā radiation te nuinga o te wā e whakamahia ana i muri i te pokanga hei whakangaro i ngā pūtau mate pukupuku e toe ana kahore pea i kitea i te wā o te mahi. Ka whakamahi tēnei maimoatanga i ngā hiwi kaha te kaha e tohu tika ana ki te wāhi mate pukupuku hei whakaiti i te pakaru ki ngā kōeke hauora.

Ka uru pea hoki tō mahere maimoatanga ki:

• Te chemotherapy, ina koa mō ngā mate pukupuku nui ake, ki te horapa rānei te mate pukupuku
• Ngā rongoā whakaeke e whakaeke ana i ngā āhuatanga motuhake o te pūtau mate pukupuku
• Te immunotherapy hei āwhina i tō pūnaha mate ki te whawhai i te mate pukupuku
• Ngā ratonga whakaora hei āwhina i ngā huringa mahi

Ka rongo pea te tukanga maimoatanga he nui rawa, engari ka arataki tō rōpū hauora i a koe i ia kaupae. Ka whakamārama rātou he aha te take i tūtohuhia ai ia maimoatanga me te aha ka tumanakohia e koe i te wā o te tukanga.

Me pēhea te whakahaere i ngā tohu i te wā o te maimoatanga esthesioneuroblastoma?

Ko te whakahaere i ngā tohu me ngā pānga i te wā o te maimoatanga ka taea te āwhina i a koe ki te pai ake te rongo me te pupuri i tō kounga ora. Ka homai e tō rōpū hauora ngā aratohu motuhake e whakawhirinaki ana ki tō mahere maimoatanga me ō hiahia motuhake.

Mō te kōhao ihu kōpuku me te pehanga kōhao ihu, ka taea e ngā horoi saline ngawari te āwhina i te pupuri i ō ara ihu makuku me te mārama. Ka tūtohu pea tō taote i ngā whakamahinga ihu motuhake, i ngā rongoā rānei hei whakahaere i te mumura me te mamae.

Ki te pā atu ki a koe te ngaro o te hongi, kia aro nui ki te ora kai, na te mea kaore pea koe e taea te kite i te kai pirau ma te kakara. Whakamahia ngā rā paunga mā te atawhai, whakaarohia te kai tahi me ētahi atu e taea te āwhina ki te tautuhi i ngā take ora kai.

Ko ēnei ētahi o ngā tikanga whakamarie whānui e taea te āwhina:

• Whakamahia he humidifier hei pupuri i te hau makuku, ina koa i te wā e moe ana
• Kia tino inu wai hei āwhina i te whakaiti i ngā wai ihu
• Kai iti, maha ngā kai ki te pānga o ngā huringa reka ki tō hiahia kai
• Okioki ina rongo koe i te ngenge, ina koa i te wā o te maimoatanga kaha
• Ko te whakakori ngawari e whakaaetia ana e tō taote ka taea te āwhina i te pupuri i te kaha

Kaua e whakaroa ki te korero ki tō rōpū hauora mō ngā tohu, ngā āwangawanga rānei. Ka taea e rātou te whakarite i ngā maimoatanga, te homai rānei i ngā rongoā atu hei āwhina i a koe ki te pai ake te rongo i te wā o te tukanga maimoatanga.

Me pēhea te whakarite mō tō whakaritenga taote?

Ko te whakarite mō tō whakaritenga ka taea te āwhina i te whakarite ka whiwhi koe i te nuinga o tō wā me tō kaiwhakarato hauora. Tīmata ma te tuhi i ō tohu katoa, tae atu ki te wā i tīmata ai rātou me te āhua o te huringa i te wā.

Kia mau ki ngā kōrero motuhake mō ō tohu, penei i te pānga ki tetahi taha, ki ngā taha e rua rānei o tō ihu, te mea e pai ake ana, te kino ake rānei, me ngā tauira kua kitea e koe. Ka āwhina tēnei mōhiohio i tō taote ki te mārama pai ake i tō āhuatanga.

Kawe mai he rārangi o ngā rongoā katoa e inu ana koe i tēnei wā, tae atu ki ngā rongoā kore-whakahaunga me ngā taapiri. Waiho hoki he whakarapopototanga o ngā maimoatanga kua whakamātauhia e koe mō ō tohu ihu me te pai o te mahi.

Whakaarohia te kawe mai i te mema whānau, i te hoa rānei ki tō whakaritenga. Ka taea e rātou te āwhina i a koe ki te mahara ki ngā mōhiohio i kōrerotia i te wā o te haerenga me te whakarato tautoko ngākau ki te whiwhi koe i ngā pārongo āwangawanga.

Tuhia ngā pātai e hiahia ana koe ki te ui ki tō taote i mua. Ka hiahia pea koe ki te mohio mō ngā kaupae e whai ake nei, ngā whakamātautau pea e hiahiatia ana, te aha rānei ka tumanakohia i te wā o te tukanga tautuhi. Ko te tuhi i ēnei pātai ka whakarite kaore koe e wareware i a rātou i te wā o te whakaritenga.

He aha te mea nui mō te esthesioneuroblastoma?

Ko te esthesioneuroblastoma he momo mate pukupuku onge engari ka taea te whakaora e pā ana ki te kōhao ihu. Ahakoa ka rongo pea te tautuhi he wehi, ko ngā whakapainga i ngā tikanga pokanga me ngā whiringa maimoatanga kua pai ake ngā hua mō ngā tāngata e pā ana ki tēnei āhuatanga.

Ko te mea nui rawa hei mahara ko ngā tohu ihu e mau tonu ana e tika ana kia arotakehia e te hauora, ina koa ki te kore e whakautu ki ngā maimoatanga noa, ki te pā rānei ki tetahi taha o tō ihu. Ko te kite wawe me te maimoatanga te nuinga o te wā ka ārahi ki ngā hua pai ake.

Kāore koe i te kotahi i tēnei haerenga. Kei roto i tō rōpū hauora ngā tohunga e mārama ana ki tēnei āhuatanga onge me te wheako ki te maimoatanga. Ka mahi tahi rātou me koe ki te whakawhanake i te mahere maimoatanga e whakautu ana ki tō āhuatanga motuhake i te tautoko i tō oranga pai katoa.

Kia hono tonu ki tō rōpū hauora i te wā o te tukanga, kaua hoki e whakaroa ki te ui i ngā pātai, ki te whakaputa i ngā āwangawanga rānei. Ko te mārama ki tō āhuatanga me ngā whiringa maimoatanga ka taea te āwhina i a koe ki te rongo atu i te whakapono me te mana whakahaere i tēnei wā uaua.

Ngā pātai e ui pinepinetia ana mō te esthesioneuroblastoma

Q.1 He kake te esthesioneuroblastoma?

Kāo, kāore te esthesioneuroblastoma e kake. Ko te nuinga o ngā take ka puta noa atu kahore he hītori whānau o te mate. Kāore he mōhiohio e kake ana tēnei mate pukupuku i roto i ngā whānau, i te puta mai rānei i ngā rerekētanga ira e kake ana, no reira kāore ō mema whānau i te tūponotanga nui na tō tautuhi.

Q.2 Ka taea te whakaora katoa te esthesioneuroblastoma?

Ae, ka taea te whakaora i te maha o ngā tāngata e pā ana ki te esthesioneuroblastoma, ina koa ina kite wawe te mate pukupuku ka maimoatia tere. Ko te reiti whakaora e whakawhirinaki ana ki ngā take penei i te rahi o te mate pukupuku, te wāhi, me te mea kua horapa rānei. Me ngā huarahi maimoatanga hou e whakakotahi ana i te pokanga me te rongoā radiation, he maha ngā turoro e whiwhi whakaora roa.

Q.3 Ka ngaro tonu taku pūmanawa hongi?

Ka taea te ngaro o te hongi te mea tūturu, te mea tonu rānei e whakawhirinaki ana ki te nui o te mate pukupuku me te maimoatanga e hiahiatia ana. Ka ora mai ētahi i te mahi hongi wāhanga, te katoa rānei i muri i te maimoatanga, ka rongo pea ētahi i ngā huringa roa. Ka taea e tō taote te kōrero mō te tūponotanga o te ora mai o te hongi e whakawhirinaki ana ki tō āhuatanga motuhake me tō mahere maimoatanga.

Q.4 E hia te roa o te maimoatanga?

Ko te roa o te maimoatanga e rerekē ana e whakawhirinaki ana ki tō take motuhake, engari ko te nuinga o te wā mai i ngā wiki torutoru ki ngā marama torutoru. Ka hiahia pea te pokanga ki te noho whare hauora mō ngā rā torutoru, ka whai ake ngā wiki torutoru o te rongoā radiation ki te hiahiatia. Ka homai e tō rōpū hauora he wa wā motuhake e whakawhirinaki ana ki tō mahere maimoatanga motuhake.

Q.5 He aha te reiti ora mō te esthesioneuroblastoma?

Ko te reiti ora mō te esthesioneuroblastoma he pai te āhua, me te maha o ngā rangahau e whakaatu ana i ngā reiti ora 5-tau o te 70-80% neke atu rānei ina kite wawe. Ko ngā take e pā ana ki ngā hua ko te wāhi o te mate pukupuku i te tautuhi, tō hauora whānui, me te pai o te whakautu o te mate pukupuku ki te maimoatanga. Ka taea e tō taote te homai mōhiohio motuhake ake e whakawhirinaki ana ki ō āhuatanga motuhake.