He aha te Henoch-Schönlein Purpura? Tohutohu, Take, me te Maimoatanga

Ko te Henoch-Schönlein purpura (HSP) tētahi āhuatanga e mumura ana ngā oko toto iti, e puta ai tētahi pupuhi motuhake, ā, i ētahi wā ka pā ki ō whatukuhu, ngā hononga, me tō pūnaha kai. Ko te momo mumura oko toto tino noa i ngā tamariki, ahakoa ka taea e ngā pakeke te whiwhi.

Whakaarohia te HSP hei whakapohehe iti o tō pūnaha ārai mate, e whakaeke ana i ō ake oko toto mā te he. Ahakoa ka rongo pea tenei he wehi, ka ora katoa te nuinga o te iwi ki te tiaki tika me te tirotiro.

He aha te Henoch-Schönlein Purpura?

Ko te HSP tētahi āhuatanga autoimmune e whakaeke he ana te pūnaha tiaki a tō tinana i ngā oko toto iti puta noa i tō tinana. Ko tēnei whakaeke ka puta ai te rere o te toto me te wai ki ngā kiko a tawhio noa.

Ko te ingoa o te āhuatanga i whiwhi mai i ngā taote tokorua i whakaahua tuatahi i te taipitopito. Ko te "Purpura" te tohutohu ki ngā tohu whero-papura e puta ana ki tō kiri ina rere te toto i ngā oko kua pakaru.

Ko te nuinga o ngā take ka puta i ngā tamariki i waenga i ngā tau 2 me te 11, me ngā tamaiti he iti ake te pānga atu i ngā kōhine. Ka taea hoki e ngā pakeke te whanake i te HSP, ahakoa he iti ake te noa me te kaha ake pea.

He aha ngā tohu o te Henoch-Schönlein Purpura?

Ko te tohu tohu o te HSP he pupuhi motuhake e rite ana ki ngā tohu papura, whero iti rānei ki tō kiri. Kāore ēnei tohu e ngaro ina pēhi koe ki a rātou, ā, tēnei e āwhina ana i ngā taote ki te whakamārama i a rātou mai i ētahi atu momo pupuhi.

Ko ēnei ngā tohu matua ka kite pea koe:

• Pupuhi whero-papura (purpura) e tīmata ana i ngā waewae me ngā hope
• Te mamae me te pupuhi o ngā hononga, ina koa i ngā turi me ngā turi
• Te mamae o te kopu ka taea te kōkō rānei
• Te toto i roto i te mimi, te pūmua rānei i roto i te mimi (ahakoa kaore pea koe e kite i tēnei)
• Te ruaki me te ruaki
• Te pupuhi i ngā ringa, ngā waewae, te mata rānei

Ko te pupuhi te nuinga ka puta tuatahi ki ō waewae raro me ō hope, katahi ka horapa pea ki runga. Ko ētahi tāngata ka whanake i ēnei tohu katoa, ā, ko ētahi atu ka torutoru noa iho.

I roto i ngā take onge, ka pāngia pea koe e ngā raruraru nui ake penei i te mamae o te kopu nui e rite ana ki te appendicitis, te raruraru nui o ngā whatukuhu e puta ai te toto toto nui, te toto e kitea ana rānei i roto i te mimi.

He aha ngā take o te Henoch-Schönlein Purpura?

Kāore i tino mōhiotia te take pono o te HSP, engari i te nuinga ka whai i te mate, ina koa ngā mate manawa o runga penei i te mate huka, te mate kōroheke rānei. Kei te kitea te pūnaha ārai mate ka whakaohohia, ka whakaeke he i ō ake oko toto.

He maha ngā take ka taea te whakaoho i te HSP:

• Ngā mate huaketo (penei i te mate huka, te mate huka, te mate moa rānei)
• Ngā mate huaketo (ina koa te mate kōroheke)
• Ētahi rongoā (ahakoa he onge tenei)
• Ngā mate pāwera kai, ngā ngoikoretanga rānei
• Ngā ngau pepeke
• Te wera o te rangi

I roto i te maha o ngā take, kaore pea koe e taea te tohu i tētahi whakaoho motuhake. Kāore tēnei e kī he he te mahi a koe – i ētahi wā ka puta noa te HSP kaore he take mārama.

He onge, ka taea te hono atu te HSP ki ētahi atu āhuatanga autoimmune, te puta rānei hei wāhanga o te mate pūnaha ārai mate uaua ake.

Nōhea te haere ki te taote mō te Henoch-Schönlein Purpura?

Me haere koe ki te taote mena ka kite koe i te pupuhi kāore e ngaro ina pēhia, ina koa ki te hono atu ki te mamae o ngā hononga, te koretake o te kopu rānei. Ko te aromatawai wawe e āwhina ana ki te whakarite i te tautuhi tika me te tirotiro.

Rapua te awhina hauora tonu mena ka pāngia koe e:

• Te mamae o te kopu nui kāore e ngaro
• Te ruaki e ārai ana i a koe ki te pupuri i ngā wai
• Te toto i roto i tō mimi e taea te kite
• Te pupuhi o tō mata, ringa, waewae rānei
• Te kirika nui me te pupuhi
• Ngā tohu o ngā raruraru whatukuhu nui penei i te iti o te mimi

Ahakoa he ngawari te ahua o ō tohu, he pai ki te tirotiro. Ka taea e tō taote te whakau i te tautuhi me te whakarite i te tirotiro hei hopu i ngā raruraru i te tīmatanga.

He aha ngā take morearea mō te Henoch-Schönlein Purpura?

He maha ngā take e piki ake ai tō tūmanako ki te whanake i te HSP, ahakoa ko te whai i ēnei take morearea kāore e kī ka whiwhi pono koe i te āhuatanga. Ko te mārama ki a rātou ka taea te āwhina i a koe ki te mohio wawe i ngā tohu.

Ko ngā take morearea matua ko:

• Te tau (tino noa i waenga i ngā tau 2-11)
• Ko te tane (he nui ake te morearea i ngā wahine)
• Te mate manawa o runga tata nei
• Ngā wa o te ngahuru me te puna (ina noa ake ngā mate)
• Te whai i ētahi atu āhuatanga autoimmune i roto i tō whānau
• Ētahi take ira e pā ana ki te mahi o te pūnaha ārai mate

Ko ngā pakeke e whanake ana i te HSP pea he rerekē ngā take morearea, tae atu ki ētahi rongoā, ngā āhuatanga hauora rānei e noho ana. Ka taea te kaha ake o te āhuatanga i ngā pakeke i ngā tamariki.

He aha ngā raruraru pea o te Henoch-Schönlein Purpura?

Ahakoa ka ora katoa te nuinga o te iwi me te HSP, he mea nui te mārama ki ngā raruraru pea kia taea ai te mataara mō ngā tohu whakatūpato. Ko te rongo pai ko ngā raruraru nui he onge, ina koa ki te tirotiro tika.

Ko ngā raruraru tino noa ko:

• Ngā raruraru whatukuhu (e pā ana ki te 30-50% o te iwi me te HSP)
• Te mamae o te kopu nui pea e hiahia ana ki te noho whare hauora
• Te uaua o ngā hononga ka roa pea mō ngā wiki, ngā marama rānei
• Te tohu kiri i ngā wāhi i nui te pupuhi
• Te hokinga mai o ngā tohu i muri i ngā wiki, ngā marama rānei

Ko te whakauru whatukuhu te raruraru pea tino nui. Ka taea tēnei te rere mai i te pūmua iti i roto i te mimi ki te mumura whatukuhu nui ake e hiahia ana ki te maimoatanga.

Ko ngā raruraru onge engari nui ko te toto nui o te pūnaha kai, te aukatinga o te kopu, te mate whatukuhu roa rānei. Ko ēnei te tino pea ka puta i ngā pakeke i ngā tamariki.

Me pēhea te tautuhi i te Henoch-Schönlein Purpura?

Kāore he whakamātautau kotahi e tautuhi pono ana i te HSP. Engari, ka titiro tō taote ki ō tohu, ka tirotiro i tō pupuhi, ka whakahaere i ngā whakamātautau maha hei whakakore i ētahi atu āhuatanga me te tirotiro i ngā raruraru.

Ka tīmata pea tō taote me te tirotiro tinana, e arotahi ana ki tō pupuhi, ngā hononga, me te kopu. Ka pēhi rātou ki ngā tohu pupuhi hei kite mena ka ngaro, ā, tēnei e āwhina ana ki te whakamārama i te HSP mai i ētahi atu āhuatanga.

Ko ngā whakamātautau noa ko:

• Ngā whakamātautau mimi hei tirotiro i te toto, te pūmua rānei
• Ngā whakamātautau toto hei tirotiro i te mahi whatukuhu me te whakakore i ētahi atu āhuatanga
• Ngā ine toto toto
• I ētahi wā he tātaritanga kiri mena kāore i mārama te tautuhi
• Ngā whakamātautau paru mena he tohu o te pūnaha kai

Ko te tautuhi te nuinga e hāngai ana ki te whai i te pupuhi tohu me te kotahi atu tohu iti rawa penei i te mamae o ngā hononga, te mamae o te kopu, te whakauru whatukuhu rānei.

He aha te maimoatanga mō te Henoch-Schönlein Purpura?

Ko te maimoatanga mō te HSP e arotahi ana ki te whakahaere i ngā tohu me te aukati i ngā raruraru, i te mea kāore he rongoā mō te āhuatanga e noho ana. Ko te rongo pai ko te nuinga o ngā take ka mutu ake i roto i ngā wiki torutoru ki ngā marama.

Ko tō mahere maimoatanga pea ka whai:

• Ngā kai whakaora mamae penei i te acetaminophen, te ibuprofen rānei mō te mamae o ngā hononga
• Ngā corticosteroids mō te mamae o te kopu nui, te whakauru whatukuhu rānei
• Ngā rongoā hei tiaki i ō whatukuhu mena kua pāngia
• Ngā rongoā toto toto mena e hiahiatia ana
• Te tirotiro tata me ngā tirotiro auau me ngā whakamātautau mimi

Mō ngā take ngawari, kaore pea koe e hiahia ki tetahi maimoatanga motuhake atu i te okioki me te whakahaere i ngā tohu. Ka hanga e tō taote tētahi kaupapa tirotiro hei mataara mō ngā raruraru whatukuhu.

I roto i ngā take onge i nui te whakauru whatukuhu, pea ka hiahia koe ki ngā maimoatanga nui ake penei i ngā rongoā whakaiti mate, te dialysis rānei, ahakoa he onge rawa tenei.

Me pēhea te whakahaere i ngā tohu i te kāinga i te wā o te Henoch-Schönlein Purpura?

Ahakoa he mea nui te tirotiro hauora, he maha ngā mea ka taea e koe te mahi i te kāinga kia pai ake ai te ahua me te tautoko i tō ora. Ko ēnei mahi tiaki kāinga e mahi tahi ana me tō maimoatanga hauora.

Ko ēnei ngā mea ka taea te āwhina:

• Whiwhi i te nui o te okioki hei āwhina i tō tinana ki te ora
• Whakamahi i ngā kākahu makariri, makuku ki ngā wāhi pupuhi, koretake rānei
• Whakaarahia ngā hononga pupuhi ina okioki
• Kai i ngā kai ngawari mena he koretake tō kopu
• Noho pai te wai me te wai mā
• Aukati i ngā mahi ka taea te whakaiti i te mamae o ngā hononga

Tāruahia ō tohu, tae atu ki ngā huringa i roto i te pupuhi, ngā taumata mamae o ngā hononga, te koretake o te kopu rānei. Ko ēnei mōhiohio e āwhina ana i tō taote ki te whakarite i tō maimoatanga mena e hiahiatia ana.

Kaua e whakamahi i te aspirin hei whakaora mamae, ina koa i ngā tamariki, i te mea ka taea te piki ake te morearea o te toto. Pupuri ki te acetaminophen, te ibuprofen rānei e taunakitia ana e tō taote.

Me pēhea te whakarite mō tō hui taote?

Ko te whakarite pai mō tō hui e āwhina ana i tō taote ki te hanga i tētahi tautuhi tika me te whakawhanake i te mahere maimoatanga pai mōu. He iti te whakarite ka taea te whakarereke nui i te kounga o te tiaki e whiwhi ana koe.

I mua i tō haerenga:

• Tuhia te wā i tīmata ai ngā tohu me te āhua o te huringa
• Rārangihia ngā mate tata nei, ngā mate, ngā rongoā hou rānei
• Tangohia ngā whakaahua o tō pupuhi hei whakaatu i te ahu whakamua
• Tāruahia tetahi hītori whānau o ngā āhuatanga autoimmune
• Whakaritea ngā pātai mō te maimoatanga me te tiaki whai muri
• Mau mai tētahi rārangi o ngā rongoā me ngā taapiri katoa e inu ana koe

I te wā o te hui, kaua e whakaroa ki te ui pātai ki tetahi mea kāore koe i te mārama. Kei te hiahia tō taote ki te āwhina i a koe kia mōhio me te whakapono ki tō tiaki.

He aha te tango matua mō te Henoch-Schönlein Purpura?

Ko te HSP tētahi āhuatanga ka taea te whakahaere e, ahakoa he awangawanga ina puta tuatahi, ka ora pai te nuinga ki te tiaki tika me te tirotiro. Ko te pupuhi motuhake me ngā tohu e hono atu ana ko te huarahi o tō tinana ki te whakaatu kei te hiahia tō pūnaha ārai mate ki te tautoko hei hoki ki te ara tika.

Ko te nuinga o ngā tamariki me ngā pakeke me te HSP ka ora katoa i roto i ngā wiki torutoru ki ngā marama. Ko te matua ko te mahi tata me tō rōpū hauora hei tirotiro i ngā raruraru, ina koa te whakauru whatukuhu, me te whakahaere i ngā tohu i te wā e puta mai ana.

Mahara ko te whai i te HSP kāore e kī kua pakaru tonu tō pūnaha ārai mate. Ki te wā, te manawanui, me te tiaki hauora tika, ka hoki te nuinga o te iwi ki ō rātou mahi me ō rātou hauora noa.

Ngā pātai e ui pinepinetia ana mō te Henoch-Schönlein Purpura

He mate pāwera te Henoch-Schönlein Purpura?

Kāo, kāore te HSP i te mate pāwera. Ahakoa i te nuinga ka whai i te mate (pea he mate pāwera), kāore te āhuatanga purpura i te horapa mai i te tangata ki te tangata. He whakautu autoimmune tēnei e puta ana i roto i tō ake tinana.

E hā roa te roa o te Henoch-Schönlein Purpura?

Ko te nuinga o ngā take o te HSP ka mutu i roto i ngā wiki 4-6, ahakoa ko ētahi tohu penei i te mamae o ngā hononga pea ka roa ake te noho. Ko te 30% pea o te iwi ka pāngia e te hokinga mai i roto i ngā marama tuatahi, engari ko ēnei wāhanga he ngawari ake i te tuatahi.

Ka taea e ngā pakeke te whiwhi i te Henoch-Schönlein Purpura?

Ae, ahakoa he iti ake te noa i ngā pakeke i ngā tamariki. Ko ngā take pakeke te nuinga ka kaha ake, ā, he nui ake te tūmanako ka puta ngā raruraru whatukuhu nui. He nui ake te tūmanako o ngā pakeke ki te whanake i ngā raruraru whatukuhu roa hei raruraru.

Ka waiho rānei ngā tohu i ngā tohu mau tonu?

I roto i te nuinga o ngā take, ka ngaro katoa te pupuhi HSP kaore he tohu. Heoi, i ngā wāhi i nui rawa te pupuhi, te pakaru nui rānei o te kiri, pea ka noho tonu ētahi tohu mārama, te tae kiri rānei.

Me whai kai motuhake rānei ahau me te HSP?

Kāore he kai HSP motuhake, engari ko te kai i ngā kai ngawari, ngāwari ki te kai ka taea te āwhina mena he tohu o te kopu koe. Mena he whakauru whatukuhu koe, pea ka taunaki tō taote ki te whakaiti i te tote, te pūmua rānei mo te wā poto. Noho pai te wai, kaua hoki e kai i ngā kai e āhei ana te whakaiti i ō tohu.