He aha te pānga Pseudobulbar? Ngā tohu, ngā take, me te rongoā

Ko te pānga Pseudobulbar he āhuatanga neurological e pā ana ki te tupu o ngā wāhanga o te kata, te tangi rānei, kāore e rite ki te mea e mōhiotia ana e koe i roto. Āta waiho atu pea koe e kata ana i te wā e mataku ana koe, te tangi rānei ahakoa kāore he mea whakamataku.

Ka pā tēnei āhuatanga ki te kaha o te roro ki te whakahaere tika i ngā whakaaturanga o ngā kare-a-roto. Ahakoa he noa ngā kare-a-roto o roto, ka whakapohehe te whakaaturanga o waho, ka hangaia ai ngā wāhanga ka raru, ka whakama hoki.

He aha te pānga Pseudobulbar?

Ka puta te pānga Pseudobulbar ina pakaru, kīhai rānei i te mahi tika ngā ara o te roro e whakahaere ana i te whakaatu o ngā kare-a-roto. Whakaarohia he wīra kīhai i te tika i roto i te pokapū whakahaere kare-a-roto o tō roro.

E mohiotia ana hoki tēnei āhuatanga ko te mate whakaatu kare-a-roto kore-whakahaere, te kore-manaaki kare-a-roto rānei. He tino kore-whakahaere enei wāhanga, arā, kāore koe e whakahaere i te wā e tīmata ai, e mutu ai rānei.

Ko te mea e wero ana i tēnei āhuatanga ko te kore e rite ngā kare-a-roto pono ki tō whakaatu o waho. Pea ka puta mai ngā roimata i a koe ahakoa kei te pai koe, te kata rānei i te wā o te kōrero nui.

He aha ngā tohu o te pānga Pseudobulbar?

Ko ngā tohu matua ko ngā putanga ohorere o ngā kare-a-roto e kore e rite ki ō kare-a-roto pono. Ka raru, ka whakama hoki ēnei wāhanga.

Ko ēnei ngā mea pea ka pā ki a koe i ēnei wāhanga:

• Te tangi ohorere, kaha, e toru meneti te roa
• Te kata kore-whakahaere i ngā wā e tika ana
• Ngā putanga o ngā kare-a-roto e whakaohoohotia ana e ngā mea iti
• Ngā wāhanga e tino kore-whakahaere ana
• Te tangi, te kata rānei kāore e rite ki tō ngakau pono
• Te uaua ki te mutu i te wāhanga ina tīmata
• Te whakama, te riri rānei i muri i ngā wāhanga

Ko te tikanga ka roa ēnei wāhanga mai i ngā hēkona torutoru ki ngā meneti maha. Ka tino ngenge koe i muri mai, ahakoa kāore i huri tō ngakau.

He aha ngā take o te pānga Pseudobulbar?

Ka tupu te pānga Pseudobulbar ina pakaru etahi wāhanga o tō roro e whakahaere ana i te whakaatu o ngā kare-a-roto. Ka whakakore tēnei pakaru i te whakawhitiwhiti korero noa i waenganui i ngā wāhanga roro rerekē.

Ko te tikanga ka puta tēnei āhuatanga me ētahi atu āhuatanga neurological e pā ana ki te mahi o te roro. Tā te titiro ki ngā take maha, mā te tīmata i ngā mea tino noa.

Ngā āhuatanga taketake noa

• Te pēhanga - ko ngā pēhanga e pā ana ki te pūtake roro, ngā wāhanga o mua rānei

Te mate amyotrophic lateral sclerosis (ALS, te mate a Lou Gehrig rānei)

Te mate maha sclerosis (MS)

Te whara o te roro mai i ngā aituā, ngā hinga rānei

Te mate Alzheimer me ētahi atu momo mate dementia

Te mate Parkinson

Ngā take iti ake te noa

Ahakoa iti ake te noa, ka taea hoki e ētahi atu āhuatanga te arahi ki te pānga Pseudobulbar:

• Ngā pūngāwerewere o te roro e pā ana ki ngā pokapū whakahaere kare-a-roto
• Te mate Huntington
• Te mate Wilson
• Te mate supranuclear pūngāwerewere
• Ētahi mate huaketo e pā ana ki te roro
• Te pouri nui me ngā āhuatanga psychotic

Ko te take matua ko te mea kua whakakore i ngā huringa roro noa e whakahaere ana i te whakahaere kare-a-roto. Ka hangaia e tēnei whakakore te wehe i waenganui i te mea e mōhiotia ana e koe me te āhua o te whakaatu i aua kare-a-roto.

Nōhea te haere ki te taote mō te pānga Pseudobulbar?

Me whakapiri atu koe ki tō kaiwhakarato hauora mēnā ka pā ki a koe ngā putanga ohorere, kore-whakahaere o ngā kare-a-roto kāore e rite ki ō kare-a-roto pono. Ka taea e te aromatawai wawe te awhina i te kimi i te take taketake me te whakarato i te whakaora.

Rapua te tiaki hauora mēnā ka kite koe i ēnei tauira:

• Ngā wāhanga tangi, kata rānei e tupu ana i ngā wā maha ia wiki
• Ngā putanga o ngā kare-a-roto e whakakore ana i te mahi, ngā whanaungatanga, ngā mahi o ia rā rānei
• Ngā wāhanga e tino whakama ana, te wehe whakahaere rānei
• Te tīmatanga ohorere o ēnei tohu, ina koa i muri i te pēhanga, te whara o te upoko rānei
• Ngā wāhanga kare-a-roto e haere tahi ana me ētahi atu tohu neurological

Mēnā kei a koe tētahi āhuatanga neurological kei te tupu, whakamārama atu ki tō taote i tō hui e whai ake nei. Ka taea e rātou te aromatawai mēnā he pānga Pseudobulbar te take o tō wheako.

He aha ngā take morearea mō te pānga Pseudobulbar?

Ka piki tō morearea mō te whanake i te pānga Pseudobulbar mēnā kei a koe ētahi āhuatanga neurological taketake. He mea nui hoki te tau me ngā whara motuhake o te roro.

Ko ngā take morearea matua ko ēnei:

• Te whiwhi i te pēhanga, ko ngā pēhanga maha
• Te whakatau i te ALS, te mate maha sclerosis, te mate Parkinson rānei
• Te whara o te roro
• Te pakeke neke atu i te 65, ina ka noa ake ngā āhuatanga neurological
• Te whiwhi i te mate dementia, te mate Alzheimer rānei
• Te hītori o ngā mate o te roro, ngā pūngāwerewere rānei

He mea tika te kōrero ko te pānga Pseudobulbar e pā ana ki ngā tāne me ngā wāhine. Ka taea te whanake i tēnei āhuatanga i tetahi tau, ahakoa he tino noa i ngā pakeke pakeke nā te nui o ngā āhuatanga neurological taketake.

He aha ngā raruraru pea o te pānga Pseudobulbar?

Ahakoa kāore te pānga Pseudobulbar e mate ai, ka taea e ia te pā kino ki tō kounga ora me ō whanaungatanga. Ko te āhua kore-whakaaro o ngā wāhanga e ārahi ana ki ngā wero pāpori me ngā kare-a-roto.

Ko ēnei ngā raruraru noa pea ka pā ki a koe:

• Te wehe pāpori me te motu nā te whakama
• Ngā whanaungatanga pakaru me te whānau me ngā hoa
• Te uaua ki te pupuri i te mahi, te haere rānei ki ngā huihuinga pāpori
• Te piki o te awangawanga mō te wā e puta mai ai ngā wāhanga
• Te pouri mai i te ngakau kore-whakahaere
• Te iti o te whakawhirinaki ki a koe me te whakaaro nui ki a koe

Ka taea e ēnei raruraru te hanga i te huringa ka kaha ake, ka nui ake rānei ngā wāhanga nā te ahotea o te whiwhi i te pānga Pseudobulbar. Heoi, me te rongoā tika me te tautoko, ka taea e te nuinga o te iwi te whakahaere pai i ēnei wero.

Me pēhea te whakatau i te pānga Pseudobulbar?

Ko te whakatau i te pānga Pseudobulbar e whai ana ki te arotake tika i ō tohu me tō hītori hauora. Ka hiahia tō taote ki te mōhio ki te tauira o ō wāhanga kare-a-roto me te whakakore i ētahi atu āhuatanga.

Ko te tukanga whakatau e whai ana i ngā kaupae maha:

1. Te kōrero taipitopito o ō tohu me te wā e puta mai ai
2. Te arotake i tō hītori hauora, ko ngā āhuatanga neurological
3. Te whakamātautau tinana me te neurological
4. Ngā whakamātautau whakaahua roro pēnei i te MRI, te CT scan rānei mēnā e hiahiatia ana
5. Te aromatawai hinengaro ki te whakakore i te pouri, ētahi atu mate ngakau rānei

Pea ka whakamahi tō taote i ngā patai whaimana ki te aromatawai i te auau me te pānga o ō wāhanga. Ka hiahia hoki rātou ki te mōhio ki te āhua o te pānga o ēnei wāhanga ki tō oranga o ia rā me ō whanaungatanga.

Ko te mea nui ko te wehe i te pānga Pseudobulbar i ngā whakautu kare-a-roto noa, ngā mate ngakau rānei. Kāore i rite ki te pouri, ka noho pumau tō ngakau ahakoa kua whakakorehia tō whakaatu kare-a-roto.

He aha te rongoā mō te pānga Pseudobulbar?

Ko te rongoā mō te pānga Pseudobulbar e aro ana ki te whakaiti i te auau me te kaha o ngā wāhanga kare-a-roto. He maha ngā rongoā whai hua kei te wātea, a, he maha ngā tangata e kite ana i te whakapai ake nui me te rongoā tika.

Ngā kōwhiringa rongoā

Ko ngā rongoā tino tohu ko ēnei:

• Dextromethorphan/quinidine (Nuedexta) - he mea whakaae motuhake mō te pānga Pseudobulbar
• Ngā kaiwhakaora serotonin reuptake (SSRIs) pēnei i te sertraline, te citalopram rānei
• Ngā kaiwhakaora pouri tricyclic i ētahi wā
• Ngā kaiwhakaora anticonvulsants pēnei i te lamotrigine mō ētahi manuhiri

Ka mahi tahi tō taote me koe ki te kimi i te rongoā me te horopeta tika. He maha ngā tangata e kite ana i te whakapai ake i roto i ngā wiki torutoru i te tīmatanga o te rongoā, ahakoa pea ka roa te wā ki te kimi i te huarahi tino whai hua.

Ngā rautaki kore-rongoā

Me te rongoā, ka taea e ētahi atu huarahi te awhina i a koe ki te whakahaere i ngā wāhanga:

• Te ako i ngā tikanga manawa ki te awhina i te whakahaere i ngā wāhanga
• Te kimi me te karo i ngā mea whakaohooho mēnā e taea ana
• Te tohutohu ki te whakawhanake i ngā rautaki whakahaere
• Ngā rōpū tautoko mō te iwi me ngā wheako rite
• Ngā tikanga whakaiti ahotea pēnei i te whakaaroaro, te yoga rānei

Ko te tikanga o te rongoā ko te whakahaere i te pānga Pseudobulbar me tetahi atu āhuatanga neurological. Ka whakahaere tahi tō rōpū hauora i te tiaki kia pai te whakahaere i ngā āhuatanga katoa o tō hauora.

Me pēhea te tango i te rongoā kāinga i te wā o te pānga Pseudobulbar?

Ko te whakahaere i te pānga Pseudobulbar i te kāinga e whai ana ki te whakawhanake i ngā rautaki ki te whakahaere i ngā wāhanga me te whakaiti i tō pānga ki tō oranga o ia rā. Ka taea e te huarahi tika te awhina i a koe ki te ngākau nui ake me te whakawhirinaki.

Ko ēnei ngā rautaki mahi e kitea ana e te tini o te iwi he whai hua:

I ngā wāhanga

• Tangohia ngā manawa hohonu, ngāwari ki te awhina i te whakahaere i tō whakautu
• Whakamātauria te huri i tō tūnga tinana, tō taiao rānei
• Whakamahia ngā tikanga whakakapi pēnei i te tatau, te aro atu rānei ki ngā mea kei tō taha
• Whakamahara ki a koe ka mutu te wāhanga
• Kaua e whawhai ki te wāhanga, ka taea hoki e tēnei te roa ake

Te whakahaere o ia rā

• Pupuri i te puka o ngā wāhanga ki te kimi i ngā tauira, ngā mea whakaohooho rānei
• Pupuri i ngā wā moe me ngā wā kai noa
• Whakamahia ngā tikanga whakaiti ahotea i ia rā
• Noho hono atu ki ngā hoa tautoko me te whānau
• Tangohia ngā rongoā i te mea i tohua, ahakoa kei te pai ake koe

Kia mahara ko te whiwhi i te pānga Pseudobulbar kāore e whakaatu i tō ahua, tō pumau ngakau rānei. He āhuatanga hauora tēnei e whakautu pai ana ki te rongoā, a, ka taea e te nuinga o te iwi te ako ki te whakahaere pai.

Me pēhea te whakarite mō tō hui taote?

Ko te whakarite mō tō hui ka taea te awhina i te whakarite kia whiwhi koe i te whakatau tika me te mahere rongoā whai hua. Ko te kawe mai i ngā korero taipitopito mō ō tohu ka awhina i tō taote ki te mōhio pai ake ki tō wheako.

I mua i tō hui, kohikohia ēnei korero:

• Rārangi o ngā rongoā me ngā taapiri katoa
• Ngā rēhita o te wā e puta mai ai ngā wāhanga me ngā mea pea e whakaohooho ana i a rātou
• Te whakaahuatanga o te āhua o ngā wāhanga me te roa o te roa
• Ngā korero mō ētahi huringa hou ki tō hauora
• Rārangi o ngā pātai, ngā āwangawanga rānei e hiahia ana koe ki te kōrero

Whakaarohia te kawe mai i tētahi mema o te whānau, tētahi hoa rānei i kite i ō wāhanga. Ka taea e rātou te whakarato i te tirohanga atu e āhei ana ki te aromatawai a tō taote.

Tuhia ngā tauira motuhake o ngā wāhanga hou, tae atu ki te mea i mahi koe, te āhua o tō ngakau, me te āhua o te whakautu a ētahi atu. Ka taea e ēnei korero motuhake te awhina i tō taote ki te mōhio pai ake ki tō wheako.

He aha te mea nui mō te pānga Pseudobulbar?

Ko te pānga Pseudobulbar he āhuatanga neurological e taea te rongoā e pā ana ki ngā putanga kare-a-roto kore-whakahaere. Ahakoa ka whakama, ka whakakore hoki ēnei wāhanga, he rongoā whai hua kei te wātea ki te awhina i a koe ki te whakahoki mai i te mana.

Ko te mea nui rawa atu kia mahara ko tēnei āhuatanga kāore e whakaatu i tō pumau ngakau, tō ahua rānei. He take hauora tēnei e puta mai ana i ngā huringa i te mahi o te roro, a, ka whakautu pai ki te rongoā tika.

Me te whakakotahitanga tika o te rongoā, ngā rautaki whakahaere, me te tautoko, ka taea e te nuinga o te iwi me te pānga Pseudobulbar te whakaiti nui i ō tohu me te whakapai ake i tō kounga ora. Kaua e whakaroa ki te whakapiri atu ki ngā kaiwhakarato hauora e taea te awhina i a koe ki te whakawhanake i te mahere rongoā whai hua.

Ngā Pātai Nui e ui ana mō te pānga Pseudobulbar

He rite te pānga Pseudobulbar ki te kore-pumau ngakau?

Kāo, ko te pānga Pseudobulbar he āhuatanga neurological, kāore he mate ngakau, he mate hinengaro rānei. Ka noho noa tonu ō kare-a-roto, tō ahua rānei. E pā ana tēnei āhuatanga ki te āhua o te whakahaere a tō roro i te whakaatu o waho o ngā kare-a-roto, ka hangaia ai te wehe i waenganui i te mea e mōhiotia ana e koe i roto me te āhua o te kite atu ki ētahi atu.

Ka taea te whakaora katoa i te pānga Pseudobulbar?

Ahakoa kāore he rongoā mō te pānga Pseudobulbar, ka taea te whakahaere pai me te rongoā tika. He maha ngā tangata e kite ana i te whakaiti nui i te auau me te kaha o ngā wāhanga me te rongoā. Ko te whāinga ko te awhina i a koe ki te whakahoki mai i te mana ki tō whakaatu kare-a-roto me te whakapai ake i tō kounga ora.

Ka mōhiotia e tō whānau me ō hoa te mea kei te puta ki a koe?

Ko te mātauranga te kī ki te awhina i ngā aroha ki te mōhio ki te pānga Pseudobulbar. He maha ngā tangata kāore i rongo i tēnei āhuatanga, no reira ko te whakamārama ko te take hauora tēnei e pā ana ki te mahi o te roro ka taea te awhina i a rātou ki te whakautu tautoko atu. Whakaarohia te tuhi i ngā korero pono mō tēnei āhuatanga ki te whānau tata me ngā hoa.

Kia tere rawa pea te mahi o te rongoā?

Ka tīmata te nuinga o te iwi ki te kite i te whakapai ake i roto i ngā wiki 2-4 i te tīmatanga o te rongoā, ahakoa pea ka roa ngā marama ki te kimi i te huarahi rongoā tino whai hua. He maha ngā tangata e kite ana i te whakapai ake nui i te tere, ētahi atu e hiahia ana ki te wā ki te whakarite i ngā rongoā, ki te whakawhanake rānei i ngā rautaki whakahaere. Kia manawanui ki te tukanga me te mahi tata atu ki tō rōpū hauora.

Ka taea e te ahotea te kino ake i ngā wāhanga pānga Pseudobulbar?

Ae, ka taea e te ahotea me te ngenge te kaha ake, te nui ake rānei i ngā wāhanga. Koia te take he mea nui ngā tikanga whakahaere ahotea, te moe noa, me te pupuri i te hauora whānui hei wāhanga o te whakahaere i tēnei āhuatanga. Ko te ako ki te mohio me te whakahaere i te ahotea ka taea te awhina i te whakaiti i te pānga o te pānga Pseudobulbar ki tō oranga o ia rā.