He aha te Lupus? Ngā Tohutohu, Ngā Take, me te Maimoatanga

Ko te lupus te mate ā-tinana e whakaeke ana te pūnaha ā-mate o tō tinana ki ngā kiko hauora o tō tinana ake. Whakaarohia he rite tēnei ki te pūnaha tiaki o tō tinana e pohehe ana, ā, ka anga ki a koe ake, kāore ki te tiaki i a koe i ngā kaiwhakaeke kino.

Ko tēnei mate e pā ana ki te miriona o te iwi puta noa te ao, ā, e whā tekau ngā wā te nui o te tāngata wahine e pangia ana i te hunga tāne. Ahakoa ka raru te lupus i te tīmatanga, ko te mārama ki te aha me te pēhea te mahi ka āhei te awhina i a koe ki te whakahaere i tō haerenga hauora.

He aha te Lupus?

Ko te lupus he mate ā-tinana roa e puta ai te mumura whānui puta noa i tō tinana. Ko tō pūnaha ā-mate, e whawhai ana i ngā mate me ngā mate, ka nui haere te mahi, ka tīmata ki te whakaeke i ngā pūtau hauora, ngā kiko, me ngā whekau.

Ka taea e te mumura te pā ki tetahi wāhanga o tō tinana, tae atu ki tō kiri, ngā hononga, ngā whatukuhu, te ngakau, ngā pūkahukahu, me te roro. Koinei te take ka rereke haere ngā tohutohu o te lupus mai i te tangata ki te tangata, ā, koinei te take i karanga ai ētahi tākuta he "te kaiwhakaatu nui".

Ka taea e te nuinga o te hunga e pangia ana e te lupus te ora i ngā oranga tino ora, mahi, me te maimoatanga tika me te tiaki. Ka puta mai te mate i roto i ngā huringa, me ngā wā e kaha ake ai ngā tohutohu, me ngā wā e pai ake ai koe.

He aha ngā momo Lupus?

E whā ngā momo lupus matua, ā, he rerekē te pānga ki tō tinana. Ko te mārama ki te momo kei a koe ka āhei te awhina i tō tākuta ki te hanga i te mahere maimoatanga tino pai mō tō āhuatanga motuhake.

Te Lupus Erythematosus Pūnaha (SLE) ko te momo tino noa me te kino. Ka taea e ia te pā ki ngā whekau maha puta noa i tō tinana, tae atu ki ō whatukuhu, ngakau, pūkahukahu, me te roro. Koinei te tikanga o te nuinga o te iwi ina kī noa rātou he "lupus".

Te Lupus Kiri e pā ana ki tō kiri, e puta ai ngā pupuhi me ngā pakaru. Ko te tohu tino kitea ko te pupuhi ā-parera i runga i ō paparinga me te tuara o tō ihu, ahakoa ka puta mai i ētahi atu wāhi.

Te Lupus i puta mai i te rongoā e puta ana hei hua o ētahi rongoā, ina koa ētahi rongoā toto me ngā rongoā ngakau. Ko te rongopai, ko tēnei momo e ngaro ana i te wā ka mutu te inu i te rongoā e whakaohooho ana.

Te Lupus Pēpi he mate onge e pā ana ki ngā pēpi hou e whai ana ō rātou whaea i ngā autoantibodies motuhake. Ko te nuinga o ngā pēpi e whānau ana ki ngā whaea e pangia ana e te lupus he hauora tino pai, ā, he onge rawa tēnei mate.

He aha ngā Tohutohu o te Lupus?

Ka taea e ngā tohutohu o te lupus te whakapohehe na te mea he maha ngā mate e rite ana ngā tohutohu, ā, he rerekē haere mai i te tangata ki te tangata. Ka puta haere ngā tohutohu, ā, ka puta mai, ka ngaro haere i roto i ngā tauira kore e mōhiotia.

Koinei ngā tohutohu tino noa ka pā pea ki a koe:

• Te ngenge nui e kore e pai ake me te okioki
• Te mamae me te pupuhi o ngā hononga, ina koa i ngā ringa, ngā ringaringa, me ngā turi
• Te pupuhi ā-parera i runga i ngā paparinga me te tuara o te ihu
• Ngā pupuhi kiri e kino ake ana me te rā
• Te kirika e puta mai ana, ka ngaro haere kahore he take marama
• Te ngaro o te makawe, te ngākau
• Ngā mate o te waha, o te ihu
• Ngā maihao me ngā manawa e huri ana ki te ma, ki te kikorangi i te makariri (te āhuatanga o Raynaud)

Ka pā pea ki ētahi atu tangata ngā tohutohu kahore rawa e noa, engari he kino ake, e hiahia ana ki te tiaki hauora tonu:

• Ngā raruraru whatukuhu, tae atu ki te pupuhi i ngā waewae me te taha o ngā kanohi
• Te mamae uma, te poto o te manawa
• Ngā mamae o te upoko nui, te pohehe
• Ngā hopu, ētahi atu tohutohu neuro
• Ngā raruraru toto
• Ngā rerekētanga o te ngakau

Kia mahara, ko te whai i tetahi, rua rānei o ēnei tohutohu kāore e tino tikanga kei a koe te lupus. He maha ngā mate e taea ai te puta mai ngā tohutohu rite, koinei te take he mea nui te whakamātautau hauora tika.

He aha ngā Take o te Lupus?

Ko te take tika o te lupus tonu he mea ngaro, engari e whakapono ana ngā kairangahau e puta mai ana i te whakakotahitanga o ngā take ira, taiao, me ngā homoni e mahi tahi ana. Kāhore he take kotahi anake e puta ai te lupus.

He mahi ngā ira, engari ko te whai whānau e pangia ana e te lupus kāore e whakamana ka puta mai ki a koe. Kua kitea e ngā kāinga pūtaiao ētahi rerekētanga ira e kaha ake ai te mate o ētahi tangata, engari me "whakaohooho" ēnei ira e ētahi atu take.

Ngā whakaohooho taiao ka whakaohooho pea i te lupus i roto i te hunga e pā ana ki ngā ira:

• Ngā mate huaketo, ina koa te huaketo Epstein-Barr
• Te nui o te rā ki te mārama ultraviolet
• Te ahotea tinana, ngakau nui
• Ētahi rongoā, ina koa ētahi rongoā mate huaketo me ngā rongoā hopu
• Ngā whakahekea matū, ahakoa he iti rawa tēnei

Ko ngā homoni, ina koa te estrogen, e whakahaere ana i te whanaketanga o te lupus. Koinei te whakamārama i te take he maha ngā wāhine o te tau whānau tamariki e pā ana, ā, ko te take i puta mai ai ngā tohutohu i te wā hapu, i te wā e inu ana i ngā rongoā e whai estrogen ana.

He mea nui te mārama kāore koe i mahi i tetahi mea hei whakaohooho i tō lupus. Ka puta mai tēnei mate na te mahi tahi o ngā take kei tua atu o tō mana.

Nōhea te Tiro ki te Tākuta mō te Lupus?

Me whakarite e koe he hui ki tō tākuta ki te pāngia koe e ngā tohutohu roa e āwangawanga ana i tō oranga o ia rā, ina koa ki te puta mai ngā tohutohu maha tahi.

Rapua te tiaki hauora tonu ki te whai koe i:

• Te kirika kore e mārama e roa atu i ngā rā torutoru

Te mamae o ngā hononga me te pupuhi i ngā hononga maha

Te ngenge roa e kore e pai ake me te okioki

Ngā pupuhi kiri hou, ina koa i ngā wāhi e pā ana ki te rā

Te ngaro o te makawe, ngā mate o te waha

Whiwhihia te tiaki hauora ā-wawe tonu ki te pāngia koe e:

• Te mamae uma, te uaua ki te manawa
• Ngā mamae o te upoko nui me te pohehe, ngā huringa tirohanga
• Ngā hopu, ētahi atu tohutohu neuro
• Te mamae o te kopu nui
• Ngā tohu o ngā raruraru whatukuhu penei i te pupuhi, ngā huringa mimi

Kaua e whakaroa ki te tautoko i a koe ki te mau tonu ngā tohutohu. Ka uaua te whakamātautau i te lupus, ā, me kite pea koe i ngā tākuta maha, ngā tohunga i mua i te whiwhi whakautu.

He aha ngā Take Raru mō te Lupus?

Ka taea e te lupus te pā ki ngā pūnaha whekau maha, e puta ai ngā raruraru maha ki te kore e maimoatia, ki te kore rānei e whakahaeretia pai. Heoi, me te tiaki hauora tika me te maimoatanga, ka taea te aukati, te whakahaere pai rānei i ēnei raruraru maha.

Ko ngā raruraru tino noa e pā ana ki ō whatukuhu, he mate e kiia nei ko te nephritis lupus:

• Te mumura whatukuhu e taea ai te haere ki te korenga o te whatukuhu
• Te toto teitei mai i te pakaru whatukuhu
• Te ngaro o te pūmua i roto i te mimi
• Te pupuhi wai e puta ai te pupuhi

Ka taea hoki te whanake i ngā raruraru ngakau i te wā:

• Te nui o te mate ngakau me te pōka
• Te mumura o te uaua ngakau, te papanga
• Ngā mate toto
• Te toto teitei

Ngā raruraru kahore e noa, engari he kino:

• Ngā raruraru neuro penei i ngā hopu, ngā huringa hinengaro
• Te mumura pūkahukahu, te toka
• Te anemia nui, te iti o te taumaha o ngā pūtau toto whero
• Te pakaru wheua mai i te whakamahinga roa o te steroid
• Te nui o te mate huaketo na te maimoatanga immunosuppressive

Ko te ki hei aukati i ngā raruraru ko te mahi tata atu ki tō rōpū hauora, te whai tonu i tō mahere maimoatanga. Ko te tirotiro auau ka āhei ai tō tākuta ki te hopu me te whakaoti i ngā raruraru i te tīmatanga.

Me pēhea te Whakamātautau i te Lupus?

Ka uaua te whakamātautau i te lupus na te mea kāhore he whakamātautau kotahi e whakamana ana i te mate. Ka whakamahi tō tākuta i te whakakotahitanga o ngā tohutohu, ngā kitenga o te whakamātautau tinana, me ngā whakamātautau taiwhanga hei whakamātautau.

Ko te tukanga whakamātautau e tīmata ana i te hītori hauora taipitopito me te whakamātautau tinana. Ka ui tō tākuta ki ō tohutohu, te hītori whānau, me ētahi rongoā e inu ana koe ka whakaohooho pea i ngā tohutohu rite ki te lupus.

He mahi nui ngā whakamātautau toto i te whakamātautau lupus:

• Te whakamātautau anti-nuclear antibody (ANA), e pai ana te nuinga o te iwi e pangia ana e te lupus
• Ngā antibodies anti-double-stranded DNA, he mea motuhake ake mō te lupus
• Ngā antibodies anti-Smith, he mea motuhake rawa, engari ka kitea i roto i ngā tangata iti
• Ngā taumata whakakī (C3 me C4), he iti te nuinga i te wā e kaha ana te mate
• Te taumaha toto katoa hei tirotiro i te anemia, te iti o te taumaha o ngā pūtau toto ma

Ka uru pea ngā whakamātautau atu ki:

• Ngā whakamātautau mahi whatukuhu me te urinalysis
• Ngā tohu mumura penei i te ESR me te CRP
• Ngā antibodies anti-phospholipid ki te mea he āwangawanga te toto
• Ngā biopsies kiko, ina koa ngā biopsies whatukuhu ki te whakapaehia te whakauru whatukuhu

Kua whakaritea e te American College of Rheumatology ngā tikanga hei awhina i te whakamātautau lupus. Kāore koe e hiahia ki te tutuki i ngā tikanga katoa, engari ko te whai i te maha e tino tohu ana i te lupus, ina koa ka whakakotahitia ki ngā tohutohu noa.

He aha te Maimoatanga mō te Lupus?

Ko te maimoatanga lupus e aro ana ki te whakahaere i te mumura, te aukati i te pakaru o ngā whekau, me te whakahaere i ngā tohutohu hei awhina i a koe ki te ora i te noa.

Ko ngā rongoā te pūtake o te maimoatanga lupus:

• Ngā rongoā antimalarial penei i te hydroxychloroquine mō ngā tohutohu ngawari me te aukati i ngā pupuhi
• Ngā corticosteroids mō te whakahaere i te mumura i ngā wā pupuhi
• Ngā immunosuppressants penei i te methotrexate, mycophenolate mō ngā mate nui ake
• Ngā Biologics penei i te belimumab mō ngā take kino kahore e whakautu ki ētahi atu maimoatanga
• Ngā NSAIDs mō te mamae o ngā hononga me te pupuhi

Ko te maimoatanga mō te whakauru whekau motuhake ka uru pea ki:

• Ngā ACE inhibitors, ARBs mō te tiaki whatukuhu
• Ngā anticoagulants ki te whai koe i ngā raruraru toto
• Ngā rongoā hopu mō te whakauru neuro
• Ngā maimoatanga topical mō ngā whakaaturanga kiri

Ka tīmata tō tākuta me te maimoatanga ngawari tino pai, ka whakarite i ngā rongoā i runga i tō whakautu me ētahi pānga.

Ko te whāinga ko te whakatutuki i te remission, kei reira te iti o te mahi mate, ka taea e koe te ora i te noa me ngā pānga iti o ngā rongoā.

Me pēhea te Tango Maimoatanga Kāinga i te Wā Lupus?

Ko te whakahaere i te lupus i te kāinga e whakauru ana i ngā whakarerekētanga oranga me ngā rautaki tiaki-whaiaro e whakakotahi ana i tō maimoatanga hauora. Ka taea e ēnei huarahi te awhina i te whakaiti i te auau o ngā pupuhi me te kino, me te whakapai ake i tō kounga ora.

He mea tino nui te tiaki rā, na te mea ka taea e te mārama UV te whakaohooho i ngā pupuhi lupus:

• Whakamahia te sunscreen whānui-spectrum me te SPF 30 neke atu i ia rā
• Kakahu kakahu tiaki, potae whānui-rim, me ngā karāhe
• Kaua e haere ki ngā wā rā nui i waenga i te 10 AM me te 4 PM
• Whakamahia te kiriata matapihi UV-blocking i roto i tō waka me tō kāinga

He mahi nui te whakahaere ahotea hei aukati i ngā pupuhi:

• Whakamahia ngā tikanga whakahaerenga penei i te manawa hohonu, te whakaaroaro
• Whakahaere i ngā kaupapa moe auau, ā, whai kia 7-9 haora ia pō
• Whakauru ki te whakakori ngawari penei i te hikoi, te kauhoe, te yoga
• Whakaarohia te tohutohu, ngā rōpū tautoko hei whakahaere i te mate roa

Ka taea e te kai me ngā whakarerekētanga oranga te tautoko i tō hauora whānui:

• Kai kai rite e whai kōhatu me te huaora D hei tiaki i ngā wheua
• Whakaitihia te tote ki te whai koe i te whakauru whatukuhu, te toto teitei
• Mutu te wāhi, na te mea ka taea e ia te kino ake i ngā tohutohu lupus, te whakakore i ngā rongoā
• Kia hou ngā whakakakahu, kia kaua e whakamahi i ngā whakakakahu ora

Tirohia ō tohutohu, tuhia he pukapuka e tuhi ana i ngā whakaohooho, ngā tohutohu, me ngā pānga rongoā. Ka āhei tēnei mōhiohio i tō rōpū hauora ki te whakapai ake i tō mahere maimoatanga.

Me pēhea te Whakarite mō tō Hui Tākuta?

Ko te whakarite pai mō ō hui tākuta e whakarite ana ka whiwhi koe i te nuinga mai i tō haerenga, ā, ka āhei ai tō rōpū hauora ki te whakarato i te tiaki pai rawa atu. He mea nui rawa te whakarite pai me te lupus na te mea ka taea e ngā tohutohu te whakapohehe me te rerekē.

I mua i tō hui, kohikohia ngā mōhiohio nui:

• Rārangihia ngā tohutohu katoa o nāianei, te wā i tīmata ai, me te aha e pai ake ai, e kino ake ai rātou
• Mau mai ngā rongoā katoa, ngā taapiri, me ngā huaora e inu ana koe
• Kohikohia ngā hua whakamātautau o mua, ngā rēkōta hauora
• Tuhia ngā pātai e hiahia ana koe ki te ui
• Tātaihia tetahi hītori whānau o ngā mate ā-tinana

Kia mau he pukapuka tohutohu mō ngā wiki maha i mua i tō haerenga:

• Ngā tohutohu o ia rā
• Ngā whakaohooho pea ka kitea e koe
• Me pēhea te pānga o ngā tohutohu ki ō mahi o ia rā
• Ngā pānga rongoā, ngā āwangawanga
• Ngā tauira moe me ngā taumata kaha

Whakaritea ngā pātai motuhake mō tō mate me tō maimoatanga:

• E pēhea te kaha o taku lupus inaianei?
• He aha ngā raruraru hou me titiro atu ahau?
• Me whakarerekē e ahau aku rongoā, aku oranga?
• Nōhea taku whakarite i taku hui e whai ake nei?
• He aha ngā tohutohu e hiahia ana ki te tiaki hauora tonu?

Whakaarohia te kawe mai i te hoa whakawhirinaki, te mema whānau hei awhina i a koe ki te mahara ki ngā mōhiohio nui, ki te whakarato tautoko ngākau i te wā o te haerenga.

Me pēhea te Aukati i te Lupus?

Aroha mai, kāhore he huarahi hei aukati i te whanaketanga o te lupus na te mea e puta mai ana i te mahi tahi o ngā take ira me ngā take taiao. Heoi, ki te whai koe i te lupus, ka taea e koe te mahi hei aukati i ngā pupuhi me ngā raruraru.

Ahakoa kāore e taea e koe te aukati i te whanaketanga o te lupus, ka taea e koe te whakaiti i tō tūponotanga ki te whakaohooho i ngā pupuhi:

• Tīaki i a koe i te nui o te rā
• Whakahaere i te ahotea mā ngā rautaki whakahaere hauora
• Whakahaere i te hauora whānui pai me te whakakori auau me te kai tika
• Kaua e wāhi, whakaitihia te inu waipiro
• Whiwhi moe, okioki tika

Ki te whai koe i te hītori whānau o te lupus, ētahi atu mate ā-tinana, kia mataara ki ngā tohutohu pea, rapua te whakamātautau hauora ki te puta mai ngā tohu āwangawanga. Ko te kite wawe me te maimoatanga ka taea te aukati i ngā raruraru nui.

Mō te hunga kua whakamātautauhia te lupus, ko te aukati i ngā raruraru e whakauru ana ki:

• Te tango i ngā rongoā rite i te whakarite tonu
• Te haere ki ngā hui tākuta auau
• Te tirotiro mō ngā tohutohu hou, ngā huringa
• Te noho hou ki te tiaki aukati penei i ngā whakakakahu me ngā whakamātautau matawai

Ka huri te aro mai i te aukati ki te whakahaere i te wā e whanake ana te lupus, ā, me te tiaki tika, ka taea e te nuinga o te iwi te ora i ngā oranga tino ora, mahi.

He aha te Tango Matua mō te Lupus?

Ko te lupus he mate ā-tinana uaua e pā ana ki te katoa i te rerekē, engari ka taea te whakahaere pai me te tiaki hauora tika me ngā whakarerekētanga oranga. Ahakoa ka raru te whiwhi i te whakamātautau lupus, kia mahara kua pai haere ngā maimoatanga i ngā tekau tau kua pahure.

Ko te mea nui rawa ki te mārama ko te lupus he mate roa e hiahia ana ki te whakahaere tonu, kāore ki te rongoā. Me te mahere maimoatanga tika, ka taea e te nuinga o te iwi e pangia ana e te lupus te ora i ngā oranga noa, whai hua me ngā herenga iti.

Ko te angitu i te whakahaere i te lupus e puta mai ana i te hanga hononga kaha ki tō rōpū hauora, te noho tonu ki ngā maimoatanga, me te mahi i ngā whakarerekētanga oranga e tautoko ana i tō hauora whānui. Kaua e whakaroa ki te ui pātai, ki te rapu tautoko, ki te tautoko i a koe puta noa i tō haerenga hauora.

Kia mahara kāore te whai lupus e whakatau i a koe. Ko koe tonu te tangata kotahi me ngā moemoea, ngā whāinga, me ngā kaha. Ko te lupus he āhuatanga noa iho o tō hauora e hiahia ana ki te aro me te tiaki.

Ngā Pātai Nui e Uihia ana mō te Lupus

Ka taea te rongoā katoa i te lupus?

I tēnei wā, kāhore he rongoā mō te lupus, engari ka taea te whakahaere pai me te maimoatanga tika. He maha ngā tangata e whiwhi ana i ngā wā roa o te remission kei reira ngā tohutohu iti, ka taea te ora i te noa. Kei te mahi tonu ngā kairangahau i ngā maimoatanga hou ka āhei pea te arahi ki te rongoā.

He mate rānei te lupus, he mate ira rānei?

Kāore te lupus e pā, kāore e taea te hora mai i te tangata ki te tangata. Ahakoa he mahi ngā ira, kāore te lupus e hoatu tika penei i ētahi atu mate. Ko te whai whānau e pangia ana e te lupus e piki ake ana tō tūponotanga iti, engari ko te nuinga o te iwi e whai hītori whānau kāore e whanake i te mate.

Ka taea e te hunga e pangia ana e te lupus te whānau tamariki i te ora?

He maha ngā wāhine e pangia ana e te lupus ka taea te whānau tamariki pai me te whakarite tika me te tiaki hauora. He mea nui te mahi tata atu ki tō rheumatologist me tō obstetrician i mua i te wā hapu, i te wā hapu. Me whakarite pea ētahi rongoā, ā, he mea nui te tirotiro tata atu.

Ka kino ake te lupus i te wā?

Ka pā te lupus ki te katoa i te rerekē. He maha ngā tangata e whai mate ngawari ana e mau tonu ana mō ngā tau, ētahi atu e pā ana ki te mate kaha ake me ngā pupuhi me ngā remission. Me te maimoatanga tika, he maha ngā tangata e kite ana ka pai ake te whakahaere i tō rātou lupus i te wā e ako ana rātou ki te mohio ki ngā whakaohooho, te mahi tahi me tō rātou rōpū hauora.

Ka taea e ngā huringa kai te awhina i te whakahaere i ngā tohutohu lupus?

Ahakoa kāhore he "kai lupus" motuhake, ko te kai i te kai rite, kai anti-mumura ka taea te tautoko i te hauora whānui, ā, ka āhei pea te awhina i ētahi tangata ki te pai ake te ahua. Aro atu ki ngā hua, ngā huawhenua, ngā witi katoa, me ngā pūmua ngawari i te wā e whakaiti ana i ngā kai tukatuka. Ka kitea e ētahi tangata kei ētahi kai e whakaohooho ana i ngā pupuhi, no reira he mea awhina te pupuri i te pukapuka kai.