He aha te Mate Wera o te Moana o te Whenua? Tohutohu, Take, me te Maimoatanga

Ko te Mate Wera o te Moana o te Whenua (FMF) tētahi āhuatanga ira tuku iho e pā ana ki ngā wāhanga o te kirika me te mumura puta noa i tō tinana. Whakaarohia ko tō pūnaha mate e pohehe ana, ā, e hanga ana i te mumura ahakoa kāore he tūkino pono hei whawhai.

Ko te āhuatanga nei te nuinga o te hunga e pā ana ki te iwi o te Moana, te Raki o Ahia, te Āpirika ki te Raki rānei. Ka puta mai ngā wāhanga ka ngaro atu, engari mā te maimoatanga tika, ka taea e te nuinga o te hunga e pā ana ki te FMF te noho ora noa, hauora.

He aha te Mate Wera o te Moana o te Whenua?

Ko te FMF tētahi mate āhuatanga whakaheke ira e pā ana ki te whakahaere a tō tinana i te mumura. Kāore i rite ki ngā mate whakaheke ā-tinana, kei reira te pūnaha mate e whakaeke ana i ngā kiko hauora, ko ngā āhuatanga whakaheke ā-tinana e pā ana ki te tukanga mumura o tō tinana e mau tonu ana i te "wāhi".

I whiwhi te ingoa o te āhuatanga nei nā te mea i kite tuatahitia i roto i ngā whānau mai i ngā rohe o te Moana. Heoi, e mohio ana tātou inaianei ka taea te pā ki te iwi mai i ngā momo tūāhua, ahakoa kei te noho tonu te nuinga i ētahi taupori.

I te wā o te wāhanga FMF, ka nui rawa te hua o tō tinana i te pūmua e whakaoho ana i te mumura. Ka arahi tenei ki te pupuhi mamae i roto i tō kopu, uma, hononga, i ētahi atu wāhi rānei. I waenganui i ngā wāhanga, ka pai tonu koe, hauora.

He aha ngā tohu o te Mate Wera o te Moana o te Whenua?

Ka puta mai ngā tohu FMF ka tere te puta mai, ā, ka taea te whakaaro kino ki a koe mō ētahi rā i mua i te ngaro rawa atu. Ko te nuinga o te iwi e pā ana ki te wāhanga tuatahi i te tamarikitanga, i te taitamarikitanga rānei, ahakoa ka tīmata ngā tohu i tetahi tau.

Koinei ngā tohu tino noa ka pā atu ki a koe i te wā o te wāhanga FMF:

• Te kirika teitei (te nuinga o te 101-104°F) e roa ana i te 1-3 rā
• Te mamae o te kopu kaore e taea te whakamārama
• Te mamae o te uma e kino ake ana i te manawa hohonu
• Te mamae o te hononga me te pupuhi, ina koa i ngā turi, ngā waewae, i ngā hope rānei
• Te kiri whero, mamae i runga i ō waewae
• Te mamae o te uaua puta noa i tō tinana

Ko te mea whakahirahira mō te FMF ko te rerekētanga o ngā tohu i waenga i te iwi, ā, i waenga hoki i ngā wāhanga i roto i te tangata kotahi. Ko ētahi o te iwi e whiwhi ana i te mamae o te kopu, ko ētahi e whiwhi ana i ngā tohu hononga, uma rānei.

Ko ngā tohu kaore e tino kitea ka uru atu ngā mamae o te mahunga, te ngenge e roa atu ana i te wāhanga, ā, kaore e tino kitea, te mumura huri noa i te ngakau, i te roro rānei. Ko ēnei wāhanga e ngaro ana i roto i ētahi rā, ka waiho koe i te ahua noa tae noa ki te wāhanga e whai ake nei.

He aha ngā take o te Mate Wera o te Moana o te Whenua?

Ko te FMF te take o ngā rerekētanga i roto i te ira MEFV, e whakarato ana i ngā tohutohu mō te hanga i te pūmua e kiia nei ko te pyrin. Ko te pūmua nei te mahi rite ki te kaitiaki haumaru i roto i ō pūtau, hei awhina i te whakahaere i ngā whakautu mumura.

Ina he rerekētanga te ira MEFV, ka whakaputa i te pūmua pyrin he ngoikore kaore e taea te whakahaere tika i te mumura. Ka arahi tenei ki ngā wāhanga kei reira te whakaoho o te mumura kaore he tūkino pono, e puta ai ngā tohu mamae e pā ana ki a koe.

Ka whiwhi koe i te FMF mai i ō mātua i te mea e kiia ana e ngā tākuta he "autosomal recessive". Ko te tikanga tenei me whiwhi koe i te kape ira rerekē mai i tō whaea me tō papa hei whakawhanake i te āhuatanga. Ki te whiwhi koe i te kape ira rerekē kotahi anake, ko koe te kaikawe kaore he tohu.

Ko te āhuatanga nei te nuinga o te iwi o Āmenia, Tūriki, Arapi, Hūrai (ina koa te Sephardic), me ētahi atu tūāhua o te Moana. Heoi, kua whakakitea e te whakamātautau ira ka taea te puta mai te FMF i te iwi mai i ngā momo tūāhua rerekē.

Nōhea te haere ki te tākuta mō te Mate Wera o te Moana o te Whenua?

Me whakapiri atu koe ki tō tākuta ki te pā atu ki a koe ngā wāhanga e kore e taea te whakamārama o te kirika me te mamae o te kopu, o te uma, o te hononga rānei. Ko te nuinga o te iwi e pā ana ki te FMF e whakaaro ana he appendicitis rānei tētahi āhuatanga koi rānei, nā te kaha o te mamae.

Rapua te awhina hauora tere ki te puta mai te mamae o te kopu kaha me te kirika, nā te mea ka taea tenei te tohu i te āhuatanga kino e hiahia ana ki te maimoatanga tere. He pai tonu te tupato ki ngā tohu o te kopu kaha.

Whakapiri atu hoki ki tō kaiwhakarato hauora ki te kite koe i te tauira o ngā tohu e puta mai ana, e ngaro atu ana rānei kaore he whakamārama. Pupurihia he tātai tohu e tuhi ana i te wā e puta mai ana ngā wāhanga, te roa o te roa, me ngā tohu e pā ana ki a koe. Ka tino awhina tēnei mōhiohio ki tō tākuta.

Ki te whai koe i te hītori whānau o te FMF, ā, ka tīmata te whiwhi i ngā tohu rite, whakahuahia tēnei hononga ki tō tākuta tonu. Ka taea e te hītori whānau te tere ake i te tukanga whakamātautau.

He aha ngā take morearea mō te Mate Wera o te Moana o te Whenua?

Ko te take morearea nui rawa atu mō te FMF ko te whai mātua e kawe ana i ngā rerekētanga ira, ina koa ki te mea he kaikawe ngā mātua e rua. Ko tō tūāhua iwi hoki e tino pā ana ki te whakatau i tō taumata morearea.

Koinei ngā take morearea matua e whakapiki ana i tō tūmanako ki te whakawhanake i te FMF:

• Te tūāhua o te Moana, te Raki o Ahia, te Āpirika ki te Raki rānei
• Te hītori whānau o te FMF, i ngā kirika e kore e taea te whakamārama rānei
• Ko ngā mātua e rua he kaikawe o ngā rerekētanga ira MEFV
• Te iwi o Āmenia, Tūriki, Arapi, Hūrai Sephardic rānei
• Ngā mātua e hono ana ki a rātou (consanguinity)

He mea nui te mārama kei te mea kei a koe ēnei take morearea, ehara i te tikanga ka whakawhanake koe i te FMF. Ko te nuinga o te iwi e whai ana i te tūāhua o te Moana kaore e whakawhanake i te āhuatanga, ā, ko ētahi o te iwi kaore he take morearea e kitea ana ka taea tonu te pā.

Kāore te tau hei take morearea, nā te mea he ira te FMF, engari ko ngā tohu e tino puta mai ana i te tamarikitanga, i te taitamarikitanga rānei. Heoi, kāore ētahi o te iwi e pā ana ki to rātou wāhanga tuatahi tae noa ki te wā muri.

He aha ngā raruraru pea o te Mate Wera o te Moana o te Whenua?

Ahakoa ko ngā wāhanga FMF anō he wā poto, ā, ka ngaro atu anō, ka taea e te āhuatanga te arahi ki ngā raruraru roa, kino ki te kore e maimoatia. Ko te raruraru tino awangawanga ko te whakawhanake i te amyloidosis, tētahi āhuatanga kei reira ngā pūmua rerekē e hanga ana i roto i ō kiko.

Koinei ngā raruraru pea ka puta mai me te kore e maimoatia te FMF:

• Amyloidosis e pā ana ki ngā whatukuhu, ngakau, i ētahi atu kiko rānei
• Te mate whatukuhu roa, te korenga o te whatukuhu rānei
• Ngā raruraru kore tamariki i roto i ngā tāne me ngā wāhine
• Te mumura hononga roa me te mate pūngāwerewere
• Ngā hononga i roto i te kopu mai i te mumura e puta ana

Ko te amyloidosis te mea tino awangawanga nā te mea ka taea te kino i ō whatukuhu mō ake tonu atu, ā, ka mate pea. Ka puta mai tēnei ina ka whakaputa tō tinana i ngā pūmua rerekē e whakatakoto ana i roto i ō kiko i te wā roa.

Ko te rongo pai ko te maimoatanga tika me te rongoā ka taea te aukati i ēnei raruraru i te nuinga o te iwi. Ko te tirotiro tonu e tō rōpū hauora e awhina ana ki te hopu i ngā tohu o mua o ngā raruraru i mua i te riro hei raruraru nui.

Me pēhea te whakamātautau i te Mate Wera o te Moana o te Whenua?

Ka uaua te whakamātautau i te FMF nā te mea kāore he whakamātautau kotahi e whakau ana i te āhuatanga. Ko tō tākuta te nuinga o te tīmatanga mā te tango i te hītori taipitopito o ō tohu me tō papamuri whānau, te arotahi ki te tauira o ō wāhanga.

Ko te whakamātautau ira te huarahi tino whakawhirinaki ki te whakamātautau i te FMF. Kei roto i tēnei te whakamātautau toto ngāwari e titiro ana ki ngā rerekētanga i roto i te ira MEFV. Heoi, kāore ngā tangata katoa e whai ana i te FMF e whai ana i ngā rerekētanga e kitea ana, no reira ka taea tonu e tō tākuta te whakamātautau ki a koe i runga i ō tohu me tō hītori whānau.

I te wā o te wāhanga, ka taea e tō tākuta te tono i ngā whakamātautau toto hei tirotiro i ngā tohu o te mumura, pēnei i te maha o te pūtau toto ma teitei, i ngā tohu mumura teitei rānei. Ka awhina ēnei whakamātautau ki te whakau kei te puta te mumura, engari kāore e whakamātautau motuhake i te FMF.

Ka taea hoki e tō tākuta te whakamahi i ngā tikanga hauora e whakaaro ana ki ngā mea pēnei i tō tūāhua iwi, tō hītori whānau, te tauira tohu, me te whakautu ki ngā rongoā motuhake. I etahi wā, te pai o tō whakautu ki te rongoā e kiia nei ko te colchicine ka taea te awhina i te whakamātautau.

He aha te maimoatanga mō te Mate Wera o te Moana o te Whenua?

Ko te maimoatanga matua mō te FMF he rongoā e kiia nei ko te colchicine, e inu ana koe i ia rā hei aukati i ngā wāhanga mai i te puta mai. Kua whakamahia tēnei rongoā mō ngā tekau tau, ā, he tino whai hua ki te whakaiti i te auau me te kino o ngā wāhanga FMF.

Ko te mahi a te Colchicine ko te whakawakia i te tukanga mumura e puta ai ngā tohu FMF. Ko te nuinga o te iwi e hiahia ana ki te inu i ia rā, ahakoa kei te pai tonu rātou, hei aukati i ngā wāhanga mai i te puta mai. Ko te rongo pai ko te mea noa te haumaru mō te whakamahinga roa.

Ka tīmata tō tākuta i a koe i te rongoā iti ka whakaritea kia rite ki te pai o tō whakautu me te mea kei te pā atu ki a koe ētahi pānga. Ko ngā pānga tino noa ko ngā raruraru o te pūnaha kai pēnei i te ruaki, i te mamae o te kopu rānei, e pai ake ana i te wā roa.

Mō te hunga kaore e taea te whakamanawanui ki te colchicine, kāore rānei e pai te whakautu ki a ia, ka taea e ngā rongoā hou e kiia nei ko ngā biologics te awhina. Kei roto i ēnei ngā rongoā pēnei i te anakinra, canakinumab, rilonacept rānei, e whakapae ana i ngā wāhanga motuhake o te tukanga mumura.

I te wā o ngā wāhanga koi, ka taea e tō tākuta te tūtohutia ngā maimoatanga atu pēnei i ngā rongoā anti-mumura, i ngā rongoā mamae rānei hei awhina i a koe kia pai ake te ahua i te wā e haere ana te wāhanga.

Me pēhea te whakahaere i te Mate Wera o te Moana o te Whenua i te kāinga?

Ko te inu tonu i tō rongoā colchicine te mea nui rawa atu ka taea e koe i te kāinga hei whakahaere i te FMF. Whakaritea he mahinga ia rā, i ngā whakamaharatanga rongoā rānei hei awhina i a koe ki te mahara, nā te mea ka taea e te ngaro o ngā rongoā te arahi ki ngā wāhanga e puta mai ana.

I te wā o te wāhanga, he mea nui te okioki hei awhina i tō tinana ki te ora. Kaua e whakama ki te tango i te wā mai i te mahi, i te kura rānei ina kei te pā atu koe ki te wāhanga FMF. Kei te hiahia tō tinana i te kaha hei whawhai ki te mumura.

Koinei ētahi o ngā rautaki whakahaere kāinga e taea te awhina:

• Whakamahia ngā papa wera ki ngā hononga mamae, ki ngā uaua rānei
• Kia pai te inu wai, ina koa i ngā wāhanga kirika
• Kai ngā kai māmā, ngāwari te kai i ngā wāhanga
• Pupurihia he tātai tohu hei aroturuki i ngā tauira me ngā whakaoho
• Whiwhi i te moe tika me te whakahaere i ngā taumata ahotea
• Whai tonu ki tō rōpū hauora

Ka kite ētahi o te iwi ko ētahi mea pēnei i te ahotea, te mate, te kore moe rānei ka taea te whakaoho i ngā wāhanga. Ahakoa kaore e taea te aukati i ēnei whakaoho, ka taea te awhina i a koe ki te whakarite me te whakahaere pai ake i tō āhuatanga.

Noho hono atu ki ētahi atu iwi e whai ana i te FMF mā ngā rōpū tautoko, i ngā hapori ipurangi rānei. Ko te whakawhitiwhiti wheako me ngā tohutohu ki ētahi atu e mārama ana ki te mea e pā ana ki a koe ka tino awhina i tō oranga hinengaro.

Me pēhea te whakarite mō tō hui tākuta?

I mua i tō hui, hangaia he raupapa taipitopito o ō tohu tae atu ki te wā e puta mai ana ngā wāhanga, te roa o te roa, me ngā tohu e pā ana ki a koe. Ka awhina tēnei mōhiohio i tō tākuta ki te mārama ki tō tauira motuhake o te FMF.

Kawe mai he rārangi katoa o ngā rongoā katoa e inu ana koe, tae atu ki ngā rongoā-a-te-kāinga me ngā taapiri. Kohikohia hoki ngā mōhiohio hītori whānau katoa e pā ana ki ngā whānau e whai ana i ngā tohu rite, i te FMF kua whakamātautauhia rānei.

Tuhia ngā pātai motuhake e hiahia ana koe ki te ui ki tō tākuta, pēnei i ngā āwangawanga e pā ana ki ngā whiringa maimoatanga, ngā pānga pea, i te āhua o te pā o te FMF ki tō oranga o ia rā rānei. Kaua e whakaroa ki te tono i te whakamārama ki te kore tetahi mea e mārama.

Ki te taea, kawe mai tētahi mema whānau, i tētahi hoa rānei ki tō hui. Ka taea e rātou te awhina i a koe ki te mahara ki ngā mōhiohio nui, ki te whakarato tautoko hoki, ina koa ki te mea kei te pāngia koe e te whakamātautau, i ngā whiringa maimoatanga rānei.

He aha te mea nui mō te Mate Wera o te Moana o te Whenua?

Ko te FMF tētahi āhuatanga ira e taea te whakahaere e puta mai ana ngā wāhanga o te kirika me te mumura, engari mā te maimoatanga tika, ka taea e koe te noho ora noa, hauora. Ko te mea nui ko te mahi tahi me tō rōpū hauora ki te kimi i te rongoā tika, ki te pupuri tonu hoki i taua mea.

Ko te whakamātautau me te maimoatanga o mua he mea nui hei aukati i ngā raruraru kino pēnei i te amyloidosis. Ki te whakaaro koe kei a koe pea te FMF i runga i ō tohu me tō hītori whānau, kaua e tatari ki te rapu whakamātautau hauora.

Kia mahara kei te whakatau koe, kāore rānei e whakatau i te mea ka taea e koe te whakatutuki i roto i te ora. Ko te nuinga o te iwi e whai ana i tēnei āhuatanga e ora ana i te ora kaha, whai hua me ngā mahi, ngā whānau, me ngā hāuā e pai ana ki a rātou. Ko te mea nui ko te inu i ō rongoā kia rite ki te tohutohu, me te pupuri i te hononga tonu ki tō rōpū hauora.

Ngā pātai e ui pinepinetia ana e pā ana ki te Mate Wera o te Moana o te Whenua

Ka taea te whakaora rawa te FMF?

Kāore e taea te whakaora te FMF nā te mea he āhuatanga ira tuku iho, engari ka taea te whakahaere tino pai me te rongoā. Ko te nuinga o te iwi e inu ana i te colchicine i ia rā e whiwhi ana i ngā wāhanga iti, kāore rānei, ā, ka taea te noho ora noa. Kāore te rongoā e whakatika i te raruraru ira taketake, engari ka aukati i ngā tohu mai i te puta mai.

Ka whiwhi rānei aku tamariki i te FMF ki te mea kei ahau?

He tupono kei a ō tamariki te whiwhi i te FMF, engari ka whakawhirinaki ki te mea he kaikawe hoki tō hoa o te rerekētanga ira. Ki te mea ko koe anake te whai FMF, ka waiho ō tamariki hei kaikawe, engari kāore e tino puta mai ngā tohu. Ki te mea ko koe me tō hoa e kawe ana i ngā rerekētanga, he 25% te tupono o ia tamaiti ki te whakawhanake i te FMF. Ka taea e te tohutohu ira te awhina i a koe ki te mārama ki ngā morearea motuhake mō tō whānau.

Ka taea te whakaoho i ngā wāhanga FMF e te ahotea, i te kai rānei?

Ahakoa ka puta mai ngā wāhanga FMF i te āhua ohorere, ka kite ētahi o te iwi ko te ahotea, te mate, te kore moe rānei, i ētahi kai rānei ka taea te whakaoho i ngā wāhanga. Heoi, ko ēnei whakaoho e rerekē ana i waenga i ngā tangata, ā, ko te nuinga o ngā wāhanga e puta mai ana kaore he take e kitea ana. Ko te mea nui ko te inu tonu i ō rongoā i te whakamātautau ki te karo i ngā whakaoho pea.

He haumaru te hapu ki te mea kei ahau te FMF?

Ko te nuinga o ngā wāhine e whai ana i te FMF ka taea te hapu haumaru, hauora. Ko te Colchicine te nuinga o te whakaaro he haumaru i te wā hapu me te whāngai u, ā, ko te nuinga o ngā tākuta e tūtohu ana ki te pupuri tonu hei aukati i ngā wāhanga. Heoi, me kōrero koe mo tō āhuatanga motuhake me tō tohunga FMF me tō taote whānau i mua i te ngana ki te whānau hei whakarite i te tiaki pai mōu me tō pēpi.

E hia te auau o ngā wāhanga FMF e tino puta mai ana?

Ko te auau o ngā wāhanga FMF e rerekē ana i waenga i te iwi, ā, ka taea te huri i te wā roa. Me te kore maimoatanga, ko ētahi o te iwi e whai ana i ngā wāhanga ia wiki, ko ētahi e haere ana i ngā marama i waenga i ngā wāhanga. Mā te maimoatanga colchicine tika, ko te nuinga o te iwi e whai ana i ngā wāhanga iti rawa, kāore rānei. Ko te pupuri i te tātai tohu ka taea te awhina i a koe me tō tākuta ki te mārama ki tō tauira motuhake, ki te whakarite i te maimoatanga kia rite hoki.