He aha te Agenesis Whāngai? Tohutohu, Take, me te Maimoatanga

Ko te agenesis whāngai he āhuatanga onge ka whānau koe kahore he whāngai, kāore rānei he whāngai iti. Ka puta tēnei ina kore e tupu tika ngā kōpū whakahiu i te wā e whānau ana te pēpi, ā, ka pā ki te 1 o te 4,000 ki te 5,000 o ngā tāngata i whānau mai hei wāhine.

Ahakoa ka rongo pea koe i te nui o te āwangawanga, he mea nui kia mōhio koe ka taea te whakaora i tēnei āhuatanga. He tokomaha ngā tāngata he agenesis whāngai kei te ora pai tonu, kei te whai hononga ngākau nui hoki, mā te tiaki hauora tika me te tautoko.

He aha te agenesis whāngai?

Ko te tikanga o te agenesis whāngai, kāore i tupu tika tō whāngai i mua i te whānautanga. I te nuinga o ngā take, ka whānau koe me ngā taonga o waho e rite ana ki te tikanga, engari ko te tuwhera o te whāngai he iti rawa te roa, kāore rānei he roa.

Ko tēnei āhuatanga he wāhanga o te rōpū e kiia nei ko te agenesis Müllerian, ko te mate MRKH rānei (Mayer-Rokitansky-Küster-Hauser syndrome). Ko ngā ovaries e tupu ana i te tikanga, koia te tikanga he hauora ngā taumata o ngā homoni, ka kitea e koe ngā tohu o te pakeketanga, penei i te tupu o ngā u.

Ka taea hoki te kore, te iti rānei o te kopū i te nuinga o ngā take. Heoi, nā te mahi tika o ngā ovaries, ka whakaputa tonu koe i ngā homoni e hanga ai tō huringa marama, ahakoa kahore he wā.

He aha ngā tohu o te agenesis whāngai?

Ko te tohu matua ka taea e koe te kite ko te kore o ngā wā i te tau 16, ahakoa kua tupu ngā āhuatanga o te pakeketanga ki te tikanga. Ka rongo pea koe i te whakapohehe ina rite tonu te tupu o tō tinana ki ētahi atu huarahi.

Ko ēnei ngā tohu matua hei titiro atu:

• Kāore he wā ahakoa kua tupu ngā u me te huruhuru pubic ki te tikanga
• Uaua, kāore rānei e taea te whakauru i ngā tampons
• Te mamae, te kore rānei e taea te moe wahine
• He tuwhera whāngai iti rawa, he poka rānei kei te wāhi e tika ai te tomokanga whāngai
• Ngā taonga o waho e rite ana ki te tikanga
• Ngā huringa homoni noa penei i ngā huringa ngākau, te ngawari o ngā u, ahakoa kahore he wā

Ka kitea pea ēnei tohu i ngā tau o tō tauira, ina timata ngā wā. He mea noa te awangawanga, te whakapohehe rānei ki te kitea ēnei tohu.

He aha ngā take o te agenesis whāngai?

Ka puta te agenesis whāngai nā ngā huringa whanaketanga i ngā marama tuatahi o te hapu. Kāore ngā hanganga e hanga ana i te whāngai me te kopū, e kiia nei ko ngā ducts Müllerian, e tupu ana ki te tikanga.

Kāore i tino mōhiotia te take tika, engari e whakapono ana ngā kairangahau he whakakotahitanga o ngā take ira me ngā taiao. I te nuinga o ngā take, ka puta noa i te wā e whānau ana te pēpi, kāore i te whakawhiwhia mai i ngā mātua.

I etahi wā, ka taea e ngā rerekētanga ira te whai wāhi. Ko te mea onge, ka hono pea ki ētahi atu āhuatanga ira, engari mō te nuinga o ngā tāngata, ka puta hei rerekētanga whanaketanga motuhake kahore he hītori whānau mārama.

He aha ngā momo agenesis whāngai?

E rua ngā momo matua o te agenesis whāngai, ā, ko te mōhio ki te momo kei a koe ka āwhina i ngā whiringa maimoatanga. Ko te wehewehenga e whakawhirinaki ana ki te aha atu ngā hanganga whakahiu e pā ana.

Ko te momo 1 agenesis whāngai e pā ana ki te kore, te iti rānei o te whāngai. Ka tupu ngā kopū me ngā tūpū fallopian ki te tikanga, koia te tikanga ka rongo pea koe i te mamae o te kopū ia marama i te wā e haere ana tō tinana i ngā huringa marama kahore he huarahi hei puta mai te toto marama.

Ko te momo 2 agenesis whāngai, he mea noa ake, e pā ana ki te kore, te iti rawa rānei o te whāngai me te kopū. Ko te nuinga o te wā he wāhanga tēnei o te mate MRKH. Kāore koe e kite i ngā wā, i te mamae rānei e pā ana ki te kopū, nā te kahore o te papanga kopū hei maka.

Nōhea te haere ki te taote mō te agenesis whāngai?

Me kōrero koe ki te kaiwhakarato hauora mena kāore i tīmata tō wā i te tau 16, ina koa ki te kua tupu ngā tohu o te pakeketanga penei i te tupu o ngā u ki te tikanga. Ka taea e te aromatawai wawe te homai i ngā whakautu me te rangimarie o te ngākau.

He mea nui hoki te rapu tohutohu hauora mena ka rongo koe i te mamae i te wā e whakauru ana i te tampon, i te mahi wahine rānei. Ka rongo pea koe i te whakama ki te kōrero mō ēnei take, engari kua whakangungua ngā kaiwhakarato hauora ki te whakahaere i ēnei kōrero me te ngākau mahaki me te mahi ngaio.

Kaua e whakaroa te rapu awhina mena kei te awangawanga koe, kei te pouri rānei mō ēnei tohu. Ka taea e te tautuhi mārama te tuku i ngā whiringa maimoatanga me te hono atu ki ngā rauemi tautoko ka taea te whakarereke nui ki tō oranga.

He aha ngā take morearea mō te agenesis whāngai?

Ka puta noa te agenesis whāngai i te nuinga o ngā take, koia te tikanga kahore he take morearea motuhake ka taea e koe te whakahaere, te kī rānei. Ka puta i te wā e whānau ana te pēpi, ahakoa te hītori hauora o tō whānau, ngā āhuatanga noho rānei.

Heoi, ko ētahi āhuatanga ira onge ka taea te whakapiki ake i te tūponotanga o te agenesis whāngai. Kei roto i ēnei ngā rerekētanga karakōpū, ngā mate ira rānei e pā ana ki ngā pūnaha tinana maha, ahakoa ko ēnei anake te iti o te ōrau o ngā take.

Ko te whai hītori whānau o ngā rerekētanga ara whakahiu ka taea te whakapiki ake i te morearea, engari he mea onge tēnei. Ko te nuinga o ngā tāngata he agenesis whāngai kahore he hītori whānau o ngā āhuatanga rite, koia te tikanga he mea kore e taea te kī.

He aha ngā raruraru pea o te agenesis whāngai?

Ko ngā raruraru matua e pā ana ki te rere o te toto marama me ngā hononga ngākau, engari ka taea te whakahaere ēnei mā te maimoatanga tika. Ko te mōhio ki ngā raruraru pea ka āwhina i a koe ki te whakatau i ngā whakatau e pā ana ki tō tiaki.

Mena he momo 1 agenesis whāngai koe me te kopū e mahi ana, ka taea e te toto marama te kohikohi ia marama, ka puta he mamae nui o te kopū e kiia nei ko te hematocolpos. Me rapu awhina hauora tere tēnei hei ārai i ngā raruraru atu penei i te mate, te kino rānei ki ngā kōpū tata.

Ka puta ngā rerekētanga whatukuhu me te ara mimi i te 25-30% o ngā tāngata he agenesis whāngai. Kei roto pea i ēnei te whai i tetahi whatukuhu, ngā rerekētanga āhua whatukuhu, ngā rerekētanga wāhi ara mimi rānei e kore e tino puta he tohu, engari me aroturuki.

Ka taea te nui o ngā pānga hinengaro me te ngākau, ina koa e pā ana ki te ahua o te tinana, ngā hononga, me ngā āwangawanga mo te whānautanga. He tokomaha ngā tāngata e pā ana ki te awangawanga, te pouri rānei, ngā wero hononga rānei, koia te take he wāhanga nui o te tiaki whānui te tautoko hinengaro.

Me pēhea te tautuhi i te agenesis whāngai?

Ko te tautuhi e tīmata ana i te tirotiro tinana me te kōrero mō te hītori hauora me tō kaiwhakarato hauora. Ka tirotirohia e rātou ngā taonga o waho o tō tinana, ka ngana pea ki te kimi i te tuwhera whāngai hei aromatawai i tōna hohonutanga.

Ka whakarato te tātaritanga MRI i ngā whakaahua taipitopito o ngā kōpū whakahiu o roto. Ka āwhina tēnei ki te whakatau mena kei reira ngā kopū me ngā ovaries, me te pēhea o tō rātou wāhi, e ārahi ana i ngā whakatau maimoatanga.

Ka tirotirohia e ngā whakamātau toto ngā taumata homoni hei whakau i te mahi tika o ngā ovaries. Ko ēnei whakamātau e whakaatu ana i ngā tauira homoni wāhine noa, e āwhina ana ki te wehewehe i te agenesis whāngai i ētahi atu āhuatanga ka puta he wā kahore.

I etahi wā, ka taea te whakamahi i te ultrasound hei tātaritanga whakaahua tuatahi. Heoi, ko te MRI te nuinga o te wā e whakarato ana i ngā korero taipitopito atu mō ngā hanganga o roto, ā, e whakaarohia ana ko te paerewa koura mō te tautuhi.

He aha te maimoatanga mō te agenesis whāngai?

Ko te aro o te maimoatanga ki te hanga i tetahi whāngai e mahi ana e tuku ana i ngā hononga ngākau pai. He whiringa pokanga me ngā whiringa kore pokanga, ā, ko te whiringa pai e whakawhirinaki ana ki tō āhuatanga takitahi me ngā hiahia.

Ko te maimoatanga kore pokanga e whakauru ana i te whānui whāngai, kei reira koe e totoro haere ai i te kiko whāngai mā ngā mea motuhake i hangaia. Me whai manawanui tēnei tukanga, ā, ko te nuinga o te wā ka roa i ngā marama maha, engari ka taea te hanga i tetahi whāngai e mahi ana kahore he pokanga.

Ko ngā whiringa pokanga e whakauru ana i ngā tikanga rerekē mō te hanga i tetahi ara whāngai. Ko te tukanga McIndoe e whakamahi ana i ngā kiko i whakawhitihia, ko te vaginoplasty whekau rānei e whakamahi ana i tetahi wāhanga o te whekau hei hanga i te papanga whāngai. Ka kōrero tō taote mō te huarahi e pai ana mō tō tinana.

He mea nui te wā o te maimoatanga me te rite ki tō whakarite mō ngā hononga ngākau. Ko te nuinga o ngā tohunga e tūtohutia ana te tatari kia rite koe ki te ngākau, kia whai hoa tautoko hoki, nā te mea ka pai ake te angitu o te maimoatanga.

Me pēhea te whakahaere i te agenesis whāngai i te kāinga?

Mena kei te whakamahi koe i ngā mea whānui whāngai hei wāhanga o tō maimoatanga, he mea nui te mau tonu hei angitu. Whai i te kaupapa o tō kaiwhakarato hauora, nā te mea ka āwhina te whakamahinga noa ki te pupuri me te whakapiki ake i te hohonutanga whāngai.

Hangaia he wāhi mārama, tūturu mō ngā hui whānui. Whakamahia ngā mea whakamakuku e tūtohu ana tō rōpū hauora, ā, tangohia tō wā kia kore ai e mamae, e whara rānei.

He mea nui te tiaki hinengaro i te wā o te maimoatanga. Whakaarohia te uru atu ki ngā rōpū tautoko, i runga i te ipurangi, i te tangata rānei, kei reira koe ka taea te hono atu ki ētahi atu e mōhio ana ki tō wheako. He tokomaha ngā tāngata e kite ana i te whakamarie nui i ēnei hapori.

Pupuri i te kōrero whakatuwhera me tō rōpū hauora mō ngā āwangawanga, ngā wero rānei e pā ana ki a koe. Ka taea e rātou te whakarereke i tō mahere maimoatanga, te whakarato rānei i ngā rauemi atu hei tautoko i tō ahunga whakamua.

Me pēhea te whakarite mō tō hui taote?

Tuhia katoa ō tohu me te wā i tīmata ai, tae atu ki ngā kōrero mō tō hītori marama me tetahi mamae, te kore rānei e pai e kitea ana e koe. Ka āwhina ēnei korero i tō taote ki te mōhio tika ki tō āhuatanga.

Whakaritea he rārangi o ngā pūrongo e hiahia ana koe ki te ui. Ko ngā pūrongo noa e whakauru ana i ngā whiringa maimoatanga, ngā reiti angitu, te wā mō te whakapai ake, me te pēhea o te āhuatanga ka pā ki ō hononga, ngā mahere whānau rānei i muri mai.

Whakaarohia te kawea mai i tētahi hoa, mema whānau rānei hei tautoko, ina koa ki te kei te awangawanga koe mō te hui. Ka taea e tetahi kei reira te āwhina i a koe ki te mahara ki ngā korero nui me te whakarato i te whakamarie hinengaro.

Kia rite ki te kōrero mō ngā kōrero tūturu mō tō tinana me ngā hononga. Kia mahara ko ngā kaiwhakarato hauora he tohunga e whakahaere ana i ēnei kōrero i ia rā, kahore hoki he whakahe.

He aha te mea nui mō te agenesis whāngai?

Ko te agenesis whāngai he āhuatanga ka taea te whakaora, kāore hoki e ārai ki tō kaha ki te whai hononga ngākau nui, ki te ora harikoa rānei. Mā te tiaki hauora tika me te tautoko, ka taea e te nuinga o ngā tāngata te whakatutuki i ngā hua pai.

Ko te tautuhi wawe me te whakarite maimoatanga ka homai ngā hua pai rawa atu, ka āwhina hoki ki te whakautu i ngā āwangawanga hinengaro pea kei a koe. Ko te mahi tahi me ngā kaiwhakarato hauora whai wheako e mōhio ana ki tēnei āhuatanga ka whakarite kia whiwhi koe i te tiaki tika.

Kia mahara ko tēnei āhuatanga e pā ana ki te tokomaha o ngā tāngata, kāore hoki koe i te kotahi i roto i tēnei wheako. Ka taea e ngā rōpū tautoko, te tohutohu, me te maimoatanga hauora te whai wāhi nui ki te āwhina i a koe ki te haere i tēnei haerenga.

Ngā pūrongo e ui pinepinetia ana mō te agenesis whāngai

Ka taea e au te hapu mena he agenesis whāngai kei a au?

Ko te hapu e whakawhirinaki ana ki te whai koe i te kopū me ngā ovaries e mahi ana. Mena he noa ngā ovaries engari kāore he kopū (Momo 2), kāore e taea e koe te mau i te hapu, engari ka taea te whakamahi i ō hua mō te whakakapi. Mena he kopū kei a koe (Momo 1), ka taea pea te hapu i muri i te maimoatanga i hanga ai tetahi ara whāngai.

Ka pā te maimoatanga mō te agenesis whāngai ki te makona moepuku?

Ko te nuinga o ngā tāngata e whakaoti ana i te maimoatanga pai e pūrongo ana mō ngā hononga ngākau pai. Ka taea e ngā maimoatanga pokanga me ngā kore pokanga te hanga i tetahi whāngai e mahi ana ki te tikanga mō te mahi moepuku. Ko te mea nui ko te whai tonu i te maimoatanga me te pupuri i ngā hua e ai ki tō rōpū hauora.

E hia te roa o te maimoatanga kia mahi?

Ko te whānui kore pokanga e roa ana i te 3-6 marama o ngā hui ia rā kia taea ai te hohonutanga tika. Ko ngā mahi pokanga e hiahia ana ki te wā whakaora o te 6-8 wiki, ka whai ake te pupuri tonu. Ka homai e tō kaiwhakarato hauora ngā wā motuhake e whakawhirinaki ana ki tō huarahi maimoatanga i whiriwhiria.

He mea whakawhiwhia mai te agenesis whāngai?

I te nuinga o ngā take, ka puta noa te agenesis whāngai, kāore i te whakawhiwhia mai i ngā mātua. Ahakoa ko ētahi āhuatanga ira onge ka taea te whakapiki ake i te morearea, ko te nuinga o ngā take ka puta kahore he hītori whānau. Ko te whai i tēnei āhuatanga kāore e whakapiki nui ake i te morearea mō ō tamariki i muri mai.

Ka hiahia au ki te tiaki hauora ora mo tēnei āhuatanga?

I muri i te maimoatanga pai, ka hiahia koe ki ngā hui aroturuki noa hei whakarite kia mau tonu te mahi pai o ngā mea katoa. Mena ka whiriwhiri koe i te whānui, me pupuri koe i te kaupapa hei tiaki i te hohonutanga whāngai. Ko te nuinga o ngā tāngata ka hiahia anake ki ngā tirotiro ia tau, rite tonu ki te tiaki gynecological noa.