He aha te FSGS? Ngā tohu, ngā take, me te rongoā

Ko te tikanga o te FSGS ko te Focal Segmental Glomerulosclerosis, he mate whatukuhu e pā ana ki ngā kaitātari iti i roto i ō whatukuhu e kiia nei ko ngā glomeruli. Ki te whai koe i te FSGS, ka hanga te kiri pūngāwerewere i ētahi wāhanga o ēnei kaitātari, ka uaua ai te horoi i te paru me te wai nui atu i roto i tō toto e ngā whatukuhu.

Ka rongo pea tenei āhuatanga he nui rawa te kawenga ina whakarongo tuatahi koe, engari ko te mārama ki te aha te mea kei te puta i roto i tō tinana ka āwhina iā koe kia nui ake te mana. Ka pā te FSGS ki te iwi o ngā tau katoa, ahakoa he maha ake i roto i ētahi rōpū, ā, me te tiaki tika, he tokomaha ngā tāngata e ora ana i ngā oranga tino whānuitia, mahi tonu i te whakahaere i tēnei āhuatanga.

He aha te FSGS?

Ko te FSGS tētahi momo mate whatukuhu kei reira te kiri pūngāwerewere e whanake ana i ngā wāhi motuhake o ngā wāhanga tātaritanga o tō whatukuhu. Whakaarohia ō whatukuhu he mano tini ngā kākahu iti e kiia nei ko ngā glomeruli e wehewehe ana i te paru i ngā mea pai e hiahia ana tō tinana ki te pupuri.

Ko te ingoa e whakaatu ana i te mea kei te puta: ko te 'focal' te tikanga ko ētahi anake o ō glomeruli te pā, ko te 'segmental' te tikanga ko ngā wāhanga anake o ia kaitātari i pā te kino, ā, ko te 'glomerulosclerosis' te tohu ki te tukanga pūngāwerewere. Ka iti ake te mahi a ēnei kaitātari pūngāwerewere ki te mahi i tō rātou mahi.

Kāore i rite ki ētahi mate whatukuhu e pā ana ki ngā kaitātari katoa, he kōwhatu te FSGS. Kei te mahi pai ētahi o ngā kaitātari whatukuhu i a ētahi e whanake ana i ēnei wāhi pūngāwerewere. He whai hua tēnei tauira mō ngā tākua i te wā e mahi ana rātou i te whakatau.

He aha ngā tohu o te FSGS?

Ko te tohu tuatahi tino noa o te FSGS ko te pūmua i roto i tō mimi, ā, ka kite pea koe i te mimi pupuhi, kopiko ranei. Ka puta tēnei nā te mea ka tīmata ngā kaitātari whatukuhu kua pakaru ki te tuku i te pūmua kia puta atu i te wā e tika ana kia pupuri i roto i tō toto.

Ko ēnei ngā tohu ka pā pea ki a koe i te wā e whanake ana te FSGS:

• Mimi pupuhi, penei he huka, e kore e ngaro
• Pūngāwerewere i ō waewae, i ō turi, i ō waewae rānei, i te taha o ō kanohi rānei
• Te piki o te taumaha mai i te pupū wai
• Te ngenge rawa atu i te mea noa
• Te ngaro o te hiahia kai
• Teitei te toto
• Te toto i roto i tō mimi (kaore i te tino noa)

Ko ētahi o te hunga e pangia ana e te FSGS ngawari kaore e kite i ētahi tohu i te tīmatanga, koia tētahi take e kitea ai te mate i ngā whakamātau toto, mimi ranei noa.

Ko te pūngāwerewere te nuinga o te tīmatanga māmā, ā, ka kitea pea i te ata, i muri rānei i te noho roa, i te tū roa rānei.

I ngā wāhanga matatau ake, ka pā pea koe ki te poto o te manawa, ki te ruaki, ki ngā huringa rānei o te maha o ō mimi. Ka puta ēnei tohu ina ngoikore haere te mahi o ō whatukuhu.

He aha ngā momo o te FSGS?

E rua ngā momo matua o te FSGS: te matua me te tuarua. Ka puta te FSGS matua ina whanake ake te mate anake kahore hoki he take ke e pā ana.

Ka wehea atu te FSGS matua ki ngā momo ira me ngā momo kaore i te ira. Ko te momo ira e rere ana i roto i ngā whānau, ā, ko te take ko ngā huringa i roto i ngā ira motuhake e pā ana ki te mahi o te kānana o ō whatukuhu.

Ka puta te FSGS tuarua ina pakaru tetahi take, āhuatanga rānei i ō whatukuhu, ā, ka arahi ki te tauira toka. Ka taea te whakaeke i tēnei momo e ngā mate pērā i te HIV, ētahi rongoā, te momona, ētahi atu mate whatukuhu rānei.

He maha hoki ngā tauira toka rerekē ka taea e ngā tākuta te kite i raro i te microscope, tae atu ki ngā momo pakaru, te pito, te perihilar, te pūtau, me ngā momo kaore i te tohua. Ka whakahua pea tō tākuta i ēnei kupu, engari ko te mea nui ko te pehea te whakautu o tō keehi motuhake ki te rongoā.

He aha te take o te FSGS?

Ko te take tino tika o te FSGS matua e kore e mohiotia ana te nuinga o te wā, ā, he mea whakatairanga tenei, engari ehara i te tikanga kua he koe. I te nuinga o ngā take, e whakaatu ana i te hononga ki ngā raruraru o tō pūnaha ārai mate, te whakaaro rānei o ngā ira.

Ki te rere te FSGS i roto i ngā whānau, ko te tikanga he mate pūngao i roto i ngā ira e āwhina ana ki te pupuri i te hanganga o ngā kākahu o ngā whatukuhu. Ka taea te tuku i enei huringa ira mai i ngā mātua, ahakoa ka puta mai ētahi wā hei mate pūngao hou.

He maha ake ngā take e taea te kitea o te FSGS tuarua, tae atu ki:

• Ngā mate huaketo, ina koa te HIV
• Ētahi rongoā penei i te heroin, te lithium, te nui rānei o ngā rongoā mamae
• Te momona nui e whakapēhi ana i ō whatukuhu
• Te nephropathy reflux mai i ngā mate whatukuhu maha
• Te mate pukupuku whekau
• Ētahi atu mate whatukuhu, ngā rerekētanga hanganga rānei

I ētahi wā ka whanake te FSGS i muri i te whakapau kaha o ō whatukuhu e tetahi atu āhuatanga mō te wā roa. Ko te rongo pai, ki te hopukina wawe te FSGS tuarua, ā, ki te whakaorahia te take taketake, ka taea pea te whakahoki i te kino o te whatukuhu.

I ngā take onge, ka taea te whakaoho i te FSGS e ētahi āhuatanga ārai mate whaiaro, te pānga rānei o ngā rongoā e whakamahia ana hei whakaora i te mate pukupuku. Ka mahi tō tākuta ki te kimi i ngā take taketake e taea ana hei wāhanga o tō mahere whakaora.

Nōhea te haere ki te tākuta mō te FSGS?

Me whakapiri atu koe ki tō tākuta ki te kite koe i te mimi pupuhi tonu e kore e ngaro i muri i te rā kotahi, rua rānei. Ahakoa he mea noa te mimi pupuhi i ētahi wā, ko te mimi pupuhi tonu te tohu i te ngaro o te pūmua.

Ko te pupū e kore e pai ake me te okioki tētahi atu tohu nui hei kōrero ki tō kaiwhakarato hauora. He mea tino nui tenei, ki te kite koe i te pupū i te taha o ō kanohi i te ata, te pēhi rānei o ō hu i te wā e tika ana.

Rapua te tiaki hauora kia tere ake ki te wheako koe i:

• Pūngawhawha nui ohorere ki tō mata, ringa, kē rānei waewae
• Uaua te manawa, kē te mamae o te uma
• He iti rawa te mimi
• Te toto i roto i tō mimi me ētahi atu tohu
• Te ngenge nui e āwangawanga ana ki ngā mahi o ia rā

Mēnā he hītori whānau o te mate whatukuhu koe, he mea tika te kōrero ki tō tākuta mō ētahi huringa mimi ahakoa iti rawa. Ka taea e te kitenga wawe te whakarereke nui ki te whakahaere tika i te FSGS.

He aha ngā take morearea mō te FSGS?

Ka pā te FSGS ki te tangata katoa, engari ka taea e ētahi take te whakapiki ake i tō tūponotanga ki te whanake i tēnei āhuatanga. He mahi te tau, me te kitea ake o te FSGS i ngā tamariki me ngā tāne taitamariki, ahakoa ka puta i tetahi tau.

Ka pā te iwi o tō iwi ki tō tūponotanga, me te tino tūponotanga o te hunga African American ki te whanake i te FSGS atu i ētahi atu iwi. E whakaatu ana tenei tūponotanga nui ki ngā take ira e whakarato ana i ētahi tiaki ki ētahi mate, engari ka taea te whakapiki ake i te tūponotanga o te mate whatukuhu.

Ko te hītori whānau tētahi atu take morearea nui, inā hoki mō ngā momo ira o te FSGS. Ki te whai koe i ngā whānau e mate whatukuhu ana, inā hoki ki te tīmata i te tau iti, ka nui ake pea tō tūponotanga.

Ko ētahi atu take morearea ko:

• Te whai mate HIV
• Te momona nui, inā hoki ki te roa
• Te hītori o te whakamahinga rongoā, inā hoki ngā rongoā intravenous
• Ētahi āhuatanga ira penei i te mate pūtau toto whero
• Te whara whatukuhu o mua kē te mate
• Te whakamahinga roa o ētahi rongoā

Ko te whai take morearea kāore e tikanga ka whanake koe i te FSGS, a he tokomaha ngā tāngata e whai ana i ngā take morearea maha kāore i te whanake i te āhuatanga. I tetahi atu taha, ka whanake ētahi tāngata i te FSGS kāore he take morearea marama.

He aha ngā raruraru pea o te FSGS?

Ka taea e te FSGS te arahi ki te maha o ngā raruraru, engari mā te mōhio ki ēnei mea ka āwhina koe me tō rōpū hauora ki te tiaki i ngā tohu o mua me te tango i ngā mahi whakamātau. Ko te take nui rawa atu ko te kino o te whatukuhu e taea ai te mate whatukuhu.

Ka tupu te toto teitei me te FSGS, ā, ka waiho hei porowhita e pā ana teitei teitei ki te kino atu o te whatukuhu. Koia tēnei te take i waiho ai te mana o te toto hei wāhanga nui o tō mahere maimoatanga.

Ko ngā raruraru noa e pā ana ki a koe:

• Te mate nephrotic me te ngaro nui o te pūmua me te pupū
• Teitei te taumata o te kolesterol
• Te piki o te tūponotanga o ngā toto
• Te piki o te ngoikore ki ngā mate
• Te mate wheua mai i ngā huringa mahi whatukuhu
• Te mate toto mangu i te heke o te mahi whatukuhu

Ko te ngaro o te pūmua i roto i te FSGS ka taea te kaha ki te whakaputa i te mate nephrotic, kei reira koe e ngaro ai te nui o te pūmua kaore e taea e tō tinana te pupuri i te rite o te wai. Ka arahi tenei ki te pupū nui me ētahi atu raruraru metabolic.

I etahi wā, ka taea e te hunga e pangia ana e te FSGS te whanake i te mate whatukuhu ohorere, ina koa ki te tere te ahu whakamua o te āhuatanga, ki te mea rānei he maha atu ngā āwangawanga ki ngā whatukuhu. Heoi, mā te tirotiro tika me te maimoatanga, ka taea te aukati, te whakahaere rānei i te nuinga o ēnei raruraru.

Ko ētahi o te hunga e pangia ana e te FSGS ka hiahia ki te dialysis, ki te whakawhiti whatukuhu rānei, engari ehara tenei i te hua e kore e taea te karo. He tokomaha te hunga e pupuri ana i te mahi whatukuhu pumau mo ngā tau maha mā te maimoatanga tika.

Me pēhea te aukati i te FSGS?

Ahakoa kaore e taea e koe te aukati i ngā momo ira o te FSGS, he maha ngā mahi ka taea e koe te tiaki i tō hauora whatukuhu me te aukati pea i te FSGS tuarua. Ko te pupuri i te taumaha hauora ka whakaiti i te ahotea ki ō whatukuhu, ka whakaiti i tō tūponotanga ki te whanake i te mate whatukuhu e pā ana ki te momona.

Mēnā kei a koe ngā āhuatanga e taea ai te arahi ki te FSGS tuarua, he mea nui te whakahaere pai i a rātou. Kei roto i ēnei te pupuri i te HIV i raro i te mana me te rongoā antiretroviral, te karo i ngā rongoā whakangahau, me te whakamahi i ngā rongoā tākuto anake i te aronga a tō kaiwhakarato hauora.

Ko ngā tikanga tiaki whatukuhu whānui kei roto:

• Te whakahaere i te toto toto me te mate huka mēnā kei a koe
• Te noho makuku pai engari kaua e nui rawa te makuku
• Te whakamāmā i ngā kai tukatuka e nui ana te konutai
• Kaua e whakakā te hikareti, ki te whakakā koe i tēnei wā
• Te whiwhi i ngā tirotiro whānui e whakauru ana i ngā whakamātautau mahi whatukuhu
• Te tupato ki ngā rongoā mamae kore-tākuto

Mēnā kei a koe te hītori whānau o te mate whatukuhu, ka āwhina pea te tohutohu ira ki te mārama ki ō tūponotanga me te kōrero mō ngā kōwhiringa whakamātautau. Ka taea te kite i ētahi momo ira o te FSGS mā te whakamātautau i mua i te whanake o ngā tohu.

Ko te tiaki hauora auau tō parekura pai rawa atu, ina koa ki te whai koe i ngā take tūponotanga. Ka taea e te kitenga wawe me te maimoatanga te whakaheke nui i te whanaketanga o te mate whatukuhu ina whanake.

Pehea te whakataurite i te FSGS?

Ko te whakataurite i te FSGS te timatanga noa i ngā whakamātautau noa e whakaatu ana i te pūmua i roto i tō mimi, i ngā huringa rānei i tō mahi whatukuhu. Ka tono pea tō tākuta i ngā whakamātautau toto me te mimi hei ine i te pai o te mahi a ō whatukuhu me te nui o te pūmua e ngaro ana koe.

He mea nui te tātaritanga whatukuhu ki te whakau i te whakataurite o te FSGS. I roto i tēnei tukanga, ka tangohia he tauira iti o te kiko whatukuhu ka tirotirohia i raro i te microscope hei rapu i te tauira tohu.

Ko te tukanga whakataurite kei roto:

1. Ngā whakamātautau mimi hei tirotiro i te pūmua me te toto
2. Ngā whakamātautau toto hei ine i te mahi whatukuhu me ngā taumata pūmua
3. Te aroturuki i te toto toto
4. Te ultrasound whatukuhu hei titiro ki te hanganga whatukuhu
5. Te tātaritanga whatukuhu mō te whakataurite tino
6. Te whakamātautau ira mēnā kei te whakapaehia te FSGS whānau

Ka taea hoki e tō tākuta te whakamātautau mō ngā āhuatanga ka taea te whakaoho i te FSGS tuarua, pēnei i te HIV, ngā mate ā-whakaheke-mate, me ētahi atu mate. Ka āwhina tenei ki te whakatau he matua te FSGS, he tuarua rānei ki tētahi atu āhuatanga.

Ka whakaatu ngā hua o te tātaritanga, ehara i te mea ko te tūmanako o te FSGS anake, engari ka āwhina hoki ki te whakatau i te momo motuhake me te nui o te kino kua puta. Ka ārahi tēnei mōhiohio i tō mahere maimoatanga ka āwhina ki te kīhai te āhuatanga e piki haere.

He aha te maimoatanga mō te FSGS?

Ka aro te maimoatanga mō te FSGS ki te whakaheke i te kino o te whatukuhu, ki te whakahaere i ngā tohu, me te whakaora i ngā take taketake. Ko te huarahi motuhake e whakawhirinaki ana ki te mea he matua tō FSGS, he tuarua rānei, me te kaha o tō āhuatanga.

Mō te FSGS tuarua, ko te whakaora i te take taketake te mea nui. Ka āhei pea tenei ki te whakahaere i te HIV me ngā rongoā, ki te ngaro te taumaha mena he taumaha te take, ki te mutu rānei ngā rongoā e kino ana ki ō whatukuhu.

Ko ngā maimoatanga noa mō te FSGS ko:

• Ngā kaihoroi ACE, ngā kaihoroi ARB rānei hei tiaki i ngā whatukuhu me te whakahaere i te toto
• Ngā corticosteroids hei whakaiti i te mumura i ētahi wā
• Ngā rongoā whakaheke-mate-pūnaha mō ētahi momo
• Ngā diuretics hei āwhina i te pupuhi
• Ngā rongoā whakaiti-kolesterol
• Te whakaiti i te pūmua kai i ētahi wā

Ko ngā steroids pēnei i te prednisone te maimoatanga tuatahi e whakamātautauhia ana mō te FSGS matua, inā koa ki ngā tamariki me ngā tāne taitamariki. Ka taea e ēnei rongoā te whakaiti i te mahi a te pūnaha mate-pūnaha e āhei ana ki te whakaoho i te kino o te whatukuhu.

Mēnā kaore ngā steroids e mahi, kāore rānei e nui rawa ngā pānga, ka taea e tō tākuta te tūtohutia ētahi atu rongoā whakaheke-mate-pūnaha pēnei i te cyclosporine, te tacrolimus, te mycophenolate rānei. Me ata tirotiro ēnei rongoā, engari ka tino whai hua ki ētahi tāngata.

He mea nui te whakahaere i te toto toto ahakoa tetahi atu rongoā e whakamahia ana e koe. Ahakoa ka rite teitei o to toto toto, ka taea e ngā rongoā e tiaki ana i ō whatukuhu te awhina i te whakaheke i te whanaketanga o te FSGS.

Me pēhea te whakahaere i te FSGS i te kāinga?

Ko te whakahaere i te FSGS i te kāinga ko te hanga i ngā huringa oranga e tautoko ana i te hauora o ō whatukuhu me te oranga pai whānui. Ko te whai i te kai pai mō te whatukuhu ka taea te whakaiti i te mahi nui ki ō whatukuhu me te whakahaere i ngā tohu penei i te pupuhi.

Ka taea e tō tākuta, e te kaiwhakaako kai rānei te tūtohutanga kia iti te kai pūmua hei whakaiti i te kawenga ki ō whatukuhu, ahakoa ka rerekē tenei i runga i tō āhuatanga motuhake. Ko te whakaiti i te konutai ka awhina i te whakahaere i te toto toto me te pupuhi.

Ko ngā rautaki whakahaere kāinga o ia rā ko:

• Te tango i ngā rongoā kia rite ki te tohutohu
• Te arotake i tō taumaha i ia rā hei aroturuki i te pupuri wai
• Te whakaiti i te konutai ki raro i te 2,300mg ia rā
• Te noho mahi me te whakakori ngawari kia rite ki te manawanui
• Te whiwhi i te okioki tika me te whakahaere i te ahotea
• Te karo i ngā NSAID kore-tohutohu kaore he whakaaetanga a te tākuta

Kia mau ki te rārangi o ia rā o tō taumaha, o te toto toto (ki te mea kei a koe te kaitirotiro kāinga), me ētahi atu tohu penei i te pupuhi, i ngā huringa i te mimi rānei. Ka awhina tēnei mōhiohio i tō rōpū hauora ki te whakarite i tō maimoatanga kia rite ki te hiahia.

Kia hou tonu ngā whakakakahu, i te mea ka taea e ētahi maimoatanga FSGS te pā ki tō pūnaha mate. Kaua e tūtaki ki ngā tāngata e kitea ana te mate, me te mahi i te horoi ringa pai.

Kaua e whakaroa ki te whakapiri atu ki tō kaiwhakarato hauora ki te kite koe i te piki ohorere o te taumaha, te pupuhi nui ake rānei, i ētahi atu tohu hou rānei. Ko te whakauru wawe ka taea te aukati i ngā raruraru kei te kino haere.

Me pēhea te whakarite mō tō hui tākuta?

Ko te whakarite mō tō hui ka awhina i te whakarite kia whiwhi koe i te nuinga o tō wā me tō kaiwhakarato hauora. Kawe mai he rārangi o ngā rongoā katoa e inu ana koe, tae atu ki ngā rongoā kore-tohutohu, ngā taapiri, me ngā rongoā otaota.

Tūhia ō pūrongo i mua kia kaua e wareware ki te uiui i ngā mea e awangawanga ana koe. He whai hua te whakarite i ō pūrongo, ki te poto te wā i te wā o te whakaritenga.

Ngā korero hei kawea atu ki tō whakaritenga:

• Rārangi kākāriki o ngā rongoā o nāianei me ngā horoinga
• Tuhinga o ngā taumaha o ia rā ki te mea kua aroturuki koe
• Ngā pūrongo toto toto ki te whakamātau koe i te kāinga
• Rārangi o ngā tohu me te wā e puta ai
• Hītori whānau o te mate whatukuhu
• Ngā hua whakamātautau o mua i ngā tākuta ke

Whakaarohia te kawea mai i tetahi hoa whakawhirinaki, whānau rānei hei āwhina i a koe ki te mahara ki ngā korero nui i kōrerotia i te wā o te haerenga. Ka taea hoki e rātou te tuku tautoko ngākau me te āwhina i te whakatairanga i ō hiahia.

Kia rite ki te kōrero mō tō mahi o ia rā, tae atu ki te kai, te whakakori tinana, me ētahi raru e pa ana ki tō mahere maimoatanga o nāianei. Me pēnei te korero a tō tākuta kia pai ai te tiaki.

He aha te mea nui mō te FSGS?

He āhuatanga whatukuhu e taea te whakahaere te FSGS, e pā ana ki te katoa i te huarahi rerekē, ā, te whai i tēnei whakatau kahore e tikanga ka hiahiatia te whakarereke nui o tō oranga. Mā te maimoatanga tika me ngā whakarerekētanga noho, he tokomaha ngā tāngata e whai ana i te FSGS e pupuri ana i te mahi whatukuhu pai mō ngā tau.

Ko te mea nui rawa atu e taea e koe ko te mahi tata atu ki tō rōpū hauora me te pupuri tonu ki tō mahere maimoatanga. Ka taea e te aroturuki auau te whakarite i ngā whakarerekētanga ka taea te whakaheke i te whanaketanga o te mate me te aukati i ngā raruraru.

Kia mahara kei te haere tonu te rangahau FSGS, ā, kei te whakawhanakehia ngā maimoatanga hou. Ko te mea kahore pea e wātea i tēnei rā ka waiho hei whiringa i te wā kei te heke mai, no reira ko te pupuri i tō hauora whatukuhu inaianei ka whakatuwhera atu i ngā tatau i muri mai.

Ahakoa e hiahia ana te FSGS ki te aro tonu, kahore e tika kia whakatau koe, kāore rānei e whakawhāiti i ō whāinga. He tokomaha ngā tāngata e whai ana i tēnei āhuatanga e haere tonu ana ki te mahi, ki te haere, ki te whakakori tinana, me te koa ki ngā oranga tino nui, i te wā e whakahaere ana i to rātou hauora whatukuhu.

Pātai auau e pā ana ki te FSGS

Ka taea te whakaora katoa te FSGS?

I teie nei, kāore he rongoā mō te FSGS, engari ka taea te whakahaere pai te āhuatanga kia whakahekehia tōna ahu whakamua. Ka kite pea etahi tangata, ina koa rā te hunga he FSGS tuarua, he pai ake te ahua mena ka whakaorahia te take taketake. Ko te whāinga o te maimoatanga ko te tiaki i te mahi o te whatukuhu me te aukati i ngā raruraru, kāore i te whakakore i te mate katoa.

Me hiahia ahau ki te dialysis mena he FSGS taku?

Ehara i te katoa o te hunga he FSGS kei te hiahia ki te dialysis. He tokomaha te hunga e pupuri ana i te mahi whatukuhu pumau mō ngā tau maha me te maimoatanga tika. Ko te hiahia ki te dialysis e whakaatu ana i te tere o te hekenga o te mahi o tō whatukuhu me te pai o tō whakautu ki te maimoatanga. Ko te arotake auau e āwhina ana i tō rōpū hauora kia whakauru wawe kia whakahekehia te ahu whakamua.

Ka taea e au te whānau tamariki mena he FSGS taku?

He tokomaha ngā wāhine he FSGS ka taea te whānau tamariki angitu, engari e hiahia ana ki te whakamahere me te tirotiro ata me tō tākuta whatukuhu me te taote whānau e whai wheako ana ki ngā haputanga morearea. Me whakarereke pea etahi rongoā e whakamahia ana hei whakaora i te FSGS i mua i te haputanga me te wā haputanga. Ko te mea nui ko te kōrero mo ō whāinga whakatupu whānau ki tō rōpū hauora i te timatanga.

He tukuwhenua tonu te FSGS?

Kāo, ehara i te mea tukuwhenua tonu te FSGS. Ahakoa ko ētahi momo e rere ana i roto i ngā whānau na te rerekētanga o ngā ira, he maha ngā take o te FSGS kāore i tukuna. Ko te FSGS tuarua e puta mai ana i ētahi atu āhuatanga, ā, ahakoa ko te FSGS matua ka puta mai kāore he hītori whānau. Ka taea e te whakamātautau ira te āwhina ki te whakatau mena he wāhanga tukuwhenua tō FSGS.

E hia te wā e tika ai kia kite ahau i taku tākuta mena he FSGS taku?

Ko te tūpato o ngā haerenga ki te taote e whakahaeretia ana e te āhua o tō hauora me ngā rongoā e whiwhi ana koe. I te tīmatanga, pea ka hiahia koe ki ngā whakaritenga i ia torutoru marama hei tirotiro i tō whakautu ki te rongoā. Kia pumau tō hauora, ko te haere ki te taote i ia 3-6 marama te tikanga, engari ko tō tākuta e whakatau ai i te wā tika e whai ana ki ō hiahia whaiaro me ngā hua whakamātautau.