He aha te Neurofibroma? Ngā Tohutohu, Ngā Take, me te Maimoatanga

He mate pūngāwerewere pai (kāore e mate pukupuku) te neurofibroma e tupu ana i runga, i te taha rānei o te kiko io. Ka puta enei pūngāwerewere ngawari, kikokiko ina nui atu te maha o ngā pūtau e tautoko ana, e tiaki ana rānei i ō io i te mea e tika ana.

Ko te nuinga o ngā neurofibroma he kore kino, ā, ka tupu haere māmā i te wā. Ka taea te puta i ngā wāhi katoa o tō tinana kei reira ngā io, ahakoa ko te nuinga o te wā ka kitea i runga, i raro rānei i te kiri. Ahakoa ko te kupu "pūngāwerewere" pea ka rōpū, he iti rawa te nui o enei pūngāwerewere hei mate pukupuku, ā, he tokomaha ngā tāngata e noho ora ana me rātou.

He aha ngā tohu o te neurofibroma?

Ko te tohu tino kitea o te neurofibroma ko te pūngāwerewere ngawari, rapa e taea te kite i raro i tō kiri. Ko enei pūngāwerewere ka ngawari te pā i te wa e pēhi ana koe ki a rātou, kaore i rite ki ngā pūngāwerewere pakeke ka kitea pea i ētahi atu wāhi o tō tinana.

Ko ēnei ngā tohu matua ka kitea pea e koe:

• Ngā pūngāwerewere ngawari, neke atu i raro i te kiri e ngawari ana te pā, rapa rānei
• Ngā pūngāwerewere tae kiri, pouri iti rānei pea ka maeneene, ka hāparapara rānei
• Te kīkī, te ngāngā rānei i te wāhi o te pūngāwerewere
• Te mamae iti, te ngawari rānei ina pēhi te pūngāwerewere
• Te kīkī, te ngawari rānei o te wāhi e pā ana

Ko te nuinga o ngā neurofibroma kāore e mamae, ki te kore e pēhi ki ngā io, ki ngā whekau rānei e tata ana. Ki te maha ngā pūngāwerewere kei a koe, ka kite pea koe i te puta haere māmā i ngā marama, i ngā tau rānei, kāore i te kotahi wā.

He aha ngā momo neurofibroma?

Ka wehewehe ngā tākuta i ngā neurofibroma ki ētahi momo, i runga i te wāhi e tupu ana, me te āhua. Ka taea e te mārama ki ēnei rerekētanga te āwhina i a koe ki te mohio ki te aha e tatari ana koe mai i tō āhuatanga motuhake.

Ko ēnei ngā momo matua:

• Ngā neurofibroma kiri: Ka tupu ēnei i runga, i raro rānei i tō kiri, ā, koinei te momo tino noa
• Ngā neurofibroma raro kiri: Ka tupu ēnei i raro i te kiri, ā, ka nui ake, ka pakari ake rānei te āhua
• Ngā neurofibroma whakawhiti: Ka tupu ēnei i ngā rōpū io nui ake, ā, ka taea te tupu nui
• Ngā neurofibroma tuaiwi: Ka tupu ēnei i ngā io i roto i tō tuaiwi, ā, he iti te noa

Ko te nuinga o ngā momo kiri me ngā momo raro kiri he iti, ā, he iti ngā raruraru. He iti rawa ngā neurofibroma whakawhiti, engari me tirotiro tata atu, no te mea ka taea te mate pukupuku i etahi wa, ā, ka nui ake ngā tohu e puta ana i te rahi me te wāhi.

He aha ngā take o te neurofibroma?

Ka puta ngā neurofibroma ina tīmata ngā pūtau e kiia nei ko ngā pūtau Schwann, e tiaki ana, e tautoko ana rānei i ō io, ki te tupu kahore he tikanga. Ka puta tēnei na ngā huringa i roto i ngā ira motuhake e pupuri ana i te tupu o ngā pūtau i raro i te mana.

Ko ēnei ngā take matua:

• Neurofibromatosis momo 1 (NF1): He mate ira e puta ai ngā neurofibroma maha
• Ngā huringa ira tūturu: Ngā rerekētanga ohorere e taea ai te puta mai o ngā pūngāwerewere kotahi
• Ngā rerekētanga ira i tukuna: Ngā huringa i tukuna mai i ngā mātua, ahakoa he iti te noa mō ngā take motuhake

Mo te haurua o ngā tāngata e mate ana i te NF1, i riro mai te mate i te mātua, ā, ko tetahi atu haurua i puta mai i ngā huringa ira hou. Ki te kotahi, rua rānei ngā neurofibroma kei a koe, kāore hoki i ētahi atu tohu, kaore pea koe e mate i te NF1, ā, i puta te pūngāwerewere na te huringa ira ohorere i taua wāhi motuhake.

Nōhea te haere ki te tākuta mō te neurofibroma?

Me whakarite e koe he whakatau ki tō tākuta ki te kite koe i ētahi pūngāwerewere hou i tō tinana, ahakoa kāore e mamae. Ahakoa ko te nuinga o ngā neurofibroma he kore kino, he mea nui kia whiwhi i te taumata tika hei whakakore i ētahi atu mate.

Rapua te tiaki hauora kia tere ake ki te pāngia koe e:

• Te tupu tere o te pūngāwerewere kei reira
• Te mamae nui, te ngāngā rānei i te wāhi e pā ana
• Ngā huringa i te tae, i te āhua rānei o te pūngāwerewere
• Ngā pūngāwerewere hou maha e puta ana i roto i te wā poto
• Te ngoikore, te ngaro rānei o te mahi i ngā uaua e tata ana

Ki te mohio kē koe kei a koe ngā neurofibroma, ka āwhina ngā tirotiro auau i tō tākuta ki te tirotiro i ngā huringa. Ko te nuinga o ngā tāngata e mau ana i ngā neurofibroma pumau ka hiahia noa ki ngā haerenga ia tau, engari ka tohutohu tō tākuta i a koe mo te kaupapa pai mō tō āhuatanga.

He aha ngā take morearea mō te neurofibroma?

He maha ngā take ka nui ake ai ō tūmanako ki te whanake neurofibroma, ahakoa he tokomaha ngā tāngata e mau ana i ēnei take morearea kāore e whanake i te mate. Ka taea e te mārama ki ēnei take te āwhina i a koe ki te noho mataara ki ngā tohu pea.

Ko ēnei ngā take morearea matua:

• Te hītori whānau o te neurofibromatosis: Ki te whai mātua koe e mate ana i te NF1, he 50% te tūmanako ka riro i a koe
• Te tau: Ko te nuinga o ngā neurofibroma ka puta i te tamarikitanga, te taitamarikitanga, te pakeketanga rānei
• Te whakamahinga o te radiation i mua: He iti rawa, ka taea e te rongoā radiation te nui ake o te morearea
• Ngā take ira: Ka taea e ētahi rerekētanga ira te whakaiti i ētahi tāngata

He mea tika te kōrero ko te nuinga o ngā neurofibroma motuhake ka puta ohorere mai, kāore he take morearea e taea te kitea. Ko te whai neurofibroma kotahi kāore e tino tikanga ka nui ake ngā mea e puta mai ana, ina koa ki te kore koe e whai tohu atu o te neurofibromatosis.

He aha ngā raruraru pea o te neurofibroma?

Ko te nuinga o ngā neurofibroma he iti ngā raruraru, ā, ka pumau tonu i roto i tō oranga. Heoi, ka taea e te mārama ki ngā raruraru pea te āwhina i a koe ki te mohio ki te wa hei rapu atu i te tiaki hauora.

Ko ēnei ngā raruraru pea:

• Te pēhinga io: Ka taea e ngā pūngāwerewere nui te pēhi ki ngā io e tata ana, e puta ai te mamae, te ngāngā rānei
• Ngā āwangawanga ataahua: Ka pā pea ngā pūngāwerewere e kitea ana ki tō ahua, ki tō whakapono ki a koe rānei
• Ngā raruraru mahi: Ka taea e ngā pūngāwerewere e tata ana ki ngā hononga, ki ngā whekau rānei te whakaroa i te nekehanga noa
• Te huringa kino: He iti rawa, ka taea e ngā neurofibroma te mate pukupuku (iti iho i te 5% o ngā take)
• Te toto, te mate rānei: Ki te whara, ki te whakaohooho rānei te pūngāwerewere

He nui ake te morearea o ngā neurofibroma whakawhiti ki te mate pukupuku i ētahi atu momo, koia te take e tirotiro tata ana ngā tākuta i a rātou. Ahakoa, ko te nuinga o ngā neurofibroma kāore e puta he raruraru hauora nui.

Me pēhea te whakatau i te neurofibroma?

Ka tīmata tō tākuta mā te tirotiro i te pūngāwerewere, mā te uiui hoki mō ō tohu, mō tō hītori whānau. I te nuinga o ngā wā, ka taea e ngā tākuta te whakatau i te neurofibroma mā te titiro noa atu ki a ia, mā te pā atu hoki ki tōna āhua.

Ko te tikanga o te tukanga whakatau ko:

1. Te tirotiro tinana: Ka pā tō tākuta ki te pūngāwerewere, ka tirotiro hoki i ētahi atu pūngāwerewere rite
2. Te hītori hauora: Te kōrero mō te wā i puta mai ai te pūngāwerewere, me ētahi atu tohu
3. Ngā whakamātautau whakaahua: Ngā tātaritanga MRI, CT rānei ki te nui te pūngāwerewere, ki te wāhi ngāwari rānei
4. Te biopsy: He iti te hiahiatia, engari ka taea te mahi ki te kore e mārama te whakatau
5. Te whakamātautau ira: Ka tūtohutia ki te maha ngā neurofibroma kei a koe, ki te whai hītori whānau rānei

Ko te nuinga o ngā neurofibroma iti, noa kāore e hiahia ana ki te whakamātautau whānui. Ka tūtohu pea tō tākuta i te whakaahua, i te biopsy rānei ki te kore e noa te pūngāwerewere, ki te tupu tere rānei, ki te puta mai rānei ngā tohu nui.

He aha te maimoatanga mō te neurofibroma?

Ko te nuinga o ngā neurofibroma kāore e hiahia ana ki tetahi maimoatanga, ā, ka taea te tirotiro noa i te wā. Ka tūtohu tō tākuta i te maimoatanga ina puta mai ngā tohu, ina pā nui ki tō ahua, ina whakaatu rānei i ngā huringa e awangawanga ana.

Ko ēnei ngā whiringa maimoatanga:

• Te tatari mataara: Te tirotiro auau mō ngā pūngāwerewere iti, pumau
• Te tango mā te pokanga: Ko te maimoatanga tino noa mō ngā neurofibroma e raruraru ana
• Te rongoā laser: Mō ngā pūngāwerewere iti, i runga i te mata e pā ana ki te ahua
• Ngā rongoā e whai pūtau ana: Ngā rongoā hou mō ngā neurofibroma whakawhiti nui
• Te whakahaere mamae: Ngā rongoā, ngā rongoā rānei ki te puta te mamae o te pūngāwerewere

Ko te pokanga he mea ngāwari te nuinga mō ngā neurofibroma iti, ā, ka ora wawe te nuinga o ngā tāngata. Mō ngā pūngāwerewere nui ake, ngā pūngāwerewere hohonu rānei, ka uaua ake pea te tukanga, engari he iti te nui o ngā raruraru nui. Ka kōrero tō tākuta i te huarahi pai i runga i tō āhuatanga motuhake.

Me pēhea te whakahaere i te neurofibroma i te kāinga?

Ahakoa kaore e taea e koe te maimoa i ngā neurofibroma i te kāinga, he maha ngā huarahi hei whakahaere i ngā tohu, hei tiaki hoki i a koe i waenganui i ngā haerenga ki te tākuta. Ka taea e ēnei huarahi te āwhina i a koe ki te noho māhainga, ki te whakapono hoki.

Koinei ngā mea ka taea e koe i te kāinga:

• Te tiaki i te wāhi: Kaua e mau kakahu pīpī, kaua hoki e mahi i ngā mahi ka whakaohooho pea i te pūngāwerewere
• Te tirotiro i ngā huringa: Tango pikitia i etahi wa hei whai i ngā huringa i te rahi, i te ahua rānei
• Te whakahaere i te mamae: Whakamahia ngā kaiwhakaora mamae kore-tūtohu ki te ngawari te wāhi
• Te pupuri i te hauora o te kiri: Whakamakuku i te wāhi, kaua hoki e kīkī, e toia rānei
• Te noho mohio: Ako mō tō mate hei mahi i ngā whakatau hauora pai ake

Ki te maha ngā neurofibroma kei a koe, ko te pupuri i te rārangi ngāwari o ō wāhi, me ētahi atu huringa ka āwhina pea mō ō whakatau ki te tākuta. Kia mahara ko te nuinga o ngā huringa he noa, kāore hoki e tohu i ngā raruraru, engari ko te tuhi i a rātou ka āwhina i tō rōpū hauora ki te whakarato i te tiaki pai ake.

Me pēhea te whakarite mō tō whakatau ki te tākuta?

Ka taea e te whakarite mō tō whakatau te āwhina i a koe ki te whiwhi i te hua nui mai i tō wā ki tō tākuta, kia whakarite hoki kua whakautuhia ngā āwangawanga katoa. Ka taea e te whakarite iti te mahi i te haerenga kia hua ake, kia iti ake te ahotea.

I mua i tō whakatau:

1. Tuhia ō tohu: Tuhia te wā i kite tuatahi ai koe i te pūngāwerewere, me ētahi atu huringa
2. Rārangihia ō rongoā: Tāpirihia ngā rongoā tākuta katoa, ngā taapiri, me ngā rongoā kore-tūtohu
3. Kohikohia te hītori whānau: Ngā kōrero mō ngā whānau e whai mate rite ana, mate ira rānei
4. Whakaritehia ngā pūrongo: Tuhia ngā mea e hiahia ana koe ki te mohio mō ngā whiringa maimoatanga, me te whakatau
5. Mau mai ngā pikitia: Ki te whai pikitia koe e whakaatu ana i ngā huringa i te wā, ka tino āwhina ēnei

Kaua e whakaroa ki te tono ki tō tākuta kia whakamārama i tetahi mea kaore koe e mārama. Ko ngā pūrongo mō te tupu pea o te pūngāwerewere, te mate pukupuku pea rānei, te pānga pea rānei ki tō oranga o ia rā he mea tika katoa, he mea nui hoki mō tō rangimarie o te ngākau.

He aha te mea nui mō te neurofibroma?

Ko ngā neurofibroma he pūngāwerewere noa, he kore kino te nuinga e tupu ana i te kiko io. Ahakoa ko te kite i tetahi pūngāwerewere hou i tō tinana ka awangawanga, ko te nuinga o ngā neurofibroma kāore e puta he raruraru hauora nui, ā, he tokomaha ngā tāngata e ora noa ana me rātou.

Ko te mea nui hei mahara ko te whiwhi i te taumata tika ka homai te rangimarie o te ngākau, ka āwhina hoki i a koe ki te mahi i ngā whakatau whakamārama mō tō tiaki. Ahakoa kei te hiahia tō neurofibroma ki te maimoatanga, ki te tirotiro noa rānei, ko te mahi tahi me tō rōpū hauora ka whakarite kia whiwhi koe i te tiaki tika e rite ana ki tō āhuatanga motuhake.

Ki te tata nei koe ki te whakatau i te neurofibroma, kia mohio koe ehara koe i te kotahi, ā, kei reira ngā whiringa whakahaere whai hua. Ko te nuinga o ngā tāngata e whai neurofibroma ana ka haere tonu ki te ora ora, hauora me te iti o te pānga mai i tō rātou mate.

Ngā pūrongo e uiui pinepinetia ana mō te neurofibroma

Ka taea e ngā neurofibroma te ngaro ake?

Ko te tikanga kāore ngā neurofibroma e ngaro ake kahore he maimoatanga. Ko te tikanga ka pumau tonu te rahi, ka tupu haere māmā rānei i te wā. Heoi, ka iti ake pea te kitea o ētahi iti rawa i te wā e pakeke ana koe, ā, he iti rawa te nui o te raruraru ahakoa ka mau tonu.

He mamae ngā neurofibroma?

Ko te nuinga o ngā neurofibroma kāore e mamae, ki te kore e pēhi ki ngā io e tata ana, ki te whakaohooho rānei e ngā kakahu, e te nekehanga rānei. Ka rongo pea koe i te ngawari, te kīkī rānei, engari he iti te mamae nui, ā, me kōrero ki tō tākuta.

Ka taea e au te whakakori tinana me te neurofibroma?

Ae, ko te tikanga ka taea e koe te whakakori tinana noa me ngā neurofibroma. Ka hiahia pea koe ki te karo i ngā mahi e pēhi ana tika ki te pūngāwerewere, e puta ai rānei te riri. Ko te kauhoe, te hikoi, me te nuinga o ngā hākinakina he pai te tikanga, engari kōrerohia ngā āwangawanga ki tō tākuta.

Ka nui ake ngā neurofibroma e puta mai ana i te wā?

Ki te kotahi, rua rānei ngā neurofibroma kei a koe, kāore hoki i ētahi atu tohu, kaore pea koe e nui ake ngā mea e puta mai ana. Heoi, ko ngā tāngata e whai neurofibromatosis momo 1 ana ka maha ngā pūngāwerewere e puta mai ana i o rātou oranga, ina koa i ngā wā o te huringa horomona penei i te pakeketanga, te hapu rānei.

Me manukanuka ahau ki te huri tōku neurofibroma?

Ko ngā huringa iti i te rahi, i te tae, i te āhua rānei he noa te tikanga, ina koa i te wā e pakeke ana koe. Heoi, ko te tupu tere, ngā huringa tae nui, te mamae hou rānei me arotakehia e tō tākuta. Ko te nuinga o ngā huringa he pai, engari he pai tonu te tirotiro kia tino mōhio.