He aha te Nephritis Lupus? Tohutohu, Take, me te Maimoatanga

Ko te nephritis lupus te mumura o te whatukuhu e puta mai ana i te systemic lupus erythematosus (SLE), he mate ā-tinana e whakaeke ana te pūnaha ā-mate o tō tinana i ngā kiko ora. E pā ana tenei āhuatanga ki te haurua o te hunga katoa e pangia ana e te lupus, ā, koinei tetahi o ngā raruraru nui rawa atu o te mate.

Ina pā te lupus ki ō whatukuhu, ka taea e ia te whakaroa i te kaha o te whakakāhore i ngā paru me te wai nui atu i tō toto. Ko te rongo pai, mā te maimoatanga tika me te tirotiro, ka taea e te tini o te hunga e pangia ana e te nephritis lupus te pupuri i te mahi pai o te whatukuhu, me te ora i ngā oranga tino whānuitia, mahi.

He aha te Nephritis Lupus?

Ka puta te nephritis lupus ina puta te lupus i te whakaeke a tō pūnaha ā-mate ki ō whatukuhu. Kei roto i ō whatukuhu ngā wae whakakāhore iti e kiia nei ko ngā glomeruli, e horoi ana i tō toto mā te tango i ngā paru me te wai nui atu.

I roto i te nephritis lupus, ka pakaru enei whakakāhore nā te mumura. Ka rereke te nui o te pakaru, mai i te ngawari ki te kino, e pā ana ki te pai o te mahi a ō whatukuhu. Whakaarohia he kāpeka kōhi e kīia ana – ina kore e taea te whakakāhore tika, ka mutu ngā mea me noho rānei, kāore rānei i te wahi tika.

Ka tupu haere te āhuatanga i te nuinga o ngā take. He tino kaha ngā whatukuhu, no reira pea ka kore e puta ngā tohu tae noa ki te pakaru nui. Koia te take i nui ai te tirotiro mo te tangata katoa e pangia ana e te lupus.

He aha ngā Tohutohu o te Nephritis Lupus?

I te tīmatanga o te nephritis lupus, ka kore ngā tohu, koia te take i nui ai ngā whakamātautau mimi me te toto mō te hunga e pangia ana e te lupus. Ina puta mai ngā tohu, ka rereke pea i te tangata ki te tangata.

Ko ēnei ngā tohu tino noa hei titiro:

• Mimi pupū, rānei (nā te pūmua e rere ana ki te mimi)
• Toto i te mimi, ka hanga he tae whero, whero, kōpara rānei
• Pūngāwerewere i tō mata, ringa, waewae, kē rānei
• Teitei te toto
• Te piki o te taumaha e kore e mārama mai i te pupuri wai
• Te iti o te mimi, kē ngā huringa i ngā tauira mimi
• Te ngenge me te ngoikore atu i ngā tohu lupus noa

Ka pā pea ki ētahi atu ngā tohu iti ake, pēnei i ngā mamae o te upoko, te poto o te manawa, kē te ruaki. Ka tohu pea ēnei i ngā raruraru whatukuhu atu, kē ngā raruraru pēnei i te kohinga wai i roto i ngā pūkahukahu.

Kia mahara, ko te whai i tetahi, kē rua o ēnei tohu kāore e tino tikanga kei a koe te nephritis lupus. He maha ngā āhuatanga ka puta mai ngā tohu rite, koia te take i nui ai te aromatawai hauora.

He aha ngā momo Nephritis Lupus?

Ka wehewehe ngā tākuta i te nephritis lupus ki ē ono momo rerekē i runga i te nui o te pakaru whatukuhu, me te wāhi kei reira.

Ka rereke ngā momo mai i te iti o te pakaru (Momo I) ki te momo tino kino (Momo VI). Ko te Momo I he iti rawa te pakaru whatukuhu, ā, ko ngā Momo III me te IV ngā mumura nui ake e hiahia ana ki te maimoatanga kaha. Ko te Momo V he momo ngaro pūmua motuhake, ā, ko te Momo VI te tohu i te tohu o te kōpū.

Ka whakatau tō tākuta i te momo mā te biopsy whatukuhu, kei reira tetahi wāhanga iti o te kiko whatukuhu e tirotirohia ana i raro i te microscope. Pea ka rangona tenei he wehi, engari he mahi noa tenei e whakarato ana i ngā korero nui mō te whakarite i tō maimoatanga.

Ka taea te huri o te momo i te wā, mā te pai ake rānei mā te maimoatanga, kē mā te piki haere rānei ki te kore e whakahaere tika. Koia te take i nui ai ngā hui whakarite me te tirotiro.

He aha ngā Take o te Nephritis Lupus?

Ka tupu te nephritis lupus ina whakaekehia e te mahi ā-mate rite ki te lupus ō whatukuhu. Ka hanga tō pūnaha ā-mate i ngā antibodies e tiaki ana i a koe i ngā mate, engari i roto i te lupus, ka whakaeke hetia ēnei antibodies i ō kiko ake.

He maha ngā take e mahi tahi ana hei hanga i tēnei whakauru whatukuhu:

• Ngā kohinga ā-mate (ngā whakakotahitanga o ngā antibodies me ētahi atu pūmua) e mau ana i roto i ngā whakakāhore whatukuhu
• Ka whakaoho ēnei kohinga i te mumura i roto i ngā hanganga whatukuhu.
• Ka pakaru te kaha o te whatukuhu ki te whakakāhore toto tika.
• Pea ka nui ake te pānga o ētahi take ira ki ētahi tangata ki te whakauru whatukuhu.
• Pea ka kaha ake te whakautu ā-mate nā ngā whakaoho taiao pēnei i ngā mate kē te ahotea.

Kāore i tino mārama te take i puta ai ngā raruraru whatukuhu ki ētahi tangata e pangia ana e te lupus, engari kāore ki ētahi atu. Ka whakaatu te rangahau kei te whai wāhi ngā ira, ngā homoni, me ngā take taiao ki te whakatau ko wai ka whānau mai te nephritis lupus.

Ko te mea e mōhiotia ana e mātou, kāore te nephritis lupus i puta mai i tetahi mea i mahi he koe. Kāore e pā ana ki tō kai, ngā whiringa noho ora, kē ngā tikanga whaiaro – ko te whakautu noa o tō pūnaha ā-mate ki te whai lupus.

Nōhea te Tiro ki te Tākuta mō te Nephritis Lupus?

Mēnā kei a koe te lupus, me haere tonu koe ki tō tākuta mēnā ka kite koe i ngā huringa i tō mimi, te pūngāwerewere, kē te toto.

Whakapa atu ki tō kaiwhakarato hauora tonu mēnā ka pā atu ki a koe:

• Mimi pupū, toto, kē pouri rawa
• Te pūngāwerewere ohorere i tō mata, ringa, waewae, kē te kopu
• Te piki tere o te taumaha (neke atu i te 2-3 pauna i roto i ngā rā torutoru)
• Ngā mamae o te upoko, kē ngā huringa tirohanga
• Te poto o te manawa, kē te mamae uma
• Te ruaki, te ruaki, kē te ngaro o te hiahia kai
• Te iti o te mimi, kē te uaua ki te mimi

Ahakoa kei te pai koe, he mea nui ngā tirotiro whakarite me ngā whakamātautau toto me te mimi. Ka taea e tō tākuta te kite i ngā raruraru whatukuhu i mua i to kite i ngā tohu. Ka tūtohutia e te nuinga o ngā tohunga lupus ngā whakamātautau mahi whatukuhu i ia 3-6 marama, kē nui atu mēnā kei te nui tō tūponotanga.

Kaua e tatari kia kino ngā tohu, kē kia ngāwari noa atu rātou. Ko te nephritis lupus te maimoatanga pai rawa atu ina kitea wawe, ā, ka taea e te tiaki hauora tere te whakarereke nui i tō hauora whatukuhu mo te wā roa.

He aha ngā Tūponotanga mō te Nephritis Lupus?

Ahakoa ka taea e te tangata katoa e whai lupus te whānau mai i te whakauru whatukuhu, ka piki ake ētahi take i tō tūponotanga ki te whānau mai i te nephritis lupus.

Ko ngā tūponotanga tino nui e whai ake nei:

• Te whakatau i te lupus i te tamarikitanga (i mua i te 30)
• Te whai i ētahi iwi (African American, Hispanic, Asian, kē Native American)
• He tane (ahakoa he nui ake te lupus i ngā wāhine, he nui ake te pānga o te whatukuhu ki ngā tāne e whai lupus ana)
• Te whai i ngā antibodies lupus motuhake pēnei i ngā antibodies anti-dsDNA kē anti-Sm
• Te wheako i ngā pupuhi lupus auau, kē te whai i ngā tohu lupus nui ake
• Te whai i te hītori whānau o te mate whatukuhu
• Te whai i te toto teitei, kē te mate huka me te lupus

Ko ētahi atu tūponotanga iti ake e whai ake nei ngā rerekētanga ira e pā ana ki te mahi pūnaha ā-mate. Kua kitea e te rangahau ngā ira maha e piki ake ai te tūponotanga ki te lupus me ngā raruraru whatukuhu.

Ko te whai i ngā tūponotanga kāore e tino tikanga ka whānau mai koe i te nephritis lupus. He maha ngā tangata e whai ana i ngā tūponotanga maha kāore e pāngia e ngā raruraru whatukuhu, ā, ka whānau mai ētahi atu e whai ana i ngā tūponotanga iti ki te āhuatanga. Ko te mea nui ko te mahi tata atu ki tō rōpū hauora ki te tirotiro i tō mahi whatukuhu ahakoa tō taumata tūponotanga.

He aha ngā Raruraru pea o te Nephritis Lupus?

Ina kore e whakahaere tika, kē e tirotirohia te nephritis lupus, ka taea e ia te arahi ki ngā raruraru kino maha.

Ko ngā raruraru tino noa e whai ake nei:

• Te mate whatukuhu roa, kei reira te mahi whatukuhu e heke haere ana i te wā.
• Te toto teitei e uaua ana ki te whakahaere.
• Te ngaro pūmua e arahi ana ki te pūngāwerewere me te piki o te tūponotanga mate.
• Te mate wheua mai i ngā koretake o te kohuke e puta mai ana i te mahi whatukuhu.
• Te piki o te tūponotanga o te mate ngakau me te pōka.
• Te nui ake o te tūponotanga ki ngā mate nā ngā rongoā pūnaha ā-mate.

Ko ngā raruraru nui ake, engari iti ake te noa, ka taea te whakauru i te pakaru whatukuhu e hiahia ana ki te dialysis kē te whakawhiti, te pupuri wai nui e whakaoho ana i ngā raruraru manawa, kē ngā mate toto.

Ka rereke te tūponotanga o te whānau mai i ēnei raruraru i runga i te wawe o te kite i te āhuatanga, te pai o te whakautu ki te maimoatanga, me te mau tonu o te whai i tō mahere maimoatanga. Ka taea e te nuinga o te hunga e whiwhi ana i te tiaki tika te karo i ngā raruraru kino, me te pupuri i te kounga ora pai.

Me pēhea te ārai i te Nephritis Lupus?

Ahakoa kaore e taea te ārai katoa i te nephritis lupus ina whai lupus koe, ka taea e koe te mahi i ngā mahi maha hei whakaiti i tō tūponotanga, me te hopu wawe ina maimoatanga pai rawa atu.

Ko ēnei ngā rautaki ārai tino whai hua:

• Tangohia ō rongoā lupus tika i te mea i whakaritea, ahakoa kei te pai koe.
• Haere ki ngā whakaritenga hauora me ngā whakamātautau katoa.
• Tirohia tō toto teitei auau, me te pupuri i raro i te mana.
• Pupuri i te taumaha hauora, me te mahi auau i te mea e manawanui ana.
• Whai i te kai pai mō te whatukuhu me te iti o te tote me ngā kai tukatuka.
• Noho makuku, engari kaua e nui rawa te inu wai mēnā kei a koe ngā raruraru whatukuhu.
• Karohia ngā rongoā ka taea te kino i ngā whatukuhu, pēnei i ētahi kaiwhakaora mamae.
• Whakahaere i te ahotea mā ngā tikanga whakamahinga, te tohutohu, kē ngā rōpū tautoko.
• Whiwhi i te moe pai, me te karo i ngā whakaoho lupus e mōhiotia ana i te wā e taea ai.

Ko te mahi tata atu ki tō rōpū hauora tō tiaki pai rawa atu ki te nephritis lupus. Ka taea e te tirotiro auau te kite wawe me te whakauru, ka taea te ārai, kē te whakaiti i te pakaru whatukuhu. Pea ka tūtohutia e tō tākuta ngā tirotiro auau atu mēnā kei a koe ngā tūponotanga mō te whakauru whatukuhu.

Kia mahara ko te ārai i te nephritis lupus he mahi whakahaere tahi i waenga i a koe me ō kaiwhakarato hauora. Ka whakarereke nui tō whakauru whai hua ki ō hua.

Me pēhea te Whakatau i te Nephritis Lupus?

Ko te whakatau i te nephritis lupus e whakauru ana i ngā whakamātautau maha e āwhina ana i tō tākuta ki te mārama ki te pai o te mahi a ō whatukuhu, me te pānga rānei o te lupus ki a rātou.

Ka tīmata tō tākuta me ngā whakamātautau taketake ka taea te mahi i te wā o te haerenga tari noa:

• Ngā whakamātautau mimi hei tirotiro i te pūmua, te toto, kē ngā pūtau rerekē.
• Ngā whakamātautau toto hei ine i te mahi whatukuhu me te mahi lupus.
• Ngā ine toto teitei.
• Te tirotiro tinana mō te pūngāwerewere kē ētahi atu tohu.

Mēnā ka whakaatu ēnei whakamātautau tīmatanga i te whakauru whatukuhu, pea ka tūtohutia e tō tākuta ngā whakamātautau atu. Pea ka whakauruhia tēnei i te kohikohi mimi 24-hāora hei ine i ngā nui o te ngaro pūmua, ngā ako whakaahua pēnei i te ultrasound hei titiro ki te hanganga whatukuhu, kē ngā whakamātautau toto motuhake hei tirotiro i ngā antibodies lupus motuhake.

Ko te whakamātautau tino whakatau ko te biopsy whatukuhu, kei reira tetahi tauira iti o te kiko whatukuhu e tangohia ana, e tirotirohia ana i raro i te microscope.

Ka whakamahi tō tākuta i ēnei korero katoa hei whakatau mēnā kei a koe te nephritis lupus, ko tehea momo, me tehea maimoatanga ka pai rawa mōu.

He aha te Maimoatanga mō te Nephritis Lupus?

Ko te whāinga o te maimoatanga mō te nephritis lupus ko te whakaiti i te mumura, te tiaki i te mahi whatukuhu, me te ārai i ngā raruraru mo te wā roa.

Ko te nuinga o ngā mahere maimoatanga e whakauru ana i ngā wāhanga e rua: te maimoatanga whakauru hei whakahaere i te mumura kaha, me te maimoatanga pupuri hei ārai i ngā pupuhi me te tiaki i te mahi whatukuhu mo te wā roa.

Ko ngā rongoā noa e whakamahia ana i roto i te maimoatanga e whai ake nei:

• Ngā rongoā immunosuppressive pēnei i te mycophenolate kē te cyclophosphamide hei whakaiti i te mahi pūnaha ā-mate.
• Ngā corticosteroids hei whakahaere tere i te mumura i ngā wā pupuhi.
• Ngā kaiwhakahaere ACE kē ARBs hei tiaki i ngā whatukuhu me te whakahaere i te toto teitei.
• Ngā rongoā antimalarial pēnei i te hydroxychloroquine mō te whakahaere lupus katoa.
• Ngā Biologics pēnei i te belimumab mō ngā take uaua ki te maimoa.
• Ngā maimoatanga hou e whakaatu ana i te tumanako i roto i ngā whakamātautau hauora.

Ka whakahaere hoki tō tākuta i ngā take e pā ana pēnei i te toto teitei, te hauora wheua, me te ārai mate.

Me pēhea te tango i te maimoatanga kāinga i te wā o te Nephritis Lupus?

Ko te whakahaere i te nephritis lupus i te kāinga e whakauru ana i ngā mahi nui e whakakotahi ana i tō maimoatanga hauora.

Me whakauru ki tō mahi o ia rā:

• Te tango i ngā rongoā tika i te mea i whakaritea, ahakoa kei te pai koe.
• Te tirotiro i tō taumaha o ia rā hei hopu wawe i te pupuri wai.
• Te tirotiro i tō toto teitei auau mēnā kei a koe te kaitirotiro kāinga.
• Te whai i te kai pai mō te whatukuhu me te iti o te tote me ngā kai tukatuka.
• Te noho makuku, engari te whai i ngā herenga wai e tūtohu ana tō tākuta.
• Te whiwhi i te okioki pai me te whakahaere i te ahotea.
• Te karo i ngā rongoā mamae kore-whakahaunga ka taea te kino i ngā whatukuhu.

Tātai atu ki tō tinana, me te pupuri i ngā huringa i ngā tohu. Ka taea e te rārangi o ia rā o tō taumaha, te toto teitei, me te āhua o te āwhina i a koe me tō tākuta ki te kite i ngā raruraru wawe.

Me pēhea te whakarite mō tō whakaritenga tākuta?

Ko te whakarite mō ō whakaritenga tākuta ka taea te āwhina i a koe ki te whiwhi i te nuinga o tō haerenga, me te whakarite kua whakautuhia ō awangawanga katoa.

I mua i tō whakaritenga, kohikohia ngā korero nui:

• Tuhia ngā tohu katoa i pā ki a koe mai i tō haerenga whakamutunga.
• Rārangihia ngā rongoā katoa e tangohia ana e koe, tae atu ki ngā horoinga me te wā.
• Tātaihia ngā huringa i tō mahi o ia rā, kai, kē ngā taumata ahotea.
• Whakaritea ngā pātai mō tō maimoatanga kē ngā awangawanga mō ngā pānga.
• Mau mai ō rārangi tirotiro kāinga (taumaha, toto teitei, tohu).
• Whakahoutia tō hītori hauora me ngā take hauora hou.

I te wā o te whakaritenga, kaua e whakaroa ki te ui i ngā pātai, kē ki te tono i te whakamārama mō tetahi mea kāore koe e mārama.

He aha te tango matua mō te Nephritis Lupus?

Ko te nephritis lupus he raruraru nui, engari ka taea te whakahaere o te lupus e pā ana ki te haurua o te hunga e whai ana i te mate.

Ko tō whakauru whai hua ki tō tiaki he whakarereke nui ki ō hua. Ko te tikanga tenei te tango i ngā rongoā i te mea i whakaritea, te haere ki ngā whakaritenga auau, te tirotiro i ō tohu, me te pupuri i ngā tikanga noho ora hauora.

Ngā Pātai Auau e uihia ana mō te Nephritis Lupus

Ka taea te whakaora katoa i te nephritis lupus?

Kāore e taea te whakaora i te nephritis lupus, engari ka taea te whakahaere pai ki te maimoatanga tika. Ka taea e te tini te whiwhi i te remission, kei reira te mahi whatukuhu e pumau ana, ka ngaro ngā tohu.

Me whai dialysis rānei ahau mēnā kei ahau te nephritis lupus?

Ko te nuinga o te hunga e whai nephritis lupus kāore e hiahia ki te dialysis. Ko te 10-30% noa o te hunga e whai nephritis lupus ka whānau mai te pakaru whatukuhu e hiahia ana ki te dialysis kē te whakawhiti, ā, kua heke nui tenei tūponotanga me ngā maimoatanga hou.

Ka taea e au te hapu mēnā kei ahau te nephritis lupus?

He maha ngā wāhine e whai nephritis lupus ka taea te whai i ngā haputanga angitu, engari e hiahia ana ki te whakarite ata me te tiaki hauora motuhake.

Me pehea te auau o te tirotiro i oku whatukuhu?

Mēnā kei a koe te lupus, me whai koe i ngā whakamātautau mahi whatukuhu i ia 3-6 marama, ahakoa kei te pai koe.

He aha ngā kai me karo ahau me te nephritis lupus?

Ko te kai pai mō te whatukuhu e iti ana i te tote, ngā kai tukatuka, me te nui o te pūmua. Me whakaiti e koe te tote hei āwhina i te whakahaere i te toto teitei me te pupuri wai.