Rhabdomyosarcoma

Ko te rhabdomyosarcoma he momo mate pukupuku onge e tīmata ana hei tipu o ngā pūtau i roto i ngā kiko ngawari. Ko ngā kiko ngawari e tautoko ana, e hono ana hoki i ngā whekau me ētahi atu wāhanga o te tinana. Ko te rhabdomyosarcoma te nuinga o te wā e tīmata ana i roto i te kiko uaua.

Ahakoa ka taea e te rhabdomyosarcoma te tīmata i nga wahi katoa o te tinana, he tino pea ka tīmata i roto i:

• Te rohe o te matenga me te kaki.
• Te pūnaha mimi, pēnei i te putea mimi.
• Te pūnaha whakaū, pēnei i te tara, te kopu me ngā hua.
• Ngā ringa me ngā waewae.

Ko te maimoatanga rhabdomyosarcoma te nuinga o te wā e whakauru ana i te pokanga, te chemotherapy me te rongoā radiation. Ko te maimoatanga e whakawhirinaki ana ki te wahi e tīmata ai te mate pukupuku, te nui o te tipu me te horapa atu rānei ki ētahi atu wāhanga o te tinana.

Kua tino pai ake te rangahau ki te whakamātautau me te maimoatanga i te tirohanga mō te hunga i whakamātautauhia ki te rhabdomyosarcoma. Kei te ora tonu te tokomaha o te iwi mo nga tau i muri i te whakamātautau rhabdomyosarcoma.

Ko ngā tohu me ngā pūāhua o te rhabdomyosarcoma e whakaū ana ki te wāhi i tīmata ai te mate pukupuku. Hei tauira, ki te mea kei te pito o te matenga, o te kaki rānei te mate pukupuku, ko ngā tohu pea:

• Te mamae o te mahunga.
• Te toto i roto i te ihu, i te korokoro, i ngā taringa rānei.
• Te roimata, te pupū, te pupuhi rānei o ngā kanohi. Ki te mea kei roto i te pūnaha mimi, i te pūnaha whakaputa uri rānei te mate pukupuku, ko ngā tohu pea:
• Te pupū, te toto rānei i roto i te weronga, i te tūturu rānei.
• Te raruraru ki te mimi me te toto i roto i te mimi.
• Te raruraru ki ngā nekehanga o te kopu. Ki te mea kei roto i ngā ringa, i ngā waewae rānei te mate pukupuku, ko ngā tohu pea:
• Te mamae pea i te wāhi e pā ana, ki te pēhi te mate pukupuku i ngā ngongo, i ētahi atu wāhi o te tinana rānei.
• Te pupuhi, te pupū rānei i te ringa, i te waewae rānei.

Kaore he uauatanga

Kāore i te mārama he aha te take o te rhabdomyosarcoma. Ka tīmata ina whanakehia e te pūtau kiko ngawari ngā huringa i roto i tōna DNA. Ko te DNA o te pūtau kei roto ngā tohutohu e kī ana ki te pūtau me aha.

I roto i ngā pūtau hauora, ka hoatu e te DNA ngā tohutohu hei tipu me te whakaputa i te tere i whakaritea. Ka kī ngā tohutohu ki ngā pūtau kia mate i te wā i whakaritea. I roto i ngā pūtau mate pukupuku, ka hoatu e ngā huringa o te DNA ngā tohutohu rerekē. Ka kī ngā huringa ki ngā pūtau mate pukupuku kia hanga he maha atu ngā pūtau tere. Ka taea e ngā pūtau mate pukupuku te noho ora tonu ina mate ngā pūtau hauora. Ka puta mai tēnei i te nui rawa o ngā pūtau.

Ka taea e ngā pūtau mate pukupuku te hanga i te kohinga e kiia nei he mate pukupuku. Ka taea e te mate pukupuku te tipu ki te whakaeke me te whakangaro i ngā kiko tinana hauora. I te wa, ka taea e ngā pūtau mate pukupuku te motu me te horapa ki ētahi atu wāhanga o te tinana. Ina horapa te mate pukupuku, ka kiia ko te mate pukupuku metastatic.

Ko ngā take ka piki ake pea te tūponotanga o te rhabdomyosarcoma ko ēnei:

• Te pakeke iti. Ko te nuinga o te wā ka puta te rhabdomyosarcoma ki ngā tamariki i raro iho i te 10 tau.
• Ngā mate pūngao i tukuna i te whānau. Ko te tino iti, kua honoa te rhabdomyosarcoma ki ngā mate pūngao ka tukuna e ngā mātua ki ngā tamariki. Kei roto i ēnei ko te neurofibromatosis 1, te mate Noonan, te mate Li-Fraumeni, te mate Beckwith-Wiedemann, me te mate Costello.

Kāore he huarahi hei ārai i te rhabdomyosarcoma.

Ngā raruraru o te rhabdomyosarcoma me tōna maimoatanga e whai ake nei:

• Te hora o te mate pukupuku. Ka hora te rhabdomyosarcoma i te wāhi i tīmata ai ki ētahi atu wāhanga o te tinana. Ki te hora te mate pukupuku, pea ka hiahiatia ngā maimoatanga kaha ake. Ka āhei tenei te whakapakari i te ora. Ko te nuinga o te hora o te rhabdomyosarcoma ki ngā pūkahukahu, ngā ngota lymph me ngā wheua.
• Ngā pānga taha roa. Ka taea e te rhabdomyosarcoma me ōna maimoatanga te whakaeke i ngā pānga taha maha, i te poto me te roa. Ka taea e tō rōpū hauora te āwhina i a koe ki te whakahaere i ngā pānga taha e puta ana i te wā o te maimoatanga. Ā, ka taea e te rōpū te hoatu he rārangi o ngā pānga taha hei titiro atu i ngā tau i muri i te maimoatanga.

Kaore he uauatanga

Ko te tātaritanga o te rhabdomyosarcoma e tīmata ana i te whakamātautau tinana. I runga i ngā hua, ka taea e te rōpū hauora te tūtohutanga atu i ētahi atu whakamātautau. Ka uru pea ēnei ki ngā whakamātautau whakaahua me te tukanga hei tango i te tauira o ngā pūtau hei whakamātautau.

Ka hanga e ngā whakamātautau whakaahua ngā pikitia o roto o te tinana. Ka āhei pea te whakaatu i te wāhi me te rāhi o te rhabdomyosarcoma. Ko ētahi whakamātautau pea ko:

• X-rays.
• CT scans.
• MRI scans.
• Positron emission tomography scans, e kiia ana hoki ko ngā PET scans.
• Bone scans.

He tukanga te biopsy hei tango i te tauira o te kiko hei whakamātautau i roto i te taiwhanga. Me mahi te biopsy mō te rhabdomyosarcoma i te huarahi e kore ai e pā te mahi tāpui i muri mai. Mō tēnei take, he whakaaro pai te rapu awhina i te pokapū hauora e kite ana i te tini o te iwi me tēnei momo mate pukupuku. Ka tīpako ngā rōpū hauora whai wheako i te momo biopsy pai rawa atu.

Ko ngā momo tukanga biopsy e whakamahia ana hei tātaritanga i te rhabdomyosarcoma ko:

• Needle biopsy. Ka whakamahi tēnei tikanga i te ngira hei tango i ngā tauira kiko mai i te mate pukupuku.
• Surgical biopsy. I etahi wā, ka hiahiatia pea te mahi tāpui hei tango i te tauira kiko nui ake.

Ka haere te tauira biopsy ki te taiwhanga hei whakamātautau. Ko ngā tākuta e ako ana i te toto me te kiko tinana, e kiia ana ko ngā pathologists, ka whakamātautau i ngā pūtau mō te mate pukupuku. Ka hoatu e ētahi atu whakamātautau motuhake ngā kōrero atu mō ngā pūtau mate pukupuku. Ka whakamahi to rōpū hauora i ēnei kōrero hei hanga i te mahere maimoatanga.

Ko te rongoā mo te rhabdomyosarcoma te nuinga o te wā he whakakotahitanga o te chemotherapy, te pokanga me te rongoā radiation. Ko wai nga rongoā ka tūtohuhia e tō rōpū hauora ka whakawhirinaki ki te wāhi o te mate pukupuku me te rahi o te mate pukupuku. Ka whakawhirinaki hoki te rongoā ki te tere o te tipu o ngā pūtau mate pukupuku, me te mea kua horapa te mate pukupuku ki ētahi atu wāhanga o te tinana. Ko te whāinga o te pokanga ko te tango i ngā pūtau mate pukupuku katoa. Engari ehara i te mea ka taea tonu tēnā mena kua tupu te rhabdomyosarcoma ki te taha o ngā whekau, ki te tata rānei. Ki te kore e taea e te taote te tango i ngā mate pukupuku katoa, ka whakamahi tō rōpū hauora i ētahi atu rongoā hei whakamate i ngā pūtau mate pukupuku pea kei te toe. Ka uru pea tēnā ki te chemotherapy me te radiation. Ka rongoā te chemotherapy i te mate pukupuku mā ngā rongoā kaha. He maha ngā rongoā chemotherapy kei reira. Ko te rongoā te nuinga o te wā he whakakotahitanga o ngā rongoā. Ko te nuinga o ngā rongoā chemotherapy ka hoatu mā te uaua. Ko ētahi kei te ahua o te pūnaha. Mō te rhabdomyosarcoma, ka whakamahia te chemotherapy i muri i te pokanga, i te rongoā radiation rānei. Ka āwhina pea i te whakamate i ngā pūtau mate pukupuku pea kei te toe. Ka taea hoki te whakamahi i te chemotherapy i mua i ētahi atu rongoā. Ka taea e te chemotherapy te whakaiti i te mate pukupuku kia ngāwari ai te mahi pokanga, i te rongoā radiation rānei. Ka rongoā te rongoā radiation i te mate pukupuku mā ngā kaupapa kaha o te kaha. Ka taea te puta mai o te kaha i ngā X-rays, i ngā protons, i ētahi atu puna rānei. I te wā o te rongoā radiation, ka takoto koe ki runga i tētahi tēpu i te wā e neke haere ana tētahi mīhini i tō taha. Ka ārahi te mīhini i te radiation ki ngā pūtake tika i tō tinana. Mō te rhabdomyosarcoma, ka tūtohu pea te rongoā radiation i muri i te pokanga. Ka āwhina pea i te whakamate i ngā pūtau mate pukupuku pea kei te toe. Ka taea hoki te whakamahi i te rongoā radiation hei whakakapi mō te pokanga. Ka pai pea te rongoā radiation ki te mea kei te wāhi te mate pukupuku kaore e taea te pokanga nā ngā whekau e tata ana. Ko ngā whakamātautau hauora ngā ako mō ngā rongoā hou. Ka homai e ēnei ako te wā hei tamata i ngā rongoā hou. Pea kaore i te mohiotia te tūponotanga o ngā pānga taha. Pātai atu ki tō kaimahi hauora mena ka taea pea koe te whai wāhi ki tētahi whakamātautau hauora. Ohauru kore utu ka whiwhi i tētahi aratohu hohonu ki te whakahaere i te mate pukupuku, me ngā korero whai hua mo te whiwhi i tētahi atu whakaaro. Ka taea e koe te whakakore i te ohaurunga i te hononga whakakore i roto i te īmēra. Ka tae mai tō aratohu hohonu ki te whakahaere i te mate pukupuku ki tō pouakaroto i roto i te wa poto. Ka whiwhi hoki koe i... Ka taea e te whakatau o te rhabdomyosarcoma te arahi mai i ngā whakaaro maha. I te wā, ka kite koe i ngā huarahi hei whakahaere. Kia tae ra ano ki reira, pea ka āwhina ki te:

• Ako i ngā mea nui mō te rhabdomyosarcoma hei whakatau i ngā whakatau mō te tiaki. Pātai atu ki tō kaimahi hauora mō tēnei momo sarcoma, tae atu ki ngā kōwhiringa rongoā. Ka taea e te ako atu te awhina i a koe kia pai ake te mana. Ki te mate pukupuku tō tamaiti, pātai atu ki te rōpū hauora me pēhea te kōrero ki tō tamaiti mō te mate pukupuku.
• Kia tata tonu ngā hoa me te whānau. Ka taea e te pupuri i ngā tāngata tata te āwhina i a koe ki te whakahaere i te mate pukupuku. Ka taea e ngā hoa me ngā whānau te āwhina ki ngā mahi o ia rā, pēnei i te hokohoko, te tunu kai me te tiaki i tō kāinga.
• Pātai atu mō te tautoko hauora hinengaro. Ko te kōrero ki tētahi kaiāwhina, kaimahi pāpori hauora, tohunga hinengaro, i ētahi atu tohunga hauora hinengaro rānei ka āwhina pea hoki i a koe. Ki te mate pukupuku tō tamaiti, pātai atu ki tō rōpū hauora kia āwhina koe ki te kimi i te tautoko hauora hinengaro. Ka taea hoki e koe te tiro i runga i te ipurangi mō tētahi whakahaere mate pukupuku, pēnei i te American Cancer Society, e whakarārangi ana i ngā ratonga tautoko.

Kaore he uauatanga