He aha te Paraganglioma? Ngā Tohutohu, Ngā Take, me te Maimoatanga

He pūngāwerewere onge te paraganglioma e tupu ana i ngā pūtau io motuhake e kiia nei ko te paraganglia. Ka taea e ēnei pūngāwerewere te tipu ki ngā wāhanga maha o tō tinana, te nuinga i tō ūtū, i tō kaki, i tō uma, i tō kopu rānei.

Ahakoa ko te kupu 'pūngāwerewere' pea he wehi, he pai te nuinga o ngā paraganglioma, ā, ko te tikanga, kāore e horapa ki ētahi atu wāhanga o tō tinana penei i te mate pukupuku. Heoi, ka taea tonu e rātou te tuku i ngā tohu nui, nā te mea ka nui te hanga hormone e pā ana ki te mahi o tō tinana.

He aha ngā tohu o te paraganglioma?

Ko ngā tohu e pā ana ki a koe e whakawhirinaki ana ki te wāhi e noho ana te pūngāwerewere, me te mea rānei e nui ana te hanga hormone. He tokomaha ngā tāngata e pangia ana e te paraganglioma e kite ana i ngā tohu e haere mai ana, e haere atu ana rānei, ā, ka uaua ai te whakatau i te mate i te tīmatanga.

Mēnā kei te nui te hanga hormone o tō paraganglioma (e kiia ana he pūngāwerewere mahi), ka pā pea ki a koe ngā wāhanga e rite ana ki te manukanuka nui, ki ngā whakaeke manukanuka rānei. Ka tino raruraru ēnei wāhanga, engari ko te mārama ki te mea kei te pēhea, ka āwhina i a koe ki te whakahaere pai ake.

Ko ētahi o ngā tohu noa i ēnei wāhanga:

• Ngā mamae o te upoko ohorere, nui, e rerekē ana i ō mamae o te upoko noa
• Te ngākau tere, te pupuhi rānei e taea ai te kite i tō uma
• Te wera nui, ahakoa kāore koe e wera, kāore rānei e mahi
• Te toto teitei ka piki haere pea ohorere
• Te manukanuka, te manukanuka rānei, te whakaaro rānei kei te tata te mate
• Te wiri, te wiri rānei o ngā ringa
• Te ruaki, te ruaki rānei i ngā wāhanga

Ko ēnei tohu te nuinga ka puta i ngā wāhanga ka roa mai i te torutoru meneti ki ngā haora maha. I waenga i ngā wāhanga, ka pai pea koe, koia te take kaore etahi tangata e rapu awhina hauora tonu.

Mēnā kei te pito o tō upoko, o tō kaki rānei tō paraganglioma, ka kite pea koe i ngā tohu rerekē. Ka uru atu ki ēnei te whakarongo ki te tangi pupuhi i roto i tō taringa e rite ana ki tō whiu ngākau, te ngaro o te rongohongo, te kōpū rānei e kitea ana e koe, e ētahi atu rānei.

He aha ngā momo paraganglioma?

Ka wehewehea ngā paraganglioma i runga i te wāhi e whanake ana i roto i tō tinana. Ka āwhina te mōhiotanga ki ngā momo rerekē kia pai ake ai tō mārama ki tō āhuatanga motuhake me ngā mea e tumanakohia ana.

Ko ngā paraganglioma o te upoko me te kaki te momo tino noa ka tūtaki koe. Ka whanake ēnei i te kiko pūtau i roto i tō pūtake angaanga, kaki, i te taha rānei o tō taringa. Ko ngā wāhi tino noa ko te wāhi kei muri i tō taringa (e kiia nei ko te tympanic paraganglioma) te taha rānei o ngā oko toto nui i roto i tō kaki (ngā pūngāwerewere o te carotid).

Ka tipu ngā paraganglioma o te uma i roto i tō rohe uma, i te tata ki tō ngākau, ki ngā oko toto nui rānei. He iti ake te noa o ēnei, engari ka taea e ēnei te whakaeke i te mamae o te uma, i te uaua o te manawa rānei ki te nui rawa te tipu kia pēhi ki ngā hanganga e tata ana.

Ka whanake ngā paraganglioma o te kopu i roto i tō rohe kopu, ā, e hono tata ana ki ngā pheochromocytoma, e tipu ana i roto i ō kōpū adrenal. He tino pea ka whakaputa ēnei momo i ngā homoni nui rawa atu, ā, ka whakaeke i ngā tohu wā poto i kōrerotia e mātou i mua.

He momo onge ano kei reira e kiia nei ko te paraganglioma kino, e tohu ana i te 10-15% o ngā take katoa. Ahakoa he wehi te ahua o tēnei, ka noho tonu te tipu haere o ngā paraganglioma kino, ā, ka pai te whakautu ki te rongoā ina mau wawe.

He aha te take o te paraganglioma?

Kāo te take tika o te paraganglioma e mārama tonu ana, engari kua kitea e ngā kairangahau etahi take ka taea te whakapiki ake i tō tūponotanga ki te whanake i tēnei āhuatanga. Ka āwhina te mōhiotanga ki ēnei take kia pai ake ai tō whakaaro ki tō whakatau.

He tino nui te wāhi o ngā take ira i roto i te nuinga o ngā take. E 30-40% te tata o ngā paraganglioma e kua whatu, arā, e puta ana i roto i ngā whānau mā ngā rerekētanga ira motuhake. Ki te pēhea he hītori whānau o ngā paraganglioma, kāore rānei he āhuatanga e rite ana ki te pheochromocytoma, ka nui ake tō tūponotanga.

He maha ngā ira motuhake kua honoa ki te whanaketanga o te paraganglioma. Kei roto i ēnei ngā rerekētanga i roto i ngā ira e kiia nei ko SDHB, SDHC, SDHD, me ētahi atu ingoa uaua ka āhei tō tākuta te whakamārama atu i ngā kōrero atu.

Ka taea hoki e ngā take taiao te whai wāhi, ahakoa kāore i te mārama te mōhio. E whakaatu ana etahi rangahau ko te noho i ngā wāhi teitei mō ngā wā roa ka piki haere pea te tūponotanga, pea na te iti o te hāora e pā ana ki ngā pūtau paraganglia.

Ka taea hoki te tūponotanga o te tau. Ahakoa ka puta ngā paraganglioma i tetahi tau, ka kitea nuitia i roto i ngā tāngata kei waenga i te 30 me te 50 tau te pakeke. Heoi, ka puta wawe ake ngā momo whatu, i etahi wā i roto i ngā taitamariki, kāore rānei i ngā tāngata kua pakeke.

Nōhea te haere ki te tākuta mō te paraganglioma?

Me rapu koe i te tiaki hauora mena kei te pāngia koe e ngā mate pēnei i ngā mamae o te upoko, te tere o te ngākau, me te wera nui, ina koa ki te puta pōtāputatanga ēnei mate, ā, he rerekē i ngā mea kua pāngia koe i mua.

Tātaihia ngā tauira o ō tohu. Mena ka kite koe ko ētahi mahi, āhuatanga, kāore rānei he āwangawanga e āhei ana te whakaoho i ngā mate, ka nui te uara o tēnei mōhiohio mō tō tākuta. Tūhonohia he rārangi ngā wā e puta ai ngā tohu me ngā mea i mahi koe i taua wā.

Kaua e tatari kia kite i te taakuta ki te pāngia koe e te toto teitei rawa i ngā wāhanga,inā hoki ki te haere tahi me te mamae o te uma, te uaua o te manawa, te rerekētanga o te tirohanga. Ka taea e ēnei te tohu kei te whakaeke te paraganglioma i tō toto ki teitei kino e hiahia ana ki te tiaki wawe.

Mēnā he hītori whānau koe mō te paraganglioma, te pheochromocytoma, te āhuatanga ira tuku iho e rite ana, he mea tika te kōrero ki ō kōwhiringa whakamātautau ki tō taakuta ahakoa kāo e whai tohu anō. Ka taea e te kitenga wawe te whakamahi i te rongoā kia tino ngāwari ake.

Mō ngā paraganglioma o te matenga me te kaki, tirohia tō taakuta mēnā ka kite koe i ngā huringa whakarongo tonu, he tangi pupuhi i roto i tō taringa, he kohinga e tipu haere ana i tō rohe kaki. Ahakoa he maha ngā take o ēnei tohu, he mea nui kia arotake tika.

He aha ngā take morearea mō te paraganglioma?

He maha ngā take ka taea te whakapiki ake i tō tūponotanga ki te whanake i te paraganglioma, ahakoa te whai take morearea ehara i te tikanga ka whanake koe i tēnei āhuatanga. Ka taea e te mārama ki ēnei take te āwhina i a koe me tō taakuta ki te whakatau whakamārama mō te aroturuki me te tiaki.

Ko te hītori whānau te take morearea kaha rawa. Mēnā he whānau koe kua pangia e te paraganglioma, te pheochromocytoma, te mate ira tuku iho e rite ana, ka nui ake tō tūponotanga. Ko tēnei hononga whakatūpato te take i tūtohutia ai te tohutohu ira ki ngā whānau e pā ana ki ēnei āhuatanga.

Ka whakapiki ake ngā mate ira tuku iho motuhake i te tūponotanga. Kei roto i ēnei te mate a von Hippel-Lindau, te neurofibromatosis momo 1, me ētahi atu mate ira tuku iho paraganglioma. Mēnā kua whakatauhia koe ki tetahi o ēnei āhuatanga, ka tūtohutia te whakamātautau noa mō te paraganglioma.

He iti te wāhi o te tau me te ira tangata ki te tūponotanga. Ahakoa ka puta te paraganglioma i tetahi tau, he tino noa i roto i ngā tāngata pakeke o te tau waenga. E whakaatu ana etahi rangahau he nui ake te puta i roto i ngā wāhine, inā te nuinga mō ngā paraganglioma o te matenga me te kaki, ahakoa ehara i te rerekētanga nui.

Ka āhei pea te whai pānga iti o ngā āhuatanga whenua. E whakaatu ana etahi rangahau kei te piki haere pea te tūponotanga o te hunga e noho ana i ngā wāhi teitei mō te wā roa, ahakoa kāotia ana tenei hononga, ā, kāore e tika kia manukanuka.

He aha ngā raruraru pea o te paraganglioma?

Ahakoa ka taea te whakahaere i te nuinga o ngā paraganglioma me te rongoā tika, he mea nui kia mārama ki ngā raruraru pea kia taea ai e koe te mahi tahi me tō rōpū hauora hei aukati, hei whakaoti rānei i mua.

Ko ngā raruraru tino noa e pā ana ki ngā paraganglioma e whakaputa ana i ngā homoni. Ka taea e ēnei mate pukupuku te whakaputa i ngā piki kino o te toto, ā, ki te kore e rongoā, ka āhei pea te arahi ki ngā raruraru ngākau, ki te pōkaikino, ki te pakaru rānei o ō whatukuhu me ētahi atu okana. Koia te take i tino nui ai te tirotiro me te rongoā.

Ka taea te whanake i ngā raruraru o te pūnaha toto i te wā roa ki te noho teitei tonu ngā taumata homoni. Ka uru pea ēnei ki ngā āwangawanga ngākau koretake, ki te pakaru o te uaua ngākau, ki te toto teitei tonu e uaua ana te whakahaere. Ko te rongo pai, he maha ngā raruraru ka taea te whakahoki mai me te rongoā tika o te paraganglioma.

Mō ngā paraganglioma o te matenga me te kaki, ka uru pea ngā raruraru ki te ngaro o te rongonga, inā te nuinga ki te tata o te mate pukupuku ki ō hanganga taringa. Ka pāngia hoki ētahi i ngā raruraru toenga, i ngā raruraru rānei o te ihu, i runga i te wāhi e tupu ana te mate pukupuku.

I etahi wā, ka taea e ngā paraganglioma te kino, arā, ka horapa ki ētahi atu wāhi o tō tinana. Ka puta tēnei i te 10-15% o ngā keehi, ā, ahakoa ka puta, he puhoi te horapa, ā, he maha ngā wā e whakautu pai ana ki te rongoā.

Ahakoa he iti te tūponotanga, ko ngā raruraru pokanga ka uru atu ki te pakaru o ngā tūpuna iwi tata atu rānei, ki ngā oko toto rānei, kei te whakawhirinaki ki te wāhi o te mate pukupuku. Ka kōrero tō tākuta pokanga mō ēnei tūponotanga motuhake ki a koe e whakaū ana ki tō āhuatanga ake.

Me pēhea te aukati i te paraganglioma?

Aroha mai, kāore he huarahi kīhai e taea te aukati i ngā paraganglioma, nā te mea he maha ngā take e pā ana ki ngā take ira e kore e taea e koe te whakahaere. Heoi, he maha ngā mahi ka taea e koe te mahi kia mau tonu ai rātou, ā, kia whakahaere pai ai tō tūponotanga.

Mēnā he hītori whānau tōu mō ngā paraganglioma, kāore rānei i te rite, ko te tohutohu ira me te whakamātautau ka tino nui. Ko te mohio kei a koe ngā rerekētanga ira e hono ana ki ēnei mate pukupuku ka taea ai te whakamātautau wawe me te aroturuki, ka taea te hopu i ngā mate pukupuku ina iti haere ana, ā, he ngāwari ki te whakaora.

Ko ngā tirotiro hauora ā-rōpū ka tino nui mena kei te nui ake tō tūponotanga. Ka taea e tō tākuta te tūtohutia te aroturuki i te toto toto, ngā whakamātautau mimi hei tirotiro i ngā taumata homoni, kāore rānei i ngā rangahau whakaahua hei rapu i ngā mate pukupuku i mua i te puta mai o ngā tohu.

Ko te noho hauora, ahakoa kāore i te aukati tika i ngā paraganglioma, ka taea te awhina i tō tinana ki te whakahaere pai i te ahotea o ngā rerekētanga homoni mēnā ka whānau koe i tētahi. Kei roto i ēnei te pupuri i te taumaha hauora, te whakakori tinana, te whakahaere i te ahotea, me te karo i te nui o te caffeine, i te waipiro rānei.

Mēnā kei te tūponotanga koe, ko te noho mohio ki ngā tohu me te pupuri i te kōrero whakatuwhera ki tō rōpū hauora he mea nui. Ko te kitenga wawe me te whakaora ka āhei te arahi ki ngā hua pai atu i te tatari kia kaha haere ngā tohu.

Me pēhea te whakamātautau i te paraganglioma?

Ko te whakamātautau i te paraganglioma ka whai maha ngā mahi, nā te mea ka rite ngā tohu ki ētahi atu āhuatanga, ā, e hiahia ana tō tākuta kia tino mārama ki tō āhuatanga motuhake.

Ka tīmata tō tākuta me te kōrero taipitopito mō ō tohu, te hītori whānau, me te papamuri hauora. Ka tino hiahia rātou ki te tauira o ō tohu, ahakoa kei roto i ngā wāhanga, me te mea e āhei ana te whakaoho i a rātou. Ka āwhina tēnei kōrero ki te arahi i ngā mahi e whai ake nei i te whakamātautau.

Ko ngā whakamātautau toto me te mimi te tikanga ko te taahiraa e whai ake nei, inā rānei ka whakaaro tō tākuta he paraganglioma e whakaputa ana i te homoni. Ka inehia e ēnei whakamātautau ngā taumata o ētahi matū e kiia nei ko te catecholamines me ō rātou hua pakaru. Me āta kohikohi pea koe i te mimi i te 24 haora, i te maha rānei o ngā tango toto hei whiwhi i ngā pānui tika.

Ka āwhina ngā rangahau whakaahua ki te kimi me te whakaahua i te mate pukupuku. Ka tīmata pea tō tākuta me te CT scan, i te MRI rānei hei whiwhi i ngā whakaahua taipitopito o te wāhi e whakapaetia ana. Mō ngā paragangliomas, ko ngā karapa motuhake penei i te MIBG (he tohu pūkaha e kukume ana ki ēnei mate pukupuku) ka tino whai hua ki te kimi i te wāhi tika.

I etahi wā, ka hiahiatia ētahi atu whakamātautau motuhake. Ka uru pea ēnei ki te whakamātautau ira ki te tirotiro i ngā momo whatukuhu, i ngā momo karapa motuhake rānei e taea ai te kite i ngā mate pukupuku iti rawa atu, i te whakatau rānei mena he maha ngā mate pukupuku kei reira.

Ka raru pea te tukanga whakamātautau, engari ka homai e ia taahiraa ngā mōhiohio nui e āwhina ana i tō rōpū hauora ki te whakawhanake i te mahere maimoatanga pai rawa atu mō tō āhuatanga motuhake.

He aha te maimoatanga mō te paraganglioma?

Ko te maimoatanga mō te paraganglioma ka whakawhirinaki ki ētahi take, tae atu ki te rahi o te mate pukupuku, te wāhi, te whakaputa homoni rānei, me tō hauora whānui. Ko te rongo pai ko te maha o ngā whiringa maimoatanga whai hua kei te wātea.

Ko te pokanga te maimoatanga matua, inā rānei mō ngā mate pukupuku e pā ana ki ngā tohu, i te tipu haere rānei. Ko te whāinga ko te tango i te mate pukupuku katoa me te tiaki i ngā kiko hauora e karapoti ana me ngā hanganga nui penei i ngā io me ngā oko toto. Ka kōrero tō tākuta pokanga mō te huarahi motuhake e whakaū ana ki te wāhi o tō mate pukupuku.

I mua i te pokanga, ki te whakaputa nui ana te paraganglioma i ngā homoni, ka tohu te taakuta i ngā rongoā hei whakahaere i te toto me te tere o te ngakau. Ko tēnei wā whakarite, ka roa pea i ngā wiki, ka awhina i te whakahaere i te pokanga kia haumaru ake mā te aukati i ngā pikinga toto kino i te wā o te mahi.

Mō ētahi paraganglioma o te matenga me te kaki, ina koa ngā mea iti kaore e tino pāngia, ka taunaki pea te tirotiro ata i te wāhi o te pokanga. Ka tino puea haere aua mate pukupuku, ā, ka nui atu pea ngā tūponotanga o te pokanga i ngā painga i ētahi wā.

Ka taea te whakamahi i te rongoā radiation mō ngā mate pukupuku e uaua ana te tango atu mā te pokanga, mā rātou rānei kaore i te pai hei pokanga. Ka tino tika ngā tikanga radiation hou, ka āta whakaaro ki te mate pukupuku me te whakaiti i ngā pānga ki ngā kiko hauora e karapoti ana.

Mō ngā take onge ka horapa ngā paraganglioma ki ētahi atu wāhanga o te tinana, ka uru pea te maimoatanga ki te chemotherapy, ngā rongoā whakawhāiti, ngā maimoatanga motuhake penei i ngā rongoā pūkaha e āta whakaaro ana ki ēnei momo mate pukupuku.

Me pēhea te tango i te maimoatanga kāinga i te wā o te paraganglioma?

Ko te whakahaere i te paraganglioma i te kāinga e whakauru ana i te whai i te mahere maimoatanga a tō taakuta me te whakarereke i te noho ora ka taea te awhina i a koe kia pai ake te ahua me te whakaiti i ngā tohu.

Ki te inu ana koe i ngā rongoā hei whakahaere i te toto, i te tere rānei o te ngakau, he mea nui kia inu tika i ngā mea i tohua. Kia mau ki te mahinga, kaua hoki e ngaro ngā horoinga ahakoa kei te pai koe. Kei te aukati ēnei rongoā i ngā raruraru kino pea, ehara i te whakaora i ngā tohu.

Tirohia au tohu toto i ia wā ki te kī mai tō taakuta. Kia mau ki te rārangi o ō pānui me ngā tuhinga mō tō ahua, ngā mea i mahi koe, me ētahi tohu i pāngia koe. Ka awhina tēnei mōhiohio i tō rōpū hauora ki te whakarereke i tō maimoatanga kia rite ki te hiahia.

He mea nui te whakahaere i te ahotea, nā te mea ka taea e te ahotea te whakaoho i ngā tūāhingatanga tohu i ētahi tangata. Rapua ngā tikanga whakahaumaru e pai ana ki a koe, ahakoa ko ngā whakangungu manawa hohonu, ko te yoga ngawari, ko te whakaaroaro, ko te haere hikoi noa i te taiao.

Aro atu ki ngā mea ka taea te whakaoho i ō tohu. Ka kite ētahi tangata ko ētahi kai, mahi rānei, āhuatanga rānei e āhei ana te whakaoho i ngā tūāhingatanga. Ko ngā mea whakaoho noa pea ko te caffeine, te waipiro, ētahi rongoā rānei, te kaha tinana rānei. Ka āhei te karo i ngā mea whakaoho kua kitea ki te whakaiti i te tūāhingatanga o ngā tohu.

Kia mau te wai, kia mau hoki ngā kai rite, tōtika. Ka kite ētahi tangata ko te kai iti ake, te kai maha atu ka āhei te ārai i ngā rerekētanga o te huka toto ka taea te whakaoho i ngā tohu. Whakamāramahia te caffeine me te waipiro, nā te mea ka taea e ēnei te whakaiti i ngā raruraru toto me te tere o te ngakau.

Me pēhea te whakarite mō tō hui ki te taakuta?

Ka āhei te whakarite pai mō ō hui ki te taakuta ki te whakarite ka whiwhi koe i te hua nui rawa atu i tō haerenga, ka hoatu hoki ki tō rōpū hauora ngā mōhiohio e hiahia ana rātou ki te āwhina pai i a koe.

Kia mau he rārangi tohu taipitopito mo te kotahi wiki i mua i tō hui. Tūtohuhia te wā e puta mai ai ngā tohu, te roa o te noho, te mahi a koe i te wā i tīmata ai, me te kaha o te 1-10. He tino nui tēnei mōhiohio mō te whakatau me te whakarite i te maimoatanga.

Kohikohia he rārangi katoa o ngā rongoā katoa e inu ana koe, tae atu ki ngā rongoā tākuta, ngā rongoā kore-tākuta, ngā huaora, me ngā taapiri. Tāpirihia ngā horopeta me te maha o te inu i ia mea. Ka taea e ētahi rongoā te pā ki ngā tohu paraganglioma, te whakakore rānei i te maimoatanga.

Kohikohia tō hītori hauora whānau, ā, āta aro ki ngā whānau tata kua pāngia e ngā paraganglioma, pheochromocytomas, te toto teitei, ngā raruraru ngakau, ngā pūngāwerewere rerekē rānei. Ki te taea, whiwhihia ngā kōrero taipitopito mō ngā whakatau, ngā maimoatanga, me ngā hua.

Whakamahia he rārangi o ngā pātai e hiahia ana koe ki te ui. Tuhia ki raro i mua kia kaua e wareware ki ngā āhuatanga nui i te wā o te whakaritenga. Ā, ka uru pea ngā pātai ki te ui mō ngā whiringa whakaora, ngā mea e tumanakohia ana, ngā pānga kino pea, te wā e tika ai te karanga atu ki te tari.

Kawe mai i ngā hua whakamātautau o mua, ngā rangahau whakaahua, me ngā rekoata hauora e pā ana ki ō tohu o nāianei. Ki te mea kua kite koe i ētahi atu tākuta mō ēnei take, ka taea e te wātea o aua rekoata te aukati i ngā whakamātautau tuku rua, ā, ka āwhina i tō tākuta o nāianei ki te mōhio ki tō whakaahua hauora katoa.

He aha te mea nui mō te paraganglioma?

Ko te mea nui rawa atu hei mārama mō te paraganglioma, ahakoa he āhuatanga nui e hiahia ana ki te tiaki hauora tika, he tino whakaora hoki, ina koa ka kitea wawe. Ko te nuinga o ngā paraganglioma he pai, ā, ka whakautu pai ki te whakaora tika.

Ki te pā ana koe ki ngā tohu e āhei ana te tohu i te paraganglioma, ina koa ngā wāhanga tukurua o ngā mamae o te upoko nui, te ngāwari o te ngakau, me te werawera, kaua e whakaroa ki te rapu whakamātautau hauora. Ko te taumata wawe me te whakaora ka ārahi noa ki ngā hua pai, ā, ka taea te aukati i ngā raruraru pea.

Mō te hunga he hītori whānau o te paraganglioma, me ngā āhuatanga e pā ana, ka taea e te tirotiro proactive me te tohutohu ira te mahi hei taputapu nui mō te kite wawe me te aukati i ngā raruraru. Ko te mārama mō tō tūponotanga ira ka taea te aroturuki me te tiaki whaiaro.

Kia mahara kei te whakataurite te whai paraganglioma i tō oranga, kāore rānei e whakaiti i tō heke mai. Ma te whakaora tika me te aroturuki, ka haere tonu te nuinga o te hunga whai paraganglioma ki te noho oranga noa, hauora. Kei reira tō rōpū hauora hei tautoko i a koe i ia kaupae o te tukanga.

Ngā pātai e ui pinepinetia ana mō te paraganglioma

U1: He rite te paraganglioma ki te mate pukupuku?

Ko te nuinga o ngā paraganglioma he pai, ā, e kore e horapa ki ētahi atu wāhanga o tō tinana pēnei i te mate pukupuku. Heoi, tata ki te 10-15% ka kino (mate pukupuku), engari tae noa ki ēnei ka puea haere noa atu, ā, ka āwangawanga ki te rongoā. Ka taea e tō tākuta te whakatau mena he pai tō paraganglioma motuhake, he kino rānei mā ngā whakamātautau me ngā whakamātautau maha.

Q2: Ka hoki mai ngā paraganglioma i muri i te maimoatanga?

He mea ka taea te puta mai, engari he onge rawa te hokinga mai ina tangohia katoatia ngā paraganglioma mā te pokanga. He nui ake te tūponotanga o te hokinga mai ki ngā momo mate pukupuku o te whānau, koia te take i hiahia ai ngā tāngata he mate pukupuku o te whānau ki te aroturuki roa. Ka tūtohu tō tākuta i te kaupapa whai muri i runga i tō āhuatanga motuhake me ngā take morearea.

Q3: Me inu rongoā rānei ahau mō te toenga o tōku oranga?

Ka whakawhirinaki tenei ki tō āhuatanga motuhake. Ki te tangohia angitu tō paraganglioma, ā, kāore i te wāhanga o te mate pukupuku o te whānau, pea kaore koe e hiahia ki te rongoā roa. Heoi, he maha ngā tāngata e hiahia ana ki ngā rongoā toto-pēhanga tonu atu rānei. Ka mahi tahi tō tākuta ki a koe ki te whakatau i te mahere whakahaere pai rawa atu mō tō take motuhake.

Q4: Ka taea e au te whakakori tinana mēnā he paraganglioma tōku?

Ka whakawhirinaki ngā tūtohu whakakori tinana ki ō tohu me tō āhuatanga maimoatanga. Ki te pā ana tō paraganglioma ki te toto-pēhanga, ki te tere o te ngākau rānei, pea ka tūtohu tō tākuta kia kaua e whakakori kaha kia ārai ra ano i ēnei. Kia pumau tō āhuatanga, ka whakaohohia te whakakori ngawari ki te whakakori noa, na te mea ka āwhina ki te hauora whānui me te whakahaere i te ahotea.

Q5: Me whakamātautau rānei ōku whānau ki te paraganglioma?

Mēnā kua whakatauhia ko tō paraganglioma he mea tuku iho (mā te whakamātautau ira), ka tūtohu pea tō tākuta kia whakaarohia e ngā whānau tata te tohutohu ira me te whakamātautau. Ka taea e tēnei te awhina i te kimi i ngā tāngata kei te tūpono i mua i te puta mai o ngā tohu, ā, ka taea te aroturuki me te whakauru wawe mena e hiahiatia ana. Me whakatau te whakatau mō te whakamātautau whānau i te kōrero tahi me te kaitohutohu ira ka taea te whakamārama i ngā painga me ngā whakatau o te whakamātautau.