He aha te Hemochromatosis? Tohutohu, Take, me te Maimoatanga

Ko te Hemochromatosis tētahi āhuatanga kei te nui rawa te rino e tangohia ana e tō tinana i te kai e kai ana koe. Ki te kore e whakakore i te rino tāpiri, ka tāpirihia e tō tinana ki ngā kōpū pērā i tō ate, ngā ngākau, me te pancreas, ka mutu ka pakaru pea mena kāohore i te maimoatanga.

Whakaarohia he putea whakaora kāohore e mutu te kohikohi moni. Ahakoa he mea nui te rino mō tō hauora, ka kino rawa te nui o te rino i te roanga o te wā. Ko te rongo pai, mā te kite wawe me te maimoatanga tika, ka ora te nuinga o te hunga he hemochromatosis i ngā oranga noa, hauora.

He aha ngā tohu o te hemochromatosis?

He tokomaha ngā tāngata he hemochromatosis kāohore e kite i ngā tohu i ngā wā tuatahi. Ka puta mai ngā tohu, ka tupu haere pea, ā, ka ngāwari te whakaaro he take hauora noa.

Ko ēnei ngā tohu ka kite pea koe i te whakarahi o te rino i roto i tō tinana:

• Te ngenge tonu kāohore e pai ake te okioki
• Te mamae o ngā hononga, ina koa i ō ringa me ō turi
• Te mamae o te kopu, ina koa i te taha matau o runga
• Te ngaro o te hiahia mo te moe, te ngoikoretanga rānei o te taangata
• Te huri o te kiri ki te parauri, te hina rānei
• Te ngaro o te makawe kāohore he take
• Te pupuhi o te ngākau, te kore rānei o te ngākau
• Ngā mate maha
• Ngā raruraru māhara, te uaua rānei ki te aro

I ngā take tino nui, ka kite pea koe i te poto o te manawa, te pupuhi nui o te kopu, te tohu rānei o te mate huka pērā i te matewai nui me te mimi. Ka tupu tēnā i muri i ngā tau o te kohikohi rino, koia tētahi take nui te kite wawe.

He aha ngā momo hemochromatosis?

E rua ngā momo matua o te hemochromatosis, ā, ko te mōhiotanga ki te momo pea kei a koe ka āwhina ki te whakatau i te huarahi maimoatanga pai. Ko te hemochromatosis matua te momo i whakawhiwhia mai, ko te hemochromatosis tuarua ka tupu nā ētahi atu āhuatanga hauora.

Ko te hemochromatosis matua te take nā ngā rerekētanga ira e whiwhi ana koe i ō mātua. Ko te momo tino noa ko te hemochromatosis HFE, e pā ana ki te nuinga o te hunga he āhuatanga tēnei. He momo ira iti hoki pērā i te hemochromatosis taitamariki, e puta ana i mua i te ora, ā, ka tere ake te whakawhāiti.

Ka puta te hemochromatosis tuarua ina ka whakaarahia e ētahi atu āhuatanga te rino i roto i tō tinana. Ka taea tēnā te puta mai i ngā whakawhānui toto maha, ētahi momo mate toto, te mate ate roa, te tango rānei i te maha o ngā taapiri rino i te roanga o te wā.

He aha te take o te hemochromatosis?

Ko te hemochromatosis matua te take nā ngā rerekētanga ira e pā ana ki te āhua e whakahaere ana tō tinana i te tango rino. Ko te mea tino nui ko te rerekētanga i roto i te ira HFE, e āwhina ana ki te whakahaere i te nui o te rino e tangohia ana e ō whekau mai i te kai.

Ki te kore e mahi tika tēnei ira, ka whakaaro tō tinana he nui ake te rino e hiahiatia ana, ā, ka mau tonu ki te tango mai i tō kai. I ngā marama me ngā tau, ka kohikohi tēnei rino tāpiri ki ō kōpū. Me whiwhi koe i te ira kino i ō mātua e rua kia puta ai te āhuatanga, ahakoa ko te kotahi anake te kape ka taea tonu te whakaara i te rino iti.

Kāore i te noa, ka taea e ngā rerekētanga i roto i ētahi atu ira pērā i te TFR2, HAMP, HJV rānei te whakaara i ngā momo hemochromatosis whakatūpato. Ka tupu pea ngā momo iti ake i te tere ake te kohikohi rino, i ngā tau tamariki rānei, i ngā tau taiohi rānei.

Ka puta te hemochromatosis tuarua ina ka whakaarahia e ētahi atu āhuatanga hauora, te maimoatanga rānei te nui o te rino. Ko te maha o ngā whakawhānui toto, ētahi mate toto pērā i te thalassemia, te mate huaketo C roa, te inu waipiro roa rānei ka taea te arahi ki te nui o te rino i roto i tō tinana.

Nōhea te haere ki te taakuta mō te hemochromatosis?

Me whakaaro koe ki te haere ki tō taakuta ki te pā ana koe ki te ngenge tonu me te mamae o ngā hononga, ina koa ki te kāore he take mārama mō ēnei tohu. He tokomaha ngā tāngata e whakaaro ana he noa te pakeketanga, te ahotea rānei, engari he mea tika te tirotiro.

He mea nui rawa te tirotiro mena he hītori whānau koe o te hemochromatosis, te mate ate, te mate huka, te raruraru ngākau rānei e hono ana ki te nui o te rino. Na te mea he āhuatanga ira tēnei, ka taea e te tirotiro whānau te hopu i mua i te puta mai o ngā tohu.

Rapua te awhina hauora wawe mena ka kite koe i te huri o te kiri ki te parauri, te hina rānei, te mamae nui o te kopu, te poto o te manawa, te tohu rānei o te mate huka. Ka whakaatu ēnei tohu i te kohikohi rino tino nui e hiahia ana ki te aromatawai me te maimoatanga wawe.

Kaua e tatari mena he tohu whakaaro koe me te hītori whānau o te āhuatanga. Ka taea e te kite wawe me te maimoatanga te aukati i ngā raruraru nui, ā, ka āwhina i a koe ki te pupuri i te hauora pai.

He aha ngā take morearea mō te hemochromatosis?

Ko tō morearea o te whanake i te hemochromatosis e whakawhirinaki ana ki ō ira me tō hītori whānau. Ka taea e te mōhiotanga ki ēnei take morearea te āwhina i a koe me tō taakuta ki te whakatau mena he tika te tirotiro mōu.

Ko ngā take morearea matua ko ēnei:

• He mātua, he teina rānei he hemochromatosis
• He uri o te Raki o Ūropi, ina koa te Celtic
• He tane (ka tere ake te puta mai o ngā tohu i ngā wāhine)
• He muri-menopause mena he wahine koe
• He mate toto e hiahia ana ki ngā whakawhānui
• Te mate ate roa mai i tetahi take
• Te whakamahinga roa o ngā taapiri rino kāohore he tirotiro hauora

Ka tupu pea ngā tohu i ngā tāne i waenga i ngā tau 40-60, kāohore pea ngā wāhine e whakaatu tohu tae noa ki muri i te menopause. Ka puta tēnā nā te ngaro o te rino i ngā wāhine i te wa o te menestrual, e tiaki ana i te whakarahi o te rino i ō rā tau whānau.

Ahakoa he take morearea ira koe, ka taea e ngā whiringa ora pērā i te whakaiti i te inu waipiro me te karo i ngā taapiri rino kāore e hiahiatia te whakaiti i tō morearea o ngā raruraru.

He aha ngā raruraru pea o te hemochromatosis?

Ki te kore e maimoatia te hemochromatosis mō ngā tau, ka taea e te rino nui te whakaiti i ngā kōpū maha i roto i tō tinana. Ko te rongo pai, ka taea e te maimoatanga wawe te aukati i te nuinga o ēnei raruraru.

Ko ēnei ngā raruraru matua ka tupu pea i te roanga o te wā:

• Te pakaru o te ate, tae atu ki te cirrhosis me te nui ake o te morearea o te mate ate
• Ngā raruraru ngākau pērā i ngā rereketanga kore ranei o te ngākau
• Te mate huka mai i te pakaru o te rino ki te pancreas
• Te mate hononga, ina koa i ngā ringa me ngā turi
• Ngā huri o te kiri pea ka mau tonu
• Te ngoikoretanga o te taangata me ngā raruraru momona
• Ngā mate thyroid
• Te nui ake o te morearea o ngā mate

Ko te ate te kōpū tuatahi e whakaatu ana i te pakaru nui, koia tētahi take nui te tirotiro tonu. Ka taea e ngā raruraru ngākau te tino kino, engari kei roto hoki i ngā mea tino taea te aukati mā te maimoatanga tika.

Ka taea te mutu, te whakahoki rānei i te nuinga o ngā raruraru mena ka kite wawe. Koia tētahi take nui te tirotiro i ngā mema whānau me te tīmata i te maimoatanga i mua i te puta mai o ngā tohu.

Me pēhea te aukati i te hemochromatosis?

Na te mea he āhuatanga ira whakawhiwhia mai te hemochromatosis matua, kāore e taea e koe te aukati i te āhuatanga anō. Engari, ka taea e koe te aukati i ngā raruraru me ngā tohu mā te kite wawe me ngā whiringa ora.

Mena he hītori whānau koe o te hemochromatosis, ka taea e te whakamātautau ira me te tirotiro tonu i te taumata rino te hopu i te āhuatanga i mua i te pakaru o te kōpū. Ko te tīmatanga o te maimoatanga wawe ka taea e koe te ora i te oranga noa kāore he tohu.

Ka taea hoki e koe te whakaiti i tō morearea o te nui o te rino mā te karo i ngā taapiri rino kāore e hiahiatia, te whakaiti i ngā taapiri huaora C (e whakaara ana i te tango rino), me te whakahaere i te inu waipiro. He mea nui ēnei kaupae ina mau ana koe i ngā rerekētanga ira mō te hemochromatosis.

Mō te aukati i te hemochromatosis tuarua, mahi tahi me tō taakuta ki te whakahaere i ētahi atu āhuatanga e taea ai te whakaara i te rino, ā, tangohia ngā taapiri rino ina hiahiatia ana e te hauora.

Me pēhea te whakatau i te hemochromatosis?

Ko te maimoatanga matua mō te hemochromatosis he mea ngāwari, he tino whai hua: te tango tonu i te toto i tō tinana mā te tukanga e kiia nei ko te phlebotomy. Koinei te mea rite ki te hoatu toto, engari he mea motuhake hei whakaiti i ō taumata rino.

I te tīmatanga, ka hiahia pea koe ki te phlebotomy kotahi, rua rānei i te wiki tae noa ki te hoki mai ō taumata rino ki te noa. Ka roa pea tēnā i ngā marama maha ki te tau, kei te nui o te rino tāpiri kua tāpirihia e tō tinana. Kia noa ō taumata, ka hiahia pea koe ki te phlebotomy tiaki i ngā marama torutoru.

Ko te maimoatanga he mea ngāwari te manawanui, ā, ka pai ake te ngākau o te nuinga o te iwi i te pai ake o ō rātou taumata rino. Ka iti pea tō ngenge, ka pai ake pea te mamae o ngā hononga, ā, ka heke te morearea o ngā raruraru.

Mō te hunga kāore e taea te manawanui ki te phlebotomy nā ētahi atu āhuatanga hauora, ka taea e tō taakuta te whakahau i te maimoatanga chelation rino. Ka āwhina ēnei rongoā i tō tinana ki te whakakore i te rino nui mā te mimi, te paru rānei, ahakoa ka whakaritea pea mō ngā take motuhake.

Me pēhea te whakahaere i te hemochromatosis i te kāinga?

Ko te whakahaere i te hemochromatosis i te kāinga ko te mahi i ngā whiringa kai mātauranga me ngā whakarerekētanga ora e tautoko ana i tō maimoatanga. Ka taea e ēnei whakarerekētanga te whakapai ake i ō taumata rino me te whakapai ake i tō āhua i te rā.

Whakaitihia ngā kai he nui rawa te rino, ina koa te mīti whero, ngā kōpū mīti, me ngā witi kua whakakikitia ki te rino. Kāore koe e hiahia ki te whakakore i ēnei kai, engari ko te whakahaere ka āwhina i tō maimoatanga kia mahi pai ake. Aro atu ki te kai rite me te nui o ngā hua, ngā huawhenua, me ngā witi katoa.

Karohia te tango i ngā taapiri rino, ngā huaora maha rānei kei roto te rino kāore i te whakahauhia e tō taakuta. Waihoki, whakaitihia ngā taapiri huaora C, na te mea ka whakaarahia e te huaora C te tango rino mai i te kai.

Whakaarohia te inu tii, kōpi rānei me ngā kai, na te mea ka taea e ēnei inu te whakaiti i te tango rino. Ko te whakahaere i te inu waipiro, te karo rānei ka āwhina hoki ki te tiaki i tō ate me te tautoko i tō mahere maimoatanga katoa.

Me pēhea te whakarite mō tō hui taakuta?

I mua i tō hui, kohikohia ngā mōhiohio mō tō hītori hauora whānau, ina koa ngā whānau he mate ate, mate huka, raruraru ngākau rānei, hemochromatosis rānei. Ka āwhina ēnei mōhiohio i tō taakuta ki te aromatawai i tō morearea me te whakarite i te whakamātautau tika.

Hangaia tētahi rārangi o ō tohu katoa, tae atu ki te wā i tīmata ai rātou me te āhua e pā ana ki tō oranga o ia rā. Kaua e wareware ki te kōrero mō te ngenge, te mamae o ngā hononga, ngā huri o te kiri rānei, ētahi atu āhuatanga rānei, ahakoa kaore pea e hono ana.

Mau mai tētahi rārangi katoa o ngā rongoā, ngā taapiri, me ngā huaora katoa e tangohia ana e koe. Tāpirihia ngā taapiri rino, ngā huaora maha rānei, ngā rongoā otaota rānei, na te mea ka pā pea ēnei ki ō taumata rino.

Whakaritea ngā pātai mō te āhuatanga, ngā whiringa maimoatanga, me te mea e tatari ana koe ki te haere whakamua. Pātaihia mō ngā tūtohu tirotiro whānau me te pea he awhina te tohutohu ira mōu me ō whānau.

He aha te mea nui mō te hemochromatosis?

He āhuatanga tino taea te whakahaere te hemochromatosis ina kite wawe, ā, maimoatia tika. Mā te phlebotomy tonu me ngā whakarerekētanga ora tika, ka taea e te nuinga o te hunga he hemochromatosis te ora i ngā oranga noa, hauora kāore he raruraru.

Ko te mea nui rawa ki te mahara ko te kite wawe te mea nui. Mena he hītori whānau koe o te āhuatanga, te ngenge tonu rānei me te mamae o ngā hononga, kaua e whakaroa ki te kōrero mō te tirotiro ki tō taakuta.

He mea ngāwari, he tino whai hua te maimoatanga, ā, ko te tīmatanga wawe, ko te pai ake o tō tirohanga roa. He tokomaha ngā tāngata e pai ake ana te āhua i ngā tau i muri i te whakahaere tika o ō rātou taumata rino.

Ngā pātai e ui pinepinetia ana mō te hemochromatosis

Ka taea te whakaora i te hemochromatosis?

Ahakoa kāore he rongoā mō te āhuatanga ira anō, ka taea te whakahaere katoa i te hemochromatosis mā te maimoatanga tika. Ka whakahaere tika te phlebotomy tonu i ngā taumata rino, ā, ka aukati i ngā raruraru. Ko te nuinga o te hunga he hemochromatosis pai te whakahaere e ora ana i ngā oranga noa, hauora kāore he tohu, he whakawhāiti rānei.

Nōhea te hiahia ki ngā maimoatanga tango toto?

I te tīmatanga, ka hiahia pea koe ki te phlebotomy kotahi, rua rānei i te wiki tae noa ki te noa ō taumata rino, e 6-12 marama pea tēnā. I muri i tēnā, ka hiahia pea te nuinga o te hunga ki ngā maimoatanga tiaki i ngā marama 2-4. Ka tirotirohia e tō taakuta ō taumata rino, ā, ka whakarite i te auau e rite ana ki ō hiahia.

Ka whiwhi rānei aku tamariki i te hemochromatosis?

Mena he hemochromatosis koe, he 25% te tupono o ia tamaiti ki te whiwhi i te āhuatanga mena kei te mau hoki tō hoa i te rerekētanga ira. Engari, ko te mau i te kotahi te kape o te ira (he kaimau) kāore e tupu ngā raruraru. Ka taea e te tohutohu ira te āwhina i a koe ki te mōhio ki ngā morearea me ngā whiringa whakamātautau mō tō whānau.

Ka taea te hoatu toku toto i ngā maimoatanga phlebotomy?

I ngā wāhi maha, ka taea te hoatu te toto i tangohia i te wa o te phlebotomy rongoā mō te hemochromatosis ki ngā pēke toto, te āwhina i ētahi atu turoro i te wa e maimoatia ana tō āhuatanga. Ka pai ake ai tō maimoatanga mōu me ētahi atu e hiahia ana ki ngā whakawhānui toto. Tirohia ki tō pokapū maimoatanga mō ngā kaupapa hoatu i tō rohe.

He hono rānei te hemochromatosis ki te mate toto iti?

Ko te hemochromatosis te mea ke o te mate toto iti. Ahakoa ko te mate toto iti te tikanga kāore i te nui te rino, ko te hemochromatosis te tikanga he nui rawa te rino kua tāpirihia ki tō tinana. Engari, ka taea e ētahi tāngata he mate toto iti e whiwhi ana i ngā whakawhānui toto maha te whakaara i te nui o te rino tuarua, e hiahia ana ki ngā huarahi maimoatanga rite.