He aha te Palsy Supranuclear Pūmau? Tohutohu, Take, me te Maimoatanga

Ko te palsy supranuclear pūmau (PSP) tētahi mate pūnao onge e pā ana ki te nekehanga, te tū, te kōrero, me te mana o te kanohi. Ka puta mai i te wawahi o ētahi pūtau roro i te wā, inā te nuinga i ngā wāhi e whakahaere ana i ēnei mahi nui.

Whakaarohia tō roro he maha ngā pokapū whakahaere mō ngā mahi rerekē. Ko te PSP te whakaheke i ngā wāhi e kawenga ana ki te whakakotahi i ō nekehanga me te pupuri i tō tū. Ahakoa he rite tonu ki te mate Parkinson, he tauira motuhake ake o ngā tohu me te whānuitanga o te PSP.

He aha ngā tohu o te Palsy Supranuclear Pūmau?

Ka tipu haere ngā tohu PSP, ā, ka rerekē pea. Ko ngā tohu tuatahi e kitea ana ko ngā raruraru ki te tū me te nekehanga o te kanohi, ahakoa ka rerekē te wheako o te tangata.

Ko ēnei ngā tohu matua ka kitea pea e koe:

• Ngā raruraru tū me ngā hinga maha - Ko te nuinga o ngā hinga whakamuri ka puta mai i te koretake
• Ngā raruraru nekehanga kanohi - Te raruraru ki te titiro ki runga, ki raro rānei, te tirohanga māreikura, te raruraru ki te aro
• Te pakari me te ngāwari o ngā nekehanga - Inā te nuinga i te kokonga me te pūtake
• Ngā huringa kōrero - Te kōrero whakaheke, te raruraru ki te hanga kupu, te huringa i te kaha o te reo
• Ngā raruraru horomi - Te raruraru ki ngā wai, ki ngā kai pakiaka rānei
• Ngā huringa whakaaro - Ngā raruraru ki te aro, te whakatau, te mahara rānei
• Ngā raruraru moe - Te kore moe, te huringa rānei i ngā tauira moe
• Ngā huringa ngākau - Te pouri, te riri, te pakaru ngākau rānei

Ko ngā raruraru nekehanga kanohi te mea e wehewehe ana i te PSP i ētahi atu āhuatanga. Ka kitea pea e koe te uaua ki te titiro ki raro i te haere i raro i te arawhata, te raruraru rānei ki te whakawhiti tere i tō tirohanga i waenganui i ngā mea.

I roto i ngā take onge, ka kitea pea e ētahi tangata ngā tohu onge ake penei i te kata, te tangi rānei kaore i te mana, te mārama nui, te huringa nui rānei o te ahua e kore e rite ki te ahua.

He aha ngā momo o te Palsy Supranuclear Pūmau?

He maha ngā momo o te PSP, he tauira tohu motuhake ōna. Ko te momo tino noa te tino noa, engari ko te mārama ki ngā rerekētanga ka āwhina i a koe ki te mohio ki te mea e pā ana ki a koe.

Te PSP tino (Richardson's syndrome) ko te momo tino noa. Ka tīmata te nuinga ki ngā raruraru tū me ngā hinga whakamuri, ka whai ake ngā raruraru nekehanga kanohi me te pakari i te kokonga me te pūtake.

Te PSP-Parkinsonism he rite tonu ki te mate Parkinson i ngā wā tuatahi. Ka kitea pea e koe ngā wiri, ngā nekehanga ngāwari, me te pakari e whakautu ana ki ngā rongoā Parkinson.

Te PSP me te whakaaturanga mua nui e pā ana ki te whakaaro me te whāinga tuatahi. Ko ngā huringa o te ahua, te whakatau, te reo rānei pea ngā tohu tuatahi, ehara i te raruraru nekehanga.

Ko ngā momo onge ake ko te PSP me ngā raruraru kōrero me te reo hei āhuatanga matua, te momo rānei e pā ana ki ngā tauira nekehanga motuhake. Ka taea e tō tākuta te āwhina ki te whakatau i te momo e whakaatu pai ana i ō tohu.

He aha ngā take o te Palsy Supranuclear Pūmau?

Ka puta te PSP i te whakarahi o te pūtau tau i roto i ētahi pūtau roro. Ko tenei pūtau te āwhina i te pupuri i te hanganga o ngā pūtau roro, engari i roto i te PSP, ka whakakotahitia ngā mea me te whakaheke i ngā pūtau i te wā.

Kāore i tino mōhiotia te take i tīmata ai te kohikohi tau. Ko te nuinga o ngā take ka puta mai i te koretake, ko te tikanga ka puta mai i te koretake kaore he hītori whānau mārama, he whakaoho taiao rānei.

I roto i ngā take onge rawa, ka taea e te PSP te rere i roto i ngā whānau na te mutuation ira. Heoi, koinei te iti iho i te 1% o ngā take PSP katoa. Ko te whai mema whānau me te PSP kāore e nui te piki o tō tūponotanga ki te whanake i te āhuatanga.

Ka whakaatuhia e ētahi rangahau ko ētahi rerekētanga ira pea ka tino pā ki te PSP, engari ko ēnei ngā rerekētanga noa e mau ana te nuinga o te iwi kaore e whanake i te mate.

Kua akohia ngā take taiao penei i ngā whara o te matenga, te whakamahinga rānei i ētahi poizon, engari kāore he hononga mārama i whakatūria. Ko te pono ko te PSP te ahua nei ka whanake mai i te whakakotahitanga o ngā take e mahi tonu ana ngā kāre e mōhiotia.

Nōhea te kite i te tākuta mō te Palsy Supranuclear Pūmau?

Me whakaaro koe ki te kite i te tākuta ki te pā ana koe ki ngā raruraru tū kaore i te whakamārama, inā te nuinga ki te maha o ngā hinga whakamuri. Ko ēnei tohu whakatūpato tuatahi e tika ana kia aro, ahakoa he ngāwari te ahua.

Ko ētahi atu tohu āwangawanga e tika ana kia arotakehia e te hauora ko ngā raruraru tonu ki ngā nekehanga kanohi, penei i te raruraru ki te titiro ki runga, ki raro rānei, te raruraru rānei ki te aro i tō tirohanga. Ko ngā huringa i tō tauira kōrero, te uaua haere rānei ki te horomi he mea nui hoki hei kōrero.

Ki te kite koe i te pakari nui i tō kokonga, i tō pūtake rānei e pā ana ki ō mahi o ia rā, ki te pā ana koe ki ngā huringa o te ahua e kore e rite ki te ahua, ko ēnei pea ngā tohu tuatahi e tika ana kia tirotirohia.

Kaua e tatari ki te maha o ngā tohu tahi. Ko te whakakotahitanga o ngā raruraru tū, ngā raruraru nekehanga kanohi, me ngā huringa kōrero he mea nui kia arotakehia wawe.

Kia mahara, he maha ngā whakamārama atu mō ēnei tohu, ā, ko te kite i te tākuta wawe ka āwhina i te whakakore i ngā āhuatanga e taea te whakaora, te whakarato rānei i te tiaki tautoko e whakapai ake ana i tō kounga ora.

He aha ngā take tūponotanga mō te Palsy Supranuclear Pūmau?

Ko te PSP e pā ana ki ngā tāngata i o rātou tau 60 me 70, ahakoa ka puta pea i ngā tāngata taitamariki. Ko te tau te take tūponotanga nui rawa atu e mōhiotia ana e tātou.

Ko ēnei ngā take tūponotanga matua i kitea e te rangahau:

• Tau - Ko te nuinga o te iwi ka whakatauhia i waenganui i ngā tau 60-70
• Ira tangata - He iti ake te tūponotanga o ngā tāne ki te whanake i te PSP i ngā wāhine
• Ētahi rerekētanga ira - Ko ētahi rerekētanga ira noa pea ka piki ake te tūponotanga
• Tūāhuatanga - Ko ētahi rohe e whakaatu ana i ngā reiti teitei, ahakoa kāore i te mārama ngā take

Kāore i rite ki ētahi atu āhuatanga neurological, kāore te PSP e hono atu ki ngā take ora penei i te kai, te whakakori tinana, te wāhine rānei. Ko te hītori whānau he mea onge, no te mea ko te nuinga o ngā take ka puta mai i te koretake.

Kua tirotirohia e ētahi rangahau mēnā ka piki ake te tūponotanga o ngā whara o te matenga, engari kāore te mōhio e kaha ki te tango i ngā whakatau mārama. Ko te mea ano e pā ana ki te whakamahinga i ētahi matū, i ngā poizon rānei.

He mea nui kia mārama ko te whai i ngā take tūponotanga kāore e tikanga ka whanake koe i te PSP. He maha ngā tāngata me ēnei āhuatanga kāore e whanake i te āhuatanga, engari ko ētahi atu kaore he take tūponotanga marama.

He aha ngā raruraru pea o te Palsy Supranuclear Pūmau?

I te whakawhānui o te PSP, ka taea te whanake i ngā raruraru maha e pā ana ki ngā āhuatanga rerekē o te ora o ia rā. Ko te mārama ki ēnei wāhi pea ka āwhina i a koe me tō whānau ki te whakarite me te rapu tautoko tika.

Ko ngā āwangawanga tuatahi e pā ana ki te ora me te nekehanga:

• Te piki o te tūponotanga hinga - Ka kino haere ngā raruraru tū i te wā, ka ārahi ki ngā hinga maha me ngā hinga kino
• Ngā raruraru horomi - Ka ārahi pea ki te ngākau, te kore kai, te mate huango rānei mai i te kai e tomo ana ki ngā pūkahukahu
• Ngā raruraru kōrero - Ka taea te whakawhānui ki te raruraru ki te whakapā atu i ngā hiahia me ngā ngākau
• Ngā raruraru tirohanga - Ka taea e ngā raruraru nekehanga kanohi te whakawehi i te pānui, te taraiwa, te haere rānei i ngā arawhata

I te whakawhānui o te āhuatanga, ka puta mai ngā raruraru uaua ake. Ka āhei pea ēnei ki ngā herenga nekehanga nui e hiahia ana ki ngā taputapu tautoko, ki ngā wīra rānei, me te uaua haere ki ngā mahi tiaki whaiaro penei i te kaukau, te kakahu rānei.

Ka taea hoki te whakawhānui o ngā huringa hinengaro i te wā, e pā ana ki te mahara, te whakatau raru, me ngā kaha whakatau. Ka taea te kino o ngā raruraru moe, e pā ana ki te hauora whānui me te kounga ora.

I roto i ngā take onge, ka whanake pea ētahi tangata i ngā raruraru kino ake penei i ngā raruraru manawa nui, te ngaro katoa rānei o ngā nekehanga kanohi mana. Heoi, he maha ngā tāngata me te PSP e pupuri tonu ana i ngā hononga whai kiko me te kimi huarahi ki te whakarite ki ō rātou kaha e huri haere ana.

Me pēhea te whakatau i te Palsy Supranuclear Pūmau?

Ka uaua pea te whakatau i te PSP no te mea ka taupokina ōna tohu ki ētahi atu āhuatanga penei i te mate Parkinson. Ko tō tākuta te nuinga ka tīmata ki te hītori hauora taipitopito me te whakamātau tinana e arotahi ana ki tō nekehanga, tō tū, me tō mahi kanohi.

Kāore he whakamātau kotahi e taea te whakatau i te PSP. Engari, ka whakamahi ngā tākuta i ngā tikanga hauora e hāngai ana ki ō tohu me te āhua o te whānuitanga i te wā. Ko te whakatau te nuinga ka whakaahuatia he "PSP pea" ehara i te tino.

Ka tono pea tō tākuta i ngā ako whakaahua roro penei i te MRI ki te rapu i ngā huringa motuhake i te hanganga roro. I roto i te PSP, ko ētahi wāhi o te brainstem pea ka whakaatu i te whakaheke, i ngā huringa rānei e tautoko ana i te whakatau.

I etahi wā ka hiahiatia ngā whakamātau atu hei whakakore i ētahi atu āhuatanga. Ka āhei pea ēnei ki ngā whakamātau toto hei tirotiro i ētahi atu take o ngā raruraru nekehanga, ngā kara rānei motuhake e titiro ana ki te mahi roro, ehara i te hanganga anake.

Ka roa pea te tukanga whakatau, ā, ka hiahia pea koe ki te kite i ngā tohunga penei i ngā neurologists e whai wheako ana ki ngā mate nekehanga. Kaua e pouri ki te kore te whakatau i te wawe - ko te tirotiro ata o te āhua o ngā tohu i te wā te nuinga ka whakarato i te whakaahua mārama.

He aha te maimoatanga mō te Palsy Supranuclear Pūmau?

I tēnei wā, kāore he rongoā mō te PSP, engari he maha ngā maimoatanga ka āwhina i te whakahaere i ngā tohu me te whakapai ake i te kounga ora. Ko te whakaaro e arotahi ana ki te whakautu i ngā raruraru motuhake i te wā e puta mai ana me te pupuri i te mahi mo te roa e taea ana.

Ko ngā rongoā e whakamahia ana mō te mate Parkinson i etahi wā ka whakarato i ngā painga iti, inā te nuinga mō ngā tāngata me te momo PSP-Parkinsonism. Heoi, ko te whakautu te nuinga he iti me te wa poto i te whakataurite ki te mate Parkinson noa.

He mahi nui te whakaora tinana ki te pupuri i te nekehanga me te aukati i ngā hinga. Ka taea e tō kaiwhakaora te whakaako i a koe i ngā whakakori motuhake hei whakapai ake i te tū, te whakapakari i ngā uaua, me te pupuri i te ngawari. Ka āwhina hoki rātou i a koe ki te ako i ngā rautaki nekehanga ora.

Ka nui te mahi a te whakaora kōrero i te wā e whanake ana ngā raruraru kōrero, ngā raruraru horomi rānei. Ka taea e te kaiwhakaora kōrero te whakaako i ngā tikanga hei kōrero mārama ake me te horomi haumaru ake, ka taea pea te aukati i ngā raruraru penei i te mate huango.

Ka āwhina te whakaora mahi i a koe ki te whakarite i ngā mahi o ia rā me tō taiao noho hei whakarite ki ngā kaha e huri haere ana. Ka āhei pea tenei ki te tūtohutia ngā taputapu tautoko, te whakarite rānei i tō kāinga mō te ora.

Mō ngā tohu motuhake ake, he maimoatanga e wātea ana. Ka āhei pea te awhina i ngā raruraru nekehanga kanohi me ngā karā motuhake, ngā whakakori kanohi rānei. Ka taea pea te whakapai ake i ngā raruraru moe me ngā tikanga moe hauora, ngā rongoā rānei.

Me pēhea te whakahaere i te Palsy Supranuclear Pūmau i te kāinga?

Ko te hanga i te taiao kāinga ora me te tautoko ka taea te whakarereke nui i te whakahaere i ngā tohu PSP. Tīmata ma te tango i ngā tūponotanga hinga penei i ngā moenga ngawari, te whakapai ake i te mārama, te tāuta rānei i ngā paepae hopu i roto i ngā ruma kaukau me ngā arawhata.

Whakatūria ngā mahi o ia rā e mahi ana me ō tohu, ehara i te whakaheke. He maha ngā tāngata e kite ana he pai ake tō rātou tū me te kaha i ētahi wā o te rā, na te whakarite i ngā mahi nui i ēnei wā tiketike.

Mō ngā raruraru horomi, arotahi ki te kai ngāwari me te whiriwhiri i ngā kai me ngā hanganga tika. Ka taea pea te whakahaere haumaru i ngā wai mātotoru, i ngā kai ngawari rānei. Kai tonu i te noho tika me te karo i ngā whakaoho i te wā kai.

Noho hei mahi tinana e taea ana e tō āhuatanga. Ahakoa ngā whakakori ngāwari penei i te hikoi, te whakatete, ngā whakakori noho rānei ka āwhina i te pupuri i te kaha me te ngawari. Whakarite tonu i te ora me te whakaaro ki te whakamahi i ngā taputapu tautoko i te wā e hiahiatia ana.

Pupuri i ngā hononga pāpori me te whakauru ki ngā mahi e pai ana koe, te whakarite rānei i te wā e hiahiatia ana. Ka āhei pea tenei ki te whakamahi i ngā pukapuka reo i te pānui, te kimi rānei i ngā mahi hou e mahi ana me ō kaha o nāianei.

Kaua e whakaroa ki te tono awhina ki ngā mahi o ia rā. Ko te whakaae ki te awhina ehara i te tuku - he mohio ki te tiaki i te kaha mō ngā mea nui rawa atu ki a koe.

Me pēhea te whakarite mō tō hui tākuta?

I mua i tō hui, tuhia katoa ō tohu, tae atu ki te wā i tīmata ai rātou me te āhua o te huringa i te wā. Kia tino mōhio ki te mea kua kitea e koe - ahakoa ngā kōrero iti ka nui ki te whakatau.

Kawe mai i te rārangi katoa o ngā rongoā katoa e inu ana koe, tae atu ki ngā rongoā ka hokona me ngā tāpiri. Whakaritea hoki he rārangi o ētahi atu āhuatanga hauora kei a koe me tō hītori hauora whānau.

Whakaarohia te kawe mai i te mema whānau, i te hoa rānei kua kite i ō tohu. Ka kite pea rātou i ngā mea kua ngaro e koe, te āwhina rānei i a koe ki te mahara ki ngā kōrero nui i te wā o te hui.

Whakaritea ngā pātai i mua. Ka hiahia pea koe ki te ui mō te tukanga whakatau, ngā kōwhiringa maimoatanga, te mea e tatari ana koe i te whakawhānui o te āhuatanga, ngā rauemi rānei mō te tautoko me ngā mōhiohio.

Ki te taea, kawe mai i ngā rēkōta hauora o mua, i ngā hua whakamātau rānei e pā ana ki ō tohu. Ka taea tenei te āwhina i tō tākuta ki te mārama ki tō hītori hauora me te karo i te whakahoki i ngā whakamātau kaore e hiahiatia.

He aha te mea nui mō te Palsy Supranuclear Pūmau?

He āhuatanga wero te PSP, engari ko te mārama ki a ia ka manaaki koe ki te whakatau i ngā whakatau mō tō tiaki. Ahakoa kāore he rongoā i tēnei wā, he maha ngā maimoatanga me ngā rautaki ka taea te āwhina i te whakahaere i ngā tohu me te pupuri i te kounga ora.

Ko te mea nui rawa atu kia mahara ko te PSP e pā ana ki te tangata katoa. Kāore pea tō wheako e rite ki te mea e pānui ana koe, ki te mea rānei e whakaatu ana ētahi atu. Arotahi ki ō tohu ake me te mahi tahi me tō rōpū hauora hei whakautu i ō hiahia motuhake.

Ko te whakatau wawe me te whakauru ka taea te whakarereke pono i te whakahaere i te āhuatanga. Kaua e whakaroa ki te rapu awhina hauora ki te pā ana koe ki ngā tohu āwangawanga, kaua hoki e whakaroa ki te rapu i ngā whakaaro tuarua ki te hiahiatia.

Ko te hanga i te whatunga tautoko kaha o te whānau, o ngā hoa, o ngā tohunga hauora he mea nui. Kāore te PSP he haerenga e hiahia ana koe ki te tūtaki kotahi, ā, he maha ngā rauemi e wātea ana hei āwhina i a koe me ō tāngata aroha ki te whakahaere i ngā wero kei mua.

Ngā pātai e ui pinepinetia ana mō te Palsy Supranuclear Pūmau

Q1: E hā roa ngā tāngata e ora ana me te Palsy Supranuclear Pūmau?

Ko te whānuitanga o te PSP he rerekē nui i waenganui i ngā tāngata, engari ko te nuinga o te iwi e ora ana i te 6-10 tau i muri i te tīmatanga o ngā tohu. Ka taea e ētahi tāngata te whānuitanga ngāwari ake me te ora roa ake, engari ko ētahi atu ka taea te whānuitanga tere ake. Ko te mea nui ko te arotahi ki te kounga ora me te whakamahi i tō wā me te tiaki hauora tika me te tautoko.

Q2: He ira te Palsy Supranuclear Pūmau?

Ko te PSP he mea onge te whakawhitia. Ko te iti iho i te 1% o ngā take he whānau, ko te tikanga ka rere i roto i ngā whānau. Ko te nuinga o ngā take ka puta mai i te koretake kaore he hītori whānau. Ko te whai whānau me te PSP kāore e nui te piki o tō tūponotanga ki te whanake i te āhuatanga.

Q3: Ka taea te pohehe i te Palsy Supranuclear Pūmau ki ētahi atu āhuatanga?

Ae, ko te PSP te nuinga ka whakatau he i te tuatahi he mate Parkinson, he mate Alzheimer, he mate nekehanga rānei, no te mea ka taea te taupokina ngā tohu. Ko ngā raruraru nekehanga kanohi motuhake me te tauira hinga te nuinga ka āwhina i ngā tākuta ki te wehewehe i te PSP i ētahi atu āhuatanga i te wā.

Q4: He maimoatanga hou kei te rangahautia mō te PSP?

He maha ngā maimoatanga whakaari kei roto i ngā whakamātau hauora, tae atu ki ngā rongoā e arotahi ana ki te whakarahi o te pūtau tau me ngā tikanga e arotahi ana ki te tiaki i ngā pūtau roro. Ahakoa kāore he maimoatanga whakaharahara e wātea ana i tēnei wā, ko te rangahau haere tonu e whakarato ana i te tumanako mō ngā kōwhiringa whakahaere pai ake i te wā kei te heke mai.

Q5: Ka taea e ngā huringa ora te āwhina ki ngā tohu PSP?

Ahakoa kāore ngā huringa ora e taea te whakaheke i te whānuitanga PSP, ka taea e rātou te whakapai ake i te kounga ora. Ko te whakaora tinana noa, te pupuri i ngā hononga pāpori, te kai i te kai kai hauora, te hanga rānei i te taiao kāinga ora katoa e āwhina ana ki te whakahaere i ngā tohu me te pupuri i te motuhake mo te roa e taea ana.