He aha te Polymyositis? Ngā Tōmhanga, Ngā Take, me te Maimoatanga

Ko te polymyositis he mate ā-tinana e whakaeke ana te pūnaha ā-mate o tō tinana i ngā uaua o tō tinana, ā, ka puta he mumura me te ngoikore. Whakaarohia he pohehe te pūnaha tiaki o tō tinana, ā, e whakaeke ana i ngā uaua hauora i te wāhi o ngā kaiwhakaeke kino.

Ko te mate nei e pā ana ki ngā uaua e tata ana ki tō puku, pēnei i ngā uaua o ō pakihiwi, o ō hope, me ō huha. Ahakoa ka rongo pea koe i te nui o te mate i te tīmatanga, ko te mārama ki te polymyositis ka āwhina i a koe ki te kite i ngā tōmhanga i te wā, ā, ka mahi tahi me tō rōpū hauora ki te whakahaere pai.

He aha ngā tōmhanga o te polymyositis?

Ko te tōmhanga matua o te polymyositis ko te ngoikore o ngā uaua e whanake ana i roto i ngā wiki, i ngā marama rānei. Ka kite pea koe i te uaua ki te piki i ngā kaupae, ki te whakaara i ō ringa ki runga i tō upoko, ki te whakatika rānei i te nohoanga.

Ko ēnei ngā tōmhanga tino noa ka pā pea ki a koe:

• Te ngoikore o ngā uaua e piki haere ana, ina koa i ō pakihiwi, i ō hope, me ō huha
• Te uaua ki te horomi, ki te rerekētanga rānei o tō reo
• Te mamae o ngā uaua me te ngawari
• Te ngenge e kore e pai ake me te okioki
• Te poto o te manawa i te wā e mahi tinana ana
• Te ngaro o te taumaha kaore i te ngana

Ka whanake pea etahi atu i ngā tōmhanga iti ake, pēnei i te mamae o ngā hononga, te kirika, i te pupuhi iti rānei o te kiri. Ko te ngoikore e pā ana ki ngā taha e rua o tō tinana, ā, ka āwhina tēnei i ngā tākuta ki te wehewehe i te mate nei i ētahi atu mate uaua.

I roto i ngā take onge, ka pā pea te polymyositis ki te uaua o tō ngakau, ki ngā uaua e pā ana ki te manawa rānei. Ahakoa he onge ēnei raruraru, koinei te take e nui ai te whakatau i te wā me te maimoatanga mō tō hauora whānui me tō oranga pai.

He aha ngā take o te polymyositis?

Kāore i tino mōhiotia te take pono o te polymyositis, engari e whakapono ana ngā kairangahau he mate ā-tinana tēnei. Ko te tikanga tenei, ko tō pūnaha ā-mate, e tiaki ana i a koe i ngā mate, e whakaaro he ke tō uaua, ā, e whakaeke ana i a ia.

He maha ngā take ka whakaoho i tēnei whakautu ā-mate:

• Ngā mate huaketo, pēnei i te huaketo Epstein-Barr, i te mate huaketo rānei
• Ngā mate huakita
• Ētahi rongoā, tae atu ki ētahi rongoā whakaheke kolesterol
• Ngā take ira e whakaiti ana i a koe
• Ngā whakaoho taiao pēnei i te rā, i te ahotea rānei

He mea nui kia mārama kāore te polymyositis e pā atu, ā, kāore e taea e koe te hopu i te mate nei i tētahi atu. Kāore hoki te mate nei e tuku tika ana, ahakoa ko te whai i ētahi ira ka tino piki ake pea te tupono ki te whanake.

I roto i ngā take onge, ka hono pea te polymyositis ki te mate pukupuku, ina koa ki ngā tāngata neke atu i te 50. Ka puta tēnei hononga i te 10-15% o ngā take, ā, koinei te take ka tūtohu pea tō tākuta ki te whakamātautau mate pukupuku hei wāhanga o tō arotake.

Nōhea te haere ki te tākuta mō te polymyositis?

Me whakapiri atu koe ki tō kaiwhakarato hauora ki te kite koe i te ngoikore o ngā uaua e kore e mutu e āwangawanga ana i ō mahi o ia rā. Kaua e tatari ki te uaua ngā mahi ngāwari, pēnei i te horoi i ō makawe, te piki i ngā kaupae, i te whakatika rānei i te nohoanga.

Rapua te awhina hauora tonu ki te pāngia koe e te uaua ki te horomi, ngā raruraru manawa, i te mamae nui rānei o ngā uaua. Ka taea e ēnei tōmhanga te tohu kei te pā te mate ki ngā mahi nui, ā, me te maimoatanga tere.

Ka āwhina te whakatau i te wā me te maimoatanga ki te aukati i te kino o ngā uaua, ā, ka whakapai ake i tō tirohanga roa. Ka taea e tō tākuta te whakahaere i ngā whakamātautau motuhake ki te whakau i te hononga o ō tōmhanga ki te polymyositis, ki tētahi atu mate rānei.

He aha ngā take morearea mō te polymyositis?

Ko te mārama ki te hunga e tino pā ana ki te whanake i te polymyositis ka āwhina i a koe ki te pupuri i te mataara ki ngā tōmhanga pea. Ka rerekē te pānga o te mate nei ki ngā tāngata, engari ka piki ake ētahi take i tō morearea.

Ko ngā take morearea noa e whai ake nei:

• Ko te noho i waenga i te 30 me te 60 tau te pakeke, ahakoa ka puta i tetahi tau
• Ko te wahine, i te mea he rua te tupono o ngā wāhine ki te whanake i te mate nei
• Te whai i ētahi atu mate ā-tinana pēnei i te lupus, i te mate rheumatoid rānei
• Te whai i te hītori whānau o ngā mate ā-tinana
• Ngā mate huaketo, huakita rānei hou

Ko ētahi atu take morearea iti ake e whai ake nei: te whakamahinga ki ētahi atu poizon taiao, ki te tango rānei i ētahi rongoā motuhake. Heoi, ko te whai i ēnei take morearea kāore e tikanga ka whanake koe i te polymyositis.

Ko te nuinga o ngā tāngata e whai ana i ngā take morearea kāore e whanake i te mate nei, ā, ko ētahi atu kāore he take morearea e mohiotia ana e whanake ana. Ko tō morearea takitahi e whakawhirinaki ana ki te whakakotahitanga o ngā take ira, taiao, me te pūnaha ā-mate.

He aha ngā raruraru pea o te polymyositis?

Ahakoa ka taea te whakahaere i te polymyositis me te maimoatanga tika, he mea noa ki te whakaaro ki ngā raruraru pea. Ko te nuinga o ngā tāngata e pai ana ki te tiaki hauora tika, engari ko te mataara ki ngā take pea ka āwhina i a koe ki te mahi tata atu ki tō rōpū hauora.

Ko ngā raruraru noa e tika ana kia mōhio koe e whai ake nei:

• Te uaua ki te horomi, ka āhei te arahi ki te ngākau, ki ngā mate ngakau rānei
• Ngā raruraru manawa ki te pāngia ngā uaua o ō ngakau
• Ngā rerekētanga o te au o te ngakau, i te mumura o te uaua o te ngakau rānei
• Te mumura o ngā ngakau, i te toka rānei i ētahi take
• Te piki o te morearea hinga na te ngoikore o ngā uaua

Ko ngā raruraru onge engari nui e whai ake nei: te pakaru o ngā uaua nui, i ngā raruraru whatukuhu rānei mai i ngā pūmua uaua e tomo ana ki tō toto. Ka whanake pea etahi atu i ngā konganuku kārati i ō uaua, i ō kiri rānei.

Ko te rongo pai, me te maimoatanga i te wā, ka taea te aukati, te whakaiti rānei i ēnei raruraru. Ko te arotake tonu e tō rōpū hauora ka āwhina ki te hopu i ngā take i te wā e tino taea ai te whakaora.

Me pēhea te whakatau i te polymyositis?

Ko te whakatau i te polymyositis e whai ana i ngā whakamātautau maha, na te mea kāore he whakamātautau kotahi e taea te whakau i te mate nei. Ka tīmata tō tākuta me te whakamātautau tinana tino pai, me te arotake i ō tōmhanga me tō hītori hauora.

Ko te tukanga whakatau e whai ana i ngā whakamātautau toto ki te tirotiro i ngā pūmua uaua teitei me ngā antibodies motuhake. Ka āwhina ēnei whakamātautau ki te whakaatu kei te pakaru ō uaua, ā, kei te pā tō pūnaha ā-mate.

Ka tūtohu pea tō tākuta i te whakamātautau electromyography (EMG), e ine ana i te mahi hiko i ō uaua. Ka taea e tēnei whakamātautau kore mamae te whakaatu i ngā tauira e rite ana ki ngā mate uaua mumura pēnei i te polymyositis.

I ētahi wā, ka hiahiatia pea he biopsy uaua. Ko te tikanga tenei te tango i te tauira iti o te uaua ki te tirotiro i raro i te microscope mō ngā tohu o te mumura me te kino. Ahakoa ka rongo pea tenei he awangawanga, he tukanga noa tēnei e whakarato ana i ngā korero whakatau whai hua.

Ka whai pea ngā whakamātautau atu i ngā X-rays uma, i ngā CT scans rānei ki te tirotiro i ō ngakau me ō manawa. Ka āwhina ēnei i tō tākuta ki te mārama ki te nui o te mate nei, ā, ki te whakarite i te maimoatanga tino tika.

He aha te maimoatanga mō te polymyositis?

Ko te maimoatanga mō te polymyositis e aro ana ki te whakaiti i te mumura, ki te tiaki i te mahi o ngā uaua, ki te aukati rānei i ngā raruraru. Ko te rongo pai, ko te nuinga o ngā tāngata e pai ana ki te maimoatanga, ā, ka taea te pupuri i te kounga pai o te ora.

Ko tō mahere maimoatanga pea ka whai i ngā huarahi maha:

• Ngā corticosteroids pēnei i te prednisone ki te whakaiti tere i te mumura
• Ngā rongoā immunosuppressive ki te āwhina i te whakahaere i tō pūnaha ā-mate
• Te rongoā tinana ki te pupuri i te kaha o ngā uaua me te ngawari
• Te arotake tonu ki te aroturuki i tō ahunga whakamua, ki te whakarite rānei i te maimoatanga
• Te maimoatanga o ētahi atu raruraru e whanake ana

Ka tīmata tō tākuta me ngā rongoā ki te whakahaere i te mumura i ō uaua. Ko ngā corticosteroids e whakarato ana i te whakapainga tere, ahakoa pea ka hiahia koe ki ētahi atu rongoā mō te whakahaere roa.

He mahi nui te rongoā tinana i tō ora. Ka taea e te kaiwhakaora motuhake te hoahoa i ngā mahi whakakori e āwhina ana ki te pupuri i tō kaha uaua kaore e nui rawa te whakamahi i ngā uaua mumura. Ko tēnei toenga te matua ki te aukati i te kino o ngā uaua.

I roto i ngā take onge kaore ngā maimoatanga noa e whai hua, ka tūtohu pea tō tākuta i ngā maimoatanga hou ake pēnei i te immunoglobulin intravenous, i ngā biologics rānei. Ka tino āwhina ēnei maimoatanga whakamua ki ngā tāngata kaore e whakautu ki ngā rongoā noa.

Me pēhea te whakahaere i te polymyositis i te kāinga?

Ko te whakahaere i te polymyositis i te kāinga e whai ana i te tiaki i tō hauora whānui i te wā e tautoko ana i tō maimoatanga hauora. Ka taea e ngā whiringa iti o ia rā te whakarereke nui ki te āhua o tō rongo me tō mahi.

Arotake ki te whakakori ngawari, noa i ia rā, pēnei i te tūtohu a tō kaiwhakaora tinana. Ka whai pea tenei i ngā mahi whakakori o te whānuitanga, te whakatete ngawari, i ngā hikoi poto rānei. Ko te matua ko te noho mahi kaore e nui rawa te whakamahi i ō uaua.

Tātai ki tō kai me tō kai. Ko te kai i te kai tōtika e whai hua ana i te pūmua ka āwhina i te tautoko i te hauora uaua, ā, ko te kārati me te huaora D he mea nui ki te tango koe i ngā corticosteroids mo te wā roa.

Whakahaere i a koe i te rā, ā, whakarongo ki tō tinana. He pai te okioki ina hiahia koe, ā, ko te wehewehe i ngā mahi nui ki ngā mahi iti ake, ka āwhina i a koe ki te noho motuhake i te wā e tiaki ana i te kaha.

Whakaarohia te whakapai ake i tō kāinga ma te tango i ngā tūponotanga haere, te tāuta i ngā paepae hopu i ngā ruma kaukau, me te whakarite i te mārama pai. Ka taea e ēnei whakarerekētanga ngāwari te aukati i ngā hinga, ā, ka hoatu he whakawhirinaki ki a koe ki te neke i tō wāhi.

Me pēhea te whakarite mō tō hui tākuta?

Ko te whakarite mō tō hui ka āwhina i a koe ki te whakamahi pai i tō wā me tō kaiwhakarato hauora. Tīmata ma te tuhi i ō tōmhanga katoa, tae atu ki te wā i tīmata ai rātou me te āhua o te rerekētanga i te wā.

Kawe mai i te rārangi katoa o ngā rongoā, ngā taapiri, me ngā huaora katoa e tangohia ana e koe. Whakauruhia ngā horopeta me te auau o te tango, i te mea ka taea e ētahi rongoā te pā ki te mahi uaua, ki te mahi tahi rānei me ngā maimoatanga polymyositis.

Whakaritea ngā pātai mō tō mate, ngā whiringa maimoatanga, me te mea e tatari ana koe. Kaua e whakaroa ki te ui mō ngā pānga o ngā rongoā, i te āhua o te pānga o te mate ki ō mahi o ia rā, ki tō hauora roa rānei.

Whakaarohia te kawe mai i te mema whānau, i te hoa rānei ki tō hui. Ka taea e rātou te āwhina i a koe ki te mahara ki ngā korero nui, ā, ka whakarato i te tautoko ngākau i te wā e rongo pea ana he korerorero nui.

Pupuri i te raihana tōmhanga i waenga i ngā hui, te tuhi i ō taumata kaha, te kaha o ngā uaua, me ētahi atu tōmhanga hou. Ka āwhina ēnei korero i tō tākuta ki te aroturuki i tō ahunga whakamua, ki te whakarite rānei i tō mahere maimoatanga i te mea e hiahiatia ana.

He aha te mea nui mō te polymyositis?

Ko te polymyositis he mate ā-tinana e taea te whakahaere e pā ana ki ō uaua, engari me te maimoatanga tika, ka taea e te nuinga o ngā tāngata te pupuri i te mahi pai me te kounga o te ora. Ko te whakatau i te wā me te tiaki hauora tika he mea nui mō ngā hua pai.

Ahakoa ka rongo pea te whakatau i te nui o te awangawanga i te tīmatanga, kia mahara kei reira ngā maimoatanga whai hua. Ko te mahi tata atu ki tō rōpū hauora, te noho mahi i roto i ō rohe, me te tiaki i tō hauora whānui ka āwhina i a koe ki te ora pai me tēnei mate.

Ko te mea nui rawa atu, kaua e anga atu ki tēnei anake. Kei reira ō kaiwhakarato hauora, whānau, me ngā whatunga tautoko ki te āwhina i a koe ki te whakatere i tēnei haerenga, ki te pupuri rānei i tō motuhake me tō oranga pai.

Ngā pātai e ui pinepinetia ana mō te polymyositis

He rite te polymyositis ki te fibromyalgia?

Kāore, he rerekē ngā mate o te polymyositis me te fibromyalgia. Ko te polymyositis e puta ana i te ngoikore o ngā uaua na te mumura, i te mea ko te fibromyalgia e puta ana i te mamae me te ngawari kaore he ngoikore o ngā uaua. Ka taea e ngā whakamātautau toto me ngā biopsies uaua te āwhina i ngā tākuta ki te wehewehe i ēnei mate.

Ka taea te haere ki te remission te polymyositis?

Ae, ko te nuinga o ngā tāngata e whai ana i te polymyositis e pā ana ki ngā wā remission e pai ake ana ngā tōmhanga, i te ngaro rānei mo te wā poto. Heoi, ko te mate nei e hiahia ana ki te maimoatanga tonu ki te pupuri i te remission me te aukati i ngā whakaoho. Ka mahi tahi tō tākuta me koe ki te kimi i te toenga tika o ngā rongoā.

Me tango rongoā tonu ahau i te ora katoa?

Ka rerekē tēnei i te tangata ki te tangata. Ka taea e ētahi te whakaiti, te mutu rānei i ngā rongoā ki te pumau tonu to ratou mate, i te mea ko ētahi atu e hiahia ana ki te maimoatanga roa ki te aukati i te hokinga mai o ngā tōmhanga. Ka arotake tonu tō tākuta i te mea ka taea e koe te whakarite i tō rongoā i runga i tō whakautu ki te maimoatanga.

Ka taea tonu e au te whakakori me te polymyositis?

Ae, engari ko te momo me te kaha o te whakakori me te aratohu a tō rōpū hauora. He pai te whakakori ngawari, noa mō te pupuri i te mahi uaua me te aukati i te ngoikore. Ka taea e te kaiwhakaora tinana te hoahoa i te kaupapa whakakori haumaru e mahi ana me tō taumata o nāianei o te kaha uaua me te mumura.

Kei te pā te polymyositis ki te roa o te ora?

Me te maimoatanga tika, ko te nuinga o ngā tāngata e whai ana i te polymyositis he roa o te ora noa, i te tata noa rānei. Ko te matua ko te whakatau i te wā me te whakahaere tika i te mate nei me ētahi atu raruraru. Ko te whai tonu i tō rōpū hauora ka āwhina i te whakarite i ngā hua pai rawa atu mo te wā roa.