He aha te Rhabdomyosarcoma? Tohutohu, Take, me te Maimoatanga

He aha te Rhabdomyosarcoma?

Ko te rhabdomyosarcoma tētahi momo mate pukupuku e whanake ana i roto i ngā kiko ngawari o tō tinana, ina koa i ngā kiko uaua. Ko te mate pukupuku kiko ngawari tino noa i ngā tamariki me ngā taitamariki, ahakoa ka pā pea ki ngā pakeke.

Ka hanga tēnei mate pukupuku ina tīmata ngā pūtau e whānau ana hei uaua koi ki te tipu haere kore mana. Whakaarohia ko ngā pūtau hanga uaua o tō tinana e whakawhiti ana ō rātou tohutohu, ā, e tupu ana i te wā e kore ai e tika.

Ahakoa ka rongo te kupu "sarcoma" he wehi, ko te tikanga noa iho tētahi mate pukupuku e tīmata ana i ngā kiko hono pēnei i te uaua, te wheua, te ngako rānei. Ko te rhabdomyosarcoma te wāhi e whai ana i te momo uaua e whakamahi ana koe ki te neke i ō ringa, ō waewae, me ētahi atu wāhanga o tō tinana.

Ko te rongo pai ko ngā huarahi maimoatanga kua pai ake te whakapai i ngā tau kua pahure. He tokomaha ngā tāngata e ora ana i tēnei āhuatanga ki te ora hauora, ora tonu i muri i te maimoatanga.

He aha ngā tohu o te Rhabdomyosarcoma?

Ko ngā tohu ka kitea e koe e whakawhirinaki ana ki te wāhi e whanake ana te mate pukupuku i roto i tō tinana. Mai i te mea ka taea e tēnei mate pukupuku te hanga tata ki tetahi wāhi, ka rerekē ngā tohu mai i te tangata ki te tangata.

Ko te tohu tuatahi tino noa ko te pupū, te pupuhi rānei e taea te kite i raro i te kiri. Ka rongo pea tenei pupū he pakari, ā, ka mamae pea, kaore rānei ina pa atu koe ki reira.

Ko ēnei ngā tohu ka pā atu ki a koe i runga i te wāhi e whanake ana te mate pukupuku:

• He pupū e kitea ana, e pa ana rānei e tupu ana i te wā
• Te pupuhi i ngā ringa, ngā waewae, ngā wāhanga tinana rānei
• Te mamae, te ngawari rānei i te wāhi e pā ana
• Te uaua ki te neke i te wāhanga tinana e pā ana
• Te toto ihu, te kōpū ihu rānei (ki te wāhi i te pito o te matenga)
• Ngā raruraru kanohi pēnei i te pupuhi, ngā huringa tirohanga rānei
• Te uaua ki te horomia, te manawa rānei (mō ngā mate pukupuku tata ki te korokoro)
• Ngā raruraru mimi, ngā ruinga rānei (mō ngā mate pukupuku i te riu)
• Te ngenge kore whakamaarama, te ngaro taimaha rānei

He mea nui kia mahara ko te nuinga o ēnei tohu ka taea te whai i ētahi atu take, he iti ake te kino. Heoi, ko tetahi pupū e tupu ana, e mau tonu ana rānei mo te rua wiki neke atu e tika ana kia kōrero ki tō tākuta.

He aha ngā momo o te Rhabdomyosarcoma?

Ka whakarōpū ngā tākuta i te rhabdomyosarcoma ki ētahi momo i runga i te ahua o ngā pūtau mate pukupuku i raro i te microscope. Ko te mārama ki tō momo motuhake ka āwhina i tō rōpū hauora ki te whakatakoto i te huarahi maimoatanga tino whai hua.

Ko ngā momo e rua matua ka rongo pea koe ko te embryonal me te alveolar rhabdomyosarcoma. Ka whakawhirinaki ia ki ngā rōpū tau, ngā wāhi tinana rānei.

Ko te embryonal rhabdomyosarcoma te momo tino noa, e 60% pea o ngā take katoa. Ka pā pea ki ngā tamariki iti, ā, ka whanake pea i te matenga, te kaki, te riu rānei. Ko tēnei momo te tikanga ka whakautu pai ki te maimoatanga.

Ko te alveolar rhabdomyosarcoma ka puta pea i ngā taitamariki me ngā tāne taitamariki. Ka whanake pea i ngā ringa, ngā waewae, te puku rānei, ā, ka kaha ake i te momo embryonal.

He momo iti ake ano, tae atu ki te pleomorphic rhabdomyosarcoma, e pā ana ki ngā pakeke, me te spindle cell rhabdomyosarcoma, he āhuatanga motuhake kei raro i te microscope.

He aha ngā take o te Rhabdomyosarcoma?

Ko te whakautu pono ko ngā tākuta kaore e tino mōhio ki te take o te rhabdomyosarcoma i te nuinga o ngā take. Pēnei i te maha o ngā mate pukupuku, ka puta pea mai i te whakakotahitanga o ngā take e tino mate ai ngā pūtau.

Ko te mea e mōhio ana tatou ko tēnei mate pukupuku e whanake ana ina puta ngā huringa ira i roto i ngā pūtau e tika ana kia waiho hei kiko uaua. Ka puta ēnei huringa i te tipu me te wehewehe kore mana o ngā pūtau, kaua e whai i tō rātou tauira whanaketanga noa.

He tokomaha ngā tāngata e whānau ana me ngā āhuatanga ira e piki ake ai tō rātou tūponotanga, ahakoa koinei te wāhi iti o ngā take. I te nuinga o te wā, ko ngā huringa ira e ārai ana ki tēnei mate pukupuku ka puta noa i te oranga o te tangata.

Kua honoa ngā take taiao pēnei i te whakamahinga radiation ki ētahi take, engari, koinei te wāhi iti rawa o ngā whakatau rhabdomyosarcoma katoa. Mō te nuinga o ngā whānau, kaore he mea i mahi rānei, i kore rānei e mahi i te whanaketanga o tēnei mate pukupuku.

Nōhea te kite i te tākuta mō te Rhabdomyosarcoma?

Me whakapiri atu koe ki tō tākuta ki te kite koe i tetahi pupū, te pupuhi rānei e kore e ngaro i roto i ngā rua ki te toru wiki. Ahakoa ko te nuinga o ngā pupū he kore kino, he pai tonu te tirotiro i mua atu i te muri atu.

Whakaritea he hui tika ina kite koe i te pupū e tupu ana, e rongo ana he pakeke, he mau tonu rānei, e mamae ana rānei. Kāre e tikanga ēnei āhuatanga he mate pukupuku, engari e tika ana kia whakawāteahia te tiaki hauora.

Ko ētahi atu tohu e tika ana kia karanga atu ki tō tākuta ko ngā tohu mau tonu pēnei i te toto ihu kore whakamaarama, ngā huringa tirohanga, te uaua ki te horomia, ngā raruraru mimi, ngā ruinga rānei e roa atu i ngā rā torutoru.

Ki te pā ana koe ki te mamae nui, te pupuhi tere, ngā tohu rānei e ārai ana ki ngā mahi o ia rā, kaua e tatari. Whakawhirinaki ki ō tūmanako – ko koe te tangata e tino mōhio ana ki tō tinana, ā, ko tetahi huringa mau tonu e tika ana kia arotakehia e te hauora.

He aha ngā take tūponotanga mō te Rhabdomyosarcoma?

Ko te mārama ki ngā take tūponotanga ka āwhina i te whakatakoto i tēnei āhuatanga, ahakoa he mea nui kia mōhio kei te whai take tūponotanga kāre e tikanga ka whanake tonu koe i te mate pukupuku. He tokomaha ngā tāngata e whai ana i ngā take tūponotanga kaore e whiwhi rhabdomyosarcoma, i te wā e mahi ana ētahi atu kaore he take tūponotanga e mohiotia ana.

Ko te tau te take tūponotanga tino nui me mōhio koe. Ko tēnei mate pukupuku te nuinga o ngā tamariki, me te haurua pea o ngā take katoa i whakatauhia i mua i te 10 tau. He pito iti ake ano i ngā taitamariki me ngā tāne taitamariki.

Ko ēnei ngā take tūponotanga matua kua kitea e ngā tākuta:

• Tau (tino noa i ngā tamariki i raro i te 10 tau me ngā taitamariki)
• Ngā āhuatanga ira motuhake pēnei i te Li-Fraumeni syndrome
• Neurofibromatosis momo 1
• Te maimoatanga radiation i mua
• Te hītori whānau o ētahi mate pukupuku
• Ētahi whakarerekētanga ira kua oti te whakawhiwhi

He mea tika te kōrero ko te nuinga o ngā tamariki me ngā taitamariki e whanake ana i te rhabdomyosarcoma kaore he take tūponotanga e mohiotia ana. Ka puta pea tēnei mate pukupuku noa iho, ka rongo pea he pouri, engari ko te tikanga kaore he mea i taea te mahi hei ārai i te whanaketanga.

He aha ngā raruraru pea o te Rhabdomyosarcoma?

Ahakoa he mea noa te manukanuka ki ngā raruraru, he mea whai hua te mārama ki te mea ka puta pea kia taea ai te mahi tahi me tō rōpū hauora ki te whakaoti i ngā take e puta mai ana. Ko te nuinga o ngā raruraru ka taea te whakahaere me te tiaki hauora tika.

Ko ngā raruraru ka pā atu ki a koe e whakawhirinaki ana ki te wāhi e noho ana tō mate pukupuku, me te whakautu rānei ki te maimoatanga. Ko ētahi pānga e pā ana tika ki te mate pukupuku, i te wā e puta mai ana ētahi atu i te maimoatanga.

Ko ēnei ngā raruraru matua hei mārama:

• Te horapa rohe ki ngā kiko me ngā whekau tata
• Te metastasis (te horapa ki ngā wāhanga tawhiti o te tinana)
• Ngā raruraru mahi i te wāhi e pā ana
• Ngā pānga o te chemotherapy, te radiation rānei
• Ngā pānga roa ki te tipu me te whanaketanga (i ngā tamariki)
• Ngā mate pukupuku tuarua (iti, engari pea i muri i ngā tau)
• Ngā raruraru hua mai i ētahi maimoatanga
• Ngā raruraru ngakau, ngā manawa rānei mai i ētahi rongoā

Ko te rongo whakamārama ko ngā huarahi maimoatanga hou e whai ana ki te whakaiti i ēnei raruraru i te wā e whakaora pai ana i te mate pukupuku. Ka tirotiro tata atu tō rōpū hauora ki a koe, ka whakarite i te maimoatanga kia rite ki te hiahia kia whakaitihia ngā tūponotanga.

Me pēhea te whakatau i te rhabdomyosarcoma?

Ko te whiwhi i te whakatau tika e whai ana i ētahi kaupae, ā, ka tīmata pea tō tākuta me ngā whakamātautau ngāwari i mua i te neke ki ētahi atu mea motuhake. Ko te tukanga i te kohikohi i ngā mōhiohio e taea ana mō tō āhuatanga motuhake.

Ka tīmata tō tākuta me te tirotiro tinana, te pa atu ki ngā pupū, te uiui hoki ki ō tohu me tō hītori hauora. Ka āwhina tēnei aromatawai tuatahi ki te arahi i ngā whakamātautau pea e hiahiatia ana i muri mai.

Ko te tukanga whakatau e whai ana i ngā whakamātautau whakaahua pēnei i ngā CT scans, ngā MRI scans, ngā ultrasounds rānei hei whiwhi i te whakaahua marama o te rahi me te wāhi o te mate pukupuku. Kāre he mamae ēnei whakamātautau, ā, ka āwhina i tō rōpū hauora ki te whakatakoto i ngā kaupae e whai ake nei.

He mea tika te biopsy hei whakau i te whakatau. I roto i tēnei tukanga, ka tangohia, ka tirotirohia te tauira iti o te kiko i raro i te microscope e te tohunga e kiia nei ko te pathologist.

Ka taea e ngā whakamātautau atu te whakauru i te mahi toto, ngā whakamātautau wheua wheua rānei, ngā whakamātautau whakaahua motuhake atu hei whakatau mena kua horapa te mate pukupuku ki ētahi atu wāhanga o tō tinana. Ka āwhina ēnei mōhiohio i tō rōpū hauora ki te whakawhanake i te mahere maimoatanga tino tika mō tō āhuatanga motuhake.

He aha te maimoatanga mō te Rhabdomyosarcoma?

Ko te maimoatanga mō te rhabdomyosarcoma te nuinga o te wā e whai ana i te huarahi whakakotahitanga, ko te tikanga pea ka whakamahi tō rōpū hauora i ētahi atu huarahi tahi. Ko tēnei rautaki whānui kua whakaatuhia he tino whai hua mō te whakatutuki i ngā hua pai rawa atu.

Ko te nuinga o ngā mahere maimoatanga e whakauru ana i te chemotherapy hei pūtake. Ka haere ēnei rongoā puta noa i tō tinana hei whai i ngā pūtau mate pukupuku kei hea rānei, ahakoa he iti rawa ki te kite me ngā scans.

He wāhi nui te pokanga ina taea te tango haumaru i te mate pukupuku kaore e puta he raruraru nui. I etahi wa ka puta te pokanga i te tīmatanga o te maimoatanga, i etahi atu wā ka whakaritea i muri i te whakaiti i te mate pukupuku e te chemotherapy.

Ka taea te tūtohutia te radiation therapy hei whai i ngā pūtau mate pukupuku kei te wāhi e noho ana tō mate pukupuku. Ka whakamahi tēnei maimoatanga i ngā hihi kaha ki te whakangaro i ngā pūtau mate pukupuku i te wā e whakaiti ana i te kino ki ngā kiko hauora.

Ka whakaritea tō mahere maimoatanga i runga i ngā take maha, tae atu ki te momo rhabdomyosarcoma kei a koe, te wāhi e noho ana, tōna rahi, me te horapa rānei. Ka whakamārama tō rōpū hauora i ia kaupae, ka āwhina hoki i a koe ki te mārama ki te mea e tatari ana koe.

Me pēhea te whakahaere i ngā tohu i te wā e maimoatia ana te Rhabdomyosarcoma?

Ko te whakahaere i ngā tohu me ngā pānga i te wā e maimoatia ana he wāhi nui o tō tiaki whānui. E hiahia ana tō rōpū hauora kia pai tō ahua i roto i tēnei tukanga, na kaua e whakaroa ki te kōrero mō ētahi take.

Ko te whakahaere mamae te nuinga o te wā he mea nui, ā, he maha ngā whiringa whai hua e wātea ana. Ka tūtohu pea tō tākuta i ngā kai whakaiti mamae kore rongoā, ngā rongoā rongoā rānei, ētahi atu tikanga whakamarie rānei i runga i ō hiahia.

Ko te ngenge he mea noa i te wā e maimoatia ana, na he mea nui te whakarongo ki tō tinana me te okioki ina hiahia koe. Ko ngā mahi ngawari pēnei i ngā hikoi poto ka taea te whakapakari i ō taumata kaha ina pai koe.

Ko te kai pai ka uaua pea i te wā e maimoatia ana, engari ko te kai pai e tautoko ana i te tukanga whakaora o tō tinana. Mahi tahi me te kai tohunga ina uaua ki te pupuri i tō hiahia kai, te pupuri rānei i te kai.

Noho hono atu ki ngā hoa me ngā whānau mō te tautoko hinengaro. He tokomaha ngā tāngata e kite ana he mea whai hua te kōrero ki te kaiāwhina, te uru rānei ki te rōpū tautoko hei hono atu ki ētahi atu e haere ana i ngā wheako rite.

Me pēhea te whakarite mō tō hui tākuta?

Ko te whakarite mō tō hui ka āwhina i a koe ki te whakamahi pai i tō wā me tō rōpū hauora. Ko te whai i ō patai me ō mōhiohio kua whakaritea i mua ka whakaiti i te ahotea, ka whakarite hoki kei te wareware koe i ngā take nui.

Tuhia katoa ō tohu, tae atu ki te wā i tīmata ai rātou, me te huringa rānei i te wā. Whakauruhia ngā mōhiohio mō ngā taumata mamae, te pānga o ngā tohu ki ō mahi o ia rā, me tetahi mea e pai ake ana, e kino ake ana rānei.

Mau mai he rārangi katoa o ngā rongoā katoa e inu ana koe, tae atu ki ngā rongoā rongoā, ngā rongoā kore rongoā, ngā huaora, me ngā taapiri. Whakauruhia hoki ētahi mate pāwera, ngā whakautu o mua ki ngā rongoā rānei.

Whakaritea he rārangi o ngā patai e hiahia ana koe ki te ui. Kaua e manukanuka ki te maha o ngā patai – e tatari ana tō rōpū hauora ki ēnei, e hiahia ana hoki ki te whakaoti i ō awangawanga katoa.

Whakaarohia te kawe mai i tetahi hoa whakawhirinaki, te mema whānau rānei ki a koe. Ka taea e rātou te āwhina i a koe ki te mahara ki ngā mōhiohio i kōrerohia i te wā o te hui, te whakarato hoki i te tautoko hinengaro.

He aha te mea nui mō te Rhabdomyosarcoma?

Ko te mea tino nui hei mārama mō te rhabdomyosarcoma ko te mea ahakoa he whakatau nui, kua pai ake te whakapai i ngā hua maimoatanga i ngā tekau tau kua pahure. He tokomaha ngā tāngata e ora ana i tēnei āhuatanga ki te ora hauora, ora tonu.

Ko te kite wawe me te maimoatanga tere e whakarereke ana i ngā hua. Ki te kite koe i tetahi pupū mau tonu, te pupuhi, ētahi atu tohu rānei e awangawanga ana, kaua e tatari ki te rapu i te tiaki hauora.

Kia mahara ko ia wheako o te tangata me te rhabdomyosarcoma he motuhake. Ka mahi tahi tō rōpū hauora me koe ki te whakawhanake i te mahere maimoatanga e rite ana ki tō āhuatanga, te whakaaro ki tō hauora whānui, ngā āhuatanga o tō mate pukupuku, me ō hiahia whaiaro.

Ko te whai i te pūnaha tautoko kaha e whakarereke ana i te wā e maimoatia ana. Kaua e whakaroa ki te whakawhirinaki ki ngā whānau, ngā hoa, ngā kaiwhakarato hauora, me ngā rōpū tautoko puta noa i tō haerenga.

Ngā patai e ui pinepinetia ana mō te Rhabdomyosarcoma

P1. He mate pukupuku mate tonu te rhabdomyosarcoma?

Kāo, ehara te rhabdomyosarcoma i te mate pukupuku mate tonu. Kua pai ake te whakapai i ngā reiti ora me ngā huarahi maimoatanga hou. Ko te tirohanga e whakawhirinaki ana ki ngā take maha tae atu ki te momo rhabdomyosarcoma, te wāhi e noho ana, te tawhiti o te horapa, me te whakautu pai rānei ki te maimoatanga. He tokomaha ngā tāngata, ina koa ngā tamariki, ka taea te whakaora me te maimoatanga tika.

P2. Ka hoki mai te rhabdomyosarcoma i muri i te maimoatanga?

Ae, ka taea e te rhabdomyosarcoma te hoki mai i muri i te maimoatanga, koia te take i nui ai ngā hui whakawhitiwhiti tonu. Heoi, he tokomaha ngā tāngata e mutu ana te maimoatanga kaore e kite i te hokinga mai. Ka tirotiro tata atu tō rōpū hauora ki a koe me ngā tirotiro me ngā scans kia kite wawe i tetahi hokinga mai pea ina tino taea te maimoatanga.

P3. E hia te roa o te maimoatanga mō te rhabdomyosarcoma?

Ka rerekē te roa o te maimoatanga i runga i tō āhuatanga motuhake, engari ko te nuinga o ngā mahere maimoatanga e roa ana i waenga i ngā marama 6 ki te tau. Ko te tikanga tenei e whakauru ana i ngā marama maha o te chemotherapy, ka taea te whakakotahi me te pokanga me te radiation therapy. Ka hoatu e tō rōpū hauora he waahanga wa motuhake ake i runga i tō mahere maimoatanga takitahi.

P4. Ka taea e ngā pakeke te whiwhi rhabdomyosarcoma, te pā rānei ki ngā tamariki anake?

Ahakoa he tino noa te rhabdomyosarcoma i ngā tamariki me ngā taitamariki, ka taea hoki e ngā pakeke te whanake i tēnei mate pukupuku. He iti ake te noa o ngā take pakeke, ā, i etahi wā ka rerekē te mahi i ngā take tamariki. Ka rerekē pea ngā huarahi maimoatanga mō ngā pakeke i ngā tamariki.

P5. He pānga roa te maimoatanga rhabdomyosarcoma?

Ka pā pea ētahi tāngata ki ngā pānga roa mai i te maimoatanga, ahakoa he tokomaha e ora ana kaore he raruraru nui e haere tonu ana. Ko ngā pānga roa pea ka taea te whakauru i ngā raruraru hua, ngā raruraru ngakau mai i ētahi rongoā chemotherapy, ngā mate pukupuku tuarua rānei i muri i ngā tau. Ka kōrero tō rōpū hauora ki a koe mō ngā tūponotanga pea, ka tirotiro hoki mō ēnei take i te wā e tiaki ana i muri mai.