He aha ngā mate pūtau ika o te taha? Ngā tohu, ngā take, me te rongoā

Ko ngā mate pūtau ika o te taha he ōngaro e tupu ana i runga, i te taha rānei o ngā ika kei tua atu o tō roro me tō tuaiwi. Ko te nuinga o ēnei mate pūtau he pai, ā, e kore e pēnei i te mate pukupuku, engari ka taea tonu e rātou te whakaeke i te mamae, ā, te pānga ki te mahi a ō ika.

Whakaarohia ō ika o te taha hei wīra hiko e kawe ana i ngā karere i waenganui i tō roro me te toenga o tō tinana. Ki te tupu tētahi mate pūtau ki ēnei “wīra,” ka taea e ia te whakakore i aua tohu nui. Ahakoa ka rongo pea tenei he wehi, ko te mārama ki te mea kei te tupu ka āhei te awhina i a koe ki te whakapono atu ki te whakahaere i te āhuatanga.

He aha ngā mate pūtau ika o te taha?

Ko ngā mate pūtau ika o te taha he ōngaro koretake e hanga ana i runga i ngā ika puta noa i tō tinana, kāore ngā ika kei roto i tō roro me tō tuaiwi. Ka taea e ēnei mate pūtau te puta i ngā wāhi katoa e noho ana ngā ika, mai i ō ringa me ō waewae tae atu ki tō puku.

Ko te rongo pai, ko te 90% pea o ngā mate pūtau ika o te taha he pai. Ko te tikanga tēnei kaore e horapa ki ētahi atu wāhi o tō tinana pēnei i te mate pukupuku. Heoi, ka taea tonu e rātou te whakaeke i ngā raruraru mā te pēhi i ngā ika tata atu rānei i ngā kiko.

Ka rereke haere te rahi o ēnei mate pūtau. Ko ētahi he iti pēnei i te pī, ā, ko ētahi ka tupu nui rawa. Ko te wāhi me te rahi te tikanga ka whakatau i ngā tohu ka pā pea ki a koe.

He aha ngā tohu o ngā mate pūtau ika o te taha?

Ko ngā tohu ka pā ki a koe e whakawhirinaki ana ki te wāhi kei reira te mate pūtau, me ngā ika e pā ana ki a ia. Ko te nuinga o te iwi ka kite i ngā tohu i te iti, i te mea ka tupu haere ngā mate pūtau i te wa roa.

Ko ēnei ngā tohu noa ka pā pea ki a koe:

• He pupū mamae kore rānei e taea te kite i raro i tō kiri
• Te ngenge rānei te wiri i te wāhi e pā ana
• Te ngoikore o ngā uaua e whakahaeretia ana e te ika e pā ana
• Te mamae ka rongo pea he koi, he tahuna, he mamae rānei
• Te ngaro o te pātuturu i ngā matihao, ngā maihao, i ētahi atu wāhi rānei
• Te uaua o ngā uaua, te wiri rānei

Ko ētahi atu iwi ka pāngia e ngā tohu iti ake. Ka uru pea ēnei ki ngā huringa o te tae kiri, o te pāmahana rānei i te wāhi e pā ana, i te āhua pēnei i te “pīni me ngā ngira” e kore e mutu.

He mea nui kia mōhio ko ngā tohu ka tino ngawari i te tīmatanga. Ka whakahawea pea koe ki ngā tohu o mua hei whakahawea wā poto mai i te moe i te tūnga koretake, i te taumaha iti rānei. Ki te mau tonu ngā tohu, ki te kino ake rānei, he mea nui kia tirohia.

He aha ngā momo mate pūtau ika o te taha?

He maha ngā momo mate pūtau ika o te taha, he āhuatanga anō ōna. Ko te mārama ki te momo ka āhei te awhina i a koe ki te mohio ki te mea me tumanako, me te āhua rānei e rongoā ai.

Ko ngā momo pai rawa te nuinga e whai ake nei:

• Schwannomas - Ka tupu ēnei mai i te hipoki tiaki kei te taha o ngā muka ika, ā, ka taea te tango i te nuinga o te wā kaore e pakaru te ika
• Neurofibromas - Ka whanake ēnei i roto i te kiko ika anō, ā, ka uaua pea te tango katoa
• Perineuriomas - He iti ake te noho o ēnei, ā, ka tupu mai i ngā pūtau e āwhina ana ki te hanga i te ārai tiaki o te ika

He momo kino anō hoki e hiahia ana ki te rongoā kaha ake. Ka uru ēnei ki ngā mate pūtau ika o te taha kino, he mate pukupuku, ā, ka taea te horapa ki ētahi atu wāhi o te tinana.

Ka taea e tō tākuta te whakatau i te momo tika mā ngā whakamātautau maha. Ka āwhina tēnei mōhio ki te arahi i te huarahi rongoā pai mō tō āhuatanga motuhake.

He aha ngā take o ngā mate pūtau ika o te taha?

Ko te take tika o te nuinga o ngā mate pūtau ika o te taha kāore i te mārama, engari kua kitea e ngā kairangahau etahi take e āwhina ana. I te nuinga o ngā wā, ka whanake ēnei mate pūtau kaore he take mārama, he āhuatanga taketake rānei.

Ko ētahi iwi ka whanake i ēnei mate pūtau nā ngā āhuatanga ira:

• Neurofibromatosis momo 1 (NF1) - Ko tēnei āhuatanga ira e whakapiki nui ana i te tūponotanga o te whanaketanga o ngā neurofibromas maha
• Neurofibromatosis momo 2 (NF2) - Ko tēnei āhuatanga e tupu ana i ngā schwannomas, ina koa ngā mea e pā ana ki ngā ika whakarongo me te taurite
• Schwannomatosis - He āhuatanga onge e ārai ana ki ngā schwannomas maha puta noa i te tinana

Ko ētahi atu take āwhina pea ko te rongoā radiation o mua, etahi whakaū matū, me te whakaeke ika roa. Heoi, ko te nuinga o te iwi e whanake ana i ngā mate pūtau ika o te taha kāore he take morearea.

Ka taea hoki e te tau te whai wāhi, me ētahi momo e noho ana i ētahi rōpū tau. Hei tauira, ka puta ngā schwannomas i roto i ngā pakeke o waenganui, i te mea ka taea e ētahi neurofibromas te whanake i te tamarikitanga.

Nōhea te haere ki te tākuta mō ngā mate pūtau ika o te taha?

Me whakarite e koe he hui ki tō tākuta ki te kite koe i ētahi pupū, pupū rānei, i ngā tohu neurological rānei. Ka āhei te aromatawai o mua ki te whakatau mena he hiahia ki te whakamātautau atu.

Rapua te tiaki hauora ki te pāngia koe e:

• He pupū e tupu ana, he nui rānei i te wāhi o tō tinana
• Te ngenge rānei te wiri e kore e pai ake
• Te ngoikore e tupu haere ana i ō ringa, ō waewae, i ētahi atu wāhi rānei
• Te mamae e whakakore ana i ngā mahi o ia rā
• Ngā huringa o te pātuturu e pā ana ki tō kaha ki te mahi noa

He hiahia ki te tiaki hauora tere ake ki te whanake koe i ngā tohu kino. Ka uru pea ēnei ki te ngoikore nui ohorere, te ngaro katoa o te pātuturu, i te mamae e kino haere ana.

Kaua e manukanuka ki te “whakaaro kino” ki tō tākuta mō ēnei āwangawanga. Ka tino pai ake ngā kaiwhakarato hauora ki te aromatawai i tetahi mea e puta mai ana he koretake i te ngaro i tetahi mea e hiahia ana ki te aro.

He aha ngā take morearea mō ngā mate pūtau ika o te taha?

He maha ngā take ka taea te whakapiki i tō tūponotanga ki te whanake i ngā mate pūtau ika o te taha. Ko te mārama ki ēnei take morearea ka āhei te awhina i a koe ki te noho mataara ki ngā tohu pea, ki te rapu rongoā tika hoki.

Ko ngā take morearea nui rawa e whai ake nei:

• Te hītori whānau - He whānau kei a rātou te neurofibromatosis, i ngā āhuatanga ira rite rānei
• Te whakaū radiation o mua - Ina koa te rongoā radiation mō ētahi atu mate pukupuku
• Te tau - Ko te nuinga o ngā mate pūtau ika o te taha e whanake ana i ngā pakeke i waenga i te 20 me te 50 tau te pakeke
• Ngā āhuatanga ira - Neurofibromatosis momo 1 me te 2, me te schwannomatosis

Ko ētahi atu take morearea iti ake ko te whakaū ki ētahi matū, me te ngoikore o te pūnaha mate. Heoi, ko te nuinga o te iwi kei a rātou ēnei take morearea kāore e whanake i ngā mate pūtau ika.

He mea nui kia mahara ko te whai take morearea kāore e tikanga ka whanake tonu koe i tētahi mate pūtau. Ko te nuinga o te iwi kei a rātou ngā take morearea maha e noho ora tonu ana, i te mea ko ētahi atu kāore he take morearea e kitea ana ka whanake i ngā mate pūtau.

He aha ngā raruraru pea o ngā mate pūtau ika o te taha?

Ahakoa ko te nuinga o ngā mate pūtau ika o te taha he pai, ā, ka taea te whakahaere, ka taea e rātou te ārai i ngā raruraru e pā ana ki tō kounga ora. Ko te mārama ki ēnei wāhi pea ka āhei te awhina i a koe ki te mahi tahi me tō rōpū hauora ki te ārai, ki te whakahaere rānei i a rātou.

Ko ngā raruraru noa ka pā pea ki a koe e whai ake nei:

• Te pakaru ika mau tonu - Ka taea e ngā mate pūtau nui te pēhi i ngā ika mō ngā wā roa, ka ārai pea i ngā raruraru roa
• Te ngoikore mahi - Te ngoikore rānei te ngenge e whakakore ana i ngā mahi o ia rā pēnei i te tuhituhi, te hikoi, te pupuri rānei i ngā mea
• Te mamae roa - Te mamae tonu e hiahia ana pea ki ngā rautaki whakahaere mamae roa
• Te hokinga mai i muri i te rongoā - Ka taea e ētahi mate pūtau te tupu ano, ina koa ki te kore e taea te tango katoa

Ka taea te puta mai ngā raruraru kino, engari he onge, me ngā mate pūtau kino. Ka uru pea ēnei ki te horapa o te mate pukupuku ki ētahi atu wāhi o tō tinana, ki te hiahia rānei ki ngā rongoā kaha ake pēnei i te chemotherapy, i te radiation rānei.

Ko te rongo pai, me te tirotiro tika me te rongoā, ka taea te ārai i ngā raruraru maha, te whakaiti rānei. Ka mahi tahi tō rōpū hauora ki a koe ki te whakawhanake i tētahi mahere e whakaiti ana i ēnei morearea i te pupuri i tō kounga ora.

Me pēhea te ārai i ngā mate pūtau ika o te taha?

Aroha mai, ko te nuinga o ngā mate pūtau ika o te taha kaore e taea te ārai i te mea ko ō rātou take tika kāore i te mohiotia. Heoi, he maha ngā mahi ka taea e koe te mahi hei whakaiti i tō morearea, hei hopu i ngā raruraru o mua.

Ki te whai koe i te āhuatanga ira pēnei i te neurofibromatosis, he mea nui te tirotiro noa. Ka taea e tō tākuta te tūtohu i ngā kaupapa whakamātautau, te mataara hoki mō ngā tohu o mua o te whanaketanga o te mate pūtau.

Ko ngā tikanga hauora whānui ka āhei te awhina e whai ake nei: te karo i te whakaū radiation koretake, me te pupuri i te hauora pai whānui. Ahakoa kāore ēnei e whakamana i te ārai, ka tautoko rātou i te kaha taiao o tō tinana ki te pupuri i ngā kiko hauora.

Mō te iwi kei a rātou ngā hītori whānau o ēnei āhuatanga, ka taea te whai hua te tohutohu ira. Ka taea e te kaitohu ira te awhina i a koe ki te mārama ki ō morearea, ki te mahi i ngā whakatau whakamārama mō te tirotiro me te whakatōpūtanga whānau.

Me pēhea te whakatau i ngā mate pūtau ika o te taha?

Ko te whakatau i ngā mate pūtau ika o te taha e whakawhirinaki ana ki ngā take maha, tae atu ki te rahi o te mate pūtau, te wāhi, te momo, me te mea kei te whakaeke rānei i ngā tohu. Ko te nuinga o ngā mate pūtau iti, kore tohu ka tirohia noa atu i te rongoā tonu.

Ko ō kōwhiringa rongoā pea e whai ake nei:

• Te mataara - Te tirotiro noa me ngā whakamātautau wā roa me ngā rangahau whakaahua
• Te tango pokanga - Te tango katoa rānei te tango wāhanga o te mate pūtau, e whakawhirinaki ana ki tōna wāhi me tōna hononga ki ngā ika e karapoti ana
• Te rongoā radiation - E whakamahia ana mō ngā mate pūtau kaore e taea te tango katoa mā te pokanga
• Te whakahaere mamae - Ngā rongoā me ētahi atu tikanga hei whakahaere i te mamae

Ko te pokanga te rongoā matua mō ngā mate pūtau e whakaeke ana i ngā tohu nui. Ka whakamahere tika tō kaitāngata pokanga i te mahi hei tango i te nui o te mate pūtau i te pupuri i te mahi ika.

Mō ngā mate pūtau kino, ka kaha ake pea te rongoā, ā, ka uru pea te chemotherapy me te pokanga me te radiation. Ka whakawhanake tō rōpū oncology i tētahi mahere rongoā whānui e rite ana ki tō āhuatanga motuhake.

Me pēhea te whakahaere i ngā tohu i te kāinga i te wā rongoā?

I te wā e whiwhi ana koe i te rongoā mō ngā mate pūtau ika o te taha, he maha ngā mea ka taea e koe te mahi i te kāinga hei awhina i te whakahaere i ngā tohu, hei tautoko hoki i tō ora. Ka taea e ēnei rautaki te whakakotahi i tō rongoā hauora, te whakapai ake hoki i tō mārohirohi whānui.

Ko ngā tikanga whakahaere mamae ka taea e koe te whakamātautau e whai ake nei:

• Te whakamahi i te hukapapa, i te wera rānei ki ngā wāhi e pā ana, e rite ana ki te tūtohu a tō tākuta
• Ngā mahi whakatairanga ngawari hei pupuri i te ngawari
• Ngā kaiwhakaora mamae kore-tūtohu e whakaaetia ana e tō rōpū hauora
• Ngā tikanga whakamahinga pēnei i te manawa hohonu, i te whakaaroaro rānei

Ki te pāngia koe e te ngenge rānei te ngoikore, arotahi ki ngā tikanga haumaru. Tangohia ngā morearea tū i tō kāinga, whakamahia ngā papa i runga i ngā kaupae, ā, whakaarohia ngā taputapu awhina ki te tūtohuhia e tō tākuta, i te kaiwhakaora tinana rānei.

Ko te pupuri i te hauora pai whānui mā te kai tika, te moe tika, me te whakakori ngawari ka taea te tautoko i te tukanga ora o tō tinana. Tirohia tonu ki tō rōpū hauora i mua i te tīmatanga i ngā mahi hou, i ngā rongoā rānei.

Me pēhea te whakarite mō tō hui tākuta?

Ko te whakarite mō tō hui ka āhei te awhina i te whakarite ka whiwhi koe i te nuinga o tō wā me tō kaiwhakarato hauora. Ko te whakarite pai ka āhei te awhina i tō tākuta ki te mārama pai ake ki tō āhuatanga, ki te whakarato rongoā tika hoki.

I mua i tō hui, kohikohia ngā mōhiohio nui:

1. Tuhia katoa ō tohu, tae atu ki te wā i tīmata ai rātou, me te āhua rānei i huri ai rātou
2. Rārangihia ngā rongoā, ngā taapiri, me ngā huaora katoa e inu ana koe
3. Whakaritea he hītori hauora whānau, ina koa te tohu i ngā āhuatanga ira
4. Kawe mai i ngā hua whakamātautau o mua, i ngā rangahau whakaahua rānei
5. Tuhia ngā pātai e hiahia ana koe ki te ui

Whakaarohia te kawe mai i tētahi mema whānau, i tētahi hoa rānei hei awhina i a koe ki te mahara ki ngā mōhiohio nui i kōrerohia i te wā o te hui. Ka taea hoki e rātou te whakarato tautoko ngākau i te wā pea he wā ahotea.

Whakaarohia te āhua o ō tohu e pā ana ki tō oranga o ia rā, kia rite ki te whakaatu i ēnei pānga. Ka āwhina tēnei mōhio ki tō tākuta ki te mārama ki te nui o tō āhuatanga, ki te whakarite rongoā tika hoki.

He aha te mea nui mō ngā mate pūtau ika o te taha?

Ko te mea nui rawa kia mahara ko te nuinga o ngā mate pūtau ika o te taha he pai, ā, ka taea te whakahaere. Ahakoa ka taea e rātou te whakaeke i ngā tohu e awangawanga ana, ko te nuinga o te iwi kei a rātou ēnei āhuatanga ka taea te pupuri i te kounga ora pai me te tiaki tika.

Ko te whakatau o mua me te rongoā te tikanga ka pai ake ngā hua. Ki te kite koe i ngā tohu neurological mau tonu, i ngā pupū rānei, kaua e whakaroa ki te rapu aromatawai hauora. Kei a tō rōpū hauora ngā taputapu maha e wātea ana hei awhina i te whakatau, i te rongoā rānei i ēnei āhuatanga.

Kia mahara kei te noho kotahi koe i te whakahaere i tēnei āhuatanga. Ka taea e ō kaiwhakarato hauora, whānau, me ō hoa te whakarato tautoko puta noa i tō haerenga. Me te tiaki tika me te tirotiro, ka taea e te nuinga o te iwi kei a rātou ngā mate pūtau ika o te taha te haere tonu ki te noho ora, ora.

Ngā pātai e ui pinepinetia ana mō ngā mate pūtau ika o te taha

He mate pukupuku tonu ngā mate pūtau ika o te taha?

Kāo, ko te 90% pea o ngā mate pūtau ika o te taha he pai, ā, e kore e pēnei i te mate pukupuku. Kāore ēnei mate pūtau kore-mate pukupuku e horapa ki ētahi atu wāhi o tō tinana, ahakoa ka taea tonu e rātou te whakaeke i ngā tohu mā te pēhi i ngā ika, i ngā kiko e karapoti ana rānei. Ka taea e tō tākuta te whakatau mena he pai te mate pūtau, he kino rānei mā ngā whakamātautau me ngā tirotiro maha.

Ka taea e ngā mate pūtau ika o te taha te haere atu i runga i a rātou anō?

Ko ngā mate pūtau ika o te taha e kore e ngaro atu kaore he rongoā. Heoi, ko te nuinga o ngā mate pūtau iti kāore e whakaeke i ngā tohu ka taea te tirotiro haumaru atu i te rongoā tonu. Ka tūtohu tō tākuta i ngā tirotiro noa hei whakarite kei te tupu te mate pūtau, kei te whakaeke rānei i ngā raruraru hou. Ki te whanake ngā tohu, ki te tupu te mate pūtau rānei, ka taea te kōrero mō ngā kōwhiringa rongoā.

Me pokanga ahau mō taku mate pūtau ika o te taha?

Kāore te pokanga i te mea nui tonu mō ngā mate pūtau ika o te taha. Ko te whakatau e whakawhirinaki ana ki ngā take pēnei i te rahi o te mate pūtau, te wāhi, ngā tohu e whakaeke ana, me tō hauora whānui. Ko te nuinga o ngā mate pūtau iti, kore tohu ka tirohia noa iho i te wā. Ka āwhina tō rōpū hauora ki a koe ki te mārama mena he tūtohu te pokanga i tō āhuatanga motuhake.

Ka taea e ngā mate pūtau ika o te taha te pā ki taku kaha ki te mahi?

Ko te pānga ki tō mahi e whakawhirinaki ana ki te wāhi o te mate pūtau, me ngā tohu e whakaeke ana. Ko te nuinga o te iwi kei a rātou ngā mate pūtau ika o te taha e haere tonu ana ki te mahi noa. Heoi, ki te pā te mate pūtau ki te mahi o te ringa, te nekehanga, te whakaeke rānei i te mamae nui, pea ka hiahia koe ki ngā whakaritenga wāhi mahi, i ngā whakarerekētanga wā poto rānei ki ō mahi. Kōrerohia ngā āwangawanga e pā ana ki te mahi me tō kaiwhakarato hauora.

He mea whakatūpato rānei ki te whai ahau i ngā mate pūtau ika o te taha maha?

Ko te whai i ngā mate pūtau ika o te taha maha pea ka tohu i te āhuatanga ira pēnei i te neurofibromatosis. Heoi, kāore i te mea tonu, i te mea ka whanake ētahi iwi i ngā mate pūtau maha kaore he āhuatanga ira taketake. Pea ka tūtohu tō tākuta i te whakamātautau ira, i te tohutohu rānei hei whakatau mena he wāhanga whakatūpato. Ka taea te nui o tēnei mōhio mō tō mahere rongoā me ngā whakatau whakatōpūtanga whānau.