He aha te Syringomyelia? Tohutohu, Take, me te Maimoatanga

Ko te syringomyelia tētahi āhuatanga e hanga ai ngā pūngāwai kī kīia nei ko ngā syrinxes i roto i tōu tūāpapa. Ka taea e ēnei pūngāwai te whakawhānui haere i te wā, te whakapēhi i te kiko ngāwari o te pūnaha nerve e kawe ana i ngā karere i waenganui i tōu roro me tōu tinana.

Whakaarohia tō tūāpapa hei huarahi nui mō ngā tohu nerve. Ka hangaia ngā syrinxes, he rite ki ngā ara rori e taea te whakakore i tēnei pūnaha whakawhiti korero nui. Ka tupu haere te āhuatanga, koia ka puta mā te wā ngā tohu i ngā marama, i ngā tau rānei.

He aha ngā tohu o te syringomyelia?

Ko ngā tohu o te syringomyelia e whakawhirinaki ana ki te wāhi e hanga ai ngā pūngāwai i roto i tōu tūāpapa, me te rahi o rātou. Kaore te tokomaha o te iwi e kite i ngā tohu tika tonu, no te mea ka tupu haere te āhuatanga.

Ko ēnei ngā tohu tino noa ka pā atu ki a koe:

• Te ngaro o te āhua mamae me te pāmahana, inā te nuinga i ō ringa me ō ringaringa
• Te ngoikore o te uaua e tīmata ana i ō ringa me ō ringaringa
• Te pakari o tō tua, pokohiwi, ringa, kātua rānei
• Te mamae i tō kaki, ringa, tua rānei
• Ngā mamae o te upoko, inā te nuinga i muri o tō upoko
• Te uaua ki ngā pūkenga motuka pai penei i te whakakapi kakahu, te tuhituhi rānei

Ka pā atu ētahi tohu iti ki ētahi atu tangata. Ka uru pea ēnei ki ngā raruraru toenga, te uaua ki te hikoi, i ngā huringa rānei i te mahi o te putea. I ngā take onge, ka kite pea koe i te kōwhiu o te tuāpapa, i te whanaketanga uaua rānei i waenganui i ō taha maui me ō taha matau.

Ko te mea e whakawehi ana i te syringomyelia, ko te rerekētanga o ngā tohu mai i te tangata ki te tangata. He tohu ngawari ētahi, kāore e pā kino ki o rātou mahi o ia rā, engari ka pā atu ētahi atu huringa nui ki ō rātou mahi.

He aha ngā momo syringomyelia?

Ka wehewehe ngā tākuta i te syringomyelia ki ē rua ngā momo nui e whakaatu ana i te take o te āhuatanga. Ko te mārama ki ēnei momo e āwhina ana ki te whakamārama i te take o te hanga pūngāwai, ā, ka ārahi i ngā whakatau maimoatanga.

Ko te syringomyelia matua ka puta mai i te whānau mai me te raruraru e kiia nei ko te Chiari malformation. Ko te tikanga tenei, ko tētahi wāhanga o tō kiko roro e totoro ana ki tō kauae tuāpapa, e whakakore ana i te rere noa o te wai cerebrospinal i te taha o tō tūāpapa.

Ka tupu te syringomyelia tuarua i muri i te whara, te mate, i te mate pūngāwai rānei e pā ana ki tō tūāpapa. Ka taea e tēnei momo te puta i ngā marama, i ngā tau rānei i muri i te raruraru tuatahi, i te mea ko te kiko tohu, i ētahi atu huringa rānei e hanga ana i ngā ara rori i te rere o te wai.

He momo onge ano te syringomyelia whakawhiti korero, kei reira te pūngāwai e hono tika ana ki ngā wāhi wai i te taha o tō roro. He iti te noa o tēnei momo, engari ka puta pea i ngā āhuatanga tūāpapa atu.

He aha te take o te syringomyelia?

Ka tupu te syringomyelia ina whakakorea te rere noa o te wai cerebrospinal i te taha o tō tūāpapa. Ko te tikanga o tēnei wai te rere mā te taha o tō roro me tō tūāpapa, te whakarato i te tiaki me ngā kai.

He maha ngā āhuatanga ka whakakore i tēnei rere o te wai:

• Chiari malformation, kei reira te kiko roro e totoro ana ki te kauae tuāpapa
• Ngā whara o te tūāpapa mai i ngā aituā, i ngā pakū rānei
• Ngā mate pūngāwai tūāpapa e arai ana i ngā ara wai
• Ngā mate penei i te meningitis e puta ai te mumura me te tohu
• Te toto i te taha o te tūāpapa
• Te pokanga tūāpapa o mua e puta ai te hanga kiko tohu

I ngā take onge, ka taea te tupu o te syringomyelia kāore he take take. Ka karanga ngā tākuta i tēnei ko te syringomyelia idiopathic, ā, he iti ake te noa i ētahi atu momo.

Ina mutu te rere o te wai, ka taea te hangaia te pehanga, ā, ka hangaia ngā putea wai i roto i te kiko tūāpapa. I te wā, ka taea e ēnei putea te whakawhānui, ā, ka hangaia ngā pūngāwai tohu o te syringomyelia.

Nōhea te haere ki te tākuta mō te syringomyelia?

Me whakapiri atu koe ki tō tākuta ki te kite koe i ngā tohu mau tonu e pā ana ki ō mahi o ia rā. He mea nui te aromatawai wawe, no te mea ka taea te tupu o te syringomyelia i te wā ki te kore e maimoatia.

Rapua te tiaki hauora ki te pā atu ki a koe te mamae o te kaki, o te tua rānei, inā te nuinga ki te haere tahi me te ngoikore o ō ringa, o ō ringaringa rānei. He tohu whakatūpato nui ano ngā huringa i te āhua, penei i te ngaro o te kaha ki te kite i ngā pāmahana wera, i ngā pāmahana makariri rānei.

Waea atu ki tō tākuta wawe ki te puta mai ngā mamae upoko nui, inā te nuinga o aua mea e kino ake ana ina koe e hū, e ngāka rānei. He mea nui ano te arotake hauora ngā raruraru toenga, te uaua ki te hikoi, i ngā huringa rānei i te mahi o te putea.

Ki te whai koe i te hītori o te whara o te tūāpapa, Chiari malformation, i te pokanga tūāpapa rānei, he mea nui rawa te tirotiro i ēnei tohu. Ka taea e tō tākuta te āwhina ki te whakatau mena he hiahia ki te whakamātautau atu ki te tirotiro i te syringomyelia.

He aha ngā take morearea mō te syringomyelia?

Ka taea e ētahi take te whakapiki i tō tūponotanga ki te whanake i te syringomyelia. Ko te mārama ki ēnei take morearea e āwhina ana i a koe me tō tākuta ki te mataara mō ngā tohu pea.

Ko ēnei ngā take morearea tino nui:

• Te whai Chiari malformation, inā te momo I
• Te whara o te tūāpapa o mua, i te pakū rānei
• Te hītori o ngā mate pūngāwai tūāpapa, i ngā pūngāwai rānei
• Ngā mate o mua e pā ana ki te tūāpapa, ki te roro rānei
• Te pokanga tūāpapa o mua, i ngā mahi rānei
• Ētahi āhuatanga ira e pā ana ki te whanaketanga tūāpapa

Ka taea hoki te mahi a te tau, me ngā tohu e puta ana i waenganui i ngā tau 25 me te 40, ahakoa ka taea te whanaketanga o te āhuatanga i tetahi tau.

Kaore he rerekētanga i te pānga o te syringomyelia ki ngā tāne me ngā wāhine.

Ko te whai take morearea kāore e tikanga ka whanake koe i te syringomyelia. Kaore te tokomaha o te iwi e whai ana i ēnei take morearea e whanake i te āhuatanga, engari ka taea tonu te pānga ki ētahi atu kāore he take morearea marama.

He aha ngā raruraru pea o te syringomyelia?

Kaore he maimoatanga tika, ka taea e te syringomyelia te arahi ki ngā raruraru neurological tupu haere. Ko te rongo pai, ko te nuinga o ngā raruraru ka taea te aukati, i te whakaiti rānei me te tiaki hauora tika.

Ko ēnei ngā raruraru tino noa:

• Te ngoikore o te uaua tupu haere, inā te nuinga i ngā ringa me ngā ringaringa
• Te ngaro tonu o te āhua mamae me te pāmahana
• Te mamae roa e uaua pea te whakahaere
• Te scoliosis, i te kōwhiu rānei o te tuāpapa
• Te uaua ki te whakahaere i te putea, i te kopu rānei
• Te ngoikore nui e pā ana ki ngā mahi o ia rā

I ngā take onge, ka taea e te syringomyelia kore maimoatanga te arahi ki te ngoikore nui, ki te pararutiki rānei. Engari, he onge tēnei hua, inā te nuinga ina kitea, ina maimoatia tika te āhuatanga.

Ka taea e te taumata whakamātautau me te maimoatanga te āwhina ki te aukati i ēnei raruraru maha. Ko te tirotiro tonu me tō rōpū hauora e tuku ana i te whakauru wawe ki te tupu te āhuatanga.

Me pēhea te whakamātautau i te syringomyelia?

Ko te whakamātautau i te syringomyelia e hiahia ana ki ngā whakamātautau whakaahua motuhake e taea te kite i roto i tō tūāpapa. Ka tīmata tō tākuta me te hītori hauora tino pai me te whakamātautau tinana ki te mārama ki ō tohu.

Ko te whakamātautau taumata ko te whakaahua pūkaha maikuku (MRI) o tō tuāpapa. Ka taea e tēnei karapa taipitopito te whakaatu mārama i ngā pūngāwai kī i roto i tō tūāpapa, ā, ka āwhina ki te whakatau i tō rātou rahi me tō rātou wāhi.

Ka tono pea tō tākuta i te MRI o tō roro ki te tirotiro i te Chiari malformation, i ētahi atu āhuatanga rānei e āhei ana te take o te syringomyelia. I ētahi wā, ka hiahiatia ngā whakamātautau atu penei i ngā karapa CT, i te myelography rānei mō ngā mōhiohio taipitopito atu.

I te wā o tō arotake, ka whakamātautau tō tākuta i ō mahi whakaata, te kaha o te uaua, me te āhua. Ka aro nui rātou ki te pai o tō kaha ki te kite i te mamae, te pāmahana, me te pa ngawari i ngā wāhi rerekē o tō tinana.

He aha te maimoatanga mō te syringomyelia?

Ko te maimoatanga mō te syringomyelia e whakawhirinaki ana ki te whai koe i ngā tohu, me te take o te āhuatanga. Ki te kore koe e whai tohu, ka tono pea tō tākuta ki te tirotiro ata me ngā karapa MRI auau.

Ina hiahiatia te maimoatanga, ko te pokanga te tikanga nui. Ko te whāinga ko te whakahoki i te rere noa o te wai i te taha o tō tūāpapa, ā, te aukati i te tipu o ngā pūngāwai.

Ko ēnei ngā huarahi pokanga noa:

• Te whakaheke o muri o te fossa mō te syringomyelia e pā ana ki te Chiari
• Ngā mahi whakaheke syrinx ki te tango wai mai i ngā pūngāwai
• Te tango mate pūngāwai ki te puta he tipu e arai ana i te ara rori
• Te whakanoho shunt ki te arai i te rere o te wai
• Te wehewehe tūāpapa ina uru te kiko tohu

Ka taea e te pokanga te aukati i te tupu o ngā tohu, ā, ka taea te whakapai ake i ētahi raruraru o mua. Engari, he mea nui te mārama, ko te pokanga e aukati ana i te kino ake, kāore e whakahoki i ngā tohu katoa kua puta.

Ka kōrero tō neurologist i te huarahi pai mō tō āhuatanga motuhake. Ka rerekē te wā ora, engari ka taea e te nuinga o te iwi te tumanako ki ngā wiki maha ki ngā marama o te ora i muri i te pokanga tūāpapa.

Me pēhea te whakahaere i ngā tohu i te kāinga i te wā o te syringomyelia?

Ahakoa he mea nui te maimoatanga hauora mō te syringomyelia, he maha ngā huarahi ka taea te āwhina i a koe ki te whakahaere i ō tohu, ki te whakapai ake rānei i tō kounga ora i te kāinga.

Ka taea e ngā rautaki whakahaere mamae te āwhina. Ka taea e te maimoatanga wera ngawari, penei i ngā kaukau wera, i ngā papa wera rānei, te whakaora i te uaua o te uaua me te kore ngāwari. Ka kite ētahi i te āwhina o te whakatete ngawari, i te yoga rānei ki te pupuri i te ngawari.

He mea nui te tiaki i a koe mai i te whara, no te mea ka iti pea tō āhua. Tirohia te pāmahana wai mā te ata i mua i te kaukau, kakahuria ngā karapu ina whakahaere i ngā mea koi, ā, tirohia tō kiri auau mō ngā kotinga, i ngā tahuna rānei kāore pea koe i kite.

Ka taea e ngā mahi whakapakari tinana, ina whakaaetia e tō tākuta, te āwhina ki te pupuri i te kaha o te uaua me te ngawari. Ka taea hoki e te mahi whakamahi te whakarato i ngā rautaki whai hua mō te whakarite i ngā mahi o ia rā ki te mahi i ngā herenga.

Ka taea e ngā tikanga whakahaere ahotea penei i te whakaaroaro, i te whakapakari ngawari rānei te āwhina i a koe ki te whakahaere i ngā āhuatanga hinengaro o te noho me te āhuatanga roa. Kaua e whakaroa ki te rapu tautoko mai i ngā kaiāwhina, i ngā rōpū tautoko rānei ki te raruraru koe i ngā āhuatanga hinengaro.

Me pēhea te whakarite mō tō hui tākuta?

Ko te whakarite mō tō hui ka taea te āwhina ki te whakarite ka whiwhi koe i te nuinga mai i tō wā me tō tākuta. Tīmata mā te tuhi i ō tohu katoa, tae atu ki te wā i tīmata ai rātou, me te āhua o rātou huringa i te wā.

Hangaia tētahi rārangi o ngā rongoā, ngā taapiri, me ngā huaora katoa e inu ana koe. Huihuia hoki ngā mōhiohio mō ngā whara, ngā pokanga, i ngā āhuatanga hauora rānei o mua e pā ana pea ki ō tohu o nāianei.

Whakaritea ngā pātai e hiahia ana koe ki te ui ki tō tākuta. Ka hiahia pea koe ki te mohio mō ngā whiringa maimoatanga, te mea e tumanakohia ana, i te āhua o te pānga o te āhuatanga ki tō oranga o ia rā rānei. Kaua e manukanuka ki te ui i ngā pātai maha – e hiahia ana tō tākuta ki te āwhina i a koe ki te mārama ki tō āhuatanga.

Whakaarohia te kawe mai i tētahi hoa whakawhirinaki, i tētahi mema whānau rānei ki tō hui. Ka taea e rātou te āwhina i a koe ki te mahara ki ngā mōhiohio nui, ki te whakarato rānei i te tautoko hinengaro i te wā e āhei ana te toro.

Ki te whai koe i ngā ako whakaahua o mua, i ngā rēkōti hauora rānei e pā ana ki ō tohu, kawe mai ngā kōpe, i te whakarite rānei kia tukuna ki te tari o tō tākuta i mua i tō hui.

He aha te mea nui mō te syringomyelia?

Ko te syringomyelia tētahi āhuatanga nui engari ka taea te maimoatanga e pā ana ki te tūāpapa. Ahakoa ka āhei te whakatau i te whakawehi, he maha ngā tangata e whai syringomyelia ana e ora ana i ngā oranga tino, mahi me te tiaki hauora tika.

Ko te mea nui rawa hei mahara, ko te taumata whakamātautau me te maimoatanga tika ka taea te aukati i te tupu o te āhuatanga. Ki te pā atu ngā tohu ki a koe, kaua e tatari ki te rapu tiaki hauora.

Ko te mahi tata me tō rōpū hauora he mea nui mō te whakahaere tika i te syringomyelia. Ko te tirotiro auau, te whai i ngā tūtohu maimoatanga, me te noho mārama mō tō āhuatanga ka āwhina i a koe ki te whiwhi i ngā hua pai rawa.

Mahara ko te wheako o ia tangata me te syringomyelia he motuhake. Ka taea e tō tākuta te āwhina i a koe ki te mārama ki te mea e tumanakohia ana, ki te whakawhanake rānei i tētahi mahere maimoatanga e tika ana mō tō āhuatanga motuhake.

Ngā pātai uiui noa mō te syringomyelia

Ka taea te whakaora katoa i te syringomyelia?

Ahakoa kāore he rongoā e whakakore katoa i te syringomyelia, ka taea e te maimoatanga te aukati i tōna tupu, ā, te whakapai ake i ngā tohu. Ka taea e te pokanga te whakahoki i te rere noa o te wai, ā, te aukati i te tipu o ngā pūngāwai. He maha ngā tangata e kite ana i te whakapainga nui i ō rātou tohu i muri i te maimoatanga tika, ahakoa pea he mau tonu ētahi huringa ki te roa o te wā i mua i te maimoatanga.

He ira te syringomyelia?

Kāore te syringomyelia i whakawhiwhia tika, engari ka taea e ētahi āhuatanga take e arahi ana ki te rere i roto i ngā whānau. Ka taea e te Chiari malformation, ko te take tino noa o te syringomyelia, te whai waahanga ira i ētahi wā. Ki te whai koe i ngā mema whānau e whai Chiari malformation ana, i te syringomyelia rānei, he mea tika te kōrero ki tō tākuta, ahakoa ko te nuinga o ngā take ka puta kāore he hītori whānau.

E hohoro ana te tupu o te syringomyelia?

Ko te tupu o te syringomyelia e rerekē ana mai i te tangata ki te tangata. Ka pā atu ētahi huringa haere mā te wā, engari ka kite pea ētahi atu i ngā tohu e tupu ana atu. Ka mau tonu te tokomaha o ngā take mō ngā wā roa kāore he kino nui. Ko te tirotiro auau me ngā karapa MRI e āwhina ana i ngā tākuta ki te aroturuki i ngā huringa, ki te whakarite rānei i te maimoatanga.

Ka taea te ora i te oranga noa me te syringomyelia?

He maha ngā tangata e whai syringomyelia ana e ora ana i ngā oranga tino, hua. Ko te matua ko te mahi tahi me tō rōpū hauora ki te whakahaere tika i te āhuatanga. Ka hiahia pea ētahi ki te whakarite i ētahi mahi, engari ka taea e te nuinga te haere tonu ki te mahi, ki te whakapakari, ki te pai ki ō rātou hākinakina. Ko te maimoatanga wawe me te tirotiro auau e āwhina ana ki te whakarite i te kounga ora pai rawa.

He aha ngā mea me karo e au ki te whai syringomyelia au?

Ka whakarato tō tākuta i ngā aratohu motuhake e whakaatu ana i tō āhuatanga, engari i te nuinga, me karo koe i ngā mahi ka taea te arahi ki te whara o te tuāpapa, penei i ngā hākinakina hono, i ngā mahi rānei e nui ana te tūponotanga o te hinga. Kia tupato atu ki ngā pāmahana nui, no te mea ka iti pea tō āhua. Ka hiahia pea te whakaiti i ngā mahi nui, i te kawe mama rānei. Kōrero tonu ki tō rōpū hauora mō ngā herenga mahi, kaua e whakaaro.