He aha te Neuroblastoma? Ngā Tōmhanga, Ngā Take, me te Maimoatanga

Ko te neuroblastoma tētahi momo mate pukupuku e tupu ana i ngā pūtau io kore i whānuitia e kiia nei ko ngā neuroblasts. Ko ēnei pūtau me whānuitia hei pūtau io noa, engari i roto i te neuroblastoma, ka tupu haere rātou ka hanga i ngā pūngāwerewere.

Ko te nuinga o tēnei mate pukupuku e pā ana ki ngā tamariki, ā, ko te nuinga o ngā keehi e puta ana i mua i te 5 tau. Ahakoa ka rongo te kupu 'mate pukupuku' he nui rawa, he mea nui kia mōhio kei te whakautu pai te nuinga o ngā tamariki e pangia ana e te neuroblastoma ki te maimoatanga, inā koa ka kitea wawe.

He aha ngā tōmhanga o te neuroblastoma?

Ka rerekē haere ngā tōmhanga o te neuroblastoma i runga i te wāhi e tupu ana te pūngāwerewere me tōna nui. Mai i te mea ka taea e tēnei mate pukupuku te whanake i ngā wāhanga rerekē o te tinana o tō tamaiti, ka kore pea e rite ngā tohu i te tīmatanga.

Ko ēnei ngā tōmhanga ka kitea pea e koe, kua whakarōpūhia i runga i te wāhi e puta ai rātou:

Ngā tōmhanga whānui e pā ana ki te tinana katoa:

• Te kirika roa e kore e whakautu pai ki ngā maimoatanga noa
• Te ngaro taumaha kore whakamaarama, te iti rānei o te hiahia kai
• Te ngenge, te wīwī rānei kore e pai ake ahakoa te okioki
• Te riri, te rerekē rānei o te whāinga o tō tamaiti
• Te kiri ma e tohu ana pea i te mate toto iti

Ngā tōmhanga o te kopu (mai i te mea he tokomaha ngā pūngāwerewere e tīmata ana i te rohe o te kopu):

• He pūngāwerewere pakari, te pupū rānei i roto i te kopu e taea te kite
• Te mamae o te kopu, te kore rānei o te mārie
• Te ngawari te whakaki i te wa e kai ana
• Te mate pūkahukahu, te rerekē rānei o ngā tikanga o te pūkahukahu

Ngā tōmhanga e pā ana ki te uma:

• Te kōhū roa e kore e rite ki te mate huka
• Te uaua ki te manawa, te poto rānei o te manawa
• Te mamae o te uma, te kore rānei o te mārie

Ngā tōmhanga iti ake te noho, engari he mea nui kia titiro atu:

• Te mamae o te wheua, ina koa i nga waewae, ka taea te whakakiki
• Te whero, te kikorangi ranei o te kiri
• Te pupuhi o nga whekau lymph
• Nga raruraru o te kanohi penei i nga kara pouri, nga kamoe ngawari, te rereke ranei o te rahi o nga kauae
• Te toto teitei
• Te ruaki roa

Ka taea te whanake haeretia enei tohu i roto i nga wiki, i nga marama ranei. He maha o enei tohu ka taea te puta mai i nga mate tamariki noa atu, na kaua e manukanuka ki te kite koe i tetahi, i te rua ranei. Heoi, ki te puta mai etahi tohu tahi, ki te kore ranei e ngaro ahakoa te maimoatanga, he mea tika kia korero ki to taakuta tamariki.

He aha nga momo neuroblastoma?

Ka whakarōpūhia e ngā tākuta te neuroblastoma i roto i ngā huarahi maha hei awhina i te whakatau i te huarahi maimoatanga pai. Ko te huarahi matua e whakarōpūhia ai e rātou ko te taumata tūponotanga, e āwhina ana i te kī he pēhea te whanake o te mate pukupuku.

I runga i te taumata tūponotanga:

• Neuroblastoma iti te tūponotanga: Ka tupu haeretia enei mate pukupuku, ā, ka tino pai te whakautu ki te maimoatanga, ka taea pea te whakaiti i a rātou ano
• Neuroblastoma tūponotanga waenga: Me nui ake te maimoatanga, engari he pai tonu ngā hua me te tiaki tika
• Neuroblastoma tūponotanga teitei: He kaha ake enei, ā, me nui ake te maimoatanga, engari he maha tonu ngā tamariki e ora pai ana me te tiaki whānui

I runga i te wāhi o te tinana:

• Neuroblastoma adrenal: Ka tīmata i ngā whatukuhu kei runga i ngā whatukuhu (te wāhi tino noa)
• Neuroblastoma kopu: Ka whanake i roto i te kiko io i te rohe o te kopu
• Neuroblastoma uma: Ka tupu i te rohe o te uma
• Neuroblastoma upoko: Ka hangaia i te rohe o te upoko (kaore e tino noa)

Ka whakamahia e te rōpū hauora o tō tamaiti ēnei whakamārama, me ētahi atu āhuatanga pēnei i te tau me ngā āhuatanga motuhake o te mate pukupuku, hei hanga i te mahere maimoatanga tino pai. Ka rerekē te whakautu o ia momo ki te maimoatanga, koia tēnei te take i pai ai tēnei pūnaha whakamārama.

He aha te take o te neuroblastoma?

Kāohore i tino mōhiotia te take pono o te neuroblastoma, engari e whakapono ana ngā kairangahau nō te he i te wā o te whanaketanga o te pēpi. I te wā hapu, ko ngā pūtau motuhake e kiia nei ko ngā pūtau crest neural e tika ana kia whanake hei pūtau io pakeke, engari i etahi wā kāohore tēnei tukanga e oti pai.

Ko te nuinga o ngā keehi o te neuroblastoma ka puta noa iho, arā, kāohore he mea i mahia e ngā mātua, kāohore hoki i mahia e kore ai i puta. Ka kiia tēnei he mate pukupuku "sporadic", ā, koinei te 98% o ngā keehi neuroblastoma katoa.

I etahi wā (tata ki te 1-2% o te wā), ka taea te whakawhiwhi i te neuroblastoma, arā, ka tukuna i roto i ngā whānau. Ka puta tēnei ina he huringa i roto i ngā ira motuhake e whakahaere ana i te whanaketanga o ngā pūtau io. Ko ngā whānau he neuroblastoma tuku iho te nuinga o te wā he maha ngā mema o te whānau e pā ana, ā, ka puta pea te mate pukupuku i ngā tau iti ake.

Ko ētahi take e ako ana ngā kairangahau, tae atu ki te whakaū ki ētahi matū i te wā hapu, engari kāohore he take taiao kua whakamāramahia. Ko te mea nui kia mārama ko te neuroblastoma kāohore i puta mai i tetahi mea i taea e koe te aukati, te whakahaere rānei.

Nōhea te toro atu ki te taote mō te neuroblastoma?

Me whakapiri atu koe ki te taote tamariki o tō tamaiti ki te kite koe i tetahi whakakotahitanga o ngā tohu i whakahuatia i mua ake nei, ina koa ki te roa atu i te wiki, rua rānei. Ahakoa ko te nuinga o ēnei tohu ka puta mai i ngā mate noa o ngā tamariki, he pai tonu te tirotiro i a rātou.

Rapua te awhina hauora kia tere ake ki te pēnei tō tamaiti:

• Te puputu kaha i roto i te kopu e taea te kite
• Te kirika roa me te ngaro o te taumaha
• Te mamae nui o te kopu
• Te uaua ki te manawa
• Te mamae nui o te wheua, te kore ranei e taea te haere noa
• Tetahi huringa kanohi penei i nga kamo i raro, i nga rahi rerekē ranei o te tauira

Whakaarohia o ngā whakaaro hei mātua. Ki te mea he 'koretake' te ahua o te hauora o tō tamaiti, o tōna whāinga rānei, kaua e whakaroa ki te karanga atu ki tō tākuta. E mōhio ana ngā tākuta tamariki ki ngā mātua e awangawanga ana, ā, ka tino pai ake te tirotiro i tetahi mea ka puta mai he mea iti i te ngaro i tetahi mea nui.

Ka taea e te kite wawe te whakarereke nui ki ngā hua whakaora, no reira ko te tupato ki ngā huringa o te hauora o tō tamaiti tētahi o ngā mea tino nui ka taea e koe te mahi.

He aha ngā take morearea mō te neuroblastoma?

Kāore i rite ki te nuinga o ngā mate pukupuku o te pakeke, kāore te neuroblastoma i te maha o ngā take morearea mārama e taea te whakahaere e ngā mātua. Ko te nuinga o ngā tamariki e whanake ana i tēnei mate pukupuku kāore he take morearea e mohiotia ana.

Ko ngā take morearea matua kua kitea e ngā tākuta ko:

Te Tau: Koinei te take morearea tino nui. E 90% te tata o ngā keehi neuroblastoma e puta ana i ngā tamariki kei raro iho i te 5 tau te pakeke, ā, ko te tino morearea kei te tau tuatahi o te oranga. Ka heke haere te morearea i te wa e pakeke haere ana ngā tamariki.

Te Ira Tangata: He iti ake te tūponotanga o ngā tama ki te whanake i te neuroblastoma i ngā kōhine, engari he iti te rerekētanga.

Te hītori whānau: I roto i ngā keehi tino onge (1-2% o ngā keehi katoa), ka taea te rere o te neuroblastoma i roto i ngā whānau. He nui ake te morearea o ngā tamariki he mātua, he teina rānei i whanau i te neuroblastoma, engari koinei te wahi iti rawa o ngā keehi.

Ngā āhuatanga ira: Ka taea e ētahi mate ira onge te whakapiki ake i te morearea, engari he tino onge enei āhuatanga.

He mea nui te mōhiotanga e te nuinga o ngā tamariki e whai nei i te neuroblastoma kahore he take morearea o ēnei. Ko te mate pukupuku te nuinga o te wā ka tipu noa i te wā o te whānautanga, ā, kāhore he mea ka taea e ngā mātua te mahi rerekē hei aukati i taua mea. Kāhore tēnei e puta mai i te kai, te noho ora rānei, te taiao rānei e taea e koe te whakahaere.

He aha ngā raruraru pea o te neuroblastoma?

Ka puta mai ngā raruraru mai i te neuroblastoma mai i te mate pukupuku anō rānei, mai i ngā rongoā hei whawhai ki taua mea rānei. Mā te mōhiotanga ki ēnei wāhi pea ka āhei koe ki te mohio ki ngā mea hei titiro atu, ā, kia mōhio ake ki te haerenga o te tiaki a tō tamaiti.

Ngā raruraru mai i te mate pukupuku:

• Te pehi i ngā whekau e tata ana: I te tipu haere o ngā mate pukupuku, ka taea e rātou te pēhi i ngā whatukuhu, ngā pūkahukahu, ngā whekau atu rānei, ka pā ki tō rātou mahi
• Te pehi i te uaua o te tuaiwi: Ki te tipu te mate pukupuku e tata ana ki te tuaiwi, ka taea e ia te pēhi i te uaua o te tuaiwi, ka āhei pea te whakaiti i te kaha, te pararutiki rānei
• Ngā raruraru e pā ana ki te homoni: Ka tukuna e ētahi mate pukupuku ngā homoni ka āhei te whakapakari i te toto teitei, te ruaki roa rānei
• Te horapa ki ētahi atu wāhi o te tinana: Ka taea e te neuroblastoma whānui te horapa ki ngā wheua, te wheua wheua, te ate, ngā whekau lymph rānei

Ngā raruraru e pā ana ki te rongoā:

• Te tūponotanga o te mate: Ka taea e te chemotherapy te whakaiti i te maha o ngā pūtau toto ma, ka āhei ai te mate
• Ngā raruraru o te rongonga: Ka taea e ētahi rongoā chemotherapy te pā ki te rongonga
• Ngā huringa o te tipu me te whanaketanga: Ka taea e ngā rongoā kaha te pā ki ngā tauira tipu noa
• Ngā mate pukupuku tuarua: He tino onge, ka taea e te rongoā te whakapiki i te tūponotanga o te whanake i ētahi atu mate pukupuku i muri mai i te ora

Ahakoa pea ka kitea tenei rārangi he nui rawa, kia mahara ko te rōpū hauora o tō tamaiti he wheako ki te aukati me te whakahaere i ēnei raruraru. He tokomaha ngā tamariki e haere ana i te maimoatanga kaore e pāngia e ngā raruraru nui, ā, ko te hunga e pāngia ana e te nuinga ka ora katoa me te tiaki tika.

Ko ngā tikanga maimoatanga hou kua hoahoahia kia tino whai hua i te wā e whakaitihia ai ēnei tūponotanga. Ka tirotiro tata te rōpū hauora o tō tamaiti i tō tamaiti i te wa o te maimoatanga kia kitea me te whakaoti i ngā raruraru i te tīmatanga.

Me pēhea te whakamātautau i te neuroblastoma?

Ko te whakamātautau i te neuroblastoma he maha ngā kaupae, ā, ka mahi tahi te rōpū hauora o tō tamaiti kia whiwhi i te whakaahua katoa. Ko te tukanga e tīmata ana i te tirotiro a tō tākuta whānau, katahi ka neke ki ngā whakamātautau motuhake.

Te aromatawai tuatahi:

Ka tīmata tō tākuta ki te whakamātautau tinana tino pai, te ngana ki te kite i ngā pūngāwerewere, te pupuhi rānei, inā te puku. Ka ui ia i ngā pātai taipitopito mō ngā tohu o tō tamaiti me te wā i tīmata ai.

Ngā whakamātautau whakaahua:

• Ultrasound: Ko te whakamātautau whakaahua tuatahi, inā mo ngā pūngāwerewere o te puku
• CT scan: Ka whakarato i ngā whakaahua taipitopito o roto o te tinana kia whakaatu i te rahi me te wāhi o te mate pukupuku
• MRI: Ka homai ngā whakaahua taipitopito atu, he pai rawa mō ngā mate pukupuku e tata ana ki te tuaiwi o muri
• MIBG scan: He whakamātautau rongoā pūngao motuhake e taea ai te kite i ngā pūtau neuroblastoma puta noa i te tinana

Ngā whakamātautau taiwhanga:

• Ngā whakamātautau mimi: Tirohia ngā matū motuhake e whakaputa pinepine ana ngā pūtau neuroblastoma
• Ngā whakamātautau toto: Rapua ngā tohu mate pukupuku me te aromatawai i te hauora whānui
• Te tango i te wheua wheua: Tirohia mēnā kua horapa te mate pukupuku ki te wheua wheua

Te tango i te kiko:

Ko te tautuhi tino e hiahiatia ana te tirotiro i te kōpū mate pūngāwerewere i raro i te microscope. Ko te tikanga ka mahia tenei mā tetahi mahi pokanga iti hei tango i tetahi wāhanga o te mate pūngāwerewere.

Ko te tukanga tautuhi katoa ka roa pea i te maha o ngā rā ki te torutoru wiki. Ahakoa he raruraru te tatari mō ngā hua, ko tēnei aromatawai tino pai ka āwhina i te whakarite kia whiwhi to tamaiti i te rongoā tika mō tōna āhuatanga motuhake.

He aha te rongoā mō te neuroblastoma?

Ko te rongoā mō te neuroblastoma he tino wehewehea i runga i te tau o tō tamaiti, ngā āhuatanga o te mate pūngāwerewere, me te tawhiti o tōna hora. Ko te rongo pai ko ngā huarahi rongoā kua pai haere rawa i ngā tau, a he tokomaha ngā tamariki me te neuroblastoma e ora tonu ana i ngā oranga hauora, noa.

Te pokanga:

Ko te pokanga te rongoā tuatahi, inā koa mō ngā mate pūngāwerewere kaore i hora. Ko te whāinga ko te tango i te nuinga o te mate pūngāwerewere i te wa e tiaki ana i ngā kōpū me ngā hanganga tata. I etahi wā kaore e taea te tango katoa i te tīmatanga, no reira ka taea te mahi pokanga i muri i ētahi atu rongoā hei whakaiti i te mate pūngāwerewere.

Te chemotherapy:

Ko ēnei he rongoā kaha e whai ana i ngā pūtau mate pūngāwerewere puta noa i te tinana. Ka pea ka whiwhi to tamaiti i te maha o ngā rongoā chemotherapy rerekē i roto i te wā o ngā marama. Ko te rongoā ka hoatuhia mā te raina pokapū (he IV motuhake) kia pai ake te whakamarie.

Te rongoā radiation:

Ka whakamahia ngā hihi kaha ki te whakangaro i ngā pūtau mate pūngāwerewere i ngā wāhi motuhake. Kua whakaritea tika tēnei rongoā ki te whai i te mate pūngāwerewere i te wa e tiaki ana i te kōpū hauora. Kāore ngā tamariki katoa me te neuroblastoma e hiahia ana ki te rongoā radiation.

Te whakawhiti pūtau pūtau:

Mō ngā take morearea nui, ka taea e ngā tākuta te tūtohutia te kohikohi i ngā pūtau pūtau hauora o tō tamaiti i mua i te hoatu i ngā rongoā chemotherapy nui rawa, katahi ka whakahoki i ngā pūtau pūtau hei awhina i te hanga hou i te pūnaha mate.

Immunotherapy:

Ko ēnei rongoā hou e āwhina ana i te pūnaha matekōkiri o tō tamaiti kia mohio ai, ā, kia whawhai ai i ngā pūtau kōreweke kia nui ake te whai hua. Kua riro mai tēnei hei wāhanga nui o te rongoā mō te tini o ngā tamariki e pangia ana e te neuroblastoma.

Rongoā ā-pūtau:

Ko ēnei rongoā e whai ana i ngā āhuatanga motuhake o ngā pūtau kōreweke, ā, ka waiho noa iho ngā pūtau noa.

Ko te tikanga he 12-18 ngā marama te roa o te rongoā, ahakoa ka rerekē nui tēnei. Ka hanga e te rōpū onkologi o tō tamaiti tētahi mahere rongoā taipitopito, ā, ka whakaritea e rātou kia rite ki te whakautu o tō tamaiti.

Me pēhea te whakarato i te tiaki kāinga i te wā e rongoātia ana te neuroblastoma?

Ko te tiaki i tō tamaiti i te kāinga i te wā e rongoātia ana te neuroblastoma, e pā ana ki te whakahaere i ngā āhuatanga tinana me ngā āhuatanga wairua o tōna haerenga. Ka homai e tō rōpū hauora ngā tohutohu motuhake, engari koinei ētahi aratohu whānui e taea te āwhina.

Te whakahaere i ngā pānga o te rongoā:

• Te aukati i te mate: Kia mamao atu tō tamaiti i ngā mano tangata me ngā tāngata mate i te wā e iti ana tōna pūnaha matekōkiri
• Te tautoko kai: Hoatu ngā kai iti, maha, ā, mahi tahi me tētahi kaiwhakaako kai mēnā ka waiho te hiahia kai hei raruraru
• Te wai: Whakatenatena kia nui te inu wai, ki te kore tō tākuta e whakaaro ke
• Te tiaki ngutu: Ko te horoi ngutu māori me ngā horoi ngutu motuhake ka taea te aukati i ngā pupuhi ngutu mamae
• Te tiaki kiri: Kia ma, kia makuku te kiri, ina koa te taha o te raina waenganui

Te tirotiro mō ngā raruraru:

Kia tuhia ia rā te pāmahana o tō tamaiti, te hiahia kai, me ngā taumata kaha. Whakapa atu ki tō rōpū hauora tonu mēnā ka kite koe i te kirika, ngā tohu o te mate, te toto rere koretake, te ruaki nui me te ruaki.

Te tautoko wairua:

Kia mau te tikanga noa o te oranga o tō tamaiti. Haere tonu ki ngā mahi whakangahau e pai ana ki a ia ina pai tana hauora. He maha ngā hōhipera kei a rātou ngā tohunga ora tamariki e āhei ana te whakarato i ngā rauemi hei āwhina i ngā tamariki ki te whakatau i te rongoā.

Te kura me ngā hononga whānau:

mahi tahi me te kura o tō tamaiti hei whakarite i te whakaako tonu i te wā e rongoā ana. He maha ngā tamariki ka taea te whakahaere i ētahi mahi kura i te kāinga, ka hoki rānei ki te kura i waenganui i ngā huringa rongoā.

Kia mahara kei te tika koe ki te whakahaere i ngā mea katoa. Ko tō rōpū hauora, ngā kaimahi whānau, me ētahi atu whānau e haere ana i ngā wheako rite ka taea te whakarato i te tautoko nui me ngā tohutohu whai hua.

Me pēhea te whakarite mō ō hui rongoā?

Ko te whakarite pai mō ngā hui ka āhei te awhina i a koe ki te whakamahi pai i tō wā me te rōpū hauora o tō tamaiti, ā, kia whakarite ai koe ka whiwhi koe i ngā mōhiohio katoa e hiahia ana koe. Ko te huarahi hei whakarite mō ngā uiui tuatahi me ngā haerenga tiaki haere tonu.

I mua i te hui:

• Tuhia ngā tohu katoa kua kite koe, tae atu ki te wā i tīmata ai rātou me te āhua o te huringa.
• Rārangihia ngā rongoā, ngā huaora, me ngā taapiri katoa e inu ana tō tamaiti.
• Whakaritea he rārangi o ngā pūrongo – tuhia kia kaua e wareware i taua wā.
• Kohikohia ngā rekoata hauora o mua, ngā hua whakamātautau rānei.
• Whakaarohia te kawe mai i tētahi mema whānau, hoa rānei hei tautoko me te awhina i te mahara i ngā mōhiohio.

Ngā pūrongo pea e hiahia ana koe ki te ui:

• He aha te momo me te wahanga o te neuroblastoma kei tō tamaiti?
• He aha ngā kōwhiringa rongoā, ā, he aha tāu e tūtohutia ana?
• He aha ngā pānga kino pea o te rongoā?
• Me pēhea te mohio atu ki te mahi o te rongoā?
• He aha ngā mea me tirotiro e au i te kāinga?
• He mahi rānei e kore e tika kia mahi tō tamaiti?
• He aha ngā ratonga tautoko kei te wātea mō tō whānau?

I te wā o te hui:

Kaua e whakaroa ki te ui atu mēnā ka kore e mārama tetahi mea. Tuhia ngā kōrero, ki te kore rānei, ui atu mēnā e taea ana te tuhi i ngā wāhanga nui o te kōrero. Kia mahara kua mārama koe ki ngā mahi e whai ake nei i mua i to haerenga atu.

Ngā mea hei mauria mai:

Mauria mai ō kāreti inihua, te rārangi o ngā rongoā kei te whakamahia nei, ngā taonga whakamāhaki mō tō tamaiti, ngā kai, me ngā whakapakari mo ngā haerenga roa pea.

Kia mahara kei te hiahia tō rōpū hauora ki te hono atu ki a koe i te tiaki i tō tamaiti. E tumanako ana rātou ki ngā pūrongo, me te hiahia kia mōhio koe, kia whakapono hoki ki te mahere whakaora.

He aha te mea nui mō te neuroblastoma?

Ko te neuroblastoma he mate pukupuku tamariki, ahakoa he kino, kua kitea te whakapai ake o ngā hua whakaora i ngā tekau tau kua pahure. He tokomaha ngā tamariki e pangia ana e te neuroblastoma e ora tonu ana, e ora noa ana i muri i te whakaora.

Ko ngā mea tino nui hei mahara ko te kite wawe e puta he rerekētanga, ko te whakaora he tino wehewehe i runga i te āhuatanga motuhake o tō tamaiti, ā, kāo kore koe i te kotahi i roto i tēnei haerenga. He wheako ngā rōpū hauora hou ki te whakaora i te neuroblastoma me te tautoko i ngā whānau i roto i te tukanga.

Ahakoa ka kitea te whakatau he nui rawa, arotahi ki te tango i ngā mea kotahi i te wa. Ka arataki tō rōpū hauora i a koe i ia wāhanga o te whakaora, ā, ka āwhina i a koe ki te mārama ki ngā mea e tumanakohia ana. He tokomaha ngā whānau e kite ana ko te hono atu ki ētahi atu whānau kua pā atu ki ngā wheako rite tētahi tautoko me te tirohanga whai hua.

Whakawhirinaki ki tō rōpū hauora, noho hono atu ki tō whatunga tautoko, ā, kia mahara he tino kaha ngā tamariki. Mā te whakaora tika me te tiaki, he tokomaha ngā tamariki e pangia ana e te neuroblastoma e ora tonu ana.

Ngā pūrongo e ui pinepinetia ana mō te neuroblastoma

U1: He mate mate tonu te neuroblastoma?

Kāo, ehara te neuroblastoma i te mate tāngata tonu. Ko te tikanga, he tokomaha ngā tamariki e ora ana i te neuroblastoma, ā, ka ora tonu rātou. Ko te tirohanga kei runga i ngā take maha, tae atu ki te tau o te tamaiti, te tawhiti o te hora o te mate pukupuku, me ngā āhuatanga motuhake o te mate pukupuku. He pai te rerenga ora mō te neuroblastoma iti te tūponotanga, e neke atu i te 95% te nuinga. Ahakoa ngā take nui te tūponotanga, kua pai ake te hua me ngā tikanga whakaora hou.

Q2: Ka hoki mai te neuroblastoma i muri i te whakaora?

Ae, ka taea e te neuroblastoma te hoki mai, engari ehara i te mea ka puta tenei ki te nuinga o ngā tamariki. Ko te tūponotanga o te hokinga mai kei runga i te kāwai tūponotanga tuatahi o te mate pukupuku. Ko te nuinga o ngā hokinga mai ka puta i roto i ngā tau rua tuatahi i muri i te whakaora, koia te take i nui ai te tiaki whai muri. Ki te hoki mai te neuroblastoma, kei reira tonu ngā whiringa whakaora, tae atu ki ngā rongoā hou kaore i wātea i mua.

Q3: Ka taea e taku tamaiti te ora noa i muri i te whakaora neuroblastoma?

Ko te nuinga o ngā tamariki e ora ana i te neuroblastoma ka haere tonu ki te ora noa, hauora. Ka taea e rātou te haere ki te kura, te takaro hākinakina, me te whakauru ki ngā mahi tamariki noa katoa. He maha pea ngā pānga roa o te whakaora ki ētahi tamariki, engari ka taea te whakahaere pai i te nuinga o ēnei. Ka tirotirohia e tō rōpū hauora te tipu me te whanaketanga o tō tamaiti, ka whakautu ki ngā take e puta mai ana.

Q4: He mate ka pā te neuroblastoma?

Kāo, ehara te neuroblastoma i te mate ka pā. Kāore e taea te hora atu i te tangata ki te tangata mā te hononga, mā te kai tahi, mā tetahi atu huarahi rānei. Ka puta te mate pukupuku mai i ngā huringa i roto i ngā pūtau ake o te tangata, ehara i te mea mai i te mate pukupuku nā ngā mate huaketo, nā ngā huaketo rānei. Ka taea e tō tamaiti te hono atu ki ngā hoa, ki ngā whānau, ki ngā hoa kura, me te kore e pā te mate.

Q5: Me whakamātautau genetika rānei au mō tōku whānau?

Ko te whakamātautau ira e tūtohutia ana i ngā wā motuhake anake, nā te mea he onge rawa te neuroblastoma whatukuhu (1-2% o ngā keehi). Āta tirohia e tō tākuta te whakaaro mō te tohutohu ira mena kei roto i tō whānau te neuroblastoma, mena i kitea tō tamaiti i te tamarikitanga, rāna rānei he āhuatanga motuhake ke atu. Mō te nuinga o ngā whānau, kāo te whakamātautau ira e hiahiatia ana, nā te mea ko te nuinga o ngā keehi neuroblastoma ka puta noa iho.