He aha te Scleroderma? Ngā Tōmhanga, Ngā Take, me te Maimoatanga

Ko te scleroderma tētahi āhuatanga whakakino-tinana e whakaeke ana te pūnaha ārai mate o tō tinana i ngā kōpū hauora, ā, ka tupu ai te mātotoru me te pakeke o tō kiri me ngā kōpū hono. Whakaarohia he nui rawa te hanga collagen e tō tinana, te pūmua e hoatu ana te hanganga ki tō kiri me ō kōpū.

He rerekē te pānga o tēnei āhuatanga ki te tangata katoa. Ka pāngia etahi ki ngā huringa kiri ngawari, ā, ka pāngia ētahi atu ki ngā pānga whānui atu e pā ana ki ngā kōpū o roto. Ko te rongo pai, mā te tiaki hauora tika me ngā whakarerekētanga noho ora, ka ora pai te nuinga o te hunga e pangia ana e te scleroderma.

He aha ngā momo scleroderma?

E rua ngā momo matua o te scleroderma, ā, ko te mōhiotanga ki te momo pea kei a koe ka āwhina i te whakarite i tō mahere maimoatanga. Ka mahi tahi tō tākuta ki a koe ki te whakatau i te momo motuhake e hāngai ana ki ō tohumāto me ngā hua whakamātautau.

Te scleroderma kiri iti e pā ana ki tō kiri i ō ringa, waewae, mata, me ngā ringa raro. Ka tupu haere pea tenei momo i te iti ake, ā, ka roa pea ngā tau kia tupu katoa. He maha ngā tāngata o tēnei momo kei a rātou te āhuatanga e kiia nei ko te mate CREST, e whakauru ana i ngā kōhatu kārati kei raro i te kiri, ngā huringa tae i ngā matihao me ngā maihao, me te uaua ki te horomi.

Te scleroderma kiri whānui e pā ana ki ngā wāhi nui ake o tō kiri, ā, ka uru pea ki ngā kōpū o roto pērā i tō ngākau, ngā pūkahukahu, me ngā whatukuhu. Ka tupu pea tenei momo i te tere atu i te momo iti, i roto i ngā tau torutoru i muri i te tīmatanga o ngā tohumāto.

He mea noa hoki te systemic sclerosis sine scleroderma, he momo onge e pā ana ki ngā kōpū o roto, engari he iti rānei, kāore rānei ngā huringa kiri. Ka uaua pea te whakatau i tēnei momo, no te mea kaore ngā tohumāto kiri tuku iho kei reira.

He aha ngā tohumāto o te scleroderma?

Ka rerekē haere ngā tohumāto o te scleroderma i te tangata ki te tangata, engari ka tupu haere pea i roto i ngā marama, tau rānei. Ka whakaatu pea tō tinana i ngā tohu i ngā huarahi rerekē, ā, ko te mōhiotanga ki ēnei mea i te tīmatanga ka āwhina i a koe ki te whiwhi i te tiaki e hiahia ana koe i te wa iti ake.

Ko ngā tohumāto tino noa ka kitea e koe ko:

• Te mātotoru me te pīkoko o te kiri - Ka tīmata i ō matihao me ō ringa, katahi ka horapa pea ki ō ringa, mata, me tō pouaka
• Te āhuatanga Raynaud - Ka huri pango, kikorangi, whero rānei ō matihao me ō maihao ina whakaaturia ki te makariri, ki te ahotea rānei
• Te pupū i ō ringa me ō waewae - He tino kitea i te ata, i muri rānei i ngā wā kore mahi
• Te mamae me te pīkoko o ngā hononga - Pērā i te mate pūkahukahu, ka kino ake i te ata
• Te uaua ki te horomi - Ka rite pea te kai ki te piri i tō korokoro, i tō uma rānei
• Te ngakau pāpaku, te whakaheke wai rānei - Nā ngā huringa i tō esophagus
• Te poto o te manawa - Ina koa i te wā mahi tinana
• Te ngenge - Te ngenge rawa atu ahakoa te okioki tika

Ko ngā tohumāto onge engari nui atu ko te mare mare tonu, te ngaro taumaha kore whakamaarama, me ngā raruraru whatukuhu ka puta pea hei teitei te toto toto, huringa rānei i te mimi. Ki te pāngia koe e te maha o ēnei tohumāto tahi, he mea tika kia kōrero ki tō kaiwhakarato hauora.

He aha ngā take o te scleroderma?

Kāore i tino mōhiotia te take tika o te scleroderma, engari e whakapono ana ngā kairangahau ka tupu ina ka nui rawa te mahi o tō pūnaha ārai mate, ā, ka tīmata te whakaeke i ō kōpū hauora ake. Ka whakaoho tēnei i tō tinana ki te hanga nui rawa o te collagen, ā, ka tupu ai te mātotoru me te pakeke o te kiri me ngā kōpū.

He maha ngā take pea e mahi tahi ana ki te whakaoho i tēnei whakautu ārai mate:

• Te whakawhānuitanga ira - Ka taea e ētahi ira te whakapakari i a koe, ahakoa kaore te scleroderma e rere tika i roto i ngā whānau
• Ngā whakaoho taiao - Ko te whakaaturia ki ētahi matū, mate, mamae tinana rānei ka taea te whakaoho i te āhuatanga i roto i ngā tāngata e taea ana
• Ngā take homoni - Ka tupu ake te scleroderma i ngā wāhine i ngā tāne, e whakaatu ana pea he mahi ngā homoni
• Ngā raru pūnaha ārai mate - Ngā raruraru ki te whakahaere a tō pūnaha ārai mate i a ia ano

He mea nui kia mōhio kōrua ehara te scleroderma i te mea ka taea te hora, kāore hoki i te puta mai i tetahi mea i mahi koe, kāore rānei i mahi. Ka puta mai pea te āhuatanga i te mahi tahi uaua i waenga i ō ira me tō taiao.

He aha ngā take morearea mō te scleroderma?

Ahakoa tetahi ka taea te whiwhi scleroderma, ka taea e ētahi take te whakapiki ake i tō tūmanako ki te whiwhi i tēnei āhuatanga. Ka taea e te mōhiotanga ki ēnei take morearea te āwhina i a koe ki te tupato ki ngā tohumāto i te tīmatanga, ahakoa te whai take morearea kāore e tikanga ka tupu rawa te āhuatanga.

Ko ngā take morearea matua ko:

• Te ira tangata - E whā wā te nui ake te tūmanako o ngā wāhine ki te whiwhi scleroderma i ngā tāne
• Te tau - Ko te nuinga o te iwi ka whakatauhia i waenga i ngā tau 30 me te 50, ahakoa ka taea te puta i tetahi tau
• Te iwi me te momo - He nui ake ngā reiti o ngā Amerikana Āwherika me ngā Māori o Amerika, ā, ka taea te tupu ake o ngā momo kino ake
• Te hītori whānau - Ko te whai whānau tata e pangia ana e te scleroderma, tetahi atu āhuatanga whakakino-tinana rānei ka whakapiki ake i tō morearea
• Ngā whakaaturia taiao - Ngā whakaaturia mahi ki te puehu silica, ngā whakarewa organik, etahi atu matū rānei
• Ngā āhuatanga whakakino-tinana anō - Ko te whai āhuatanga pērā i te mate pūkahukahu rheumatoid, te lupus rānei ka taea te whakapiki ake i tō morearea

Kia mahara ko te nuinga o te iwi e whai ana i ēnei take morearea kāore e whiwhi scleroderma. Ko ēnei take anake te āwhina i ngā kairangahau ki te mōhio ki ngā tauira i te hunga pea ka nui ake te morearea ki te āhuatanga.

Nōhea te haere ki te tākuta mō te scleroderma?

Me whakaaro koe ki te haere ki te kaiwhakarato hauora ki te kite koe i ngā huringa kiri tonu, ina koa ki te mātotoru, pīkoko, kanapa rānei tō kiri i ō ringa, matihao, mata rānei. Ka taea e te whakatau i te tīmatanga me te maimoatanga te āwhina i te whakahaere i ngā tohumāto me te ārai i ngā raruraru.

Rapua te tiaki hauora ki te pāngia koe e:

• Te pīkoko, te mātotoru rānei o te kiri kāore e pai ake i roto i ngā wiki maha
• Te āhuatanga Raynaud hou, kino rānei, e hono ana ki ngā huringa kiri
• Te mamae me te pīkoko tonu o ngā hononga e whakaroa ana i ngā mahi o ia rā
• Te uaua ki te horomi, te ngakau pāpaku tonu rānei
• Te poto o te manawa kore whakamaarama, te mare mare tonu rānei
• Ngā huringa ohorere i te toto toto, te mahi whatukuhu rānei

Kaua e tatari ki te pāngia koe e te maha o ngā tohumāto tahi, ahakoa he ngawari pea. Ka taea e te whakauru i te tīmatanga te whakarereke nui i te whakahaere i te scleroderma me te ārai i ngā raruraru.

He aha ngā raruraru pea o te scleroderma?

Ahakoa te maha o te iwi e ora pai ana me te scleroderma mā te whakahaere tika, ka taea e te āhuatanga te pā ki ngā kōpū o roto. Ko te mōhiotanga ki ngā raruraru pea ka āwhina i a koe ki te mahi tahi me tō rōpū hauora ki te ārai, ki te hopu rānei i ngā raruraru i te tīmatanga.

Ko ngā raruraru tino noa ko:

• Ngā raruraru whatukuhu - Teitei te toto toto me te whakaiti i te mahi whatukuhu, ka taea te kino, engari ka taea te whakahaere mā te rongoā
• Ngā raruraru pūkahukahu - Te tohu o te kōpū pūkahukahu, teitei te toto toto rānei i ngā āti pūkahukahu, e puta ai te uaua ki te manawa
• Ngā raruraru ngākau - Te kore tika o te ngakau, te kore o te ngakau, te mumura rānei o te uaua ngākau
• Ngā raruraru kai - Te ngakau pāpaku kino, te uaua ki te tango kai, te aukati rānei o te whekau
• Ngā raruraru kiri - Ngā wheka i ngā pito matihao, ngā pito pehanga rānei e whakaora ana i te iti
• Ngā raruraru hononga - Te pīkoko tonu, te kōroke rānei i ngā ringa me ngā matihao

Ko ngā raruraru onge engari kino atu ko te teitei o te toto toto pūkahukahu, te mate whatukuhu me te toto toto teitei rawa, me ngā raru o te ngakau. Ko te tirotiro tonu me tō rōpū hauora ka āwhina i te hopu i ēnei take i te tīmatanga ina tino taea te whakaora.

Me pēhea te whakatau i te scleroderma?

Ko te whakatau i te scleroderma e whakauru ana i te whakamātautau tinana, te hītori hauora, me ngā whakamātautau motuhake. Ka titiro tō tākuta ki ngā tohu āhuatanga, ā, ka whakakore i ētahi atu āhuatanga ka puta pea ngā tohumāto rite.

Ko te tukanga whakatau e whakauru ana i te tikanga:

• Te whakamātautau tinana - Ka tirotirohia e tō tākuta tō kiri, ngā hononga, me ngā kōpū mō ngā tohu o te scleroderma
• Ngā whakamātautau toto - Rapua ngā antibody motuhake pērā i te ANA, anti-centromere, me te anti-topoisomerase I
• Ngā whakamātautau whakaahua - Ngā tirotiro CT o tō uma ki te tirotiro i ō pūkahukahu, ngā echocardiogram rānei ki te aromatawai i tō ngākau
• Ngā whakamātautau mahi pūkahukahu - Te ine i te pai o te mahi a ō pūkahukahu
• Te tātaritanga kiri - Kaore e hiahiatia, engari ka taea te mahi ki te kore te whakatau
• Te capillaroscopy nailfold - He tirotiro motuhake o ngā uaua toto iti i te pito o ō maihao

Ka taea e tō tākuta te tono atu i ētahi atu whakamātautau e hāngai ana ki ō tohumāto motuhake, pērā i ngā whakamātautau mahi whatukuhu, te tirotiro ngākau, ngā whakamātautau rānei ki te aromatawai i tō pūnaha kai. Ka roa pea te tukanga whakatau, engari ko te whakamātautau tino pai ka āwhina i a koe ki te whiwhi i te maimoatanga tino tika.

He aha te maimoatanga mō te scleroderma?

Ko te maimoatanga mō te scleroderma e aro ana ki te whakahaere i ngā tohumāto, te ārai i ngā raruraru, me te pupuri i tō kounga ora. Ahakoa kāore he rongoā, he maha ngā maimoatanga whai hua ka taea te āwhina i te whakahaere i te āhuatanga me te whakaiti i tōna tupu.

Ka whakauru pea tō mahere maimoatanga ki:

• Ngā rongoā mō ngā tohumāto kiri - Ngā maimoatanga i runga i te kiri me ngā rongoā pērā i te methotrexate, te mycophenolate rānei ki te whakaiti i te mumura
• Te whakahaere Raynaud - Ngā kaihoroi kaupapa kārati, ētahi atu rongoā rānei ki te whakapai ake i te rere toto ki ō matihao me ō maihao
• Te tautoko kai - Ngā kaihoroi pūmū pūkahukahu mō te ngakau pāpaku me ngā rongoā hei āwhina i ngā raruraru whekau
• Ngā maimoatanga pūkahukahu - Ngā rongoā whakakino-pūnaha ārai mate, ngā rongoā whāinga rānei mō te urupare pūkahukahu
• Te whakahaere toto toto - Ngā kaihoroi ACE hei tiaki i ō whatukuhu me te whakahaere i te toto toto
• Te rongoā tinana - Ngā whakakori hei pupuri i te ngawari me te kaha i ō hononga

Mō ngā raruraru onge pērā i te teitei o te toto toto pūkahukahu, ka taea e tō tākuta te tūtohutia ngā maimoatanga motuhake pērā i ngā kaihoroi kaiwhiwhi endothelin, te rongoā prostacyclin rānei. Ka whakaarohia pea te whakawhiti pūtau pūtau mō ngā take kino, tere te tupu, ahakoa koinei te mea e waiho ana mō ngā āhuatanga motuhake rawa.

Me pēhea te whakahaere i te scleroderma i te kāinga?

Ko te tiaki i a koe i te kāinga he wāhanga nui o te whakahaere i te scleroderma. Ka taea e ngā tikanga o ia rā ngāwari te āwhina i a koe ki te pai ake te rongo me te whakaiti pea i te tupu o ngā tohumāto.

Ko ēnei ngā mahi whai hua ka taea e koe te mahi:

• Pupuri i te mahana - Kakahu paparanga, whakamahia ngā karapu wera, ā, karohia ngā taiao makariri ki te ārai i ngā whakaeke Raynaud
• Tīaki i tō kiri - Whakamahia ngā whakakakahu ngawari, kore kakara i ia rā, ā, karohia ngā matū kino
• Noho mahi - Ko ngā whakakori ngawari pērā i te kauhoe, te hikoi, te yoga rānei ka āwhina i te pupuri i te ngawari o ngā hononga
• Kai iti, maha ngā kai - Ka āwhina tēnei ki te kai me te whakaiti i te ngakau pāpaku
• Kaua e pāpaho - Ka whakaiti te pāpaho i ngā raruraru rere toto, ā, ka taea te whakapiki ake i te kino o te pūkahukahu
• Whakahaere i te ahotea - Whakamahia ngā tikanga whakahaere ahotea, no te mea ka taea e te ahotea te whakaoho i ngā tohumāto

Me tirotiro hoki koe i ō tohumāto me te pupuri i ngā huringa hei kōrero ki tō rōpū hauora. Ko te tiaki kiri tonu, te inu wai, te whiwhi okioki tika ngā huarahi ngāwari engari whai hua ki te tautoko i tō hauora whānui.

Me pēhea te ārai i te scleroderma?

Aroha mai, kāore he huarahi e mohiotia ana ki te ārai i te scleroderma, no te mea kāore i tino mōhiotia tōna take tika. Heoi, ki te whai koe i ngā take morearea, ngā tohu tīmatanga rānei o te āhuatanga, he mahi ka taea e koe te mahi ki te whakaiti pea i tōna tupu.

Ahakoa kāore e taea e koe te ārai katoa i te scleroderma, ka taea e koe te:

• Karohia ngā whakaoho e mohiotia ana - Whakaitihia te whakaaturia ki te puehu silica me ētahi matū umanga ina taea
• Kaua e pāpaho - Ka taea e te pāpaho te whakaiti i ngā raruraru rere toto me te whakapiki ake i ngā raruraru
• Whakahaere i ētahi atu āhuatanga whakakino-tinana - Ko te maimoatanga tika o ngā āhuatanga e hono ana ka taea te āwhina i te whakaiti i te mahi pūnaha ārai mate whānui
• Noho hauora whānui - Ko te whakakori tonu, te kai pai, te whakahaere ahotea rānei ka tautoko i te toenga pūnaha ārai mate
• Whiwhi tirotiro tonu - Ko te kite i te tīmatanga me te maimoatanga ka taea te ārai i ngā raruraru

Ki te whai koe i ngā whānau e pangia ana e te scleroderma, ētahi atu āhuatanga whakakino-tinana rānei, kia tupato ki ngā tohumāto i te tīmatanga, ā, kōrerohia ō awangawanga ki tō kaiwhakarato hauora. Ahakoa kāore e taea te whakarerekē i ngā take ira, ka taea e te mōhiotanga te ārai i te whakatau i te tīmatanga me ngā hua pai ake.

Me pēhea te whakarite mō tō hui tākuta?

Ko te whakarite mō tō hui ka āwhina i a koe ki te whiwhi i te nuinga o tō wā me tō kaiwhakarato hauora. Ka taea e te whakarite pai te āwhina i te kōrero pai ake me te whakarite maimoatanga pai ake.

I mua i tō haerenga:

• Rārangihia ō tohumāto - Tuhia te wā i tīmata ai, te āhua o te huringa, me te aha e pai ake ai, e kino ake rānei
• Tuhingahia tō hītori hauora - Whakauruhia tetahi hītori whānau o ngā āhuatanga whakakino-tinana
• Mauria ngā rongoā katoa - Whakauruhia ngā rongoā rongoā, ngā rongoā kore rongoā, me ngā taapiri
• Whakaritehia ngā pātai - Tuhia te mea e hiahia ana koe ki te mōhio mō tō āhuatanga me ngā kōwhiringa maimoatanga
• Whakaarohia te mau mai i te tautoko - Ka taea e te mema whānau, te hoa rānei te āwhina i a koe ki te mahara ki ngā korero nui
• Mauria ngā hua whakamātautau o mua - Ki te kite koe i ētahi atu tākuta, mau mai ngā tārua o ngā whakamātautau me ngā rēkōta e tika ana

I te wā o tō hui, kaua e whakaroa ki te tono whakamārama ki te kore he mea mārama. E hiahia ana tō kaiwhakarato hauora ki te āwhina i a koe ki te mōhio ki tō āhuatanga me te maia ki tō mahere maimoatanga.

He aha te tango matua mō te scleroderma?

Ko te scleroderma he āhuatanga whakakino-tinana uaua e pā ana ki te tangata katoa i ngā huarahi rerekē, engari mā te tiaki hauora tika me te whakahaere whaiaro, ka ora pai te maha o te iwi, ka ora ora. Ko te mea nui ko te mahi tata me tō rōpū hauora ki te whakawhanake i te mahere maimoatanga e whakautu ana ki ō tohumāto me ō hiahia motuhake.

Kia mahara kei te haere tonu te rangahau scleroderma, ā, kei te whakawhanakehia tonutia ngā maimoatanga hou. Ko te mea nui ko te noho whakamārama mō tō āhuatanga, te whai i tō mahere maimoatanga, me te pupuri i te kōrero whakatuwhera me ō kaiwhakarato hauora.

Ahakoa ka uaua pea te noho me te scleroderma, kāore koe i te kotahi. Ka taea e ngā rōpū tautoko, i te tangata, i te ipurangi rānei, te hono atu i a koe ki ētahi atu e mōhio ana ki te mea e pā ana koe. He maha ngā tāngata e kite ana ko te whakawhiti wheako me ngā rautaki whakahaere ka āwhina i a rātou ki te maia ake i te whakahaere i tō rātou āhuatanga.

Ngā pātai e ui pinepinetia ana mō te scleroderma

He mea whakatūpato te scleroderma?

He waahanga ira kei te scleroderma, engari kāore i te whakatūpato tika pērā i ētahi atu āhuatanga. Ko te whai mema whānau e pangia ana e te scleroderma, tetahi atu āhuatanga whakakino-tinana rānei ka whakapiki ake i tō morearea, engari ko te nuinga o te iwi e pangia ana e te scleroderma kāore he whānau e pangia ana. Ka puta mai pea te āhuatanga i te whakakotahitanga o te morearea ira me ngā whakaoho taiao.

Ka taea te whakaora i te scleroderma?

I tēnei wā, kāore he rongoā mō te scleroderma, engari kāore tēnei e tikanga kāore e taea e koe te ora pai me te āhuatanga. He maha ngā maimoatanga whai hua ka taea te whakahaere i ngā tohumāto, te whakaiti i te tupu, me te ārai i ngā raruraru. Kei te haere tonu te rangahau, ā, kei te whakawhanakehia ngā rongoā hou e whakawhiwhia ana te tumanako mō te whakahaere pai ake i te heke mai.

E hā o te tere o te tupu o te scleroderma?

Ka rerekē haere te tupu o te scleroderma i te tangata ki te tangata. Ka pāngia etahi ki ngā huringa tere i roto i ngā tau torutoru, katahi ka pumau, ā, ka pāngia ētahi atu ki te tupu tino iti i roto i ngā tau maha. Ko te scleroderma kiri iti e tupu haere ana i te iti ake i te scleroderma kiri whānui. Ka tirotirohia e tō rōpū hauora tō āhuatanga, ā, ka whakarerekē te maimoatanga kia rite ki te hiahia.

Ka pāngia te haputanga i te scleroderma?

He mea taea te haputanga mō te maha o ngā wāhine e pangia ana e te scleroderma, engari e hiahia ana ki te tirotiro me te whakarite. Ka pai ake ngā tohumāto o ētahi wāhine i te wā haputanga, ā, ka pāngia ētahi atu ki ngā morearea nui ake o ngā raruraru. Ki te whakaaro koe ki te haputanga, kōrerohia tēnei me tō rōpū hauora i mua atu kia whakarite ai i te hua tino haumaru mōu me tō pēpi.

Ka pāngia te kai i ngā tohumāto scleroderma?

Ahakoa kāore he kai motuhake e taea te whakaora i te scleroderma, ka taea e ētahi whakarerekētanga kai te āwhina i te whakahaere i ngā tohumāto. Ko te kai iti, maha ngā kai ka āwhina i ngā raruraru kai, ko te karo i ngā kai wera rawa, makariri rānei ka taea te whakaiti i te kore pai. Ka kite etahi ko te whakaiti i ngā kai mumura ka āwhina i ngā tohumāto whānui, ahakoa he iti te mōhiohio pūtaiao. Kōrerohia tonutia ngā whakarerekētanga kai me tō rōpū hauora i mua i te mahi i ngā whakarerekētanga nui.