He aha te Pineoblastoma? Tohutohu, Take, me te Maimoatanga

He pūngāwerewere pūtau roro onge, tere te tipu te pineoblastoma, e whanake ana i roto i te pūngāwerewere pineal, he hanganga iti kei roto i tō roro. Ko tēnei mate pūtau kino ka pā nuitia ki ngā tamariki me ngā tāne taitamariki, ahakoa ka puta i tetahi tau.

Ko te pūngāwerewere pineal te kaihanga o te melatonin, he homoni hei awhina i te whakahaere i tō huringa moe-ara. Ki te hangaia he pineoblastoma i konei, ka raru pea te mahi roro noa, ka hanga i ngā wero hauora nui e hiahia ana ki te tiaki hauora tere.

He aha te Pineoblastoma?

Ko te Pineoblastoma tetahi o ngā pūngāwerewere roro e kiia nei he pūngāwerewere parenchymal pineal. E kiia ana he pūngāwerewere o te Tiwhikete IV, arā, ka tere te tipu, ka horapa haere i roto i te roro me te iwi tuaiwi.

Ko tēnei momo mate pūtau he iti iho i te 1% o ngā pūngāwerewere roro katoa, no reira he onge rawa. Ka whanake te pūngāwerewere mai i ngā pūtau o te pūngāwerewere pineal, kāore i ngā kiko e karapoti ana, e whakamārama ana i te rerekētanga mai i ētahi atu momo kohinga roro i tēnei wāhi.

Nō te āhua o tōna wāhi hohonu i roto i te roro, ka taea e te pineoblastoma te aukati i te rere noa o te wai cerebrospinal. Ko tēnei aukatinga te tino take o te piki o te pehanga i roto i te anga, e hanga ana i te nuinga o ngā tohu e pā ana ki te tangata.

He aha ngā Tohutohu o te Pineoblastoma?

Ka puta ngā tohu o te pineoblastoma nā te piki o te pehanga i roto i tō anga, me te pānga ki ngā hanganga roro e tata ana. Ko te nuinga o te iwi ka kite i ēnei tohu e whanake ana i roto i ngā wiki ki ngā marama i te tipu o te pūngāwerewere.

Ko ēnei ngā tohu tino noa ka pā pea ki a koe:

• Ngā mamae o te upoko nui e kino haere ana i te wā, inā koa i te ata
• Te ruaki me te ruaki kaore e rite ki te mate
• Ngā raruraru tirohanga, tae atu ki te tirohanga takirua, ki te uaua ki te titiro ki runga
• Ngā raruraru taurite me te whakahaere
• Ngā huringa i ngā tauira moe, i te moe nui rawa
• Ngā hopu e puta mai ana ohorere
• Ngā raruraru mahara, te whakapohehe

Ko ētahi atu ka whanake i tetahi huinga motuhake o ngā raruraru nekehanga kanohi e kiia nei ko te mate a Parinaud. Ka puta mai tēnei ina pehia e te pūngāwerewere ngā wāhi roro e tata ana e whakahaere ana i te nekehanga kanohi, ka uaua ai te titiro ki runga, ka rerekē ai te mahi o ō akonga ki te mārama.

I etahi wā onge, ka kite pea koe i ngā huringa homoni, i te pakeketanga wawe i ngā tamariki, nā te mea e tata ana te pūngāwerewere pineal ki ētahi atu hanganga roro e whakaputa homoni ana. Ka taea e ēnei tohu te ngawari i te tīmatanga, engari ka kino haere i te tipu o te pūngāwerewere.

He aha ngā Take o te Pineoblastoma?

Ko te take tika o te pineoblastoma kāore ano kia mohiotia, ā, ko tēnei kore mohio ka āwangawanga pea koe ina rapu whakautu. Pērā i te nuinga o ngā mate pūtau, ka whanake pea mai i te whakakotahitanga o ngā take ira me te taiao kāore ano kia tino mārama.

Kua kitea e ngā kairangahau ētahi āhuatanga ira e piki ai te tūponotanga, ahakoa he onge rawa ēnei:

• Te retinoblastoma rua-ā-rua (he momo mate pūtau kanohi e pā ana ki ngā kanohi e rua)
• Te mate a Li-Fraumeni (he mate pūtau whakaputa i te whānau)
• Ētahi whakakē ira kua oti te whakawhiwhi e pā ana ki ngā pūtau whakakore pūtau

Ko te nuinga o ngā keehi o te pineoblastoma ka puta noa mai kaore he hītori whānau rānei, he tūponotanga ira rānei. Ko te tikanga tenei i te nuinga o ngā āhuatanga, kāore he mea i taea e koe, e tō whānau rānei te mahi hei aukati i tōna whanaketanga.

Kua whakaarohia ngā take taiao pēnei i te whakamahinga radiation hei wāhanga pea, engari kāore he mōhio pai e hono ana i ngā take taiao motuhake ki te pineoblastoma. Ko te onge o tēnei pūngāwerewere te mea e wero ana ki te ako i ēnei hononga pea.

Nōhea te Tiro ki te Tākura mō te Pineoblastoma?

Me rapu wawe koe i te tiaki hauora mena ka pā ki a koe ngā mamae o te upoko nui e kino haere ana, inā koa ina whakakotahitia ki te ruaki, te ruaki, ki ngā huringa tirohanga. Ka taea e ēnei tohu te tohu i te piki o te pehanga i roto i tō roro, e hiahia ana ki te aromatawai tere.

Kaua e tatari mena ka kite koe i ngā huringa ohorere i te whakahaere, te taurite, te nekehanga kanohi. Ahakoa he maha ngā take o ēnei tohu, me aromatawai wawe te hauora hei whakakore i ngā āhuatanga kino penei i ngā pūngāwerewere roro.

Whakapa atu ki tō tākura i roto i ngā rā torutoru mena kei te pāngia koe e ngā raruraru moe roa, ngā raruraru mahara, te ngenge koretake e kore e pai ake ki te okioki. Ka taea e ēnei tohu te whanake haere, engari me aromatawai tonu e te tohunga.

Mō ngā tamariki, kia tupato ki ngā huringa i te whāinga, te mahi kura, i ngā tohu whanaketanga. Me whakaohooho hoki te ui ki te taakuta te pakeketanga wawe, te huringa tipu ohorere, na te mea ka taea e enei te tohu i nga paanga homoni mai i nga pūngāwerewere roro.

He aha ngā Tūponotanga mō te Pineoblastoma?

Ko te mārama ki ngā tūponotanga ka āwhina pea koe ki te whakaaro he aha i whanake ai tēnei pūngāwerewere onge, ahakoa he mea nui te mahara kei te whai tūponotanga kāore e tikanga ka whanake koe i te pineoblastoma.

Ko ngā tūponotanga matua ko ēnei:

• Tau: Ko te nuinga i ngā tamariki kei raro iho i te 5 tau te pakeke me ngā tāne taitamariki
• Ngā āhuatanga ira pēnei i te retinoblastoma rua-ā-rua, te mate a Li-Fraumeni
• Te hītori whānau o ētahi mate pūtau kua oti te whakawhiwhi
• Te maimoatanga radiation o mua ki te upoko, ki te roro

I te kōrero atu, ko te nuinga o te iwi e whai pineoblastoma ana kāore he tūponotanga e taea te whakatau. Ka puta mai tēnei pūngāwerewere noa i te nuinga o ngā keehi, ka āwangawanga pea, engari ko te tikanga hoki kāore pea koe i taea te aukati.

Kāore te ira e āhua pānga nui ana ki te tūponotanga, kāore hoki he mōhio pai e pā ana ngā take ora penei i te kai, te whakakori tinana ki te whanaketanga o te pineoblastoma. Ko te onge o tēnei pūngāwerewere te mea e wero ana ki te whakatau i ngā tūponotanga iti pea e puta mai ana.

He aha ngā Raru pea o te Pineoblastoma?

Ka taea e te Pineoblastoma te arahi ki ngā raruraru nui nā tōna āhua kaha me tōna wāhi i te wāhi nui o te roro. Ko te mārama ki ēnei raruraru pea ka āwhina pea koe ki te whakarite mō te haerenga e tū mai ana, me te mohio ki ngā tohu hei titiro atu.

Ko ngā raruraru tino tere te hono atu ki te piki o te pehanga roro:

• Hydrocephalus (te kohikohi wai i roto i te roro) e hiahia ana ki te whakaheke rongoā
• Ngā ngoikoretanga neurological nui e pā ana ki te nekehanga, ki te whakaaro
• Ngā hopu ka uaua pea te whakahaere
• Koma i ngā keehi kino mena ka nui rawa te pehanga

Nā te horapa ngāwari o te pineoblastoma i roto i te wai cerebrospinal, ka taea e ia te whakato i ētahi atu wāhi o te roro me te iwi tuaiwi. Ko tēnei horapa, e kiia nei ko te horapa leptomeningeal, ka taea te hanga i ngā tohu hou i ngā wāhi rerekē o tō pūnaha io.

Ka puta mai hoki ngā raruraru e pā ana ki te maimoatanga, tae atu ki ngā pānga mai i te rongoā, te rongoā radiation, te chemotherapy. Ka taea e ēnei te whakauru i ngā raruraru mahara, ngā raruraru ako, i ngā koretake homoni, inā koa i ngā tamariki kei te whanake tonu ō roro.

Ko ngā kaiora ora roa pea ka whai wero tonu ki te whakahaere, te tirohanga, te mahi hinengaro. Heoi, he maha ngā tāngata e pai ana te whakarite ki ēnei huringa me ngā ratonga tautoko me te whakaora tika.

Me pēhea te Whakatau i te Pineoblastoma?

Ko te whakatau i te pineoblastoma e hiahia ana ki ngā whakamātautau motuhake maha nā te wāhi o te pūngāwerewere hohonu i roto i te roro. Ka whakamahi tō rōpū hauora i ngā whakaahua whakamua me ētahi atu hangarau hei tiki i te whakaahua mārama o te mea kei te puta.

Ko te tukanga whakatau ka tīmata noa ki ngā tirohanga MRI o tō roro me tō iwi tuaiwi. Ka āwhina ēnei whakaahua taipitopito ki ngā tākuta ki te kite i te rahi o te pūngāwerewere, te wāhi, me te mea kua horapa ki ētahi atu wāhi o tō pūnaha io.

Ko ēnei ngā mea ka tūmanakohia e koe i te wā o te mahi whakatau:

1. Te whakamātautau neurological hei aromatawai i te mahi roro
2. MRI me te whakakotahitanga hei whakaatu mārama i te pūngāwerewere
3. Te whakakī lumbar hei tirotiro i ngā pūtau mate pūtau i roto i te wai tuaiwi
4. Ngā whakamātautau toto hei tirotiro i ngā tohu pūngāwerewere
5. I etahi wā he biopsy hei whakau i te whakatau

Ko te tiki i te tauira kiko mō te biopsy ka uaua pea nā te wāhi o te pūngāwerewere pineal. I ētahi wā, ka tīmata pea ngā tākuta i te maimoatanga i runga i ngā whakaahua me ētahi atu whakamātautau mena he tino kino te biopsy.

Ko te tukanga whakatau katoa ka roa pea i ngā rā ki te wiki, i runga i te whakarite me te tere o te puta mai o ngā hua. Ka mahi tō rōpū hauora ki te tiki i ngā whakautu kia tere rawa, me te whakarite i te tika.

He aha te Maimoatanga mō te Pineoblastoma?

Ko te maimoatanga mō te pineoblastoma ka whakauru noa i te whakakotahitanga o te rongoā, te rongoā radiation, me te chemotherapy nā te āhua kaha o te pūngāwerewere. Ka whakaritea tō mahere maimoatanga ki tō āhuatanga motuhake, tae atu ki te rahi o te pūngāwerewere, te horapa, me tō hauora katoa.

Ko te rongoā te tikanga ko te kaupapa tuatahi ina taea. Ko ngā whāinga ko te tango i te pūngāwerewere nui kia haumaru, me te whakaheke i te pehanga ki te roro. Ka uaua pea te tango katoa nā te wāhi hohonu o te pūngāwerewere pineal e tata ana ki ngā hanganga roro nui.

Ka taea e tō mahere maimoatanga te whakauru i ēnei huarahi:

• Te tango rongoā hei tango i te pūngāwerewere
• Te rongoā radiation hei whai i ngā pūtau mate pūtau e toe ana
• Te chemotherapy hei whakaora i te horapa puta noa i te pūnaha io
• Te whakanoho i te shunt mena ka puta mai te hydrocephalus
• Te whakawhiti pūtau pūtau i ētahi wā

He mea nui rawa te rongoā radiation nā te mea ka horapa haere te pineoblastoma i roto i te wai cerebrospinal. Ko te tikanga tenei te maimoatanga kāore i te wāhi pūngāwerewere taketake anake, engari ko te roro katoa me te iwi tuaiwi hei aukati i te hokinga mai.

He kaha te maimoatanga, ka roa pea i ngā marama maha. Ka tirotiro tata atu tō rōpū hauora i a koe i roto i tēnei tukanga, ka whakarereke i te mahere i runga i tō whakautu.

Me pēhea te Whakahaere i te Tiaki i te Kāinga i te Wā o te Maimoatanga?

Ko te whakahaere i te tiaki i te kāinga i te wā o te maimoatanga pineoblastoma e hiahia ana ki te aro ki ngā tohu tinana me te oranga hinengaro. Ka hoatu e tō rōpū hauora ngā tohutohu taipitopito, engari ko ēnei ngā rautaki whānui ka āwhina pea.

Aro atu ki te pupuri i te kai pai me te inu wai, ahakoa ka uaua te kai i ngā pānga o te maimoatanga. Ko ngā kai iti, maha te mahi pai i ngā kai nui, ā, ko ngā kai ngawari pea ka ngāwari ake te manawanui i te wā o te chemotherapy.

Ko ēnei ngā wāhi matua hei tirotiro me te whakahaere:

• Tirohia ngā tohu o te mate pēnei i te kirika, nā te mea ka whakaiti te maimoatanga i tō pūnaha mate
• Whakahaere i te ruaki me ngā rongoā kua whakaritea me ngā whakaritenga kai
• Tirohia ngā huringa i ngā tohu neurological
• Pupuri i te taiao haumaru hei aukati i ngā hinga nā ngā raruraru taurite
• Pupuri i te puka tohu hei whakawhiti ki tō rōpū hauora

He mea nui te okioki i te wā o te maimoatanga, engari ka taea e te mahi ngawari te pupuri i te kaha me te ngākau ina pai koe.

Ko te tautoko hinengaro he mea nui ano he tiaki tinana. Whakaarohia te hono atu ki ngā rōpū tautoko, ngā ratonga tohutohu, ki ētahi atu whānau kua pāngia e ngā wero rite. He maha ka kite i te whakamarie i te whakawhiti wheako ki ētahi atu e tino mārama ana.

Me pēhea te Whakarite mō tō Hui Tākura?

Ko te whakarite mō ngā hui e pā ana ki te pineoblastoma ka āwhina pea koe ki te whakamahi pai i tō wā me te rōpū hauora, me te whakarite ka whakautua ngā pātai nui. Ko te haere mai i te whakarite ka whakaiti i te ahotea, ka āwhina pea koe ki te whakahaere.

I mua i tō hui, tuhia ngā tohu katoa kua kitea e koe, tae atu ki te wā i tīmata ai, me te āhua o te huringa i te wā. Whakauruhia ngā kōrero mō ngā tauira mamae o te upoko, ngā huringa moe, ngā raruraru tirohanga, i ētahi atu āwangawanga.

Kawe mai ēnei mea nui ki ia hui:

• Rārangi katoa o ngā rongoā me ngā taapiri o nāianei
• Ngā rēkōti hauora o mua me ngā ako whakaahua
• Ngā kōrero inihua me te whakamārama
• Rārangi o ngā pātai e hiahia ana koe ki te ui
• He hoa whakawhirinaki, he mema whānau rānei mō te tautoko

Whakaritea ngā pātai motuhake mō tō whakatau, ngā kōwhiringa maimoatanga, me te mea e tūmanakohia ana. Ui atu mō ngā pānga, te raupapa wā, me te āhua o te maimoatanga ka pā ki ngā mahi o ia rā, ki te mahi.

Whakaarohia te kawe mai i te puka, te tono whakaaetanga rānei ki te tuhi i ngā wāhanga nui o te kōrero. Ka whiwhi koe i te maha o ngā kōrero, ā, he mea noa te wareware i ngā kōrero i muri mai, inā koa ina āwangawanga koe.

He aha te Tango Matua mō te Pineoblastoma?

Ko te Pineoblastoma he pūngāwerewere roro onge, engari he kino, e hiahia ana ki te maimoatanga kaha, tere. Ahakoa ka āwangawanga pea te whakatau, kua pai ake ngā hua maimoatanga me ngā whakapainga i te maimoatanga, inā koa ina mau wawe te pūngāwerewere, ka maimoatia kaha.

Ko te mea nui hei mahara ko te kore koe e noho kotahi i tēnei haerenga. Kei a ngā rōpū hauora motuhake te wheako ki te maimoatanga pineoblastoma, ka mahi tata atu rātou ki a koe hei whakawhanake i te mahere maimoatanga pai rawa mō tō āhuatanga.

Ko te kitenga wawe o ngā tohu me te maimoatanga tere he mea nui mō ngā hua pai rawa. Mena kei te pāngia koe e ngā tohu neurological e awangawanga ana, kaua e whakaroa ki te rapu tiaki hauora. Ka taea e te mahi tere te whakarereke nui i te whai hua o te maimoatanga.

Ko te ora me te whakahaere roa ka whakauru i te tautoko tonu mai i ngā tohunga hauora maha. Ka taea e te rongoā tinana, te rongoā mahi, me te tautoko hinengaro te whakauru i ngā mahi nui hei awhina i a koe ki te whakarite me te pupuri i te kounga ora pai rawa.

Ngā Pātai Nui e Uihia ana mō te Pineoblastoma

He mate mate tonu te pineoblastoma?

He āhuatanga kino te Pineoblastoma, engari ehara i te mea mate tonu. Kua pai ake ngā reiti ora me ngā whakapainga i te maimoatanga, inā koa ina mau wawe te pūngāwerewere, ka maimoatia kaha. He maha ngā mea e pā ana ki te poroporoaki, tae atu ki te tau o te whakatau, te rahi o te pūngāwerewere, me te āhua o te whakautu ki te maimoatanga. Ka taea e tō rōpū hauora te hoatu i ngā kōrero motuhake atu i runga i tō āhuatanga motuhake.

Ka taea te aukati i te pineoblastoma?

I tēnei wā, kāore he huarahi e mohiotia ana hei aukati i te pineoblastoma nā te mea kāore ano kia tino mārama te take. Kāore i rite ki ētahi mate pūtau e hono ana ki ngā take ora, ka puta mai te pineoblastoma noa i te nuinga o ngā keehi. Mō te iwi e whai āhuatanga ira e mohiotia ana, ka āwhina pea te tirotiro auau ki te kite wawe i ngā pūngāwerewere, engari kāore e taea te aukati me te mātauranga o nāianei.

E hia te roa o te maimoatanga mō te pineoblastoma?

Ko te maimoatanga ka roa pea i ngā marama maha, ka whakauru i ngā wāhanga maha. Ko te rongoā te mea tuatahi ina taea, ka whai ake te rongoā radiation e roa pea i te 6-8 wiki. Ka taea te haere tonu te chemotherapy i ngā marama maha i muri mai. Ko te raupapa wā tika e whakawhirinaki ana ki tō mahere maimoatanga motuhake, tō whakautu ki te rongoā, me te mea ka puta mai he raruraru i te wā o te maimoatanga.

Ka taea e au te hoki ki ngā mahi noa i muri i te maimoatanga?

Ka taea e te tini o te iwi te hoki ki te nuinga o ō rātou mahi noa i muri i te maimoatanga, ahakoa he rerekē nui tēnei mai i te tangata ki te tangata. Ko ētahi pea ka whai pānga tonu pēnei i te ngenge, ngā raruraru whakahaere, i ngā huringa hinengaro e hiahia ana ki ngā whakaritenga ki ngā mahi o ia rā. Ka taea e ngā ratonga whakaora te āwhina i a koe ki te whakarite me te tiki i te mahi nui rawa. Ka mahi tahi tō rōpū hauora ki a koe hei whakarite i ngā tumanakohanga me ngā whāinga tika.

Me whakamātautauhia rānei tō whānau mō te pineoblastoma?

I te nuinga o ngā keehi, kāore ngā mema whānau e hiahia ana ki te whakamātautau motuhake nā te mea ka puta noa mai te pineoblastoma i te nuinga o ngā wā. Heoi, mena kei a koe tetahi mate ira e mohiotia ana pēnei i te mate a Li-Fraumeni, te retinoblastoma rua-ā-rua rānei, ka pai pea tō whānau ki te tohutohu ira. Ka taea e te kaiwhakaako ira te aromatawai i tō hītori whānau, ka tūtohutia ngā tirotiro tika mena e hiahiatia ana.