He aha te mate Huinga-Barré? Tohutohu, Take, me te Maimoatanga

Ko te mate Huinga-Barré he āhuatanga onge ka whakaeke he te pūnaha ārai mate o tō tinana i ngā uaua e whakahaere ana i ō uaua me te pūāhua. Ka puta tēnei whakaeke i te ngoikore o ngā uaua e tīmata ana i ngā waewae, ā, ka horapa ki runga i tō tinana. Ahakoa ka rongo te ingoa he wehi, ka ora te nuinga o te hunga e pangia ana e tēnei āhuatanga, ahakoa ka roa te wā me te manawanui.

He aha te mate Huinga-Barré?

Ka puta te mate Huinga-Barré ina pohehe te pūnaha tiaki o tō tinana ka tīmata ki te whakaeke i ō ngongo uaua ake, kaua ki te tiaki i a koe i te mate. Whakaarohia ō ngongo uaua hei taura hiko kua hipoki ki te hipoki tiaki e kiia nei ko te myelin. Ina pakaru tēnei hipoki, kāore ngā tohu i waenganui i tō roro me ō uaua e haere tika ana.

Ka pā tēnei āhuatanga ki te 1 i roto i te 100,000 o te iwi ia tau, no reira he onge rawa. Ko te rongo pai, ahakoa ka tino kino, ka ora te nuinga o te iwi me te tiaki hauora tika. Ka taea te ora i ngā wiki ki ngā marama, ā, ka taea e ētahi te mau tonu o ngā pānga, engari he āhei te ora katoa mō te tokomaha.

I whakaahua tuatahitia te mate e rua ngā tākuta Wīwī, a Georges Guillain rāua ko Jean Alexandre Barré, i te tau 1916. Kāore i te pā, ā, kāore e taea e koe te hopu mai i tētahi atu, kāore hoki e taea te tuku atu ki ētahi atu.

He aha ngā tohu o te mate Huinga-Barré?

Ko te tohu tino nui o te mate Huinga-Barré ko te ngoikore o ngā uaua e tīmata ana i ō waewae me ō waewae, katahi ka neke ki runga. Ka kite tuatahi pea koe i ngā pūāhua wiri, pēnei i ngā pi me ngā ngira, i ō maihao me ō matihao. Ka taea e ēnei tohu tuatahi te ngawari, ā, ka ngaro pea i ētahi atu āhuatanga.

Ko ēnei ngā tohu matua ka pā pea ki a koe:

• Te ngoikore e tīmata ana i ō waewae ka horapa ki runga ki ō ringa me tō mata
• Ngā pūāhua wiri, ngā pūāhua pīpī i ō maihao me ō matihao
• Te mamae, ina koa i tō tua, waewae, hauā, ka kino pea i te pō
• Te uaua ki te haere, ki te piki i ngā kaupae, ki te whakatika mai i te tūru
• Te raruraru ki ngā uaua kanohi, te pānga ki te kōrero, ki te ngau, ki te horomi
• Te tiro rua, te uaua ki te neke i ō kanohi
• Te uaua ki te whakahaere i te mahi o te pūngāwerewere, te pehanga ranei

Ka taea te tere o te whanake i etahi keehi. Ko te mea e tīmata ana hei wiri ngawari ka taea te whakanui ki te ngoikore nui i roto i ngā haora, rā rānei. Koia te take he mea nui kia tere te tiki i te tiaki hauora mena ka kite koe i ēnei tohu e whanake ana.

I roto i ngā keehi kino, ka taea e te ngoikore te pā ki ngā uaua e hiahia ana koe mō te manawa. Koinei te raruraru tino kino me te hiahia kia tere te tiaki i te whare hauora me te tautoko manawa. Heoi, me te maimoatanga tika, ka taea e te hunga e hiahia ana ki te awhina manawa te ora pai.

He aha ngā momo o te mate Huinga-Barré?

He maha ngā momo o te mate Huinga-Barré, ka pā ia ia ki ō ngongo uaua i ngā huarahi rerekē. Ko te momo tino noa ko te polyneuropathy demyelinating mumura koi, te AIDP rānei. Ka pakaru tēnei momo i te hipoki tiaki i ngā ngongo uaua.

Ko tētahi atu momo, te neuropathy axonal motor koi (AMAN), ka pā nui ki ngā ngongo uaua ake, kaua ki tō hipoki tiaki. He mea noa ake tēnei momo i etahi wāhanga o te ao, ina koa i Āhia. Ka maha ngā tohu kino o te hunga AMAN i te tīmatanga, engari ka tere pea te ora.

Ko tētahi atu momo, te neuropathy axonal motor me te pūāhua koi (AMSAN), ka pā ki ngā ngongo uaua nekehanga me te pūāhua. Koinei te momo tino kino, ā, ka roa pea te wā ora. Kei reira hoki te mate Miller Fisher, he momo onge e pā nui ana ki te nekehanga o te kanohi, te whakahaere, me ngā whakaata.

Ka taea e tō tākuta te whakatau i te momo kei a koe mā ngā whakamātautau uaua motuhake, ahakoa ka rite tonu te huarahi maimoatanga ahakoa te momo.

He aha ngā take o te mate Huinga-Barré?

Kāore i te marama tonu te take tika mō te mate Huinga-Barré, engari ka tupu pea i muri i te whawhai a tō tinana i tetahi mate. Ko tō pūnaha ārai mate, e tiaki ana i a koe, ka whiwhi i ō tohu, ka tīmata ki te whakaeke i ō ngongo uaua ake, kaua ki te mate anake.

He maha ngā mate kua honoa ki te mate Huinga-Barré:

• Campylobacter jejuni (he huakita e pā ana ki te poihana kai)
• Epstein-Barr huaketo (e pā ana ki te mononucleosis)
• Cytomegalovirus
• Mycoplasma pneumonia
• Huaketo rewharewha
• Huaketo Zika
• COVID-19 (ahakoa kei te ako tonu tēnei hononga)

I etahi wā ka taea te whanake i te mate i muri i te pokanga, te inopere, te whara tinana rānei, ahakoa he iti rawa te noa o ēnei take. He mea nui kia mārama mena ka whanake koe i te mate Huinga-Barré i muri i te inopere, kāore tēnei e whakaatu ana i te take tika o te inopere. Ko te wā pea he tūponotanga noa.

I roto i ngā keehi maha, kāore e taea te kitea he take motuhake. Ka taea tēnei te pouri, engari kāore e pā ki tō maimoatanga, ki ō tūmanako ora rānei. Ko te mea nui ko te whiwhi i te tiaki tika ina puta ngā tohu.

Nōhea te haere ki te tākuta mō te mate Huinga-Barré?

Me rapu tūturu koe i te tiaki hauora mena ka pā ki a koe te ngoikore o ngā uaua e tere ana te whanake, ina koa mena ka tīmata i ō waewae ka neke ki runga. Kaua e tatari kia pai ake ngā tohu, i te mea ka taea e te maimoatanga wawe te whakarereke nui ki tō ora.

Waea atu ki te 111, haere rānei ki te ruma urupare tūturu mena ka uaua ki te manawa, te horomi kino rānei, te tere haere rānei o tō ngoikore i roto i ngā haora. Ka whakaatu ēnei tohu kei te pā te āhuatanga ki ngā mahi nui, ā, me te whakauru hauora tūturu.

Ahakoa he ngawari ngā tohu, he pai kia kite i te tākuta mena kei a koe te wiri me te ngoikore kāore i te ngaro i roto i te rā, rua rānei. Ahakoa he maha ngā āhuatanga ka puta ēnei tohu, he pai ake te arotake me te whakamārama i te ngaro i ngā tīmatanga o te mate Huinga-Barré.

Whakaarohia ō ngākau. Mena kei te he tetahi mea ki tō tinana, ina koa ki te kino haere ngā tohu, kaua e whakaroa ki te rapu tiaki hauora. Ka hiahia ngā kaiwhakarato hauora ki te kite i a koe i te tīmatanga ina taea te whai hua o te maimoatanga.

He aha ngā take morearea mō te mate Huinga-Barré?

Ahakoa ka taea e te mate Huinga-Barré te pā ki te tangata i tetahi tau, ka taea e ētahi take te whakanui ake i tō morearea. Ka taea e te mārama ki ēnei take te awhina i a koe ki te mohio wawe ki te āhuatanga, engari kia mahara kei te whakaatu ngā take morearea kāore koe e whanake i te mate.

He mea nui te tau, me te noa o te āhuatanga i roto i ngā tāne pakeke me ngā tāne pakeke atu i ngā tamariki. He iti te tūponotanga o ngā tāne ki te whanake i te āhuatanga atu i ngā wāhine, ahakoa kāore te rerekētanga i te nui.

Ko ētahi take morearea onge ko:

• Te pokanga hou, ina koa ngā mahi ngakau, ngā mahi puku rānei
• Ētahi inopere, ahakoa he iti rawa te morearea
• Te hapu, ina koa i te toru o ngā marama, i muri tonu rānei i te whānau
• Te whai i ētahi āhuatanga autoimmune
• Te lymphoma Hodgkin, ētahi atu lymphoma rānei

He mea nui kia mārama kei te hono ngā take morearea ki te iti rawa o te pikinga o te tūponotanga. Hei tauira, ahakoa i muri i te mate Campylobacter, he iti iho i te 1 i roto i te 1,000 o te iwi ka whanake i te mate Huinga-Barré. Ko te nuinga o te iwi e whai ana i ēnei take morearea kāore e whanake i te āhuatanga.

He aha ngā raruraru pea o te mate Huinga-Barré?

Ahakoa ka ora te nuinga o te iwi e pangia ana e te mate Huinga-Barré, ka taea e te āhuatanga te arahi ki ngā raruraru kino e hiahia ana ki te whakahaere hauora atawhai. Ka awhina te mārama ki ēnei tūponotanga ki te mohio ki te mea hei titiro, me te aha te tiaki hauora tata he mea nui.

Ko te āwangawanga tino nui ko te kore manawa, e puta ana ina pā te ngoikore ki ngā uaua e hiahia ana koe mō te manawa. Ka puta tēnei i te 20-30% o te iwi e pangia ana e te āhuatanga, ā, e hiahia ana ki te tautoko wā poto me te mīhini manawa. Me te tiaki hauora pai, ka ora te nuinga o te iwi e hiahia ana ki te tautoko manawa i tō rātou kaha ki te manawa motuhake.

Ko ētahi atu raruraru ka uru ki:

• Ngā toto i roto i ngā waewae nā te kore nekehanga roa
• Ngā raruraru o te au o te ngakau, te rereketanga o te toto rānei
• Te mamae kino e uaua ana ki te whakahaere
• Te ngoikore o te pūngāwerewere, te pehanga rānei
• Te pakaru o te kiri mai i te takoto mo te wā roa
• Ngā pānga hinengaro pēnei i te pouri, te manukanuka rānei

Ka taea e ētahi te mau tonu o ngā pānga i muri i te ora. Ka uru pea ēnei ki te ngoikore tonu, te ngenge, te ngenge, te mamae rānei. Heoi, he ngawari ngā pānga roa, kāore hoki e pā nui ki te ora o ia rā. He onge rawa, ka taea e ētahi te whakahoki, engari ka puta tēnei i raro i te 5% o ngā keehi.

Ko te mea nui ko te whakahaere hauora tika, ka taea te aukati, te whakahaere rānei i ngā raruraru. Ka tirotiro tata tō rōpū hauora i a koe, ka tango i ngā kaupae hei aukati i ngā raruraru i mua i te whanake.

Me pēhea te whakatau i te mate Huinga-Barré?

Ko te whakatau i te mate Huinga-Barré e whakauru ana i ngā whakamātautau maha, na te mea kāore he whakamātautau kotahi e taea te whakau i te āhuatanga. Ka tīmata tō tākuta me te kōrero taipitopito mo ō tohu me te tirotiro tinana hei tirotiro i tō kaha uaua, ngā whakaata, me te pūāhua.

Ko te tohu whakatau tino nui ko te tauira o te ngoikore e tīmata ana i ō waewae ka neke ki runga, me te whakaiti rānei, te kore rānei o ngā whakaata. Ka whakamātautau tō tākuta i ō whakaata mā te patu i ō turi, waewae, me ō ringa ki te hama iti. I roto i te mate Huinga-Barré, he ngoikore, he kore rawa rānei ēnei whakaata.

E rua ngā whakamātautau matua e awhina ana ki te whakau i te whakatau. Ko te whakakī lumbar, te whakakī tuaiwi rānei, e whakauru ana ki te tango i te tauira iti o te wai e karapotia ana tō tuaiwi me tō roro. I roto i te mate Huinga-Barré, he nui te pūmua o tēnei wai, engari he maha ngā pūtau.

Ka ine ngā rangahau arahi uaua i te tere o te haere o ngā tohu hiko i roto i ō ngongo uaua. Ka whakauru ēnei whakamātautau ki te whakanoho i ngā electrodes iti ki tō kiri, me te tuku i ngā pūkaha hiko iti hei ine i te mahi uaua. Ahakoa kāore i te mamae, ka taea te kore ngāwari.

I etahi wā ka mahia ngā whakamātautau atu pēnei i ngā tirotiro MRI, ngā whakamātautau toto rānei hei whakakore i ētahi atu āhuatanga ka puta ngā tohu rite. Ka taea te roa o te tukanga whakatau, engari he mea nui kia tino tika kia whakarite ai koe ki te whiwhi i te maimoatanga tika.

He aha te maimoatanga mō te mate Huinga-Barré?

Ko te maimoatanga mō te mate Huinga-Barré e aro nui ana ki te whakaiti i te whakaeke a te pūnaha ārai mate ki ō ngongo uaua me te tautoko i tō tinana i te wā e ora ana. Kāore he rongoā, engari ka taea e ngā maimoatanga e rua te tere ake o te ora me te whakaiti i te kino o ngā tohu.

Ko te immunoglobulin intravenous (IVIG) te maimoatanga tuatahi. Ka whakauru tēnei ki te whiwhi i ngā antibodies mai i ngā kai hoatu toto hauora mā te IV i ngā rā maha. Ka awhina ēnei antibodies ki te whakataurite i tō pūnaha ārai mate kaha, ka whakaiti i te whakaeke ki ō ngongo uaua. Ka taea e te nuinga o te iwi te whakaae pai ki tēnei maimoatanga, ahakoa ka taea e ētahi te mamae o te upoko, ngā tohu rite rewharewha rānei.

Ko te plasmapheresis, te whakawhiti plasma rānei, tētahi atu maimoatanga whai hua. Ka whakauru tēnei tukanga ki te tango i tō toto, te wehewehe i te waipiro (plasma) e whakauru ana i ngā antibodies kino, me te whakahoki i te toto ma ki tō tinana. He rite ki te horoi i tō toto kia tangohia ngā mea e whakaeke ana i ō ngongo uaua.

Ka pai rawa te mahi o ngā maimoatanga e rua ina tīmata wawe, ina koa i roto i ngā wiki e rua o te tīmatanga o ngā tohu. Ka tīpako tō tākuta i waenganui i a rāua i runga i tō āhuatanga motuhake, te wātea, me ētahi atu take hauora. Ka whakaatu te rangahau he rite te whai hua o ngā mea e rua, no reira kaua e manukanuka mena ka tūtohutia tetahi atu.

I tua atu i ēnei maimoatanga motuhake, he mea nui te tiaki tautoko. Ka uru tēnei ki te rongoā tinana hei pupuri i te mahi uaua, te whakahaere mamae, te tirotiro mō ngā raruraru, me te tautoko manawa mena e hiahiatia ana. Ko te whāinga ko te pupuri i tō tinana kia hauora i te wā e ora ana ō ngongo uaua.

Me pēhea te whakahaere i te tiaki i te kāinga i te wā e ora ana i te mate Huinga-Barré?

Ko te whakahaere i te ora o te mate Huinga-Barré i te kāinga e hiahia ana ki te manawanui, te tautoko, me te aro ki ngā hiahia e rerekē ana o tō tinana. Ka taea te roa o tō wā ora i ngā wiki ki ngā marama, no reira he mea nui te hanga i te taiao tautoko mō tō tukanga ora.

He mea nui te rongoā tinana me te whakakori ngawari ki tō ora. Mahi tahi me te kai rongoā tinana hei whakawhanake i te kaupapa whakakori haumaru e pupuri ana i te kaha uaua me te ngawari, kāore e nui rawa. Tīmata haere haere, whakanuia haere te mahi i te wā e hoki mai ana tō kaha. Ka taea e ngā whakakori nekehanga ngawari te āwhina ki te aukati i te ngoikore me ngā uaua.

He mea nui te whakahaere mamae i te wā e ora ana. Ka maha ngā tāngata e pā ana ki te mamae o ngā uaua, ngā mamae uaua, te ngoikore o ngā hononga rānei. Mahi tahi me tō tākuta ki te kimi i ngā huarahi whakaora mamae whai hua, ka uru pea ki ngā rongoā, te rongoā wera, te mirimiri ngawari, ngā tikanga whakahāwea rānei. Kaua e mamae pūmau - he wāhanga nui te whakahaere mamae o te ora.

Ko ēnei ngā āhuatanga matua o te tiaki kāinga:

• Whai i tō kaupapa whakaora tonu
• Tangohia ngā rongoā rite tonu ki te whakaritea
• Kai kai kai hauora hei tautoko i te ora o ngā uaua
• Whiwhi i te okioki tika i te wā e noho ana i te mahi haumaru
• Whakamahia ngā taputapu awhina pēnei i ngā kaihaere, ngā pa rānei e tūtohutia ana
• Noho hono atu ki ngā hoa me ngā whānau mō te tautoko hinengaro

Tirohia ō tohu, noho hono atu ki tō rōpū hauora. Pānuihia tetahi ngoikore kino, ngā tohu hou, ngā āwangawanga rānei mō tō ahunga whakamua ora. Kia mahara kāore te ora i te tika - ka taea e koe te whai i ngā rā pai me ngā rā wero, ā, he mea noa tēnā.

Me pēhea te whakarite mō tō hui tākuta?

Ko te whakarite pai mō tō hui tākuta ka taea te awhina i a koe ki te whiwhi i te whakatau tika me te maimoatanga tika. I te mea ka taea e ngā tohu o te mate Huinga-Barré te whakawhānui me te whakarerekē tere, he mea nui te whakarite pai.

I mua i tō hui, tuhia ō tohu katoa ki te taipitopito, tae atu ki te wā i tīmata ai rātou, te ahunga whakamua, me te aha e pai ake ai, e kino ake ai rānei. Kia mārama te tauira - i tīmata te ngoikore i ō waewae ka neke ki runga? Kua kite koe i ngā huringa i te pūāhua, te mamae, ētahi atu tohu rānei? Ka taea e tēnei raupapa te whakarato i ngā tohu whakatau nui.

Kawe mai i te rārangi katoa o ngā mate hou, ngā mate, ngā inopere, ngā pokanga, ngā whara rānei i whiwhi koe i ngā marama e rua kua pahure. Ahakoa tetahi mea iti, pēnei i te mate puku, te mate manawa rānei, ka taea te hono atu. Rārangihia hoki ngā rongoā, ngā taapiri, ngā rongoā-a-te-kāinga rānei e tangohia ana e koe.

Whakaarohia te kawe mai i te mema whānau, te hoa tata rānei ki tō hui. Ka taea e rātou te awhina i a koe ki te mahara ki ngā kōrero nui, ki te ui i ngā pātai ka wareware pea koe, ki te whakarato tautoko i te wā ka taea te nui.

Whakaritea ngā pātai motuhake mō tō āhuatanga, ngā huarahi maimoatanga, me te aha e tatari ana. Kaua e whakaroa ki te ui mō tetahi mea e awangawanga ana koe, mai i ngā pānga o te maimoatanga ki ngā wā ora. E hiahia ana tō rōpū hauora kia tino mārama koe, kia mārama ki tō mahere tiaki.

He aha te mea nui mō te mate Huinga-Barré?

Ko te mea nui rawa hei mārama mō te mate Huinga-Barré ko te mea ahakoa ka taea te wehi me te kino, ka ora te nuinga o te iwi me te tiaki hauora tika. Ka roa te ora - ngā marama, kaua ko ngā wiki - engari he āhei te pai ake me te tino maimoatanga me te tautoko.

Ka whakarereke nui te mohiotanga wawe me te maimoatanga i ngā hua. Mena ka pā ki a koe te ngoikore o ngā uaua e tere ana te whanake, ina koa e tīmata ana i ō waewae ka neke ki runga, rapu tūturu i te tiaki hauora. Kaua e tatari kia pai ake ngā tohu, i te mea ka taea e te maimoatanga tere te whakaiti i te kino me te roa o te āhuatanga.

Kia mahara kei te whakaatu te whai i te mate Huinga-Barré kāore koe i te ngoikore, kāore hoki koe e ora katoa. Ka hoki te tokomaha ki ō rātou mahi me te kounga ora, ahakoa e hiahia ana te haerenga ki te manawanui, te tautoko, me te whakaute ki te whakaora. Noho hono atu ki tō rōpū hauora, whai i tō mahere maimoatanga, kaua hoki e whakaroa ki te toro atu ina hiahia koe ki te awhina.

Kāore koe i te kotahi i roto i tēnei haerenga. Ngā rōpū tautoko, whānau, hoa, me tō rōpū hauora he wāhanga katoa o tō whatunga ora. Aro nui ki te tango i ngā mea kotahi i te rā, me te whakanui i ngā whakapainga iti i te huarahi.

Ngā pātai uiui noa mō te mate Huinga-Barré

P.1 Ka taea te hoki mai o te mate Huinga-Barré i muri i toku ora?

He onge rawa te hokinga mai o te mate Huinga-Barré, ka puta i raro i te 5% o te hunga kua whiwhi. Ko te nuinga o te hunga e ora ana kāore e pā atu. Mena kei a koe ngā wāhanga ngoikore, ka hiahia tō tākuta ki te tirotiro mena he whakahoki mai tēnei, he āhuatanga rerekē rānei e rite ana ki te mate Huinga-Barré.

P.2 Kia pehea te roa o te ora mai i te mate Huinga-Barré?

He rerekē te wā ora mai i te tangata ki te tangata. Ka tīmata te nuinga o te iwi ki te kite i te pai ake i roto i ngā wiki torutoru o te maimoatanga, engari ka taea te ora katoa mai i ngā marama ki te tau, neke atu rānei. Ko te 80% o te iwi ka ora katoa, tata katoa rānei. Ko te mea nui ko te manawanui ki te tukanga me te whakaute ki tō kaupapa whakaora.

P.3 Ka taea e au te hoki ki te mahi me ngā mahi noa?

Ka hoki te tokomaha o te hunga e pangia ana e te mate Huinga-Barré ki ō rātou mahi me ngā mahi noa, ahakoa he rerekē te wā. Ka hoki mai ētahi ki te mahi katoa i roto i ngā marama, ā, ka hiahia pea ētahi ki te roa atu, ki ētahi whakawhitinga tonu rānei. Ka whakawhirinaki tō ora ki ngā take pēnei i te kino o ō tohu, te tere o te whiwhi maimoatanga, me tō hauora whānui.

P.4 He whakatūpato, he ira rānei te mate Huinga-Barré?

Kāore i te whakatūpato te mate Huinga-Barré mai i ō mātua, kāore hoki e taea e koe te tuku atu ki ō tamariki. Ahakoa ka taea pea etahi take ira e pā ana ki te hunga e whanake ana i te āhuatanga i muri i ētahi take, kāore i te whakaarohia he mate whakatūpato. Ko te whai i te mema whānau e pangia ana e te mate Huinga-Barré kāore e whakanui nui i tō morearea ki te whanake.

P.5 Ka taea e au te aukati i te mate Huinga-Barré?

Kāore he huarahi motuhake hei aukati i te mate Huinga-Barré, na te mea kāore i te tino mārama te take i whanake ai ētahi i muri i ngā mate, ētahi kāore. Ko te huarahi pai ko te pupuri i te hauora whānui pai, te mahi i te horoi pai hei aukati i ngā mate, me te rapu tiaki hauora tika mō ngā mate. Kaua e karo i ngā inopere nā te wehi o te mate Huinga-Barré - he iti rawa te morearea, ā, he nui ake ngā painga o te inopere i tēnei morearea iti.