He aha te Pyoderma Gangrenosum? Ngā Tohutohu, Ngā Take, me te Maimoatanga

Ko te pyoderma gangrenosum he mate kiri onge e puta ai ngā wheka mamae, hohonu rānei ki tō kiri. Ahakoa tōna ingoa, ehara i te mea he mate pāngia, he mate kōroke rānei – he mate mumura tēnei e whakaeke kinotia ai e tō pūnaha ārai te kiri hauora.

E pā ana tēnei mate ki te 1 o te 100,000 o te iwi ia tau, ā, ahakoa he wehi te kite, ka taea e te mārama ki te mea kei te pēhea te awhina i a koe kia nui ake te mana. Ko te rongo pai, mā te maimoatanga tika, ka taea e te nuinga o te iwi te whakahaere pai i ō rātou tohutohu, ka kite i te whakapai ake nui.

He aha te Pyoderma Gangrenosum?

Ko te pyoderma gangrenosum he mate kiri mumura e noho ana ki roto i te rōpū o ngā āhuatanga e kiia nei ko ngā dermatoses neutrophilic. Ka nui haere te mahi a tō pūnaha ārai, ka tīmata te whakaeke i ngā pūtau kiri ake, ka hanga ai i ngā whara mamae ka tere te tipu.

Ko te tikanga ka tīmata te āhuatanga hei pupuhi iti, ngawari rānei, ka tere te pakaru ki ngā wheka hohonu, mamae. He taha koretake, koretake ngā taha o ēnei wheka e puta mai ana he puru, he kikorangi rānei te tae i te taha. Ko te pokapū o te wheka he rite ki te kiri whero, mata.

Ko te mea e wero ana i tēnei āhuatanga ko te puta mai ohorere, tere te horapa. Kāore ēnei wheka e ora ake me ngā whara noa – ko te tikanga, ko te whara ki te kiri, tae atu ki te pokanga, te tiaki whara kaha rānei, ka kaha ake te kino mā te tukanga e kiia nei ko te pathergy.

He aha ngā Tohutohu o te Pyoderma Gangrenosum?

Ka rerekē ngā tohutohu o te pyoderma gangrenosum i runga i te momo me te kaha o tō āhuatanga. Ko te nuinga o te iwi ka kite tuatahi i ngā pūngāwerewere iti, mamae e tere te whanake ki tetahi mea nui ake.

Ko ēnei ngā tohutohu matua ka pā pea ki a koe:

• Ngā whara kiri mamae - Ko te mamae he kaha tonu, he nui atu i te mea ka tumanakohia e koe i te rahi o te whara
• Ngā wheka e horapa haere ana - Ka taea e ngā pūngāwerewere iti te tipu ki te maha o ngā inihi i roto i ngā rā, wiki rānei
• Ngā taha o te whara koretake, koretake - He puru, he kikorangi, he violaceous te tae o ngā taha, ka horapa ki raro i te kiri noa
• Te pokapū whara whero, mata - He granular te ahua o te turanga o te wheka, ka ngāwari te toto
• Te mumura o te kiri e karapoti ana - Ka whero pea te rohe e karapoti ana i te wheka, pupū, mamae hoki
• Ngā whara maha - Ka whanake pea koe i te maha o ngā wheka i te wa kotahi, i te wa roa rānei
• Pathergy - Ka puta mai pea ngā whara hou i ngā wāhi o te whara iti, tae atu ki ngā wāhi whakauru, pokanga rānei

Ko te mamae e hono ana ki te pyoderma gangrenosum ko te tohutohu tino raruraru. Ko te nuinga o te iwi e whakaatu ana he mamae nui, pupuhi, ka tahuna rānei e pā kino ana ki ō rātou mahi o ia rā me te moe.

He aha ngā Momo o te Pyoderma Gangrenosum?

Ka puta te pyoderma gangrenosum i roto i ngā momo rerekē, he āhuatanga ake tōna. Ko te mārama ki te momo kei a koe ka awhina i tō tākuta ki te whiriwhiri i te huarahi maimoatanga tino pai.

Ko ēnei ngā momo matua:

• Momo Wheka (Momo Noa) - Ko te momo tino noa, he wheka hohonu, mamae ngā taha koretake, koretake
• Momo Pustular - Ka puta hei wheka papa i karapotitia e ngā pustules iti, ka kitea pea me te mate puku mumura
• Momo Bullous - Ka puta hei pupuhi papa e pakaru ana hei hanga i ngā ngoikoretanga papa, ka hono pea ki ngā mate toto
• Momo Vegetative - Ko te momo ngawari, ka puta hei wheka papa me te turanga granular, he iti te mamae

Ka tirotirohia e tō tākuta ngā whara kia mohio ai ki te momo kei a koe, na te mea ka pā tenei ki ngā āhuatanga e rapuhia ana, me te rautaki maimoatanga ka pai rawa mōu.

He aha ngā Take o te Pyoderma Gangrenosum?

Kāore i tino mōhiotia te take pono o te pyoderma gangrenosum, engari e whakaponohia ana he hua mai i te whakautu pūnaha ārai koretake. Ka nui haere te mahi a te pūnaha tiaki o tō tinana, ka tīmata te whakaeke i te kiri hauora i te tiaki.

He maha ngā take ka āwhina ki te whanake i tēnei āhuatanga:

• Ngā mate ārai-whaiaro - Ngā āhuatanga penei i te mate pūmau rheumatoid, te mate puku mumura, te mate toto rānei
• Ngā take ira - He maha pea ngā tangata he āhuatanga ira ki te whanake i ngā mate kiri neutrophilic
• Te kore mahi o te pūnaha ārai - Ngā raruraru ki te mahi o ngā pūtau ārai me te whakawhitiwhiti
• Ngā whakaohooho mumura - Ka taea e ētahi rongoā, mate pāngia, te whara tinana rānei te whakaohooho i te āhuatanga i ngā tangata e pā ana

I ētahi wā, ka puta te pyoderma gangrenosum hei idiopathic, arā, kāore he take e kitea ana. Kāore tēnei e whakaatu ana he iti ake te pono, te maimoatanga rānei o te āhuatanga – ko te tikanga noa iho kua whanaketia e tō pūnaha ārai tēnei tauira whakautu kahore he whakaohooho marama.

Nōhea te Tiro ki te Tākuta mō te Pyoderma Gangrenosum?

Me rapu wawe koe i te tiaki hauora mēnā ka whanake koe i ngā wheka kiri mamae kāore e ora noa, ka kino haere rānei ahakoa te tiaki whara whanui. Ka taea e te tautuhi wawe me te maimoatanga te aukati i te āhuatanga mai i te whakawhānui, te hanga i te nui atu o te kino.

Whakapa atu ki tō kaiwhakarato hauora tonu mēnā ka pā atu ki a koe:

• Ngā wheka mamae e horapa haere ana - Ina koa mēnā ka nui ake te tipu i roto i ngā rā
• Te mamae nui - Te mamae e tino nui ana mō te rahi o te whara
• Ngā whara hou maha - Te whanake o te maha o ngā wheka i te wa kotahi, i te tere rānei
• Ngā tohu o te mate pāngia - Te kirika, te whero haere, te mahana, te pū rānei (ahakoa he uaua pea te wehe i tēnei mai i te āhuatanga ake)
• Ngā whara e kino haere ana me te maimoatanga - Ngā whara e nui ake ana, e mamae ake ana rānei ahakoa te tiaki whara tika

Kaua e tatari kia pai ake te āhuatanga. Ko te tikanga ka hiahia te pyoderma gangrenosum ki te maimoatanga hauora motuhake, kāore hoki e ora me te tiaki whara noa. Ko te tere o te tīmatanga o te maimoatanga tika, ko te pai ake o ō tūmanako ki te whakahaere pai i te āhuatanga.

He aha ngā Take Pāngia mō te Pyoderma Gangrenosum?

Ahakoa ka taea e te pyoderma gangrenosum te pā ki te tangata, he maha ngā take ka piki ake tō tūmanako ki te whanake i tēnei āhuatanga. Ka taea e te mārama ki ēnei take pāngia te awhina i a koe me tō tākuta kia tupato ki ngā tohu wawe.

Ko ēnei ngā take pāngia matua:

• Te mate puku mumura - E 50% pea o ngā tangata he pyoderma gangrenosum he mate Crohn, he mate ulcerative colitis rānei
• Te mate pūmau mumura - Ngā āhuatanga penei i te mate pūmau rheumatoid, te spondyloarthritis rānei
• Ngā mate toto - Ētahi leukemias, lymphomas, ētahi atu āhuatanga hematologic rānei
• Te tau - Ko te nuinga i roto i ngā pakeke 20-50 tau te pakeke, ahakoa ka puta i tetahi tau
• Te ira tangata - He iti te noa i roto i ngā wāhine i ngā tāne
• Te pokanga, te whara hou rānei - Ka taea te whakaohooho i te āhuatanga i ngā tangata e pā ana
• Ētahi rongoā - Ka taea e ētahi rongoā te piki ake o te pānga i ngā tangata e pā ana

Ko te whai i tetahi take pāngia, te maha rānei, kāore e whakaatu ana ka whanake pono koe i te pyoderma gangrenosum. Ko te nuinga o te iwi he mate pēnei kāore e pāngia e ngā raruraru kiri, ka whanake etahi atu i te pyoderma gangrenosum kahore he take pāngia e mohiotia ana.

He aha ngā Hua Ka Taea o te Pyoderma Gangrenosum?

Ahakoa ka taea te whakahaere pai i te pyoderma gangrenosum mā te maimoatanga tika, he mea nui te mārama ki ngā hua ka taea te puta, ina koa mēnā kāore i te maimoatia tika, tika rānei te āhuatanga.

Ko ēnei ngā hua matua ka pā pea ki a koe:

• Te tohutohu mau tonu - Ko te nuinga o ngā wheka hohonu ka waiho he tohutohu nui ahakoa te ora
• Ngā mate pāngia tuarua - Ka taea te pāngia e ngā wheka tuwhera e ngā pūtau pāngia, ka uaua ai te maimoatanga
• Te mamae roa - Ko ētahi tangata e pāngia ana e te mamae tonu ahakoa te ora o ngā wheka
• Te kore mahi - Ka taea e ngā wheka nui i ngā ringa, ngā waewae, ngā hononga rānei te whakamārama i te nekehanga me ngā mahi o ia rā
• Te pānga hinengaro - Ka taea e te ahua kitea me te mamae roa te pā ki te hauora hinengaro me te kounga o te ora
• Pathergy - Ngā whara hou e whanake ana i ngā wāhi o te whara iti, ngā tukanga hauora rānei

I ētahi wā onge, ka whanake pea ngā tangata i ngā hua kino nui penei i te ngaro o te kiko whānui e hiahia ana ki ngā hononga kiri, te mumura tinana kino rawa rānei. He onge ēnei hua kino nui ina tautuhia tika te āhuatanga, ka maimoatia wawe.

Ko te ki ki te aukati i ngā hua ko te mahi tata atu ki tō rōpū hauora ki te kimi i te mahere maimoatanga pai, me te whai tonu, ahakoa kei te pai ake koe.

Me pēhea te Tautuhi i te Pyoderma Gangrenosum?

Ka uaua pea te tautuhi i te pyoderma gangrenosum na te mea kāore he whakamātautau kotahi e whakau ana i te āhuatanga. Ka whakamahi tō tākuta i te whakakotahitanga o te tirotiro hauora, te hītori hauora, me ngā whakamātautau ki te whakakore i ētahi atu āhuatanga ka puta pea ngā tohu rite.

Ko te tukanga tautuhi ka whakauru pea:

• Te tirotiro tinana - Ka tirotirohia e tō tākuta ngā whara kiri, ka rapu i ngā āhuatanga tohutohu penei i ngā taha koretake, te tere o te whakawhānui
• Te arotake hītori hauora - Te kōrero mō ō tohutohu, te tīmatanga, ngā āhuatanga hono rānei
• Te biopsy kiri - Ka tangohia pea he tauira iti o te kiko ki te whakakore i ētahi atu āhuatanga penei i ngā mate pāngia, te mate pukupuku rānei
• Ngā whakamātautau toto - Ki te tirotiro i ngā āhuatanga mumura, ngā mate toto rānei
• Ngā tikanga whara - Ki te tautuhi i ngā mate pāngia ka uaua pea te āhuatanga
• Ngā rangahau whakaahua - Ka hiahiatia pea ki te aromatawai i te nui o te kiko e pā ana

Ka taea hoki e tō tākuta te whakamātautau mō ngā āhuatanga e hono ana ki te pyoderma gangrenosum, penei i te mate puku mumura, te mate pūmau rheumatoid rānei. Ka awhina tēnei huarahi whānui kia whiwhi koe i te maimoatanga tika.

Ko te tautuhi ka mahia pea i runga i te ahua tohutohu o ngā whara, tō rātou tere o te whakawhānui, me te whakakore i ētahi atu take pea. Ko te wheako o tō tākuta ki tēnei āhuatanga onge he mea nui mō te tautuhi tika.

He aha te Maimoatanga mō te Pyoderma Gangrenosum?

Ko te maimoatanga mō te pyoderma gangrenosum e aro ana ki te whakakore i te whakautu pūnaha ārai koretake e hanga ana i te āhuatanga, me te whakatairanga i te ora o te whara. Ko te tikanga ka whakauruhia ngā rongoā maha, me te manawanui, na te mea ka roa ngā wiki ki ngā marama te ora.

Ka whakauru pea tō mahere maimoatanga:

• Ngā corticosteroids topical - Ngā kirikiri, ngā hinu rānei e whakamahia ana tika ki ngā wheka
• Ngā corticosteroids pūnaha - Ngā steroids waha, whakauru rānei ki te whakaiti i te mumura puta noa i tō tinana
• Ngā rongoā immunosuppressive - Ngā rongoā penei i te cyclosporine, methotrexate, mycophenolate rānei ki te whakataurite i tō pūnaha ārai
• Ngā maimoatanga Biologic - Ngā rongoā hou penei i ngā kaiwhakakore TNF mō ngā take kino, ātete rānei
• Ngā kaiwhakakore calcineurin topical - Ngā rongoā penei i te tacrolimus ka taea te whakamahi ki te kiri
• Ngā whakauru intralesional - Ngā steroids, ētahi atu rongoā rānei e whakauruhia ana tika ki ngā taha o te wheka

Ka tīmata pea tō tākuta me tetahi rongoā, rua rānei, ka whakarite i tō maimoatanga i runga i tō whakautu. Ko ētahi tangata ka kite i te whakapai ake i roto i ngā rā, ka hiahia pea ētahi atu ki ngā wiki maha, ngā marama rānei ki te ora.

He mea nui te manawanui ki te maimoatanga, me te pupuri i te whakawhitiwhiti tata atu ki tō rōpū hauora. Ka hiahia pea rātou ki te whakamātautau i ngā whakakotahitanga rerekē o ngā rongoā ki te kimi i te mea pai rawa mō tō āhuatanga motuhake.

Me pēhea te Tango i te Maimoatanga Kāinga i te Wā o te Pyoderma Gangrenosum?

Ahakoa he mea nui te maimoatanga hauora mō te pyoderma gangrenosum, he maha ngā mea ka taea e koe te mahi i te kāinga ki te tautoko i te ora, ki te whakahaere i ō tohutohu. Ka mahi ēnei ine me ngā rongoā kua tohua e koe, ehara i te wāhi o rātou.

Koinei te huarahi ka taea e koe te awhina i a koe ki te ora:

• Te tiaki whara ngawari - Horoi ngawari ngā wheka me te otinga saline, kaua e horoi, te horoi kaha rānei
• Te tiaki mai i te whara - Whakamahia ngā kakahu ngawari, kaua e mau kakahu pīpī ka pa pea ki ngā whara
• Te whakahaere mamae - Tangohia ngā rongoā mamae kua tohua e rite ana ki te tohutohu, whakamahia ngā putea huka mēnā ka tūtohuhia
• Te kai tika - Kai kai tōtika me te pūmua tika ki te tautoko i te ora o te whara
• Noho makuku - Inu wai nui ki te awhina i tō tinana ki te ora, ki te tukatuka rongoā rānei
• Aukati i te whara - Kia tino tupato ki te aukati i ngā tapahi, ngā kōkō, ētahi atu whara rānei ka taea te whakaohooho i ngā whara hou
• Te whakahaere ahotea - Whakamahia ngā tikanga whakahāwea, na te mea ka kaha ake te ahotea i ngā āhuatanga mumura

Kia mahara kāore ngā wheka pyoderma gangrenosum e ora ake me ngā tapahi, ngā kōkō noa. Kaua e whakamātautau ki te kohi, te horoi kaha rānei i ngā wheka, na te mea ka kaha ake te kino mā te pathergy.

Pupuritia ō hui hauora katoa, tangohia ngā rongoā e rite ana ki te tohutohu, ahakoa kei te pai ake koe. Ka taea e te mutu o te maimoatanga wawe te arahi ki ngā whakaohooho o te āhuatanga.

Me pēhea te Whakamahere mō tō Hui Tākuta?

Ka taea e te whakamahere mō tō hui te awhina kia whiwhi koe i te tautuhi tika, te mahere maimoatanga pai rānei. Na te mea he onge te pyoderma gangrenosum, ko te whakarato i ngā korero taipitopito ka awhina i tō tākuta ki te whakatau pai mō tō tiaki.

I mua i tō hui, kohia ēnei korero:

• Te wa o ngā tohutohu - Nōhea i puta mai ngā whara, tō rātou tere o te tipu, me te huringa o te mamae
• Ngā whakaahua tuhinga - Tangohia ngā whakaahua mārama o ō whara mai i ngā kōrero rerekē ki te whakaatu i te whakawhānui
• Hītori hauora - Rārangihia ngā āhuatanga ārai-whaiaro, te mate puku mumura, te mate pūmau, ngā mate toto rānei
• Rārangi rongoā - Whakauruhia ngā rongoā tohutohu katoa, ngā rongoā-kore-tohutohu, ngā taapiri rānei
• Ngā maimoatanga o mua - Ngā mea kua whakamātautauhia e koe, me te whakautu o tō kiri
• Hītori whānau - Ngā whānau he mate ārai-whaiaro, mumura rānei
• Ngā tukanga hou - Ngā pokanga, ngā whakauru, te whara rānei e tata ana ki ngā rohe e pā ana

I te wā o te hui, kaua e whakaroa ki te uiui mō tō tautuhi, ngā kōwhiringa maimoatanga, me te mea ka tumanakohia. Ko te mārama ki tō āhuatanga ka awhina i a koe kia noho hei hoa mahi kaha i tō tiaki.

Mēnā kei te kite koe i tetahi tākuta hou, whakaarohia te kawe mai i te mema whānau, te hoa rānei ka taea te awhina ki te mahara ki ngā korero nui i te wā o te haerenga.

He aha te Tākutake Matua mō te Pyoderma Gangrenosum?

Ko te pyoderma gangrenosum he āhuatanga wero, engari ka taea te maimoatanga e hiahia ana ki te tiaki hauora tere, me te whakahaere tonu. Ahakoa ka tino nui te ahua i te wa tuatahi e whiwhi ai koe i te tautuhi, ka taea e te nuinga o te iwi te whakahaere pai i ō rātou tohutohu mā te maimoatanga tika.

Ko ngā mea tino nui hei mahara ko tēnei āhuatanga ehara i tō he, ehara i te mea he mate pāngia, ka taea te whakahaere pai mā te huarahi tika. Ko te tautuhi wawe me te maimoatanga ka hoatu ki a koe te tūmanako pai ki te aukati i ngā hua, ki te ora.

Mahi tata atu ki tō rōpū hauora, kia manawanui ki te tukanga maimoatanga, kaua hoki e whakaroa ki te tono tautoko ina hiahia koe. Mā te tiaki tika, ka taea e te nuinga o te iwi he pyoderma gangrenosum te pupuri i te kounga ora pai, ka kite i ō rātou wheka e ora ana.

Kia mahara ka roa te ora, ka rerekē te haerenga o te tangata ki tēnei āhuatanga. Aro atu ki te whai tonu i tō mahere maimoatanga, me te whakanui i ngā whakapaitanga iti i te huarahi.

Ngā Pātai Uiuinga Nui mō te Pyoderma Gangrenosum

U.1 He mate pāngia te pyoderma gangrenosum?

Kāo, ehara te pyoderma gangrenosum i te mate pāngia. Ahakoa he “pyoderma” tōna ingoa, ka taea te whakaaro he mate pāngia, ko tēnei āhuatanga he hua mai i tō pūnaha ārai ake e whakaeke ana i te kiri hauora. Kāore e taea te hopu mai i tetahi atu, kāore hoki e taea te horapa ki ētahi atu mā te pa.

U.2 E hia te roa o te ora o te pyoderma gangrenosum?

Ka rerekē te roa o te ora mai i te tangata ki te tangata, ka whakawhirinaki ki ngā take penei i te rahi me te hohonu o ō wheka, te tere o te tīmatanga o te maimoatanga, me te pai o tō whakautu ki ngā rongoā. Ko ētahi tangata ka kite i te whakapai ake i roto i ngā wiki, ka hiahia pea ētahi atu ki ngā marama maha o te maimoatanga. Ka tere pea te ora o ngā whara iti i kitea wawe atu i ngā wheka nui, kua whakatūria.

U.3 Ka hoki mai pea te pyoderma gangrenosum i muri i te maimoatanga?

Ae, ka taea te hoki mai o te pyoderma gangrenosum ahakoa te maimoatanga angitu. Koinei te take e tūtohu ana te nuinga o ngā tākuta ki te whai tonu i tētahi momo maimoatanga tiaki ahakoa te ora o ngā wheka. Ka rerekē te auau o te hoki mai, engari ko te noho tonu i ngā rongoā kua tohua, me te karo i te whara ki tō kiri ka taea te awhina i te whakaiti i te tūmanako o ngā whakaohooho.

U.4 He aha ngā mea me karo e au ki te aukati i te kino ake o te pyoderma gangrenosum?

Karohia te horoi whara kaha, te kohi i ngā whara, te whara koretake rānei ki tō kiri. Kaua e whakamahi i ngā antiseptics kino, kaua e horoi kaha i ngā wheka. Karohia hoki ngā pokanga, ngā tukanga rānei i te taha o ngā rohe e pā ana, na te mea ka taea e te whara te whakaohooho i ngā whara hou mā te pathergy. Kōrero tonu ki tō tākuta i mua i ngā tukanga hauora e whakaarohia ana.

U.5 Me kite ahau i tetahi tohunga mō te pyoderma gangrenosum?

Ae, ko te nuinga o te iwi he pyoderma gangrenosum e pai ana ki te kite i tetahi dermatologist he wheako ki tēnei āhuatanga onge. I runga i ngā āhuatanga e pā ana ki a koe, ka hiahia pea koe ki te kite i tetahi rheumatologist, gastroenterologist, hematologist rānei. Ko te huarahi rōpū te nuinga o te mahi pai mō te whakahaere i te āhuatanga kiri me ngā take hauora e hono ana.